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Reducing burden and anxiety for caregivers of veterans with traumatic brain injury and dementia: Randomized controlled trial of the resources for enhancing all caregivers' health-Hope intervention. 减轻创伤性脑损伤和痴呆退伍军人照顾者的负担和焦虑:增强所有照顾者健康希望干预资源的随机对照试验
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-07-31 DOI: 10.1037/rep0000632
Linda O Nichols, Jennifer Martindale-Adams, Ronald T Seel, Jeffrey K Zuber, Robert Perera, Paul B Perrin

Purpose/objective: Caregivers of veterans with comorbid traumatic brain injury (TBI) and dementia face many challenges managing their loved ones' neurobehavioral functioning and, importantly, their own well-being. This study developed and tested Resources for Enhancing All Caregivers' Health (REACH) Hope, which provides caregivers with one-on-one telehealth education, support, skills building, and personalized digital information.

Method: Caregivers (N = 110) of veterans with both TBI and dementia were randomly assigned to either REACH Hope (n = 56) or a waitlist-control group (n = 54) for 3 months; waitlist participants then received REACH Hope. Data collection occurred by telephone at baseline, 3 months (postintervention/waitlist switch), 6 months, and 9 months (for waitlist-control only). The 12-item short-form Zarit Burden Interview (ZBI-12) at 3 months (posttreatment) was the primary outcome. Secondary outcomes included caregiver depression, anxiety, self-efficacy, and number of veteran safety risks.

Results: REACH Hope reduced burden and anxiety for caregivers with moderate to high levels of burden and anxiety compared to the waitlist group. Caregivers with ZBI-12 scores ≥ 21 had increasing treatment benefits with higher burden. Caregivers with Generalized Anxiety Disorder-7 scores ≥ 13 showed the same pattern for higher anxiety levels. There were no significant treatment group effects for depression, self-efficacy, or veteran safety.

Conclusion: This is the first clinical trial to evaluate the efficacy of a telehealth intervention for caregivers of veterans with both TBI and dementia. REACH Hope represents the first evidence-based intervention of its kind and one that warrants further study and implementation. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目的:患有合并创伤性脑损伤(TBI)和痴呆症的退伍军人的护理人员在管理其亲人的神经行为功能以及更重要的是他们自己的健康方面面临许多挑战。本研究开发并测试了“提高所有护理人员健康希望资源”(REACH),该资源为护理人员提供一对一的远程医疗教育、支持、技能培养和个性化数字信息。方法:将同时患有TBI和痴呆的退伍军人护理人员(N = 110)随机分为REACH Hope组(N = 56)和候补对照组(N = 54),为期3个月;然后,候选名单参与者接受了REACH Hope。在基线、3个月(干预后/候补名单切换)、6个月和9个月(仅为候补名单对照)时通过电话收集数据。治疗后3个月的12项简短的Zarit负担访谈(ZBI-12)是主要结局。次要结局包括照顾者抑郁、焦虑、自我效能和退伍军人安全风险。结果:与等候名单组相比,REACH Hope减轻了中度至高度负担和焦虑的护理人员的负担和焦虑。ZBI-12评分≥21分的照顾者治疗获益增加,负担加重。广泛性焦虑障碍-7评分≥13的照顾者表现出同样的模式,焦虑水平较高。治疗组在抑郁、自我效能或退伍军人安全方面没有显著的效果。结论:这是第一个评估远程医疗干预对创伤性脑损伤和痴呆退伍军人护理人员疗效的临床试验。REACH Hope是第一个基于证据的干预措施,值得进一步研究和实施。(PsycInfo Database Record (c) 2025 APA,版权所有)。
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引用次数: 0
Contending with disability-based minority stressors: Adapting the minority stress model to people with disabilities. 与基于残疾的少数压力源抗争:将少数压力模型应用于残疾人。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-07-28 DOI: 10.1037/rep0000633
Robert B Manning, Rebecca Cipollina, Kathleen R Bogart, Sarah R Lowe, Jonathan M Adler, Joan M Ostrove, Michelle R Nario-Redmond, Katie Wang

Purpose/objective: People with disabilities (PWDs) are at elevated risk for depression compared to their nondisabled peers (Okoro et al., 2021). Experiences of ableism and emotion dysregulation are identified risk factors for depression among disabled adults (Almeida et al., 2017; Wang et al., 2022). This study applies a minority stress lens, originally developed among sexual minorities, to a sample of PWDs, specifically, by examining distal (i.e., interpersonal and structural ableism) and proximal (i.e., internalized ableism and disability concealment) minority stressors as predictors of emotion dysregulation and depressive symptoms in a cross-disability sample.

Research method/design: U.S. adults (N = 162) with a range of disabilities completed an online survey in Fall 2022 assessing all model variables. A cross-sectional mediation analysis examined emotion dysregulation as a mechanism linking distal and proximal minority stressors to depressive symptoms. The model controlled for comorbid disability status to account for differences in depression among participants with multiple disabilities.

Results: As hypothesized, emotion dysregulation mediated the relationships between proximal minority stressors, internalized ableism, B = 0.12, 95% confidence interval (CI) [0.02, 0.23], and disability concealment (B = 0.13, 95% CI [0.03, 0.23]) and depressive symptoms. Ableist discrimination had a significant direct effect on depressive symptoms (B = 0.08, p = .008) but not a significant indirect effect through emotion dysregulation.

Conclusion/implications: Findings highlight emotion dysregulation as a mechanism through which proximal minority stressors are associated with depressive symptoms among PWDs, underscoring the need to target minority stressors in mental health interventions for disabled adults. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目的:与非残疾同龄人相比,残疾人(PWDs)患抑郁症的风险更高(Okoro et al., 2021)。残疾歧视和情绪失调经历是残疾成年人抑郁的危险因素(Almeida et al., 2017;Wang et al., 2022)。本研究将最初在性少数群体中开发的少数群体压力透镜应用于残疾人样本,具体而言,通过检查远端(即人际和结构性残疾歧视)和近端(即内化残疾歧视和残疾隐瞒)少数群体压力源作为跨残疾样本中情绪失调和抑郁症状的预测因子。研究方法/设计:美国成年人(N = 162)在2022年秋季完成了一项在线调查,评估了所有模型变量。一项横断面中介分析检验了情绪失调作为远端和近端少数压力源与抑郁症状联系的机制。该模型控制了共病残疾状态,以解释多重残疾参与者的抑郁差异。结果:根据假设,情绪失调介导了近端少数压力源、内化残疾(B = 0.12, 95%可信区间(CI)[0.02, 0.23])和残疾隐瞒(B = 0.13, 95% CI[0.03, 0.23])与抑郁症状之间的关系。体能歧视对抑郁症状有显著的直接影响(B = 0.08, p = 0.008),但对情绪失调的间接影响不显著。结论/启示:研究结果强调了情绪失调是近端少数压力源与残疾患者抑郁症状相关的机制,强调了在残疾成人心理健康干预中针对少数压力源的必要性。(PsycInfo Database Record (c) 2025 APA,版权所有)。
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引用次数: 0
Trajectories of fear avoidance behavior and recovery after mild traumatic brain injury: Findings from the Toronto Concussion Study. 轻度创伤性脑损伤后恐惧回避行为和恢复的轨迹:来自多伦多脑震荡研究的发现。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-07-03 DOI: 10.1037/rep0000619
Billy Lam, Ana Mikolić, Mark Bayley, Tharshini Chandra, Paul Comper, Evan Foster, Tavina Sathish, Noah D Silverberg

Objective: Fear avoidance behavior is associated with more severe postconcussion symptoms after mild traumatic brain injury (mTBI). However, it remains unclear when after injury fear avoidance behavior becomes a barrier to recovery. This study investigated changes in early fear avoidance behavior after mTBI and its associations with postconcussion symptoms.

Method: Adults with concussion (N = 308) were prospectively recruited from an outpatient concussion clinic in Ontario, Canada. They completed measures assessing fear avoidance behavior (Fear Avoidance Behavior after Traumatic Brain Injury Questionnaire) and postconcussion symptoms (Sport Concussion Assessment Tool-5) at Weeks 2 and 8 postinjury (N = 216).

Results: Based on normative reference values, the two most common postconcussion trajectories of fear avoidance behavior were those with persistently low and those with initially elevated but decreasing fear avoidance behavior. Using linear regression, we found an interaction effect between fear avoidance behavior at Weeks 2 and 8, indicating that participants with persistently elevated fear avoidance behavior (at Weeks 2 and 8) had more severe postconcussion symptoms at Week 8, whereas participants with initially elevated but decreasing fear avoidance behavior tended to recover well.

Conclusion: Early fear avoidance behavior often decreases, but when it does not, it is associated with worse recovery from mTBI. These findings may inform the timing and design of interventions targeting fear avoidance behavior in patients with mTBI. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的:恐惧回避行为与轻度创伤性脑损伤(mTBI)后更严重的脑震荡后症状相关。然而,受伤后恐惧回避行为何时成为康复的障碍尚不清楚。本研究调查了mTBI后早期恐惧回避行为的变化及其与脑震荡后症状的关系。方法:从加拿大安大略省一家脑震荡门诊前瞻性招募成人脑震荡患者(N = 308)。他们在受伤后第2周和第8周完成了恐惧回避行为(创伤性脑损伤后恐惧回避行为问卷)和脑震荡后症状(运动脑震荡评估工具-5)的评估(N = 216)。结果:在标准参考值的基础上,两种最常见的脑震荡后恐惧回避行为轨迹是持续低水平和最初升高但逐渐降低的恐惧回避行为轨迹。使用线性回归,我们发现恐惧回避行为在第2周和第8周之间存在交互作用,表明恐惧回避行为持续升高的参与者(在第2周和第8周)在第8周有更严重的脑震荡后症状,而最初升高但减少恐惧回避行为的参与者往往恢复得很好。结论:早期恐惧回避行为经常减少,但如果没有减少,则与mTBI的恢复较差有关。这些发现可能为针对mTBI患者恐惧回避行为的干预时机和设计提供信息。(PsycInfo Database Record (c) 2025 APA,版权所有)。
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引用次数: 0
Dimensions of participation as predictors of satisfaction with roles and abilities after traumatic brain injury. 参与的维度作为创伤性脑损伤后角色和能力满意度的预测因子。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-07-03 DOI: 10.1037/rep0000627
Amanda M Wisinger, Shannon B Juengst, Angelle M Sander, Robiann R Broomfield, Leia Vos, Michael W Williams, Mark Sherer

Purpose/objective: This study aimed to determine the relationship of participation dimensions with satisfaction with social roles and activities after traumatic brain injury (TBI).

Research method/design: Secondary analysis of baseline data from 127 participants enrolled in the MoodTracker intervention trial (https://ClinicalTrials.gov Identifier NCT04410770). Participants (Mage = 35.24) were predominately male (64.6%) and non-Hispanic White (70.1%). Primary measures were the TBI Quality of Life scales for Satisfaction With Ability to Participate in Social Roles and Activities, Ability to Participate in Social Roles and Activities, Independence, Stigma, and Self-Esteem and the Participation Assessment With Recombined Tools-Objective Out and About, Social Relations, and Productivity subscales.

Results: We performed a hierarchical regression to determine the unique association of different participation dimensions to Satisfaction with Social Roles and Activities. The Participation Assessment With Recombined Tools-Objective scores, representing the frequency of participation in activities, explained 18% of the variance (R² change = .177, p < .001) in Satisfaction with Social Roles and Activities. Ability to Participate in Social Roles and Activities and Independence, representing a person's perceived participation ability, explained 40% of the variance (R² change = .397, p < .001) when added to the model. Stigma and Self-Esteem uniquely explained 8% of the variance (R² change = .079, p < .001) when added to the model.

Conclusion/implications: A person's self-perceived ability to participate and be independent makes a greater contribution to satisfaction with social participation than the frequency of participation. Enhanced understanding of the interplay of subjective and objective factors in influencing participation satisfaction after TBI may result in more effective interventions to support meaningful participation. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的:探讨创伤性脑损伤(TBI)患者参与维度与社会角色和活动满意度的关系。研究方法/设计:对参加MoodTracker干预试验(https://ClinicalTrials.gov识别码NCT04410770)的127名参与者的基线数据进行二次分析。参与者(年龄= 35.24)主要是男性(64.6%)和非西班牙裔白人(70.1%)。主要测量是TBI生活质量量表,包括参与社会角色和活动的能力满意度,参与社会角色和活动的能力,独立性,污名和自尊,以及使用重组工具的参与评估-目标外出,社会关系和生产力子量表。结果:我们进行了层次回归,以确定不同参与维度对社会角色和活动满意度的独特关联。使用重组工具的参与评估-客观分数,代表参与活动的频率,解释了18%的方差(R²变化= .177,p < .001)对社会角色和活动的满意度。参与社会角色和活动的能力和独立性,代表一个人感知的参与能力,解释了40%的方差(R²变化= .397,p < .001),当加入模型时。当加入模型时,耻辱和自尊唯一地解释了8%的方差(R²变化= 0.079,p < 0.001)。结论/启示:一个人自我感知的参与和独立能力比参与频率对社会参与满意度的贡献更大。加深对影响创伤后参与满意度的主观和客观因素的相互作用的理解,可能会导致更有效的干预措施,以支持有意义的参与。(PsycInfo Database Record (c) 2025 APA,版权所有)。
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引用次数: 0
The relationship of resilience with prescription opioid use and misuse among people with spinal cord injury. 脊髓损伤患者恢复力与处方阿片类药物使用和滥用的关系。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-07-03 DOI: 10.1037/rep0000628
James S Krause, Clara E Dismuke-Greer, Brielle Grant

Purpose/objective: Spinal cord injury presents major long-term challenges, including the need to manage chronic pain and avoid overuse or misuse of prescription medication. Our purpose was to identify the extent to which resilience, bouncing back quickly from major challenges, is associated with prescription opioid use and misuse, controlling for depression.

Research method/design: Follow-up data were collected from 918 individuals with spinal cord injury. Resilience was assessed using the Brief Resilience Scale, and depression was measured with the Patient Health Questionnaire.

Results: In total, 13.6% of participants reported low resilience (n = 123), 66.1% reported moderate (n = 598), and 20.3% reported high resilience (n = 184). Resilience was protective of monthly/occasional use and misuse of opioids but not overall opioid use or regular weekly/daily use. Pain intensity was most highly associated with weekly/daily use, yet minimally related to occasional/monthly use. Depression was associated with misuse, overall opioid use, and regular use.

Conclusions/implications: Resilience was related to a lower likelihood of use of prescription opioid medications in situations where pain intensity was strongly associated with usage (i.e., intermittent use and using opioids other than prescribed). Resilience is strongly associated with a diminished likelihood of opioid misuse. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目的:脊髓损伤提出了重大的长期挑战,包括需要控制慢性疼痛和避免过度使用或滥用处方药。我们的目的是确定从重大挑战中迅速恢复的韧性在多大程度上与处方阿片类药物的使用和滥用有关,从而控制抑郁。研究方法/设计:收集918例脊髓损伤患者的随访数据。心理弹性采用简短心理弹性量表进行评估,抑郁程度采用患者健康问卷进行测量。结果:13.6%的参与者报告低弹性(n = 123), 66.1%的参与者报告中等弹性(n = 598), 20.3%的参与者报告高弹性(n = 184)。恢复力对每月/偶尔使用和滥用阿片类药物有保护作用,但对整体使用阿片类药物或每周/每日定期使用阿片类药物没有保护作用。疼痛强度与每周/每日使用的相关性最高,而与偶尔/每月使用的相关性最低。抑郁症与滥用、整体阿片类药物使用和常规使用有关。结论/影响:在疼痛强度与阿片类药物使用密切相关的情况下(即间歇性使用和使用非处方阿片类药物),恢复力与使用处方阿片类药物的可能性较低有关。恢复力与减少阿片类药物滥用的可能性密切相关。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"The relationship of resilience with prescription opioid use and misuse among people with spinal cord injury.","authors":"James S Krause, Clara E Dismuke-Greer, Brielle Grant","doi":"10.1037/rep0000628","DOIUrl":"10.1037/rep0000628","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Spinal cord injury presents major long-term challenges, including the need to manage chronic pain and avoid overuse or misuse of prescription medication. Our purpose was to identify the extent to which resilience, bouncing back quickly from major challenges, is associated with prescription opioid use and misuse, controlling for depression.</p><p><strong>Research method/design: </strong>Follow-up data were collected from 918 individuals with spinal cord injury. Resilience was assessed using the Brief Resilience Scale, and depression was measured with the Patient Health Questionnaire.</p><p><strong>Results: </strong>In total, 13.6% of participants reported low resilience (<i>n</i> = 123), 66.1% reported moderate (<i>n</i> = 598), and 20.3% reported high resilience (<i>n</i> = 184). Resilience was protective of monthly/occasional use and misuse of opioids but not overall opioid use or regular weekly/daily use. Pain intensity was most highly associated with weekly/daily use, yet minimally related to occasional/monthly use. Depression was associated with misuse, overall opioid use, and regular use.</p><p><strong>Conclusions/implications: </strong>Resilience was related to a lower likelihood of use of prescription opioid medications in situations where pain intensity was strongly associated with usage (i.e., intermittent use and using opioids other than prescribed). Resilience is strongly associated with a diminished likelihood of opioid misuse. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.7,"publicationDate":"2025-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144561545","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The relationship between disability identity and use of person-first and identity-first language. 残障认同与以人为本和以身份为本语言使用的关系。
IF 1.9 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-07-03 DOI: 10.1037/rep0000631
Connie M S Janiszewski, Emily Friedel, David Skvarc, Donna Koller, Lisa B Grech

Purpose/objective: Debate continues over disability language preferences, with some individuals favoring person-first language and others preferring identity-first language. Not all people with disabilities identify as such, and language use may be influenced by an individual's disability identity. This study examined the relationship between disability identity and language use for self-identification, referring to others, and perceived appropriateness across different contexts.

Research method/design: In 2021, 776 participants (M = 39.9 years; 72.8% female, 17.5% nonbinary; 87.2% from Australia, 6.1% from the United States, 3.6% from the United Kingdom) completed a survey on demographic and health-related factors, disability identity, disability language use, and perceived appropriateness of disability language use across different contexts. Multiple linear and multinomial logistic regression models explored relationships among these variables.

Results: Participants with a stronger disability identity were more likely to use identity-first language and perceived it as more appropriate across contexts, while those with a lower disability identity preferred person-first language. Several demographic and health-related factors significantly predicted stronger disability identity, including younger age, nonbinary gender, residence in "other" countries (e.g., New Zealand, Canada, and European countries excluding the United Kingdom), neurodevelopmental, hearing, digestive, or pain conditions, congenital conditions, and having visible or both visible and invisible disabilities.

Conclusions/implications: These findings contribute to a deeper understanding of disability identity and language preferences. Future research should explore how personal and environmental contexts influence language use among people with disabilities, as addressing individuals with dignity and respect is essential in advancing toward a more inclusive society. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目标:关于残疾人语言偏好的争论仍在继续,一些人喜欢以人为本的语言,而另一些人喜欢以身份为本的语言。并非所有残疾人都认为自己是残疾人,语言的使用可能受到个人残疾身份的影响。本研究探讨了残障认同与语言自我认同、提及他人以及在不同语境下的感知恰当性之间的关系。研究方法/设计:2021年,776名参与者(M = 39.9岁;72.8%女性,17.5%非二元;87.2%来自澳大利亚,6.1%来自美国,3.6%来自英国)完成了一项关于人口和健康相关因素、残疾身份、残疾语言使用以及在不同背景下残疾语言使用的感知适当性的调查。多元线性和多项逻辑回归模型探讨了这些变量之间的关系。结果:残障认同较强的参与者更倾向于使用身份优先语言,并认为它在不同的语境中更合适,而残障认同较低的参与者更倾向于使用以人为本的语言。一些人口统计学和健康相关因素显著预测了更强的残疾认同,包括年龄更小、非二元性别、居住在“其他”国家(如新西兰、加拿大和不包括联合王国的欧洲国家)、神经发育、听力、消化或疼痛状况、先天性状况以及有明显或既有可见残疾又有不可见残疾。结论/启示:这些发现有助于加深对残疾身份和语言偏好的理解。未来的研究应该探索个人和环境背景如何影响残疾人的语言使用,因为以尊严和尊重对待个人是迈向更具包容性的社会的关键。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"The relationship between disability identity and use of person-first and identity-first language.","authors":"Connie M S Janiszewski, Emily Friedel, David Skvarc, Donna Koller, Lisa B Grech","doi":"10.1037/rep0000631","DOIUrl":"https://doi.org/10.1037/rep0000631","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Debate continues over disability language preferences, with some individuals favoring person-first language and others preferring identity-first language. Not all people with disabilities identify as such, and language use may be influenced by an individual's disability identity. This study examined the relationship between disability identity and language use for self-identification, referring to others, and perceived appropriateness across different contexts.</p><p><strong>Research method/design: </strong>In 2021, 776 participants (<i>M</i> = 39.9 years; 72.8% female, 17.5% nonbinary; 87.2% from Australia, 6.1% from the United States, 3.6% from the United Kingdom) completed a survey on demographic and health-related factors, disability identity, disability language use, and perceived appropriateness of disability language use across different contexts. Multiple linear and multinomial logistic regression models explored relationships among these variables.</p><p><strong>Results: </strong>Participants with a stronger disability identity were more likely to use identity-first language and perceived it as more appropriate across contexts, while those with a lower disability identity preferred person-first language. Several demographic and health-related factors significantly predicted stronger disability identity, including younger age, nonbinary gender, residence in \"other\" countries (e.g., New Zealand, Canada, and European countries excluding the United Kingdom), neurodevelopmental, hearing, digestive, or pain conditions, congenital conditions, and having visible or both visible and invisible disabilities.</p><p><strong>Conclusions/implications: </strong>These findings contribute to a deeper understanding of disability identity and language preferences. Future research should explore how personal and environmental contexts influence language use among people with disabilities, as addressing individuals with dignity and respect is essential in advancing toward a more inclusive society. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.9,"publicationDate":"2025-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144561544","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Self-stigma profiles among transition-age individuals with disabilities. 过渡年龄残障人士的自我污名特征。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-07-03 DOI: 10.1037/rep0000629
Heerak Choi, Allen W Heinemann, Connie Sung

Purpose/objective: Self-stigma can negatively affect transition-age individuals with disabilities, resulting in low self-worth, decreased psychosocial functioning, and reduced interest in career achievement. This study aimed to identify self-stigma profiles among transition-age individuals with disabilities, describe these profile patterns, and examine differences in basic psychological need satisfaction and career achievability across subgroups defined by these profiles.

Research method/design: We conducted a cross-sectional study using an online survey. A total of 199 transition-age individuals with disabilities were included in the data analysis. Latent profile analysis, Fisher's exact test, and one-way analysis of variance were used.

Results: The analysis identified a four-profile solution characterized by high, mid-high, mid-low, and low levels of self-stigma in cognition, affect, and behavior. Individuals in the high (n = 17) or mid-high self-stigma groups (n = 104) reported lower satisfaction in autonomy, competence, and relatedness compared to those in the low (n = 19) or mid-low (n = 59) self-stigma groups. These subgroups differed significantly in career achievability, such that individuals in the low or mid-low self-stigma groups reported higher career achievability than those in the high or mid-high self-stigma groups.

Conclusions/implications: Transition-age individuals with disabilities require support to reduce self-stigma that is associated with the satisfaction of basic psychological needs and career achievability. This can be achieved by addressing stigmatizing beliefs and fostering empowerment. Replication with a larger, more diverse sample is necessary to validate these findings and develop effective interventions to counter self-stigma. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目的:自我耻辱感会对过渡年龄的残疾个体产生负面影响,导致自我价值感降低,心理社会功能下降,对职业成就的兴趣降低。本研究旨在确定过渡年龄残疾个体的自我污名特征,描述这些特征模式,并研究这些特征定义的亚群体在基本心理需求满足和职业成就方面的差异。研究方法/设计:我们采用在线调查的方式进行横断面研究。数据分析共纳入199名过渡年龄残障人士。使用了潜在剖面分析、Fisher精确检验和单因素方差分析。结果:分析确定了认知、情感和行为方面的高、中高、中低和低水平自我耻辱的四种解决方案。高自尊组(n = 17)或中高自尊组(n = 104)的个体在自主性、能力和亲缘关系方面的满意度低于低自尊组(n = 19)或中低自尊组(n = 59)。这些亚组在职业成就方面存在显著差异,例如低或中低自我耻辱组的个体比高或中高自我耻辱组的个体报告了更高的职业成就。结论/启示:过渡年龄残疾个体需要支持来减少自我污名,这与基本心理需求的满足和职业成就有关。这可以通过解决污名化的信仰和促进赋权来实现。为了验证这些发现,并制定有效的干预措施来对抗自我耻辱,需要更大、更多样化的样本进行复制。(PsycInfo Database Record (c) 2025 APA,版权所有)。
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引用次数: 0
Patient engagement in inpatient rehabilitation: A scoping review of measures and evolving conceptualizations. 住院康复中的患者参与:对措施和不断发展的概念的范围审查。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-07-03 DOI: 10.1037/rep0000630
Mayra L Sánchez González, Kristian Nitsch, Nicolette Carnahan, Rachel V Aaron, Megan M Hosey, Nicole Schechter

Objective: This scoping review aims to describe measures of patient engagement in acute inpatient rehabilitation settings, measurement approaches, and conceptualizations of patient engagement.

Method: Following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews guidelines and the Joanna Briggs Scoping Review Framework, we searched seven databases-PubMed, EMBASE, Cochrane Library, CINAHL Plus, Web of Science, Scopus, and PsycInfo-from inception to May 2024. Inclusion criteria included (a) participants aged 18 or older; (b) conducted in a hospital-based acute inpatient rehabilitation program irrespective of diagnosis; (c) measured patient engagement during rehabilitation; and (d) published in English. Major search concepts included patient engagement, measures, rehabilitation, and inpatient rehabilitation settings. Two independent reviewers assessed eligibility and extracted data, resolving conflicts through consultation with a third reviewer. The initial search identified 8,320 records.

Results: Of the 384 studies that underwent full-text review, 37 met inclusion criteria and reported on 10 engagement measures. The Pittsburgh Rehabilitation Participation Scale was the most frequently used, followed by therapy dosage and the Hopkins Rehabilitation Engagement Rating Scale. Most studies used an observer-rated approach. Conceptualizations of engagement varied in depth and integration of theoretical models. Although motivation was a central theme, conceptualizations have evolved, recognizing multiple factors influencing engagement.

Conclusion: The lack of consensus on measuring and conceptualizing patient engagement limits efforts to advance research and clinical practices to improve engagement and, ultimately, outcomes in rehabilitation. Future research could explore the clinical utility of existing measures and establish patient-centered best practices for measurement. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的:本综述旨在描述急性住院康复环境中患者参与的测量方法,以及患者参与的概念。方法:根据系统评价和荟萃分析扩展范围评价指南和Joanna Briggs范围评价框架的首选报告项目,我们检索了7个数据库- pubmed, EMBASE, Cochrane Library, CINAHL Plus, Web of Science, Scopus和psycinfo -从成立到2024年5月。纳入标准包括:(a) 18岁或以上的参与者;(b)在以医院为基础的急性住院康复方案中进行,无论诊断如何;(c)康复期间患者参与度的测量;(d)以英文出版。主要搜索概念包括患者参与、措施、康复和住院康复设置。两名独立审稿人评估合格性并提取数据,通过与第三方审稿人协商解决冲突。最初的搜索确定了8320条记录。结果:在384项研究中,有37项符合纳入标准,并报告了10项参与度指标。匹兹堡康复参与量表是最常用的量表,其次是治疗剂量和霍普金斯康复参与评定量表。大多数研究采用了观察者评价的方法。参与的概念在深度和理论模型的整合方面各不相同。虽然动机是一个中心主题,但概念已经发展,认识到影响参与度的多种因素。结论:在衡量和概念化患者参与方面缺乏共识,限制了推进研究和临床实践的努力,以提高参与度,并最终改善康复效果。未来的研究可以探索现有测量方法的临床应用,并建立以患者为中心的最佳测量方法。(PsycInfo Database Record (c) 2025 APA,版权所有)。
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引用次数: 0
Validation of the Body Compassion Scale in multiple sclerosis. 身体同情量表在多发性硬化症中的验证。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-05-26 DOI: 10.1037/rep0000618
Erin G Mistretta, Jennifer K Altman, Lindsey M Knowles, Dawn M Ehde

Purpose/objective: The Body Compassion Scale (BCS) is a novel measure assessing the extent to which an individual is able to (a) view their body as one of the many components of their personhood, (b) recognize that everyone shares the experience of living in a physical body, with its advantages and disadvantages, and (c) embrace their body's current appearance, state of health, and functioning. It has been validated in healthy undergraduate samples; yet, there exists limited work documenting the psychometric properties among individuals with chronic health conditions. We evaluated the factor structure of the BCS among a sample of individuals with multiple sclerosis (MS).

Research method/design: In total, 677 people (Mage = 52.89, SDage = 12.83) reported on their body compassion, fatigue, pain, cognitive functioning, disability, depression, anxiety, and resilience in an online survey sent out to a regional and national MS listserv.

Results: A three-factor structure (defusion, common humanity, and acceptance) emerged as the best fit to the data. All three subscores demonstrated acceptable internal consistency and validity evidence.

Conclusions/implications: The findings extend existing work demonstrating a three-factor structure of the BCS and provide preliminary validity for the use of the BCS among people living with MS and potentially other rehabilitation populations. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目标:身体同情量表(BCS)是一种评估个人能够在何种程度上(a)将自己的身体视为其人格的众多组成部分之一,(b)认识到每个人都分享生活在身体中的经验,以及它的优点和缺点,以及(c)接受自己身体目前的外观、健康状况和功能。该方法已在健康的大学生样本中得到验证;然而,关于慢性健康状况个体的心理测量特性的记录工作有限。我们评估了多发性硬化症(MS)患者样本中BCS的因子结构。研究方法/设计:共有677人(年龄= 52.89,年龄= 12.83)在一项在线调查中报告了他们的身体同情、疲劳、疼痛、认知功能、残疾、抑郁、焦虑和恢复力,该调查被发送到一个地区和国家的MS列表服务器。结果:一个三因素结构(融合,共同人性和接受)出现了最适合的数据。所有三个子分数都显示出可接受的内部一致性和有效性证据。结论/意义:这些发现扩展了现有的BCS的三因素结构,并为BCS在MS患者和潜在的其他康复人群中的使用提供了初步的有效性。(PsycInfo Database Record (c) 2025 APA,版权所有)。
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引用次数: 0
Recovery profiles and disability acceptance among individuals with serious mental illness: A latent profile analysis. 严重精神疾病患者的康复概况和残疾接受度:一项潜在概况分析。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-05-15 DOI: 10.1037/rep0000621
Yongsu Song, Sang Qin, EunJeong Ko, Deyu Pan, Kaiqi Zhou

Purpose/objective: The recovery experiences of individuals with serious mental illness (SMI) involve a complex interaction between intrapersonal and interpersonal factors through which they continue to pursue life goals and enhance their psychosocial adaptation. Among these outcomes, disability acceptance is an important aspect but remains underexplored in this context. This study aimed to identify recovery patterns among individuals with SMI using a latent profile approach and explore how these patterns relate to disability acceptance.

Research method/design: We analyzed responses from participants with SMI (N = 268) and employed latent profile analysis to uncover distinct recovery profiles based on key indicators: resilience, self-efficacy, coping, social support, and perceived social stigma. Each profile was then examined in relation to levels of disability acceptance. The participant sample had a relatively higher employment rate and was more educated compared to "typical" populations with SMI.

Results: Latent profile analysis revealed three subgroups: recovery-initiating, recovery-developing, and recovery-sustained. Over half of the participants were classified in the recovery-developing group, while approximately one-third were included in the recovery-sustained group. High levels of resilience, self-efficacy, coping, and social support-along with low levels of perceived social stigma-increased the likelihood of being classified in the recovery-sustained group. This group also demonstrated the highest levels of disability acceptance.

Conclusions/implications: The identification of distinct recovery patterns suggests the importance of enhancing resilience, self-efficacy, coping strategies, and social support, as well as managing perceived social stigma when working with individuals with SMI. Considerations for tailored interventions to promote recovery and disability acceptance among individuals with SMI are discussed. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目的:重度精神疾病患者的康复经历是一种复杂的人际和内在因素相互作用的过程,患者通过这种过程继续追求人生目标,增强心理社会适应能力。在这些结果中,残疾接受是一个重要方面,但在此背景下仍未得到充分探讨。本研究旨在利用潜在特征分析方法确定重度精神障碍患者的康复模式,并探讨这些模式与残疾接受度之间的关系。研究方法/设计:我们分析了268名重度精神分裂症患者的反应,并采用潜在特征分析来揭示基于关键指标的不同恢复特征:恢复力、自我效能、应对、社会支持和感知社会耻辱。然后检查每个档案与残疾接受程度的关系。与“典型”重度精神障碍人群相比,参与者样本的就业率相对较高,受教育程度也更高。结果:潜在剖面分析显示了三个亚组:开始恢复、发展恢复和持续恢复。超过一半的参与者被归类为恢复发展组,而大约三分之一的参与者被包括在恢复持续组。高水平的恢复力、自我效能、应对能力和社会支持,以及低水平的社会耻辱感,增加了被归类为持续恢复组的可能性。这一群体对残疾的接受程度也最高。结论/启示:不同恢复模式的识别表明,在与重度精神分裂症患者一起工作时,增强韧性、自我效能、应对策略和社会支持以及管理感知到的社会耻辱感的重要性。考虑量身定制的干预措施,以促进康复和残疾接受的个体重度精神障碍进行了讨论。(PsycInfo Database Record (c) 2025 APA,版权所有)。
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引用次数: 0
期刊
Rehabilitation Psychology
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