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The HES-code and the data protection during COVID-19 pandemic in Turkey 土耳其COVID-19大流行期间的hs代码和数据保护
IF 0.4 4区 哲学 Pub Date : 2021-10-07 DOI: 10.12681/bioeth.28163
Sabah Mine Cangil
Mobile applications are a beneficial tool to fight the coronavirus. With the mobile tracing applications, it became easier to cut the chain of transmission of the virus and reduce the number of daily cases. Many countries developed their applications and made them available to their citizens. While using these applications, it is necessary to protect the fundamental rights and freedoms of the individual. This frequent processing of individuals' health data has created legal problems regarding the protection of personal data. The purpose of this paper is to present a study on the Turkish Covid-19 tracing application “Hayat Eve Sığar-HES” and the legal issues behind the application. 
移动应用程序是对抗冠状病毒的有益工具。有了移动追踪应用程序,就更容易切断病毒的传播链,减少每天的病例数。许多国家开发了自己的应用程序,并向本国公民开放。在使用这些应用程序时,有必要保护个人的基本权利和自由。这种对个人健康数据的频繁处理造成了保护个人数据方面的法律问题。本文旨在对土耳其新冠病毒追踪应用“Hayat Eve Sığar-HES”及其背后的法律问题进行研究。
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引用次数: 1
Review of the current and post-Brexit UK legal framework on the regulation of genetic technologies 审查当前和脱欧后的英国基因技术监管法律框架
IF 0.4 4区 哲学 Pub Date : 2021-10-07 DOI: 10.12681/bioeth.28152
Adiba Firmansyah
The launch of a nationwide consultation in January 2021 by the UK Department for the Environment, Food and Rural Affairs (Defra) on the regulation of genetic technologies has been used as an opportunity by the UK Government to gauge public and scientific opinion on the applications of gene editing in agriculture and aquaculture. In particular, the consultation sought to consider the controversial question of whether gene editing (GE) should be subject to the same regulations as genetically modified organisms (GMOs). The distinction between GE and GMO products, as well as between the legal regulations governing them, are highly important: currently, the UK still follows the EU’s restrictive approach, whereby gene editing is regulated in the same way as GMOs. However, in light of the UK’s departure from the EU, the UK government seems willing to reconsider this approach and adopt a new regulatory framework characterised by less stringent controls. Accordingly, this review paper examines the current legal framework on gene editing and GMOs in the UK and EU, as well as in other relevant jurisdictions, before then examining the Defra consultation in light of the mixed responses to it from both the scientific community and the general public. The paper concludes with a number of considerations that should inform any proposed post-Brexit reform of the framework that allows for the correct balance to be struck between scientific development, food security, human health, and the environment. 
英国环境、食品和农村事务部(Defra)于2021年1月启动了一项关于基因技术监管的全国性磋商,英国政府借此机会评估公众和科学界对基因编辑在农业和水产养殖中的应用的意见。特别是,咨询寻求考虑基因编辑(GE)是否应该受到与转基因生物(GMOs)相同的监管这一有争议的问题。转基因和转基因产品之间的区别,以及管理它们的法律法规之间的区别,是非常重要的:目前,英国仍然遵循欧盟的限制性方法,即基因编辑与转基因生物一样受到监管。然而,鉴于英国退出欧盟,英国政府似乎愿意重新考虑这种做法,并采用一种新的监管框架,其特点是控制不那么严格。因此,本综述研究了英国和欧盟以及其他相关司法管辖区关于基因编辑和转基因生物的现行法律框架,然后根据科学界和公众对该咨询的不同反应对Defra咨询进行了研究。该论文总结了一些考虑因素,这些考虑因素应该为英国脱欧后提出的框架改革提供参考,以便在科学发展、粮食安全、人类健康和环境之间取得正确的平衡。
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引用次数: 0
Ο θεσμός της Εθνικής Επιτροπής Βιοηθικής & Τεχνοηθικής και οι νέες προκλήσεις
IF 0.4 4区 哲学 Pub Date : 2021-10-07 DOI: 10.12681/bioeth.30547
Χαράλαμπος Τσέκερης, Έφη Βαγενά
                           
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引用次数: 0
Η βιοτρομοκρατία και η σύγχρονη αναγκαιότητα της βιοάμυνας
IF 0.4 4区 哲学 Pub Date : 2021-10-07 DOI: 10.12681/bioeth.28157
Natalia Amasiadi
Introduction: Scientific progress has considerably increased the risk of unexpected bioterrorist attacks. In accordance comes the necessity for a potent “shield” of protection, known as “biosecurity” and widely referred as “biodefense”. However, ethical challenges and concerns, arising along with bioterrorism, are inevitable to address.Methods: COVID-19 outbreak immerged the significance of preexisting powerful biodefense systems. Primary factors to consider are theirs efficacy, the availability of capable emergency plans, adequate personal protective equipment, and sufficient funding. Least but not last comes the proper comprehension of risk assessment and the promotion of prevention, which contributes fundamentally in avoiding the outbreak, even before the harmful biological agent has begun spreading itself among the community.Results: Meticulous data recording will promote our knowledge of effectively constructive biodefense systems and will contribute in identifying crucial bioethical issues, as well to legislate accordingly, nationally, and internationally, in order to duly address the emerging threats. Conclusion: Drastic measures against bioterrorism are inevitable to take, so is the foundation of sufficient biodefense systems, which should lay on scientific knowledge that drives from relevant research, and general consent. Ultimately is, the establishment of international laws, to propel collaboration among nations and eliminate future bioterrorist attacks. 
导言:科学进步大大增加了意外生物恐怖袭击的风险。因此,有必要建立一个强有力的保护“盾牌”,即所谓的“生物安全”,也被广泛地称为“生物防御”。然而,与生物恐怖主义一起出现的伦理挑战和担忧是不可避免的。方法:新型冠状病毒病疫情淹没了已有的强大生物防御系统的意义。要考虑的主要因素是它们的效力、是否有有效的应急计划、是否有足够的个人防护装备以及是否有足够的资金。最重要但并非最后一点的是正确理解风险评估和促进预防,这从根本上有助于在有害生物剂开始在社区中传播之前就避免爆发。结果:细致的数据记录将促进我们对有效的建设性生物防御系统的了解,并将有助于识别关键的生物伦理问题,以及相应的立法,国家和国际,以适当地解决新出现的威胁。结论:对生物恐怖主义采取严厉措施是不可避免的,建立充分的生物防御系统的基础也应建立在相关研究的科学知识和普遍同意的基础上。最终的目标是制定国际法,推动各国之间的合作,消除未来的生物恐怖袭击。
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引用次数: 0
Ο θεσμός της Εθνικής Επιτροπής Βιοηθικής & Τεχνοηθικής και οι νέες προκλήσεις
IF 0.4 4区 哲学 Pub Date : 2021-10-07 DOI: 10.12681/bioeth.28164
Charalambos Tsekeris, Effy Vayena
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引用次数: 0
Genetic interventions, inequalities and the role of the state 基因干预,不平等和国家的作用
IF 0.4 4区 哲学 Pub Date : 2021-10-07 DOI: 10.12681/bioeth.28149
G. Athanasiadis
A central issue in the ethical public debate on genetic enhancement concerns the inequalities in skills, opportunities and welfare that might be created and established between rich and poor. Many argue that if only the wealthy can have access to enhancements, then existing unjust inequalities will be consolidated and new ones will emerge in the future. Therefore, they argue, state has a role to play against the exacerbating of existing inequalities and the emergence of future ones and determine a genetic policy that will regulate a fair distribution of genetic means under specific principles of justice. This article has two main sections. In the first and shorter section, I examine a case where access to enhancement would be unlimited for everyone. In the second and longer section, I examine the principles that a state should adopt in order to treat the unjust inequalities that could result from limited access to enhancement. Finally, I outline part of my own approach to a just genetic state policy.
在关于基因增强的伦理公共辩论中,一个核心问题是富人和穷人之间可能产生和建立的技能、机会和福利方面的不平等。许多人认为,如果只有富人才能获得改善,那么现有的不公平不平等将得到巩固,未来还会出现新的不平等。因此,他们认为,国家有责任防止现有不平等现象的加剧和未来不平等现象的出现,并制定一项遗传政策,在特定的正义原则下规范遗传手段的公平分配。本文有两个主要部分。在第一部分(也是较短的一部分)中,我研究了一种情况,即每个人都可以无限制地访问增强功能。在第二部分和更长的部分中,我研究了一个国家应该采取的原则,以处理由于有限的提高机会而可能导致的不公正的不平等。最后,我概述了我自己对公正的遗传国家政策的部分看法。
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引用次数: 0
Along the Italian route of End-of-life: the latest judicial evolution on assisted suicide 沿着意大利的生命终结之路:协助自杀的最新司法演变
IF 0.4 4区 哲学 Pub Date : 2021-01-01 DOI: 10.12681/bioeth.28158
T. Andreani
In the last three decades, the dilemma of End-of-Life is one of the most disputed bio-juridical questions Italy is confronting with. By raising highly sensitive ethical, legal and political dilemmas, it has deeply divided the Italian society, the scientific community and the political arena. In the context of a raging controversy, the Italian Parliament has opted for silence. Thus, an evolutive, judicial route has marked the legal frame in response to numerous, concrete demands of recognition of the freedom of self-determination and value of dignity in the final phase of life. In this review article, an overview of the judicial evolution of the complex mosaic of end-of-life issues will be firstly offered through three cases, pillars on which the latest judicial evolution on assisted suicide lays its foundations. Secondly, the issue of assisted suicide will be singularly addressed through the examination of the Cappato case which has outlined the path for the historical ruling of the Italian Constitutional Court, no'242 of 2019 on the constitutional illegitimacy of the crime of assistance to suicide under article 580 of the Italian Criminal Code. Precisely, the Court has pointed out several, concurrent requirements in presence of which an active conduct directly connected with suicide is not criminally relevant: the autonomous and free formation of the individual will, the irreversible nature of the disease, the ongoing practice of a life-saving treatment, the intolerability of the physical or psychological sufferings and the mental capacity to self-determination. Among the numerous, emerging, interpretative questions, the latest Trentini case, in which the requirement of life-saving treatment has been interpreted as inclusive of pharmacological therapy and of every material, sanitary life-saving assistance, will be further evaluated. Conclusively, a cross section of the fragile interplay between the legislative power and the judiciary power will be depicted in reference to the main open interpretative questions related to the enforcement of the constitutional ruling and a portrait of the upcoming scenerios, as the existing legislative drafts and the prepositive referendum question, will be concisely examined.
在过去的三十年里,生命终结的困境是意大利面临的最具争议的生物司法问题之一。它引发了高度敏感的伦理、法律和政治困境,使意大利社会、科学界和政界产生了深刻的分歧。在激烈争议的背景下,意大利议会选择了沉默。因此,一种演变的司法路线标志着法律框架的形成,以回应承认自决自由和生命最后阶段尊严价值的许多具体要求。在这篇综述文章中,将首先通过三个案例来概述复杂的生命终结问题的司法演变,这些案例是协助自杀的最新司法演变奠定基础的支柱。其次,协助自杀的问题将通过对卡帕托案件的审查来单独解决,该案件概述了意大利宪法法院2019年第242号关于根据意大利刑法第580条协助自杀罪的宪法非法性的历史性裁决的路径。确切地说,本院指出了与自杀直接有关的积极行为不具有刑事意义的若干同时发生的条件:个人意志的自主和自由形成、疾病的不可逆转性、正在进行的挽救生命的治疗、身体或心理痛苦的无法忍受以及自决的精神能力。在众多新出现的解释性问题中,最新的Trentini案例将得到进一步评估,在该案例中,救生治疗的要求被解释为包括药理学治疗和每一种物质的卫生救生援助。最后,将参照与宪法裁决的执行有关的主要公开解释性问题来描绘立法权和司法权之间脆弱的相互作用的一个横部分,并对即将出现的情况进行描绘,因为现有的立法草案和预先的公民投票问题将被简洁地审查。
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引用次数: 1
Εφευρέσεις επί εμβολίων κατά του ιού SARS-CoV-2
IF 0.4 4区 哲学 Pub Date : 2020-09-25 DOI: 10.12681/BIOETH.24841
Leandros Lefakis
The rapid spread of the SARS-CoV-2 virus is the new pandemic that humanity is called upon to deal with. The special characteristics of the virus in combination with the absence of effective antiviral medication and vaccine, make the disease a significant threat to global health. This paper addresses the issue of innovation in the midst of a pandemic in the field of diagnostic and therapeutic procedures, namely vaccines for the SARS-CoV-2 virus and how these could become public goods that will be provided without expected profit, considered global public goods. The issue is so crucial for public health that the State and the international community are called upon to contribute to research and development, in terms of participating in the business risk of the industry (with public funding), but also to intervene to protection of the global good of public health, possibly considering compulsory patent licensing solutions that will result from vaccine research.
SARS-CoV-2病毒的迅速传播是人类需要应对的新大流行病。该病毒的特殊特性,加上缺乏有效的抗病毒药物和疫苗,使该疾病对全球健康构成重大威胁。本文讨论了在大流行期间诊断和治疗程序领域的创新问题,即SARS-CoV-2病毒疫苗,以及这些疫苗如何成为公共产品,在没有预期利润的情况下提供,被视为全球公共产品。这一问题对公共卫生至关重要,因此呼吁国家和国际社会通过(利用公共资金)参与该行业的商业风险,对研究与开发作出贡献,但也对保护公共卫生的全球利益进行干预,可能考虑采用疫苗研究产生的强制专利许可解决方案。
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引用次数: 0
CRISPR, μια νέα τεχνολογία γενετικής παρέμβασης: Πρόταση αξιοποίησης σε ένα δημόσιο σύστημα υγείας
IF 0.4 4区 哲学 Pub Date : 2020-09-25 DOI: 10.12681/bioeth.24843
Nikolaos Kolisis (Νικόλαος Κολίσης)
The invention of CRISPR technology and its current and potential applications have been a subject of controversy among scientists, philosophers and legal theorists. After taking under consideration the current discussion concerning the use of CRISPR for editing human genome the article treats the question of a wider offer of CRISPR-based therapies from a Public Healthcare system and proposes method for a fair and financially sustainable way for adopting the new possibilities this new tool has to offer.
CRISPR技术的发明及其目前和潜在的应用一直是科学家、哲学家和法律理论家争论的主题。在考虑了目前关于使用CRISPR编辑人类基因组的讨论之后,文章处理了公共医疗系统更广泛地提供基于CRISPR的治疗的问题,并提出了采用这种新工具所提供的新可能性的公平和经济可持续的方法。
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引用次数: 0
Σοπενχάουερ περί Θανάτου και Αυτοκτονίας
IF 0.4 4区 哲学 Pub Date : 2020-09-25 DOI: 10.12681/BIOETH.24835
Lina Papadaki
Schopenhauer is portrayed as the philosopher of pessimism, and for good reason. For him, life is suffering where ‘ultimately death must triumph’ (The World as Will and Representation vol. I, 311). However, his pessimism fades away when he contemplates death. He argues enthusiastically that, far from being an evil, death is in fact a friend we should welcome. Moreover, he believes it is possible for human beings to use their knowledge to fight the fear of death. Interestingly, however, at the point where the reader expects a philosophical defense of suicide, Schopenhauer vehemently argues against it. Suicide to avoid pain and suffering, according to him, is a mistake, a futile, foolish and egoistic act. Not only does suicide not offer a genuine solution to suffering, but also it hinders true salvation, the denial of the will.In this paper, I argue that Schopenhauer’s condemnation of suicide is in fact at odds with his views on death and can weaken his argumentation about why we must not fear death. It is my belief that Schopenhauer’s views on suicide stem - quite ironically - from his being, at times, overly optimistic about the possibility of genuine salvation. When it comes to freeing ourselves from the will, however, we are better off pessimists. This, I explain, will allow us to at least keep our optimism regarding death and find solace in the knowledge that - be it by old age, illness, accident, suicide or any other cause - death is not to be feared.
叔本华被描绘成悲观主义哲学家,这是有充分理由的。对他来说,生命是痛苦,“最终死亡必须胜利”(《作为意志和表象的世界》卷1,311)。然而,当他想到死亡时,他的悲观情绪就消失了。他热情地认为,死亡远非邪恶,实际上是我们应该欢迎的朋友。此外,他认为人类有可能利用自己的知识来战胜对死亡的恐惧。然而,有趣的是,当读者期望从哲学角度为自杀辩护时,叔本华却强烈地反对自杀。在他看来,以自杀来避免痛苦和折磨是一种错误,一种徒劳、愚蠢和自私的行为。自杀不仅不能为痛苦提供真正的解决方案,而且还阻碍了真正的救赎,即对意志的否定。在本文中,我认为叔本华对自杀的谴责实际上与他对死亡的看法不一致,并且可以削弱他关于为什么我们不应该害怕死亡的论点。我相信叔本华对自杀的看法——相当讽刺的是——源于他有时对真正救赎的可能性过于乐观。然而,当我们把自己从意志中解放出来时,我们最好还是悲观主义者。我解释说,这至少能让我们对死亡保持乐观,并从死亡的知识中找到安慰——无论是年老、疾病、事故、自杀还是其他任何原因——死亡都不可怕。
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引用次数: 0
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Acta Bioethica
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