Pub Date : 2026-01-11DOI: 10.1016/j.pedn.2025.12.027
Hatice Dönmez , Tuba Arpaci , Şükrü Nail Güner
Background
The study aimed to examine the predictive effect of having a child with primary immunodeficiency (PID) on the psychological resilience, general self-efficacy, and spiritual well-being of parents.
Methods
A cross-sectional, correlational, and comparative study was conducted with parents of children with PID (N = 88) and healthy controls (n = 168) in Türkiye from June 2024 to February 2025. Study data were collected through the Connor-Davidson Resilience Scale Short Form, the General Self-Efficacy Scale, and the Spiritual Well-being Scale.
Results
The mean general self-efficacy of parents of children with PID was significantly lower than that of parents of healthy controls (p< 0.05). However, no significant difference was found between the groups in psychological resilience or spiritual well-being (p> 0.05). There were significant positive relationships among psychological resilience, general self-efficacy, and spiritual well-being among parents of children with PID (p< 0.05). The disease has no statistically significant effect on spiritual well-being in parents (p > 0.05).
Conclusions
The mean general self-efficacy of parents of children with PID was lower than that of parents of healthy controls. Although no difference in psychological resilience was detected between the groups in the descriptive comparison, the multivariate analysis indicated that having a child with PID is a negative factor affecting parents' resilience. Having a child with PID also had a statistically significant effect on the general self-efficacy of parents.
Practice implications
The findings will guide the planning of family-centred nursing interventions to enhance the psychological resilience, general self-efficacy, and spiritual well-being of parents of children with PID.
{"title":"Predictive effect of having a child with primary immunodeficiency on resilience, self-efficacy and spiritual well-being of Turkish parents","authors":"Hatice Dönmez , Tuba Arpaci , Şükrü Nail Güner","doi":"10.1016/j.pedn.2025.12.027","DOIUrl":"10.1016/j.pedn.2025.12.027","url":null,"abstract":"<div><h3>Background</h3><div>The study aimed to examine the predictive effect of having a child with primary immunodeficiency (PID) on the psychological resilience, general self-efficacy, and spiritual well-being of parents.</div></div><div><h3>Methods</h3><div>A cross-sectional, correlational, and comparative study was conducted with parents of children with PID (<em>N</em> = 88) and healthy controls (<em>n</em> = 168) in Türkiye from June 2024 to February 2025. Study data were collected through the Connor-Davidson Resilience Scale Short Form, the General Self-Efficacy Scale, and the Spiritual Well-being Scale.</div></div><div><h3>Results</h3><div>The mean general self-efficacy of parents of children with PID was significantly lower than that of parents of healthy controls (<em>p</em> <em><</em> 0.05). However, no significant difference was found between the groups in psychological resilience or spiritual well-being <em>(p</em> <em>></em> 0.05). There were significant positive relationships among psychological resilience, general self-efficacy, and spiritual well-being among parents of children with PID (<em>p</em> <em><</em> 0.05). The disease has no statistically significant effect on spiritual well-being in parents (<em>p</em> > 0.05).</div></div><div><h3>Conclusions</h3><div>The mean general self-efficacy of parents of children with PID was lower than that of parents of healthy controls. Although no difference in psychological resilience was detected between the groups in the descriptive comparison, the multivariate analysis indicated that having a child with PID is a negative factor affecting parents' resilience. Having a child with PID also had a statistically significant effect on the general self-efficacy of parents.</div></div><div><h3>Practice implications</h3><div>The findings will guide the planning of family-centred nursing interventions to enhance the psychological resilience, general self-efficacy, and spiritual well-being of parents of children with PID.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 112-117"},"PeriodicalIF":2.3,"publicationDate":"2026-01-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145953439","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-11DOI: 10.1016/j.pedn.2026.01.009
Münevver Erkul , Zeynep Öztürk
Objective
This study explored the lived experiences and coping processes of adolescents diagnosed with Thalassemia Major (TM) to inform the development of patient-centered and individualized care strategies.
Methods
A qualitative phenomenological design was employed. Between April and June 2024, purposive sampling was used to recruit ten adolescents (12–18 years) from the Thalassemia Unit of a public hospital in Antalya, Türkiye. Semi-structured interviews were conducted until data saturation was achieved. Ethical approval was obtained (TBAEK-199). Sociodemographic data were summarized using SPSS 22.0 as frequencies and percentages. Interview transcripts were analyzed using Colaizzi's seven-step method. Trustworthiness was ensured through independent double-coding, audit trail maintenance, and member checking.
Results
Six main themes emerged: (1) Acceptance and normalization (integrating illness into daily life; reframing TM as manageable); (2) Impact on schooling (absences due to transfusions or surgeries; academic and emotional strain; facilitative role of teacher support); (3) Peer and societal responses (misinformation, stigma, strategic disclosure, and peer support); (4) Family support and sibling dynamics (parental support enhancing adherence; protective bonds and ambivalence); (5) Treatment adherence and transplant pathway (burden of chronic transfusion and chelation; hope and hesitation regarding hematopoietic stem cell transplantation; donor availability and risk perception); and (6) Psychological processes and coping (anxiety, fear of death, body-image concerns, and active coping strategies such as social support, humor, positive reappraisal, and medication adherence).
Conclusion
Adolescents with TM experience multidimensional challenges affecting their educational, social, psychological, and treatment-related lives. A holistic and developmentally sensitive approach is essential to support long-term adaptation and well-being.
Implications for practice
Healthcare professionals should integrate routine psychosocial screening and counseling into standard care, strengthen family-centered practices to support treatment adherence, and collaborate with schools to promote flexible attendance policies. Awareness initiatives targeting peers and educators may reduce stigma, while structured, age-appropriate counseling can support informed decision-making regarding long-term treatment and transplantation options.
{"title":"Lived experiences of adolescents with thalassemia major: A phenomenological study/ lived experiences in tm adolescents","authors":"Münevver Erkul , Zeynep Öztürk","doi":"10.1016/j.pedn.2026.01.009","DOIUrl":"10.1016/j.pedn.2026.01.009","url":null,"abstract":"<div><h3>Objective</h3><div>This study explored the lived experiences and coping processes of adolescents diagnosed with Thalassemia Major (TM) to inform the development of patient-centered and individualized care strategies.</div></div><div><h3>Methods</h3><div>A qualitative phenomenological design was employed. Between April and June 2024, purposive sampling was used to recruit ten adolescents (12–18 years) from the Thalassemia Unit of a public hospital in Antalya, Türkiye. Semi-structured interviews were conducted until data saturation was achieved. Ethical approval was obtained (TBAEK-199). Sociodemographic data were summarized using SPSS 22.0 as frequencies and percentages. Interview transcripts were analyzed using Colaizzi's seven-step method. Trustworthiness was ensured through independent double-coding, audit trail maintenance, and member checking.</div></div><div><h3>Results</h3><div>Six main themes emerged: (1) Acceptance and normalization (integrating illness into daily life; reframing TM as manageable); (2) Impact on schooling (absences due to transfusions or surgeries; academic and emotional strain; facilitative role of teacher support); (3) Peer and societal responses (misinformation, stigma, strategic disclosure, and peer support); (4) Family support and sibling dynamics (parental support enhancing adherence; protective bonds and ambivalence); (5) Treatment adherence and transplant pathway (burden of chronic transfusion and chelation; hope and hesitation regarding hematopoietic stem cell transplantation; donor availability and risk perception); and (6) Psychological processes and coping (anxiety, fear of death, body-image concerns, and active coping strategies such as social support, humor, positive reappraisal, and medication adherence).</div></div><div><h3>Conclusion</h3><div>Adolescents with TM experience multidimensional challenges affecting their educational, social, psychological, and treatment-related lives. A holistic and developmentally sensitive approach is essential to support long-term adaptation and well-being.</div></div><div><h3>Implications for practice</h3><div>Healthcare professionals should integrate routine psychosocial screening and counseling into standard care, strengthen family-centered practices to support treatment adherence, and collaborate with schools to promote flexible attendance policies. Awareness initiatives targeting peers and educators may reduce stigma, while structured, age-appropriate counseling can support informed decision-making regarding long-term treatment and transplantation options.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 118-125"},"PeriodicalIF":2.3,"publicationDate":"2026-01-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145953245","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-11DOI: 10.1016/j.pedn.2026.01.003
Raheleh Sabetsarvestani , Şerife Didem Kaya , Emine Geçkil
Background
Multidisciplinary practices play a crucial role in pediatric care settings. However, existing research is fragmented and often limited to specific clinical contexts, underscoring the need for a comprehensive synthesis of qualitative evidence across diverse pediatric settings.
Purpose
This study aims to systematically explore multidisciplinary practices in pediatric healthcare by synthesizing qualitative evidence.
Methods
We conducted a qualitative meta-synthesis of research published between 2000 and 2025. Our search encompassed three major electronic databases, namely Web of Science, Scopus, and PubMed. The primary keywords used were multidisciplinary team, pediatric clinics, and qualitative study. Initially, 306 records were identified, and after removing duplicates, 305 records remained. Subsequently, 177 full-text articles were assessed for eligibility. A total of 13 studies were included in the final meta-synthesis. Quality appraisal was performed, and no studies were excluded. Data were synthesized using thematic qualitative analysis.
Results
The results revealed a main theme: Navigating the complexities of multidisciplinary practices in pediatric care, encompassing three subthemes: the promise of multidisciplinary practices, the pitfalls of multidisciplinary practices, and drivers of success in multidisciplinary practices.
Conclusion
This study highlights the transformative potential of multidisciplinary practices in pediatric care, including empowering families, fostering professional growth, and improving system effectiveness. However, these benefits are often hindered by resource constraints, communication gaps, and role ambiguity. Strong leadership, structural support, and a shared vision are key to overcoming these challenges and ensuring high-quality, coordinated pediatric care.
背景:多学科实践在儿科护理中起着至关重要的作用。然而,现有的研究是碎片化的,往往局限于特定的临床背景,强调需要在不同的儿科环境中全面综合定性证据。目的:本研究旨在通过综合定性证据,系统探讨儿科保健的多学科实践。方法:我们对2000年至2025年间发表的研究进行了定性综合。我们的搜索包括三个主要的电子数据库,即Web of Science、Scopus和PubMed。使用的主要关键词是多学科团队、儿科诊所和定性研究。最初,确定了306条记录,在删除重复记录后,保留了305条记录。随后对177篇全文文章的合格性进行了评估。最终的综合研究共纳入13项研究。进行了质量评价,没有排除任何研究。数据综合采用专题定性分析。结果:结果揭示了一个主题:导航儿科护理的多学科实践的复杂性,包括三个子主题:多学科实践的承诺,多学科实践的陷阱,以及多学科实践成功的驱动因素。结论:本研究突出了儿科护理多学科实践的变革潜力,包括赋予家庭权力,促进专业成长,提高系统有效性。然而,这些好处经常受到资源限制、沟通差距和角色模糊的阻碍。强有力的领导、结构性支持和共同愿景是克服这些挑战和确保高质量、协调的儿科护理的关键。
{"title":"Multidisciplinary practices in pediatrics clinics: A meta-synthesis of qualitative research","authors":"Raheleh Sabetsarvestani , Şerife Didem Kaya , Emine Geçkil","doi":"10.1016/j.pedn.2026.01.003","DOIUrl":"10.1016/j.pedn.2026.01.003","url":null,"abstract":"<div><h3>Background</h3><div>Multidisciplinary practices play a crucial role in pediatric care settings. However, existing research is fragmented and often limited to specific clinical contexts, underscoring the need for a comprehensive synthesis of qualitative evidence across diverse pediatric settings.</div></div><div><h3>Purpose</h3><div>This study aims to systematically explore multidisciplinary practices in pediatric healthcare by synthesizing qualitative evidence.</div></div><div><h3>Methods</h3><div>We conducted a qualitative meta-synthesis of research published between 2000 and 2025. Our search encompassed three major electronic databases, namely Web of Science, Scopus, and PubMed. The primary keywords used were multidisciplinary team, pediatric clinics, and qualitative study. Initially, 306 records were identified, and after removing duplicates, 305 records remained. Subsequently, 177 full-text articles were assessed for eligibility. A total of 13 studies were included in the final meta-synthesis. Quality appraisal was performed, and no studies were excluded. Data were synthesized using thematic qualitative analysis.</div></div><div><h3>Results</h3><div>The results revealed a main theme: Navigating the complexities of multidisciplinary practices in pediatric care, encompassing three subthemes: the promise of multidisciplinary practices, the pitfalls of multidisciplinary practices, and drivers of success in multidisciplinary practices.</div></div><div><h3>Conclusion</h3><div>This study highlights the transformative potential of multidisciplinary practices in pediatric care, including empowering families, fostering professional growth, and improving system effectiveness. However, these benefits are often hindered by resource constraints, communication gaps, and role ambiguity. Strong leadership, structural support, and a shared vision are key to overcoming these challenges and ensuring high-quality, coordinated pediatric care.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 126-135"},"PeriodicalIF":2.3,"publicationDate":"2026-01-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145953465","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Safe tubing securement is critical in pediatric care, as unplanned extubations can lead to significant morbidity. This study developed and evaluated a novel Pediatric Integrated Tubing Anchor (PITA) device designed to improve securement efficiency and usability compared with a conventional tubing anchor (CTA).
Methods
Guided by a user-centered design thinking process, the PITA device was developed to integrate endotracheal, nasogastric, and bite block securement. A randomized crossover trial was conducted with 77 nurses using simulated stable and agitated pediatric patient scenarios. Each nurse applied both the CTA and PITA devices during the simulations.
Results
The PITA device significantly reduced securement time compared with the CTA in both stable (mean difference: 92.1 s, p < .001) and agitated scenarios (mean difference: 160.9 s, p < .001). The PITA device also demonstrated superior tubing stability under load and achieved significantly higher usability scores on the Tubing Care Usability Scale (62.0 vs. 47.9, p < .001).
Conclusion
The nurse-developed PITA device offers a more efficient, stable, and user-friendly method for tubing securement. Its clinical adoption may help reduce unplanned extubations, prevent related complications, and save valuable nursing time, particularly in high-risk situations. These findings support the value of empowering frontline nurses as active contributors to healthcare innovation.
Clinical implications
Findings from this study demonstrate the importance of nurse-driven, user-centered innovation in developing pediatric-specific devices that enhance patient safety and workflow efficiency.
{"title":"Nurse-driven innovation in pediatric care: Usability and securement performance of a novel tubing anchor in simulated clinical scenarios","authors":"Yi-Lin Hsieh MSc, RN , Malcolm Koo PhD , Zu-Chun Lin PhD, RN","doi":"10.1016/j.pedn.2026.01.007","DOIUrl":"10.1016/j.pedn.2026.01.007","url":null,"abstract":"<div><h3>Purpose</h3><div>Safe tubing securement is critical in pediatric care, as unplanned extubations can lead to significant morbidity. This study developed and evaluated a novel Pediatric Integrated Tubing Anchor (PITA) device designed to improve securement efficiency and usability compared with a conventional tubing anchor (CTA).</div></div><div><h3>Methods</h3><div>Guided by a user-centered design thinking process, the PITA device was developed to integrate endotracheal, nasogastric, and bite block securement. A randomized crossover trial was conducted with 77 nurses using simulated stable and agitated pediatric patient scenarios. Each nurse applied both the CTA and PITA devices during the simulations.</div></div><div><h3>Results</h3><div>The PITA device significantly reduced securement time compared with the CTA in both stable (mean difference: 92.1 s, <em>p</em> < .001) and agitated scenarios (mean difference: 160.9 s, <em>p</em> < .001). The PITA device also demonstrated superior tubing stability under load and achieved significantly higher usability scores on the Tubing Care Usability Scale (62.0 vs. 47.9, <em>p</em> < .001).</div></div><div><h3>Conclusion</h3><div>The nurse-developed PITA device offers a more efficient, stable, and user-friendly method for tubing securement. Its clinical adoption may help reduce unplanned extubations, prevent related complications, and save valuable nursing time, particularly in high-risk situations. These findings support the value of empowering frontline nurses as active contributors to healthcare innovation.</div></div><div><h3>Clinical implications</h3><div>Findings from this study demonstrate the importance of nurse-driven, user-centered innovation in developing pediatric-specific devices that enhance patient safety and workflow efficiency.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 136-145"},"PeriodicalIF":2.3,"publicationDate":"2026-01-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145953449","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-11DOI: 10.1016/j.pedn.2026.01.008
Ahmed Loutfy , Amina Elzeiny
{"title":"From the Nile to the global stage: A rapid bibliometric audit of Egyptian pediatric nursing visibility in SciVal (2000–2025)","authors":"Ahmed Loutfy , Amina Elzeiny","doi":"10.1016/j.pedn.2026.01.008","DOIUrl":"10.1016/j.pedn.2026.01.008","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Page 111"},"PeriodicalIF":2.3,"publicationDate":"2026-01-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145953584","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-09DOI: 10.1016/j.pedn.2025.12.030
Nazmiye Yirik , Şerife Tutar
Aim
This study aimed to examine the effects of professional values education on perceptions of professional values, emotional labor behaviours, and burnout levels among pediatric nurses.
Method
This randomised controlled trial was conducted between February 2024 and January 2025 at a city hospital in Turkey with 70 pediatric nurses. The intervention comprised a professional values education program implemented in two phases: preparation (literature review and development of educational content) and application (delivery to the intervention group). Data were collected using a Introductory Information Form, the Professional Values Scale for Nurses, the Emotional Labor Behaviour Scale of Nurses, and the Maslach Burnout Inventory. Analyses were performed with SPSS 27.0 (IBM Inc., Armonk, NY, USA).
Results
In the intervention group, the “Professional Values Scale for Nurses” score increased from 89.68 ± 16.46 (pre-test) to 118.82 ± 9.48 (post-test). The superficial behaviour subdimension score decreased from 22.22 ± 3.29 to 14.00 ± 4.15, while depth behaviour scores rose from 47.94 ± 7.27 to 57.62 ± 5.28, and sincere behaviour scores from 18.54 ± 2.83 to 23.05 ± 2.14. Burnout levels decreased, with emotional exhaustion dropping from 16.45 ± 7.13 to 8.80 ± 3.96, depersonalization from 6.12 ± 3.97 to 1.94 ± 1.86, and personal accomplishment increasing from 19.62 ± 3.14 to 26.25 ± 2.57.
Conclusion
Professional values education enhances pediatric nurses' professional values, fosters deeper and more sincere emotional labor behaviours, and reduces burnout.
Practice implications
Integrating structured professional values education into pediatric nursing practice may strengthen professional identity, promote emotional resilience, and improve the quality of care for children and families.
{"title":"Investigation of professional values education's effect on pediatric nurses' perception of professional values, emotional labour behaviours and burnout levels: A randomised controlled trial","authors":"Nazmiye Yirik , Şerife Tutar","doi":"10.1016/j.pedn.2025.12.030","DOIUrl":"10.1016/j.pedn.2025.12.030","url":null,"abstract":"<div><h3>Aim</h3><div>This study aimed to examine the effects of professional values education on perceptions of professional values, emotional labor behaviours, and burnout levels among pediatric nurses.</div></div><div><h3>Method</h3><div>This randomised controlled trial was conducted between February 2024 and January 2025 at a city hospital in Turkey with 70 pediatric nurses. The intervention comprised a professional values education program implemented in two phases: preparation (literature review and development of educational content) and application (delivery to the intervention group). Data were collected using a Introductory Information Form, the Professional Values Scale for Nurses, the Emotional Labor Behaviour Scale of Nurses, and the Maslach Burnout Inventory. Analyses were performed with SPSS 27.0 (IBM Inc., Armonk, NY, USA).</div></div><div><h3>Results</h3><div>In the intervention group, the “Professional Values Scale for Nurses” score increased from 89.68 ± 16.46 (pre-test) to 118.82 ± 9.48 (pos<em>t</em>-test). The superficial behaviour subdimension score decreased from 22.22 ± 3.29 to 14.00 ± 4.15, while depth behaviour scores rose from 47.94 ± 7.27 to 57.62 ± 5.28, and sincere behaviour scores from 18.54 ± 2.83 to 23.05 ± 2.14. Burnout levels decreased, with emotional exhaustion dropping from 16.45 ± 7.13 to 8.80 ± 3.96, depersonalization from 6.12 ± 3.97 to 1.94 ± 1.86, and personal accomplishment increasing from 19.62 ± 3.14 to 26.25 ± 2.57.</div></div><div><h3>Conclusion</h3><div>Professional values education enhances pediatric nurses' professional values, fosters deeper and more sincere emotional labor behaviours, and reduces burnout.</div></div><div><h3>Practice implications</h3><div>Integrating structured professional values education into pediatric nursing practice may strengthen professional identity, promote emotional resilience, and improve the quality of care for children and families.</div><div><span><span>ClinicalTrials.gov</span><svg><path></path></svg></span> Protocol: <span><span>NCT07016503</span><svg><path></path></svg></span></div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 99-110"},"PeriodicalIF":2.3,"publicationDate":"2026-01-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145940154","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Cerebral palsy is a group of permanent movement disorders that appear in early childhood, affecting muscle tone, posture, and movement. This study explored the lived experiences of parents of children with cerebral palsy.
Method
A phenomenological qualitative research approach was used to collect data from parents of children with cerebral palsy. Interviews were conducted with purposely selected parents of children until data saturation at the 13th interview. Data was analysed using thematic analysis. Four themes were identified and included: 1) burden of caring for children with cerebral palsy, 2) impact of diagnosis on family and other socioeconomic factors, 3) coping mechanisms and support systems, and 4) factors influencing care experience.
Results
Parents reported significant physical, emotional, and financial burdens associated with caring for children with cerebral palsy and relied on personal resilience, support from family and friends, and faith-based practices to manage their stress. Parents reported positive and supportive relationships with healthcare professionals. Access to support groups, community resources, and specialized services varied significantly among participants, impacting their ability to manage their child's condition effectively. Parents with better access to these resources reported a higher quality of life and better coping mechanisms.
Conclusion
This study underscores the need for improved healthcare practices and policies to prioritize comprehensive support for families of children with cerebral palsy.
Implications to practice
Key strategies for supporting parents of children with cerebral palsy included establishing structured routines, effective planning and organization, prioritising self-care, seeking social support, utilizing professional help, and maintaining flexibility.
{"title":"The lived experiences of parents of children with cerebral palsy. A phenomenological study in a tertiary care facility, Ghana","authors":"Ruth Nkpezah Nimota , Ndekugri Damata Huldah Atame , Kennedy Diema Konlan","doi":"10.1016/j.pedn.2026.01.001","DOIUrl":"10.1016/j.pedn.2026.01.001","url":null,"abstract":"<div><h3>Introduction</h3><div>Cerebral palsy is a group of permanent movement disorders that appear in early childhood, affecting muscle tone, posture, and movement. This study explored the lived experiences of parents of children with cerebral palsy.</div></div><div><h3>Method</h3><div>A phenomenological qualitative research approach was used to collect data from parents of children with cerebral palsy. Interviews were conducted with purposely selected parents of children until data saturation at the 13th interview. Data was analysed using thematic analysis. Four themes were identified and included: 1) burden of caring for children with cerebral palsy, 2) impact of diagnosis on family and other socioeconomic factors, 3) coping mechanisms and support systems, and 4) factors influencing care experience.</div></div><div><h3>Results</h3><div>Parents reported significant physical, emotional, and financial burdens associated with caring for children with cerebral palsy and relied on personal resilience, support from family and friends, and faith-based practices to manage their stress. Parents reported positive and supportive relationships with healthcare professionals. Access to support groups, community resources, and specialized services varied significantly among participants, impacting their ability to manage their child's condition effectively. Parents with better access to these resources reported a higher quality of life and better coping mechanisms.</div></div><div><h3>Conclusion</h3><div>This study underscores the need for improved healthcare practices and policies to prioritize comprehensive support for families of children with cerebral palsy.</div></div><div><h3>Implications to practice</h3><div>Key strategies for supporting parents of children with cerebral palsy included establishing structured routines, effective planning and organization, prioritising self-care, seeking social support, utilizing professional help, and maintaining flexibility.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 78-87"},"PeriodicalIF":2.3,"publicationDate":"2026-01-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145940542","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-08DOI: 10.1016/j.pedn.2025.12.026
Erhan Elmaoğlu , Melike Yavaş Çelik , Zerrin Çiğdem
Aim
All people are affected in areas where earthquakes occur. However, the effects on children, one of the most vulnerable groups, are different. This study was conducted to determine the psychosocial problems caused by earthquakes in the adolescent age group.
Method
The study is descriptive and cross-sectional in nature, conducted with 325 adolescents in 6 of the 11 provinces affected by the earthquake, focusing on the most affected areas. The study was conducted between May 2023 and June 2023. The data for the study were collected online using a data collection form and the Event Impact Scale. The study was conducted with adolescents aged 12 to 18. Data analysis was performed using the SPSS 25.0 statistical program.
Results
The average age of adolescents participating in the study was 17.39 ± 1.45. 73.2 % were female, 75.1 % came from families with middle-level income, and 60.9 % were university students. It was determined that 22.8 % of adolescents were caught in the earthquake in Hatay, 21.2 % in Kahramanmaraş, 15.7 % in Adıyaman, 14.5 % in Şanlıurfa, 13.5 % in Gaziantep, and 12.3 % in Kilis. The study found that adolescents' mean scores on the re-experiencing subscale of the Impact of Event Scale were 17.72 ± 7.67, on the avoidance subscale 13.08 ± 5.56, on the hyperarousal subscale 13.04 ± 6.11, and the total mean score was 43.84 ± 16.31.
Conclussion
This study found that adolescents who experienced the February 6 earthquake exhibited significant levels of traumatic stress symptoms in the post-earthquake period. It was determined that participants who were women, those with low or middle income levels, those who lost a loved one in the earthquake, those who were forced to live in vehicles after the earthquake, and those located in provinces with high levels of structural damage experienced higher levels of post-traumatic stress symptoms.
Implications to practice
These findings emphasize the critical role of pediatric nurses and mental health professionals in the early identification of post-traumatic stress symptoms among adolescents following disasters. Trauma-informed screening should be integrated into routine adolescent health assessments in disaster-affected regions. Targeted psychosocial interventions, particularly for high-risk groups, are essential to reduce long-term psychological consequences and to support adolescents' recovery and resilience.
{"title":"Psychosocial status analysis of adolescents affected by the February 6, 2023 Kahramanmaraş earthquake in Türkiye: A descriptive cross-sectional study","authors":"Erhan Elmaoğlu , Melike Yavaş Çelik , Zerrin Çiğdem","doi":"10.1016/j.pedn.2025.12.026","DOIUrl":"10.1016/j.pedn.2025.12.026","url":null,"abstract":"<div><h3>Aim</h3><div>All people are affected in areas where earthquakes occur. However, the effects on children, one of the most vulnerable groups, are different. This study was conducted to determine the psychosocial problems caused by earthquakes in the adolescent age group.</div></div><div><h3>Method</h3><div>The study is descriptive and cross-sectional in nature, conducted with 325 adolescents in 6 of the 11 provinces affected by the earthquake, focusing on the most affected areas. The study was conducted between May 2023 and June 2023. The data for the study were collected online using a data collection form and the Event Impact Scale. The study was conducted with adolescents aged 12 to 18. Data analysis was performed using the SPSS 25.0 statistical program.</div></div><div><h3>Results</h3><div>The average age of adolescents participating in the study was 17.39 ± 1.45. 73.2 % were female, 75.1 % came from families with middle-level income, and 60.9 % were university students. It was determined that 22.8 % of adolescents were caught in the earthquake in Hatay, 21.2 % in Kahramanmaraş, 15.7 % in Adıyaman, 14.5 % in Şanlıurfa, 13.5 % in Gaziantep, and 12.3 % in Kilis. The study found that adolescents' mean scores on the re-experiencing subscale of the Impact of Event Scale were 17.72 ± 7.67, on the avoidance subscale 13.08 ± 5.56, on the hyperarousal subscale 13.04 ± 6.11, and the total mean score was 43.84 ± 16.31.</div></div><div><h3>Conclussion</h3><div>This study found that adolescents who experienced the February 6 earthquake exhibited significant levels of traumatic stress symptoms in the post-earthquake period. It was determined that participants who were women, those with low or middle income levels, those who lost a loved one in the earthquake, those who were forced to live in vehicles after the earthquake, and those located in provinces with high levels of structural damage experienced higher levels of post-traumatic stress symptoms.</div></div><div><h3>Implications to practice</h3><div>These findings emphasize the critical role of pediatric nurses and mental health professionals in the early identification of post-traumatic stress symptoms among adolescents following disasters. Trauma-informed screening should be integrated into routine adolescent health assessments in disaster-affected regions. Targeted psychosocial interventions, particularly for high-risk groups, are essential to reduce long-term psychological consequences and to support adolescents' recovery and resilience.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 72-77"},"PeriodicalIF":2.3,"publicationDate":"2026-01-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145940541","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-08DOI: 10.1016/j.pedn.2025.12.032
Halla Ali Abd El hie Ali Ph.D, MSN, BSc, RN , Ayman Mohamed El-Ashry Ph.D, MSN, BSc, RN , Fatma Sayed Abdelaziz Mohamed Ph.D, MSN, BSc, RN , Dalia Ibrahem Mustafa Abdel-Azem Ph.D, MSN, BSc, RN , Mahmoud M. Noureldeen , Ahmed Abdellah Othman Ph.D, MSN, BSc, RN , Eslam Reda Machaly Ph.D, MSN, BSc, RN , Nahla Abdallah Abd El-Tawab Ph.D, MSN, BSc, RN
Background
Cerebral palsy is a lifelong, non-progressive neurodevelopmental disorder that affects movement and posture, often resulting in long-term disability. Caregivers—most commonly mothers—assume primary responsibility for daily care and rehabilitation, which can lead to a high care burden and increased social isolation.
Aim
To evaluate the effect of a nursing-led empowerment training program on care burden and social isolation among caregivers of children with cerebral palsy.
Methods
A quasi-experimental pretest–posttest design was conducted with a convenience sample of 98 caregivers assigned to an intervention group (n = 49) or a control group (n = 49). Data were collected using the Caregiver Burden Inventory, the Revised UCLA Loneliness Scale, and the Family Empowerment Scale. The intervention group participated in a six-session nursing-led empowerment program over six weeks, while the control group received routine care. Outcomes were assessed before and after the intervention.
Results
Post-intervention, caregivers in the intervention group showed a significant reduction in care burden and loneliness scores and a significant increase in family empowerment scores (p < 0.001 for all). The control group showed no significant changes in care burden or empowerment and a significant increase in loneliness scores (p < 0.05).
Conclusion
The nursing-led empowerment program effectively reduced care burden and social isolation while enhancing empowerment among caregivers.
Implications for practice
Integrating structured nurse-led empowerment programs into routine pediatric and community care may improve caregiver well-being, strengthen family functioning, and enhance long-term care for children with cerebral palsy.
{"title":"Effect of nursing-led empowerment program on care burden and social isolation among caregivers having children with cerebral palsy: A quasi-experimental study","authors":"Halla Ali Abd El hie Ali Ph.D, MSN, BSc, RN , Ayman Mohamed El-Ashry Ph.D, MSN, BSc, RN , Fatma Sayed Abdelaziz Mohamed Ph.D, MSN, BSc, RN , Dalia Ibrahem Mustafa Abdel-Azem Ph.D, MSN, BSc, RN , Mahmoud M. Noureldeen , Ahmed Abdellah Othman Ph.D, MSN, BSc, RN , Eslam Reda Machaly Ph.D, MSN, BSc, RN , Nahla Abdallah Abd El-Tawab Ph.D, MSN, BSc, RN","doi":"10.1016/j.pedn.2025.12.032","DOIUrl":"10.1016/j.pedn.2025.12.032","url":null,"abstract":"<div><h3>Background</h3><div>Cerebral palsy is a lifelong, non-progressive neurodevelopmental disorder that affects movement and posture, often resulting in long-term disability. Caregivers—most commonly mothers—assume primary responsibility for daily care and rehabilitation, which can lead to a high care burden and increased social isolation.</div></div><div><h3>Aim</h3><div>To evaluate the effect of a nursing-led empowerment training program on care burden and social isolation among caregivers of children with cerebral palsy.</div></div><div><h3>Methods</h3><div>A quasi-experimental pretest–posttest design was conducted with a convenience sample of 98 caregivers assigned to an intervention group (<em>n</em> = 49) or a control group (n = 49). Data were collected using the Caregiver Burden Inventory, the Revised UCLA Loneliness Scale, and the Family Empowerment Scale. The intervention group participated in a six-session nursing-led empowerment program over six weeks, while the control group received routine care. Outcomes were assessed before and after the intervention.</div></div><div><h3>Results</h3><div>Post-intervention, caregivers in the intervention group showed a significant reduction in care burden and loneliness scores and a significant increase in family empowerment scores (<em>p</em> < 0.001 for all). The control group showed no significant changes in care burden or empowerment and a significant increase in loneliness scores (<em>p</em> < 0.05).</div></div><div><h3>Conclusion</h3><div>The nursing-led empowerment program effectively reduced care burden and social isolation while enhancing empowerment among caregivers.</div></div><div><h3>Implications for practice</h3><div>Integrating structured nurse-led empowerment programs into routine pediatric and community care may improve caregiver well-being, strengthen family functioning, and enhance long-term care for children with cerebral palsy.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 88-98"},"PeriodicalIF":2.3,"publicationDate":"2026-01-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145940153","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This study examined the mediating role of perceived maternal parenting self-efficacy in the relationship between digital health literacy and fever management in children.
Methods
A cross-sectional design was employed with 408 mothers of children aged 0–6 years in Eastern Turkey. Data collection was conducted through face-to-face interviews in a pediatric outpatient clinic using three validated scales: Digital Health Literacy Scale, Perceived Maternal Parenting Self-Efficacy Questionnaire, and Parent Fever Management Scale. Structural Equation Modeling with maximum likelihood estimation tested the hypothesized mediation model. Model fit was evaluated using multiple indices (χ2/df = 4.060, CFI = 0.911, RMSEA = 0.075), and bootstrapping with 5000 resamples assessed indirect effects.
Results
Digital health literacy demonstrated significant positive associations with both fever management (β = 0.284, p = 0.001) and perceived maternal self-efficacy (β = 0.370, p < 0.001). Perceived maternal self-efficacy was a strong predictor of fever management (β = 0.233, p < 0.001). The mediation analysis revealed a significant indirect effect (β = 0.087, 95 % CI [0.043, 0.136], p < 0.001), confirming partial mediation.
Conclusions
These findings highlight that digital health literacy influences fever management through dual pathways: directly, and indirectly through its effect on maternal self-efficacy. Healthcare interventions should integrate components that enhance both digital literacy and parenting confidence to optimize child health outcomes.
Practical implications
Pediatric nursing practice should incorporate assessments of digital health literacy and implement evidence-based strategies to build maternal competence, ultimately bridging the gap between health knowledge and practice in fever management.
{"title":"The effect of mothers' digital health literacy on fever management: The mediating role of perceived maternal self-efficacy","authors":"Fatoş Uncu PhD, RN , Hasan Evcimen PhD, RN , Elanur Bulut MSc, RN","doi":"10.1016/j.pedn.2026.01.004","DOIUrl":"10.1016/j.pedn.2026.01.004","url":null,"abstract":"<div><h3>Aim</h3><div>This study examined the mediating role of perceived maternal parenting self-efficacy in the relationship between digital health literacy and fever management in children.</div></div><div><h3>Methods</h3><div>A cross-sectional design was employed with 408 mothers of children aged 0–6 years in Eastern Turkey. Data collection was conducted through face-to-face interviews in a pediatric outpatient clinic using three validated scales: Digital Health Literacy Scale, Perceived Maternal Parenting Self-Efficacy Questionnaire, and Parent Fever Management Scale. Structural Equation Modeling with maximum likelihood estimation tested the hypothesized mediation model. Model fit was evaluated using multiple indices (χ<sup>2</sup>/df = 4.060, CFI = 0.911, RMSEA = 0.075), and bootstrapping with 5000 resamples assessed indirect effects.</div></div><div><h3>Results</h3><div>Digital health literacy demonstrated significant positive associations with both fever management (β = 0.284, <em>p</em> = 0.001) and perceived maternal self-efficacy (β = 0.370, <em>p</em> < 0.001). Perceived maternal self-efficacy was a strong predictor of fever management (β = 0.233, p < 0.001). The mediation analysis revealed a significant indirect effect (β = 0.087, 95 % CI [0.043, 0.136], p < 0.001), confirming partial mediation.</div></div><div><h3>Conclusions</h3><div>These findings highlight that digital health literacy influences fever management through dual pathways: directly, and indirectly through its effect on maternal self-efficacy. Healthcare interventions should integrate components that enhance both digital literacy and parenting confidence to optimize child health outcomes.</div></div><div><h3>Practical implications</h3><div>Pediatric nursing practice should incorporate assessments of digital health literacy and implement evidence-based strategies to build maternal competence, ultimately bridging the gap between health knowledge and practice in fever management.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 58-65"},"PeriodicalIF":2.3,"publicationDate":"2026-01-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145935750","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}