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Predictive effect of having a child with primary immunodeficiency on resilience, self-efficacy and spiritual well-being of Turkish parents 具有原发性免疫缺陷的儿童对土耳其父母的恢复力、自我效能和精神幸福的预测作用。
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-03-01 Epub Date: 2026-01-11 DOI: 10.1016/j.pedn.2025.12.027
Hatice Dönmez , Tuba Arpaci , Şükrü Nail Güner

Background

The study aimed to examine the predictive effect of having a child with primary immunodeficiency (PID) on the psychological resilience, general self-efficacy, and spiritual well-being of parents.

Methods

A cross-sectional, correlational, and comparative study was conducted with parents of children with PID (N = 88) and healthy controls (n = 168) in Türkiye from June 2024 to February 2025. Study data were collected through the Connor-Davidson Resilience Scale Short Form, the General Self-Efficacy Scale, and the Spiritual Well-being Scale.

Results

The mean general self-efficacy of parents of children with PID was significantly lower than that of parents of healthy controls (p < 0.05). However, no significant difference was found between the groups in psychological resilience or spiritual well-being (p > 0.05). There were significant positive relationships among psychological resilience, general self-efficacy, and spiritual well-being among parents of children with PID (p < 0.05). The disease has no statistically significant effect on spiritual well-being in parents (p > 0.05).

Conclusions

The mean general self-efficacy of parents of children with PID was lower than that of parents of healthy controls. Although no difference in psychological resilience was detected between the groups in the descriptive comparison, the multivariate analysis indicated that having a child with PID is a negative factor affecting parents' resilience. Having a child with PID also had a statistically significant effect on the general self-efficacy of parents.

Practice implications

The findings will guide the planning of family-centred nursing interventions to enhance the psychological resilience, general self-efficacy, and spiritual well-being of parents of children with PID.
背景:本研究旨在探讨原发性免疫缺陷(PID)儿童对父母心理弹性、一般自我效能感和精神幸福感的预测作用。方法:在2024年6月至2025年2月期间,对基耶省患有PID的儿童的父母(N = 88)和健康对照者(N = 168)进行横断面、相关和比较研究。研究数据通过康纳-戴维森弹性量表简表、一般自我效能量表和精神幸福感量表收集。结果:PID患儿家长一般自我效能感均值显著低于健康对照组家长(p < 0.05)。PID患儿家长的心理弹性、一般自我效能感与精神幸福感之间存在显著正相关(p < 0.05)。结论:PID患儿家长的一般自我效能感均值低于健康对照组家长。虽然在描述性比较中,各组之间的心理弹性没有差异,但多因素分析表明,患有PID的孩子是影响父母心理弹性的负面因素。患有PID的孩子对父母的总体自我效能感也有统计学上的显著影响。实践启示:研究结果将指导以家庭为中心的护理干预计划,以提高PID儿童父母的心理弹性、一般自我效能感和精神幸福感。
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引用次数: 0
Prevalence and factors associated with metabolic syndrome risk in Indonesian adolescents and young adults: A cross-sectional study 印度尼西亚青少年和年轻人代谢综合征风险的患病率和相关因素:一项横断面研究。
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-03-01 Epub Date: 2026-01-21 DOI: 10.1016/j.pedn.2026.01.017
Oliva Suyen Ningsih , Ferry Efendi , Yulis Setiya Dewi , Fadhaa Aditya Kautsar Murti , Chong Mei Chan

Purpose

To determine the prevalence and factors associated with metabolic syndrome (MetS) in adolescents and young adults in Indonesia.

Design and methods

Data were obtained from the Indonesian Health Survey 2023, conducted across 38 provinces using a cross-sectional design and stratified sampling. This study analyzed 2992 adolescents and young adults aged 16–24 with complete data on all variables. Data analysis used binary logistic regression and is presented as unadjusted odds ratio (OR) and adjusted odds ratio (AOR), with each variable and its 95% confidence interval (CI) shown.

Results

The prevalence of MetS among adolescents and young adults in Indonesia is 13.36%, as reported in a study of 2992 individuals in this age group. In the adjusted analysis, high-risk consumption behavior categorized as frequent (AOR 9.88, 95% CI 2.57–37.88, P-value 0.001) and a body mass index (BMI) classified as obese (AOR 15.60, 95% CI 11.30–21.53, P-value 0.000) were significantly associated with higher odds of MetS in this population.

Conclusion

High-risk consumption behavior and obesity are the main risk factors significantly associated with MetS in adolescents and young adults in Indonesia.

Practical implications

Health services for adolescents and young adults should include education on the prevention of MetS, focusing on obesity prevention, maintaining a balanced diet, and reducing high-risk consumption behaviors. Furthermore, early detection of MetS in this population should be a top priority in health services.
目的:确定印度尼西亚青少年和年轻人代谢综合征(MetS)的患病率及其相关因素。设计和方法:数据来自印度尼西亚2023年健康调查,该调查在38个省进行,采用横断面设计和分层抽样。本研究分析了2992名16-24岁的青少年和年轻人,所有变量数据完整。数据分析采用二元逻辑回归,并以未调整优势比(OR)和调整优势比(AOR)表示,并显示每个变量及其95%置信区间(CI)。结果:根据一项对2992名印度尼西亚青少年和年轻人的研究报告,MetS在该年龄组中的患病率为13.36%。在调整后的分析中,高风险消费行为被归类为频繁(AOR 9.88, 95% CI 2.57-37.88, p值0.001)和身体质量指数(BMI)被归类为肥胖(AOR 15.60, 95% CI 11.30-21.53, p值0.000)与该人群中较高的MetS几率显著相关。结论:高危消费行为和肥胖是印尼青少年和青壮年发生MetS的主要危险因素。实际意义:对青少年和年轻人的卫生服务应包括预防MetS的教育,重点是预防肥胖,保持均衡饮食,减少高风险消费行为。此外,在这一人群中早期发现MetS应成为卫生服务的重中之重。
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引用次数: 0
From adherence to sustainability: Why parental well-being matters in autism interventions 从坚持到可持续性:为什么父母的幸福在自闭症干预中很重要。
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-03-01 Epub Date: 2026-02-04 DOI: 10.1016/j.pedn.2026.01.043
Ajeng Ayu Widiastuti , Mozes Kurniawan , Lanny Wijayaningsih , Maria Melita Rahardjo , Eunike Milasari Listyaningrum , Trivena Dyah Wijayanti
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引用次数: 0
Impact of telenursing-based family empowerment program on self-efficacy and treatment adherence in children with cystic fibrosis “telenursing and CF” 基于远程护理的家庭赋权计划对囊性纤维化儿童自我效能感和治疗依从性的影响“远程护理与CF”。
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-03-01 Epub Date: 2026-01-07 DOI: 10.1016/j.pedn.2025.12.028
Fatemeh Rameh , Azam Shirinabadi Farahani , Manijeh Nourian , Seyyed Ahmad Tabatabayi , Malihe Nasiri

Purpose

This study aimed to investigate the impact of a telenursing-based family empowerment program on  self-efficacy and treatment adherence in children with cystic fibrosis (CF).

Design and methods

This is a clinical trial study conducted on CF patients between 9 and 17 who were randomly assigned to two groups: an intervention group (received twelve-week telenursing training via the SendBig website and Skype messenger) or a control group (routine care). The child and caregiver demographic information questionnaire, Pediatric Rating of Chronic Illness Self-Efficacy, and Adherence to Treatment Questionnaire were evaluated before, immediately, and one month after the intervention. The results were analyzed using SPSS V26, considering a significant level.

Results

A total of 50 patients were recruited for this study (25 in each group). The results showed a significant difference in the mean total scores of self-efficacy and treatment adherence between the two groups, immediately and one month after the intervention (P-value < 0.001). In addition, intra-group comparisons showed that the impact of time was significant in the intervention group (P-value < 0.001).

Conclusion

Considering the improvement of self-efficacy and treatment adherence in the intervention group, it is recommended to use a telenursing-based family empowerment program for children with CF.

Implications to practice

The findings support the integration of telenursing-based family empowerment programs into routine nursing practice to promote long-term disease management and family-centered care.
目的:本研究旨在探讨以远程护理为基础的家庭赋权计划对囊性纤维化(CF)儿童自我效能感和治疗依从性的影响。设计和方法:这是一项针对9 - 17岁CF患者的临床试验研究,他们被随机分为两组:干预组(通过SendBig网站和Skype messenger接受为期12周的远程护理培训)或对照组(常规护理)。在干预前、干预后立即和干预后1个月分别对儿童及照顾者人口统计信息问卷、儿童慢性病自我效能评分和治疗依从性问卷进行评估。采用SPSS V26对结果进行分析,认为具有显著性水平。结果:本研究共招募50例患者(每组25例)。结果显示,两组患者在干预后即刻和1个月的自我效能感和治疗依从性平均总分均有显著差异(p值< 0.001)。此外,组内比较显示,干预组时间的影响显著(p值< 0.001)。结论:考虑到干预组患儿自我效能感和治疗依从性的提高,建议采用远程护理为基础的家庭赋权方案。实践意义:本研究结果支持将远程护理为基础的家庭赋权方案纳入常规护理实践,以促进长期疾病管理和以家庭为中心的护理。
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引用次数: 0
Lived experiences of adolescents with thalassemia major: A phenomenological study/ lived experiences in tm adolescents 重度地中海贫血青少年的生活经历:一项现象学研究/ tm青少年的生活经历
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-03-01 Epub Date: 2026-01-11 DOI: 10.1016/j.pedn.2026.01.009
Münevver Erkul , Zeynep Öztürk

Objective

This study explored the lived experiences and coping processes of adolescents diagnosed with Thalassemia Major (TM) to inform the development of patient-centered and individualized care strategies.

Methods

A qualitative phenomenological design was employed. Between April and June 2024, purposive sampling was used to recruit ten adolescents (12–18 years) from the Thalassemia Unit of a public hospital in Antalya, Türkiye. Semi-structured interviews were conducted until data saturation was achieved. Ethical approval was obtained (TBAEK-199). Sociodemographic data were summarized using SPSS 22.0 as frequencies and percentages. Interview transcripts were analyzed using Colaizzi's seven-step method. Trustworthiness was ensured through independent double-coding, audit trail maintenance, and member checking.

Results

Six main themes emerged: (1) Acceptance and normalization (integrating illness into daily life; reframing TM as manageable); (2) Impact on schooling (absences due to transfusions or surgeries; academic and emotional strain; facilitative role of teacher support); (3) Peer and societal responses (misinformation, stigma, strategic disclosure, and peer support); (4) Family support and sibling dynamics (parental support enhancing adherence; protective bonds and ambivalence); (5) Treatment adherence and transplant pathway (burden of chronic transfusion and chelation; hope and hesitation regarding hematopoietic stem cell transplantation; donor availability and risk perception); and (6) Psychological processes and coping (anxiety, fear of death, body-image concerns, and active coping strategies such as social support, humor, positive reappraisal, and medication adherence).

Conclusion

Adolescents with TM experience multidimensional challenges affecting their educational, social, psychological, and treatment-related lives. A holistic and developmentally sensitive approach is essential to support long-term adaptation and well-being.

Implications for practice

Healthcare professionals should integrate routine psychosocial screening and counseling into standard care, strengthen family-centered practices to support treatment adherence, and collaborate with schools to promote flexible attendance policies. Awareness initiatives targeting peers and educators may reduce stigma, while structured, age-appropriate counseling can support informed decision-making regarding long-term treatment and transplantation options.
目的:探讨重度地中海贫血(TM)青少年的生活经历和应对过程,为制定以患者为中心的个性化护理策略提供依据。方法:采用定性现象学设计。在2024年4月至6月期间,采用有目的抽样的方法,从土耳其安塔利亚一家公立医院的地中海贫血科招募了10名青少年(12-18岁)。进行半结构化访谈,直到达到数据饱和。获得伦理批准(TBAEK-199)。社会人口统计数据采用SPSS 22.0进行频率和百分比汇总。访谈记录使用Colaizzi的七步法进行分析。通过独立的双重编码、审计跟踪维护和成员检查来确保可信性。结果:出现了六个主要主题:(1)接受和正常化(将疾病融入日常生活;将TM重新定义为可管理的);(2)对学业的影响(因输血或手术而缺课;学业和情绪紧张;教师支持的促进作用);(3)同伴和社会反应(错误信息、耻辱、战略性披露和同伴支持);(4)家庭支持和兄弟姐妹动态(父母支持增强依从性、保护纽带和矛盾心理);(5)治疗依从性和移植途径(慢性输血和螯合负担;对造血干细胞移植的希望和犹豫;供体可获得性和风险认知);(6)心理过程和应对(焦虑、死亡恐惧、身体形象关注和积极应对策略,如社会支持、幽默、积极的重新评价和药物依从性)。结论:患有TM的青少年面临着多方面的挑战,影响着他们的教育、社会、心理和治疗相关的生活。要支持长期适应和福祉,就必须采取全面和对发展敏感的办法。对实践的启示:医疗保健专业人员应将常规的心理筛查和咨询纳入标准护理,加强以家庭为中心的实践以支持治疗依从性,并与学校合作促进灵活的出勤政策。针对同龄人和教育工作者的意识倡议可以减少耻辱感,而结构化的、适合年龄的咨询可以支持关于长期治疗和移植选择的知情决策。
{"title":"Lived experiences of adolescents with thalassemia major: A phenomenological study/ lived experiences in tm adolescents","authors":"Münevver Erkul ,&nbsp;Zeynep Öztürk","doi":"10.1016/j.pedn.2026.01.009","DOIUrl":"10.1016/j.pedn.2026.01.009","url":null,"abstract":"<div><h3>Objective</h3><div>This study explored the lived experiences and coping processes of adolescents diagnosed with Thalassemia Major (TM) to inform the development of patient-centered and individualized care strategies.</div></div><div><h3>Methods</h3><div>A qualitative phenomenological design was employed. Between April and June 2024, purposive sampling was used to recruit ten adolescents (12–18 years) from the Thalassemia Unit of a public hospital in Antalya, Türkiye. Semi-structured interviews were conducted until data saturation was achieved. Ethical approval was obtained (TBAEK-199). Sociodemographic data were summarized using SPSS 22.0 as frequencies and percentages. Interview transcripts were analyzed using Colaizzi's seven-step method. Trustworthiness was ensured through independent double-coding, audit trail maintenance, and member checking.</div></div><div><h3>Results</h3><div>Six main themes emerged: (1) Acceptance and normalization (integrating illness into daily life; reframing TM as manageable); (2) Impact on schooling (absences due to transfusions or surgeries; academic and emotional strain; facilitative role of teacher support); (3) Peer and societal responses (misinformation, stigma, strategic disclosure, and peer support); (4) Family support and sibling dynamics (parental support enhancing adherence; protective bonds and ambivalence); (5) Treatment adherence and transplant pathway (burden of chronic transfusion and chelation; hope and hesitation regarding hematopoietic stem cell transplantation; donor availability and risk perception); and (6) Psychological processes and coping (anxiety, fear of death, body-image concerns, and active coping strategies such as social support, humor, positive reappraisal, and medication adherence).</div></div><div><h3>Conclusion</h3><div>Adolescents with TM experience multidimensional challenges affecting their educational, social, psychological, and treatment-related lives. A holistic and developmentally sensitive approach is essential to support long-term adaptation and well-being.</div></div><div><h3>Implications for practice</h3><div>Healthcare professionals should integrate routine psychosocial screening and counseling into standard care, strengthen family-centered practices to support treatment adherence, and collaborate with schools to promote flexible attendance policies. Awareness initiatives targeting peers and educators may reduce stigma, while structured, age-appropriate counseling can support informed decision-making regarding long-term treatment and transplantation options.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 118-125"},"PeriodicalIF":2.3,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145953245","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effects of education program provided for healthcare professionals on their levels of knowledge and awareness about child abuse and neglect 为卫生保健专业人员提供的教育方案对他们关于虐待和忽视儿童的知识和意识水平的影响
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-03-01 Epub Date: 2026-01-30 DOI: 10.1016/j.pedn.2026.01.022
Tuba Geçdi , Derya Tanrıverdi

Background

Child abuse and neglect harm children's development and can lead to long-term mental health issues. Challenges such as underreporting and diagnostic difficulties make early detection harder. Healthcare professionals are essential in recognizing and reporting such cases, but lack of awareness is a major barrier.

Purpose

This study examined the impact of a structured training program on healthcare professionals' knowledge and awareness of child abuse and neglect.

Methods

A quasi-experimental pretest-posttest control group design was used. Ninety-five healthcare professionals from a city and a university hospital were included. Participants were assigned to experimental and control groups. Data were collected via a Personal Information Form and the Scale for Recognizing the Symptoms and Risks of Child Abuse and Neglect. The experimental group received five weekly 30-min face-to-face training sessions.

Results

Both groups initially had moderate knowledge and awareness. Pretest scores showed no significant differences (p > 0.05). Post-test results showed a statistically significant improvement in the experimental group's total knowledge and awareness scores related to the signs and risks of child abuse and neglect (p < 0.001). No significant change was observed in the control group (p > 0.05).

Conclusions

Structured training programs enhance healthcare professionals' knowledge and awareness of child abuse and neglect. Regular implementation and updates of such programs in healthcare institutions are recommended.

Implications to practice

This study demonstrates that structured training programmes increase healthcare professionals' knowledge and awareness of child abuse and neglect. Integrating evidence-based and regular programmes into in-service training can strengthen child protection practices by supporting early identification, appropriate reporting and effective intervention.
儿童虐待和忽视会损害儿童的发展,并可能导致长期的心理健康问题。漏报和诊断困难等挑战使得早期发现更加困难。医疗保健专业人员在识别和报告此类病例方面至关重要,但缺乏认识是一个主要障碍。目的本研究考察了结构化培训计划对医护人员虐待和忽视儿童的知识和意识的影响。方法采用准实验前测后测对照组设计。95名来自一个城市和一所大学医院的医疗保健专业人员被纳入研究。参与者被分为实验组和对照组。数据是通过个人信息表和识别儿童虐待和忽视的症状和风险量表收集的。实验组每周接受5次30分钟的面对面培训。结果两组患者最初均有中等程度的认知和意识。前测得分差异无统计学意义(p > 0.05)。测试后结果显示,实验组与儿童虐待和忽视的迹象和风险相关的总知识和意识得分在统计学上有显著改善(p < 0.001)。对照组无明显变化(p > 0.05)。结论有组织的培训方案提高了医护人员对虐待和忽视儿童的认识和意识。建议在医疗机构中定期实施和更新此类方案。对实践的启示本研究表明,有组织的培训方案提高了保健专业人员对虐待和忽视儿童的知识和意识。通过支持早期识别、适当报告和有效干预,将循证和定期规划纳入在职培训,可以加强儿童保护实践。
{"title":"The effects of education program provided for healthcare professionals on their levels of knowledge and awareness about child abuse and neglect","authors":"Tuba Geçdi ,&nbsp;Derya Tanrıverdi","doi":"10.1016/j.pedn.2026.01.022","DOIUrl":"10.1016/j.pedn.2026.01.022","url":null,"abstract":"<div><h3>Background</h3><div>Child abuse and neglect harm children's development and can lead to long-term mental health issues. Challenges such as underreporting and diagnostic difficulties make early detection harder. Healthcare professionals are essential in recognizing and reporting such cases, but lack of awareness is a major barrier.</div></div><div><h3>Purpose</h3><div>This study examined the impact of a structured training program on healthcare professionals' knowledge and awareness of child abuse and neglect.</div></div><div><h3>Methods</h3><div>A quasi-experimental pretest-posttest control group design was used. Ninety-five healthcare professionals from a city and a university hospital were included. Participants were assigned to experimental and control groups. Data were collected via a Personal Information Form and the Scale for Recognizing the Symptoms and Risks of Child Abuse and Neglect. The experimental group received five weekly 30-min face-to-face training sessions.</div></div><div><h3>Results</h3><div>Both groups initially had moderate knowledge and awareness. Pretest scores showed no significant differences (<em>p</em> &gt; 0.05). Post-test results showed a statistically significant improvement in the experimental group's total knowledge and awareness scores related to the signs and risks of child abuse and neglect (<em>p</em> &lt; 0.001). No significant change was observed in the control group (<em>p</em> &gt; 0.05).</div></div><div><h3>Conclusions</h3><div>Structured training programs enhance healthcare professionals' knowledge and awareness of child abuse and neglect. Regular implementation and updates of such programs in healthcare institutions are recommended.</div></div><div><h3>Implications to practice</h3><div>This study demonstrates that structured training programmes increase healthcare professionals' knowledge and awareness of child abuse and neglect. Integrating evidence-based and regular programmes into in-service training can strengthen child protection practices by supporting early identification, appropriate reporting and effective intervention.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 330-337"},"PeriodicalIF":2.3,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146078315","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Virtual reality for pediatric procedural pain: An umbrella review and re-analysis of meta-analytic evidence 儿童程序性疼痛的虚拟现实:综合回顾和荟萃分析证据的再分析
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-03-01 Epub Date: 2026-01-29 DOI: 10.1016/j.pedn.2026.01.026
Çiğdem GÖK , Pelin KARATAŞ

Background

Needle-related medical procedures are among the most common sources of pain, fear, and anxiety in children. Negative procedural experiences may lead to behavioral distress, avoidance of future care, and reduced treatment compliance. Virtual reality (VR) has recently emerged as a promising non-pharmacological intervention that provides multisensory distraction, thereby reducing the perception of pain. However, inconsistencies across existing meta-analyses limit the generalizability of current evidence.

Aim

This umbrella review aimed to synthesize and re-analyze existing meta-analytic evidence on the effectiveness of VR in reducing pain and anxiety during needle-related procedures in children and adolescents.

Methods

A systematic search was performed across PubMed, Cochrane Database of Systematic Reviews, and Web of Science up to September 2025. Only meta-analyses of randomized controlled trials (RCTs) examining VR interventions for pediatric procedural pain were included. Two independent reviewers conducted study selection and data extraction. Methodological quality was assessed using AMSTAR 2 criteria. Heterogeneity (I2), standardized mean differences (SMD), and publication bias (Egger / Begg tests) were recorded.

Results

Six meta-analyses (n = 1450 children) met the inclusion criteria. VR interventions demonstrated significant reductions in pain across self-, parent-, and observer-reported measures (SMD range: −0.5 to −3.5). The strongest effects were observed for self-reported pain, indicating high clinical relevance. Despite high heterogeneity (I2 = 81–100%), all analyses showed consistent effect directions favoring VR. Methodological quality was moderate to moderate-high, with limited protocol registration and publication bias analysis. Evidence overlap between studies was substantial (CCA = 15.8%).

Conclusion

VR significantly reduces needle-related pain in pediatric patients and demonstrates moderate-to-high reliability across studies. Despite methodological heterogeneity, findings strongly support integrating VR as a complementary tool in pediatric pain management.

Implications for practice

Nurses and clinicians can incorporate immersive VR interventions into routine pediatric care to minimize pain and anxiety during short invasive procedures, improving patient comfort and cooperation.
背景:与针头相关的医疗程序是儿童疼痛、恐惧和焦虑的最常见来源之一。消极的程序经验可能导致行为困扰,避免未来护理,降低治疗依从性。虚拟现实(VR)最近作为一种有前途的非药物干预手段出现,它提供了多感官分心,从而减少了对疼痛的感知。然而,现有荟萃分析的不一致性限制了现有证据的可推广性。目的本综述旨在综合和重新分析现有的关于VR在减少儿童和青少年针相关手术中疼痛和焦虑的有效性的meta分析证据。方法系统检索截至2025年9月的PubMed、Cochrane系统评价数据库和Web of Science。仅纳入了随机对照试验(rct)的荟萃分析,这些试验检查了儿童程序性疼痛的VR干预措施。两名独立审稿人进行了研究选择和数据提取。采用AMSTAR 2标准评估方法学质量。记录异质性(I2)、标准化平均差异(SMD)和发表偏倚(Egger / Begg检验)。结果6项荟萃分析(n = 1450名儿童)符合纳入标准。VR干预在自我、父母和观察者报告的测量中显示出显著的疼痛减轻(SMD范围:- 0.5至- 3.5)。在自我报告的疼痛中观察到最强的效果,表明具有很高的临床相关性。尽管异质性很高(I2 = 81-100%),但所有分析都显示了一致的有利于VR的效应方向。方法学质量为中等至中高,方案注册和发表偏倚分析有限。研究之间的证据重叠很大(CCA = 15.8%)。结论vr可显著减少儿科患者的针相关疼痛,并在各研究中显示出中至高的可靠性。尽管方法存在异质性,但研究结果强烈支持将VR作为儿科疼痛管理的补充工具。对实践的影响护士和临床医生可以将沉浸式虚拟现实干预纳入常规儿科护理,以尽量减少短期侵入性手术期间的疼痛和焦虑,提高患者的舒适度和合作。
{"title":"Virtual reality for pediatric procedural pain: An umbrella review and re-analysis of meta-analytic evidence","authors":"Çiğdem GÖK ,&nbsp;Pelin KARATAŞ","doi":"10.1016/j.pedn.2026.01.026","DOIUrl":"10.1016/j.pedn.2026.01.026","url":null,"abstract":"<div><h3>Background</h3><div>Needle-related medical procedures are among the most common sources of pain, fear, and anxiety in children. Negative procedural experiences may lead to behavioral distress, avoidance of future care, and reduced treatment compliance. Virtual reality (VR) has recently emerged as a promising non-pharmacological intervention that provides multisensory distraction, thereby reducing the perception of pain. However, inconsistencies across existing meta-analyses limit the generalizability of current evidence.</div></div><div><h3>Aim</h3><div>This umbrella review aimed to synthesize and re-analyze existing meta-analytic evidence on the effectiveness of VR in reducing pain and anxiety during needle-related procedures in children and adolescents.</div></div><div><h3>Methods</h3><div>A systematic search was performed across PubMed, Cochrane Database of Systematic Reviews, and Web of Science up to September 2025. Only meta-analyses of randomized controlled trials (RCTs) examining VR interventions for pediatric procedural pain were included. Two independent reviewers conducted study selection and data extraction. Methodological quality was assessed using AMSTAR 2 criteria. Heterogeneity (I<sup>2</sup>), standardized mean differences (SMD), and publication bias (Egger / Begg tests) were recorded.</div></div><div><h3>Results</h3><div>Six meta-analyses (<em>n</em> = 1450 children) met the inclusion criteria. VR interventions demonstrated significant reductions in pain across self-, parent-, and observer-reported measures (SMD range: −0.5 to −3.5). The strongest effects were observed for self-reported pain, indicating high clinical relevance. Despite high heterogeneity (I<sup>2</sup> = 81–100%), all analyses showed consistent effect directions favoring VR. Methodological quality was moderate to moderate-high, with limited protocol registration and publication bias analysis. Evidence overlap between studies was substantial (CCA = 15.8%).</div></div><div><h3>Conclusion</h3><div>VR significantly reduces needle-related pain in pediatric patients and demonstrates moderate-to-high reliability across studies. Despite methodological heterogeneity, findings strongly support integrating VR as a complementary tool in pediatric pain management.</div></div><div><h3>Implications for practice</h3><div>Nurses and clinicians can incorporate immersive VR interventions into routine pediatric care to minimize pain and anxiety during short invasive procedures, improving patient comfort and cooperation.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 297-305"},"PeriodicalIF":2.3,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146078433","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Journeying through the landscape of home-based pediatric cancer care: Needs and expectations from the perspectives of children and parents 以家庭为基础的儿科癌症护理:从儿童和家长的角度的需求和期望。
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-03-01 Epub Date: 2026-01-05 DOI: 10.1016/j.pedn.2025.12.029
Hazal Ozdemir Koyu PhD, RN, Ebru Kilicarslan PhD, RN

Purpose

Children with cancer and their parents face multidimensional demands in home-based pediatric cancer care, spanning informational, practical, and psychosocial domains, often requiring acute decision-making at home. However, qualitative evidence integrating both children's and parents' perspectives remains limited. This study aimed to explore and understand the needs, expectations, and experiences of children with cancer and their parents during home-based care.

Methods

A qualitative dyadic child–parent study was conducted in a pediatric oncology ward of a university hospital. Purposeful sampling continued until thematic saturation. Data were collected using a researcher-developed Characteristics Information Form and semi-structured interviews informed by Empowerment Theory. Reflexive thematic analysis guided by theoretical frameworks was used. Ethical approval was obtained, and trustworthiness was ensured through strategies addressing credibility, dependability, transferability, and confirmability.

Results

Eighteen children and eighteen parents participated. Two overarching themes emerged: (1) Navigating Challenges in Home-Based Pediatric Cancer Care, encompassing physical, informational, clinical, emotional, and psychosocial difficulties; and (2) The Lighthouse of Empowerment: Guiding Support, highlighting the need for tailored, structured support mechanisms, including home-care education, symptom management guidance, coordinated communication pathways, digital tools, psychological support modules, and clear emergency roadmaps.

Conclusion

The study reveals complex challenges and empowerment needs of children with cancer and their parents during home-based care. Findings emphasize the importance of family-centered and child-focused, empowerment-oriented, and technology-supported approaches to enhance home-care competence and psychosocial well-being.

Implications for practice

Pediatric oncology nurses can enhance home-based care by providing structured education, individualized symptom guidance, empowerment-focused interventions, digital tools, clear communication, and emergency planning, thereby improving family confidence, continuity of care, and psychosocial outcomes.
目的:在以家庭为基础的儿童癌症护理中,癌症儿童及其父母面临着多方面的需求,包括信息、实践和心理社会领域,通常需要在家中做出敏锐的决策。然而,结合儿童和家长观点的定性证据仍然有限。本研究旨在探讨和了解癌症儿童及其父母在家庭护理中的需求、期望和经历。方法:在某大学附属医院儿科肿瘤病房进行定性双元亲子研究。有目的的采样一直持续到主题饱和。数据收集使用研究人员开发的特征信息表和半结构化访谈,以授权理论为指导。采用了以理论框架为指导的反身性专题分析。获得伦理批准,并通过解决可信性、可靠性、可转移性和可确认性的策略确保可信性。结果:18名儿童和18名家长参与。出现了两个主要主题:(1)以家庭为基础的儿科癌症护理面临的挑战,包括身体、信息、临床、情感和社会心理方面的困难;(2)赋权灯塔:指导支持,强调需要量身定制的结构化支持机制,包括家庭护理教育、症状管理指导、协调沟通途径、数字工具、心理支持模块和明确的应急路线图。结论:该研究揭示了癌症儿童及其父母在家庭护理中面临的复杂挑战和赋权需求。研究结果强调了以家庭为中心、以儿童为中心、以赋权为导向和技术支持的方法对提高家庭护理能力和社会心理健康的重要性。对实践的启示:儿科肿瘤护士可以通过提供结构化的教育、个性化的症状指导、以赋权为重点的干预措施、数字工具、清晰的沟通和应急计划来加强家庭护理,从而提高家庭信心、护理的连续性和心理社会结果。
{"title":"Journeying through the landscape of home-based pediatric cancer care: Needs and expectations from the perspectives of children and parents","authors":"Hazal Ozdemir Koyu PhD, RN,&nbsp;Ebru Kilicarslan PhD, RN","doi":"10.1016/j.pedn.2025.12.029","DOIUrl":"10.1016/j.pedn.2025.12.029","url":null,"abstract":"<div><h3>Purpose</h3><div>Children with cancer and their parents face multidimensional demands in home-based pediatric cancer care, spanning informational, practical, and psychosocial domains, often requiring acute decision-making at home. However, qualitative evidence integrating both children's and parents' perspectives remains limited. This study aimed to explore and understand the needs, expectations, and experiences of children with cancer and their parents during home-based care.</div></div><div><h3>Methods</h3><div>A qualitative dyadic child–parent study was conducted in a pediatric oncology ward of a university hospital. Purposeful sampling continued until thematic saturation. Data were collected using a researcher-developed Characteristics Information Form and semi-structured interviews informed by Empowerment Theory. Reflexive thematic analysis guided by theoretical frameworks was used. Ethical approval was obtained, and trustworthiness was ensured through strategies addressing credibility, dependability, transferability, and confirmability.</div></div><div><h3>Results</h3><div>Eighteen children and eighteen parents participated. Two overarching themes emerged: (1) Navigating Challenges in Home-Based Pediatric Cancer Care, encompassing physical, informational, clinical, emotional, and psychosocial difficulties; and (2) The Lighthouse of Empowerment: Guiding Support, highlighting the need for tailored, structured support mechanisms, including home-care education, symptom management guidance, coordinated communication pathways, digital tools, psychological support modules, and clear emergency roadmaps.</div></div><div><h3>Conclusion</h3><div>The study reveals complex challenges and empowerment needs of children with cancer and their parents during home-based care. Findings emphasize the importance of family-centered and child-focused, empowerment-oriented, and technology-supported approaches to enhance home-care competence and psychosocial well-being.</div></div><div><h3>Implications for practice</h3><div>Pediatric oncology nurses can enhance home-based care by providing structured education, individualized symptom guidance, empowerment-focused interventions, digital tools, clear communication, and emergency planning, thereby improving family confidence, continuity of care, and psychosocial outcomes.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 11-19"},"PeriodicalIF":2.3,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145913409","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effect of tele-nursing application on metabolic control, self-efficacy, quality of life and anxiety level in adolescents with Type 1 diabetes: A randomized controlled trial 远程护理应用对青少年1型糖尿病患者代谢控制、自我效能感、生活质量和焦虑水平的影响:一项随机对照试验
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-03-01 Epub Date: 2026-02-06 DOI: 10.1016/j.pedn.2026.01.042
Emel Avçin PhD, RN (Corresponding Author, Assistant Professor) , Ayfer Açıkgöz PhD, RN (Co-Author, Professor)

Objective

The aim of the study was to assess the influence of using tele-nursing application on metabolic control, self-efficacy, quality of life and anxiety in adolescents with Type 1 Diabetes Mellitus (T1DM).

Methods

This is a randomized control intervention study. The study included 67 adolescents aged 12–18 years with T1DM who were monitored at the Pediatric Endocrinology Outpatient Clinic. On enrolment, participant in all conditions received face-to-face training provided by the researchers. Thereafter, for 6 months educative and follow-up telephone calls were conducted in the intervention group to the adolescents and their parents but no intervention was made towards the control group. The study received approval (Decision no: 2020-14) and was registered in the registration number (NCT05211479).

Results

At the 6-month follow-up, the self-efficacy, quality of life, HbA1c, and anxiety levels of the adolescents in the intervention group were found to be better than those in the control group (p <0.05). During the study period, no significant difference was found in HbA1c values, quality of life, self-efficacy, and anxiety levels over time in the control group (p > 0.05).

Conclusion

Diabetes education and follow-up with tele-nursing improved self-efficacy and quality of life, as well as decreased HbA 1c and anxiety among adolescents with T1DM.

Implications for practice

Tele-nursing is an effective and accessible approach for achieving metabolic control, improving self-efficacy and quality of life, and reducing anxiety levels in adolescents with Type 1 Diabetes Mellitus (T1DM). Remote follow-up enables the adolescent to receive continuous support regarding diabetes management without disrupting their daily life.
目的:探讨远程护理应用对青少年1型糖尿病(T1DM)患者代谢控制、自我效能感、生活质量和焦虑的影响。方法:随机对照干预研究。该研究包括67名12-18岁的T1DM青少年,他们在儿科内分泌门诊接受监测。在入组时,所有条件下的参与者都接受了研究人员提供的面对面培训。随后,干预组对青少年及其父母进行了为期6个月的电话教育和随访,但未对对照组进行干预。该研究获得批准(决定号:2020-14),注册注册号(NCT05211479)。结果:随访6个月时,干预组青少年自我效能感、生活质量、糖化血红蛋白、焦虑水平均优于对照组(p < 0.05)。结论:糖尿病教育和远程护理随访提高了青少年T1DM患者的自我效能感和生活质量,降低了HbA 1c和焦虑。实践意义:远程护理是实现1型糖尿病(T1DM)青少年代谢控制、提高自我效能和生活质量、降低焦虑水平的有效和可及的方法。远程随访使青少年能够在不干扰其日常生活的情况下获得有关糖尿病管理的持续支持。
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引用次数: 0
Management of Type 1 diabetes in adolescents: Effectiveness of the remote personalized system of instruction model 青少年1型糖尿病的管理:远程个性化系统教学模式的有效性
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2026-03-01 Epub Date: 2026-01-16 DOI: 10.1016/j.pedn.2026.01.012
Nebahat Bora Güneş , Melike Taşdelen Baş , Semra Çetinkaya , Nurdan Yıldırım

Background and aim

Type 1 Diabetes Mellitus (T1DM) is a common chronic condition in childhood and requires appropriate education and self-management skills. Structured education is key to improving glycemic stability and empowering adolescents. The Personalized System of Instruction (PSI), though effective in other fields, is underused in diabetes education. This study evaluated the impact of PSI-based structured ongoing education program among adolescents living with T1DM and with glycemic instability.

Methods

A randomized controlled trial with a pre-test/post-test comparison group design was conducted. Participants were adolescents aged 12–18 years with glycemic instability (glycated hemoglobin [HbA1c] ≥7%) and at least one weekly hypo‐hyperglycemic episode. Stratified randomization ensured group balance. The study included 60 adolescents with T1DM, evenly split between intervention and control groups. Validated instruments were used to assess cognitive knowledge, self-efficacy, glycemic episode frequency, and HbA1c levels. The intervention group received structured education based on the PSI model, while the comparison group received standard diabetes education.

Results

The intervention group showed significantly greater improvements than the comparison group in all outcomes. From the 3rd month, cognitive knowledge and self-efficacy increased, while HbA1c levels and glycemic episode frequency declined. Group-time interaction was significant, with sustained improvement in the PSI group up to 6 months. η2 values indicated moderate to large effect sizes.

Conclusion

The PSI model is an effective strategy to enhance diabetes self-management and glycemic stability in adolescents with T1DM. Its structured, learner-centered design offers a promising alternative to traditional education methods in this population.

Implications to practice

The findings suggest that the PSI framework can be effectively integrated into pediatric nursing practice to support individualized, learner-centered diabetes self-management education for adolescents with T1DM, enhance skill acquisition and self-efficacy, and facilitate ongoing educational support within both in-person and digital care settings.
背景和目的1型糖尿病(T1DM)是儿童期常见的慢性疾病,需要适当的教育和自我管理技能。有组织的教育是改善血糖稳定和增强青少年能力的关键。个性化教学系统(PSI)虽然在其他领域有效,但在糖尿病教育中应用不足。本研究评估了基于psi的结构化持续教育计划对患有T1DM和血糖不稳定的青少年的影响。方法采用随机对照试验,采用前测/后测组设计。参与者为12-18岁的青少年,血糖不稳定(糖化血红蛋白[HbA1c]≥7%),每周至少发生一次低血糖发作。分层随机化确保组间平衡。该研究包括60名患有1型糖尿病的青少年,平均分为干预组和对照组。使用经过验证的工具评估认知知识、自我效能、血糖发作频率和HbA1c水平。干预组接受基于PSI模型的结构化教育,对照组接受标准糖尿病教育。结果干预组在各项指标上均明显优于对照组。从第3个月开始,认知知识和自我效能感增加,HbA1c水平和血糖发作频率下降。小组时间的相互作用是显著的,PSI组持续改善到6个月。η2值表明中等到较大的效应量。结论PSI模式是提高青少年T1DM患者糖尿病自我管理和血糖稳定的有效策略。它的结构化、以学习者为中心的设计为这一群体提供了传统教育方法的一个有希望的替代方案。研究结果表明,PSI框架可以有效地整合到儿科护理实践中,以支持个性化的、以学习者为中心的T1DM青少年糖尿病自我管理教育,增强技能习得和自我效能感,并促进面对面和数字化护理环境中持续的教育支持。
{"title":"Management of Type 1 diabetes in adolescents: Effectiveness of the remote personalized system of instruction model","authors":"Nebahat Bora Güneş ,&nbsp;Melike Taşdelen Baş ,&nbsp;Semra Çetinkaya ,&nbsp;Nurdan Yıldırım","doi":"10.1016/j.pedn.2026.01.012","DOIUrl":"10.1016/j.pedn.2026.01.012","url":null,"abstract":"<div><h3>Background and aim</h3><div>Type 1 Diabetes Mellitus (T1DM) is a common chronic condition in childhood and requires appropriate education and self-management skills. Structured education is key to improving glycemic stability and empowering adolescents. The Personalized System of Instruction (PSI), though effective in other fields, is underused in diabetes education. This study evaluated the impact of PSI-based structured ongoing education program among adolescents living with T1DM and with glycemic instability.</div></div><div><h3>Methods</h3><div>A randomized controlled trial with a pre-test/post-test comparison group design was conducted. Participants were adolescents aged 12–18 years with glycemic instability (glycated hemoglobin [HbA1c] ≥7%) and at least one weekly hypo‐hyperglycemic episode. Stratified randomization ensured group balance. The study included 60 adolescents with T1DM, evenly split between intervention and control groups. Validated instruments were used to assess cognitive knowledge, self-efficacy, glycemic episode frequency, and HbA1c levels. The intervention group received structured education based on the PSI model, while the comparison group received standard diabetes education.</div></div><div><h3>Results</h3><div>The intervention group showed significantly greater improvements than the comparison group in all outcomes. From the 3rd month, cognitive knowledge and self-efficacy increased, while HbA1c levels and glycemic episode frequency declined. Group-time interaction was significant, with sustained improvement in the PSI group up to 6 months. η<sup>2</sup> values indicated moderate to large effect sizes.</div></div><div><h3>Conclusion</h3><div>The PSI model is an effective strategy to enhance diabetes self-management and glycemic stability in adolescents with T1DM. Its structured, learner-centered design offers a promising alternative to traditional education methods in this population.</div></div><div><h3>Implications to practice</h3><div>The findings suggest that the PSI framework can be effectively integrated into pediatric nursing practice to support individualized, learner-centered diabetes self-management education for adolescents with T1DM, enhance skill acquisition and self-efficacy, and facilitate ongoing educational support within both in-person and digital care settings.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 181-189"},"PeriodicalIF":2.3,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145979323","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Journal of Pediatric Nursing-Nursing Care of Children & Families
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