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“My image of the elderly …”: an analysis of elderly representations in children's drawings “我的老年人形象……”:儿童绘画中老年人形象的分析。
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-01-20 DOI: 10.1016/j.pedn.2026.01.015
Mükerrem Kabataş Yıldız PhD , Oya Sevcan Orak PhD

Purpose

This study examines the perceptions of children aged 9 to 12 regarding older adults and the aging process through drawing analysis.

Materials and method

This qualitative study employed an art-based narrative approach for data collection, integrating drawings and interviews. Data were analyzed projectively. The study was conducted with 25 children aged 9 to 12 living in a northern province of Türkiye, each of whom had at least one older adult in the family and who volunteered to participate. Data were collected using the “Child Descriptive Information Form,” the “Draw a Picture of an Elderly Person” activity, and a “Semi-Structured Interview Form.”

Results

Projective analysis of children's drawings and interviews revealed four main themes: “Traces of Time on the Body: Visual Representations of Aging,” “The Need for Psychosocial Support: Family-Centered Social Transformation,” “After Their Departure: A Period of Confronting the Reality of Death,” and “The Warm Face of Compassion.”

Conclusion

While children's perceptions of older adults were generally positive, their views on the aging period were predominantly negative. Children described older individuals as compassionate, wise, and lovable, but also associated aging with loneliness, illness, disability, experiences and fears of death, suffering, and fear of loss.
目的:本研究通过绘图分析,考察9 ~ 12岁儿童对老年人的认知和衰老过程。材料和方法:本定性研究采用基于艺术的叙事方法收集数据,结合图纸和访谈。对数据进行投影分析。这项研究是在25名9至12岁的儿童中进行的,他们住在北部的基耶省,每个人家里至少有一名老年人,他们自愿参加。数据收集采用“儿童描述信息表”、“画老人”活动和“半结构化访谈表”。结果:对儿童绘画和访谈的投影分析揭示了四个主要主题:“身体上的时间痕迹:衰老的视觉表现”,“对心理社会支持的需求:以家庭为中心的社会转型”,“他们离开后:面对死亡现实的时期”和“温暖的同情脸”。结论:儿童对老年人的看法总体上是积极的,但对老年期的看法主要是消极的。孩子们将老年人描述为富有同情心、智慧和可爱的,但也将衰老与孤独、疾病、残疾、经历和对死亡的恐惧、痛苦和对失去的恐惧联系在一起。
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引用次数: 0
The effects of therapeutic play on alleviating preoperative anxiety in preschool children with congenital heart disease: A cluster-randomized controlled trial 治疗性游戏对减轻学龄前先心病患儿术前焦虑的影响:一项聚类随机对照试验
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-01-19 DOI: 10.1016/j.pedn.2026.01.006
Haiying Xing , Tong Zheng , Yan Ma , Qian Zhang , Yafei Liu , Xiangyu Wang , Mengran Li , Conghui Guo , Shiyu Wang , Xiaoye He , Tingting Li , Xiaoxue Zhang , Xuyang Fan

Purpose

This study aimed to examine the effects of preoperative therapeutic play on alleviating preoperative anxiety in preschool children with congenital heart disease.

Design and methods

This cluster-randomized controlled trial was conducted between October 2022 and April 2023. A total of 82 preschool children aged 3–5 years with congenital heart disease were recruited from two pediatric cardiac wards in China. Children in the intervention group (n = 40) received a preoperative therapeutic play intervention, while those in the control group (n = 40) received routine preoperative care. Anxiety was evaluated using the mYPAS-SF before and after the intervention at five assessment points (baseline, T1, T2, T3, and T4). Cooperation during anesthesia induction was assessed at T4 using the Induction Compliance Checklist (ICC). Data were analyzed using independent-samples t, chi-squared, Mann–Whitney U, and Kruskal–Wallis H tests. A p-value <0.05 was considered statistically significant.

Results

The anxiety levels of the children in the intervention and control groups were similar at baseline (p > 0.05). After the intervention, the incidence of anxiety did not differ significantly between the two groups at any of the four assessment points (T1–T4) (p > 0.05). However, the mYPAS-SF scores were significantly higher in the control group than in the intervention group at T4 (p < 0.05). A significant difference was also observed in the ICC scores: the median (P25, P75) was 1 (1,3) in the control group and 0 (0,2) in the intervention group (p < 0.05).

Conclusion

Preoperative therapeutic play reduced anxiety levels in preschool children with congenital heart disease during anesthesia induction and improved their compliance with the procedure.

Practice implications

Bedside nurse-led therapeutic play reduced preoperative anxiety and improved anesthesia compliance in children with CHD. The use of wearable devices offers a practical method for monitoring preoperative heart rate in preschool children.

Registration

chictr.org.cn (ChiCTR2200062267). Registration date: July 31, 2022.
目的:探讨术前治疗性游戏对学龄前先心病患儿术前焦虑的缓解作用。设计与方法:本试验于2022年10月至2023年4月进行。本研究从中国两个儿科心脏病病房招募了82名3-5岁的先天性心脏病学龄前儿童。干预组(n = 40)术前给予治疗性游戏干预,对照组(n = 40)术前给予常规护理。在干预前后的5个评估点(基线、T1、T2、T3和T4)使用mYPAS-SF评估焦虑。采用诱导依从性检查表(ICC)评估T4麻醉诱导时的配合情况。数据分析采用独立样本t检验、卡方检验、Mann-Whitney U检验和Kruskal-Wallis H检验。A p值结果:干预组与对照组患儿焦虑水平基线值相近(p < 0.05)。干预后,两组患者在T1-T4四个评估点的焦虑发生率均无显著差异(p < 0.05)。然而,T4时,对照组的mYPAS-SF评分明显高于干预组(p 25, p 75),对照组为1(1,3),干预组为0 (0,2)(p结论:术前治疗性游戏降低了学龄前先心病患儿麻醉诱导过程中的焦虑水平,提高了其手术依从性。实践意义:床边护士主导的治疗性游戏减少了冠心病患儿的术前焦虑,提高了麻醉依从性。可穿戴设备的使用为监测学龄前儿童的术前心率提供了一种实用的方法。报名:chictr.org.cn (ChiCTR2200062267)。报名日期:2022年7月31日。
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引用次数: 0
Management of Type 1 diabetes in adolescents: Effectiveness of the remote personalized system of instruction model 青少年1型糖尿病的管理:远程个性化系统教学模式的有效性
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-01-16 DOI: 10.1016/j.pedn.2026.01.012
Nebahat Bora Güneş , Melike Taşdelen Baş , Semra Çetinkaya , Nurdan Yıldırım

Background and aim

Type 1 Diabetes Mellitus (T1DM) is a common chronic condition in childhood and requires appropriate education and self-management skills. Structured education is key to improving glycemic stability and empowering adolescents. The Personalized System of Instruction (PSI), though effective in other fields, is underused in diabetes education. This study evaluated the impact of PSI-based structured ongoing education program among adolescents living with T1DM and with glycemic instability.

Methods

A randomized controlled trial with a pre-test/post-test comparison group design was conducted. Participants were adolescents aged 12–18 years with glycemic instability (glycated hemoglobin [HbA1c] ≥7%) and at least one weekly hypo‐hyperglycemic episode. Stratified randomization ensured group balance. The study included 60 adolescents with T1DM, evenly split between intervention and control groups. Validated instruments were used to assess cognitive knowledge, self-efficacy, glycemic episode frequency, and HbA1c levels. The intervention group received structured education based on the PSI model, while the comparison group received standard diabetes education.

Results

The intervention group showed significantly greater improvements than the comparison group in all outcomes. From the 3rd month, cognitive knowledge and self-efficacy increased, while HbA1c levels and glycemic episode frequency declined. Group-time interaction was significant, with sustained improvement in the PSI group up to 6 months. η2 values indicated moderate to large effect sizes.

Conclusion

The PSI model is an effective strategy to enhance diabetes self-management and glycemic stability in adolescents with T1DM. Its structured, learner-centered design offers a promising alternative to traditional education methods in this population.

Implications to practice

The findings suggest that the PSI framework can be effectively integrated into pediatric nursing practice to support individualized, learner-centered diabetes self-management education for adolescents with T1DM, enhance skill acquisition and self-efficacy, and facilitate ongoing educational support within both in-person and digital care settings.
背景和目的1型糖尿病(T1DM)是儿童期常见的慢性疾病,需要适当的教育和自我管理技能。有组织的教育是改善血糖稳定和增强青少年能力的关键。个性化教学系统(PSI)虽然在其他领域有效,但在糖尿病教育中应用不足。本研究评估了基于psi的结构化持续教育计划对患有T1DM和血糖不稳定的青少年的影响。方法采用随机对照试验,采用前测/后测组设计。参与者为12-18岁的青少年,血糖不稳定(糖化血红蛋白[HbA1c]≥7%),每周至少发生一次低血糖发作。分层随机化确保组间平衡。该研究包括60名患有1型糖尿病的青少年,平均分为干预组和对照组。使用经过验证的工具评估认知知识、自我效能、血糖发作频率和HbA1c水平。干预组接受基于PSI模型的结构化教育,对照组接受标准糖尿病教育。结果干预组在各项指标上均明显优于对照组。从第3个月开始,认知知识和自我效能感增加,HbA1c水平和血糖发作频率下降。小组时间的相互作用是显著的,PSI组持续改善到6个月。η2值表明中等到较大的效应量。结论PSI模式是提高青少年T1DM患者糖尿病自我管理和血糖稳定的有效策略。它的结构化、以学习者为中心的设计为这一群体提供了传统教育方法的一个有希望的替代方案。研究结果表明,PSI框架可以有效地整合到儿科护理实践中,以支持个性化的、以学习者为中心的T1DM青少年糖尿病自我管理教育,增强技能习得和自我效能感,并促进面对面和数字化护理环境中持续的教育支持。
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引用次数: 0
The Eeffectiveness of distraction cards in reducing pain in children: A meta-analysis of randomized controlled trials 分散注意力卡片减轻儿童疼痛的有效性:随机对照试验的荟萃分析
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-01-16 DOI: 10.1016/j.pedn.2026.01.011
Çiğdem Gök , Pelin Karataş

Background

Distraction cards, colorful pictures, and puzzles are age-appropriate visual and cognitive content that can be used to divert a child's attention away from painful stimuli.

Objective

This systematic review and meta-analysis aimed to evaluate the effectiveness of distraction cards in managing pain and anxiety during invasive medical procedures in children aged 3 to 18 years.

Methods

Fifteen randomized controlled trials published between 2010 and 2025 were included. Articles were identified using specific keywords in the CINAHL, Cochrane Central, Web of Science, PubMed, Scopus, ScienceDirect, Eric, EBSCO, and OVID databases. The study followed PRISMA 2020 guidelines, and risk of bias was assessed using the Cochrane Collaboration tool. Data were synthesized using a random-effects model to calculate Standardized Mean Differences (SMDs) with 95% confidence intervals, assessing heterogeneity via the I2 statistic.

Results

Pooled results demonstrated that distraction cards significantly reduced pain levels across all reporters, with large effect sizes observed in children's self-reports (SMD) = −0.90), parent reports (SMD = −1.29), and observer reports (SMD = −1.28). Regarding anxiety, while parents (SMD = −0.97) and observers (SMD = −1.15) reported significant reductions, children's self-reported anxiety reduction did not reach statistical significance (p = 0.14). High heterogeneity (I2 > 90%) was observed across the analyses.

Conclusion

Findings support the integration of distraction cards into pediatric nursing practice to improve children's experiences during painful procedures, reduce negative emotional responses, and involve parents in care. Distraction cards are a low-cost and easily implementable non-pharmacological method. Their use by pediatric nurses to reduce procedure-related pain is recommended.
背景分散注意力的卡片、彩色图片和拼图是适合孩子年龄的视觉和认知内容,可以用来转移孩子对痛苦刺激的注意力。目的:本系统综述和荟萃分析旨在评估分心卡在3至18岁儿童侵入性医疗过程中控制疼痛和焦虑的有效性。方法纳入2010 ~ 2025年间发表的15项随机对照试验。文章在CINAHL、Cochrane Central、Web of Science、PubMed、Scopus、ScienceDirect、Eric、EBSCO和OVID数据库中使用特定关键词进行识别。该研究遵循PRISMA 2020指南,并使用Cochrane协作工具评估偏倚风险。采用随机效应模型综合数据,计算95%置信区间的标准化平均差异(SMDs),通过I2统计量评估异质性。结果spooled结果表明,分散注意力卡显著降低了所有报告者的疼痛水平,在儿童自我报告(SMD = - 0.90)、家长报告(SMD = - 1.29)和观察者报告(SMD = - 1.28)中观察到很大的效应。在焦虑方面,父母(SMD = - 0.97)和观察者(SMD = - 1.15)报告的焦虑显著减少,而儿童自我报告的焦虑减少没有达到统计学意义(p = 0.14)。在整个分析中观察到高度异质性(I2 > 90%)。结论研究结果支持将分心卡纳入儿科护理实践,以改善儿童在痛苦过程中的体验,减少负面情绪反应,并使父母参与护理。分心卡是一种低成本且易于实现的非药物方法。建议儿科护士使用它们来减少手术相关的疼痛。
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引用次数: 0
Moral resilience and quiet quitting tendencies among pediatric nurses: A multiple linear regression study 儿科护士的道德弹性与安静戒烟倾向:一个多元线性回归研究
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-01-16 DOI: 10.1016/j.pedn.2026.01.010
Mustafa Belli , Zübeyde Ezgi Erçelik

Aim

To examine the relationship between pediatric nurses' moral resilience and quiet quitting tendencies, and to identify demographic and professional predictors of this behavior.

Background

Quiet quitting—defined as completing only required duties while disengaging from additional responsibilities—has gained attention in nursing due to its potential impact on patient care and workforce sustainability. Pediatric nurses encounter unique ethical and emotional challenges, which can potentially increase their vulnerability to disengagement. Moral resilience, the ability to uphold ethical integrity under stress, is considered a protective factor; however, its role in pediatric nursing remains underexplored.

Methods

A cross-sectional, descriptive, correlational study was conducted between January and May 2025 in Türkiye, following Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) guidelines. Data were collected from 400 pediatric nurses using convenience and snowball sampling, via a Demographic Information Form, the Rushton Moral Resilience Scale, and the Quiet Quitting Scale. Pearson correlation and hierarchical linear regression were applied.

Results

Moral resilience was moderately and negatively correlated with quiet quitting (r = −0.39, p < 0.001). Demographic factors explained 5.5% of the variance in quiet quitting, while adding moral resilience increased the explained variance to 19.3% (ΔR2 = 0.138, p < 0.001). Moral resilience was the strongest predictor (β = −0.376, p < 0.001).

Conclusions

Higher moral resilience significantly reduces the tendency toward quiet quitting among pediatric nurses. Interventions that strengthen moral resilience through targeted training, ethical climate improvement, and organizational support could enhance nurse engagement and workforce sustainability.
目的探讨儿科护士的道德弹性与安静戒烟倾向之间的关系,并确定这种行为的人口统计学和专业预测因素。安静辞职——被定义为只完成必要的职责,而不承担额外的责任——由于其对患者护理和劳动力可持续性的潜在影响,已经引起了护理界的关注。儿科护士面临着独特的道德和情感挑战,这可能会增加他们脱离工作的脆弱性。道德弹性,即在压力下保持道德操守的能力,被认为是一种保护因素;然而,它在儿科护理中的作用仍未得到充分探讨。方法遵循加强流行病学观察性研究报告(STROBE)指南,于2025年1月至5月在日本进行了一项横断面、描述性、相关性研究。数据通过人口统计信息表、拉什顿道德弹性量表和安静戒烟量表从400名儿科护士中收集。应用Pearson相关和层次线性回归。结果道德恢复力与安静戒烟呈中度负相关(r = - 0.39, p < 0.001)。人口因素解释了安静戒烟的5.5%的方差,而加入道德韧性使解释方差增加到19.3% (ΔR2 = 0.138, p < 0.001)。道德弹性是最强的预测因子(β = - 0.376, p < 0.001)。结论较高的道德弹性显著降低了儿科护士安静戒烟的倾向。通过有针对性的培训、改善道德氛围和组织支持来加强道德韧性的干预措施可以提高护士的参与度和劳动力的可持续性。
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引用次数: 0
Adolescents' experiences of living with type 2 diabetes mellitus: A scoping review 青少年2型糖尿病患者的生活经历:一项范围综述
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-01-14 DOI: 10.1016/j.pedn.2026.01.002
Eric Peprah Osei , Ernest Owusu Antwi , Emmanuel Ekpor , Gideon Yaw Osei , Amos Asante , Gordon Etornam Dzotrah , Michelle Danny Stampley Boakye

Background

Type 2 diabetes mellitus has emerged as a major public health concern among adolescents; however, existing research has largely emphasized biomedical outcomes, with comparatively limited attention to adolescents' lived experiences, emotional well-being, and coping strategies. This scoping review aimed to synthesize qualitative evidence on adolescents' experiences of living with type 2 diabetes mellitus.

Methods

Six electronic databases (PubMed, CINAHL, EMBASE, PsycINFO, Scopus, and Web of Science) were searched from inception to May 19, 2025, for peer-reviewed qualitative or mixed-methods studies involving adolescents aged 10–19 years with type 2 diabetes mellitus. Fifteen studies conducted across six countries met the inclusion criteria. The review was guided by the Social Ecological Model and adhered to PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) guidelines. An inductive thematic analysis of the quotations and narrative descriptions reported within the included studies was conducted following Braun and Clarke's framework to identify patterns related to adolescents' lived experiences.

Findings

Five key themes were identified: (1) initial diagnosis, awareness, and understanding of type 2 diabetes mellitus; (2) challenges in treatment, self-management, and lifestyle modification; (3) complications and health outcomes; (4) psychosocial and emotional impact; and (5) coping strategies and resilience.

Discussion

These findings underscore the multifaceted challenges adolescents face in managing type 2 diabetes mellitus and the need for supportive, developmentally appropriate approaches to improve their well-being.
背景:2型糖尿病已成为青少年中一个主要的公共卫生问题;然而,现有的研究主要强调生物医学结果,对青少年的生活经历、情绪健康和应对策略的关注相对有限。本综述旨在综合青少年2型糖尿病生活经历的定性证据。方法检索6个电子数据库(PubMed, CINAHL, EMBASE, PsycINFO, Scopus和Web of Science),从成立到2025年5月19日,检索涉及10-19岁青少年2型糖尿病的同行评议定性或混合方法研究。在6个国家进行的15项研究符合纳入标准。该评价以社会生态模型为指导,并遵循PRISMA-ScR(系统评价和荟萃分析扩展范围评价的首选报告项目)指南。根据Braun和Clarke的框架,对纳入研究中的引文和叙事描述进行归纳主题分析,以确定与青少年生活经历相关的模式。研究结果确定了5个关键主题:(1)对2型糖尿病的初步诊断、认识和理解;(2)治疗、自我管理和生活方式改变方面的挑战;(3)并发症和健康结局;(4)社会心理和情感影响;(5)应对策略与弹性。这些发现强调了青少年在管理2型糖尿病方面面临的多方面挑战,以及需要支持性的、适合发展的方法来改善他们的健康。
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引用次数: 0
The effectiveness of a WhatsApp-based educational intervention aimed at improving mothers' fever management: A randomized controlled trial 基于whatsapp的教育干预改善母亲发烧管理的有效性:一项随机对照试验
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-01-14 DOI: 10.1016/j.pedn.2026.01.013
Gamzegül Altay, Mehtap Metin Karaaslan, İsa Çelik

Aim

This study aimed to determine the effect of WhatsApp-based education on mothers' knowledge, attitude and practices regarding fever management at home.

Method

The study was conducted using a randomized controlled experimental design. It included 64 mothers (32 in the intervention group and 32 in the control group) who met the inclusion criteria. The intervention group received online fever management education via WhatsApp messages. Data were collected using the “Mother and Child Information Form”, “Parent Fever Management Scale”, “Fever Management Knowledge, Attitude and Practice Questionnaire” and “E-Health Literacy Scale.” Two-way mixed-design ANOVA was used to examine group, time, and group × time interactions.

Results

The intervention group demonstrated significantly higher scores compared to the control group, with the intervention having a large effect on fever management (p < 0.001, η2 = 0.320), fever knowledge, attitude and practice level (p < 0.001, η2 = 0.585), and e-health literacy level (p < 0.001, η2 = 0.215).

Conclusion

Online fever management education delivered via WhatsApp messages is effective in reducing mothers' fever-related care burdens, increasing fever knowledge, attitude and practice levels, and improving e-health literacy levels.

Practice implications

Educational content shared via WhatsApp, a widely used application, is easily accessible. These resources can be used by pediatric nurses in clinics as short and effective educational materials for mothers.
The clinical trial registration number is NCT07061327.
目的本研究旨在了解基于whatsapp的教育对母亲在家发热管理知识、态度和行为的影响。方法采用随机对照试验设计。它包括64位符合纳入标准的母亲(干预组32位,对照组32位)。干预组通过WhatsApp短信进行在线发热管理教育。采用“母婴信息表”、“家长发热管理量表”、“发热管理知识、态度与行为问卷”和“电子健康素养量表”进行数据收集。采用双向混合设计方差分析检验组间、时间间和组间×时间间的相互作用。结果干预组得分显著高于对照组,干预对发热管理(p < 0.001, η2 = 0.320)、发热知识、态度和实践水平(p < 0.001, η2 = 0.585)和电子卫生素养水平(p < 0.001, η2 = 0.215)有较大影响。结论通过WhatsApp进行在线发热管理教育,可有效减轻产妇发热护理负担,提高发热知识、态度和行为水平,提高电子卫生素养水平。实践启示通过广泛使用的应用程序WhatsApp分享的教育内容很容易访问。这些资源可以被诊所的儿科护士用作母亲的简短而有效的教育材料。临床试验注册号为NCT07061327。
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引用次数: 0
Effects of perceived care burden and spiritual well-being on the quality of life of parents of children with special needs in Türkiye 感知照顾负担和精神幸福感对特殊需要儿童父母生活质量的影响
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-01-14 DOI: 10.1016/j.pedn.2026.01.005
Sinem Basdemir RN, MSc, PhD, Res. Asst., Ilknur Bektas RN, MSc, PhD, Assoc. Prof., Seyda Binay Yaz RN, MSc, PhD, Assoc. Prof.

Purpose

This study was conducted to determine the predictive levels of care burden and spiritual well-being of parents of children with special needs in relation to their quality of life.

Methods

This descriptive, correlational, and cross-sectional study included 210 parents in Türkiye, and data were collected using the Burden Interview, the Spiritual Well-Being Scale, and the World Health Organization Quality of Life Short Form. The relationships between scores on the Spiritual Well-Being Scale, the Burden Interview, and the quality of life sub-dimensions were evaluated using Pearson correlation analyses, and the predictive impact of these scores on the quality of life sub-dimensions was assessed using multiple linear regression analyses.

Results

There was a low-level, significant negative correlation between the Burden Interview and the Quality of Life Scale sub-dimensions. Specifically, the caregiving burden and spiritual well-being levels of parents significantly predicted their quality of life (p < 0.05).

Conclusion

As parents' perceived care burden increased and their spiritual well-being decreased, their quality of life also declined.

Implications for Practices

Interventions aimed at reducing caregivers' perceived burden and enhancing their spiritual well-being may improve the overall quality of life of parents of children with special needs.
目的本研究旨在探讨特殊需要儿童父母的照顾负担和精神幸福感对其生活质量的预测水平。方法本研究采用描述性、相关性和横断面研究方法,包括基基ye的210名家长,数据采用负担访谈、精神健康量表和世界卫生组织生活质量问卷收集。采用Pearson相关分析评估精神幸福量表、负担访谈得分与生活质量子维度之间的关系,并采用多元线性回归分析评估这些得分对生活质量子维度的预测影响。结果负担访谈与生活质量量表子维度呈低水平显著负相关。具体而言,父母的照顾负担和精神幸福感水平显著预测其生活质量(p < 0.05)。结论随着父母感知照顾负担的增加和精神幸福感的下降,他们的生活质量也随之下降。对实践的启示旨在减轻照顾者的感知负担和提高他们的精神健康的干预措施可以改善有特殊需要儿童的父母的整体生活质量。
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引用次数: 0
Predictive effect of having a child with primary immunodeficiency on resilience, self-efficacy and spiritual well-being of Turkish parents 具有原发性免疫缺陷的儿童对土耳其父母的恢复力、自我效能和精神幸福的预测作用。
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-01-11 DOI: 10.1016/j.pedn.2025.12.027
Hatice Dönmez , Tuba Arpaci , Şükrü Nail Güner

Background

The study aimed to examine the predictive effect of having a child with primary immunodeficiency (PID) on the psychological resilience, general self-efficacy, and spiritual well-being of parents.

Methods

A cross-sectional, correlational, and comparative study was conducted with parents of children with PID (N = 88) and healthy controls (n = 168) in Türkiye from June 2024 to February 2025. Study data were collected through the Connor-Davidson Resilience Scale Short Form, the General Self-Efficacy Scale, and the Spiritual Well-being Scale.

Results

The mean general self-efficacy of parents of children with PID was significantly lower than that of parents of healthy controls (p < 0.05). However, no significant difference was found between the groups in psychological resilience or spiritual well-being (p > 0.05). There were significant positive relationships among psychological resilience, general self-efficacy, and spiritual well-being among parents of children with PID (p < 0.05). The disease has no statistically significant effect on spiritual well-being in parents (p > 0.05).

Conclusions

The mean general self-efficacy of parents of children with PID was lower than that of parents of healthy controls. Although no difference in psychological resilience was detected between the groups in the descriptive comparison, the multivariate analysis indicated that having a child with PID is a negative factor affecting parents' resilience. Having a child with PID also had a statistically significant effect on the general self-efficacy of parents.

Practice implications

The findings will guide the planning of family-centred nursing interventions to enhance the psychological resilience, general self-efficacy, and spiritual well-being of parents of children with PID.
背景:本研究旨在探讨原发性免疫缺陷(PID)儿童对父母心理弹性、一般自我效能感和精神幸福感的预测作用。方法:在2024年6月至2025年2月期间,对基耶省患有PID的儿童的父母(N = 88)和健康对照者(N = 168)进行横断面、相关和比较研究。研究数据通过康纳-戴维森弹性量表简表、一般自我效能量表和精神幸福感量表收集。结果:PID患儿家长一般自我效能感均值显著低于健康对照组家长(p < 0.05)。PID患儿家长的心理弹性、一般自我效能感与精神幸福感之间存在显著正相关(p < 0.05)。结论:PID患儿家长的一般自我效能感均值低于健康对照组家长。虽然在描述性比较中,各组之间的心理弹性没有差异,但多因素分析表明,患有PID的孩子是影响父母心理弹性的负面因素。患有PID的孩子对父母的总体自我效能感也有统计学上的显著影响。实践启示:研究结果将指导以家庭为中心的护理干预计划,以提高PID儿童父母的心理弹性、一般自我效能感和精神幸福感。
{"title":"Predictive effect of having a child with primary immunodeficiency on resilience, self-efficacy and spiritual well-being of Turkish parents","authors":"Hatice Dönmez ,&nbsp;Tuba Arpaci ,&nbsp;Şükrü Nail Güner","doi":"10.1016/j.pedn.2025.12.027","DOIUrl":"10.1016/j.pedn.2025.12.027","url":null,"abstract":"<div><h3>Background</h3><div>The study aimed to examine the predictive effect of having a child with primary immunodeficiency (PID) on the psychological resilience, general self-efficacy, and spiritual well-being of parents.</div></div><div><h3>Methods</h3><div>A cross-sectional, correlational, and comparative study was conducted with parents of children with PID (<em>N</em> = 88) and healthy controls (<em>n</em> = 168) in Türkiye from June 2024 to February 2025. Study data were collected through the Connor-Davidson Resilience Scale Short Form, the General Self-Efficacy Scale, and the Spiritual Well-being Scale.</div></div><div><h3>Results</h3><div>The mean general self-efficacy of parents of children with PID was significantly lower than that of parents of healthy controls (<em>p</em> <em>&lt;</em> 0.05). However, no significant difference was found between the groups in psychological resilience or spiritual well-being <em>(p</em> <em>&gt;</em> 0.05). There were significant positive relationships among psychological resilience, general self-efficacy, and spiritual well-being among parents of children with PID (<em>p</em> <em>&lt;</em> 0.05). The disease has no statistically significant effect on spiritual well-being in parents (<em>p</em> &gt; 0.05).</div></div><div><h3>Conclusions</h3><div>The mean general self-efficacy of parents of children with PID was lower than that of parents of healthy controls. Although no difference in psychological resilience was detected between the groups in the descriptive comparison, the multivariate analysis indicated that having a child with PID is a negative factor affecting parents' resilience. Having a child with PID also had a statistically significant effect on the general self-efficacy of parents.</div></div><div><h3>Practice implications</h3><div>The findings will guide the planning of family-centred nursing interventions to enhance the psychological resilience, general self-efficacy, and spiritual well-being of parents of children with PID.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 112-117"},"PeriodicalIF":2.3,"publicationDate":"2026-01-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145953439","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Lived experiences of adolescents with thalassemia major: A phenomenological study/ lived experiences in tm adolescents 重度地中海贫血青少年的生活经历:一项现象学研究/ tm青少年的生活经历
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-01-11 DOI: 10.1016/j.pedn.2026.01.009
Münevver Erkul , Zeynep Öztürk

Objective

This study explored the lived experiences and coping processes of adolescents diagnosed with Thalassemia Major (TM) to inform the development of patient-centered and individualized care strategies.

Methods

A qualitative phenomenological design was employed. Between April and June 2024, purposive sampling was used to recruit ten adolescents (12–18 years) from the Thalassemia Unit of a public hospital in Antalya, Türkiye. Semi-structured interviews were conducted until data saturation was achieved. Ethical approval was obtained (TBAEK-199). Sociodemographic data were summarized using SPSS 22.0 as frequencies and percentages. Interview transcripts were analyzed using Colaizzi's seven-step method. Trustworthiness was ensured through independent double-coding, audit trail maintenance, and member checking.

Results

Six main themes emerged: (1) Acceptance and normalization (integrating illness into daily life; reframing TM as manageable); (2) Impact on schooling (absences due to transfusions or surgeries; academic and emotional strain; facilitative role of teacher support); (3) Peer and societal responses (misinformation, stigma, strategic disclosure, and peer support); (4) Family support and sibling dynamics (parental support enhancing adherence; protective bonds and ambivalence); (5) Treatment adherence and transplant pathway (burden of chronic transfusion and chelation; hope and hesitation regarding hematopoietic stem cell transplantation; donor availability and risk perception); and (6) Psychological processes and coping (anxiety, fear of death, body-image concerns, and active coping strategies such as social support, humor, positive reappraisal, and medication adherence).

Conclusion

Adolescents with TM experience multidimensional challenges affecting their educational, social, psychological, and treatment-related lives. A holistic and developmentally sensitive approach is essential to support long-term adaptation and well-being.

Implications for practice

Healthcare professionals should integrate routine psychosocial screening and counseling into standard care, strengthen family-centered practices to support treatment adherence, and collaborate with schools to promote flexible attendance policies. Awareness initiatives targeting peers and educators may reduce stigma, while structured, age-appropriate counseling can support informed decision-making regarding long-term treatment and transplantation options.
目的:探讨重度地中海贫血(TM)青少年的生活经历和应对过程,为制定以患者为中心的个性化护理策略提供依据。方法:采用定性现象学设计。在2024年4月至6月期间,采用有目的抽样的方法,从土耳其安塔利亚一家公立医院的地中海贫血科招募了10名青少年(12-18岁)。进行半结构化访谈,直到达到数据饱和。获得伦理批准(TBAEK-199)。社会人口统计数据采用SPSS 22.0进行频率和百分比汇总。访谈记录使用Colaizzi的七步法进行分析。通过独立的双重编码、审计跟踪维护和成员检查来确保可信性。结果:出现了六个主要主题:(1)接受和正常化(将疾病融入日常生活;将TM重新定义为可管理的);(2)对学业的影响(因输血或手术而缺课;学业和情绪紧张;教师支持的促进作用);(3)同伴和社会反应(错误信息、耻辱、战略性披露和同伴支持);(4)家庭支持和兄弟姐妹动态(父母支持增强依从性、保护纽带和矛盾心理);(5)治疗依从性和移植途径(慢性输血和螯合负担;对造血干细胞移植的希望和犹豫;供体可获得性和风险认知);(6)心理过程和应对(焦虑、死亡恐惧、身体形象关注和积极应对策略,如社会支持、幽默、积极的重新评价和药物依从性)。结论:患有TM的青少年面临着多方面的挑战,影响着他们的教育、社会、心理和治疗相关的生活。要支持长期适应和福祉,就必须采取全面和对发展敏感的办法。对实践的启示:医疗保健专业人员应将常规的心理筛查和咨询纳入标准护理,加强以家庭为中心的实践以支持治疗依从性,并与学校合作促进灵活的出勤政策。针对同龄人和教育工作者的意识倡议可以减少耻辱感,而结构化的、适合年龄的咨询可以支持关于长期治疗和移植选择的知情决策。
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引用次数: 0
期刊
Journal of Pediatric Nursing-Nursing Care of Children & Families
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