Journal of Pediatric Nursing-Nursing Care of Children & Families最新文献

Purpose: Period poverty is an important public health problem that negatively affects genital hygiene behaviors. This study was conducted to examine period poverty and genital hygiene behaviors in adolescents.

Design and methods: This cross-sectional study was conducted with 397 adolescents between May 1, 2023 and November 30, 2023 by using a "Personal Information Form," a " Menstrual Cycle Characteristics Form," a "Period Poverty Characteristics Form," and the "Genital Hygiene Behavior Scale." The data were analyzed using SPSS 27.0 program and according to the results of descriptive statistical methods and normality analysis, t-test, Mann Whitney U test and Kruskal Wallis H test analysis were used in independent groups.

Results: The total mean Adolescents' Genital Hygiene Behavior Scale score was 86.58 ± 10.03. The genital hygiene behavior scale score was low in adolescents who had financial difficulties purchasing hygiene products, whose frequency of changing hygiene products was negatively affected by economic reasons, who were worried about running out of hygiene products during the last period, and who thought that menstrual education was inadequate (p < 0.001).

Conclusion: Our results indicated that period poverty in adolescents negatively affected their genital hygiene behaviors.

Practical implications: It is recommended that adolescents be addressed within the scope of social policies for better access to affordable menstrual products.

Purpose: The purpose of this feasibility study was to determine the effectiveness of an interprofessional led low-fidelity simulation program over three timepoints on maternal caregivers' perceived stress, sense of competence and discharge readiness for care of critical congenital heart disease (CCHD) infants requiring neonatal cardiac surgery.

Design and methods: The Perceived Stress Scale (PSS) was administered to simulation and non-intervention groups at three timepoints: prenatal period, Cardiac Acute Care Unit (CACU) transfer, and rooming-in. Parental Sense of Competence (PSOC) was measured at timepoint two and three, and Readiness for Hospital Discharge (RDHS) was measured at timepoint three for the simulation group. A linear mixed model was used to examine PSS and PSOC scores over time.

Results: Of the thirty-three maternal caregivers, twelve were in the simulation group and twenty-one were in the non-intervention group. In the simulation group, the odds of having moderate-high stress were significantly lower at rooming-in compared to the prenatal period. From timepoint two to rooming-in, there was a positive change in PSOC scores. RDHS scores represented good readiness for discharge.

Conclusion: Findings suggest that simulation may improve maternal caregiver stress from prenatal CCHD diagnosis to discharge home after cardiac surgery. Future work should include random treatment assignment to assess causal relationships.

Practice implications: Infants with CCHD require extensive postoperative recovery and specialized home care. Maternal caregivers of critically ill CCHD neonates are at increased risk for stress. Results from this study suggest engagement with nurses and interdisciplinary team during the prenatal period may reduce caregiver stress.

Purpose: The process of caregivers learning to implement clean intermittent catheterization (CIC) affects both children and caregivers negatively. The aim of this study was to examine the experiences of caregivers performing CIC on their children with spina bifida (SB).

Design and methods: This study was conducted with a qualitative design between June 5 and September 25, 2022, with the caregivers of 17 children. The data were collected using a semi-structured questionnaire and analyzed using a thematic analysis technique. The COREQ guidelines were followed in the study.

Results: The data were grouped under fourteen sub-themes: "not knowing CIC, having knowledge about CIC, positive and supportive, negative and compelling, family support, health personnel support, loneliness, sharing responsibility, taking on the role of caregiver, satisfaction, sadness, indecisiveness, limitation of social life, change in social life routine". Caregivers had both positive and negative experiences in this period.

Conclusion: Caregivers face various challenges during the implementation of CIC for children with SB. The results reveal the importance of identifying the performance of caregivers. Nurses who are aware of the difficulties faced by caregivers in this period can be actively involved in personalized care-oriented health education, counseling, and support for caregivers.

Implications for clinical practice: Failure to provide adequate support to caregivers during the CIC application process causes both children and caregivers to be negatively affected in this process. For this reason, protocols or guidelines should be created by nurses in order to reduce the negative experiences of caregivers who apply CIC to their children.

Objectives: To explore the lived experiences of Jordanian adolescents with type 1 diabetes mellitus (T1DM) and identify their specific needs.

Methods: Qualitative interviews were conducted with 10 Jordanian adolescents. Thematic analysis was used to identify key themes.

Results: Three main themes emerged: (1) Living with diabetes as a constant struggle, including emotional turbulence, social withdrawal, and difficulty with treatment regimens; (2) Restoring balance in life through social support, following treatment protocols, and accepting the disease; and (3) Adolescents' needs for a better environment, including improved knowledge, resources, and social integration.

Conclusions: Adolescents with T1DM face significant challenges, including emotional distress, social isolation, and difficulties managing their disease. This study provides valuable insights into their experiences and highlights the importance of comprehensive support.

Practice implications: To effectively support adolescents with T1DM, healthcare providers and educators should focus on providing emotional support, social support, and practical assistance. Additionally, improving knowledge and awareness about T1DM among adolescents and their families is crucial, as well as increasing access to resources that can help them manage their disease and live fulfilling lives.

Objective: This study aims to analyze the concept of Child-friendly Healthcare (CFH) using Walker and Avant's conceptual analysis framework to clarify its meaning, attributes, and implications for clinical practice.

Method: The study employed Walker and Avant's conceptual analysis method, which involves a systematic process comprising concept selection, setting objectives, exploring potential uses, defining attributes, constructing a model case, identifying contrary cases, determining antecedents and consequences, and examining empirical referents. A scoping review was conducted across multiple sources, including online dictionaries, scientific databases, and grey literature, with a focus on literature relevant to CFH.

Result: A total of 37 articles were reviewed, revealing diverse definitions and interpretations of CFH across various contexts. The concept was defined by five key attributes: (1) child interests-prioritized quality services, (2) child-friendly environments and spaces, (3) social interaction, (4) child participation, and (5) development facilitation. The study also identified the antecedents and consequences of CFH, developed model and contrary cases, and examined empirical referents to offer a comprehensive understanding of the concept.

Conclusion: This analysis effectively clarified the concept of CFH, highlighting its core attributes and providing valuable insights for clinical nursing practice. The findings suggest that CFH can be used as a framework to guide child-centered healthcare practices, thereby enhancing the quality of care provided to pediatric patients.

Implications: Conducting a concept analysis of CFH can significantly contribute to improving patient health outcomes, supporting institutional development, and fostering future research and practical applications in child healthcare settings.

Purpose: To explain the care experiences and views of pediatric nurses for generation alpha based on Watson's Theory of Human Caring.

Methods: A descriptive phenomenological design. The data were collected between January 2022 and April 2022 from purposively selected with maximum variation nurses in a pediatric clinic at a hospital. The study adhered to the Consolidated criteria for reporting qualitative research (COREQ) guidelines. The data were collected from 14 nurses using individual in-depth interviews, a personal information form, a semi-structured interview form, and observation notes, and analyzed using Giorgi's five stages based on the descriptive phenomenological method.

Results: Nurses' views and care experiences for generation alpha were explained under the 3 main themes; facilitating curative care behaviors (first theme), barriers to curative care behaviors (second theme), and maintaining ideal authentic care (third theme), and 7 sub-themes.

Conclusion: Based on Human Caring, this study revealed novel, and powerful information about establishing and maintaining the caring relationship between nurses and the alpha generation. It is recommended that nurses take the theory of human care as a guide, raise awareness about this theory, and receive training while caring for generation alpha.

Practice implications: The knowledge gained through this study can be used to shape nursing care for alpha children, develop curative care behaviors, maintain care, and plan relevant training.

Purpose: Because autistic children may face difficulties living independently, considering their caregivers' quality of life (QoL) is crucial. However, few studies have examined the pathways through which the severity of autism spectrum disorder (ASD) affects caregivers. Based on the stress process model, this study examined a hypothesized model of how ASD severity affects caregivers' QoL, both directly and indirectly, through coping strategies, family functioning, and perceived social support.

Design and methods: This cross-sectional study included 392 caregivers of autistic children in Saudi Arabia. Structured interviews were conducted between April and July 2023. The data were collected from caregivers who visited the developmental and behavioral disorders clinic, daycare centers, and schools. Descriptive and correlational analyses were conducted to describe the study variables and their association with caregivers' QoL. Structural equation modeling was used to test the hypothesized model.

Results: The results showed that the hypothesized model fit the data. Maladaptive coping strategies (β = -0.039, P < 0.05), family functioning (β = -0.110, P < 0.05), and perceived social support (β = -0.182, P < 0.05) partially mediated the association between ASD severity and caregivers' QoL.

Conclusion and implications: Our findings underscore the importance of tailoring interventions that focus on QoL for caregivers of autistic children, encouraging adaptive coping strategies, improving family functioning, and enhancing perceptions of social support.