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Communicative participation with public authorities: Experiences of people with aphasia, people who stutter, and employees of public authorities 与公共当局的交流参与:失语症患者、口吃者和公共当局雇员的经历
IF 1.7 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2023-03-01 DOI: 10.1016/j.jcomdis.2023.106314
Anja Wunderlich, Georg Newesely, Johanna Reheis

Introduction

Several studies have examined the communicative participation of people with communication disorders (PWCD). Hindering and facilitating factors were analyzed in different population groups considering various private and public communication contexts. However, knowledge about (a) the experiences of persons with different communication disorders, (b) communication with public authorities, and (c) the perspective of communication partners in this area remains limited. Therefore, this study aimed to explore the communicative participation of PWCD with public authorities. We analyzed communicative experiences (hindering and facilitating factors) and suggestions for improving communicative access described by persons with aphasia (PWA) and persons who stutter (PWS) as well as by employees of public authorities (EPA).

Methods

In semi-structured interviews, PWA (n = 8), PWS (n = 9), and EPA (n = 11) reported specific communicative encounters with public authorities. The interviews were analyzed using qualitative content analysis, focusing on hindering/facilitating experiences and suggestions for improvement.Results: The personal experiences of the participants during authority encounters were represented by the interwoven themes of familiarity and awareness, attitudes and behavior, and support and autonomy. The perspectives of the three groups overlap in several areas; however, the results also indicate specific differences between PWA and PWS as well as between PWCD and EPA.

Conclusion

The results indicate a need to improve awareness/knowledge about communication disorders and communicative behavior in EPA. Moreover, PWCD should actively engage in encounters with authorities. In both groups, awareness must be raised about how each communication partner can contribute to successful communication, and avenues to achieve this goal must be demonstrated.

引言几项研究调查了沟通障碍患者的沟通参与情况。考虑到不同的私人和公共沟通环境,分析了不同人群的阻碍和促进因素。然而,关于(a)不同沟通障碍者的经历,(b)与公共当局的沟通,以及(c)沟通伙伴在这一领域的观点的知识仍然有限。因此,本研究旨在探讨PWCD与公共当局的沟通参与。我们分析了失语症患者(PWA)、口吃患者(PWS)以及公共当局雇员(EPA)描述的沟通经验(阻碍和促进因素)和改善沟通渠道的建议。方法在半结构化访谈中,PWA(n=8)、PWS(n=9)和EPA(n=11)报告了与公共当局的具体沟通遭遇。访谈采用定性内容分析法进行分析,重点是阻碍/促进经验和改进建议。结果:参与者在遇到权威时的个人经历表现为熟悉和意识、态度和行为、支持和自主等交织的主题。这三个群体的观点在几个领域重叠;然而,结果也表明了PWA和PWS之间以及PWCD和EPA之间的特定差异。结论EPA需要提高对沟通障碍和沟通行为的认识/认识。此外,预委会应积极与当局接触。在这两个群体中,必须提高对每个沟通伙伴如何为成功沟通做出贡献的认识,并且必须展示实现这一目标的途径。
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引用次数: 0
A profile of prosodic speech differences in individuals with autism spectrum disorder and first-degree relatives 自闭症谱系障碍患者和一级亲属的韵律言语差异
IF 1.7 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2023-03-01 DOI: 10.1016/j.jcomdis.2023.106313
Shivani P. Patel , Emily Landau , Gary E. Martin , Claire Rayburn , Saadia Elahi , Gabrielle Fragnito , Molly Losh

Background

Impairments in prosody (e.g., intonation, stress) are among the most notable communication characteristics of individuals with autism spectrum disorder (ASD) and can significantly impact communicative interactions. Evidence suggests that differences in prosody may be evident among first-degree relatives of autistic individuals, indicating that genetic liability to ASD is expressed through prosodic variation, along with subclinical traits referred to as the broad autism phenotype (BAP). This study aimed to further characterize prosodic profiles associated with ASD and the BAP to better understand the clinical and etiologic significance of prosodic differences.

Method

Autistic individuals, their parents, and respective control groups completed the Profiling Elements of Prosody in Speech-Communication (PEPS-C), an assessment of receptive and expressive prosody. Responses to expressive subtests were further examined using acoustic analyses. Relationships between PEPS-C performance, acoustic measurements, and pragmatic language ability in conversation were assessed to understand how differences in prosody might contribute to broader ASD-related pragmatic profiles.

Results

In ASD, receptive prosody deficits were observed in contrastive stress. With regard to expressive prosody, both the ASD and ASD Parent groups exhibited reduced accuracy in imitation, lexical stress, and contrastive stress expression compared to respective control groups, though no acoustic differences were noted. In ASD and Control groups, lower accuracy across several PEPS-C subtests and acoustic measurements related to increased pragmatic language violations. In parents, acoustic measurements were tied to broader pragmatic language and personality traits of the BAP.

Conclusion

Overlapping areas of expressive prosody differences were identified in ASD and parents, providing evidence that prosody is an important language-related ability that may be impacted by genetic risk of ASD.

背景韵律障碍(如语调、压力)是自闭症谱系障碍(ASD)患者最显著的沟通特征之一,可以显著影响沟通互动。有证据表明,在自闭症患者的一级亲属中,韵律的差异可能很明显,这表明ASD的遗传易感性是通过韵律变异以及被称为广泛自闭症表型(BAP)的亚临床特征来表达的。本研究旨在进一步表征与ASD和BAP相关的韵律特征,以更好地理解韵律差异的临床和病因意义。方法自闭症个体、他们的父母和各自的对照组完成了言语交际中韵律的剖析元素(PEPS-C),这是一种对接受性和表达性韵律的评估。使用声学分析进一步检查对表达性子测验的反应。评估了PEPS-C表现、声学测量和会话中的语用语言能力之间的关系,以了解韵律差异如何有助于更广泛的ASD相关语用特征。结果在ASD中,对比重音存在感受性韵律缺陷。在表达韵律方面,与各自的对照组相比,ASD和ASD父母组在模仿、词汇重音和对比重音表达方面的准确性都有所下降,尽管没有发现声学差异。在ASD和对照组中,几个PEPS-C子测验和声学测量的准确性较低与语用语言违规增加有关。在父母中,声学测量与更广泛的语用语言和BAP的个性特征有关。结论在ASD和父母中发现了表达韵律差异的重叠区域,这提供了韵律是一种重要的语言相关能力,可能受到ASD遗传风险的影响。
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引用次数: 0
An examination of 3rd and 5th grade students' use of dialect specific forms during a written editing task 三年级和五年级学生在书面编辑任务中使用方言特定形式的测试
IF 1.7 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2023-03-01 DOI: 10.1016/j.jcomdis.2023.106303
Denisha Campbell, Carla Wood, Shannon Hall-Mills

Purpose

The goal of the current study was to examine the role of variety and frequency of dialectal features in relation to General American English (GAE) editing ability. This study focused on speakers of dialect-specific forms and their ability to edit to GAE. To gain insight into this relation, the following research questions were posed: (1). How do third and fifth-grade students differ in the variety of features of dialect-specific forms they use, the frequency of their use, and their editing ability to GAE? (2). Is there a significant relation between dialect use and editing ability?

Methods

Participants included 68 third and fifth-grade students who produced at least one dialect-specific form. We measured students’ ability to edit to GAE during a written editing task. Frequency and variety of dialect use were based on an oral language sample where students were asked to share their favorite game or sport.

Results

Fifth-grade students are significantly better at editing written dialect specific forms to reflect GAE writing conventions as compared to third-grade students. However, there was not a significant difference in the dialect specific form usage between the two grades. Finally, there was not a significant relation between dialect specific form use and editing ability.

Conclusions

These results offer relevant clinical and educational implications for increasing cultural responsivity and promote the use of multiple measures across modalities to gain relevant information when assessing students who use dialect specific forms. Further, the results from this study provide further insights into how written editing ability exhibited through the awareness of GAE conventions improves with age despite the influence of dialect specific forms.

目的本研究的目的是检验方言特征的多样性和频率与美国通用英语(GAE)编辑能力的关系。这项研究的重点是方言特定形式的说话者及其对GAE的编辑能力。为了深入了解这种关系,提出了以下研究问题:(1)。三年级和五年级的学生在使用方言特定形式的多样性、使用频率和对GAE的编辑能力方面有何不同?(2) 。方言使用与编辑能力之间是否存在显著关系?方法参与者包括68名三年级和五年级的学生,他们至少产生了一种方言特有的形式。我们在书面编辑任务中测量了学生对GAE的编辑能力。方言使用的频率和多样性基于口语样本,要求学生分享他们最喜欢的游戏或运动。结果与三年级学生相比,五年级学生在编辑特定方言的书面形式以反映GAE写作习惯方面明显更好。然而,两个年级在方言特定形式用法上没有显著差异。最后,方言特定形式的使用与编辑能力之间没有显著的关系。结论这些结果为提高文化反应性提供了相关的临床和教育意义,并促进在评估使用方言特定形式的学生时使用跨模式的多种测量方法来获得相关信息。此外,这项研究的结果进一步深入了解了尽管受到方言特定形式的影响,但通过对GAE惯例的认识所表现出的书面编辑能力是如何随着年龄的增长而提高的。
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引用次数: 1
Chinese-English speaking family perspectives of augmentative and alternative communication use with their children 中国英语家庭与子女交流辅助和替代使用的视角
IF 1.7 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2023-03-01 DOI: 10.1016/j.jcomdis.2023.106315
Tiantian Sun, Ryan P. Bowles, Sarah N. Douglas

Introduction

Culturally and linguistically diverse families who have children with complex communication needs (CCN) often have limited access to augmentative and alternative communication (AAC) devices and interventions due to the lack of services that acknowledge their families’ cultural and linguistic needs. Despite the increasing need for culturally responsive services, little is known about Chinese-English speaking families’ perspectives and experience related to AAC use and services. The objective of this study was to understand the perspectives and experiences of Chinese-English speaking family members of children who use AAC use.

Methods

This study employs a qualitative descriptive methodology approach. The researchers conducted individual or group semi-structured interviews with 10 adult family members (mother, father, and grandparent) from four Chinese-English speaking families in the U.S. and Canada who have a child who uses AAC (ages 3-8).

Results

Chinese-English speaking families have high acceptance and satisfaction with their child's AAC as long as they see the benefits of the AAC system. Mothers and siblings play unique roles in supporting home AAC practice given frequent engagement with and observed influence on the child who uses AAC. Family members indicated goals in building stronger family connections, but noted that the child's speech difficulties interfered with this goal. Chinese-English speaking families felt they can overcome limitations resulting from lower English language proficiency, but still find difficulties in obtaining resources because of the Western expectations of advocacy. Additionally, service providers’ lack of responsiveness related to family goals could prevent families in obtaining AAC resources.

Conclusions

The findings suggest the need for family-centered services with cultural sensitivity and humility for those serving Chinese-English speaking families with children who use AAC. Additionally, involving family members beyond the mother within services may improve both family functioning and child communication.

简介文化和语言多样的家庭,如果他们的孩子有复杂的沟通需求(CCN),由于缺乏承认其家庭文化和语言需求的服务,他们获得增强和替代沟通(AAC)设备和干预的机会往往有限。尽管对文化响应服务的需求越来越大,但人们对中国英语家庭在AAC使用和服务方面的观点和经验知之甚少。本研究的目的是了解使用AAC的中国英语儿童家庭成员的观点和经历。方法采用定性描述方法。研究人员对来自美国和加拿大四个中国英语家庭的10名成年家庭成员(母亲、父亲和祖父母)进行了个人或小组半结构化访谈,这些家庭成员有一个使用AAC的孩子(3-8岁)。母亲和兄弟姐妹在支持家庭AAC实践方面发挥着独特的作用,因为她们经常与使用AAC的儿童接触并观察到对其的影响。家庭成员表示,他们的目标是建立更牢固的家庭关系,但指出孩子的言语困难干扰了这一目标。中国的英语家庭认为他们可以克服由于英语水平较低而造成的局限,但由于西方的宣传期望,他们仍然难以获得资源。此外,服务提供者对家庭目标缺乏回应可能会阻碍家庭获得审咨委资源。结论研究结果表明,为有儿童使用AAC的中国英语家庭服务的人需要以家庭为中心的文化敏感和谦逊的服务。此外,让母亲以外的家庭成员参与服务可以改善家庭功能和儿童沟通。
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引用次数: 1
Assessing speech intelligibility of pathological speech in sentences and word lists: The contribution of phoneme-level measures 评估句子和单词表中病理性语音的语音清晰度:音位水平测量的贡献
IF 1.7 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2023-03-01 DOI: 10.1016/j.jcomdis.2023.106301
Wei Xue , Roeland van Hout , Catia Cucchiarini , Helmer Strik

Introduction

Speech intelligibility is an important indicator of the degree of speech impairment in pathological speech. Articulation, as a key feature of dysarthria, has been found to be a stronger contributor to intelligibility of dysarthric speech compared to voice quality, nasality, and prosody. In fact, therapy addressing articulation is often used by speech-language pathologists. Since phoneme-level measures are more directly related to articulation, they may contribute to better evaluating articulation imprecision in speakers with dysarthria and to monitoring the effectiveness of therapy.

Method

We collected two types of phoneme-level measures: a) Accuracy of Phonemes, the percentage of correctly transcribed phonemes, and b) Phonetic Distance, from orthographic transcriptions obtained from expert raters in two types of speech materials (i.e., meaningful sentences and word lists). We first examined the measures’ interrater reliability using Generalizability Theory. Then we studied the validity of the measures by correlating them to three criterion variables. Following this, we explored their ability in distinguishing speakers in two classification tasks according to speakers’ types (i.e., healthy vs dysarthric) and their severity levels of dysarthria, respectively.

Results

The results showed that both types of phoneme-level measures are highly reliable and valid in two different speech materials. They also showed acceptable results for both classification tasks in different speech materials, with word lists performing better than meaningful sentences. The differences between the two speech materials may be largely caused by differences in word structures and contextual cues in the materials.

Conclusion

The results indicate that both types of phoneme-level measures show largely similar reliability and validity in both speech materials. These measures perform better in word lists than in meaningful sentences, suggesting an advantage for using word lists in clinical practice and research. On the other hand, meaningful sentences can be used for classifying healthy and dysarthric speakers. Our results suggest that using different speech materials gives a better overview of the speakers’ intelligibility at the segmental level and the implications of their articulation impairments.

引言言语可懂度是病理性言语损伤程度的重要指标。与音质、鼻音和韵律相比,发音作为构音障碍的一个关键特征,对构音障碍语音的可懂度有更大的贡献。事实上,言语病理学家经常使用针对发音的治疗方法。由于音素水平测量与发音更直接相关,它们可能有助于更好地评估患有构音障碍的说话者的发音不精确性,并监测治疗的有效性。方法我们收集了两种类型的音位水平测量:a)音位准确性,即正确转录的音位的百分比,以及b)音位距离,来自两种类型语音材料(即有意义的句子和单词列表)的专家评分员的正字法转录。我们首先使用概化理论检验了度量的参与者间可靠性。然后,我们通过将这些度量与三个标准变量相关联来研究它们的有效性。在此之后,我们分别根据说话者的类型(即健康与构音障碍)及其构音障碍的严重程度,探索了他们在两项分类任务中区分说话者的能力。结果在两种不同的语音材料中,两种类型的音素水平测量都是高度可靠和有效的。他们在不同的语音材料中对这两项分类任务都表现出了可接受的结果,单词列表比有意义的句子表现得更好。两种语音材料之间的差异可能很大程度上是由材料中单词结构和上下文线索的差异引起的。结论研究结果表明,两种类型的音素水平测量在两种语音材料中表现出很大程度上相似的信度和有效性。这些测量在单词表中的表现比在有意义的句子中要好,这表明在临床实践和研究中使用单词表具有优势。另一方面,有意义的句子可以用于对健康和构音障碍的说话者进行分类。我们的研究结果表明,使用不同的语音材料可以更好地了解说话者在节段水平上的可懂度及其发音障碍的影响。
{"title":"Assessing speech intelligibility of pathological speech in sentences and word lists: The contribution of phoneme-level measures","authors":"Wei Xue ,&nbsp;Roeland van Hout ,&nbsp;Catia Cucchiarini ,&nbsp;Helmer Strik","doi":"10.1016/j.jcomdis.2023.106301","DOIUrl":"10.1016/j.jcomdis.2023.106301","url":null,"abstract":"<div><h3>Introduction</h3><p>Speech intelligibility is an important indicator of the degree of speech impairment in pathological speech. Articulation, as a key feature of dysarthria, has been found to be a stronger contributor to intelligibility of dysarthric speech compared to voice quality, nasality, and prosody. In fact, therapy addressing articulation is often used by speech-language pathologists. Since phoneme-level measures are more directly related to articulation, they may contribute to better evaluating articulation imprecision in speakers with dysarthria and to monitoring the effectiveness of therapy.</p></div><div><h3>Method</h3><p>We collected two types of phoneme-level measures: a) Accuracy of Phonemes, the percentage of correctly transcribed phonemes, and b) Phonetic Distance, from orthographic transcriptions obtained from expert raters in two types of speech materials (i.e., meaningful sentences and word lists). We first examined the measures’ interrater reliability using Generalizability Theory. Then we studied the validity of the measures by correlating them to three criterion variables. Following this, we explored their ability in distinguishing speakers in two classification tasks according to speakers’ types (i.e., healthy vs dysarthric) and their severity levels of dysarthria, respectively.</p></div><div><h3>Results</h3><p>The results showed that both types of phoneme-level measures are highly reliable and valid in two different speech materials. They also showed acceptable results for both classification tasks in different speech materials, with word lists performing better than meaningful sentences. The differences between the two speech materials may be largely caused by differences in word structures and contextual cues in the materials.</p></div><div><h3>Conclusion</h3><p>The results indicate that both types of phoneme-level measures show largely similar reliability and validity in both speech materials. These measures perform better in word lists than in meaningful sentences, suggesting an advantage for using word lists in clinical practice and research. On the other hand, meaningful sentences can be used for classifying healthy and dysarthric speakers. Our results suggest that using different speech materials gives a better overview of the speakers’ intelligibility at the segmental level and the implications of their articulation impairments.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"102 ","pages":"Article 106301"},"PeriodicalIF":1.7,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9225791","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Prevalence and sociodemographic characteristics of US community-dwelling older adults with communication disabilities, using the national health and aging trends survey 美国社区老年通信障碍患者的患病率和社会人口统计特征,使用国家健康和老龄化趋势调查
IF 1.7 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2023-03-01 DOI: 10.1016/j.jcomdis.2023.106316
Jennifer Y. Oshita , Nancy M. Gell , Michelle L. Stransky , Nicholas S. Reed , Charles D. MacLean

Introduction

Identifying the population-level prevalence of a disability group is a prerequisite to monitoring their inclusion in society. The prevalence and sociodemographic characteristics of older adults with communication disabilities (CDs) are not well established in the literature. In this study we sought to describe the prevalence and sociodemographic characteristics of community-dwelling older adults experiencing difficulties with understanding others or being understand when communicating in their usual language.

Methods

We conducted a cross-sectional analysis of the National Health and Aging Trends Survey (2015), a nationally representative survey of Medicare beneficiaries ages ≥ 65 years old (N = 7,029). We calculated survey weight-adjusted prevalence estimates by mutually exclusive subgroups of no, hearing only, expressive-only, cognitive only, multiple CDs, and an aggregate any-CD prevalence. We described race/ethnicity, age, gender, education, marital status, social network size, federal poverty status, and supplemental insurance for all groups. Pearson's chi-squared statistic was used to compare sociodemographic characteristics between the any-CD and no-CD groups.

Results

An estimated 25.3% (10.7 million) of community-dwelling older adults in the US experienced any-CDs in 2015; approximately 19.9% (8.4 million) experienced only one CD while 5.6% (2.4 million) had multiple. Older adults with CDs were more likely to be of Black race or Hispanic ethnicity as compared to older adults without CDs (Black 10.1 vs. 7.6%; Hispanic: 12.5 vs. 5.4%; P < 0.001). They also had lower educational attainment (Less than high school: 31.0 vs 12.4%; P < 0.001), lower poverty levels (<100% Federal poverty level: 23.5% vs. 11.1%; P < 0.001) and less social supports (Married: 51.3 vs. 61.0%; P < 0.001; Social network ≤ 1 person: 45.3 vs 36.0%; P < 0.001).

Conclusions

The proportion of the older adult population experiencing any-CDs is large and disproportionately represented by underserved sociodemographic groups. These findings support greater inclusion of any-CDs into population-level efforts like national surveys, public health goals, health services, and community research aimed at understanding and addressing the access needs of older adults who have disabilities in communication.

引言确定残疾群体的人口水平患病率是监测他们融入社会的先决条件。老年人有沟通障碍(CD)的患病率和社会人口学特征在文献中没有得到很好的证实。在这项研究中,我们试图描述居住在社区的老年人在用他们的常用语言交流时难以理解他人或被理解的患病率和社会人口学特征。方法我们对国家健康和老龄化趋势调查(2015)进行了横断面分析,这是一项对年龄≥65岁的医疗保险受益人(N=7029)进行的具有全国代表性的调查。我们通过相互排斥的非、仅听力、仅表达、仅认知、多发CD亚组和任何CD患病率的总和计算了调查权重调整后的患病率估计值。我们描述了种族/民族、年龄、性别、教育、婚姻状况、社会网络规模、联邦贫困状况以及所有群体的补充保险。皮尔逊卡方统计用于比较任何CD组和无CD组的社会人口学特征。结果2015年,估计有25.3%(1070万)的美国社区老年人经历过CD;约19.9%(840万人)只经历过一次CD,而5.6%(240万人)经历过多次CD。与没有CD的老年人相比,患有CD的老年人为黑人或西班牙裔的可能性更大(黑人10.1vs.7.6%;西班牙牙裔12.5vs.5.4%;P<;0.001)。他们的教育程度也较低(低于高中:31.0vs.12.4%;P>;0.001),较低的贫困水平(<;100%联邦贫困水平:23.5%对11.1%;P<;0.001)和较少的社会支持(已婚:51.3对61.0%;P<!0.001;社交网络≤1人:45.3对36.0%;P>;0.001)。这些发现支持将任何CD更多地纳入人口层面的工作,如国家调查、公共卫生目标、卫生服务和社区研究,旨在了解和解决有沟通障碍的老年人的获取需求。
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引用次数: 0
A study of respiratory sinus arrhythmia and stuttering persistence 呼吸窦性心律失常与口吃持续性的研究。
IF 1.7 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2023-03-01 DOI: 10.1016/j.jcomdis.2023.106304
Dillon G. Pruett , Stephen W. Porges , Tedra A. Walden , Robin M. Jones

Introduction: The present study investigated potential differences in respiratory sinus arrhythmia between preschool-age children with persisting stuttering, children who recovered from stuttering, and children who do not stutter.

Methods: Participants were 10 children with persisting stuttering (persisting group), 20 children who recovered from stuttering (recovered group), and 36 children who do not stutter (non-stuttering group). Participants viewed a neutral video clip to establish a pre-arousal baseline and then viewed two emotionally-arousing video clips (positive and negative, counterbalanced). Age-appropriate speaking tasks followed each of the video clips (post-baseline, post-positive, and post-negative). Respiratory sinus arrhythmia (RSA), an index of parasympathetic nervous system activity, was measured during the video clips and subsequent speaking tasks.

Results: First, the persisting group, recovered group, and non-stuttering group did not significantly differ in baseline RSA. Second, during the emotionally-arousing video clips, there was a significant group x condition interaction, with the recovered group exhibiting significantly lower RSA in the positive than negative condition, and the non-stuttering group exhibiting significantly higher RSA in the positive than negative condition. Third, in the narrative tasks, there was a significant group x condition interaction, with a greater difference in RSA between the post-baseline speaking task and the post-positive and post-negative speaking tasks for the persisting compared to the non-stuttering group. Lastly, a follow-up analysis indicated that the recovered and nonstuttering groups, compared to the persisting group, exhibited significantly greater RSA during the baseline (neutral) condition compared to the post-neutral narrative task.

Conclusions: Findings provide a physiological perspective of emotion within children who stutter and persist and children who stutter and recover. Future investigations with larger sample sizes and diverse methodologies are necessary to provide novel insights on the specific emotion-related processes that are potentially involved with persistence of stuttering in young children.

引言:本研究调查了持续口吃的学龄前儿童、从口吃中康复的儿童和没有口吃的儿童在呼吸窦性心律失常方面的潜在差异。方法:参与者包括10名持续性口吃儿童(持续组)、20名从口吃中康复的儿童(康复组)和36名没有口吃的儿童(非口吃组)。参与者观看了一个中性的视频片段,以建立唤醒前的基线,然后观看了两个情绪激动的视频片段(正面和负面,平衡)。每个视频剪辑之后都有适合年龄的演讲任务(基线后、阳性后和阴性后)。呼吸窦性心律失常(RSA)是副交感神经系统活动的一项指标,在视频剪辑和随后的演讲任务中进行了测量。结果:首先,坚持组、康复组和非口吃组在基线RSA方面没有显著差异。其次,在情绪激动的视频剪辑过程中,存在显著的x组条件交互作用,康复组在阳性条件下表现出显著低于阴性条件下的RSA,非口吃组在阳性情况下表现出明显高于阴性条件下。第三,在叙事任务中,存在显著的组x条件交互作用,与非口吃组相比,坚持组的基线后口语任务与阳性后和阴性后口语任务之间的RSA差异更大。最后,一项后续分析表明,与坚持组相比,恢复组和不说话组在基线(中性)条件下比中性后叙述任务表现出更大的RSA。结论:研究结果为口吃并持续的儿童和口吃并康复的儿童的情绪提供了一个生理视角。未来有必要通过更大的样本量和不同的方法进行调查,以对可能与幼儿口吃持续存在有关的特定情绪相关过程提供新的见解。
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引用次数: 0
Putting “the broken bits together”: A qualitative exploration of the impact of communication changes in dementia 把“零碎的东西放在一起”:对痴呆症中沟通变化影响的定性探索
IF 1.7 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2023-01-01 DOI: 10.1016/j.jcomdis.2022.106294
Mansoureh Nickbakht , Anthony J. Angwin , Bonnie B.Y. Cheng , Jacki Liddle , Peter Worthy , Janet H. Wiles , Daniel Angus , Sarah J. Wallace

Introduction

Communication is an area of health and functioning that is profoundly affected by dementia. While it is known that people living with dementia and their care partners experience disruptions to daily activities and social engagement, detailed knowledge about the lived impact of dementia-related communication changes is lacking. This study sought an in-depth understanding of the lived experience of dementia-related communication changes and the associated impact, needs, and strategies.

Methods

As part of an overarching participatory design study, a qualitative (interpretive description) exploration was undertaken with people living with dementia and their care partners. Data from semi-structured interviews were analysed using thematic analysis.

Results

We interviewed 13 people living with dementia and 21 care partners and drew three themes and 10 subthemes from the interviews. The first theme illustrates how dementia changes communication which in turn changes life; the second captures the impact of changes on people living with dementia and care partners emotionally and in the context of relationships; and the third describes some positive and constructive ways of moving forward with dementia-related communication changes.

Conclusions

Interventions to enhance function, participation, and wellbeing for people living with dementia and their care partners need to encompass support for communication changes. There is a need to ensure that people living with dementia feel dignified and respected during communication, and that care partners and inclusive communities are educated, trained, and supported to facilitate communication.

引言沟通是一个深受痴呆症影响的健康和功能领域。虽然众所周知,痴呆症患者及其护理伙伴的日常活动和社交活动会受到干扰,但缺乏关于痴呆症相关沟通变化对生活影响的详细信息。本研究旨在深入了解痴呆症相关沟通变化的生活体验及其相关影响、需求和策略。方法作为总体参与式设计研究的一部分,对痴呆症患者及其护理伙伴进行了定性(解释性描述)探索。采用专题分析法对半结构化访谈的数据进行了分析。结果我们采访了13名痴呆症患者和21名护理伙伴,并从采访中引出了三个主题和10个子主题。第一个主题说明了痴呆症如何改变沟通,进而改变生活;第二个捕捉了变化对痴呆症患者和护理伙伴在情感和关系背景下的影响;第三部分描述了一些积极和建设性的方式来推进与痴呆症相关的沟通变化。结论增强痴呆症患者及其护理伙伴的功能、参与和幸福感的干预措施需要包括对沟通变化的支持。有必要确保痴呆症患者在沟通过程中感到有尊严和受尊重,并确保护理伙伴和包容性社区得到教育、培训和支持,以促进沟通。
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引用次数: 0
Erratum to ‘Breaking the flow of thought: Increase of empty pauses in the connected speech of people with mild and moderate Alzheimer's disease’ [Journal of Communication Disorders 97 (2022)106,214] “打破思维流:轻度和中度阿尔茨海默病患者关联言语中空洞停顿的增加”的勘误表[《沟通障碍杂志》97(2022)106214]
IF 1.7 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2023-01-01 DOI: 10.1016/j.jcomdis.2022.106299
Mary Lofgren , Wolfram Hinzen
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引用次数: 0
Development of the hearing-related quality of life questionnaire for auditory-visual, cognitive and psychosocial functioning (hAVICOP) 视听、认知和心理社会功能听力相关生活质量问卷的编制(hAVICOP)
IF 1.7 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2023-01-01 DOI: 10.1016/j.jcomdis.2022.106291
Dorien Ceuleers , Nele Baudonck , Hannah Keppler , Katrien Kestens , Ingeborg Dhooge , Sofie Degeest

Introduction

There is a need for a validated and standardized self-assessment instrument to assess the subjective effect of hearing aid (HA) use and/or cochlear implantation (CI) on different aspects of functioning in daily life. The aim of this study was to develop a new holistic Patient Reported Outcome Measure (PROM) to assess hearing-related quality of life. The new PROM is titled the hearing-related quality of life questionnaire for Auditory-VIsual, COgnitive and Psychosocial functioning (hAVICOP).

Methods

A conceptual framework was set up and test items were prepared per domain. Preliminary testing involved a semi-structured interview-based assessment in normal-hearing and hearing-impaired adults and an expert panel. For the further psychometric evaluation, a new sample of 15 adult HA users, 20 adult CI users and 20 normal-hearing adults filled in the refined version of the hAVICOP, the Speech, Spatial and Qualities of Hearing Scale, the Nijmegen Cochlear Implant Questionnaire and the TNO-AZL Questionnaire for Adult's Health-Related Quality of Life. Based on these results, a factor analysis was conducted and internal consistency, discriminant validity and concurrent construct validity were determined.

Results

The final version of the hAVICOP consists of three domains for hearing-related quality of life: (1) auditory-visual functioning, (2) cognitive functioning, and (3) psychosocial functioning. A sufficient internal consistency was found, and discriminant validity and concurrent construct validity were good.

Conclusions

A new PROM to assess hearing-related quality of life was developed, named the hAVICOP. In the future the validity and reliability should be examined further.

引言需要一种经过验证和标准化的自我评估工具来评估助听器(HA)的使用和/或耳蜗植入(CI)对日常生活中不同功能方面的主观影响。本研究的目的是开发一种新的整体患者报告结果测量(PROM),以评估听力相关的生活质量。新的PROM被命名为听觉视觉、认知和心理社会功能听力相关生活质量问卷(hAVICOP)。初步测试包括对听力正常和听力受损的成年人进行基于半结构化访谈的评估,以及一个专家小组。为了进一步的心理测量评估,一个由15名HA成年用户、20名CI成年用户和20名听力正常的成年人组成的新样本填写了hAVICOP、言语、空间和听力质量量表、奈梅亨人工耳蜗问卷和TNO-AZL成人健康相关生活质量问卷的修订版。基于这些结果,进行了因子分析,确定了内部一致性、判别有效性和并发结构有效性。结果hAVICOP的最终版本包括三个与听力相关的生活质量领域:(1)听觉视觉功能,(2)认知功能和(3)心理社会功能。发现了足够的内部一致性,判别有效性和并发结构有效性良好。结论开发了一种新的评估听力相关生活质量的PROM,命名为hAVICOP。今后应进一步检验其有效性和可靠性。
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引用次数: 1
期刊
Journal of Communication Disorders
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