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Design, disability, and embodiment: spatial justice and perspectives of power Design, disability, and embodiment: spatial justice and perspectives of power , by J. Rieger, Abingdon, Routledge, 2023, x + 121 pp., £104, ISBN 9781032076843 《设计、残疾与体现:空间正义与权力视角》,J. Rieger著,阿宾登,劳特利奇出版社,2023,x + 121页,104英镑,ISBN 9781032076843
2区 社会学 Q2 REHABILITATION Pub Date : 2023-10-13 DOI: 10.1080/09687599.2023.2267383
Rob Imrie
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引用次数: 0
Autistic adults’ experiences of managing wellbeing and implications for social prescribing 自闭症成人管理健康的经验及其对社会处方的影响
2区 社会学 Q2 REHABILITATION Pub Date : 2023-10-12 DOI: 10.1080/09687599.2023.2263628
Charlotte Featherstone, Richard Sharpe, Nick Axford, Sheena Asthana, Kerryn Husk
Autistic people demonstrate poor outcomes on objective measures of wellbeing, yet research centring lived experience provides a more nuanced picture. There is growing support for person-centred, holistic and community approaches to enhancing wellbeing for autistic people. Social prescribing may be one such approach. This qualitative study explored the concept of wellbeing for autistic adults – including barriers and self-management – and the implications of this for modifying social prescribing. It involved semi-structured interviews with 21 autistic adults in the UK. Reflexive thematic analysis of the data supports research suggesting that self-determination may underlie many aspects of wellbeing for autistic people. The COVID-19 pandemic provided new opportunities to develop wellbeing strategies but also had negative impacts. Social prescribing could promote self-determination by signposting autistic people to peer support opportunities building on intrinsic interests.
自闭症患者在衡量幸福感的客观指标上表现不佳,但以生活经历为中心的研究提供了更微妙的图景。越来越多的人支持以人为本、全面和社区的方法来提高自闭症患者的福祉。社会处方可能就是这样一种方法。这项定性研究探讨了自闭症成年人的幸福概念——包括障碍和自我管理——以及这对改变社会处方的影响。该研究对英国21名自闭症成年人进行了半结构化访谈。对数据的反身性专题分析支持了一项研究,即自我决定可能是自闭症患者幸福的许多方面的基础。2019冠状病毒病大流行为制定福祉战略提供了新的机会,但也产生了负面影响。社会处方可以通过向自闭症患者指出基于内在兴趣的同伴支持机会来促进自我决定。
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引用次数: 0
Mobile banking apps in Poland and their accessibility for consumers with disabilities: a case study 波兰的移动银行应用程序及其对残疾消费者的可访问性:一个案例研究
2区 社会学 Q2 REHABILITATION Pub Date : 2023-10-09 DOI: 10.1080/09687599.2023.2263631
Anna Borowska-Beszta, Mateusz Smieszek, Beata Borowska-Beszta
AbstractProper adaptation of banking mobile applications to the needs of people with disabilities can play a crucial role in minimising the financial exclusion. The article examines selected mobile banking applications of four Polish banks in the context of their adaptation to the needs of consumers with disabilities. The project used a descriptive case study method based on analytical induction, and observation was carried out for six months. The analysis of the application was conducted in two parts: the adaptation of interfaces and functionalities to the preferences of people with disabilities in terms of readability, the efficiency of the application, and comprehensibility of the form of information transfer, and other accessible functionalities within the analysed applications that meet the needs of people with disabilities. The study’s results indicate the strengths of the accessibility of the analysed mobile applications as well as their limitations in enhancing independent living for people with disabilities.Points of interestSmartphones and mobile apps are becoming an inseparable part of the everyday life of consumers all over the world.The paper examines the design of modern banking apps in Poland in the context of their adaptation to the needs of consumers with disabilities.While the tested mobile applications meet many criteria of accessibility, there is room for improvement.The study indicates that further guidelines are needed to improve the usability and accessibility of banking apps and help conduct further consumer research in this area.Keywords: Accessibilityassistive technologymobile appsmobile bankingcase study Disclosure statementThe authors report that there are no competing interests to declare.
摘要针对残障人士的需求,适当调整银行移动应用程序,可以在最大限度地减少金融排斥方面发挥至关重要的作用。本文考察了四家波兰银行在其适应残疾消费者需求的背景下选定的移动银行应用程序。本项目采用基于分析归纳法的描述性案例研究方法,观察时间为6个月。应用程序的分析分两部分进行:界面和功能在可读性方面适应残疾人的偏好,应用程序的效率,信息传递形式的可理解性,以及分析的应用程序中满足残疾人需求的其他可访问功能。研究结果表明了所分析的移动应用程序的可访问性的优势,以及它们在提高残疾人独立生活方面的局限性。智能手机和移动应用程序正在成为世界各地消费者日常生活中不可分割的一部分。本文考察了波兰现代银行应用程序的设计,以适应残疾消费者的需求。虽然经过测试的移动应用程序满足了许多可访问性标准,但仍有改进的空间。该研究表明,需要进一步的指导方针来提高银行应用程序的可用性和可访问性,并帮助在这一领域进行进一步的消费者研究。关键词:无障碍辅助技术手机应用手机银行案例研究披露声明作者报告无利益竞争需要申报。
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引用次数: 0
Announcement of doctoral theses 博士论文公告
2区 社会学 Q2 REHABILITATION Pub Date : 2023-10-03 DOI: 10.1080/09687599.2023.2251276
Zara Trafford
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引用次数: 0
Disabled student experiences of Higher Education 残疾学生的高等教育经历
2区 社会学 Q2 REHABILITATION Pub Date : 2023-10-02 DOI: 10.1080/09687599.2023.2263633
Gayle Brewer, Emily Urwin, Beth Witham
Disabled students remain systematically disadvantaged compared to their non-disabled peers. It is, therefore, essential that educational practitioners and policy makers appreciate the complexity of the disabled student experience. In the present study, we identified 60 online forum posts (and 31 replies to the posts) discussing personal experiences of disability and Higher Education. Online posts (and their replies) were subject to inductive thematic analysis and six themes were extracted from the data. These themes were (i) impact on education, (ii) isolation from peers, (iii) seeking advice and support, (iv) barriers to assistance and accommodations, (v) impact of accommodations, and (vi) providing guidance and support. Recommendations for practice focus on the practical and social support required to ensure that disabled students are neither marginalized nor disadvantaged.
与非残疾学生相比,残疾学生在系统上仍然处于劣势。因此,教育从业者和政策制定者必须认识到残疾学生经历的复杂性。在本研究中,我们确定了60个在线论坛帖子(和31个回复帖子)讨论个人残疾经历和高等教育。对网络帖子(及其回复)进行归纳主题分析,并从数据中提取出六个主题。这些主题是:(一)对教育的影响,(二)与同龄人的隔离,(三)寻求咨询和支持,(四)获得援助和住宿的障碍,(五)住宿的影响,以及(六)提供指导和支持。关于实践的建议侧重于确保残疾学生既不被边缘化也不处于不利地位所需的实际和社会支持。
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引用次数: 1
Impeded choice and control within the NDIS: experiences of people living with psychosocial disability NDIS中受阻碍的选择和控制:社会心理残疾者的经历
2区 社会学 Q2 REHABILITATION Pub Date : 2023-10-02 DOI: 10.1080/09687599.2023.2263629
Debra Hamilton, Nicola Hancock, Justin Newton Scanlan
The aim of this study was to explore the choice and control that people with a psychosocial disability (disability related to consequences of mental ill-health) experience as they engaged with the National Disability Insurance Scheme (NDIS) and to understand aspects that impeded their choice and control. NDIS is an Australian, personalised funding, insurance scheme designed to provide supports that enable individuals living with disability to live an ‘ordinary’ contributing life. This lived-experience-led, qualitative study employed constructivist grounded theory methods. Twenty people were interviewed in-depth. Findings evidenced the poor experiences of choice and control people had on the Scheme. Choice and control were impeded by systems and processes as well as failure to accommodate for challenges associated with mental ill-health. Introduction of the ‘psychosocial recovery framework’ offers hope of improved experiences of choice and control, but it needs to be accompanied by cultural change across the NDIS service system.
本研究的目的是探讨社会心理残疾者(与精神疾病后果有关的残疾)在参与国家残疾保险计划(NDIS)时所经历的选择和控制,并了解阻碍他们选择和控制的方面。NDIS是澳大利亚的一项个性化资助保险计划,旨在为残疾人提供支持,使他们能够过上“普通”的缴费生活。这项以生活经验为主导的定性研究采用了建构主义的理论方法。对20人进行了深入采访。调查结果表明,人们对该计划的选择和控制体验不佳。系统和程序以及未能适应与精神疾病有关的挑战阻碍了选择和控制。“社会心理康复框架”的引入为改善选择和控制的体验提供了希望,但它需要伴随着整个NDIS服务系统的文化变革。
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引用次数: 1
Individuation processes in disabled people. An approach through mobilities in rural areas of southern Chile 残疾人的个性化过程。一种在智利南部农村地区通过流动的办法
2区 社会学 Q2 REHABILITATION Pub Date : 2023-09-27 DOI: 10.1080/09687599.2023.2263632
Diego Alfredo Solsona-Cisternas
AbstractMobilities are a social practice, which is managed around gaining access to services and activities that are important for daily life. At the same time, it is interpreted as a structural test where networks and resources are necessary to achieve them. With a qualitative approach, this research shows how disabled people in the South of Chile plan and achieve their mobilities using the resources available from their family and institutional networks. The results suggest that people together with their family, ‘kith,’ ‘other informal’, public and private institutions achieve ‘making possible’ their mobilities. Thus, they can access various services: healthcare, withdraw pensions, go shopping and deal with bureaucracy. Finally, we conclude that mobilities ‘produce the individual,’ in the sense that, depending on the source of the social supports that allow their mobilities, they may be considered ‘agentic’ or ‘institutionalised’ individuals.POINTS OF INTERESTMobilities allow access to services and activities of interest, and therefore play a key role in the social inclusion of disabled people.Mobilities can also be interpreted as daily challenges that people are forced to face in order to access various daily activities.Available research on this topic and the results of this study suggests that disabled people in rural areas manage to carry out their mobilities mainly due to support from family, institutional and ‘other informal’ networks.Mobility and its management might be incorporated into public policies, leading to improvements in the conditions for accessibility of disabled people, above all in rural areas.Keywords: Disabilitymobilitiesindividuationstructural testsocial supports AcknowledgementsThe author thanks everyone who voluntarily wanted to participate in this study, sharing their stories with me. I also thank the Municipality of San Juan de la Costa and the Municipal Health Corporation of Quinchao for helping me contact the participants.Disclosure statementNo potential conflict of interest was reported by the author(s).Additional informationFundingNational Agency for Research and Development (ANID) Chile, through the National Doctorate Grant 21180221.
摘要流动性是一种社会实践,它是围绕获得日常生活中重要的服务和活动进行管理的。同时,它被解释为一种结构测试,需要网络和资源来实现它们。本研究采用定性方法,展示了智利南部的残疾人如何利用其家庭和机构网络提供的资源规划和实现其流动性。结果表明,人们与他们的家人、“朋友”、“其他非正式的”、公共和私人机构一起实现了他们的流动“成为可能”。因此,他们可以享受各种服务:医疗保健、领取养老金、购物和处理官僚作风。最后,我们得出结论,流动“产生了个体”,从某种意义上说,根据允许他们流动的社会支持来源,他们可以被认为是“代理”或“制度化”的个体。移动性使人们能够获得感兴趣的服务和活动,因此在残疾人融入社会方面发挥着关键作用。流动性也可以解释为人们为了参加各种日常活动而被迫面对的日常挑战。关于这一主题的现有研究和本研究的结果表明,农村地区的残疾人主要是由于家庭、机构和“其他非正式”网络的支持才得以实现其流动性。可将流动性及其管理纳入公共政策,从而改善残疾人的无障碍条件,尤其是在农村地区。关键词:残疾,行动能力,个性化,结构测试,社会支持感谢每一位自愿参与这项研究,与我分享他们的故事的人。我还要感谢圣胡安德拉科斯塔市和晋潮市卫生公司帮助我联系与会者。披露声明作者未报告潜在的利益冲突。智利国家研究与发展机构(ANID),通过国家博士助学金21180221。
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引用次数: 0
Disability, diversity and inclusive education in Haiti: learning, exclusion and educational relationships in the context of crises Disability, diversity and inclusive education in Haiti: learning, exclusion and educational relationships in the context of crises , by RochambeauLainy, New York, Routledge, 2023, 254 pp., £96.00 (hardcover), £31.19 (paperback), ISBN 9781032389462 海地的残疾、多样性和全纳教育:危机背景下的学习、排斥和教育关系《海地的残疾、多样性和全纳教育:危机背景下的学习、排斥和教育关系》,RochambeauLainy,纽约,Routledge出版社,2023年,254页,96.00英镑(精装),31.19英镑(平装),ISBN 9781032389462
2区 社会学 Q2 REHABILITATION Pub Date : 2023-09-18 DOI: 10.1080/09687599.2023.2258320
Annisa  , Kurnia Dwijayanti, Nur Azizah
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引用次数: 0
The impact of the Russian invasion on healthcare for people with spina bifida in Ukraine 俄罗斯入侵对乌克兰脊柱裂患者医疗保健的影响
2区 社会学 Q2 REHABILITATION Pub Date : 2023-09-16 DOI: 10.1080/09687599.2023.2255735
Oksana Boyarchuk, Mariana Koshmaniuk
AbstractWar conflict is especially difficult for people with disabilities and their families. The aim of our study was to determine the impact of the full-scale Russian invasion of Ukraine on the lives of people with spina bifida. We initiated an online survey for people with spina bifida and 53 respondents gave answers. The survey showed that Russian aggression has a significant negative impact on the health of people with spina bifida: their access to basic services (in more than 50% of respondents), and to treatment (in more than 35%) and rehabilitation (in 62.3%). The most vulnerable were people with limited motor activity. Mental health of people was also greatly affected (in 67.9%). Counseling, information and psychological sustentation are important components of support for people with spina bifida and their families during wartime.Keywords: spina bifidawarimpactmedical carebasic servicesmental health AcknowledgmentThe authors would like to thank all children, adults with spina bifida and children’s parents for participation in the survey.The authors express their gratitude to the International charitable organization “Child-Help International” (Belgium)”, “The International Federation for Spina Bifida and Hydrocephalus”, “Fundacja Spina Polska”, “Ukraine Project Edegem”, Mission Ihor Vitenko, Polonijne Stowarzyszenie Kulturalno-Oświatowe w Tarnopolu, LLC “Nova Poshta” Ukraine, Coloplast w Polsce, Coloplast Slovakia, Adrian Goretzkii and Bernadeta Prandzioch from the Foundation “Healthcare Education Institute”, Poland for the support of patients with spina bifida in Ukraine.Author contributionsAll authors contributed to the study conception and design. Data collection was performed mainly by MK. Analysis and the first draft of the manuscript was performed by OB and all authors commented on previous versions of the manuscript. All authors read and provided critical feedback on manuscript drafts as well as approving the final version of the manuscript.Disclosure statementThe authors declare no competing interest.Data availabilityThe datasets generated during and/or analysed during the current study are available from the corresponding author (OB) on reasonable request.
战争冲突对残疾人及其家庭来说尤其困难。我们研究的目的是确定俄罗斯全面入侵乌克兰对脊柱裂患者生活的影响。我们发起了一项针对脊柱裂患者的在线调查,53名受访者给出了答案。调查显示,俄罗斯的侵略行为对脊柱裂患者的健康产生了重大的负面影响:他们获得基本服务(50%以上的答复者)、治疗(35%以上)和康复(62.3%)的机会。最脆弱的是那些运动能力有限的人。人们的心理健康也受到很大影响(占67.9%)。咨询、信息和心理支持是战时对脊柱裂患者及其家属支持的重要组成部分。关键词:脊柱裂影响医疗保健基本服务心理健康感谢所有参与本次调查的儿童、成人脊柱裂患者和儿童家长。作者对国际慈善组织“儿童援助国际”(比利时)、“国际脊柱裂和脑水联合会”、“波兰脊柱基金会”、“乌克兰Edegem项目”、Mission Ihor Vitenko、Polonijne Stowarzyszenie Kulturalno-Oświatowe w Tarnopolu, LLC“Nova Poshta”乌克兰、Coloplast w Polsce、Coloplast Slovakia、“卫生保健教育研究所”基金会的Adrian Goretzkii和Bernadeta Prandzioch表示感谢。波兰为乌克兰脊柱裂患者提供支持。所有作者都对研究的构思和设计做出了贡献。数据收集主要由MK完成。分析和手稿初稿由OB完成,所有作者都对以前的手稿版本进行了评论。所有作者阅读并提供对手稿草稿的关键反馈,以及批准手稿的最终版本。披露声明作者声明无竞争利益。数据可用性在当前研究期间生成和/或分析的数据集可根据合理要求从通讯作者(OB)处获得。
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引用次数: 0
Changing the medical model of disability to the normalization model of disability: clarifying the past to create a new future direction 从残疾医学模式向残疾规范化模式转变:厘清过去,开创未来新方向
2区 社会学 Q2 REHABILITATION Pub Date : 2023-09-15 DOI: 10.1080/09687599.2023.2255926
Zosia Zaks
The medical model of disability describes a widespread approach to disability common since the 1800s that views disabilities of all sorts as abnormalities that need to be cured or eradicated. Under the medical model of disability, medical care for disabled people has focused on making the bodies and brains of disabled people conform as closely as possible to society’s idea of a normal person. This emphasis on normalization was and continues to be extremely harmful to disabled people. In this paper, I propose retroactively changing the term medical model of disability to normalization model of disability to avoid conflation with useful medical care and to highlight normalization as the quintessential harm of the model.
残疾的医学模型描述了一种自19世纪以来普遍存在的对待残疾的方法,即将各种残疾视为需要治愈或根除的异常。在残疾医学模式下,对残疾人的医疗关注的重点是使残疾人的身体和大脑尽可能地符合社会对正常人的看法。这种强调正常化的做法过去和现在都对残疾人极为有害。在本文中,我建议追溯性地将“残疾医学模型”一词改为“残疾规范化模型”,以避免与有用的医疗保健混淆,并强调规范化是该模型的典型危害。
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引用次数: 0
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Disability & Society
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