Journal of Communication Disorders最新文献_第8页

Aphasia and friendship: Stroke survivors’ self-reported changes over time 失语症与友谊：中风幸存者自我报告的随时间变化

IF 1.7 3区医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Communication Disorders

Pub Date : 2023-05-01 DOI: 10.1016/j.jcomdis.2023.106330

Elizabeth B. Madden , Lauren Bislick , Sarah E. Wallace , Michelle C.S. Therrien , Rachel Goff-Albritton

Introduction

Friendships are an important contributor to quality of life. Due to communication and other stroke-related challenges, people with aphasia (PWA) can experience negative friendship changes, which have been linked with increased physiological distress. This study examined friendship experiences over time for PWA to understand how friendships evolve throughout the course of stroke and aphasia recovery.

Methods

Fifteen stroke survivors with chronic aphasia completed language testing and a friendship questionnaire created by the researchers. The friendship questionnaire was composed of open and closed-ended questions that asked PWA to reflect back on their friendship satisfaction, support, activities, and communication during the time before aphasia and during the acute stage of recovery. The questionnaire also addressed their current friendships in the present-day chronic stage of recovery, as well as questions about an ideal friendship. Quantitative and qualitative methods were used to examine the data, with quantitative findings reported in this study.

Results

The majority of PWA reported maintaining some friendships and developing new friendships, often with a fellow stroke survivor with aphasia; however, a few PWA in this study were not able to maintain or develop any new friendships. Average ratings of perceived friendship satisfaction and support improved from the acute to chronic stage, nearing those of the ratings pre-stroke, yet there was greater variability in the chronic stage with some currently feeling dissatisfied and not well supported. Aphasia severity, as measured by a standardized assessment, had a negative relationship with perceived friendship support. In contrast, perception of communicative participation had a positive relationship with friendship support.

Conclusions

This work highlights lasting social implications of aphasia. The overall health of PWA deserves greater attention, including interventions targeting friendship maintenance and development. Continued stakeholder-engaged research and clinical practice focused on the social and emotional consequences of aphasia on PWA, as well as their friends and family, is needed to assist all involved in aphasia recovery achieve better friendships and well-being.

友谊是提高生活质量的重要因素。由于沟通和其他与中风相关的挑战，失语症患者可能会经历负面的友谊变化，这与生理痛苦的增加有关。这项研究调查了PWA的友谊经历，以了解友谊在中风和失语症康复过程中是如何演变的。方法15名脑卒中后的慢性失语症幸存者完成语言测试和研究人员编制的友谊问卷。友谊问卷由开放式和封闭式问题组成，要求PWA回顾失语症前和康复急性期的友谊满意度、支持、活动和沟通。调查问卷还涉及他们目前处于慢性康复阶段的友谊，以及关于理想友谊的问题。采用定量和定性方法对数据进行检查，本研究报告了定量结果。结果大多数PWA报告维持了一些友谊并发展了新的友谊，通常与患有失语症的中风幸存者同伴保持友谊；然而，本研究中的一些PWA无法维持或发展任何新的友谊。从急性期到慢性期，感知友谊满意度和支持的平均评分有所提高，接近中风前的评分，但慢性期的变化更大，一些人目前感到不满意，没有得到很好的支持。通过标准化评估，失语症的严重程度与感知到的友谊支持呈负相关。相反，交际参与感与友谊支持呈正相关。结论这项工作突出了失语症的持久社会影响。PWA的整体健康状况值得更多关注，包括针对友谊维护和发展的干预措施。需要持续的利益相关者参与的研究和临床实践，重点关注失语症对PWA的社会和情感后果，以及他们的朋友和家人，以帮助所有参与失语症康复的人获得更好的友谊和幸福。

{"title":"Aphasia and friendship: Stroke survivors’ self-reported changes over time","authors":"Elizabeth B. Madden , Lauren Bislick , Sarah E. Wallace , Michelle C.S. Therrien , Rachel Goff-Albritton","doi":"10.1016/j.jcomdis.2023.106330","DOIUrl":"10.1016/j.jcomdis.2023.106330","url":null,"abstract":"<div><h3>Introduction</h3><p>Friendships are an important contributor to quality of life. Due to communication and other stroke-related challenges, people with aphasia (PWA) can experience negative friendship changes, which have been linked with increased physiological distress. This study examined friendship experiences over time for PWA to understand how friendships evolve throughout the course of stroke and aphasia recovery.</p></div><div><h3>Methods</h3><p>Fifteen stroke survivors with chronic aphasia completed language testing and a friendship questionnaire created by the researchers. The friendship questionnaire was composed of open and closed-ended questions that asked PWA to reflect back on their friendship satisfaction, support, activities, and communication during the time before aphasia and during the acute stage of recovery. The questionnaire also addressed their current friendships in the present-day chronic stage of recovery, as well as questions about an ideal friendship. Quantitative and qualitative methods were used to examine the data, with quantitative findings reported in this study.</p></div><div><h3>Results</h3><p>The majority of PWA reported maintaining some friendships and developing new friendships, often with a fellow stroke survivor with aphasia; however, a few PWA in this study were not able to maintain or develop any new friendships. Average ratings of perceived friendship satisfaction and support improved from the acute to chronic stage, nearing those of the ratings pre-stroke, yet there was greater variability in the chronic stage with some currently feeling dissatisfied and not well supported. Aphasia severity, as measured by a standardized assessment, had a negative relationship with perceived friendship support. In contrast, perception of communicative participation had a positive relationship with friendship support.</p></div><div><h3>Conclusions</h3><p>This work highlights lasting social implications of aphasia. The overall health of PWA deserves greater attention, including interventions targeting friendship maintenance and development. Continued stakeholder-engaged research and clinical practice focused on the social and emotional consequences of aphasia on PWA, as well as their friends and family, is needed to assist all involved in aphasia recovery achieve better friendships and well-being.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"103 ","pages":"Article 106330"},"PeriodicalIF":1.7,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9989818","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

Global citizenship and social justice among speech-language pathologists: A scoping review 言语语言病理学家的全球公民身份和社会正义：范围界定综述

IF 1.7 3区医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Communication Disorders

Pub Date : 2023-05-01 DOI: 10.1016/j.jcomdis.2023.106317

Carajane Millar , Lindsay B. Carey , Anne E. Hill , Stacie Attrill , Maria-Irini Avgoulas , Eutichia Drakopoulos , Carly A. Sutton

Introduction

This scoping review outlines the literature findings that relate to global citizenship and the interconnection between social justice among health professionals, specifically speech-language pathologists. The review aims to provide a synthesis of the relevant literature and thorough thematic identification of common themes.

Method

Arksey and O'Malley's scoping review framework was used for the searching of critical databases, specifically CINAHL, Medline, the Cochrane Library and Google Scholar. Following the appraisal and synthesis process of the relevant literature, key themes were identified with particular reference to social justice among health professionals (especially speech-language pathologists).

Results

Four (4) key themes were identified, namely, (i) education and ongoing developmental support, (ii) ethical and moral obligations, (ii) cultural competency, and (iv) community engagement for intergroup empathy and helping.

Conclusion

This review defines the parameters of a speech-language pathologists’ practice as a global citizen interconnected with social justice and the accountabilities to enable impactful changes creating culturally sustaining practice.

引言这篇范围界定综述概述了与全球公民身份以及卫生专业人员，特别是言语语言病理学家之间的社会正义之间的相互联系有关的文献发现。该综述旨在综合相关文献，并彻底确定共同主题。方法Arksey和O'Malley的范围界定审查框架用于搜索关键数据库，特别是CINAHL、Medline、Cochrane图书馆和Google Scholar。通过对相关文献的评估和综合，确定了卫生专业人员（尤其是言语病理学家）中特别涉及社会正义的关键主题。结果确定了四（4）个关键主题，即：（i）教育和持续发展支持，（ii）伦理和道德义务，四社区参与，促进群体间的同情和帮助。结论这篇综述定义了言语病理学家作为一个与社会正义和责任相关的全球公民的实践参数，以实现有影响力的变革，创造文化可持续的实践。

{"title":"Global citizenship and social justice among speech-language pathologists: A scoping review","authors":"Carajane Millar , Lindsay B. Carey , Anne E. Hill , Stacie Attrill , Maria-Irini Avgoulas , Eutichia Drakopoulos , Carly A. Sutton","doi":"10.1016/j.jcomdis.2023.106317","DOIUrl":"10.1016/j.jcomdis.2023.106317","url":null,"abstract":"<div><h3>Introduction</h3><p>This scoping review outlines the literature findings that relate to global citizenship and the interconnection between social justice among health professionals, specifically speech-language pathologists. The review aims to provide a synthesis of the relevant literature and thorough thematic identification of common themes.</p></div><div><h3>Method</h3><p>Arksey and O'Malley's scoping review framework was used for the searching of critical databases, specifically CINAHL, Medline, the Cochrane Library and Google Scholar. Following the appraisal and synthesis process of the relevant literature, key themes were identified with particular reference to social justice among health professionals (especially speech-language pathologists).</p></div><div><h3>Results</h3><p>Four (4) key themes were identified, namely, (i) education and ongoing developmental support, (ii) ethical and moral obligations, (ii) cultural competency, and (iv) community engagement for intergroup empathy and helping.</p></div><div><h3>Conclusion</h3><p>This review defines the parameters of a speech-language pathologists’ practice as a global citizen interconnected with social justice and the accountabilities to enable impactful changes creating culturally sustaining practice.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"103 ","pages":"Article 106317"},"PeriodicalIF":1.7,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9608124","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Effects in language development of young children with language delay during early intervention 早期干预对语言延迟幼儿语言发展的影响

IF 1.7 3区医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Communication Disorders

Pub Date : 2023-05-01 DOI: 10.1016/j.jcomdis.2023.106326

Bernadette A.M. Vermeij , Carin H. Wiefferink , Harry Knoors , Ron H.J. Scholte

Introduction

In the Netherlands, early language intervention is offered to young children with Language Delay (LD). The intervention combines groupwise language intervention, individual speech and language therapy and parent-implemented language intervention. This study tests the hypothesis that children with LD show progress in their receptive and expressive language during intervention. Differences in language progress between age groups (< 36 months and ≥ 36 months at intervention start) were expected in favour of the younger group, which might be due to an earlier intervention start, a longer treatment duration or the potential presence of late talkers.

Methods

The study included 183 children with LD (45 children < 3 years of age at intervention start; mean age 32 months, 138 children ≥ 3 years; mean age 40 months). Receptive and expressive language was assessed with norm-referenced tests at intervention start and ending using Routine Outcome Monitoring. A repeated measures MANOVA was carried out to examine language progress and to compare the age groups on receptive syntax, receptive vocabulary, expressive syntax and expressive vocabulary. The Reliable Change Index was used to study individual progress.

Results

On average, children in both age groups showed significant improvement in all four language domains. The younger children showed more language progress than the older children in all four domains. When examining individual progress, most of the children displayed reliable improvement for expressive vocabulary. Most children developed in the same pace as their typically developing peers for receptive syntax, receptive vocabulary, and expressive syntax.

Conclusions

Children stabilized or even improved language proficiency during the intervention, indicating that the language gap between these children and typically developing children did not widen further. Younger children displayed more language progress than older children in all four domains, but it is unclear what might explain this difference.

引言在荷兰，为语言迟缓的幼儿提供早期语言干预。该干预结合了群体性语言干预、个体言语和语言治疗以及父母实施的语言干预。这项研究检验了LD儿童在干预过程中在接受和表达语言方面表现出进步的假设。年龄组之间的语言进步差异（干预开始时＜36个月且≥36个月）预计有利于年轻组，这可能是由于干预开始较早、治疗持续时间较长或可能存在说话较晚的人。方法该研究包括183名LD儿童（干预开始时年龄＜3岁的45名儿童；平均年龄32个月，≥3岁的138名儿童，平均年龄40个月）。接受性和表达性语言在干预开始和结束时使用常规结果监测通过常模参考测试进行评估。进行了一项重复测量MANOVA，以检查语言进步，并比较接受句法、接受词汇、表达句法和表达词汇的年龄组。可靠变化指数用于研究个人进步。结果平均而言，两个年龄组的儿童在所有四个语言领域都表现出显著的进步。在所有四个领域中，年龄较小的孩子比年龄较大的孩子表现出更多的语言进步。在考察个体进步时，大多数儿童在表达性词汇方面表现出可靠的进步。大多数孩子在接受性语法、接受性词汇和表达性语法方面的发展速度与他们典型的同龄人相同。结论在干预期间，儿童的语言水平稳定甚至提高，表明这些儿童与典型发育中儿童之间的语言差距没有进一步扩大。在所有四个领域中，年龄较小的儿童比年龄较大的儿童表现出更多的语言进步，但目前尚不清楚是什么解释了这种差异。

{"title":"Effects in language development of young children with language delay during early intervention","authors":"Bernadette A.M. Vermeij , Carin H. Wiefferink , Harry Knoors , Ron H.J. Scholte","doi":"10.1016/j.jcomdis.2023.106326","DOIUrl":"10.1016/j.jcomdis.2023.106326","url":null,"abstract":"<div><h3>Introduction</h3><p>In the Netherlands, early language intervention is offered to young children with Language Delay (LD). The intervention combines groupwise language intervention, individual speech and language therapy and parent-implemented language intervention. This study tests the hypothesis that children with LD show progress in their receptive and expressive language during intervention. Differences in language progress between age groups (< 36 months and ≥ 36 months at intervention start) were expected in favour of the younger group, which might be due to an earlier intervention start, a longer treatment duration or the potential presence of late talkers.</p></div><div><h3>Methods</h3><p>The study included 183 children with LD (45 children < 3 years of age at intervention start; mean age 32 months, 138 children ≥ 3 years; mean age 40 months). Receptive and expressive language was assessed with norm-referenced tests at intervention start and ending using Routine Outcome Monitoring. A repeated measures MANOVA was carried out to examine language progress and to compare the age groups on receptive syntax, receptive vocabulary, expressive syntax and expressive vocabulary. The Reliable Change Index was used to study individual progress.</p></div><div><h3>Results</h3><p>On average, children in both age groups showed significant improvement in all four language domains. The younger children showed more language progress than the older children in all four domains. When examining individual progress, most of the children displayed reliable improvement for expressive vocabulary. Most children developed in the same pace as their typically developing peers for receptive syntax, receptive vocabulary, and expressive syntax.</p></div><div><h3>Conclusions</h3><p>Children stabilized or even improved language proficiency during the intervention, indicating that the language gap between these children and typically developing children did not widen further. Younger children displayed more language progress than older children in all four domains, but it is unclear what might explain this difference.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"103 ","pages":"Article 106326"},"PeriodicalIF":1.7,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9620223","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

A preliminary investigation of the mental health of parents of young children who stutter 幼儿口吃父母心理健康状况的初步调查

IF 1.7 3区医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Communication Disorders

Pub Date : 2023-05-01 DOI: 10.1016/j.jcomdis.2023.106329

Brenda Carey, Shane Erickson, Susan Block

Introduction

While research has shown that parents of preschool-aged children who stutter (CWS) may be negatively affected by their child's stuttering, few studies have investigated their mental health. If parents of CWS have poor mental health, this may impact stuttering treatment choices, the conduct of treatment, stuttering treatment outcomes, and the development of stuttering treatments.

Methods

82 parents (74 mothers and 8 fathers) of preschool-aged children who stutter (aged 1–5) were recruited upon application for an assessment for their child. A survey battery extracting quantitative and qualitative information about symptoms of potential depression, anxiety, stress, and psychological distress, as well as the emotional effect of stuttering on parents was administered and the results summarized.

Results

Data from standardised measures revealed similar incidence as normative data for the presence of stress, anxiety or depression (1 in 6 parents) and distress (almost 1 in 5 parents). However, more than half of the participants reported experiencing a negative emotional effect due to their child's stuttering and a large proportion also reported that stuttering influenced their communication with their child.

Conclusions

Speech-language pathologists (SLPs) should broaden the scope of their duty of care to include the parents of CWS more fully. Parents should be provided with informational counselling or other support services that will help reduce worry and anxiety related to negative emotions.

引言虽然研究表明，学龄前口吃儿童的父母可能会受到孩子口吃的负面影响，但很少有研究调查他们的心理健康。如果CWS的父母心理健康状况不佳，这可能会影响口吃治疗的选择、治疗的进行、口吃治疗的结果以及口吃治疗的发展。方法82名学龄前儿童（1-5岁）的父母（74名母亲和8名父亲）在申请对其孩子进行评估时被招募。一个调查组提取了有关潜在抑郁、焦虑、压力和心理困扰症状的定量和定性信息，以及口吃对父母的情绪影响，并对结果进行了总结。结果标准化测量的数据显示，压力、焦虑或抑郁（父母中有六分之一）和痛苦（父母中几乎五分之一）的发生率与标准化数据相似。然而，超过一半的参与者报告说，由于孩子的口吃，他们经历了负面的情绪影响，很大一部分人还报告说，口吃影响了他们与孩子的沟通。结论言语病理学家（SLP）应扩大其注意义务的范围，以更充分地包括CWS的父母。应向家长提供信息咨询或其他支持服务，以帮助减少与负面情绪相关的担忧和焦虑。

{"title":"A preliminary investigation of the mental health of parents of young children who stutter","authors":"Brenda Carey, Shane Erickson, Susan Block","doi":"10.1016/j.jcomdis.2023.106329","DOIUrl":"10.1016/j.jcomdis.2023.106329","url":null,"abstract":"<div><h3>Introduction</h3><p>While research has shown that parents of preschool-aged children who stutter (CWS) may be negatively affected by their child's stuttering, few studies have investigated their mental health. If parents of CWS have poor mental health, this may impact stuttering treatment choices, the conduct of treatment, stuttering treatment outcomes, and the development of stuttering treatments.</p></div><div><h3>Methods</h3><p>82 parents (74 mothers and 8 fathers) of preschool-aged children who stutter (aged 1–5) were recruited upon application for an assessment for their child. A survey battery extracting quantitative and qualitative information about symptoms of potential depression, anxiety, stress, and psychological distress, as well as the emotional effect of stuttering on parents was administered and the results summarized.</p></div><div><h3>Results</h3><p>Data from standardised measures revealed similar incidence as normative data for the presence of stress, anxiety or depression (1 in 6 parents) and distress (almost 1 in 5 parents). However, more than half of the participants reported experiencing a negative emotional effect due to their child's stuttering and a large proportion also reported that stuttering influenced their communication with their child.</p></div><div><h3>Conclusions</h3><p>Speech-language pathologists (SLPs) should broaden the scope of their duty of care to include the parents of CWS more fully. Parents should be provided with informational counselling or other support services that will help reduce worry and anxiety related to negative emotions.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"103 ","pages":"Article 106329"},"PeriodicalIF":1.7,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9972139","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

What helps confidence in communication - Perspectives of adults with aphasia: “Get maze…not stay out it” 有助于增强沟通信心的因素-失语症成年人的观点：“进入迷宫……而不是置身事外”

IF 1.7 3区医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Communication Disorders

Pub Date : 2023-05-01 DOI: 10.1016/j.jcomdis.2023.106334

Tami Howe, Elaina McCarron, Jacob Rowe

Introduction

The ultimate aim of speech-language therapy for adults with aphasia is to enhance their life participation. One key factor which may influence an individual's decisions to participate in meaningful life activities is their confidence in communication. The aim of the current study was to explore what helps confidence in communication from the perspective of adults with aphasia.

Methods

The study, part of a larger investigation, used a qualitative descriptive research approach underpinned by an interpretivist paradigm. Fifteen adult participants who had post-stroke aphasia and lived at home or in long-term care were recruited. Due to COVID-19 restrictions, participants had to be able to complete an online qualitative interview, given conversational support. Maximum variation sampling was used to ensure diversity within the sample. The researchers conducted individual interviews over Zoom based on a topic guide exploring the person's experiences with confidence in communicating and their perceptions about what has helped their confidence in communication since the onset of aphasia. The interviews were video-recorded and transcribed verbatim. The transcripts were analyzed using qualitative content analysis.

Results

Categories of what helps confidence in communication included: Attitudes, Advocating for themselves, Having individualized strategies to deal with communication difficulties, Practicing communication, Other people with aphasia (PWA), Factors related to communication partners, Factors related to the communication context, and Other factors.

Conclusions

To enhance confidence, speech-language pathologists could help PWA to develop strategies to deal with inevitable communication breakdowns. They could also support PWA to experience communication success in everyday situations and to advocate for themselves.

成人失语症言语语言治疗的最终目的是提高失语症患者的生活参与度。可能影响个人参与有意义的生活活动的决定的一个关键因素是他们对沟通的信心。本研究的目的是从失语症成年人的角度探讨是什么有助于建立沟通信心。方法这项研究是一项更大规模调查的一部分，采用了以解释主义范式为基础的定性描述性研究方法。招募了15名患有中风后失语症并住在家中或长期护理的成年参与者。由于新冠肺炎限制，参与者必须能够在对话支持下完成在线定性采访。最大变异采样用于确保样本的多样性。研究人员在Zoom上根据主题指南进行了个人访谈，探讨了失语症患者在沟通中的自信经历，以及他们对失语症发作以来是什么帮助了他们的沟通自信的看法。访谈录下了录像，并逐字逐句转录。使用定性内容分析对转录本进行分析。结果有助于建立沟通信心的因素包括：态度、为自己辩护、制定应对沟通困难的个性化策略、练习沟通、其他失语症患者、与沟通伙伴有关的因素、与沟通环境有关的因素和其他因素。结论为了增强信心，言语病理学家可以帮助PWA制定应对不可避免的沟通障碍的策略。他们还可以支持PWA在日常情况下体验沟通成功，并为自己辩护。

{"title":"What helps confidence in communication - Perspectives of adults with aphasia: “Get maze…not stay out it”","authors":"Tami Howe, Elaina McCarron, Jacob Rowe","doi":"10.1016/j.jcomdis.2023.106334","DOIUrl":"10.1016/j.jcomdis.2023.106334","url":null,"abstract":"<div><h3>Introduction</h3><p>The ultimate aim of speech-language therapy for adults with aphasia is to enhance their life participation. One key factor which may influence an individual's decisions to participate in meaningful life activities is their confidence in communication. The aim of the current study was to explore what helps confidence in communication from the perspective of adults with aphasia.</p></div><div><h3>Methods</h3><p>The study, part of a larger investigation, used a qualitative descriptive research approach underpinned by an interpretivist paradigm. Fifteen adult participants who had post-stroke aphasia and lived at home or in long-term care were recruited. Due to COVID-19 restrictions, participants had to be able to complete an online qualitative interview, given conversational support. Maximum variation sampling was used to ensure diversity within the sample. The researchers conducted individual interviews over Zoom based on a topic guide exploring the person's experiences with confidence in communicating and their perceptions about what has helped their confidence in communication since the onset of aphasia. The interviews were video-recorded and transcribed verbatim. The transcripts were analyzed using qualitative content analysis.</p></div><div><h3>Results</h3><p>Categories of what helps confidence in communication included: Attitudes, Advocating for themselves, Having individualized strategies to deal with communication difficulties, Practicing communication, Other people with aphasia (PWA), Factors related to communication partners, Factors related to the communication context, and Other factors.</p></div><div><h3>Conclusions</h3><p>To enhance confidence, speech-language pathologists could help PWA to develop strategies to deal with inevitable communication breakdowns. They could also support PWA to experience communication success in everyday situations and to advocate for themselves.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"103 ","pages":"Article 106334"},"PeriodicalIF":1.7,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9609171","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Immediate effects of a semi-occluded water-resistance ventilation mask on vocal outcomes in women with dysphonia 半封闭式防水通气面罩对女性发音困难患者的即时影响

IF 1.7 3区医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Communication Disorders

Pub Date : 2023-05-01 DOI: 10.1016/j.jcomdis.2023.106331

Imke Kissel , Tine Papeleu , Jolien Verbeke , Kristiane Van Lierde , Iris Meerschman , Evelien D'haeseleer

Introduction

Semi-occluded vocal tract exercises (SOVTEs) are frequently used exercises in voice therapy. An important shortcoming to most SOVTEs is the inability to include continuous speech in these exercises. A variation of water-resistance therapy (WRT), during which a patient phonates through a resonance tube ending in water, was developed to include continuous speech: the semi-occluded water resistance ventilation mask (SOVM-WR). The current study investigated the immediate effects of this innovative technique on vocal outcomes of women with dysphonia.

Methods

A pretest-posttest randomized controlled trial was performed. Twenty female participants were randomly assigned to the experimental SOVM-WR group or the WRT (control) group. A blinded multidimensional voice assessment was conducted before and after a 30-minute therapy session with the assigned technique.

Results

No significant changes were found in acoustic or auditory-perceptual vocal outcomes in either of the groups, except for a significant increase in lowest frequency in both groups. Patient-reported outcomes (PROMs) showed significant improvements of vocal comfort, vocal effort, and voice quality in both groups, and participants indicated that they would use the techniques at home.

Conclusions

The similar results of the SOVM-WR to WRT and promising PROMs confirm its suitability as an alternative to the latter technique. Potential reasons for a lack of improvement of objective and auditory-perceptual vocal outcomes are vocal fatigue, tube dimensions and immersion, and the small sample size. Large-scale and longitudinal research is needed to examine whether the SOVM-WR has a higher transfer to spontaneous speech than WRT after a full therapy program.

半闭塞性声道练习（SOVTE）是语音治疗中常用的练习。大多数SOVTE的一个重要缺点是无法在这些练习中包含连续语音。水阻疗法（WRT）的一种变体，即患者通过终止于水中的共振管发声，被开发为包括连续语音：半封闭水阻通气面罩（SOVM-WR）。目前的研究调查了这种创新技术对女性发音困难患者的直接影响。方法采用前测后测随机对照试验。20名女性参与者被随机分配到实验性SOVM-WR组或WRT（对照）组。在使用指定技术进行30分钟治疗前后进行盲法多维语音评估。结果除两组最低频率显著增加外，两组的声学或听觉感知发声结果均无显著变化。患者报告结果（PROMs）显示，两组患者的发声舒适度、发声努力度和音质都有显著改善，参与者表示他们将在家中使用这些技术。结论SOVM-WR与WRT和有前景的PROMs的相似结果证实了其作为后一种技术的替代品的适用性。客观和听觉感知声乐结果缺乏改善的潜在原因是声乐疲劳、管的尺寸和浸入以及样本量小。需要进行大规模的纵向研究，以检查在完整的治疗方案后，SOVM-WR是否比WRT具有更高的自发语音转移。

{"title":"Immediate effects of a semi-occluded water-resistance ventilation mask on vocal outcomes in women with dysphonia","authors":"Imke Kissel , Tine Papeleu , Jolien Verbeke , Kristiane Van Lierde , Iris Meerschman , Evelien D'haeseleer","doi":"10.1016/j.jcomdis.2023.106331","DOIUrl":"10.1016/j.jcomdis.2023.106331","url":null,"abstract":"<div><h3>Introduction</h3><p>Semi-occluded vocal tract exercises (SOVTEs) are frequently used exercises in voice therapy. An important shortcoming to most SOVTEs is the inability to include continuous speech in these exercises. A variation of water-resistance therapy (WRT), during which a patient phonates through a resonance tube ending in water, was developed to include continuous speech: the semi-occluded water resistance ventilation mask (SOVM-WR). The current study investigated the immediate effects of this innovative technique on vocal outcomes of women with dysphonia.</p></div><div><h3>Methods</h3><p>A pretest-posttest randomized controlled trial was performed. Twenty female participants were randomly assigned to the experimental SOVM-WR group or the WRT (control) group. A blinded multidimensional voice assessment was conducted before and after a 30-minute therapy session with the assigned technique.</p></div><div><h3>Results</h3><p>No significant changes were found in acoustic or auditory-perceptual vocal outcomes in either of the groups, except for a significant increase in lowest frequency in both groups. Patient-reported outcomes (PROMs) showed significant improvements of vocal comfort, vocal effort, and voice quality in both groups, and participants indicated that they would use the techniques at home.</p></div><div><h3>Conclusions</h3><p>The similar results of the SOVM-WR to WRT and promising PROMs confirm its suitability as an alternative to the latter technique. Potential reasons for a lack of improvement of objective and auditory-perceptual vocal outcomes are vocal fatigue, tube dimensions and immersion, and the small sample size. Large-scale and longitudinal research is needed to examine whether the SOVM-WR has a higher transfer to spontaneous speech than WRT after a full therapy program.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"103 ","pages":"Article 106331"},"PeriodicalIF":1.7,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9620664","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

“You got an instant conversation”: Goal progress and perceptions following an e-mentoring social media intervention for young people who use augmentative and alternative communication “你有一个即时对话”：针对使用增强型和替代型沟通的年轻人进行电子社交媒体干预后的目标进展和看法

IF 1.7 3区医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Communication Disorders

Pub Date : 2023-05-01 DOI: 10.1016/j.jcomdis.2023.106328

Emma Grace , Jessica Shipman , Parimala Raghavendra , Julie M. McMillan

Introduction

Persons with communication disability are at increased risk of social isolation due to multiple societal barriers. Young people with communication disability are not using social media to the same extent as the general population, limiting their access to social networks. The aim of this research was to investigate an e-mentoring intervention to progress the goal attainment of online conversation for young people who use augmentative and alternative communication (AAC).

Methods

Using a mixed-methods design, four participants between 13 and 18 years of age who used AAC participated in a 4-month cross-age peer e-mentoring intervention. Mentoring was provided by adults who were considered cross-age peers as they also used AAC. The Canadian Occupational Performance Measure (COPM) and Goal Attainment Scaling (GAS) tools were used to measure progress in individually developed goals for online conversation. Interviews with participants, their parents, and their mentors were conducted to describe their experiences of the intervention.

Results

Changes in participants’ COPM ratings of performance and satisfaction with performance following intervention were statistically significant (p = 0.001, p = 0.032 respectively) and on average participant goals were attained at the expected level on the goal attainment scale (T = 63.97). However, goal attainment varied when considering specific goals. Variability in goal progress was described by participants alongside a range of barriers and facilitators. Mentees, their parents, and their mentors perceived that the intervention enabled goal progress and described improvements in social media use that extended beyond the targeted goals.

Conclusions

Outcomes from the COPM and GAS demonstrate the value of cross-age peer e-mentoring to support young people who use AAC to participate in online conversation. Benefits of the intervention were commonly perceived by mentees, their parents, and mentors to extend beyond the specific goal attainments.

引言由于多重社会障碍，有沟通障碍的人面临更大的社会孤立风险。有沟通障碍的年轻人使用社交媒体的程度与普通人群不同，这限制了他们访问社交网络的机会。本研究的目的是调查一种电子交友干预措施，以促进使用增强型和替代型交流（AAC）的年轻人实现在线对话的目标。方法采用混合方法设计，四名使用AAC的13至18岁参与者参与了为期4个月的跨年龄同龄人电子交友干预。辅导由被视为跨年龄同龄人的成年人提供，因为他们也使用AAC。加拿大职业表现测量（COPM）和目标实现量表（GAS）工具用于测量个人制定的在线对话目标的进展情况。对参与者、他们的父母和他们的导师进行了访谈，以描述他们的干预经历。结果干预后参与者的COPM绩效评分和对绩效的满意度变化具有统计学意义（分别为p=0.001和p=0.032），平均而言，参与者的目标达到了目标实现量表上的预期水平（T=63.97）。然而，在考虑特定目标时，目标实现有所不同。参与者描述了目标进展的可变性以及一系列障碍和促进者。受试者、他们的父母和导师认为，干预能够实现目标进展，并描述了社交媒体使用的改进，这些改进延伸到了目标之外。结论来自COPM和GAS的结果证明了跨年龄同龄人电子对话在支持使用AAC参与在线对话的年轻人方面的价值。受试者、他们的父母和导师普遍认为干预的好处超出了特定目标的实现。

{"title":"“You got an instant conversation”: Goal progress and perceptions following an e-mentoring social media intervention for young people who use augmentative and alternative communication","authors":"Emma Grace , Jessica Shipman , Parimala Raghavendra , Julie M. McMillan","doi":"10.1016/j.jcomdis.2023.106328","DOIUrl":"10.1016/j.jcomdis.2023.106328","url":null,"abstract":"<div><h3>Introduction</h3><p>Persons with communication disability are at increased risk of social isolation due to multiple societal barriers. Young people with communication disability are not using social media to the same extent as the general population, limiting their access to social networks. The aim of this research was to investigate an e-mentoring intervention to progress the goal attainment of online conversation for young people who use augmentative and alternative communication (AAC).</p></div><div><h3>Methods</h3><p>Using a mixed-methods design, four participants between 13 and 18 years of age who used AAC participated in a 4-month cross-age peer e-mentoring intervention. Mentoring was provided by adults who were considered cross-age peers as they also used AAC. The Canadian Occupational Performance Measure (COPM) and Goal Attainment Scaling (GAS) tools were used to measure progress in individually developed goals for online conversation. Interviews with participants, their parents, and their mentors were conducted to describe their experiences of the intervention.</p></div><div><h3>Results</h3><p>Changes in participants’ COPM ratings of performance and satisfaction with performance following intervention were statistically significant (<em>p</em> <em>=</em> <em>0.001, p</em> <em>=</em> <em>0.032 respectively</em>) and on average participant goals were attained at the expected level on the goal attainment scale (<em>T</em> = 63.97). However, goal attainment varied when considering specific goals. Variability in goal progress was described by participants alongside a range of barriers and facilitators. Mentees, their parents, and their mentors perceived that the intervention enabled goal progress and described improvements in social media use that extended beyond the targeted goals.</p></div><div><h3>Conclusions</h3><p>Outcomes from the COPM and GAS demonstrate the value of cross-age peer e-mentoring to support young people who use AAC to participate in online conversation. Benefits of the intervention were commonly perceived by mentees, their parents, and mentors to extend beyond the specific goal attainments.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"103 ","pages":"Article 106328"},"PeriodicalIF":1.7,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9608700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Impact of self-disclosure and communication competence on perceived listener distraction. 自我披露和沟通能力对感知到的听众分心的影响。

IF 1.7 3区医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Communication Disorders

Pub Date : 2023-04-01 DOI: 10.2139/ssrn.4377037

D. Werle, C. Byrd, G. Coalson

PURPOSEThe purpose of this study was to investigate the distraction reported by unfamiliar adults when listening to a speaker who stutters, and whether listener distraction is influenced by two factors: self-disclosure and communication competence.METHODTwo hundred seventy-five adults watched a video vignette and were asked to rate their level of distraction when observing an adult Latinx male producing stuttered speech. Each participant watched one of six randomized videos of the same speaker sharing the same content systematically manipulated by (a) presence or absence of 15% stuttering, (b) presence or absence of self-disclosure, and (c) high or low communication competence.RESULTSListener distraction was higher when rating speakers with low communication competence, regardless of whether stuttering or self-disclosure were heard. Videos wherein the speaker was fluent were rated as significantly less distracting, but only in the context of high communication competence. For videos wherein the speaker stuttered, listeners reported significantly less distraction when the speaker demonstrated high communication competence and self-disclosed.FINDINGSThese findings suggest that for persons who stutter, high communication competence and disclosing that they stutter will yield maximum reduction in listener distraction.

目的本研究的目的是调查不熟悉的成年人在听口吃的演讲者讲话时所报告的分心情况，以及听众的分心是否受到两个因素的影响：自我披露和沟通能力。方法275名成年人观看了一段视频短片，并被要求在观察一名成年拉丁裔男性口吃时对他们的注意力分散程度进行评分。每个参与者都观看了六个随机视频中的一个，视频中同一个说话者共享相同的内容，并通过（a）是否有15%的口吃，（b）是否有自我揭露，以及（c）高或低的沟通能力来系统地操纵。结果：无论是否听到口吃或自我表露，当对沟通能力较低的演讲者进行评分时，听众的注意力分散程度更高。演讲者流利的视频被评为明显不那么分散注意力，但仅在高沟通能力的背景下。对于演讲者口吃的视频，当演讲者表现出高沟通能力和自我封闭时，听众的注意力明显减少。发现这些发现表明，对于口吃者来说，高沟通能力并公开自己口吃将最大限度地减少听众的注意力。

{"title":"Impact of self-disclosure and communication competence on perceived listener distraction.","authors":"D. Werle, C. Byrd, G. Coalson","doi":"10.2139/ssrn.4377037","DOIUrl":"https://doi.org/10.2139/ssrn.4377037","url":null,"abstract":"PURPOSE\u0000The purpose of this study was to investigate the distraction reported by unfamiliar adults when listening to a speaker who stutters, and whether listener distraction is influenced by two factors: self-disclosure and communication competence.\u0000\u0000\u0000METHOD\u0000Two hundred seventy-five adults watched a video vignette and were asked to rate their level of distraction when observing an adult Latinx male producing stuttered speech. Each participant watched one of six randomized videos of the same speaker sharing the same content systematically manipulated by (a) presence or absence of 15% stuttering, (b) presence or absence of self-disclosure, and (c) high or low communication competence.\u0000\u0000\u0000RESULTS\u0000Listener distraction was higher when rating speakers with low communication competence, regardless of whether stuttering or self-disclosure were heard. Videos wherein the speaker was fluent were rated as significantly less distracting, but only in the context of high communication competence. For videos wherein the speaker stuttered, listeners reported significantly less distraction when the speaker demonstrated high communication competence and self-disclosed.\u0000\u0000\u0000FINDINGS\u0000These findings suggest that for persons who stutter, high communication competence and disclosing that they stutter will yield maximum reduction in listener distraction.","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"103 1","pages":"106333"},"PeriodicalIF":1.7,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48534084","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

The role of service providers’ linguistic backgrounds on assessment of multilingual children 服务提供者的语言背景在评估多语言儿童中的作用

IF 1.7 3区医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Communication Disorders

Pub Date : 2023-03-01 DOI: 10.1016/j.jcomdis.2023.106302

Suma Suswaram , Nancy C. Brady , Matthew Gillispie

Introduction

Cultural and linguistic competencies play a critical role in speech-language pathology services when working with people from diverse linguistic backgrounds with communication disorders (CD; Hopf et al., 2021). The personal experiences of speech-language pathologists (SLPs) influence their cultural and linguistic competence skills. Training programs that consider these personal factors might address the unique needs of the SLPs based on their experiences. The current research explores the connection between the linguistic backgrounds of the SLPs and the challenges and needs they reported while assessing multilingual children with CD.

Method

This study uses a survey method for documenting and comparing 105 SLPs with varying linguistic backgrounds - monolingual, bilingual, and multilingual - on their reported challenges and needs associated with evaluating communication abilities in children from multilingual families with CD.

Results

Although all the SLPs worked with children from multilingual families, their linguistic backgrounds introduced differences in their clinical assessment opinions. Across all SLPs in the study, common challenges were the limited availability of interpreters, dedicated assessment materials, multilingual clinical supervisors, and pre-professional training opportunities.

Conclusion

This study provides valuable information on the effects of linguistic backgrounds on the clinical opinions of SLPs and alludes to the importance of personal experiences on clinical practices. Future research that examines other personal factors and their effects on the SLPs’ clinical opinions and practices will help the development of evidence-based cultural and linguistic competence training programs.

引言当与来自不同语言背景的沟通障碍患者合作时，文化和语言能力在言语病理学服务中发挥着关键作用（CD；Hopf等人，2021）。言语病理学家的个人经历影响着他们的文化和语言能力。考虑到这些个人因素的培训计划可能会根据SLP的经验来满足他们的独特需求。本研究探讨了SLP的语言背景与他们在评估患有CD的多语言儿童时所报告的挑战和需求之间的联系，和多语言-关于他们报告的与评估患有CD的多语言家庭儿童的沟通能力相关的挑战和需求。结果尽管所有SLP都与多语言家庭的儿童合作，但他们的语言背景在临床评估意见中引入了差异。在研究中的所有SLP中，常见的挑战是口译员、专用评估材料、多语言临床监督员和专业前培训机会有限。结论本研究为语言背景对SLP临床观点的影响提供了有价值的信息，并暗示了个人经验对临床实践的重要性。未来的研究将考察其他个人因素及其对SLP临床观点和实践的影响，这将有助于制定基于证据的文化和语言能力培训计划。

{"title":"The role of service providers’ linguistic backgrounds on assessment of multilingual children","authors":"Suma Suswaram , Nancy C. Brady , Matthew Gillispie","doi":"10.1016/j.jcomdis.2023.106302","DOIUrl":"10.1016/j.jcomdis.2023.106302","url":null,"abstract":"<div><h3>Introduction</h3><p>Cultural and linguistic competencies play a critical role in speech-language pathology services when working with people from diverse linguistic backgrounds with communication disorders (CD; Hopf et al., 2021). The personal experiences of speech-language pathologists (SLPs) influence their cultural and linguistic competence skills. Training programs that consider these personal factors might address the unique needs of the SLPs based on their experiences. The current research explores the connection between the linguistic backgrounds of the SLPs and the challenges and needs they reported while assessing multilingual children with CD.</p></div><div><h3>Method</h3><p>This study uses a survey method for documenting and comparing 105 SLPs with varying linguistic backgrounds - monolingual, bilingual, and multilingual - on their reported challenges and needs associated with evaluating communication abilities in children from multilingual families with CD.</p></div><div><h3>Results</h3><p>Although all the SLPs worked with children from multilingual families, their linguistic backgrounds introduced differences in their clinical assessment opinions. Across all SLPs in the study, common challenges were the limited availability of interpreters, dedicated assessment materials, multilingual clinical supervisors, and pre-professional training opportunities.</p></div><div><h3>Conclusion</h3><p>This study provides valuable information on the effects of linguistic backgrounds on the clinical opinions of SLPs and alludes to the importance of personal experiences on clinical practices. Future research that examines other personal factors and their effects on the SLPs’ clinical opinions and practices will help the development of evidence-based cultural and linguistic competence training programs.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"102 ","pages":"Article 106302"},"PeriodicalIF":1.7,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9232331","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Modifying the Communicative Participation Item Bank (CPIB) for individuals receiving gender-affirming communication care: Stakeholder feedback from cognitive interviews 修改接受性别确认沟通护理的个人的沟通参与项目库（CPIB）：认知访谈中的利益相关者反馈

IF 1.7 3区医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Communication Disorders

Pub Date : 2023-03-01 DOI: 10.1016/j.jcomdis.2023.106312

Jeffrey Teixeira , Jingyu Linna Jin , Carolyn Baylor , Michael Nuara

Introduction

The Communicative Participation Item Bank (CPIB) is a person-reported outcome measure designed for adults with communication disorders. The CPIB has not been validated for use with clients seeking gender-affirming communication care. The purpose of this study was to determine modifications needed to the CPIB for it to be appropriate for transgender respondents.

Methods

Individual qualitative cognitive interviews were conducted with 14 transgender adults (seven assigned male at birth, six assigned female at birth, one intersex / assigned female at birth). As participants completed the CPIB, they were asked to ‘think out loud’ to share their reactions to the items, reasons for their item responses, and any recommendations for changing the CPIB. Interviews were recorded, transcribed, and analyzed to identify common and salient trends in participants’ feedback.

Results

The most salient change participants required was in the CPIB item stem. The original stem (“Does your condition interfere with….”) is inappropriate for transgender clients because referring to being transgender as a ‘condition’ is unacceptable. A new stem (“How difficult is it for you to ….”) was acceptable to participants. The original CPIB uses the phrase ‘family and friends’ to refer to safe and comfortable communication partners. Participants in this study reported that this does not reflect the experiences of many transgender people who are not accepted by their biological families. The recommended alternate wording is “people who know you well.” The items reflected situations that were relevant to participants, and wording was acceptable with few exceptions. Participants suggested they would have responded to the CPIB items differently earlier in their transition, with their scores improving over time.

Conclusions

The original CPIB questionnaire should not be used with transgender clients due to unacceptable wording. The modified items generated from this study require psychometric calibration for a new CPIB version for clients seeking gender-affirming communication care.

引言交际参与项目库（CPIB）是一项针对有交际障碍的成年人的个人报告结果测量。CPIB尚未经验证可用于寻求性别确认沟通护理的客户。本研究的目的是确定需要对CPIB进行修改，使其适用于跨性别受访者。方法对14名跨性别成年人（7名出生时为男性，6名出生时女性，1名出生时双性人/女性）进行个体定性认知访谈。当参与者完成CPIB时，他们被要求“大声思考”，分享他们对项目的反应、项目反应的原因以及更改CPIB的任何建议。访谈被记录、转录和分析，以确定参与者反馈的共同和显著趋势。结果参与者要求的最显著的变化是CPIB项目词干。最初的词干（“你的状况会干扰……吗？”）不适合跨性别客户，因为将跨性别称为“状况”是不可接受的。参与者可以接受一个新的词干（“你有多难……”）。最初的CPIB使用短语“家人和朋友”来指代安全舒适的沟通伙伴。这项研究的参与者报告说，这并不能反映出许多变性人的经历，他们的亲生家庭并不接受这些变性人。建议的备选措辞是“熟悉你的人”。这些项目反映了与参与者相关的情况，措辞是可以接受的，只有少数例外。参与者表示，在过渡早期，他们对CPIB项目的反应会有所不同，随着时间的推移，他们的分数会有所提高。结论由于措辞不可接受，CPIB原始问卷不应用于跨性别客户。本研究产生的修改项目需要为寻求性别确认沟通护理的客户进行新CPIB版本的心理测量校准。

{"title":"Modifying the Communicative Participation Item Bank (CPIB) for individuals receiving gender-affirming communication care: Stakeholder feedback from cognitive interviews","authors":"Jeffrey Teixeira , Jingyu Linna Jin , Carolyn Baylor , Michael Nuara","doi":"10.1016/j.jcomdis.2023.106312","DOIUrl":"10.1016/j.jcomdis.2023.106312","url":null,"abstract":"<div><h3>Introduction</h3><p>The Communicative Participation Item Bank (CPIB) is a person-reported outcome measure designed for adults with communication disorders. The CPIB has not been validated for use with clients seeking gender-affirming communication care. The purpose of this study was to determine modifications needed to the CPIB for it to be appropriate for transgender respondents.</p></div><div><h3>Methods</h3><p>Individual qualitative cognitive interviews were conducted with 14 transgender adults (seven assigned male at birth, six assigned female at birth, one intersex / assigned female at birth). As participants completed the CPIB, they were asked to ‘think out loud’ to share their reactions to the items, reasons for their item responses, and any recommendations for changing the CPIB. Interviews were recorded, transcribed, and analyzed to identify common and salient trends in participants’ feedback.</p></div><div><h3>Results</h3><p>The most salient change participants required was in the CPIB item stem. The original stem (“Does your condition interfere with….”) is inappropriate for transgender clients because referring to being transgender as a ‘condition’ is unacceptable. A new stem (“How difficult is it for you to ….”) was acceptable to participants. The original CPIB uses the phrase ‘family and friends’ to refer to safe and comfortable communication partners. Participants in this study reported that this does not reflect the experiences of many transgender people who are not accepted by their biological families. The recommended alternate wording is “people who know you well.” The items reflected situations that were relevant to participants, and wording was acceptable with few exceptions. Participants suggested they would have responded to the CPIB items differently earlier in their transition, with their scores improving over time.</p></div><div><h3>Conclusions</h3><p>The original CPIB questionnaire should not be used with transgender clients due to unacceptable wording. The modified items generated from this study require psychometric calibration for a new CPIB version for clients seeking gender-affirming communication care.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"102 ","pages":"Article 106312"},"PeriodicalIF":1.7,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9232352","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2