Mobility is essential in navigating familiar and unfamiliar environments. People with disability may experience vulnerability in navigating the external environment, when mobility is hindered by discomfort, commodification, or disorientation. Independent commute, choice, and control can be enhanced with appropriate aids, technology, and infrastructure. Self-determination can also be seen to enhance mobility through the realisation of strengths and limitations of the individual and the opportunity to act with self-regulation, in a way that responds to events in an empowered way. Utilising a critical incident technique, this qualitative study examines the enabling and disabling factors that impact self-determination of young adults with mobility disability in the context of their journey to work and explores the role digital technologies can play in this journey. Key findings related to the importance of mobility planning, transport options and communication in the journey to work are discussed. The importance of digital technologies is highlighted including the proposed features of digital enabling platforms.
{"title":"The journey to work of young adults with mobility disability: a qualitative study on the digital technologies that support mobility","authors":"Carla Amaral, Marianella Chamorro-Koc, Amanda Beatson, Udo Gottlieb, Sven Tuzovic, Natalie Bowring","doi":"10.1080/09687599.2023.2275521","DOIUrl":"https://doi.org/10.1080/09687599.2023.2275521","url":null,"abstract":"Mobility is essential in navigating familiar and unfamiliar environments. People with disability may experience vulnerability in navigating the external environment, when mobility is hindered by discomfort, commodification, or disorientation. Independent commute, choice, and control can be enhanced with appropriate aids, technology, and infrastructure. Self-determination can also be seen to enhance mobility through the realisation of strengths and limitations of the individual and the opportunity to act with self-regulation, in a way that responds to events in an empowered way. Utilising a critical incident technique, this qualitative study examines the enabling and disabling factors that impact self-determination of young adults with mobility disability in the context of their journey to work and explores the role digital technologies can play in this journey. Key findings related to the importance of mobility planning, transport options and communication in the journey to work are discussed. The importance of digital technologies is highlighted including the proposed features of digital enabling platforms.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"326 10","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135475447","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-07DOI: 10.1080/09687599.2023.2275517
Jessica L. Macbeth, Ben Powis
During lockdown in March 2020, daily outdoor exercise was encouraged but little consideration was given to the feasibility of this for visually impaired (VI) people, for whom social distancing measures presented significant challenges. Drawing upon the concepts of ableism and ocularcentrism, this article explores VI peoples’ lived experiences of outdoor running (or not) during the COVID-19 pandemic. Eight VI runners participated in two semi-structured interviews during the pandemic. This longitudinal approach captured the impact of changing restrictions, personal circumstances, and seasons. Their running practices were shaped in complex and varied ways depending on impairment and impairment effects, local running environment, and support networks. Despite some commonalities, each personal story during this time was unique. Participants described empowering moments, juxtaposed with marginalising and oppressive situations. The UK Government’s encouragement of outdoor exercise was laden with ableist assumptions, and VI runners were significantly affected by the ocularcentric world they inhabit.
{"title":"Navigating a sighted world: visually impaired runners’ experiences of the COVID-19 pandemic","authors":"Jessica L. Macbeth, Ben Powis","doi":"10.1080/09687599.2023.2275517","DOIUrl":"https://doi.org/10.1080/09687599.2023.2275517","url":null,"abstract":"During lockdown in March 2020, daily outdoor exercise was encouraged but little consideration was given to the feasibility of this for visually impaired (VI) people, for whom social distancing measures presented significant challenges. Drawing upon the concepts of ableism and ocularcentrism, this article explores VI peoples’ lived experiences of outdoor running (or not) during the COVID-19 pandemic. Eight VI runners participated in two semi-structured interviews during the pandemic. This longitudinal approach captured the impact of changing restrictions, personal circumstances, and seasons. Their running practices were shaped in complex and varied ways depending on impairment and impairment effects, local running environment, and support networks. Despite some commonalities, each personal story during this time was unique. Participants described empowering moments, juxtaposed with marginalising and oppressive situations. The UK Government’s encouragement of outdoor exercise was laden with ableist assumptions, and VI runners were significantly affected by the ocularcentric world they inhabit.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"13 6","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135480586","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-06DOI: 10.1080/09687599.2023.2275523
Alex Cockain
This article explores written narratives produced by two ‘abled’ people about a social encounter, or event, with a ‘disabled’ person in an inland Chinese city. To interpret these, I draw upon principles and approaches associated with narrative inquiry, critical disability studies and geographies of disability. I identify the structural elements, sequentiality, and themes (e.g. fear, pity and especially anxiety, or perplexity) permeating these narratives as well as their lack of resolution, or closure. Later, I situate these narratives within wider discursive contexts albeit while emphasising how perplexity emerges through a lack of identity, or rupture, between words and the world. These troubling and perplexing narratives register the fragility of symbolic systems and the troubled subject positions these enable/disable. Nevertheless, and crucially, these narratives also trouble the taken-for-grantedness of ostensibly stable abled/disabled categories, persons, and objects, in ways which may permit realisation of things outside reductive hierarchical binaries.
{"title":"Troubling narratives about dis/ability and the social encounter through conversations between narrative inquiry, critical disability studies, and geographies of disability","authors":"Alex Cockain","doi":"10.1080/09687599.2023.2275523","DOIUrl":"https://doi.org/10.1080/09687599.2023.2275523","url":null,"abstract":"This article explores written narratives produced by two ‘abled’ people about a social encounter, or event, with a ‘disabled’ person in an inland Chinese city. To interpret these, I draw upon principles and approaches associated with narrative inquiry, critical disability studies and geographies of disability. I identify the structural elements, sequentiality, and themes (e.g. fear, pity and especially anxiety, or perplexity) permeating these narratives as well as their lack of resolution, or closure. Later, I situate these narratives within wider discursive contexts albeit while emphasising how perplexity emerges through a lack of identity, or rupture, between words and the world. These troubling and perplexing narratives register the fragility of symbolic systems and the troubled subject positions these enable/disable. Nevertheless, and crucially, these narratives also trouble the taken-for-grantedness of ostensibly stable abled/disabled categories, persons, and objects, in ways which may permit realisation of things outside reductive hierarchical binaries.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"30 9","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135590219","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-02DOI: 10.1080/09687599.2023.2275516
Yan Yang, Munir Dag, Christian Kullberg
AbstractIn this study, Chinese and Swedish employment officers’ assessments of physically impaired people and their ability to find jobs are compared. The study is qualitative, and data were collected through semi-structured interviews. The respondents were ten employment officers working full time. The results show that several employment officers in both contexts are skeptical that disabled people will be able to find work, and highlight similar obstacles to entering the labor market related to individual and societal conditions. The results show that, unlike Swedish employment officers, who highlight both types of obstacles, Chinese employment officers consider barriers related to the individual to be most important. The results also show that, compared to their Swedish colleagues, Chinese employment officers view gender and sex as more critical obstacles. The article argues that the results reveal different conceptions of disability and gender or sex that can be linked to the two contexts’ welfare models.Points of interestPrevious studies have rarely examined whether employment barriers for disabled people can be related to the functioning of the employment services.This article compares assessments made by employment officers in China and Sweden of disabled people and their ability to find jobs.This article reveals that employment officers in both countries to some extent negatively assess the employment prospects of women and disabled people, and it is argued that under some circumstances the employment services can function as a barrier for disabled people to get a job.This article shows that employment officers’ assessments differ depending on their perceptions of the applicants’ disability and sex, as well as if the officer works in Sweden or in China.This article argues that the employment officers’ expectations of disabled peoples’ ability to work are in line with the overarching goals of the welfare in the two countries.Keywords: Disabilityemployment officerassessmentgenderbiological sexwelfare state Disclosure statementNo potential conflict of interest was reported by the authors.
{"title":"Employment officers’ perceptions of job prospects for physically impaired people in China and Sweden","authors":"Yan Yang, Munir Dag, Christian Kullberg","doi":"10.1080/09687599.2023.2275516","DOIUrl":"https://doi.org/10.1080/09687599.2023.2275516","url":null,"abstract":"AbstractIn this study, Chinese and Swedish employment officers’ assessments of physically impaired people and their ability to find jobs are compared. The study is qualitative, and data were collected through semi-structured interviews. The respondents were ten employment officers working full time. The results show that several employment officers in both contexts are skeptical that disabled people will be able to find work, and highlight similar obstacles to entering the labor market related to individual and societal conditions. The results show that, unlike Swedish employment officers, who highlight both types of obstacles, Chinese employment officers consider barriers related to the individual to be most important. The results also show that, compared to their Swedish colleagues, Chinese employment officers view gender and sex as more critical obstacles. The article argues that the results reveal different conceptions of disability and gender or sex that can be linked to the two contexts’ welfare models.Points of interestPrevious studies have rarely examined whether employment barriers for disabled people can be related to the functioning of the employment services.This article compares assessments made by employment officers in China and Sweden of disabled people and their ability to find jobs.This article reveals that employment officers in both countries to some extent negatively assess the employment prospects of women and disabled people, and it is argued that under some circumstances the employment services can function as a barrier for disabled people to get a job.This article shows that employment officers’ assessments differ depending on their perceptions of the applicants’ disability and sex, as well as if the officer works in Sweden or in China.This article argues that the employment officers’ expectations of disabled peoples’ ability to work are in line with the overarching goals of the welfare in the two countries.Keywords: Disabilityemployment officerassessmentgenderbiological sexwelfare state Disclosure statementNo potential conflict of interest was reported by the authors.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"20 24","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135972860","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-01DOI: 10.1080/09687599.2023.2275525
Colin Cameron
In this article I reflect upon having recently been invited to join a new departmental group being set up to talk about Equality, Diversity and Inclusion; at the same time having been told to remember that my perspective is just one among equally valid others. I reflect upon what Drake (1999) has described as the ‘fundamentally opposed’ natures of the medical and social models, and upon the absurdity involved in a requirement to give assent to both. I consider the unfortunate dualism involved in claims that people ‘have disabilities’, and suggest that Sartre’s dictum ‘existence precedes essence’ offers a way of thinking about disability that the medical model can’t begin to make sense of. I draw upon statements by disabled people about how they feel about themselves to challenge conventional personal tragedy assumptions.
{"title":"Sometimes I just wish it was all over","authors":"Colin Cameron","doi":"10.1080/09687599.2023.2275525","DOIUrl":"https://doi.org/10.1080/09687599.2023.2275525","url":null,"abstract":"In this article I reflect upon having recently been invited to join a new departmental group being set up to talk about Equality, Diversity and Inclusion; at the same time having been told to remember that my perspective is just one among equally valid others. I reflect upon what Drake (1999) has described as the ‘fundamentally opposed’ natures of the medical and social models, and upon the absurdity involved in a requirement to give assent to both. I consider the unfortunate dualism involved in claims that people ‘have disabilities’, and suggest that Sartre’s dictum ‘existence precedes essence’ offers a way of thinking about disability that the medical model can’t begin to make sense of. I draw upon statements by disabled people about how they feel about themselves to challenge conventional personal tragedy assumptions.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"71 3","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135270933","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-30DOI: 10.1080/09687599.2023.2275518
Fei Yang, Kaili Zheng, Yu Yao
AbstractImproper processing of sensitive personal data concerning disabled people in government information disclosure not only violates their privacy rights but also leads to discrimination, stigmatization, and other serious secondary harm, that have long been overlooked. China’s procurator-led public-interest litigation system is a powerful tool for protecting the privacy rights of vulnerable groups. This paper contends that procurator-led public-interest litigation, as a supplement to and support for private-interest litigation, assists the Chinese government in fulfilling its international obligations to protect the right to privacy of disabled people.Keywords: Right to privacygovernment information disclosurepublic-interest litigationdisabilitiesChina Disclosure statementNo potential conflict of interest was reported by the authors.Additional informationFundingThis work was supported by National Social Science Fund of China under Grant [19CFX063].
{"title":"Protecting people with disabilities’ data privacy in government information disclosure: facilitation by procurator-led public-interest litigation","authors":"Fei Yang, Kaili Zheng, Yu Yao","doi":"10.1080/09687599.2023.2275518","DOIUrl":"https://doi.org/10.1080/09687599.2023.2275518","url":null,"abstract":"AbstractImproper processing of sensitive personal data concerning disabled people in government information disclosure not only violates their privacy rights but also leads to discrimination, stigmatization, and other serious secondary harm, that have long been overlooked. China’s procurator-led public-interest litigation system is a powerful tool for protecting the privacy rights of vulnerable groups. This paper contends that procurator-led public-interest litigation, as a supplement to and support for private-interest litigation, assists the Chinese government in fulfilling its international obligations to protect the right to privacy of disabled people.Keywords: Right to privacygovernment information disclosurepublic-interest litigationdisabilitiesChina Disclosure statementNo potential conflict of interest was reported by the authors.Additional informationFundingThis work was supported by National Social Science Fund of China under Grant [19CFX063].","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"54 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136022993","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-28DOI: 10.1080/09687599.2023.2271157
Lill Hultman, Eric Asaba, Dorothee Riedel, Sara Abdu, Helen Afe, Rahel Atafnu, Lili Ejigu, Jamie Bolling, Mahelet Negussie, Julius Ntobua, Margarita Mondaca
The aim of this paper is to explore everyday life experiences of migration and disability from an intersectional perspective drawing on issues such as gender, class, and ethnicity. This is relevant because when focus is on either migration or disability, unique challenges faced by disabled migrants are neglected, leading to fragmented support and a lack of accurate knowledge. The analysis is based on retrospective data from photovoice sessions conducted within the context of a community-based project, Disabled Refugees Welcome (DRW). A secondary analysis has involved eight of the members from the original photovoice sessions as well as academics. The results are presented in a narrative thematic analysis. The findings show how the combined effects of liminality, structural violence (lack of accessible and adapted housing, lack of access to knowledge about societal resources), and multiple discrimination risks can result in permanent exclusion.
{"title":"Migration and disability narratives from an intersectional perspective: a photovoice study","authors":"Lill Hultman, Eric Asaba, Dorothee Riedel, Sara Abdu, Helen Afe, Rahel Atafnu, Lili Ejigu, Jamie Bolling, Mahelet Negussie, Julius Ntobua, Margarita Mondaca","doi":"10.1080/09687599.2023.2271157","DOIUrl":"https://doi.org/10.1080/09687599.2023.2271157","url":null,"abstract":"The aim of this paper is to explore everyday life experiences of migration and disability from an intersectional perspective drawing on issues such as gender, class, and ethnicity. This is relevant because when focus is on either migration or disability, unique challenges faced by disabled migrants are neglected, leading to fragmented support and a lack of accurate knowledge. The analysis is based on retrospective data from photovoice sessions conducted within the context of a community-based project, Disabled Refugees Welcome (DRW). A secondary analysis has involved eight of the members from the original photovoice sessions as well as academics. The results are presented in a narrative thematic analysis. The findings show how the combined effects of liminality, structural violence (lack of accessible and adapted housing, lack of access to knowledge about societal resources), and multiple discrimination risks can result in permanent exclusion.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"14 11","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136159357","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-23DOI: 10.1080/09687599.2023.2271155
Hanna Bertilsdotter Rosqvist, Lill Hultman, Sofia Österborg Wiklund, Anna Nygren, Palle Storm, Greta Sandberg
In this paper we seek to restory what has been storied as “the problem of ADHD”. Informed by calls for a critical ADHD studies, we explore the possibilities of ADHD collective autoethnographic storytelling. Together we (en)counter narratives of ADHD. Within our collective writing space, from our ADHD/AuDHD bodyminds, we seek to re-story our ADHD/AuDHD. We map a field of critical ADHD research within social sciences and point out problems of outsider perspectives, stressing a need for insider perspectives. Our data consist of collective authoethnographic writings about ADHD. From the data we have explored our experiences of (En)Countering ADHD narratives, and a transition process which we refer to as from ”broken NT-scholars” to neurodivergent scholars, stressing the importance of ADHD:ers as independent as well as collective agents, and ADHD as epistemological standpoint within research.
{"title":"Naming ourselves, becoming neurodivergent scholars","authors":"Hanna Bertilsdotter Rosqvist, Lill Hultman, Sofia Österborg Wiklund, Anna Nygren, Palle Storm, Greta Sandberg","doi":"10.1080/09687599.2023.2271155","DOIUrl":"https://doi.org/10.1080/09687599.2023.2271155","url":null,"abstract":"In this paper we seek to restory what has been storied as “the problem of ADHD”. Informed by calls for a critical ADHD studies, we explore the possibilities of ADHD collective autoethnographic storytelling. Together we (en)counter narratives of ADHD. Within our collective writing space, from our ADHD/AuDHD bodyminds, we seek to re-story our ADHD/AuDHD. We map a field of critical ADHD research within social sciences and point out problems of outsider perspectives, stressing a need for insider perspectives. Our data consist of collective authoethnographic writings about ADHD. From the data we have explored our experiences of (En)Countering ADHD narratives, and a transition process which we refer to as from ”broken NT-scholars” to neurodivergent scholars, stressing the importance of ADHD:ers as independent as well as collective agents, and ADHD as epistemological standpoint within research.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"18 4","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135366353","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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