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Methodological considerations for collecting and analyzing data on multiply marginalized psychology trainees with disabilities. 收集和分析多重边缘化残疾心理学学员数据的方法论考虑。
IF 1.9 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-11-01 Epub Date: 2023-11-02 DOI: 10.1037/rep0000530
Emily M Lund, Lauren R Khazem, Mana K Ali, Christopher R DeJesus, Katie B Thomas

Objective/purpose: Historically, psychology trainees from marginalized communities have been underrepresented both as researchers and as participants in research on trainee experiences and outcomes. The current research can be used to develop evidence-based strategies to understand and improve the recruitment, retention, advancement, and overall training experiences of trainees with marginalized identities.

Method: We review the existing literature on the experiences of psychology trainees, particularly that focused on trainees from marginalized backgrounds.

Results: Quantitative, qualitative, and archival data collection and analysis methods each carry their own benefits and limitations, which must be considered and addressed intentionally to optimize the impact of research findings for multiply marginalized individuals. Mixed methods approaches are also discussed. Matching each limitation with a research design strategy is recommended, including the use of sample weights from population archival data to contextualize sample results, incorporating flexibility for reasonable accommodations for intensive qualitative studies, and other strategies.

Conclusions/implications: We provide guidance on selecting a methodology based on specific research and dissemination goals within this area and discuss implications and recommendations for both rehabilitation psychology specifically and the field more broadly. Training programs, governing bodies, faculty, researchers, and other invested parties have shared accountability to deliver diverse, equitable, and inclusive education and training experiences, and conducting high-quality research on the experiences of multiply marginalized trainees, including those with disabilities, is a key component of that process. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目标/目的:从历史上看,来自边缘化社区的心理学培训生在研究培训生经历和结果的研究中,无论是作为研究人员还是参与者,都代表性不足。目前的研究可用于制定基于证据的战略,以了解和改善具有边缘化身份的受训人员的招聘、保留、晋升和整体培训体验。方法:我们回顾了现有的关于心理学实习生经历的文献,特别是那些关注边缘化背景的实习生的文献。结果:定量、定性和档案数据收集和分析方法各有其优点和局限性,必须有意识地考虑和解决这些问题,以优化研究结果对多重边缘化个体的影响。还讨论了混合方法的方法。建议将每种限制与研究设计策略相匹配,包括使用人口档案数据中的样本权重来将样本结果情境化,为密集的定性研究提供合理的灵活性,以及其他策略。结论/启示:我们根据该领域的具体研究和传播目标,为选择方法提供指导,并讨论对康复心理学的启示和建议,具体而言,更广泛地讨论该领域。培训项目、管理机构、教师、研究人员和其他投资方共同承担责任,提供多样化、公平和包容性的教育和培训体验,对包括残疾人在内的被边缘化学员的经历进行高质量的研究是这一过程的关键组成部分。(PsycInfo数据库记录(c)2023 APA,保留所有权利)。
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引用次数: 0
Dyadic coping and illness adjustment after stroke: A longitudinal prospective study. 中风后的双向应对与疾病适应:一项纵向前瞻性研究。
IF 1.9 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-11-01 Epub Date: 2024-02-15 DOI: 10.1037/rep0000548
Frederike Svensson, Sarah Zwick, Cornelia Exner, Bettina K Doering

Purpose/objective: To investigate associations between illness appraisals, dyadic coping, and illness adjustment in individuals with stroke and their healthy partners.

Method/design: This longitudinal observational study examined dyadic data in 17 couples (patient and partner) after stroke. Patients and partners completed self-report measures on event centrality of the stroke (appraisal) at 2 months (t₁), common dyadic coping (CDC) at 5 months (t₂), and quality of life (adjustment) at 8 months (t₃) after the stroke. Dyadic data were analyzed using actor-partner interdependence models.

Results: Higher event centrality at t₁ predicted more CDC at t₂ in patients (b = 0.38, p < .05). For partners, the effect of event centrality on dyadic coping differed significantly from the patients' effect but was not significant itself (b = -0.17, p = .601). More CDC at t2 predicted higher physical (b = 3.21, p < .05) and psychological quality of life at t₃ (b = 3.66, p < .05) for partners but not for patients.

Conclusions/implications: Preliminary evidence suggests that patients and their healthy partners may endorse event centrality of the stroke differentially. Perceiving dyadic coping processes seems to be especially important to the healthy partners' illness adjustment. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目的/目标:研究中风患者及其健康伴侣的疾病评价、夫妻应对和疾病适应之间的关系:这项纵向观察性研究调查了 17 对中风后夫妇(患者和伴侣)的伴侣数据。患者和伴侣分别在中风后 2 个月(t₁)、5 个月(t₂)和 8 个月(t₃)完成了关于中风事件中心性(评估)、共同的双向应对(CDC)和生活质量(适应)的自我报告测量。采用行为者-伙伴相互依存模型对二元数据进行了分析:结果:t₁时事件中心性越高,预示患者在 t₂ 时的 CDC 越多(b = 0.38,p < .05)。对于伴侣而言,事件中心性对伴侣应对的影响与患者的影响有显著差异,但本身并不显著(b = -0.17,p = .601)。在 t2 阶段,更多的 CDC 预测了伴侣更高的身体素质(b = 3.21,p < .05)和 t₃ 阶段的心理生活质量(b = 3.66,p < .05),但对患者却没有影响:初步证据表明,患者及其健康伴侣对中风事件中心性的认可可能有所不同。对于健康伴侣的疾病适应而言,感知伴侣的应对过程似乎尤为重要。(PsycInfo Database Record (c) 2024 APA, 版权所有)。
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引用次数: 0
Examining the relationships between pain symptoms and psychosocial functioning among women living with and at risk for human immunodeficiency virus using a cross-sectional psychological network analysis. 利用横断面心理网络分析,研究感染人类免疫缺陷病毒和面临感染风险的妇女的疼痛症状与社会心理功能之间的关系。
IF 1.9 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-10-07 DOI: 10.1037/rep0000588
Leah M Adams, Kristina M Volgenau, Irene Regalario, Aaron D Hunt

Objective: Pain is prevalent among women living with HIV (WLWH); however, research on pain experience among WLWH in the United States is limited. This study used a network analysis to simultaneously examine the relationships between pain experience and psychosocial functioning among WLWH and human immunodeficiency virus (HIV)-negative women.

Method: A secondary analysis of public data from the Women's Interagency HIV Study, a U.S. longitudinal cohort study of the experiences of WLWH and women at increased risk for HIV (HIV negative), was completed. Data were from Visit 42 in 2015 and included 451 WLWH and 194 HIV-negative women who endorsed experiencing pain in the week prior to the interview. Similar to the sociodemographic characteristics of WLWH in the United States, the majority of women in the sample were racially and/or ethnically minoritized and of low socioeconomic position. Networks were modeled using measures of pain intensity, pain interference, depression symptoms, anxiety/worry symptoms, meaning in life, and emotional support.

Results: Network models for WLWH and HIV-negative women were comparable (ps > .05). Depression symptoms were a central construct (strength = 1.82 and 1.77, respectively) within the networks, and pain interference was associated with psychosocial constructs (ps < .05), while pain intensity was not (ps > .05). Meaning in life and emotional support were not directly associated with pain (ps > .05).

Conclusions: Network findings suggest that reducing depression symptoms may result in improved pain experience and broader positive impact for WLWH and for women at increased risk of HIV. This finding is consistent with research with other pain-focused populations. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目的:疼痛在女性艾滋病病毒感染者(WLWH)中很普遍,但美国对女性艾滋病病毒感染者疼痛体验的研究却很有限。本研究采用网络分析方法,同时研究了女性艾滋病病毒感染者(WLWH)和人类免疫缺陷病毒(HIV)阴性女性的疼痛体验与心理社会功能之间的关系:对妇女机构间艾滋病研究(Women's Interagency HIV Study)的公开数据进行了二次分析,该研究是美国一项纵向队列研究,研究对象是妇女艾滋病患者和艾滋病风险增加的妇女(HIV阴性)。数据来自 2015 年的第 42 次访谈,包括 451 名 WLWH 和 194 名 HIV 阴性女性,她们均认可在访谈前一周经历过疼痛。与美国 WLWH 的社会人口学特征相似,样本中的大多数女性在种族和/或民族上属于少数群体,社会经济地位较低。研究使用疼痛强度、疼痛干扰、抑郁症状、焦虑/烦恼症状、生活意义和情感支持等指标对网络进行建模:结果:WLWH 和 HIV 阴性女性的网络模型具有可比性(Ps > .05)。抑郁症状是网络中的核心结构(强度分别为 1.82 和 1.77),疼痛干扰与心理社会结构相关(PS < .05),而疼痛强度与心理社会结构无关(PS > .05)。生活意义和情感支持与疼痛没有直接关系(PS > .05):网络研究结果表明,减少抑郁症状可能会改善 WLWH 和艾滋病高危妇女的疼痛体验,并产生更广泛的积极影响。这一发现与其他以疼痛为重点的人群的研究结果一致。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
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引用次数: 0
The health action process approach to promote regular physical activity among people with disabilities: A hierarchical regression analysis. 促进残疾人经常参加体育锻炼的健康行动过程方法:分层回归分析。
IF 1.9 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-10-03 DOI: 10.1037/rep0000589
Jia Rung Wu, Fong Chan, Nicole Ditchman

Objective: People with disabilities continue to cope with high levels of stress, such as disability-related stress and sociopolitical stress. Helping people with disabilities engage in regular physical activity to improve health and reduce stress is more important than ever. This study evaluated demographic covariates, the health action process approach (HAPA) constructs (action self-efficacy, outcome expectancy, risk perception, intention/commitment, maintenance and recovery self-efficacy, and action and coping planning), and positive person-environment variables (autonomous motivation, resilience, hope, and social support) as motivators for regular physical activity in a sample of people with disabilities.

Methods: People with disabilities participated in an online study (N = 266). Hierarchical regression analysis was used to determine the incremental variance in physical activity scores accounted for by variables in the regression model.

Results: Demographic covariates, HAPA constructs, and positive person-environment variables accounted for 38% of the total variance in physical activity scores (a large effect size). Low income was a risk factor that significantly and negatively associated with regular physical activity, while self-efficacy, action and coping planning, and social support were significantly and positively associated with reular physical activity after controlling for other variables. Autonomous motivation, resilience, and hope were significantly associated with regular physical activity at the zero-order correlation level, but not significant in the regression model.

Conclusions: This study provides strong empirical support for the HAPA constructs, which can be used to inform the development of theory-driven and empirically supported physical activity interventions to improve health, stress management, and well-being of people with disabilities. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目的:残疾人继续承受着巨大的压力,如与残疾有关的压力和社会政治压力。帮助残疾人定期参加体育活动以改善健康和减轻压力比以往任何时候都更加重要。本研究评估了人口统计学协变量、健康行动过程方法(HAPA)建构(行动自我效能、结果预期、风险感知、意向/承诺、维持和恢复自我效能以及行动和应对计划)以及积极的人-环境变量(自主动机、复原力、希望和社会支持),作为残疾人样本中定期进行体育锻炼的动机:残疾人参与了一项在线研究(N = 266)。采用层次回归分析法确定回归模型中的变量在体育锻炼得分中所占的增量差异:结果:人口统计学协变量、HAPA 构建和积极的人-环境变量占体力活动得分总方差的 38%(影响较大)。低收入是一个风险因素,与定期体育锻炼有显著的负相关,而自我效能感、行动和应对计划以及社会支持在控制其他变量后与定期体育锻炼有显著的正相关。在零阶相关水平上,自主动机、复原力和希望与定期体育锻炼有显著相关,但在回归模型中不显著:本研究为 HAPA 构建提供了强有力的经验支持,可用于开发理论驱动、经验支持的体育活动干预措施,以改善残疾人的健康、压力管理和福祉。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
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引用次数: 0
Being a parent with a physical disability: A systematic review. 作为肢体残疾的父母:系统综述。
IF 1.9 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-10-03 DOI: 10.1037/rep0000590
Amanda Dunne, Christian Ryan

Purpose/objective: There is a significant gap in the literature with regards to the synthesis of qualitative research that explores the parenting experiences of parents with physical disabilities. This systematic review aims to synthesize the evidence regarding the experiences of parents with acquired and congenital physical disabilities.

Research method/design: This article presents a thematic synthesis of qualitative research carried out in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Studies were identified through searches of Cumulative Index to Nursing and Allied Health Literature, PsycINFO, PubMed, Scopus, and Web of Science databases and backward snowballing. The Critical Appraisal Skills Programme qualitative checklist was used as a quality assessment tool.

Results: Eleven articles were included in this review, and all were deemed to be high quality. Seven themes were identified: stigmatization and the need to prove competence as a parent; feeling underrepresented as a parent with a physical disability; environmental limitations; experiences of accessing support; using skills and strategies to fulfill parenting role; children's roles and reactions, and changes as they grow; and safety, wellness, and health when parenting with a physical disability.

Conclusions/implications: The findings emphasize the adaptability and resourcefulness of parents with physical disabilities in navigating environments that can be unsupportive, while continuing to prioritize their children's safety and well-being. The need for community peer-support groups and health care professionals who can provide emotional support, further public education with regards to the capabilities of parents with physical disabilities, prioritization of accessibility in public and private spaces, and the development of adapted childcare equipment, were all highlighted. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目的/目标:在对探讨肢体残疾父母养育子女经验的定性研究进行综述方面,文献资料存在很大的空白。本系统性综述旨在综合有关后天性和先天性肢体残疾父母经验的证据:本文是根据《系统综述和元分析的首选报告项目》(Preferred Reporting Items for Systematic Reviews and Meta-Analyses)指南对定性研究进行的专题综述。通过检索《护理及相关健康文献累积索引》(Cumulative Index to Nursing and Allied Health Literature)、PsycINFO、PubMed、Scopus 和 Web of Science 数据库以及后向 "滚雪球 "法来确定研究。采用批判性评价技能计划定性检查表作为质量评估工具:本综述共收录了 11 篇文章,所有文章均被视为高质量文章。确定了七个主题:作为父母的耻辱感和证明能力的需要;作为身体残疾父母的不足感;环境限制;获得支持的经历;使用技能和策略履行养育子女的职责;子女的角色和反应,以及他们成长过程中的变化;身体残疾父母的安全、健康和保健:研究结果强调了肢体残疾父母的适应能力和机智,他们可以在不支持的环境中游刃有余,同时继续优先考虑子女的安全和福祉。研究强调了社区同伴支持团体和医疗保健专业人员提供情感支持的必要性,进一步开展有关肢体残疾父母能力的公众教育,优先考虑公共和私人空间的无障碍环境,以及开发适应性儿童保育设备。(PsycInfo 数据库记录 (c) 2024 APA,版权所有。)
{"title":"Being a parent with a physical disability: A systematic review.","authors":"Amanda Dunne, Christian Ryan","doi":"10.1037/rep0000590","DOIUrl":"https://doi.org/10.1037/rep0000590","url":null,"abstract":"<p><strong>Purpose/objective: </strong>There is a significant gap in the literature with regards to the synthesis of qualitative research that explores the parenting experiences of parents with physical disabilities. This systematic review aims to synthesize the evidence regarding the experiences of parents with acquired and congenital physical disabilities.</p><p><strong>Research method/design: </strong>This article presents a thematic synthesis of qualitative research carried out in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Studies were identified through searches of Cumulative Index to Nursing and Allied Health Literature, PsycINFO, PubMed, Scopus, and Web of Science databases and backward snowballing. The Critical Appraisal Skills Programme qualitative checklist was used as a quality assessment tool.</p><p><strong>Results: </strong>Eleven articles were included in this review, and all were deemed to be high quality. Seven themes were identified: stigmatization and the need to prove competence as a parent; feeling underrepresented as a parent with a physical disability; environmental limitations; experiences of accessing support; using skills and strategies to fulfill parenting role; children's roles and reactions, and changes as they grow; and safety, wellness, and health when parenting with a physical disability.</p><p><strong>Conclusions/implications: </strong>The findings emphasize the adaptability and resourcefulness of parents with physical disabilities in navigating environments that can be unsupportive, while continuing to prioritize their children's safety and well-being. The need for community peer-support groups and health care professionals who can provide emotional support, further public education with regards to the capabilities of parents with physical disabilities, prioritization of accessibility in public and private spaces, and the development of adapted childcare equipment, were all highlighted. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.9,"publicationDate":"2024-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142367001","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Comprehensive feedback on user experiences with brain injury identification cards. 全面反馈用户使用脑损伤识别卡的体验。
IF 1.9 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-10-03 DOI: 10.1037/rep0000586
Sarah M Bannon, Natalia Bernal Fernández, Holly Carrington, Kristen Dams-O'Connor, Eric Watson

Purpose/objective: Brain injuries are often "invisible" injuries that can have lifelong consequences including changes in identity, functional independence, relationships, and reduced participation in daily activities. Survivors of brain injury experience stigma and challenges related to the misattribution of symptoms to other causes that are significant barriers to recovery and adjustment. Changes in policy and other large-scale interventions are cited as an underexplored, yet critical path to reducing the impact of brain injury. The present study sought to comprehensively characterize the impact of one such initiative-Brain Injury Identification Cards-among survivors to further refine the resource.

Research method/design: In this cross-sectional qualitative focus group study, we recruited 16 individuals with a history of brain injury via email listservs of individuals who registered for a Brain Injury Identification Card. We used rapid data analysis with a hybrid of deductive and inductive analytic strategies to identify themes within a priori domains.

Results: We extracted themes within four domains: (a) process and reasons for obtaining cards; (b) overall impressions of the cards; (c) uses of the cards; and (d) feedback and proposed changes. Participants described the process of obtaining cards as straightforward and shared wide-ranging benefits across domains, including improving survivors' sense of safety, self-advocacy, and ability to participate in daily activities.

Conclusions/implications: Findings highlight the utility of Brain Injury Identification Cards for improving community understanding of brain injury symptoms and how injury-related challenges may manifest in daily life. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目的/目标:脑损伤通常是一种 "隐形 "伤害,可造成终生后果,包括身份、功能独立性、人际关系的改变以及参与日常活动的减少。脑损伤幸存者会因症状被错误归因于其他原因而蒙受耻辱和挑战,这些都是康复和适应的重大障碍。政策变化和其他大规模干预措施被认为是减少脑损伤影响的一条尚未充分探索但却至关重要的途径。本研究试图全面描述脑损伤识别卡这一举措对幸存者的影响,以进一步完善这一资源:在这项横断面定性焦点小组研究中,我们通过注册脑损伤识别卡的个人电子邮件列表招募了 16 名有脑损伤病史的人。我们采用演绎和归纳混合分析策略进行快速数据分析,以确定先验领域内的主题:我们提取了四个领域内的主题:(a) 获得识别卡的过程和原因;(b) 对识别卡的总体印象;(c) 识别卡的用途;(d) 反馈和修改建议。参与者认为获得脑识别卡的过程简单明了,并分享了各领域的广泛益处,包括提高幸存者的安全感、自我主张和参与日常活动的能力:研究结果凸显了脑损伤识别卡在增进社区对脑损伤症状以及日常生活中与损伤相关的挑战的了解方面的作用。(PsycInfo Database Record (c) 2024 APA, all rights reserved)。
{"title":"Comprehensive feedback on user experiences with brain injury identification cards.","authors":"Sarah M Bannon, Natalia Bernal Fernández, Holly Carrington, Kristen Dams-O'Connor, Eric Watson","doi":"10.1037/rep0000586","DOIUrl":"https://doi.org/10.1037/rep0000586","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Brain injuries are often \"invisible\" injuries that can have lifelong consequences including changes in identity, functional independence, relationships, and reduced participation in daily activities. Survivors of brain injury experience stigma and challenges related to the misattribution of symptoms to other causes that are significant barriers to recovery and adjustment. Changes in policy and other large-scale interventions are cited as an underexplored, yet critical path to reducing the impact of brain injury. The present study sought to comprehensively characterize the impact of one such initiative-Brain Injury Identification Cards-among survivors to further refine the resource.</p><p><strong>Research method/design: </strong>In this cross-sectional qualitative focus group study, we recruited 16 individuals with a history of brain injury via email listservs of individuals who registered for a Brain Injury Identification Card. We used rapid data analysis with a hybrid of deductive and inductive analytic strategies to identify themes within a priori domains.</p><p><strong>Results: </strong>We extracted themes within four domains: (a) process and reasons for obtaining cards; (b) overall impressions of the cards; (c) uses of the cards; and (d) feedback and proposed changes. Participants described the process of obtaining cards as straightforward and shared wide-ranging benefits across domains, including improving survivors' sense of safety, self-advocacy, and ability to participate in daily activities.</p><p><strong>Conclusions/implications: </strong>Findings highlight the utility of Brain Injury Identification Cards for improving community understanding of brain injury symptoms and how injury-related challenges may manifest in daily life. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.9,"publicationDate":"2024-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142367002","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A randomized controlled trial for self-advocacy intervention in college students with disabilities. 残疾大学生自我主张干预随机对照试验。
IF 1.9 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-09-30 DOI: 10.1037/rep0000583
Katherine Nieweglowski, Sang Qin, Eunjeong Ko

Purpose/objective: People with disabilities often achieve lower educational attainments and face worse employment outcomes compared to the general population, a disparity partially due to the insufficient development of self-advocacy skills in academic and professional environments where targeted interventions are limited. This study designed and evaluated a 6-week self-advocacy program (SAP) enhanced with solution-focused brief therapy techniques for college students with disabilities (SWDs).

Research method/design: A program evaluation on process and outcomes was conducted using a pilot randomized controlled trial with college SWD (n = 28). Process evaluations included feasibility, fidelity, and acceptability, whereas the preliminary impact was determined by comparing the outcome assessments of SAP and the control groups.

Results: Process findings indicated that the SAP was conducted as planned, with facilitators effectively employing solution-focused techniques. The program gained traction among SWD and proved feasible for implementation in college settings. SWD reported satisfaction with their participation and shared SAP's strengths as well as areas for improvement. Results indicated that SAP significantly increased SWDs' confidence in disclosing their disabilities and requesting accommodations in the workplace compared to their peers in the waitlist control group. However, no group differences were observed in self-advocacy and self-determination.

Conclusions/implications: The findings suggest that SAP offers benefits in various aspects of self-advocacy for college SWD, informing future implementations of SAP or similar initiatives targeting this group. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目的/目标:与普通人相比,残障人士的受教育程度往往较低,就业情况也较差,造成这种差异的部分原因是他们在学术和职业环境中的自我倡导技能发展不足,而有针对性的干预措施又十分有限。本研究设计并评估了一项为期 6 周的自我倡导计划(SAP),该计划采用了针对残疾大学生(SWDs)的简短疗法(Solution-focused Brief Therapy)技术:研究方法/设计:通过对大学生残障人士(n = 28)进行试点随机对照试验,对项目的过程和结果进行评估。过程评估包括可行性、忠实性和可接受性,而初步影响则通过比较 SAP 组和对照组的结果评估来确定:过程评估结果表明,SAP 计划按计划进行,主持人有效地运用了以解决问题为中心的技巧。该计划得到了社会弱势群体的认可,并证明了在大学环境中实施该计划的可行性。社工们对自己的参与表示满意,并分享了 SAP 的优点和需要改进的地方。结果表明,与候补对照组的同龄人相比,SAP 明显提高了社会弱势群体在工作场所披露其残疾情况和要求提供便利的信心。然而,在自我主张和自我决定方面,没有观察到任何群体差异:研究结果表明,SAP 在自我倡导的各个方面为大学生社残提供了益处,为今后实施 SAP 或针对该群体的类似计划提供了参考。(PsycInfo Database Record (c) 2024 APA, all rights reserved)。
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引用次数: 0
The COVID-19 experience through the lens of disability Twitter: A qualitative analysis. 从残疾人 Twitter 的视角看 COVID-19 的经历:定性分析。
IF 1.9 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-09-30 DOI: 10.1037/rep0000587
Toni Saia, Uzma Khan, Andrea Perkins Nerlich, Rebecca Bero, Julie C Hill, Sara P Johnston

Purpose: The societal response and constraints of the COVID-19 pandemic reinforced ableism for disabled people who were yet again treated as an afterthought in society. Systemic ableism impacted their well-being, access, and ability to be active members of their community. Disabled experiences and voices must be heard and amplified to improve preparedness and address ableism. Disability Twitter is one avenue where the disability community can collectively listen and support one another. These voices can and should be used to influence policy and practice. This study used Disability Twitter to represent and honor the experiences of the disability community, using the COVID-19 pandemic as a moment in time.

Research method/design: Qualitative thematic analysis of U.S.-based Twitter posts was conducted using retrospective social media posts. A total of 238 initial tweets from January 1, 2020 and September 30, 2022 were analyzed by the research team.

Results: Five themes were observed including ableism, devaluation, worthiness, act of reclaiming, and emotion. Disabled people reported instances of ableism, devaluation, and victimization by individuals, systems, and government entities throughout the pandemic. Disabled individuals utilized Twitter to share their collective experiences, urging society to address and respond to the needs of the disability community.

Conclusions: Using social media to center the perspectives of the disability community can invoke system-wide change and inform policies. Implications for combating systemic ableism and promoting allyship for clinical professionals, research scholars, and educators are provided. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目的:社会对 COVID-19 大流行病的反应和限制强化了对残疾人的能力歧视,他们在社会中再次被当作事后诸葛亮。系统性的残障人士歧视影响了他们的福祉、机会和成为社区积极成员的能力。残疾人的经历和声音必须被倾听和放大,以改善准备工作和解决能力歧视问题。残疾人 Twitter 是残疾人社区集体倾听和相互支持的一个渠道。这些声音可以也应该用来影响政策和实践。本研究以 COVID-19 大流行为时间点,利用残障人士 Twitter 来代表和纪念残障人士群体的经历:研究方法/设计:通过回顾性社交媒体帖子,对美国的 Twitter 帖子进行了定性主题分析。研究小组分析了 2020 年 1 月 1 日至 2022 年 9 月 30 日期间的 238 条初始推文:研究发现了五个主题,包括能力歧视、贬低、价值感、恢复行为和情感。在整个大流行病期间,残疾人报告了个人、系统和政府实体的能力歧视、贬低和伤害事件。残疾人利用 Twitter 分享他们的集体经历,敦促社会关注并回应残疾人群体的需求:结论:利用社交媒体将残障群体的观点集中起来,可以唤起整个系统的变革并为政策提供信息。结论:利用社交媒体将残障群体的观点集中起来,可以唤起整个系统的变革并为政策提供信息,这对临床专业人员、研究学者和教育工作者打击系统性残障主义和促进盟友关系具有重要意义。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
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引用次数: 0
Personality and health behavior changes after pulmonary rehabilitation: A longitudinal observational study. 肺康复后的人格和健康行为变化:纵向观察研究。
IF 1.9 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-09-30 DOI: 10.1037/rep0000584
Pauline Caille, Yannick Stephan, François Alexandre, Virginie Molinier, Nelly Héraud

Objective: Pulmonary rehabilitation (PR) is the gold standard treatment for improving the health status of individuals with chronic respiratory diseases (CRD). However, to achieve lasting results, the adoption and maintenance of a physically active lifestyle are necessary. Unfortunately, the trajectories of change in physical activity (PA) and sedentary behavior (SB) following PR are marked by a high degree of heterogeneity between patients. This study aimed to better understand the factors underlying this variability by investigating the role played by the personality as defined by the five-factor model.

Design: Eighty eight CRD patients were assessed on personality upon PR admission (Time 1). PA and SB were assessed at Time 1 and 6 months post-PR (Time 2) using questionnaires.

Results: Multiple regression analyses revealed that "healthy neuroticism" is associated with an increase in PA 6 months after PR (β = .20, p < .05) independently of the PA at Time 1. A high level of neuroticism, when it is paired with a low level of conscientiousness, is related to an increase in SB 6 months after PR (β = -.20, p < .01), when the SB and exercise tolerance at Time 1 were controlled for.

Conclusion: These findings highlight that investigating the interaction between personality traits is relevant to a better understanding of the interindividual differences in changes in PA and SB after PR in patients with CRD. The behavioral effects of PR could be improved if patients' personality traits were taken into account in the design of behavior-change interventions. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目的:肺康复(PR)是改善慢性呼吸系统疾病(CRD)患者健康状况的金标准疗法。然而,要取得持久的疗效,必须采用并保持积极的体育锻炼生活方式。遗憾的是,PR 治疗后体力活动(PA)和久坐行为(SB)的变化轨迹在患者之间存在很大的异质性。本研究旨在通过研究五因素模型所定义的人格所起的作用,更好地了解造成这种差异的因素:设计:88 名 CRD 患者在入院时(时间 1)接受人格评估。结果:多元回归分析表明,CRD 患者的神经系统和精神系统在其人格中占有重要地位:多元回归分析显示,"健康的神经质 "与 PR 后 6 个月 PA 的增加相关(β = .20,p < .05),与时间 1 时的 PA 无关。高水平的神经质与低水平的自觉性配对时,与 PR 6 个月后 SB 的增加有关(β = -.20,p <.01),如果控制了时间 1 的 SB 和运动耐受性的话:这些研究结果强调,研究人格特质之间的相互作用有助于更好地理解 CRD 患者 PR 后 PA 和 SB 变化的个体差异。如果在设计行为改变干预措施时考虑到患者的人格特质,就能提高 PR 的行为效果。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
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引用次数: 0
Exploring the feasibility of heart rate variability biofeedback for individuals with tetraplegia: A pilot clinical trial. 探索心率变异性生物反馈对四肢瘫痪患者的可行性:试点临床试验。
IF 2.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-09-09 DOI: 10.1037/rep0000577
Kimberley R Monden,Jason Nupp,Asma Ali,Bria MacIntyre,Mitch Sevigny,Angela Hanks Philippus
PURPOSE/OBJECTIVEThis study aimed to determine the feasibility of using commercially available heart rate variability (HRV) biofeedback training to improve physiological and self-reported stress and anxiety among adults with tetraplegia. HRV biofeedback teaches individuals to effectively modify their HRV levels in synchronization with their respiration rate and amplitude.RESEARCH METHOD/DESIGNThirty participants with tetraplegia were enrolled and allocated into one of two study arms: biofeedback or control. The study was conducted remotely from June 2022 through February 2023. Participants in the biofeedback arm received eight HRV training sessions with physiological monitoring, while participants in the control arm received physiological monitoring only. Outcome measures included feasibility, percentage of time spent in the low-frequency range, the Depression Anxiety Stress Scale-21, the Subjective Units of Distress Scale, and the State-Trait Anxiety Inventory-Y Form.RESULTSFeasibility was demonstrated with 100% completion of the protocol and no participant withdrawals due to adverse events. The biofeedback arm showed a greater percentage of time spent in the low-frequency range and reported greater improvement in anxiety from baseline to Session 8 on the Subjective Units of Distress Scale compared to the control arm. However, no differences were found between study arms on the Depression Anxiety Stress Scale-21 and State-Trait Anxiety Inventory-Y Form.CONCLUSIONS/IMPLICATIONSThis study demonstrated that a remotely delivered, self-administered HRV biofeedback intervention could feasibly be delivered to individuals with tetraplegia who report moderate-to-high levels of anxiety. Trends in the reduction of physiological and self-reported anxiety were observed. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
目的/目标本研究旨在确定使用市售心率变异性(HRV)生物反馈训练来改善四肢瘫痪成人的生理状况以及自我报告的压力和焦虑的可行性。心率变异生物反馈训练教导人们有效地改变心率变异水平,使其与呼吸频率和振幅同步。研究方法/设计30名四肢瘫痪的参与者参加了这项研究,并被分配到生物反馈或对照组两个研究组中的一个。研究于 2022 年 6 月至 2023 年 2 月期间远程进行。生物反馈组的参与者接受八次心率变异训练,同时进行生理监测,而对照组的参与者仅接受生理监测。结果测量包括可行性、在低频范围内花费的时间百分比、抑郁焦虑压力量表-21、主观苦恼单位量表和状态-特质焦虑量表-Y 表。与对照组相比,生物反馈治疗组在低频范围内花费的时间比例更高,从基线到第 8 次疗程的主观苦恼单位量表显示,生物反馈治疗组的焦虑症得到了更大的改善。结论/启示这项研究表明,可以对患有中度至高度焦虑的四肢瘫痪患者进行远程、自我管理的心率变异生物反馈干预。研究观察到了生理焦虑和自我报告焦虑的减轻趋势。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
{"title":"Exploring the feasibility of heart rate variability biofeedback for individuals with tetraplegia: A pilot clinical trial.","authors":"Kimberley R Monden,Jason Nupp,Asma Ali,Bria MacIntyre,Mitch Sevigny,Angela Hanks Philippus","doi":"10.1037/rep0000577","DOIUrl":"https://doi.org/10.1037/rep0000577","url":null,"abstract":"PURPOSE/OBJECTIVEThis study aimed to determine the feasibility of using commercially available heart rate variability (HRV) biofeedback training to improve physiological and self-reported stress and anxiety among adults with tetraplegia. HRV biofeedback teaches individuals to effectively modify their HRV levels in synchronization with their respiration rate and amplitude.RESEARCH METHOD/DESIGNThirty participants with tetraplegia were enrolled and allocated into one of two study arms: biofeedback or control. The study was conducted remotely from June 2022 through February 2023. Participants in the biofeedback arm received eight HRV training sessions with physiological monitoring, while participants in the control arm received physiological monitoring only. Outcome measures included feasibility, percentage of time spent in the low-frequency range, the Depression Anxiety Stress Scale-21, the Subjective Units of Distress Scale, and the State-Trait Anxiety Inventory-Y Form.RESULTSFeasibility was demonstrated with 100% completion of the protocol and no participant withdrawals due to adverse events. The biofeedback arm showed a greater percentage of time spent in the low-frequency range and reported greater improvement in anxiety from baseline to Session 8 on the Subjective Units of Distress Scale compared to the control arm. However, no differences were found between study arms on the Depression Anxiety Stress Scale-21 and State-Trait Anxiety Inventory-Y Form.CONCLUSIONS/IMPLICATIONSThis study demonstrated that a remotely delivered, self-administered HRV biofeedback intervention could feasibly be delivered to individuals with tetraplegia who report moderate-to-high levels of anxiety. Trends in the reduction of physiological and self-reported anxiety were observed. (PsycInfo Database Record (c) 2024 APA, all rights reserved).","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":"3 1","pages":""},"PeriodicalIF":2.7,"publicationDate":"2024-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142209683","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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Rehabilitation Psychology
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