首页 > 最新文献

Rehabilitation Psychology最新文献

英文 中文
Impact of psychological treatment in freezing of gait: A pilot study. 心理治疗对步态冻结的影响:一项初步研究。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-11-01 Epub Date: 2025-01-06 DOI: 10.1037/rep0000592
Karen Brewer-Mixon, Staci Shearin, Gilbert Moralez, Jijia Wang, Patricia Tasha Champagne, Caitlin Jarrard

One common gait issue associated with advanced Parkinson's disease (PD) is freezing of gait (FoG). FoG impacts approximately half of people with PD and negatively impacts quality of life. Studies have suggested that anxiety may contribute to FoG. Individuals with FoG exhibit higher rates of anxiety, but it is unclear if anxiety contributes to FoG development. No known studies have assessed the impact of treating anxiety to improve FoG symptoms.

Objective: This pilot study evaluated the efficacy of cognitive behavioral therapy (CBT) training in reducing anxiety and improving gait in persons with PD following standard physical therapy (PT) treatment.

Method: Ten participants who had completed PT treatment for FoG were evaluated for psychological distress and gait parameters at baseline. They were then seen for four weekly virtual individual CBT sessions. Outcome measures were subsequently obtained 1 week after the CBT intervention and 5 weeks after the CBT intervention.

Results: Comparisons of baseline and postintervention Depression Anxiety Stress Scale-21 scores 1 week after the intervention were not statistically significant; however, improvements were both statistically and clinically significant a few weeks after the intervention, likely reflecting ongoing positive impact of CBT treatment. Gait parameters were noted to be clinically but not statistically significant after CBT treatment.

Conclusion: This study suggests that a brief course of CBT may help to reduce emotional distress and to improve aspects of gait in a cohort of PD patients with FoG. Future research using a larger cohort and providing concurrent CBT/PT interventions is needed. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

与晚期帕金森病(PD)相关的一个常见步态问题是步态冻结(FoG)。FoG影响了大约一半的PD患者,并对生活质量产生了负面影响。研究表明,焦虑可能会导致FoG。患有FoG的个体表现出更高的焦虑率,但尚不清楚焦虑是否有助于FoG的发展。没有已知的研究评估了治疗焦虑对改善FoG症状的影响。目的:本初步研究评估认知行为疗法(CBT)训练在PD患者标准物理治疗(PT)治疗后减轻焦虑和改善步态的疗效。方法:10名完成了FoG的PT治疗的参与者在基线时评估心理困扰和步态参数。然后,他们每周接受四次虚拟的个人CBT治疗。结果测量在CBT干预后1周和CBT干预后5周。结果:干预后1周基线与干预后抑郁焦虑应激量表-21评分比较无统计学意义;然而,在干预后几周,改善在统计学上和临床上都是显著的,可能反映了CBT治疗的持续积极影响。CBT治疗后,步态参数有临床意义,但无统计学意义。结论:本研究表明,短暂的CBT疗程可能有助于减少PD患者的情绪困扰和改善步态方面的FoG。未来的研究需要使用更大的队列,并提供并行的CBT/PT干预。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Impact of psychological treatment in freezing of gait: A pilot study.","authors":"Karen Brewer-Mixon, Staci Shearin, Gilbert Moralez, Jijia Wang, Patricia Tasha Champagne, Caitlin Jarrard","doi":"10.1037/rep0000592","DOIUrl":"10.1037/rep0000592","url":null,"abstract":"<p><p>One common gait issue associated with advanced Parkinson's disease (PD) is freezing of gait (FoG). FoG impacts approximately half of people with PD and negatively impacts quality of life. Studies have suggested that anxiety may contribute to FoG. Individuals with FoG exhibit higher rates of anxiety, but it is unclear if anxiety contributes to FoG development. No known studies have assessed the impact of treating anxiety to improve FoG symptoms.</p><p><strong>Objective: </strong>This pilot study evaluated the efficacy of cognitive behavioral therapy (CBT) training in reducing anxiety and improving gait in persons with PD following standard physical therapy (PT) treatment.</p><p><strong>Method: </strong>Ten participants who had completed PT treatment for FoG were evaluated for psychological distress and gait parameters at baseline. They were then seen for four weekly virtual individual CBT sessions. Outcome measures were subsequently obtained 1 week after the CBT intervention and 5 weeks after the CBT intervention.</p><p><strong>Results: </strong>Comparisons of baseline and postintervention Depression Anxiety Stress Scale-21 scores 1 week after the intervention were not statistically significant; however, improvements were both statistically and clinically significant a few weeks after the intervention, likely reflecting ongoing positive impact of CBT treatment. Gait parameters were noted to be clinically but not statistically significant after CBT treatment.</p><p><strong>Conclusion: </strong>This study suggests that a brief course of CBT may help to reduce emotional distress and to improve aspects of gait in a cohort of PD patients with FoG. Future research using a larger cohort and providing concurrent CBT/PT interventions is needed. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"405-414"},"PeriodicalIF":1.7,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142932470","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Identity development among veterans with spinal cord injury: A qualitative study. 脊髓损伤退伍军人身份发展:一项定性研究。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-11-01 Epub Date: 2025-02-13 DOI: 10.1037/rep0000603
Lauren L Mitchell, Erica Johnsen-Buss

Purpose/objective: The purpose of the present study was to identify perceived effects of spinal cord injury (SCI) on identity development and processes of reestablishing an integrated identity after SCI in a veteran sample.

Research method/design: Semistructured interviews with N = 21 veterans explored perceived effects of SCI on identity, including future orientation, meaning and purpose in life, engagement in key life roles including family, friendships, and work and engagement with other individuals with disabilities. Participants also completed survey measures of depressive symptoms and self-concept clarity. Mental health history data were extracted from electronic health records. Qualitative data were analyzed using thematic analysis.

Results: Participants frequently discussed identity-relevant changes in career roles, disrupted social roles, and changes in their sense of independence. However, most participants also emphasized aspects of their identity that remained continuous despite their injury. Among the most frequently discussed strategies for reestablishing an integrated identity after SCI were "adapting activities" and "establishing an active life," themes that highlight the relevance of identity exploration in adulthood. Military identity and culture afforded both benefits in adjusting to SCI (e.g., perseverance in recovery processes) as well as vulnerabilities (e.g., threats to self-sufficiency and physical fitness).

Conclusions/implications: The findings reinforce the importance of disability identity development as well as overall identity integration and reveal potential strategies that individuals may use to adapt their identities following SCI. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目的:本研究的目的是确定脊髓损伤(SCI)对退伍军人身份发展的感知影响以及脊髓损伤后重建综合身份的过程。研究方法/设计:对N = 21名退伍军人进行半结构化访谈,探讨脊髓损伤对身份认同的感知影响,包括未来取向、生活意义和目的、对家庭、友谊、工作等关键生活角色的参与以及与其他残疾个体的参与。参与者还完成了抑郁症状和自我概念清晰度的调查测量。从电子健康记录中提取精神健康史数据。定性数据采用专题分析进行分析。结果:被试经常讨论与身份相关的职业角色变化、社会角色中断和独立意识的变化。然而,大多数参与者也强调,尽管他们受伤了,但他们身份的某些方面仍然持续存在。在脊髓损伤后重建综合身份的最常讨论的策略是“适应活动”和“建立积极的生活”,这些主题强调了成年期身份探索的相关性。军事身份和文化在适应SCI(例如,在恢复过程中坚持不懈)和脆弱性(例如,对自给自足和身体健康的威胁)方面都有好处。结论/启示:研究结果强调了残疾身份发展和整体身份整合的重要性,并揭示了个体在脊髓损伤后可能使用的适应其身份的潜在策略。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Identity development among veterans with spinal cord injury: A qualitative study.","authors":"Lauren L Mitchell, Erica Johnsen-Buss","doi":"10.1037/rep0000603","DOIUrl":"10.1037/rep0000603","url":null,"abstract":"<p><strong>Purpose/objective: </strong>The purpose of the present study was to identify perceived effects of spinal cord injury (SCI) on identity development and processes of reestablishing an integrated identity after SCI in a veteran sample.</p><p><strong>Research method/design: </strong>Semistructured interviews with <i>N</i> = 21 veterans explored perceived effects of SCI on identity, including future orientation, meaning and purpose in life, engagement in key life roles including family, friendships, and work and engagement with other individuals with disabilities. Participants also completed survey measures of depressive symptoms and self-concept clarity. Mental health history data were extracted from electronic health records. Qualitative data were analyzed using thematic analysis.</p><p><strong>Results: </strong>Participants frequently discussed identity-relevant changes in career roles, disrupted social roles, and changes in their sense of independence. However, most participants also emphasized aspects of their identity that remained continuous despite their injury. Among the most frequently discussed strategies for reestablishing an integrated identity after SCI were \"adapting activities\" and \"establishing an active life,\" themes that highlight the relevance of identity exploration in adulthood. Military identity and culture afforded both benefits in adjusting to SCI (e.g., perseverance in recovery processes) as well as vulnerabilities (e.g., threats to self-sufficiency and physical fitness).</p><p><strong>Conclusions/implications: </strong>The findings reinforce the importance of disability identity development as well as overall identity integration and reveal potential strategies that individuals may use to adapt their identities following SCI. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"415-425"},"PeriodicalIF":1.7,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12343904/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143415839","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Social inequalities in mental health: Exploring the mediating role of psychosocial resources in individuals with spinal cord injury. 心理健康中的社会不平等:探索心理社会资源在脊髓损伤个体中的中介作用。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-11-01 Epub Date: 2025-05-12 DOI: 10.1037/rep0000620
Caroline Debnar, Christine Fekete, Stéphane Cullati, Mayra Galvis, Janina Lüscher

Objective: Lower mental health was observed in individuals with lower socioeconomic position (SES) in the general population. Similarly, social inequalities in mental health have also been observed in individuals with spinal cord injury (SCI), however, there is limited knowledge of the nonbiological mechanisms contributing to this uneven distribution. Previous research has demonstrated that psychosocial resources are linked to improved mental health. The aims of the present study were (a) to investigate the direct effects between SES and mental health load and (b) the mediating role of psychosocial resources in the SES mental health load associations in individuals living with SCI.

Research method: Cross-sectional self-report data from N = 1,294 persons living with SCI from the Swiss Spinal Cord Injury Cohort study were analyzed using structural equation modeling. SES was operationalized by education, household income, perceived financial hardship, and subjective social status. Psychosocial resources were operationalized by self-esteem, self-efficacy, hope, optimism and energy, feeling of belonging, purpose in life, social support, and relationship satisfaction. Mental health load was operationalized by emotional state, depressive symptoms, psychological distress, and affective components of well-being.

Results: Higher SES was significantly associated with lower mental health load. Self-esteem, self-efficacy, optimism and energy, feeling of belonging, purpose in life, and relationship satisfaction were found to mediate the association between SES and mental health load.

Conclusion: The study underscores potential interventions to address socioeconomic inequalities in mental health load among individuals living with SCI. Strengthening psychosocial resources could offer promising interventions, particularly for those from low SES backgrounds facing mental health challenges. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的:观察到一般人群中社会经济地位较低的个体心理健康状况较差。同样,在脊髓损伤(SCI)患者中也观察到心理健康方面的社会不平等,然而,对导致这种不平衡分布的非生物学机制的了解有限。先前的研究表明,社会心理资源与改善心理健康有关。本研究的目的是:(a)探讨社会经济地位与心理健康负荷之间的直接影响;(b)社会心理资源在脊髓损伤患者社会经济地位与心理健康负荷之间的中介作用。研究方法:采用结构方程模型对瑞士脊髓损伤队列研究中N = 1294名脊髓损伤患者的横断面自我报告数据进行分析。通过教育程度、家庭收入、感知经济困难和主观社会地位对SES进行操作。心理社会资源由自尊、自我效能感、希望、乐观和精力、归属感、生活目标、社会支持和关系满意度来运作。心理健康负荷由情绪状态、抑郁症状、心理困扰和幸福感的情感成分组成。结果:较高的社会经济地位与较低的心理健康负荷显著相关。自尊、自我效能、乐观与精力、归属感、生活目的和关系满意度在社会经济地位与心理健康负荷之间起中介作用。结论:该研究强调了解决脊髓损伤患者心理健康负荷的社会经济不平等的潜在干预措施。加强社会心理资源可以提供有希望的干预措施,特别是对那些来自低社会经济地位背景、面临精神健康挑战的人。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Social inequalities in mental health: Exploring the mediating role of psychosocial resources in individuals with spinal cord injury.","authors":"Caroline Debnar, Christine Fekete, Stéphane Cullati, Mayra Galvis, Janina Lüscher","doi":"10.1037/rep0000620","DOIUrl":"10.1037/rep0000620","url":null,"abstract":"<p><strong>Objective: </strong>Lower mental health was observed in individuals with lower socioeconomic position (SES) in the general population. Similarly, social inequalities in mental health have also been observed in individuals with spinal cord injury (SCI), however, there is limited knowledge of the nonbiological mechanisms contributing to this uneven distribution. Previous research has demonstrated that psychosocial resources are linked to improved mental health. The aims of the present study were (a) to investigate the direct effects between SES and mental health load and (b) the mediating role of psychosocial resources in the SES mental health load associations in individuals living with SCI.</p><p><strong>Research method: </strong>Cross-sectional self-report data from <i>N</i> = 1,294 persons living with SCI from the Swiss Spinal Cord Injury Cohort study were analyzed using structural equation modeling. SES was operationalized by education, household income, perceived financial hardship, and subjective social status. Psychosocial resources were operationalized by self-esteem, self-efficacy, hope, optimism and energy, feeling of belonging, purpose in life, social support, and relationship satisfaction. Mental health load was operationalized by emotional state, depressive symptoms, psychological distress, and affective components of well-being.</p><p><strong>Results: </strong>Higher SES was significantly associated with lower mental health load. Self-esteem, self-efficacy, optimism and energy, feeling of belonging, purpose in life, and relationship satisfaction were found to mediate the association between SES and mental health load.</p><p><strong>Conclusion: </strong>The study underscores potential interventions to address socioeconomic inequalities in mental health load among individuals living with SCI. Strengthening psychosocial resources could offer promising interventions, particularly for those from low SES backgrounds facing mental health challenges. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"447-456"},"PeriodicalIF":1.7,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144034959","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Childhood academic experiences and employment outcomes in adults with disabilities or chronic health conditions: A machine-learning approach. 残疾或慢性健康状况成年人的童年学习经历和就业结果:机器学习方法。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-10-16 DOI: 10.1037/rep0000640
Bryan R Christ, Lucie Adams, Jack D Watson, Olivia Chapman, Madeline Lee, Beau LeBlond, Paul B Perrin

Purpose/objective: Prior research highlights the complex interplay among disability, education, employment, and poverty, underscoring the importance of investigating how positive academic experiences among disabled individuals may predict employment status and poverty levels, potentially many years later. To address this gap, this study examined how educational factors including academic satisfaction, college degree attainment, and unmet academic accommodation needs predict employment and poverty among adults with disabilities or chronic health conditions.

Research method/design: A sample of 409 adults with disabilities or chronic health conditions while they had attended school in the United States completed an online survey of these constructs. Random forest models and their built-in measures of feature (or predictor) importance were used to predict the binary outcomes of employment status and poverty status using academic satisfaction, college degree attainment, and unmet academic accommodation needs as well as several common sociodemographic characteristics, including age, disability level, gender, rurality, and minority racial/ethnic identity. Across measures of feature importance, the academic factors showed comparable or greater predictive importance than all other sociodemographic predictors, and correlational analyses revealed that these academic factors were associated with higher levels of employment and lower levels of poverty.

Conclusion/implication: These findings suggest that positive educational experiences and accommodations are important predictors of both employment and poverty outcomes for individuals with disabilities. Future research should further explore how specific educational experiences impact employment outcomes for individuals with disabilities and examine supports and interventions that can create positive academic experiences. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目的:先前的研究强调了残疾、教育、就业和贫困之间复杂的相互作用,强调了调查残疾人积极的学术经历如何预测多年后的就业状况和贫困水平的重要性。为了解决这一差距,本研究调查了教育因素,包括学业满意度、大学学位成就和未满足的学术住宿需求,如何预测残疾或慢性疾病成年人的就业和贫困。研究方法/设计:409名患有残疾或慢性健康问题的成年人在美国上学期间完成了这些结构的在线调查。使用随机森林模型及其内置的特征(或预测因子)重要性度量来预测就业状况和贫困状况的二元结果,使用学术满意度、大学学位获得程度、未满足的学术住宿需求以及几个常见的社会人口统计学特征,包括年龄、残疾水平、性别、农村特征和少数民族种族/民族身份。在特征重要性的测量中,学术因素显示出与所有其他社会人口预测因素相当或更高的预测重要性,相关分析显示,这些学术因素与较高的就业水平和较低的贫困水平相关。结论/启示:这些研究结果表明,积极的教育经历和住宿是残疾人就业和贫困结果的重要预测因素。未来的研究应该进一步探索特定的教育经历如何影响残疾人的就业结果,并研究能够创造积极学术经历的支持和干预措施。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Childhood academic experiences and employment outcomes in adults with disabilities or chronic health conditions: A machine-learning approach.","authors":"Bryan R Christ, Lucie Adams, Jack D Watson, Olivia Chapman, Madeline Lee, Beau LeBlond, Paul B Perrin","doi":"10.1037/rep0000640","DOIUrl":"https://doi.org/10.1037/rep0000640","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Prior research highlights the complex interplay among disability, education, employment, and poverty, underscoring the importance of investigating how positive academic experiences among disabled individuals may predict employment status and poverty levels, potentially many years later. To address this gap, this study examined how educational factors including academic satisfaction, college degree attainment, and unmet academic accommodation needs predict employment and poverty among adults with disabilities or chronic health conditions.</p><p><strong>Research method/design: </strong>A sample of 409 adults with disabilities or chronic health conditions while they had attended school in the United States completed an online survey of these constructs. Random forest models and their built-in measures of feature (or predictor) importance were used to predict the binary outcomes of employment status and poverty status using academic satisfaction, college degree attainment, and unmet academic accommodation needs as well as several common sociodemographic characteristics, including age, disability level, gender, rurality, and minority racial/ethnic identity. Across measures of feature importance, the academic factors showed comparable or greater predictive importance than all other sociodemographic predictors, and correlational analyses revealed that these academic factors were associated with higher levels of employment and lower levels of poverty.</p><p><strong>Conclusion/implication: </strong>These findings suggest that positive educational experiences and accommodations are important predictors of both employment and poverty outcomes for individuals with disabilities. Future research should further explore how specific educational experiences impact employment outcomes for individuals with disabilities and examine supports and interventions that can create positive academic experiences. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.7,"publicationDate":"2025-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145309599","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Disability portrayals in artificial intelligence text-to-image generation: Influence of context and the medicalization of disability. 人工智能文本到图像生成中的残疾描述:语境的影响和残疾的医学化。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-09-29 DOI: 10.1037/rep0000634
Benjamin Ertman, Bridget Xia, Mona Sloane, Tom Hartvigsen, Paul B Perrin

Purpose/objective: Text-to-image (TTI) systems are artificial intelligence (AI) models that incorporate large amounts of data to produce high-resolution images. Although research has documented racial/ethnic and gender bias in TTI, little has examined disability bias. This study compared generated images of disabled people with no prompted setting to images of disabled individuals in health care settings.

Research method/design: OpenAI's DALL-E-3 TTI generated 50 images for each of the following prompts: (a) "person with a disability," (b) "patient with a disability," (c) "doctor with a disability," and (d) "doctor with a disability and a patient without a disability." We calculated DALL-E's success in generating prompted images and coded disability type and demographics.

Results: When prompted to create a "person with a disability," DALL-E-3 was 100% successful, with a wide diversity of disabilities. When prompted to create a "patient with a disability," DALL-E-3 was similarly 100% successful, although 70% of images portrayed an individual with a stereotypical physical disability. When prompted to create a "doctor with a disability," DALL-E-3 did with 92% accuracy: 94% had a physical disability and 6% a sensory disability; no other disability types were portrayed. When prompted to create a "doctor with a disability and a patient without a disability," in 64% of cases, DALL-E-3 generated images of doctors without disabilities, and 70% portrayed a disabled patient instead.

Conclusions/implications: Disability diversity decreases dramatically when AI-generated images place disabled people in a medical environment. As TTI generation grows more ubiquitous, further work by model developers to mitigate representational harms is vital. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目标:文本到图像(TTI)系统是人工智能(AI)模型,它包含大量数据以产生高分辨率图像。虽然研究记录了TTI中的种族/民族和性别偏见,但很少有研究调查残疾偏见。这项研究比较了没有提示设置的残疾人的生成图像和医疗机构中残疾人的图像。研究方法/设计:OpenAI的DALL-E-3 TTI为以下每个提示生成50张图像:(a)“残疾人”,(b)“残疾患者”,(c)“残疾医生”,(d)“残疾医生和无残疾患者”。我们计算了DALL-E在生成提示图像和编码残疾类型和人口统计数据方面的成功。结果:当提示创建一个“残疾人”时,DALL-E-3 100%成功,残疾的多样性很大。当提示创建一个“残疾患者”时,DALL-E-3同样100%成功,尽管70%的图像描绘的是一个典型的身体残疾患者。当提示创建“残疾医生”时,DALL-E-3的准确率为92%:94%的人有身体残疾,6%的人有感官残疾;没有描述其他残疾类型。当提示创建“残疾医生和非残疾患者”时,在64%的情况下,DALL-E-3生成的是非残疾医生的图像,而70%的情况下生成的是残疾患者的图像。结论/启示:当人工智能生成的图像将残疾人置于医疗环境中时,残疾多样性急剧下降。随着TTI生成变得越来越普遍,模型开发人员进一步减少表征危害的工作至关重要。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Disability portrayals in artificial intelligence text-to-image generation: Influence of context and the medicalization of disability.","authors":"Benjamin Ertman, Bridget Xia, Mona Sloane, Tom Hartvigsen, Paul B Perrin","doi":"10.1037/rep0000634","DOIUrl":"10.1037/rep0000634","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Text-to-image (TTI) systems are artificial intelligence (AI) models that incorporate large amounts of data to produce high-resolution images. Although research has documented racial/ethnic and gender bias in TTI, little has examined disability bias. This study compared generated images of disabled people with no prompted setting to images of disabled individuals in health care settings.</p><p><strong>Research method/design: </strong>OpenAI's DALL-E-3 TTI generated 50 images for each of the following prompts: (a) \"person with a disability,\" (b) \"patient with a disability,\" (c) \"doctor with a disability,\" and (d) \"doctor with a disability and a patient without a disability.\" We calculated DALL-E's success in generating prompted images and coded disability type and demographics.</p><p><strong>Results: </strong>When prompted to create a \"person with a disability,\" DALL-E-3 was 100% successful, with a wide diversity of disabilities. When prompted to create a \"patient with a disability,\" DALL-E-3 was similarly 100% successful, although 70% of images portrayed an individual with a stereotypical physical disability. When prompted to create a \"doctor with a disability,\" DALL-E-3 did with 92% accuracy: 94% had a physical disability and 6% a sensory disability; no other disability types were portrayed. When prompted to create a \"doctor with a disability and a patient without a disability,\" in 64% of cases, DALL-E-3 generated images of doctors without disabilities, and 70% portrayed a disabled patient instead.</p><p><strong>Conclusions/implications: </strong>Disability diversity decreases dramatically when AI-generated images place disabled people in a medical environment. As TTI generation grows more ubiquitous, further work by model developers to mitigate representational harms is vital. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.7,"publicationDate":"2025-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145193442","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A randomized controlled trial of the Caring Connections intervention to reduce loneliness in persons with spinal cord injuries and disorders. 关爱连接干预减少脊髓损伤和疾病患者孤独感的随机对照试验。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-09-29 DOI: 10.1037/rep0000637
Sherri L LaVela, Marissa Wirth, Kelsey Berryman, Robert W Motl, Brian Bartle, R Lorie Jacob, Keith Aguina, Charles H Bombardier

Purpose/objective: To evaluate the Caring Connections intervention compared to an attention control condition on loneliness, perceived burdensomeness (PB), and thwarted belongingness (TB).

Research method/design: In a two-arm parallel randomized controlled trial (RCT), 58 individuals with spinal cord injuries and disorders were randomized 1:1 to the intervention or the attention control condition. Block randomization with random block sizes of 2, 4, or 6 and allocation concealment were used to assign individuals to arms.

Results: Both groups showed within-group improvements in loneliness from baseline to post-RCT, but no statistically significant differences in change scores between the conditions over time. The treatment group showed within-group improvement in PB from baseline to post (p = .0008), but not in TB. The control group showed within-group improvement in TB from baseline to post (p = .04), but not in PB. No significant differences over time were found for either PB or TB between conditions. A greater proportion of the treatment versus control group found the program to be beneficial (76% vs. 45%, p = .02) and satisfactory (79% vs. 52%, p = .03).

Conclusions/implications: We did not demonstrate that the Caring Connections intervention reduced feelings of loneliness compared to the control condition. We found significant within-group improvements in loneliness from baseline to post-RCT for both groups. Within-group improvements in PB were seen in the treatment group and TB in the control group, but no significant differences in change scores over time between conditions. Communication over a 6-month period (from personalized peer letters or informational material on quality of life) had some impact on loneliness, PB, and TB. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目的:评价关爱连接干预与注意控制条件对孤独感、感知负担感和受挫归属感的影响。研究方法/设计:采用双臂平行随机对照试验(RCT),将58例脊髓损伤和脊髓障碍患者按1:1的比例随机分为干预组和注意控制组。采用随机分组大小为2、4或6的分组随机化和分配隐藏来分配个体到武器。结果:两组从基线到rct后的孤独感都有组内改善,但随着时间的推移,两组之间的变化得分没有统计学上的显著差异。治疗组从基线到治疗后的PB有组内改善(p = 0.0008),但结核无改善。从基线到治疗后,对照组的TB有组内改善(p = 0.04),但PB无改善。随着时间的推移,两种情况下的PB或TB没有显著差异。与对照组相比,治疗组更大比例的人认为该方案是有益的(76%对45%,p = 0.02)和满意的(79%对52%,p = 0.03)。结论/启示:我们没有证明关怀联系干预与对照组相比减少了孤独感。我们发现两组的孤独感从基线到rct后都有显著的改善。治疗组的PB和对照组的TB在组内均有改善,但两种情况间随时间的变化评分无显著差异。为期6个月的交流(来自个性化的同伴来信或关于生活质量的信息材料)对孤独感、PB和TB有一定的影响。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"A randomized controlled trial of the Caring Connections intervention to reduce loneliness in persons with spinal cord injuries and disorders.","authors":"Sherri L LaVela, Marissa Wirth, Kelsey Berryman, Robert W Motl, Brian Bartle, R Lorie Jacob, Keith Aguina, Charles H Bombardier","doi":"10.1037/rep0000637","DOIUrl":"10.1037/rep0000637","url":null,"abstract":"<p><strong>Purpose/objective: </strong>To evaluate the Caring Connections intervention compared to an attention control condition on loneliness, perceived burdensomeness (PB), and thwarted belongingness (TB).</p><p><strong>Research method/design: </strong>In a two-arm parallel randomized controlled trial (RCT), 58 individuals with spinal cord injuries and disorders were randomized 1:1 to the intervention or the attention control condition. Block randomization with random block sizes of 2, 4, or 6 and allocation concealment were used to assign individuals to arms.</p><p><strong>Results: </strong>Both groups showed within-group improvements in loneliness from baseline to post-RCT, but no statistically significant differences in change scores between the conditions over time. The treatment group showed within-group improvement in PB from baseline to post (<i>p</i> = .0008), but not in TB. The control group showed within-group improvement in TB from baseline to post (<i>p</i> = .04), but not in PB. No significant differences over time were found for either PB or TB between conditions. A greater proportion of the treatment versus control group found the program to be beneficial (76% vs. 45%, <i>p</i> = .02) and satisfactory (79% vs. 52%, <i>p</i> = .03).</p><p><strong>Conclusions/implications: </strong>We did not demonstrate that the Caring Connections intervention reduced feelings of loneliness compared to the control condition. We found significant within-group improvements in loneliness from baseline to post-RCT for both groups. Within-group improvements in PB were seen in the treatment group and TB in the control group, but no significant differences in change scores over time between conditions. Communication over a 6-month period (from personalized peer letters or informational material on quality of life) had some impact on loneliness, PB, and TB. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.7,"publicationDate":"2025-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145193385","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Internalized Ableism Inventory: Scale development using a hybrid artificial intelligence and community-based participatory research design. 内化残疾量表:使用混合人工智能和基于社区的参与式研究设计的规模开发。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-09-22 DOI: 10.1037/rep0000639
Paul B Perrin, Bryan R Christ, Tiffanie A Vargas, Mia E Dini, Benjamin Ertman, Steph L Cull, Diego Rivera, Bridget Xia, Erin E Andrews-Ash, Linda Mona, Alexander J Gates, Daniel W Klyce

Objective: This study (a) used OpenAI's GPT-4 large language model to generate an initial item pool for a potential scale measuring internalized ableism, (b) involved disabled community stakeholders in refining the items and prompting additional artificial intelligence-generated items, and (c) psychometrically validated the scale in a large sample of disabled individuals.

Method: Following a series of GPT-4 prompts and iterative community-based participatory research feedback, a tentative item pool of 90 statements was developed. A sample of 409 adults with diverse disabilities completed a survey containing the initial item pool, potentially related scales, and demographic questions.

Results: An exploratory factor analysis helped identify the final 51 items and subscale structure, and a confirmatory factor analysis then provided evidence of excellent factor structure fit. The scale contained eight subscales with Cronbach's αs that ranged from .85 to .97, with an overall total score α of .98. The total score and subscales showed consistent convergent validity with other measures of internalized stigma for chronic illness and anger and frustration with disability.

Conclusion: This study generated for the first time in the known research literature a nuanced, comprehensive, and psychometrically sound scale based on the integration of both artificial intelligence and community-based participatory research methodology: the Internalized Ableism Inventory. The demonstrated methodology generating it has the potential to modernize psychological scale development approaches. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的:本研究(a)使用OpenAI的GPT-4大型语言模型为测量内化残疾主义的潜在量表生成初始项目池,(b)让残疾人社区利益相关者参与改进项目并提示其他人工智能生成的项目,以及(c)在大量残疾人样本中对量表进行心理测量学验证。方法:通过一系列GPT-4提示和基于社区的参与性研究反馈,开发了一个包含90个语句的暂定题库。409名不同残疾的成年人完成了一项调查,其中包括初始项目库、潜在的相关量表和人口统计问题。结果:探索性因子分析有助于确定最终的51个项目和子量表结构,验证性因子分析提供了良好的因素结构拟合的证据。量表包含8个分量表,Cronbach αs值为。85到。97分,总分α为0.98分。总分和子量表与其他慢性疾病内化污名和残疾愤怒和沮丧的测量方法显示一致的收敛效度。结论:在已知的研究文献中,本研究首次基于人工智能和社区参与式研究方法的整合,生成了一个细致、全面、心理测量学上健全的量表:内化残疾量表。所演示的产生它的方法有可能使心理量表发展方法现代化。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"The Internalized Ableism Inventory: Scale development using a hybrid artificial intelligence and community-based participatory research design.","authors":"Paul B Perrin, Bryan R Christ, Tiffanie A Vargas, Mia E Dini, Benjamin Ertman, Steph L Cull, Diego Rivera, Bridget Xia, Erin E Andrews-Ash, Linda Mona, Alexander J Gates, Daniel W Klyce","doi":"10.1037/rep0000639","DOIUrl":"10.1037/rep0000639","url":null,"abstract":"<p><strong>Objective: </strong>This study (a) used OpenAI's GPT-4 large language model to generate an initial item pool for a potential scale measuring internalized ableism, (b) involved disabled community stakeholders in refining the items and prompting additional artificial intelligence-generated items, and (c) psychometrically validated the scale in a large sample of disabled individuals.</p><p><strong>Method: </strong>Following a series of GPT-4 prompts and iterative community-based participatory research feedback, a tentative item pool of 90 statements was developed. A sample of 409 adults with diverse disabilities completed a survey containing the initial item pool, potentially related scales, and demographic questions.</p><p><strong>Results: </strong>An exploratory factor analysis helped identify the final 51 items and subscale structure, and a confirmatory factor analysis then provided evidence of excellent factor structure fit. The scale contained eight subscales with Cronbach's αs that ranged from .85 to .97, with an overall total score α of .98. The total score and subscales showed consistent convergent validity with other measures of internalized stigma for chronic illness and anger and frustration with disability.</p><p><strong>Conclusion: </strong>This study generated for the first time in the known research literature a nuanced, comprehensive, and psychometrically sound scale based on the integration of both artificial intelligence and community-based participatory research methodology: the Internalized Ableism Inventory. The demonstrated methodology generating it has the potential to modernize psychological scale development approaches. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.7,"publicationDate":"2025-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12462894/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145139035","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resilience and positive mental health in persons with spinal cord injury and their informal caregivers: A dyadic study. 脊髓损伤患者及其非正式照护者的恢复力和积极心理健康:一项二元研究
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-09-15 DOI: 10.1037/rep0000635
Sonia Mangialavori, Maria Chiara Cortesi, Antonella Delle Fave

Background: Despite daily challenges, persons with spinal cord injury (PwSCI) successfully mobilize individual and relational resources and attain good mental health. Psychosocial resources were investigated as components of resilience, defined as satisfactory adaptation to adversity. While the association between resilience and positive mental health, conceptualized as psychological, emotional, and social well-being, was widely observed in individuals, it remains unexplored within dyads. This study was thus aimed to investigate this association at both individual and relational levels among PwSCI and their informal caregivers, defined as family members providing regular and unpaid assistance.

Method: Through a cross-sectional dyadic design, 162 PwSCI and their 162 caregivers completed the Resilience Scale for Adults and the Mental Health Continuum-Short Form. Actor and partner effects were analyzed using the actor-partner interdependence model.

Results: Significant actor effects emerged for self-perception (b = .60, p < .001), planned future (b = .62, p < .001), social competence (b = .26, p < .01), and social resources (b = .28, p < .01), resilience components positively associated with individuals' own positive mental health. A significant partner effect emerged for self-perception (b = .33, p < .05), suggesting interpersonal influence within the dyad. Caregivers reported higher positive mental health than PwSCI, but no role-based interactions emerged.

Conclusions: Resilience, particularly through self-perception, supports both personal and relational well-being, suggesting the potential usefulness of dyadic-focused interventions in chronic disease. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

背景:尽管面临日常挑战,脊髓损伤(PwSCI)患者仍能成功调动个人和关系资源,获得良好的心理健康。心理社会资源作为弹性的组成部分被调查,定义为对逆境的满意适应。虽然弹性和积极的心理健康之间的联系,被定义为心理,情感和社会福祉,在个体中被广泛观察到,但在二联体中仍未被探索。因此,本研究旨在调查PwSCI及其非正式照顾者(定义为提供定期和无偿援助的家庭成员)在个人和关系层面上的这种联系。方法:采用横断面双元设计,对162名PwSCI患者及其162名照顾者进行成人心理弹性量表和心理健康连续简表的问卷调查。运用参与者-参与者相互依赖模型分析参与者和参与者效应。结果:自我知觉(b = .60, p < .001)、计划未来(b = .62, p < .001)、社会能力(b = .26, p < .01)、社会资源(b = .28, p < .01)、弹性因素与个体自身积极心理健康呈正相关。显著的伴侣效应出现在自我知觉上(b = .33, p < .05),表明二人组内部的人际影响。照顾者报告的积极心理健康状况高于PwSCI,但没有出现基于角色的互动。结论:恢复力,特别是通过自我感知,支持个人和关系健康,表明以双侧障碍为重点的慢性疾病干预措施的潜在有用性。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Resilience and positive mental health in persons with spinal cord injury and their informal caregivers: A dyadic study.","authors":"Sonia Mangialavori, Maria Chiara Cortesi, Antonella Delle Fave","doi":"10.1037/rep0000635","DOIUrl":"https://doi.org/10.1037/rep0000635","url":null,"abstract":"<p><strong>Background: </strong>Despite daily challenges, persons with spinal cord injury (PwSCI) successfully mobilize individual and relational resources and attain good mental health. Psychosocial resources were investigated as components of resilience, defined as satisfactory adaptation to adversity. While the association between resilience and positive mental health, conceptualized as psychological, emotional, and social well-being, was widely observed in individuals, it remains unexplored within dyads. This study was thus aimed to investigate this association at both individual and relational levels among PwSCI and their informal caregivers, defined as family members providing regular and unpaid assistance.</p><p><strong>Method: </strong>Through a cross-sectional dyadic design, 162 PwSCI and their 162 caregivers completed the Resilience Scale for Adults and the Mental Health Continuum-Short Form. Actor and partner effects were analyzed using the actor-partner interdependence model.</p><p><strong>Results: </strong>Significant actor effects emerged for self-perception (<i>b</i> = .60, <i>p</i> < .001), planned future (<i>b</i> = .62, <i>p</i> < .001), social competence (<i>b</i> = .26, <i>p</i> < .01), and social resources (<i>b</i> = .28, <i>p</i> < .01), resilience components positively associated with individuals' own positive mental health. A significant partner effect emerged for self-perception (<i>b</i> = .33, <i>p</i> < .05), suggesting interpersonal influence within the dyad. Caregivers reported higher positive mental health than PwSCI, but no role-based interactions emerged.</p><p><strong>Conclusions: </strong>Resilience, particularly through self-perception, supports both personal and relational well-being, suggesting the potential usefulness of dyadic-focused interventions in chronic disease. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.7,"publicationDate":"2025-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145066152","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A qualitative exploration of self-compassion for caregivers of children with physical disabilities. 残障儿童照顾者自我同情的质性探讨。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-09-04 DOI: 10.1037/rep0000636
Christine R Lathren, Macy Lawrence Ratliff, Jamie Lynn Tatera, Rosemary Ellsworth, Jinyoung Park, Hannah Allen

Purpose/objective: Caregivers of children with physical disabilities face unique stressors and experience high levels of anxiety, depression, and burnout. In general, self-compassion-based skills are associated with decreased psychological distress and increased well-being. However, the nuances of why or how self-compassion may promote the psychological well-being in caregivers of children with physical disabilities are unknown. Using qualitative data, this study explores the relevance of self-compassion in supporting caregivers' psychological well-being from multiple perspectives.

Method: We conducted 13 semistructured interviews with community service providers, a group feedback session with seven caregiver advisors, and a feedback session with eight caregivers who had recently completed a self-compassion-based resilience course. Transcripts were analyzed by two coders using reflexive thematic analysis.

Results: We developed three themes regarding how self-compassion skills may promote caregivers' psychological well-being within the context of caregiving: (a) balancing "gritting through" with increased awareness and expression of emotions and needs, (b) balancing isolation with increased connection, and (c) balancing self-judgment with increased grace and self-advocacy.

Conclusion: Self-compassion skills may benefit caregivers in specific ways in the context of caring for a child with a physical disability. Self-compassion-based interventions that target and measure these unique factors are promising for alleviating psychological distress for this community. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目的:身体残疾儿童的照顾者面临着独特的压力源,并经历着高度的焦虑、抑郁和倦怠。总的来说,基于自我同情的技能与减少心理困扰和增加幸福感有关。然而,自我同情为什么或如何促进身体残疾儿童照顾者的心理健康的细微差别尚不清楚。本研究采用质性数据,从多个角度探讨自我同情与支持照顾者心理健康的关系。方法:我们对社区服务提供者进行了13次半结构化访谈,对7名照顾者顾问进行了小组反馈,并对8名最近完成了基于自我同情的弹性课程的照顾者进行了反馈。转录本由两名编码器使用反身性主题分析进行分析。结果:我们就自我同情技能如何在照顾的背景下促进照顾者的心理健康发展了三个主题:(a)平衡“坚持到底”与增加意识和表达情感和需求;(b)平衡孤立与增加联系;(c)平衡自我判断与增加优雅和自我倡导。结论:在照顾身体残疾儿童的过程中,自我同情技能可能以特定的方式使照顾者受益。以自我同情为基础的干预措施,针对和测量这些独特的因素,有望减轻这个社区的心理困扰。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"A qualitative exploration of self-compassion for caregivers of children with physical disabilities.","authors":"Christine R Lathren, Macy Lawrence Ratliff, Jamie Lynn Tatera, Rosemary Ellsworth, Jinyoung Park, Hannah Allen","doi":"10.1037/rep0000636","DOIUrl":"https://doi.org/10.1037/rep0000636","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Caregivers of children with physical disabilities face unique stressors and experience high levels of anxiety, depression, and burnout. In general, self-compassion-based skills are associated with decreased psychological distress and increased well-being. However, the nuances of why or how self-compassion may promote the psychological well-being in caregivers of children with physical disabilities are unknown. Using qualitative data, this study explores the relevance of self-compassion in supporting caregivers' psychological well-being from multiple perspectives.</p><p><strong>Method: </strong>We conducted 13 semistructured interviews with community service providers, a group feedback session with seven caregiver advisors, and a feedback session with eight caregivers who had recently completed a self-compassion-based resilience course. Transcripts were analyzed by two coders using reflexive thematic analysis.</p><p><strong>Results: </strong>We developed three themes regarding how self-compassion skills may promote caregivers' psychological well-being within the context of caregiving: (a) balancing \"gritting through\" with increased awareness and expression of emotions and needs, (b) balancing isolation with increased connection, and (c) balancing self-judgment with increased grace and self-advocacy.</p><p><strong>Conclusion: </strong>Self-compassion skills may benefit caregivers in specific ways in the context of caring for a child with a physical disability. Self-compassion-based interventions that target and measure these unique factors are promising for alleviating psychological distress for this community. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.7,"publicationDate":"2025-09-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144993794","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Identifying loneliness cues in persons with spinal cord injuries and disorders: A qualitative inquiry of provider's perspectives. 识别孤独线索的人与脊髓损伤和疾病:提供者的观点的定性调查。
IF 1.9 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-08-01 Epub Date: 2025-02-17 DOI: 10.1037/rep0000585
Sherri L LaVela, Marissa Wirth, Keith Aguina, Charles H Bombardier, Robert W Motl

Purpose/objective: Individuals with spinal cord injuries and disorders (SCI/D) may exhibit cues that tell a story about their loneliness. Health care providers must recognize loneliness cues in order to take action. This study identified and described loneliness cues exhibited by persons with SCI/D from health provider perspectives.

Research method/design: Descriptive qualitative design using in-depth interviews with health providers and analyzed using thematic analysis.

Results: Multidisciplinary SCI/D health providers from 10 nationwide Veterans Health Administration facilities. Ten themes described loneliness cues exhibited by persons with SCI/D: (a) direct or indirect verbal expression; (b) physical health symptoms/conditions; (c) mental health indicators; (d) withdrawal/lack of engagement; (e) "severe" voluntary seclusion, for example, not leaving house, not getting out of bed, sitting in the dark; (f) poor lifestyle behaviors, for example, substance use, poor nutrition; (g) neglecting personal self-care, for example, poor hygiene; (h) neglecting ones' internal environment, for example, dirty home, hoarding; (i) avoiding health care and health care management needs, for example, missing medical appointments, neglecting bowel care; and (j) fixating on health care to meet social health needs.

Conclusions/implications: Health care providers identified several loneliness cues commonly exhibited by individuals with SCI/D. These cues, whether verbal or nonverbal, may represent a signal that alerts the provider of a concern around loneliness. The value of such cues depends on the health provider's ability to identify them in order to decide on next steps, which may involve formal screening or validated measurement followed by collaborative patient engagement to identify potential sources contributing to loneliness and areas patients wish to address. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目的:患有脊髓损伤和障碍(SCI/D)的个体可能会表现出讲述他们孤独故事的线索。卫生保健提供者必须认识到孤独的线索,以便采取行动。本研究从医疗服务提供者的角度确定并描述了SCI/D患者表现出的孤独线索。研究方法/设计:描述性定性设计采用与保健提供者的深入访谈,并使用专题分析进行分析。结果:来自全国10个退伍军人健康管理机构的多学科SCI/D保健提供者。10个主题描述了SCI/D患者表现出的孤独线索:(a)直接或间接的言语表达;(b)身体健康症状/状况;(c)心理健康指标;(d)退出/不参与;(e)“严重的”自愿隐居,例如,不出家门,不下床,坐在黑暗中;不良的生活方式行为,例如滥用药物、营养不良;(g)忽视个人自我照顾,例如不讲卫生;(h)忽视自己的内部环境,如家里脏乱、囤积;(i)逃避保健和保健管理需求,例如,错过医疗预约,忽视肠道护理;(j)注重卫生保健,以满足社会卫生需求。结论/启示:卫生保健提供者确定了SCI/D患者通常表现出的几种孤独线索。这些暗示,无论是口头的还是非口头的,都可能是一个信号,提醒提供者担心孤独。这些线索的价值取决于卫生保健提供者识别它们的能力,以便决定下一步的步骤,这可能涉及正式的筛选或经过验证的测量,然后是协作患者参与,以确定导致孤独感的潜在来源和患者希望解决的领域。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Identifying loneliness cues in persons with spinal cord injuries and disorders: A qualitative inquiry of provider's perspectives.","authors":"Sherri L LaVela, Marissa Wirth, Keith Aguina, Charles H Bombardier, Robert W Motl","doi":"10.1037/rep0000585","DOIUrl":"10.1037/rep0000585","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Individuals with spinal cord injuries and disorders (SCI/D) may exhibit cues that tell a story about their loneliness. Health care providers must recognize loneliness cues in order to take action. This study identified and described loneliness cues exhibited by persons with SCI/D from health provider perspectives.</p><p><strong>Research method/design: </strong>Descriptive qualitative design using in-depth interviews with health providers and analyzed using thematic analysis.</p><p><strong>Results: </strong>Multidisciplinary SCI/D health providers from 10 nationwide Veterans Health Administration facilities. Ten themes described loneliness cues exhibited by persons with SCI/D: (a) direct or indirect verbal expression; (b) physical health symptoms/conditions; (c) mental health indicators; (d) withdrawal/lack of engagement; (e) \"severe\" voluntary seclusion, for example, not leaving house, not getting out of bed, sitting in the dark; (f) poor lifestyle behaviors, for example, substance use, poor nutrition; (g) neglecting personal self-care, for example, poor hygiene; (h) neglecting ones' internal environment, for example, dirty home, hoarding; (i) avoiding health care and health care management needs, for example, missing medical appointments, neglecting bowel care; and (j) fixating on health care to meet social health needs.</p><p><strong>Conclusions/implications: </strong>Health care providers identified several loneliness cues commonly exhibited by individuals with SCI/D. These cues, whether verbal or nonverbal, may represent a signal that alerts the provider of a concern around loneliness. The value of such cues depends on the health provider's ability to identify them in order to decide on next steps, which may involve formal screening or validated measurement followed by collaborative patient engagement to identify potential sources contributing to loneliness and areas patients wish to address. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"301-310"},"PeriodicalIF":1.9,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143442205","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Rehabilitation Psychology
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1