Angela H Lee, William A Anastasiadis, Stephanie A Hitti, Amy K Connery
Purpose/objective: Inflicted traumatic brain injury (iTBI), or abusive head injury, is a common cause of mortality and disability among infants and toddlers. Social determinants of health (SDoH) have a critical and multifaceted impact on iTBI, influencing both prevalence and outcomes. The area deprivation index (ADI) is a comprehensive metric of SDoH developed to assist in understanding how community-level socioeconomic factors influence patient outcomes. The current study sought to describe the sociodemographic characteristics, including ADI, of a cohort of 373 infants and young children who sustained an iTBI.
Research method/design: This study was a retrospective analysis utilizing a cohort of pediatric patients treated for iTBI at a large, tertiary care children's hospital serving seven states in the Rocky Mountain region.
Results: Mortality prevalence was higher among older children, and older children were more likely to have a longer stay in the pediatric intensive care unit. Children who were identified as Hispanic/Latino lived in areas with greater socioeconomic disadvantage than children identified as non-Hispanic/Latino. Specifically, participants who were identified as White Hispanic/Latino lived in areas with greater disadvantage than children who were identified as White non-Hispanic/Latino. There were no other significant differences by race. Contrary to hypotheses, ADI was not significantly related to mortality, injury severity, or follow-up visits.
Conclusions/implications: While SDoH are known to influence outcomes in iTBI, it may be necessary to incorporate individual or family-level SDoH variables within this clinical sample and examine the interaction between individual and community-level factors. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Socioeconomic factors in inflicted traumatic brain injury: Examining the area deprivation index.","authors":"Angela H Lee, William A Anastasiadis, Stephanie A Hitti, Amy K Connery","doi":"10.1037/rep0000581","DOIUrl":"https://doi.org/10.1037/rep0000581","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Inflicted traumatic brain injury (iTBI), or abusive head injury, is a common cause of mortality and disability among infants and toddlers. Social determinants of health (SDoH) have a critical and multifaceted impact on iTBI, influencing both prevalence and outcomes. The area deprivation index (ADI) is a comprehensive metric of SDoH developed to assist in understanding how community-level socioeconomic factors influence patient outcomes. The current study sought to describe the sociodemographic characteristics, including ADI, of a cohort of 373 infants and young children who sustained an iTBI.</p><p><strong>Research method/design: </strong>This study was a retrospective analysis utilizing a cohort of pediatric patients treated for iTBI at a large, tertiary care children's hospital serving seven states in the Rocky Mountain region.</p><p><strong>Results: </strong>Mortality prevalence was higher among older children, and older children were more likely to have a longer stay in the pediatric intensive care unit. Children who were identified as Hispanic/Latino lived in areas with greater socioeconomic disadvantage than children identified as non-Hispanic/Latino. Specifically, participants who were identified as White Hispanic/Latino lived in areas with greater disadvantage than children who were identified as White non-Hispanic/Latino. There were no other significant differences by race. Contrary to hypotheses, ADI was not significantly related to mortality, injury severity, or follow-up visits.</p><p><strong>Conclusions/implications: </strong>While SDoH are known to influence outcomes in iTBI, it may be necessary to incorporate individual or family-level SDoH variables within this clinical sample and examine the interaction between individual and community-level factors. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142019123","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Purpose/objective: The current study examined the psychometric properties of common mental health questionnaires among women survivors of intimate partner violence (IPV) with and without brain injuries due to IPV and evaluated whether women with and without IPV-related brain injuries differed in depression, anxiety, and posttraumatic stress disorder (PTSD) symptom severity.
Research method/design: Women survivors of IPV with and without IPV-related brain injuries were recruited online through Prolific (N = 205, M = 39.8 ± 11.9 years old, 83.9% non-Hispanic White, 42.4% college-educated). They completed the eight-item Patient Health Questionnaire (PHQ-8), seven-item Generalized Anxiety Disorder scale (GAD-7), and PTSD Checklist for the Diagnostic and Statistical Manual of Mental Disorders (fifth edition) (PCL-5). Model fit and internal consistency were estimated for each scale. Groups were compared on mental health symptom severity, with and without controlling for age, education, and IPV severity.
Results: Both one-factor and multifactor models showed excellent fit for all scales. PHQ-8 (ω = .91), GAD-7 (ω = .94), and PCL-5 total scores (ω = .95) had strong reliability, and all subscale scores had acceptable-to-strong reliability (ω range = .79-.94). Women with IPV-related brain injuries reported greater physical IPV severity, higher rates of depression, and higher somatic anxiety and PTSD symptom severity. No group differences in mental health symptoms were significant after controlling for IPV severity.
Conclusions/implications: The PHQ-8, GAD-7, and PCL-5 showed evidence for reliability and validity among women survivors of IPV. Women with IPV-related brain injuries had higher PTSD symptom severity, attributable to greater physical violence exposure in general. Brain injury screening among survivors appears warranted for women with extensive physical IPV experiences. Interventions addressing PTSD, violence prevention, and brain injury recovery may best serve this population. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Depression, anxiety, and posttraumatic stress in women with and without brain injuries due to intimate partner violence: Psychometric evaluation of measurement approaches and group comparisons.","authors":"Justin E Karr, Agnes E White, T K Logan","doi":"10.1037/rep0000570","DOIUrl":"https://doi.org/10.1037/rep0000570","url":null,"abstract":"<p><strong>Purpose/objective: </strong>The current study examined the psychometric properties of common mental health questionnaires among women survivors of intimate partner violence (IPV) with and without brain injuries due to IPV and evaluated whether women with and without IPV-related brain injuries differed in depression, anxiety, and posttraumatic stress disorder (PTSD) symptom severity.</p><p><strong>Research method/design: </strong>Women survivors of IPV with and without IPV-related brain injuries were recruited online through Prolific (<i>N</i> = 205, <i>M</i> = 39.8 ± 11.9 years old, 83.9% non-Hispanic White, 42.4% college-educated). They completed the eight-item Patient Health Questionnaire (PHQ-8), seven-item Generalized Anxiety Disorder scale (GAD-7), and PTSD Checklist for the <i>Diagnostic and Statistical Manual of Mental Disorders</i> (fifth edition) (PCL-5). Model fit and internal consistency were estimated for each scale. Groups were compared on mental health symptom severity, with and without controlling for age, education, and IPV severity.</p><p><strong>Results: </strong>Both one-factor and multifactor models showed excellent fit for all scales. PHQ-8 (ω = .91), GAD-7 (ω = .94), and PCL-5 total scores (ω = .95) had strong reliability, and all subscale scores had acceptable-to-strong reliability (ω range = .79-.94). Women with IPV-related brain injuries reported greater physical IPV severity, higher rates of depression, and higher somatic anxiety and PTSD symptom severity. No group differences in mental health symptoms were significant after controlling for IPV severity.</p><p><strong>Conclusions/implications: </strong>The PHQ-8, GAD-7, and PCL-5 showed evidence for reliability and validity among women survivors of IPV. Women with IPV-related brain injuries had higher PTSD symptom severity, attributable to greater physical violence exposure in general. Brain injury screening among survivors appears warranted for women with extensive physical IPV experiences. Interventions addressing PTSD, violence prevention, and brain injury recovery may best serve this population. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142019122","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Muna Bhattarai, Sadiksha Karki, Mandira Baniya, Raju Dhakal, Heather B Taylor
Purpose/objective: This study aims to explore the perspectives of rehabilitation professionals regarding the barriers to spinal cord injury (SCI) rehabilitation services in Nepal.
Research method/design: A qualitative study involved 15 rehabilitation professionals working in the Spinal Injury Rehabilitation Center in Nepal. After obtaining informed consent, in-depth semistructured interviews were conducted using Zoom and phone calls between June and July 2023. Braun and Clarke's thematic analysis approach was utilized to analyze the interviews and generate themes from the participants' responses.
Results: The participants represented nine different rehabilitation professions. Over half of them were female (53.33%), and 86.67% had one to 10 years of experience in SCI rehabilitation. From in-depth interviews, four themes depicting barriers to rehabilitation were identified: (a) resource constraints within the rehabilitation centers, (b) concerns related to finance, awareness, and support mechanisms, (c) systemic problems coupled with geographical and physical barriers, and (d) beliefs and practices influencing access and adherence to rehabilitation.
Conclusions and implications: Delivering effective rehabilitation services for people with SCI presents a range of barriers. Considering the critical importance of rehabilitation for this population, the findings underscore the necessity of engaging stakeholders at multiple levels, individuals, communities, and government agencies to address the identified barriers and improve rehabilitation services in Nepal. The implications of the findings are further discussed. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
目的/目标:本研究旨在探讨康复专业人员对尼泊尔脊髓损伤(SCI)康复服务障碍的看法:这项定性研究涉及 15 名在尼泊尔脊髓损伤康复中心工作的康复专业人员。在获得知情同意后,研究人员于 2023 年 6 月至 7 月期间使用 Zoom 和电话进行了深入的半结构式访谈。采用布劳恩和克拉克的主题分析方法对访谈进行分析,并从参与者的回答中生成主题:结果:参与者代表了九种不同的康复专业。超过半数的参与者为女性(53.33%),86.67%的参与者拥有一至十年的 SCI 康复经验。通过深入访谈,确定了四个描述康复障碍的主题:(a) 康复中心内部的资源限制,(b) 与资金、意识和支持机制有关的问题,(c) 系统性问题加上地理和物理障碍,以及 (d) 影响获得和坚持康复的信念和做法:为 SCI 患者提供有效的康复服务存在一系列障碍。考虑到康复对这一人群的极端重要性,研究结果强调有必要让个人、社区和政府机构等多个层面的利益相关者参与进来,以解决已发现的障碍并改善尼泊尔的康复服务。本报告还进一步讨论了研究结果的意义。(PsycInfo Database Record (c) 2024 APA, all rights reserved)。
{"title":"Understanding barriers to spinal cord injury rehabilitation services in Nepal: A qualitative study of rehabilitation professionals' perspectives.","authors":"Muna Bhattarai, Sadiksha Karki, Mandira Baniya, Raju Dhakal, Heather B Taylor","doi":"10.1037/rep0000575","DOIUrl":"https://doi.org/10.1037/rep0000575","url":null,"abstract":"<p><strong>Purpose/objective: </strong>This study aims to explore the perspectives of rehabilitation professionals regarding the barriers to spinal cord injury (SCI) rehabilitation services in Nepal.</p><p><strong>Research method/design: </strong>A qualitative study involved 15 rehabilitation professionals working in the Spinal Injury Rehabilitation Center in Nepal. After obtaining informed consent, in-depth semistructured interviews were conducted using Zoom and phone calls between June and July 2023. Braun and Clarke's thematic analysis approach was utilized to analyze the interviews and generate themes from the participants' responses.</p><p><strong>Results: </strong>The participants represented nine different rehabilitation professions. Over half of them were female (53.33%), and 86.67% had one to 10 years of experience in SCI rehabilitation. From in-depth interviews, four themes depicting barriers to rehabilitation were identified: (a) resource constraints within the rehabilitation centers, (b) concerns related to finance, awareness, and support mechanisms, (c) systemic problems coupled with geographical and physical barriers, and (d) beliefs and practices influencing access and adherence to rehabilitation.</p><p><strong>Conclusions and implications: </strong>Delivering effective rehabilitation services for people with SCI presents a range of barriers. Considering the critical importance of rehabilitation for this population, the findings underscore the necessity of engaging stakeholders at multiple levels, individuals, communities, and government agencies to address the identified barriers and improve rehabilitation services in Nepal. The implications of the findings are further discussed. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141903218","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Purpose/objective: This study examined the impact of the ASPECT (Advocacy, Support, Perspective, Empowerment, Communication, and Training) Patient Engagement Program on its alumni in order to understand how they used the storytelling and advocacy skills they learned, determine the strengths of the program, and identify recommendations for strengthening the program.
Research method/design: In spring 2023, eight focus groups and one interview were conducted with ASPECT Program alumni. Inductive coding was used to identify themes.
Results: Eight themes emerged and included: (a) reasons alumni joined the ASPECT Program, (b) value of combining persons with visual impairments and allies in one cohort, (c) reflections on personal growth, (d) developing and telling one's story, (e) networking with others, (f) advocacy activities, (g) strengths of the ASPECT Program, and (h) recommendations for improving the ASPECT Program.
Conclusions/implications: The ASPECT Program provided alumni the opportunity to better understand their own eye health and/or the eye health of others, learn to impactfully tell their story to diverse stakeholders, develop their advocacy skills, and network with others. The use of a training program that includes those with visual impairments and allies is an effective method for providing high-quality training to a diverse group. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"A qualitative study of the ASPECT Patient Engagement Program designed to teach storytelling and advocacy skills to individuals with visual impairments and allies.","authors":"L Penny Rosenblum","doi":"10.1037/rep0000571","DOIUrl":"https://doi.org/10.1037/rep0000571","url":null,"abstract":"<p><strong>Purpose/objective: </strong>This study examined the impact of the ASPECT (Advocacy, Support, Perspective, Empowerment, Communication, and Training) Patient Engagement Program on its alumni in order to understand how they used the storytelling and advocacy skills they learned, determine the strengths of the program, and identify recommendations for strengthening the program.</p><p><strong>Research method/design: </strong>In spring 2023, eight focus groups and one interview were conducted with ASPECT Program alumni. Inductive coding was used to identify themes.</p><p><strong>Results: </strong>Eight themes emerged and included: (a) reasons alumni joined the ASPECT Program, (b) value of combining persons with visual impairments and allies in one cohort, (c) reflections on personal growth, (d) developing and telling one's story, (e) networking with others, (f) advocacy activities, (g) strengths of the ASPECT Program, and (h) recommendations for improving the ASPECT Program.</p><p><strong>Conclusions/implications: </strong>The ASPECT Program provided alumni the opportunity to better understand their own eye health and/or the eye health of others, learn to impactfully tell their story to diverse stakeholders, develop their advocacy skills, and network with others. The use of a training program that includes those with visual impairments and allies is an effective method for providing high-quality training to a diverse group. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141890481","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Yi-Jhen Wu, Chih-Chin Chou, Julie Chronister, Chia-Ling Hsu, Michael Qi Zheng, Wendy A Tobias
Forber-Pratt and colleagues' Disability Identity Development Scale (DIDS) is the only disability identity measure that meets all the criteria for rigorous scale development. Little is known however about item fit for the DIDS.
Purpose/objective: (a) To investigate the construct validity of the DIDS scores at the item and factor level using item response theory (IRT) and confirmatory factor analysis (CFA); (b) to investigate convergent validity of the DIDS scores with related constructs; and (c) to determine the reliability of each DIDS factor.
Research method/design: A convenience sample of 210 undergraduate college students with disabilities enrolled in a west coast 4-year public university participated in this study. Measures included the DIDS, the University Belongingness Questionnaire, and the College Self-Efficacy Inventory. Data were analyzed using the Rasch IRT framework, CFA, Omega reliability, and correlational analyses.
Results: IRT and CFA results revealed the data fit a 36-item, four-factor DIDS structure. Three items in the factor measuring adoption of disability community values items were easier, and four items in the factor measuring contribution to the disability community were difficult as compared with other DIDS items. Omega reliability analyses showed strong reliability for each DIDS factor. Correlation analyses found convergent and discriminant validity evidence for the DIDS with correlations with the University Belongingness Questionnaire and College Self-Efficacy Inventory in the hypothesized direction and magnitude.
Conclusion/implications: Findings provide evidence for Forber-Pratt and colleagues' theoretically and empirically derived DIDS, advancing the research, measurement, and practical application of disability identity development. Results are aligned with Forber-Pratt's psychosocial model of disability identity theoretical framework. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Disability Identity Development Scale: A validation study among college students with disabilities.","authors":"Yi-Jhen Wu, Chih-Chin Chou, Julie Chronister, Chia-Ling Hsu, Michael Qi Zheng, Wendy A Tobias","doi":"10.1037/rep0000564","DOIUrl":"https://doi.org/10.1037/rep0000564","url":null,"abstract":"<p><p>Forber-Pratt and colleagues' Disability Identity Development Scale (DIDS) is the only disability identity measure that meets all the criteria for rigorous scale development. Little is known however about item fit for the DIDS.</p><p><strong>Purpose/objective: </strong>(a) To investigate the construct validity of the DIDS scores at the item and factor level using item response theory (IRT) and confirmatory factor analysis (CFA); (b) to investigate convergent validity of the DIDS scores with related constructs; and (c) to determine the reliability of each DIDS factor.</p><p><strong>Research method/design: </strong>A convenience sample of 210 undergraduate college students with disabilities enrolled in a west coast 4-year public university participated in this study. Measures included the DIDS, the University Belongingness Questionnaire, and the College Self-Efficacy Inventory. Data were analyzed using the Rasch IRT framework, CFA, Omega reliability, and correlational analyses.</p><p><strong>Results: </strong>IRT and CFA results revealed the data fit a 36-item, four-factor DIDS structure. Three items in the factor measuring adoption of disability community values items were easier, and four items in the factor measuring contribution to the disability community were difficult as compared with other DIDS items. Omega reliability analyses showed strong reliability for each DIDS factor. Correlation analyses found convergent and discriminant validity evidence for the DIDS with correlations with the University Belongingness Questionnaire and College Self-Efficacy Inventory in the hypothesized direction and magnitude.</p><p><strong>Conclusion/implications: </strong>Findings provide evidence for Forber-Pratt and colleagues' theoretically and empirically derived DIDS, advancing the research, measurement, and practical application of disability identity development. Results are aligned with Forber-Pratt's psychosocial model of disability identity theoretical framework. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141890482","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-08-01Epub Date: 2024-01-25DOI: 10.1037/rep0000531
Guillaume Souesme, Valérie Poulin, Agnès Ethier, Marianne Grenier, Marie-Josée Sirois, Simon Beaulieu-Bonneau, Élaine De Guise, Marie-Eve Lamontagne, Carol Hudon, Marcel Émond, Marie-Christine Ouellet
Purpose: To obtain a better understanding of the factors which complicate or facilitate the adjustment of caregivers after traumatic brain injury (TBI) in older adults.
Research method: At 4, 8, and 12 months post-TBI (mild to severe), 65 caregivers answered two open-ended questions regarding facilitators and challenges linked to the injury of their loved one. A thematic analysis was performed.
Results: Participants mentioned almost as many facilitators as challenges at each time point. Among the facilitators, we found the following themes: receiving social support, having access to rehabilitation, improvement of the injured loved one's health condition, returning to live at home, having access to home services, feeling useful, effective communication, and having time for oneself. The challenges identified were: health issues in the injured loved one, psychological impact on the caregiver, assuming a new role, relationship strain, and decrease in activities and outings.
Conclusions: During the first year following TBI in older adults, caregivers were able to identify several facilitators despite the presence of challenging factors, suggesting effective coping and resilience. This knowledge can guide potential caregivers in their adaptation after TBI in an older adult, and we propose a simple tool to support this process. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Challenges and facilitators in the experience of caregiving for an older adult with traumatic brain injury: A longitudinal qualitative study in the first-year postinjury.","authors":"Guillaume Souesme, Valérie Poulin, Agnès Ethier, Marianne Grenier, Marie-Josée Sirois, Simon Beaulieu-Bonneau, Élaine De Guise, Marie-Eve Lamontagne, Carol Hudon, Marcel Émond, Marie-Christine Ouellet","doi":"10.1037/rep0000531","DOIUrl":"10.1037/rep0000531","url":null,"abstract":"<p><strong>Purpose: </strong>To obtain a better understanding of the factors which complicate or facilitate the adjustment of caregivers after traumatic brain injury (TBI) in older adults.</p><p><strong>Research method: </strong>At 4, 8, and 12 months post-TBI (mild to severe), 65 caregivers answered two open-ended questions regarding facilitators and challenges linked to the injury of their loved one. A thematic analysis was performed.</p><p><strong>Results: </strong>Participants mentioned almost as many facilitators as challenges at each time point. Among the facilitators, we found the following themes: receiving social support, having access to rehabilitation, improvement of the injured loved one's health condition, returning to live at home, having access to home services, feeling useful, effective communication, and having time for oneself. The challenges identified were: health issues in the injured loved one, psychological impact on the caregiver, assuming a new role, relationship strain, and decrease in activities and outings.</p><p><strong>Conclusions: </strong>During the first year following TBI in older adults, caregivers were able to identify several facilitators despite the presence of challenging factors, suggesting effective coping and resilience. This knowledge can guide potential caregivers in their adaptation after TBI in an older adult, and we propose a simple tool to support this process. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139564877","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-08-01Epub Date: 2024-01-22DOI: 10.1037/rep0000541
Shawni C B Botha, Clare Harvey
Purpose/objective: The acquisition of a disability impacts one's corporeality and has been found to destabilize one's sense of personal and social identity. The article explores the psychological and behavioral adaptation strategies that are employed in response to resisting, incorporating, and/or integrating disability into one's identity. We refer to a study that considered factors that facilitate and/or impede disability identification, aiming to investigate the trajectory that the process of identity (re)construction takes.
Research method/design: Seven individual, in person, semistructured interviews were conducted with adults with acquired physical and sensory disabilities. Data underwent thematic analysis. To encapsulate the intrapersonal as well as interpersonal dynamics inherent in identity (re)construction, the analysis was guided by an interpretative phenomenological lens and social identity theory (SIT).
Results: Disability identification is a complex and contradictory phenomenon, with strategies of resistance, incorporation, and/or integration fluctuating by setting and circumstance. These findings represent a significant departure from SIT literature-participants rather made use of more collectivist as opposed to individualistic adaptation strategies. Arguably, progress is being made with regard to disability pride, opening up a space for more positive and affirming disabled identities. Furthermore, disability identification is largely facilitated by greater opportunities for political advocacy and social support-online and in the disabled community. However, stigma-internalized and external-is still a major inhibitory factor to disability identification.
Conclusions/implications: Recommendations for rehabilitation programs and psychological professionals working with acquired physical and sensory disability are proposed. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
目的/目标:获得残疾会影响一个人的肉体,并破坏其个人和社会认同感。本文探讨了在抵制、融入和/或将残疾融入个人身份认同时所采用的心理和行为适应策略。研究方法/设计:研究方法/设计:我们对患有后天性肢体和感官残疾的成年人进行了七次个人半结构式访谈。对数据进行了主题分析。为了概括身份(重新)建构中固有的个人内部和人际间的动态变化,分析以解释现象学视角和社会身份理论(SIT)为指导:结果:残疾认同是一种复杂而矛盾的现象,其抵制、融入和/或融合策略随环境和情况的变化而变化。这些研究结果与社会认同理论(SIT)文献有很大不同--参与者更多采用集体主义的适应策略,而非个人主义的适应策略。可以说,在残疾人自豪感方面正在取得进展,为更加积极和肯定残疾人身份开辟了空间。此外,政治宣传和社会支持(在线和残疾人社区)的更多机会在很大程度上促进了残疾人身份认同。然而,内在和外在的污名化仍然是阻碍残疾人身份认同的主要因素:为从事后天性肢体和感官残疾工作的康复计划和心理专业人员提出了建议。(PsycInfo Database Record (c) 2024 APA, all rights reserved)。
{"title":"Doing difference differently: Identity (re)constructions of adults with acquired disabilities.","authors":"Shawni C B Botha, Clare Harvey","doi":"10.1037/rep0000541","DOIUrl":"10.1037/rep0000541","url":null,"abstract":"<p><strong>Purpose/objective: </strong>The acquisition of a disability impacts one's corporeality and has been found to destabilize one's sense of personal and social identity. The article explores the psychological and behavioral adaptation strategies that are employed in response to resisting, incorporating, and/or integrating disability into one's identity. We refer to a study that considered factors that facilitate and/or impede disability identification, aiming to investigate the trajectory that the process of identity (re)construction takes.</p><p><strong>Research method/design: </strong>Seven individual, in person, semistructured interviews were conducted with adults with acquired physical and sensory disabilities. Data underwent thematic analysis. To encapsulate the intrapersonal as well as interpersonal dynamics inherent in identity (re)construction, the analysis was guided by an interpretative phenomenological lens and social identity theory (SIT).</p><p><strong>Results: </strong>Disability identification is a complex and contradictory phenomenon, with strategies of resistance, incorporation, and/or integration fluctuating by setting and circumstance. These findings represent a significant departure from SIT literature-participants rather made use of more collectivist as opposed to individualistic adaptation strategies. Arguably, progress is being made with regard to disability pride, opening up a space for more positive and affirming disabled identities. Furthermore, disability identification is largely facilitated by greater opportunities for political advocacy and social support-online and in the disabled community. However, stigma-internalized and external-is still a major inhibitory factor to disability identification.</p><p><strong>Conclusions/implications: </strong>Recommendations for rehabilitation programs and psychological professionals working with acquired physical and sensory disability are proposed. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139513979","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-08-01Epub Date: 2024-01-25DOI: 10.1037/rep0000542
Zhiyang Shi, Jeffrey G Caron, Jacques Comeau, Pierre Lepage, Shane N Sweet
Purpose: Research has examined peer mentorship to understand how it may help people with spinal cord injury (SCI) adapt and thrive. We still lack an in-depth understanding of the perspectives of SCI peer mentors and mentees on their dyadic relationship. This study was to explore the dyadic interactions and relationships between SCI peer mentors and mentees in a peer mentorship program delivered at a rehabilitation center.
Research method: Between 2016 and 2017, we recruited two dyads of peer mentor and mentee with SCI (N = 4). Each participant completed three one-on-one interviews (N = 12). Data were analyzed using a creative nonfiction approach.
Results: Three unique dialogical stories were developed. Story 1 (A slow and steady start) described how mentors took a mentee-centered approach in building the relationship. Story 2 (Mentorship and friendship: negotiating the "grey zone") highlighted how mentees and mentors experienced challenges in navigating the boundaries between mentorship and friendship. Story 3 (The "endless" job for mentor) showcased how the relationship could enter a phase in which it could affect mentors' well-being.
Conclusions: The stories highlighted important attributes to the relationships between SCI mentors and mentees. Considerations were suggested for community-based SCI organizations to integrate peer mentorship into rehabilitation settings, including optimizing mentorship introductions and matching, defining mentors' role explicitly, and building support systems for mentors. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
研究目的研究人员对同伴指导进行了研究,以了解同伴指导如何帮助脊髓损伤(SCI)患者适应环境并茁壮成长。我们仍然缺乏对 SCI 朋辈指导者和被指导者对他们之间关系的看法的深入了解。本研究旨在探讨在康复中心开展的同伴指导项目中,SCI同伴指导者和被指导者之间的双向互动和关系:2016年至2017年期间,我们招募了两对患有SCI的同伴指导者和被指导者(N = 4)。每位参与者完成了三次一对一访谈(N = 12)。我们采用创造性非虚构方法对数据进行了分析:结果:形成了三个独特的对话故事。故事 1(缓慢而稳定的开始)描述了导师在建立关系时如何采取以被指导者为中心的方法。故事 2(导师和友谊:灰色地带的谈判)强调了被指导者和导师如何在探索导师和友谊的界限时经历挑战。故事 3(导师 "无休止 "的工作)展示了这种关系如何进入影响导师福祉的阶段:这些故事强调了 SCI 导师和被指导者之间关系的重要属性。结论:这些故事强调了 SCI 导师和被指导者之间关系的重要属性,为社区 SCI 组织将同伴指导融入康复环境提出了考虑因素,包括优化导师介绍和配对、明确定义导师的角色以及为导师建立支持系统。(PsycInfo Database Record (c) 2024 APA, all rights reserved)。
{"title":"Creative nonfiction approach to explore peer mentorship for individuals with spinal cord injury.","authors":"Zhiyang Shi, Jeffrey G Caron, Jacques Comeau, Pierre Lepage, Shane N Sweet","doi":"10.1037/rep0000542","DOIUrl":"10.1037/rep0000542","url":null,"abstract":"<p><strong>Purpose: </strong>Research has examined peer mentorship to understand how it may help people with spinal cord injury (SCI) adapt and thrive. We still lack an in-depth understanding of the perspectives of SCI peer mentors and mentees on their dyadic relationship. This study was to explore the dyadic interactions and relationships between SCI peer mentors and mentees in a peer mentorship program delivered at a rehabilitation center.</p><p><strong>Research method: </strong>Between 2016 and 2017, we recruited two dyads of peer mentor and mentee with SCI (<i>N</i> = 4). Each participant completed three one-on-one interviews (<i>N</i> = 12). Data were analyzed using a creative nonfiction approach.</p><p><strong>Results: </strong>Three unique dialogical stories were developed. Story 1 (A slow and steady start) described how mentors took a mentee-centered approach in building the relationship. Story 2 (Mentorship and friendship: negotiating the \"grey zone\") highlighted how mentees and mentors experienced challenges in navigating the boundaries between mentorship and friendship. Story 3 (The \"endless\" job for mentor) showcased how the relationship could enter a phase in which it could affect mentors' well-being.</p><p><strong>Conclusions: </strong>The stories highlighted important attributes to the relationships between SCI mentors and mentees. Considerations were suggested for community-based SCI organizations to integrate peer mentorship into rehabilitation settings, including optimizing mentorship introductions and matching, defining mentors' role explicitly, and building support systems for mentors. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139564954","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-08-01Epub Date: 2024-02-15DOI: 10.1037/rep0000546
Sonya Kim, Emily Dudek, Maria Kajankova, Tiffany Channing, Laura Tabio, Christina M Derbidge
Objective: To characterize how mentorship has been perceived, received, and practiced by individuals in the field of rehabilitation psychology across the career lifespan.
Method: Current members of the American Psychological Association Division 22 (Rehabilitation Psychology) were invited to complete an electronic survey via REDCap assessing individual experiences and perspectives on mentorship. Thematic analysis was used to identify key constructs and themes.
Results: 39 participants (n = 25 mentors) completed the survey with valid responses. Participants spanned the career lifespan, ranging from predoctoral trainees to late-senior psychologists. Mentorship was generally perceived as helpful for both mentors and mentees. Several important qualities of mentors (e.g., availability, communication skills, self-disclosure, and emotional support) and mentees (e.g., flexibility, motivation, and openness to feedback) were identified. Among both groups, mentorship was viewed as especially beneficial for obtaining American Board of Professional Psychology (ABPP) board certification, which may reflect an aspect of mentoring unique to Division 22. Existing gaps in mentorship and key areas for improvement were also identified; access to mid- to late-career mentorship emerged as a notable gap in mentorship. Increased program structure, networking opportunities, and research mentorship were also identified as possible areas of growth.
Conclusions: This study provides meaningful insights into mentorship within the field of rehabilitation psychology. Our findings demonstrate the value of mentorship across the career lifespan, and the beneficial role of mentorship in obtaining ABPP board certification. In addition, we identify key areas of growth that can inform and improve mentorship within the field. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Mentorship in rehabilitation psychology: Attitudes and perspectives.","authors":"Sonya Kim, Emily Dudek, Maria Kajankova, Tiffany Channing, Laura Tabio, Christina M Derbidge","doi":"10.1037/rep0000546","DOIUrl":"10.1037/rep0000546","url":null,"abstract":"<p><strong>Objective: </strong>To characterize how mentorship has been perceived, received, and practiced by individuals in the field of rehabilitation psychology across the career lifespan.</p><p><strong>Method: </strong>Current members of the American Psychological Association Division 22 (Rehabilitation Psychology) were invited to complete an electronic survey via REDCap assessing individual experiences and perspectives on mentorship. Thematic analysis was used to identify key constructs and themes.</p><p><strong>Results: </strong>39 participants (<i>n</i> = 25 mentors) completed the survey with valid responses. Participants spanned the career lifespan, ranging from predoctoral trainees to late-senior psychologists. Mentorship was generally perceived as helpful for both mentors and mentees. Several important qualities of mentors (e.g., availability, communication skills, self-disclosure, and emotional support) and mentees (e.g., flexibility, motivation, and openness to feedback) were identified. Among both groups, mentorship was viewed as especially beneficial for obtaining American Board of Professional Psychology (ABPP) board certification, which may reflect an aspect of mentoring unique to Division 22. Existing gaps in mentorship and key areas for improvement were also identified; access to mid- to late-career mentorship emerged as a notable gap in mentorship. Increased program structure, networking opportunities, and research mentorship were also identified as possible areas of growth.</p><p><strong>Conclusions: </strong>This study provides meaningful insights into mentorship within the field of rehabilitation psychology. Our findings demonstrate the value of mentorship across the career lifespan, and the beneficial role of mentorship in obtaining ABPP board certification. In addition, we identify key areas of growth that can inform and improve mentorship within the field. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139736433","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-08-01Epub Date: 2024-02-22DOI: 10.1037/rep0000538
Olivia E C Barrett, Aileen K Ho, Katherine A Finlay
Objectives: This study used the behavior change wheel to identify the priority behavioral factors for a tailored intervention to support (re-)engagement in sexual activity following a spinal cord injury (SCI).
Research method/design: Forty-eight semistructured interviews were conducted with participants from three outpatient/carer/clinician populations in the United Kingdom: people living with SCI, their partners/spouses, and healthcare professionals working in SCI rehabilitation. To identify potential strategies to facilitate (re-)engagement in sexual activity, the behavior change wheel (BCW) and behavior change technique taxonomy Version 1 were applied to code behavior change techniques (BCTs) present in interview transcripts.
Results: Six intervention functions, three policy categories, and 21 BCTs were identified as primary targets for interventions to support sexual (re-)engagement post-SCI. Increasing physical-related skills and training would promote physical capability, while sex-related knowledge and the understanding of sex-related health consequences would elevate psychological capability. A supportive healthcare team, alongside peer support and targeted environmental resources about sexual activity/well-being facilitate physical and social opportunities for sex. Motivation to (re-)engage in sexual activity comprised goal-driven reflective motivation to enhance beliefs about capabilities, and automatic motivation via emotional support and reward-based reinforcement.
Conclusions: This study outlines the key BCW and theoretically-derived intervention targets which now provide the foundation for innovative future interventions in SCI and sexual activity. Targeting these highly specific BCTs increases the likelihood that sexual satisfaction can become universally accessible after SCI. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Sexual activity (re-)engagement following spinal cord injury: Identifying behavior change targets for intervention development.","authors":"Olivia E C Barrett, Aileen K Ho, Katherine A Finlay","doi":"10.1037/rep0000538","DOIUrl":"10.1037/rep0000538","url":null,"abstract":"<p><strong>Objectives: </strong>This study used the behavior change wheel to identify the priority behavioral factors for a tailored intervention to support (re-)engagement in sexual activity following a spinal cord injury (SCI).</p><p><strong>Research method/design: </strong>Forty-eight semistructured interviews were conducted with participants from three outpatient/carer/clinician populations in the United Kingdom: people living with SCI, their partners/spouses, and healthcare professionals working in SCI rehabilitation. To identify potential strategies to facilitate (re-)engagement in sexual activity, the behavior change wheel (BCW) and behavior change technique taxonomy Version 1 were applied to code behavior change techniques (BCTs) present in interview transcripts.</p><p><strong>Results: </strong>Six intervention functions, three policy categories, and 21 BCTs were identified as primary targets for interventions to support sexual (re-)engagement post-SCI. Increasing physical-related skills and training would promote physical capability, while sex-related knowledge and the understanding of sex-related health consequences would elevate psychological capability. A supportive healthcare team, alongside peer support and targeted environmental resources about sexual activity/well-being facilitate physical and social opportunities for sex. Motivation to (re-)engage in sexual activity comprised goal-driven reflective motivation to enhance beliefs about capabilities, and automatic motivation via emotional support and reward-based reinforcement.</p><p><strong>Conclusions: </strong>This study outlines the key BCW and theoretically-derived intervention targets which now provide the foundation for innovative future interventions in SCI and sexual activity. Targeting these highly specific BCTs increases the likelihood that sexual satisfaction can become universally accessible after SCI. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139933631","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}