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Examining the relationships between pain symptoms and psychosocial functioning among women living with and at risk for human immunodeficiency virus using a cross-sectional psychological network analysis. 利用横断面心理网络分析,研究感染人类免疫缺陷病毒和面临感染风险的妇女的疼痛症状与社会心理功能之间的关系。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-08-01 Epub Date: 2024-10-07 DOI: 10.1037/rep0000588
Leah M Adams, Kristina M Volgenau, Irene Regalario, Aaron D Hunt

Objective: Pain is prevalent among women living with HIV (WLWH); however, research on pain experience among WLWH in the United States is limited. This study used a network analysis to simultaneously examine the relationships between pain experience and psychosocial functioning among WLWH and human immunodeficiency virus (HIV)-negative women.

Method: A secondary analysis of public data from the Women's Interagency HIV Study, a U.S. longitudinal cohort study of the experiences of WLWH and women at increased risk for HIV (HIV negative), was completed. Data were from Visit 42 in 2015 and included 451 WLWH and 194 HIV-negative women who endorsed experiencing pain in the week prior to the interview. Similar to the sociodemographic characteristics of WLWH in the United States, the majority of women in the sample were racially and/or ethnically minoritized and of low socioeconomic position. Networks were modeled using measures of pain intensity, pain interference, depression symptoms, anxiety/worry symptoms, meaning in life, and emotional support.

Results: Network models for WLWH and HIV-negative women were comparable (ps > .05). Depression symptoms were a central construct (strength = 1.82 and 1.77, respectively) within the networks, and pain interference was associated with psychosocial constructs (ps < .05), while pain intensity was not (ps > .05). Meaning in life and emotional support were not directly associated with pain (ps > .05).

Conclusions: Network findings suggest that reducing depression symptoms may result in improved pain experience and broader positive impact for WLWH and for women at increased risk of HIV. This finding is consistent with research with other pain-focused populations. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的:疼痛在女性艾滋病病毒感染者(WLWH)中很普遍,但美国对女性艾滋病病毒感染者疼痛体验的研究却很有限。本研究采用网络分析方法,同时研究了女性艾滋病病毒感染者(WLWH)和人类免疫缺陷病毒(HIV)阴性女性的疼痛体验与心理社会功能之间的关系:对妇女机构间艾滋病研究(Women's Interagency HIV Study)的公开数据进行了二次分析,该研究是美国一项纵向队列研究,研究对象是妇女艾滋病患者和艾滋病风险增加的妇女(HIV阴性)。数据来自 2015 年的第 42 次访谈,包括 451 名 WLWH 和 194 名 HIV 阴性女性,她们均认可在访谈前一周经历过疼痛。与美国 WLWH 的社会人口学特征相似,样本中的大多数女性在种族和/或民族上属于少数群体,社会经济地位较低。研究使用疼痛强度、疼痛干扰、抑郁症状、焦虑/烦恼症状、生活意义和情感支持等指标对网络进行建模:结果:WLWH 和 HIV 阴性女性的网络模型具有可比性(Ps > .05)。抑郁症状是网络中的核心结构(强度分别为 1.82 和 1.77),疼痛干扰与心理社会结构相关(PS < .05),而疼痛强度与心理社会结构无关(PS > .05)。生活意义和情感支持与疼痛没有直接关系(PS > .05):网络研究结果表明,减少抑郁症状可能会改善 WLWH 和艾滋病高危妇女的疼痛体验,并产生更广泛的积极影响。这一发现与其他以疼痛为重点的人群的研究结果一致。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
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引用次数: 0
Ableist microaggressions and psychological distress among adults with disabilities: The role of disability visibility. 残疾成年人中的能力主义微观诽谤和心理困扰:残疾能见度的作用。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-08-01 Epub Date: 2024-08-29 DOI: 10.1037/rep0000582
Dylan G Serpas, Daniel A Ignacio, Kemesha Gabbidon, Barbara J Cherry

Purpose/objective: Experiences of disability-based discrimination among adults with disabilities (AWD) span individual, interpersonal, and structural domains that are implicated in mental health disparities. Ableist microaggressions, a subtle and contemporary form of disability-based discrimination, are positively associated with psychological distress. Additionally, disability characteristics may impact mental health outcomes differently. This study investigated (a) the association between lifetime experiences of ableist microaggressions and psychological distress and (b) the moderating effect of disability visibility.

Research method/design: A cross-sectional survey-based online study through Amazon's Mechanical Turk was conducted among 995 AWD whose ages ranged from 18 to 70 (M = 34.73, SD = 9.45).

Results: After adjusting for confounds linear regression analyses revealed a significant, positive relationship between ableist microaggressions and depressive, anxiety, and stress symptoms. Models explained approximately 18%-23% of the variance in psychological distress. Moderation analyses indicated that associations were stronger among participants with less visible disabilities.

Conclusions/implications: Findings underscore disability visibility as an important correlate in AWD mental health disparities. Results should be interpreted within the scope of the sampling procedures and sample demographics. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目标:成年残疾人(AWD)遭受的基于残疾的歧视横跨个人、人际和结构领域,与心理健康差异有关联。能力主义微诽谤是一种微妙的当代残疾歧视形式,与心理困扰呈正相关。此外,残疾特征可能会对心理健康结果产生不同的影响。本研究调查了(a)终生经历的残障主义微诋毁与心理困扰之间的关系,以及(b)残疾可见性的调节作用:研究方法/设计:通过亚马逊的 Mechanical Turk 进行了一项基于横截面调查的在线研究,研究对象为 995 名年龄介于 18 岁至 70 岁之间的残疾人士(M = 34.73,SD = 9.45):结果:在对混杂因素进行调整后,线性回归分析表明,能动主义微观辱骂与抑郁、焦虑和压力症状之间存在显著的正相关关系。模型解释了约 18%-23% 的心理困扰变异。调节分析表明,在残疾不太明显的参与者中,两者之间的关联性更强:研究结果表明,残疾可见度是造成残疾人士心理健康差异的一个重要相关因素。应在抽样程序和样本人口统计学的范围内解释研究结果。(PsycInfo Database Record (c) 2024 APA, 版权所有)。
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引用次数: 0
A randomized controlled trial for self-advocacy intervention in college students with disabilities. 残疾大学生自我主张干预随机对照试验。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-08-01 Epub Date: 2024-09-30 DOI: 10.1037/rep0000583
Katherine Nieweglowski, Sang Qin, Eunjeong Ko

Purpose/objective: People with disabilities often achieve lower educational attainments and face worse employment outcomes compared to the general population, a disparity partially due to the insufficient development of self-advocacy skills in academic and professional environments where targeted interventions are limited. This study designed and evaluated a 6-week self-advocacy program (SAP) enhanced with solution-focused brief therapy techniques for college students with disabilities (SWDs).

Research method/design: A program evaluation on process and outcomes was conducted using a pilot randomized controlled trial with college SWD (n = 28). Process evaluations included feasibility, fidelity, and acceptability, whereas the preliminary impact was determined by comparing the outcome assessments of SAP and the control groups.

Results: Process findings indicated that the SAP was conducted as planned, with facilitators effectively employing solution-focused techniques. The program gained traction among SWD and proved feasible for implementation in college settings. SWD reported satisfaction with their participation and shared SAP's strengths as well as areas for improvement. Results indicated that SAP significantly increased SWDs' confidence in disclosing their disabilities and requesting accommodations in the workplace compared to their peers in the waitlist control group. However, no group differences were observed in self-advocacy and self-determination.

Conclusions/implications: The findings suggest that SAP offers benefits in various aspects of self-advocacy for college SWD, informing future implementations of SAP or similar initiatives targeting this group. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目标:与普通人相比,残障人士的受教育程度往往较低,就业情况也较差,造成这种差异的部分原因是他们在学术和职业环境中的自我倡导技能发展不足,而有针对性的干预措施又十分有限。本研究设计并评估了一项为期 6 周的自我倡导计划(SAP),该计划采用了针对残疾大学生(SWDs)的简短疗法(Solution-focused Brief Therapy)技术:研究方法/设计:通过对大学生残障人士(n = 28)进行试点随机对照试验,对项目的过程和结果进行评估。过程评估包括可行性、忠实性和可接受性,而初步影响则通过比较 SAP 组和对照组的结果评估来确定:过程评估结果表明,SAP 计划按计划进行,主持人有效地运用了以解决问题为中心的技巧。该计划得到了社会弱势群体的认可,并证明了在大学环境中实施该计划的可行性。社工们对自己的参与表示满意,并分享了 SAP 的优点和需要改进的地方。结果表明,与候补对照组的同龄人相比,SAP 明显提高了社会弱势群体在工作场所披露其残疾情况和要求提供便利的信心。然而,在自我主张和自我决定方面,没有观察到任何群体差异:研究结果表明,SAP 在自我倡导的各个方面为大学生社残提供了益处,为今后实施 SAP 或针对该群体的类似计划提供了参考。(PsycInfo Database Record (c) 2024 APA, all rights reserved)。
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引用次数: 0
Socioeconomic factors in inflicted traumatic brain injury: Examining the area deprivation index. 造成创伤性脑损伤的社会经济因素:研究地区贫困指数。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-08-01 Epub Date: 2024-08-22 DOI: 10.1037/rep0000581
Angela H Lee, William A Anastasiadis, Stephanie A Hitti, Amy K Connery

Purpose/objective: Inflicted traumatic brain injury (iTBI), or abusive head injury, is a common cause of mortality and disability among infants and toddlers. Social determinants of health (SDoH) have a critical and multifaceted impact on iTBI, influencing both prevalence and outcomes. The area deprivation index (ADI) is a comprehensive metric of SDoH developed to assist in understanding how community-level socioeconomic factors influence patient outcomes. The current study sought to describe the sociodemographic characteristics, including ADI, of a cohort of 373 infants and young children who sustained an iTBI.

Research method/design: This study was a retrospective analysis utilizing a cohort of pediatric patients treated for iTBI at a large, tertiary care children's hospital serving seven states in the Rocky Mountain region.

Results: Mortality prevalence was higher among older children, and older children were more likely to have a longer stay in the pediatric intensive care unit. Children who were identified as Hispanic/Latino lived in areas with greater socioeconomic disadvantage than children identified as non-Hispanic/Latino. Specifically, participants who were identified as White Hispanic/Latino lived in areas with greater disadvantage than children who were identified as White non-Hispanic/Latino. There were no other significant differences by race. Contrary to hypotheses, ADI was not significantly related to mortality, injury severity, or follow-up visits.

Conclusions/implications: While SDoH are known to influence outcomes in iTBI, it may be necessary to incorporate individual or family-level SDoH variables within this clinical sample and examine the interaction between individual and community-level factors. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目标:创伤性脑损伤(iTBI)或虐待性头部损伤是导致婴幼儿死亡和残疾的常见原因。健康的社会决定因素(SDoH)对 iTBI 有着至关重要的多方面影响,既影响发病率,也影响治疗效果。地区贫困指数(ADI)是一个全面的 SDoH 指标,旨在帮助人们了解社区层面的社会经济因素如何影响患者的治疗效果。本研究旨在描述一组 373 名发生 iTBI 的婴幼儿的社会人口特征,包括 ADI:本研究是一项回顾性分析,研究对象是在落基山地区七个州的一家大型三甲儿童医院接受 iTBI 治疗的儿科患者:年长儿童的死亡率较高,而且年长儿童在儿科重症监护室的住院时间更长。与非西班牙裔/拉美裔儿童相比,被认定为西班牙裔/拉美裔的儿童生活在社会经济条件更差的地区。具体来说,被认定为西班牙裔/拉美裔白人的参与者所居住的地区比被认定为非西班牙裔/拉美裔白人的儿童所居住的地区更为不利。其他种族没有明显差异。与假设相反,ADI 与死亡率、受伤严重程度或随访没有明显关系:虽然已知 SDoH 会影响 iTBI 的结果,但可能有必要在该临床样本中纳入个人或家庭层面的 SDoH 变量,并研究个人与社区层面因素之间的相互作用。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
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引用次数: 0
The COVID-19 experience through the lens of disability Twitter: A qualitative analysis. 从残疾人 Twitter 的视角看 COVID-19 的经历:定性分析。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-08-01 Epub Date: 2024-09-30 DOI: 10.1037/rep0000587
Toni Saia, Uzma Khan, Andrea Perkins Nerlich, Rebecca Bero, Julie C Hill, Sara P Johnston

Purpose: The societal response and constraints of the COVID-19 pandemic reinforced ableism for disabled people who were yet again treated as an afterthought in society. Systemic ableism impacted their well-being, access, and ability to be active members of their community. Disabled experiences and voices must be heard and amplified to improve preparedness and address ableism. Disability Twitter is one avenue where the disability community can collectively listen and support one another. These voices can and should be used to influence policy and practice. This study used Disability Twitter to represent and honor the experiences of the disability community, using the COVID-19 pandemic as a moment in time.

Research method/design: Qualitative thematic analysis of U.S.-based Twitter posts was conducted using retrospective social media posts. A total of 238 initial tweets from January 1, 2020 and September 30, 2022 were analyzed by the research team.

Results: Five themes were observed including ableism, devaluation, worthiness, act of reclaiming, and emotion. Disabled people reported instances of ableism, devaluation, and victimization by individuals, systems, and government entities throughout the pandemic. Disabled individuals utilized Twitter to share their collective experiences, urging society to address and respond to the needs of the disability community.

Conclusions: Using social media to center the perspectives of the disability community can invoke system-wide change and inform policies. Implications for combating systemic ableism and promoting allyship for clinical professionals, research scholars, and educators are provided. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的:社会对 COVID-19 大流行病的反应和限制强化了对残疾人的能力歧视,他们在社会中再次被当作事后诸葛亮。系统性的残障人士歧视影响了他们的福祉、机会和成为社区积极成员的能力。残疾人的经历和声音必须被倾听和放大,以改善准备工作和解决能力歧视问题。残疾人 Twitter 是残疾人社区集体倾听和相互支持的一个渠道。这些声音可以也应该用来影响政策和实践。本研究以 COVID-19 大流行为时间点,利用残障人士 Twitter 来代表和纪念残障人士群体的经历:研究方法/设计:通过回顾性社交媒体帖子,对美国的 Twitter 帖子进行了定性主题分析。研究小组分析了 2020 年 1 月 1 日至 2022 年 9 月 30 日期间的 238 条初始推文:研究发现了五个主题,包括能力歧视、贬低、价值感、恢复行为和情感。在整个大流行病期间,残疾人报告了个人、系统和政府实体的能力歧视、贬低和伤害事件。残疾人利用 Twitter 分享他们的集体经历,敦促社会关注并回应残疾人群体的需求:结论:利用社交媒体将残障群体的观点集中起来,可以唤起整个系统的变革并为政策提供信息。结论:利用社交媒体将残障群体的观点集中起来,可以唤起整个系统的变革并为政策提供信息,这对临床专业人员、研究学者和教育工作者打击系统性残障主义和促进盟友关系具有重要意义。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
{"title":"The COVID-19 experience through the lens of disability Twitter: A qualitative analysis.","authors":"Toni Saia, Uzma Khan, Andrea Perkins Nerlich, Rebecca Bero, Julie C Hill, Sara P Johnston","doi":"10.1037/rep0000587","DOIUrl":"10.1037/rep0000587","url":null,"abstract":"<p><strong>Purpose: </strong>The societal response and constraints of the COVID-19 pandemic reinforced ableism for disabled people who were yet again treated as an afterthought in society. Systemic ableism impacted their well-being, access, and ability to be active members of their community. Disabled experiences and voices must be heard and amplified to improve preparedness and address ableism. Disability Twitter is one avenue where the disability community can collectively listen and support one another. These voices can and should be used to influence policy and practice. This study used Disability Twitter to represent and honor the experiences of the disability community, using the COVID-19 pandemic as a moment in time.</p><p><strong>Research method/design: </strong>Qualitative thematic analysis of U.S.-based Twitter posts was conducted using retrospective social media posts. A total of 238 initial tweets from January 1, 2020 and September 30, 2022 were analyzed by the research team.</p><p><strong>Results: </strong>Five themes were observed including ableism, devaluation, worthiness, act of reclaiming, and emotion. Disabled people reported instances of ableism, devaluation, and victimization by individuals, systems, and government entities throughout the pandemic. Disabled individuals utilized Twitter to share their collective experiences, urging society to address and respond to the needs of the disability community.</p><p><strong>Conclusions: </strong>Using social media to center the perspectives of the disability community can invoke system-wide change and inform policies. Implications for combating systemic ableism and promoting allyship for clinical professionals, research scholars, and educators are provided. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"332-340"},"PeriodicalIF":1.7,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142337006","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
TRACking health behavior in people with multiple sclerosis: Effects of a randomized trial on physical activity and working memory. 引导多发性硬化症患者的健康行为:随机试验对体育锻炼和工作记忆的影响。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-08-01 Epub Date: 2024-08-29 DOI: 10.1037/rep0000578
Madhura Phansikar, Elizabeth Jean Duraney, Heena R Manglani, Anita Shankar, Christine Roberts, Rebecca Andridge, Jacqueline A Nicholas, Rick Petosa, Ruchika S Prakash

Objective: Multiple sclerosis is associated with impairments in working memory functioning. Lifestyle physical activity interventions show promise in improving cognitive functioning; however, the evidence is limited. We examined the efficacy of a lifestyle physical activity intervention, involving step tracking and psychoeducational materials, on improving step counts, working memory functioning, and network strength in a whole-brain network of working memory.

Method: Participants (n = 75) were randomly assigned to a group tracking steps with a pedometer (step-track), or a group tracking water intake with a smart water bottle (water-track), for 6 months. At baseline, mid, and postintervention, we assessed weekly physical activity (GT3X+ accelerometer), weekly water intake (H20 Pal Smart Bottle), and working memory functioning. Additionally, the combined network strength of a validated working memory connectome was calculated.

Results: We ran random intercept linear mixed models to examine differences between the groups, over time. A significant Group × Time interaction effect with steps and water intake indicated that the step-track group increased their steps, and the water-track group increased their water intake, in comparison to each other, from baseline to postintervention (p < .05). Both groups improved in behavioral working memory over time (p < .05). No significant differences were found on the network strength.

Conclusion: Our 6-month randomized controlled trial involving physical activity tracking showed increased step count in the intervention group. Behavioral working memory improved in both groups, potentially due to practice effects. Future studies should include both active and passive control groups to discern practice effects from intervention impact. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的:多发性硬化症与工作记忆功能受损有关:多发性硬化症与工作记忆功能受损有关。生活方式体育锻炼干预有望改善认知功能,但证据有限。我们研究了一种生活方式体育锻炼干预措施(包括步数跟踪和心理教育材料)对改善步数、工作记忆功能和工作记忆全脑网络强度的效果:参与者(n = 75)被随机分配到使用计步器追踪步数的小组(步数追踪)或使用智能水壶追踪水摄入量的小组(水追踪),为期 6 个月。在基线、中期和干预后,我们对每周的体力活动(GT3X+加速度计)、每周的水摄入量(H20 Pal 智能水壶)和工作记忆功能进行了评估。此外,我们还计算了经过验证的工作记忆连接组的综合网络强度:我们运行随机截距线性混合模型来研究各组间随时间变化的差异。与步数和水摄入量相比,"组×时间 "交互效应显着,表明从基线到干预后,步数跟踪组的步数增加了,而水跟踪组的水摄入量增加了(p < .05)。随着时间的推移,两组的行为工作记忆都有所改善(P < .05)。在网络强度方面没有发现明显差异:我们为期 6 个月的体力活动跟踪随机对照试验表明,干预组的步数有所增加。两组的行为工作记忆都有所改善,这可能是由于练习效应。未来的研究应包括主动对照组和被动对照组,以便从干预效果中发现练习效应。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
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引用次数: 0
The health action process approach to promote regular physical activity among people with disabilities: A hierarchical regression analysis. 促进残疾人经常参加体育锻炼的健康行动过程方法:分层回归分析。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-08-01 Epub Date: 2024-10-03 DOI: 10.1037/rep0000589
Jia Rung Wu, Fong Chan, Nicole Ditchman

Objective: People with disabilities continue to cope with high levels of stress, such as disability-related stress and sociopolitical stress. Helping people with disabilities engage in regular physical activity to improve health and reduce stress is more important than ever. This study evaluated demographic covariates, the health action process approach (HAPA) constructs (action self-efficacy, outcome expectancy, risk perception, intention/commitment, maintenance and recovery self-efficacy, and action and coping planning), and positive person-environment variables (autonomous motivation, resilience, hope, and social support) as motivators for regular physical activity in a sample of people with disabilities.

Methods: People with disabilities participated in an online study (N = 266). Hierarchical regression analysis was used to determine the incremental variance in physical activity scores accounted for by variables in the regression model.

Results: Demographic covariates, HAPA constructs, and positive person-environment variables accounted for 38% of the total variance in physical activity scores (a large effect size). Low income was a risk factor that significantly and negatively associated with regular physical activity, while self-efficacy, action and coping planning, and social support were significantly and positively associated with reular physical activity after controlling for other variables. Autonomous motivation, resilience, and hope were significantly associated with regular physical activity at the zero-order correlation level, but not significant in the regression model.

Conclusions: This study provides strong empirical support for the HAPA constructs, which can be used to inform the development of theory-driven and empirically supported physical activity interventions to improve health, stress management, and well-being of people with disabilities. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的:残疾人继续承受着巨大的压力,如与残疾有关的压力和社会政治压力。帮助残疾人定期参加体育活动以改善健康和减轻压力比以往任何时候都更加重要。本研究评估了人口统计学协变量、健康行动过程方法(HAPA)建构(行动自我效能、结果预期、风险感知、意向/承诺、维持和恢复自我效能以及行动和应对计划)以及积极的人-环境变量(自主动机、复原力、希望和社会支持),作为残疾人样本中定期进行体育锻炼的动机:残疾人参与了一项在线研究(N = 266)。采用层次回归分析法确定回归模型中的变量在体育锻炼得分中所占的增量差异:结果:人口统计学协变量、HAPA 构建和积极的人-环境变量占体力活动得分总方差的 38%(影响较大)。低收入是一个风险因素,与定期体育锻炼有显著的负相关,而自我效能感、行动和应对计划以及社会支持在控制其他变量后与定期体育锻炼有显著的正相关。在零阶相关水平上,自主动机、复原力和希望与定期体育锻炼有显著相关,但在回归模型中不显著:本研究为 HAPA 构建提供了强有力的经验支持,可用于开发理论驱动、经验支持的体育活动干预措施,以改善残疾人的健康、压力管理和福祉。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
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引用次数: 0
Personality and health behavior changes after pulmonary rehabilitation: A longitudinal observational study. 肺康复后的人格和健康行为变化:纵向观察研究。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-08-01 Epub Date: 2024-09-30 DOI: 10.1037/rep0000584
Pauline Caille, Yannick Stephan, François Alexandre, Virginie Molinier, Nelly Héraud

Objective: Pulmonary rehabilitation (PR) is the gold standard treatment for improving the health status of individuals with chronic respiratory diseases (CRD). However, to achieve lasting results, the adoption and maintenance of a physically active lifestyle are necessary. Unfortunately, the trajectories of change in physical activity (PA) and sedentary behavior (SB) following PR are marked by a high degree of heterogeneity between patients. This study aimed to better understand the factors underlying this variability by investigating the role played by the personality as defined by the five-factor model.

Design: Eighty eight CRD patients were assessed on personality upon PR admission (Time 1). PA and SB were assessed at Time 1 and 6 months post-PR (Time 2) using questionnaires.

Results: Multiple regression analyses revealed that "healthy neuroticism" is associated with an increase in PA 6 months after PR (β = .20, p < .05) independently of the PA at Time 1. A high level of neuroticism, when it is paired with a low level of conscientiousness, is related to an increase in SB 6 months after PR (β = -.20, p < .01), when the SB and exercise tolerance at Time 1 were controlled for.

Conclusion: These findings highlight that investigating the interaction between personality traits is relevant to a better understanding of the interindividual differences in changes in PA and SB after PR in patients with CRD. The behavioral effects of PR could be improved if patients' personality traits were taken into account in the design of behavior-change interventions. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的:肺康复(PR)是改善慢性呼吸系统疾病(CRD)患者健康状况的金标准疗法。然而,要取得持久的疗效,必须采用并保持积极的体育锻炼生活方式。遗憾的是,PR 治疗后体力活动(PA)和久坐行为(SB)的变化轨迹在患者之间存在很大的异质性。本研究旨在通过研究五因素模型所定义的人格所起的作用,更好地了解造成这种差异的因素:设计:88 名 CRD 患者在入院时(时间 1)接受人格评估。结果:多元回归分析表明,CRD 患者的神经系统和精神系统在其人格中占有重要地位:多元回归分析显示,"健康的神经质 "与 PR 后 6 个月 PA 的增加相关(β = .20,p < .05),与时间 1 时的 PA 无关。高水平的神经质与低水平的自觉性配对时,与 PR 6 个月后 SB 的增加有关(β = -.20,p <.01),如果控制了时间 1 的 SB 和运动耐受性的话:这些研究结果强调,研究人格特质之间的相互作用有助于更好地理解 CRD 患者 PR 后 PA 和 SB 变化的个体差异。如果在设计行为改变干预措施时考虑到患者的人格特质,就能提高 PR 的行为效果。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
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引用次数: 0
Being a parent with a physical disability: A systematic review. 作为肢体残疾的父母:系统综述。
IF 1.9 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-08-01 Epub Date: 2024-10-03 DOI: 10.1037/rep0000590
Amanda Dunne, Christian Ryan

Purpose/objective: There is a significant gap in the literature with regards to the synthesis of qualitative research that explores the parenting experiences of parents with physical disabilities. This systematic review aims to synthesize the evidence regarding the experiences of parents with acquired and congenital physical disabilities.

Research method/design: This article presents a thematic synthesis of qualitative research carried out in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Studies were identified through searches of Cumulative Index to Nursing and Allied Health Literature, PsycINFO, PubMed, Scopus, and Web of Science databases and backward snowballing. The Critical Appraisal Skills Programme qualitative checklist was used as a quality assessment tool.

Results: Eleven articles were included in this review, and all were deemed to be high quality. Seven themes were identified: stigmatization and the need to prove competence as a parent; feeling underrepresented as a parent with a physical disability; environmental limitations; experiences of accessing support; using skills and strategies to fulfill parenting role; children's roles and reactions, and changes as they grow; and safety, wellness, and health when parenting with a physical disability.

Conclusions/implications: The findings emphasize the adaptability and resourcefulness of parents with physical disabilities in navigating environments that can be unsupportive, while continuing to prioritize their children's safety and well-being. The need for community peer-support groups and health care professionals who can provide emotional support, further public education with regards to the capabilities of parents with physical disabilities, prioritization of accessibility in public and private spaces, and the development of adapted childcare equipment, were all highlighted. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目标:在对探讨肢体残疾父母养育子女经验的定性研究进行综述方面,文献资料存在很大的空白。本系统性综述旨在综合有关后天性和先天性肢体残疾父母经验的证据:本文是根据《系统综述和元分析的首选报告项目》(Preferred Reporting Items for Systematic Reviews and Meta-Analyses)指南对定性研究进行的专题综述。通过检索《护理及相关健康文献累积索引》(Cumulative Index to Nursing and Allied Health Literature)、PsycINFO、PubMed、Scopus 和 Web of Science 数据库以及后向 "滚雪球 "法来确定研究。采用批判性评价技能计划定性检查表作为质量评估工具:本综述共收录了 11 篇文章,所有文章均被视为高质量文章。确定了七个主题:作为父母的耻辱感和证明能力的需要;作为身体残疾父母的不足感;环境限制;获得支持的经历;使用技能和策略履行养育子女的职责;子女的角色和反应,以及他们成长过程中的变化;身体残疾父母的安全、健康和保健:研究结果强调了肢体残疾父母的适应能力和机智,他们可以在不支持的环境中游刃有余,同时继续优先考虑子女的安全和福祉。研究强调了社区同伴支持团体和医疗保健专业人员提供情感支持的必要性,进一步开展有关肢体残疾父母能力的公众教育,优先考虑公共和私人空间的无障碍环境,以及开发适应性儿童保育设备。(PsycInfo 数据库记录 (c) 2024 APA,版权所有。)
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引用次数: 0
Comprehensive feedback on user experiences with brain injury identification cards. 全面反馈用户使用脑损伤识别卡的体验。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-08-01 Epub Date: 2024-10-03 DOI: 10.1037/rep0000586
Sarah M Bannon, Natalia Bernal Fernández, Holly Carrington, Kristen Dams-O'Connor, Eric Watson

Purpose/objective: Brain injuries are often "invisible" injuries that can have lifelong consequences including changes in identity, functional independence, relationships, and reduced participation in daily activities. Survivors of brain injury experience stigma and challenges related to the misattribution of symptoms to other causes that are significant barriers to recovery and adjustment. Changes in policy and other large-scale interventions are cited as an underexplored, yet critical path to reducing the impact of brain injury. The present study sought to comprehensively characterize the impact of one such initiative-Brain Injury Identification Cards-among survivors to further refine the resource.

Research method/design: In this cross-sectional qualitative focus group study, we recruited 16 individuals with a history of brain injury via email listservs of individuals who registered for a Brain Injury Identification Card. We used rapid data analysis with a hybrid of deductive and inductive analytic strategies to identify themes within a priori domains.

Results: We extracted themes within four domains: (a) process and reasons for obtaining cards; (b) overall impressions of the cards; (c) uses of the cards; and (d) feedback and proposed changes. Participants described the process of obtaining cards as straightforward and shared wide-ranging benefits across domains, including improving survivors' sense of safety, self-advocacy, and ability to participate in daily activities.

Conclusions/implications: Findings highlight the utility of Brain Injury Identification Cards for improving community understanding of brain injury symptoms and how injury-related challenges may manifest in daily life. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目标:脑损伤通常是一种 "隐形 "伤害,可造成终生后果,包括身份、功能独立性、人际关系的改变以及参与日常活动的减少。脑损伤幸存者会因症状被错误归因于其他原因而蒙受耻辱和挑战,这些都是康复和适应的重大障碍。政策变化和其他大规模干预措施被认为是减少脑损伤影响的一条尚未充分探索但却至关重要的途径。本研究试图全面描述脑损伤识别卡这一举措对幸存者的影响,以进一步完善这一资源:在这项横断面定性焦点小组研究中,我们通过注册脑损伤识别卡的个人电子邮件列表招募了 16 名有脑损伤病史的人。我们采用演绎和归纳混合分析策略进行快速数据分析,以确定先验领域内的主题:我们提取了四个领域内的主题:(a) 获得识别卡的过程和原因;(b) 对识别卡的总体印象;(c) 识别卡的用途;(d) 反馈和修改建议。参与者认为获得脑识别卡的过程简单明了,并分享了各领域的广泛益处,包括提高幸存者的安全感、自我主张和参与日常活动的能力:研究结果凸显了脑损伤识别卡在增进社区对脑损伤症状以及日常生活中与损伤相关的挑战的了解方面的作用。(PsycInfo Database Record (c) 2024 APA, all rights reserved)。
{"title":"Comprehensive feedback on user experiences with brain injury identification cards.","authors":"Sarah M Bannon, Natalia Bernal Fernández, Holly Carrington, Kristen Dams-O'Connor, Eric Watson","doi":"10.1037/rep0000586","DOIUrl":"10.1037/rep0000586","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Brain injuries are often \"invisible\" injuries that can have lifelong consequences including changes in identity, functional independence, relationships, and reduced participation in daily activities. Survivors of brain injury experience stigma and challenges related to the misattribution of symptoms to other causes that are significant barriers to recovery and adjustment. Changes in policy and other large-scale interventions are cited as an underexplored, yet critical path to reducing the impact of brain injury. The present study sought to comprehensively characterize the impact of one such initiative-Brain Injury Identification Cards-among survivors to further refine the resource.</p><p><strong>Research method/design: </strong>In this cross-sectional qualitative focus group study, we recruited 16 individuals with a history of brain injury via email listservs of individuals who registered for a Brain Injury Identification Card. We used rapid data analysis with a hybrid of deductive and inductive analytic strategies to identify themes within a priori domains.</p><p><strong>Results: </strong>We extracted themes within four domains: (a) process and reasons for obtaining cards; (b) overall impressions of the cards; (c) uses of the cards; and (d) feedback and proposed changes. Participants described the process of obtaining cards as straightforward and shared wide-ranging benefits across domains, including improving survivors' sense of safety, self-advocacy, and ability to participate in daily activities.</p><p><strong>Conclusions/implications: </strong>Findings highlight the utility of Brain Injury Identification Cards for improving community understanding of brain injury symptoms and how injury-related challenges may manifest in daily life. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"311-319"},"PeriodicalIF":1.7,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142367002","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Rehabilitation Psychology
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