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Assessment of patients with head and neck cancer using the MD Anderson Dysphagia Inventory: Results of a study into its comprehensiveness, comprehensibility and relevance to clinical practice 使用 MD 安德森吞咽困难量表对头颈部癌症患者进行评估:对其全面性、可理解性和与临床实践的相关性的研究结果。
IF 1.5 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2024-03-05 DOI: 10.1111/1460-6984.13026
Kate Toft, Catherine Best, Jayne Donaldson
<div> <section> <h3> Background</h3> <p>The MD Anderson Dysphagia Inventory (MDADI) is a widely used patient-reported outcome measure (PROM) which assesses dysphagia-related quality of life (QoL) in head and neck cancer (HNC). Despite its common use in HNC research and clinical practice, few of its psychometric properties have been reappraised since its inception. The aim of this study was to perform a survey-based qualitative analysis of UK HNC clinicians’ perceptions of the content validity of the MDADI, evaluating it across the parameters of relevance, comprehensiveness and comprehensibility as per the COSMIN guideline for PROM assessment.</p> </section> <section> <h3> Results</h3> <p>Four themes relating to the content validity of the MDADI were identified: (1) MDADI items lack clarity of definition of the terms ‘swallowing’, ‘eating’ and ‘dysphagia’; (2) the MDADI is perceived to be overly negative in tone including items that service users may find distressing or disempowering; (3) items in the tool are exclusory to specific subgroups of patients, such as those who are nil by mouth or socially isolated; and (4) modifications to the MDADI were suggested and encouraged to make it more clinically useful and patient-centred.</p> </section> <section> <h3> Conclusions</h3> <p>This study indicates that MDADI's content validity is ‘insufficient’ when rated by COSMIN parameters. This has significant implications for its continued use in HNC research and clinical practice. Further re-evaluation of the content validity of the MDADI is warranted, with potential future amendment of items being indicated if the results of this study are corroborated in subsequent research.</p> </section> <section> <h3> What this paper adds</h3> <section> <h3> What is already known on the subject</h3> <div> <ul> <li>The MD Anderson Dysphagia Inventory (MDADI) patient-reported outcome measure of dysphagia-related quality of life is widely used in clinical practice and international clinical trials. Content validity is considered to be the most important property of a tool when assessing its psychometric strengths and weaknesses; however, the MDADI's content validity has not been reappraised since its initial development.</li> </ul> </div> </section> <section> <h3> What this paper adds to existing knowledge</h3>
背景:MD 安德森吞咽困难量表(MDADI)是一种广泛使用的患者报告结果量表(PROM),用于评估头颈部癌症(HNC)患者吞咽困难相关的生活质量(QoL)。尽管该指标在 HNC 研究和临床实践中被广泛使用,但自其问世以来,很少有人对其心理测量特性进行过重新评估。本研究旨在对英国 HNC 临床医生对 MDADI 内容有效性的看法进行基于调查的定性分析,并根据 COSMIN PROM 评估指南中的相关性、全面性和可理解性参数对 MDADI 进行评估:结果:确定了与 MDADI 内容有效性相关的四个主题:(1) MDADI 的项目对 "吞咽"、"进食 "和 "吞咽困难 "等术语的定义不够清晰;(2) MDADI 的语气被认为过于消极,其中包括一些服务使用者可能会感到痛苦或无能为力的项目;(3) 工具中的项目只适用于特定的患者亚群,如那些没有口服药物或与社会隔绝的患者;(4) 建议并鼓励对 MDADI 进行修改,以使其在临床上更加有用,并以患者为中心:本研究表明,根据 COSMIN 参数评定,MDADI 的内容效度为 "不足"。这对在 HNC 研究和临床实践中继续使用 MDADI 有重大影响。有必要进一步重新评估 MDADI 的内容效度,如果本研究的结果在后续研究中得到证实,则有可能在未来对项目进行修订:有关该主题的已知信息 MD 安德森吞咽困难量表(MDADI)是由患者报告的吞咽困难相关生活质量的结果测量,被广泛应用于临床实践和国际临床试验中。内容效度被认为是一种工具在评估其心理测量优缺点时最重要的属性;然而,MDADI 的内容效度自其最初开发以来一直未得到重新评估。本文对现有知识的补充 本研究介绍了英国言语和语言治疗师对 MDADI 内容效度的看法和经验,这是自 MDADI 最初开发以来对其内容效度的首次重新评估,凸显了该工具在心理测量参数方面存在的几个问题。本研究强调,有必要对 MDADI 的内容效度进行进一步的重新评估,如果本研究的结果在后续研究中得到证实,则有可能在未来对项目进行修正。这项研究的潜在或实际临床意义是什么?临床医生不能假定常用的结果工具都具有很强的心理测量特征。在选择临床和研究实践中使用的结果工具时,对其内容效度的考虑应是关键,因为这将鼓励使用能产生相关有效数据的工具,从而为以患者为中心的护理做出有意义的贡献。
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引用次数: 0
Age-related differences in the interplay of fluency and complexity in Chinese-speaking seniors’ oral narratives 讲中文的老年人口语叙述中流畅性和复杂性相互作用的年龄差异
IF 1.5 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2024-02-26 DOI: 10.1111/1460-6984.13023
Minli Wang, Min Wang
<div> <section> <h3> Background</h3> <p>Previous studies on language production in normal ageing have primarily focused on distinct dimensions of older adults’ spoken language performance, such as fluency and complexity. However, little attention has been paid to the complex, interconnected relations between these dimensions. Additionally, older adults have been treated as a homogeneous group, with little consideration for the differential characteristics of language performance across different stages of ageing.</p> </section> <section> <h3> Aims</h3> <p>This study aims to investigate how increasing age impacts Chinese seniors’ oral language performance, focusing on fluency (articulation rate and dysfluency rate), complexity (lexical and syntactic) and the potential interactions between these dimensions.</p> </section> <section> <h3> Methods & Procedures</h3> <p>Spontaneous oral narratives were collected from 60 normally ageing individuals, who were categorised into three groups: young-old (60–69 years old), middle-old (70–79 years old) and old-old (≥80 years old). Four measures for assessing language performance, namely, articulation rate, dysfluency rate, lexical complexity and syntactic complexity, were derived from the oral narratives. Dynamic systems techniques, including moving correlations, locally estimated scatterplot smoothing and Monte Carlo simulations, were employed for data analysis.</p> </section> <section> <h3> Outcomes & Results</h3> <p>This study revealed two major findings. First, across different age groups, the seniors’ oral narratives significantly differed in the aspect of articulation rate and syntactic complexity. Specifically, both the young-old and the middle-old groups exhibited significantly higher articulation rates than the old-old group; the middle-old group also demonstrated significantly higher syntactic complexity compared to the old-old group. Second, the distinct subsystems (i.e., articulation rate, dysfluency rate, lexical and syntactic complexity) of seniors’ oral narratives demonstrated varying interactions across different stages of ageing. While these subsystems tended to coordinate with each other in young-old individuals, they exhibited a greater tendency to compete in middle-old and old-old individuals.</p> </section> <section> <h3> Conclusions & Implications</h3> <p>The findings reveal that subsystems of older adults’ oral narratives display varying interactions with the increase of age, indicating that focusing solely on one dimension of language performance may result in inaccurate or mislea
以往关于正常老龄化语言生产的研究主要集中在老年人口语表现的不同方面,如流利性和复杂性。然而,人们很少关注这些方面之间复杂而又相互关联的关系。此外,老年人一直被视为一个同质群体,很少考虑不同年龄阶段语言表达的不同特点。
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引用次数: 0
Community responses to persons with aphasia participating in CoActive therapeutic theatre: A pilot study 社区对失语症患者参与 CoActive 治疗剧场的反应:试点研究
IF 1.5 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2024-02-26 DOI: 10.1111/1460-6984.13019
Hia Datta, Laura L. Wood, Susan Alimonti, Danielle Pugliese, Hannah Butkiewicz, Francesca Jannello, Breann Rissland, Kristen Tully
<div> <section> <h3> Background</h3> <p>Persons with aphasia (PWA) experience a number of communicative and social-emotional challenges. Reported experiences of PWA include but are not limited to, being misunderstood, isolated, frustrated, and infantilised.</p> </section> <section> <h3> Aims</h3> <p>The aim of this pilot study, involving a Life Participation Approach to Aphasia (LPAA), conducted over the course of 2 years, was to understand community perceptions of aphasia while PWA engaged in an interprofessional treatment program involving speech and drama therapy.</p> </section> <section> <h3> Methods & Procedures</h3> <p>The interprofessional treatment program involved PWA participating in a therapeutic theatre program using the CoActive Therapeutic Theater (CoATT) while also receiving speech-language therapy. Each year, the PWA performed a different, original therapeutic theatre production for a public audience, at the culmination of their interprofessional treatment program. In this paper, we share data obtained from perspectives of audience members who witnessed the theatre production and aphasia education during the first year of the study and friends and family of PWA who participated in the therapeutic theatre process during the second year of the study.</p> </section> <section> <h3> Outcomes & Results</h3> <p>Responses from audience members who participated in aphasia education and witnessed the therapeutic theatre performance by the PWA during the first year, indicated an increased knowledge of aphasia. Friends and family members of PWA who witnessed their loved ones engaging in the CoATT process through interprofessional treatment, in the second year, reported that their loved ones benefited from the CoATT process, which was distinct from other therapeutic processes to their knowledge and that they were impacted by watching their loved one perform.</p> </section> <section> <h3> Conclusions & Implications</h3> <p>These initial findings create footing towards understanding impact of therapeutic theatre in combination with speech-language therapy in the lives of PWA. They help us to obtain an initial appreciation of how therapeutic theatre and aphasia education help connect PWA and their community.</p> </section> <section> <h3> WHAT THIS PAPER ADDS</h3> <section> <h3> What is already known on this subject</h3> <div> <ul> <li>Care
失语症患者(PWA)在沟通和社交情感方面会遇到许多挑战。据报告,失语症患者的经历包括但不限于被误解、孤立、沮丧和幼稚化。
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引用次数: 0
It's a changing landscape: Complexity and innovation in cognitive-communication rehabilitation for people with acquired brain injury (ABI) 这是一个不断变化的世界:后天性脑损伤(ABI)患者认知交流康复的复杂性与创新。
IF 2.4 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2024-02-23 DOI: 10.1111/1460-6984.13022
Rachael Rietdijk, Melissa Brunner, Paul Conroy, Mark Jayes, Leanne Togher
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引用次数: 0
Using Conversation Analysis to explore assessments of decision-making capacity in a hospital setting 使用对话分析法探讨医院环境中的决策能力评估。
IF 1.5 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2024-02-20 DOI: 10.1111/1460-6984.13020
Jessica Foulkes, Anna Volkmer, Suzanne Beeke
<div> <section> <h3> Background</h3> <p>Healthcare professionals (HCPs) have a responsibility to conduct assessments of decision-making capacity that comply with the Mental Capacity Act 2005 (MCA). Current best-practice guidance, such as the Mental Capacity Code of Practice and National Institute for Health and Care Excellence decision-making and mental capacity guidance, does not stipulate how to accomplish this in practice, for example, what questions should be asked, how options and information should be provided. In addition, HCPs struggle to assess the capacity of individuals with communication difficulties.</p> </section> <section> <h3> Aims</h3> <p>This study was a service evaluation that aimed to objectively analyse, using Conversation Analysis (CA), how real-life capacity assessments were conducted in a hospital setting with patients with acquired brain injury (ABI)-related communication difficulties. A second aim was to establish the feasibility of using CA to advance knowledge of the conduct of capacity assessment.</p> </section> <section> <h3> Methods & Procedures</h3> <p>Four naturally occurring capacity assessments were video-recorded. Recordings involved speech and language therapists, occupational therapists, neuropsychologists and patients with communication difficulties as a result of ABI. The methods and findings of CA were used to investigate the interactional behaviours of HCPs and patients during assessments of decision-making capacity. The analysis was informed by our knowledge of the MCA best practice guidance.</p> </section> <section> <h3> Outcomes & Results</h3> <p>An overall structure of capacity assessment that enacted some of the best-practice MCA guidance was identified in one recording, consisting of six phases: (i) opening, (ii) preparation, (iii) option-listing, (iv) test, (v) decision, and (vi) close. The preparation phase consisted of two sub-components: information gathering and information giving. Variation from this structure was observed across the dataset, notably in the way in which options were (or were not) presented.</p> </section> <section> <h3> Conclusions & Implications</h3> <p>CA is a feasible empirical method for exploring the structure and conduct of capacity assessments. CA identifies and provides ways of describing interactional behaviours that align with and diverge from best-practice MCA guidance. Future CA studies including a wider range of health and social care professionals and p
背景:医疗保健专业人员(HCPs)有责任按照 2005 年《心智能力法》(MCA)的规定对患者的决策能力进行评估。目前的最佳实践指南,如《心智能力行为准则》(Mental Capacity Code of Practice)和《国家健康与护理卓越研究所决策与心智能力指南》(National Institute for Health and Care Excellence decision-making and mental capacity guidance),并没有规定如何在实践中做到这一点,例如,应该提出哪些问题,如何提供选择和信息。目的:本研究是一项服务评估,旨在利用会话分析法(Conversation Analysis,CA)客观分析在医院环境中如何对与后天性脑损伤(ABI)相关的交流障碍患者进行真实的行为能力评估。第二个目的是确定使用会话分析推进能力评估知识的可行性:对四次自然发生的能力评估进行录像。录制者包括言语和语言治疗师、职业治疗师、神经心理学家以及因缺血性脑损伤而有交流障碍的患者。CA 的方法和结果被用于调查在决策能力评估过程中 HCP 和患者的互动行为。该分析参考了我们对MCA最佳实践指南的了解:在一份记录中确定了能力评估的整体结构,该结构采用了 MCA 最佳实践指南的部分内容,由六个阶段组成:(i) 开始,(ii) 准备,(iii) 选项列表,(iv) 测试,(v) 决定,(vi) 结束。准备阶段包括两个子部分:信息收集和信息提供。在整个数据集中可以观察到与这一结构不同的地方,特别是选项的展示(或不展示)方式:能力评估是探索能力评估结构和实施的一种可行的实证方法。CA识别并提供了描述互动行为的方法,这些方法与MCA最佳实践指南既有一致之处,也有不同之处。未来的CA研究将包括更广泛的医疗和社会护理专业人员及患者,有可能为进行决策能力评估的医疗和社会护理专业人员的循证培训提供信息:关于此主题的已知信息 《心智能力法案》(MCA)在实践中执行不力。医疗保健专业人员(HCPs)发现,对有沟通障碍的人进行决策能力评估具有挑战性,而在能力评估过程中,有沟通障碍的人往往被排除在外或得不到足够的支持。研究仅限于自我报告方法。需要对能力评估进行观察研究。本研究的新增内容 这是第一项使用会话分析法(Conversation Analysis,CA)探讨在医院环境中,医护人员如何对后天性脑损伤导致的沟通障碍者进行能力评估的研究。其中一个能力评估视频录像分为六个阶段,与 MCA 最佳实践指南保持一致。然而,其他能力评估则偏离了这一结构。其中一个阶段,即选项列表,在实践中存在差异,选项并不总是呈现出来。这项工作的临床意义是什么?行为能力评估揭示了与 MCA 最佳实践指南相一致和相背离的互动行为。未来有必要开展 CA 研究,以便为开展行为能力评估的医疗和社会护理专业人员的培训提供信息。
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引用次数: 0
The impact of PD Check-In on self-management skills for maintenance of speech after intensive treatment PD Check-In 对强化治疗后保持言语能力的自我管理技能的影响。
IF 1.5 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2024-02-20 DOI: 10.1111/1460-6984.13024
Ann Finnimore, Deborah Theodoros, Anna F. Rumbach
<div> <section> <h3> Background</h3> <p>Maintenance of speech outcomes following speech-language therapy (SLT) in Parkinson's disease (PD) is an unmet expectation of people with PD (PWPD) and poorly defined in SLT practice. PD Check-In, a model for supported self-managed maintenance of speech following Lee Silverman Voice Treatment (LSVT) LOUD was investigated.</p> </section> <section> <h3> Aims</h3> <p>To investigate the impact of the semi-structured component of PD Check-In on the adoption of self-management concepts and behaviours and the identification of facilitators, barriers and strategies for speech maintenance by PWPD over 24 months post-treatment.</p> </section> <section> <h3> Methods and procedure</h3> <p>Following LSVT LOUD, 16 PWPD participated in individual PD Check-In semi-structured discussions with a SLT at 6 and 12 weeks, and 6, 12 and 24 months post treatment. A two-stage qualitative content analysis was applied: directed content analysis using categories from the theoretical framework of PD Check-In followed by inductive content analysis to identify subcategories.</p> </section> <section> <h3> Outcomes and results</h3> <p>Statements from PWPD indicated adoption of seven concepts of self-management across participants and across time. Six concepts from the theoretical framework of PD Check-In (partnerships, self-reflection, maintenance barriers and facilitators, revision of LSVT LOUD skill, goal setting and maintenance strategies), and one new category, participation, emerged from the analysis. Self-reflection, maintenance facilitators and barriers and participation were most prevalent in discussions. PWPD identified facilitators, barriers and strategies for maintenance across time points.</p> </section> <section> <h3> Conclusions and implications</h3> <p>Statements from PWPD indicated a positive impact of SLT-supported self-management of speech using self-tailored strategies for sustainable maintenance according to their individual circumstances and needs.</p> </section> <section> <h3> WHAT THIS PAPER ADDS</h3> <section> <h3> What is already known on this subject</h3> <div> <ul> <li>People with Parkinson's disease (PWPD) have expressed their need for speech-language therapy (SLT) service
背景:帕金森病(Parinson's disease,PD)患者在接受言语治疗(SLT)后,其言语能力的维持是他们的期望,但在 SLT 实践中却没有得到很好的定义。目的:调查帕金森病患者在治疗后 24 个月内采用自我管理概念和行为以及识别语言维持的促进因素、障碍和策略的情况:在进行LSVT LOUD治疗后,16名残疾人分别在治疗后6周和12周、6个月、12个月和24个月参加了由一名语言康复师主持的半结构化个人PD Check-In讨论。我们采用了两阶段定性内容分析:利用 "PD Check-In "理论框架中的类别进行定向内容分析,然后进行归纳内容分析,以确定子类别:结果和成果:PWPD 的陈述表明,不同参与者在不同时期采用了七种自我管理概念。通过分析,我们得出了 "PD Check-In "理论框架中的六个概念(伙伴关系、自我反思、维持的障碍和促进因素、LSVT LOUD 技能的修订、目标设定和维持策略)和一个新的类别--参与。在讨论中,自我反思、维持的促进因素和障碍以及参与最为普遍。公共工程专业人员确定了不同时间点的促进因素、障碍和维持策略:PWPD的发言表明,在SLT的支持下,根据个人情况和需求使用自我定制的可持续维护策略进行言语自我管理具有积极影响:帕金森病患者(PWPD)表示,他们需要在患病期间都能获得语言治疗(SLT)服务,并能满足他们在治疗后保持言语能力的期望。李-西尔弗曼嗓音治疗法(LSVT)LOUD治疗后的疗效维持情况各不相同。本文对现有知识的补充 本研究介绍了残疾人在接受LSVT LOUD治疗后24个月内,通过与SLT进行半结构化讨论,采取五项PD Check-In干预措施,培养自我管理技能和行为的结果。残疾人根据自己的情况和需要,采用自我定制的策略,积极进行自我管理,以实现可持续的维持。这项工作有哪些潜在或实际的临床影响?随着时间的推移,残疾人对自我管理技能和行为的个人发展做出了积极回应。个性化和灵活响应是 "PD Check-In "的特点,这些特点引起了残疾人的共鸣,也说明了 SLT 支持的自我管理言语维护是治疗 PD 的一种长期模式。
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引用次数: 0
Factors influencing speech pathology practice in dysphagia after stroke: A qualitative focus group study 影响中风后吞咽困难言语病理学实践的因素:焦点小组定性研究。
IF 1.5 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2024-02-19 DOI: 10.1111/1460-6984.13017
Jacinda Choy, Fereshteh Pourkazemi, Hans Bogaardt, Caitlin Anderson, Shing Yee Chai, Roxanna N. Pebdani
<div> <section> <h3> Background</h3> <p>Dysphagia affects over half of adults after stroke. Dysphagia rehabilitation aims to improve swallowing and reduce negative outcomes for these adults. However, significant variability exists in dysphagia rehabilitation. Research is needed to explore the underlying clinician-specific and workplace factors that contribute to variability in dysphagia rehabilitation after stroke.</p> </section> <section> <h3> Aim</h3> <p>To explore factors influencing speech pathology practice in dysphagia rehabilitation after stroke.</p> </section> <section> <h3> Methods & Procedures</h3> <p>We used a phenomenological approach with an interpretivist perspective. Twenty speech pathologists working in dysphagia rehabilitation participated from different workplace settings around Australia. Five semi-structured focus groups were conducted online. Data were inductively analysed using thematic analysis with a coding reliability method.</p> </section> <section> <h3> Outcomes & Results</h3> <p>Four themes were discussed within focus groups: (1) relationship between experienced and less experienced clinicians: ‘Following what other people have done’, (2) need for collaborative learning: ‘A safe space to share and train’, (3) variation between settings impacts on continuity of care: ‘There's a difference between community and acute’, and (4) working effectively with multidisciplinary teams (MDT): ‘An MDT which can listen to the voice of speech pathology’.</p> </section> <section> <h3> Conclusions & Implications</h3> <p>Relationships between senior and junior speech pathologists, within speech pathology and MDT, and across inpatient and community settings influenced speech pathology practice. Flattened hierarchies in speech pathology, collaborative learning in workplaces, mutual respect within teams and connection across inpatient and community settings could improve the quality and consistency of dysphagia rehabilitation after stroke.</p> </section> <section> <h3> WHAT THIS PAPER ADDS</h3> <section> <h3> What is already known on this subject</h3> <div> <ul> <li>Dysphagia rehabilitation can improve swallowing after a stroke. However, dysphagia rehabilitation is characterised by variabi
背景:一半以上的成年人在中风后会出现吞咽困难。吞咽困难康复旨在改善这些成年人的吞咽功能,减少不良后果。然而,吞咽困难康复存在很大的差异。目的:探讨影响中风后吞咽困难康复的语言病理学实践的因素:我们采用了解释学视角的现象学方法。来自澳大利亚不同工作场所的 20 名从事吞咽困难康复工作的语言病理学家参与了研究。我们在网上进行了五次半结构化焦点小组讨论。采用主题分析法和编码可靠性法对数据进行归纳分析:焦点小组讨论了四个主题:(1) 经验丰富的临床医生与经验不足的临床医生之间的关系:"遵循其他人的做法";(2) 合作学习的需要:"分享和培训的安全空间";(3) 不同环境对护理连续性的影响:"社区和急诊之间存在差异";(4) 与多学科小组(MDT)有效合作:结论与影响:高级和初级言语病理学家之间、言语病理和 MDT 内部以及住院和社区环境之间的关系影响了言语病理实践。语言病理学中扁平化的等级制度、工作场所中的协作学习、团队内部的相互尊重以及住院和社区环境之间的联系可以提高中风后吞咽困难康复的质量和一致性:关于此主题的已知信息 吞咽困难康复可改善中风后的吞咽功能。然而,吞咽困难康复的特点是临床实践的多变性。临床医生和工作场所的特定因素会影响临床实践,并可能导致吞咽困难康复的差异性。本研究的补充内容 专业关系会影响言语病理学家的临床实践,包括高级和初级临床医生之间的关系、住院和社区环境之间的关系以及与同行和多学科团队之间的关系。工作场所的规范和等级制度、不同环境之间护理的连续性差以及来自其他学科的优先事项相互竞争,都会阻碍吞咽困难的康复。然而,协作学习、积极的工作场所文化和相互尊重的跨学科护理可以提高临床实践的质量和一致性。这项工作的临床意义是什么?扁平化的工作场所等级制度可以营造一个安全的学习空间。此外,对工作场所规范提出质疑,并在内部和跨机构寻求同行学习,可以培养临床技能和信心。发展支持持续发展的积极工作场所文化,可能是增强语言病理学家提供高质量、持续性吞咽困难康复服务能力的关键。
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引用次数: 0
Exploring concepts of friendship formation in children with language disorder using a qualitative framework analysis 利用定性框架分析法探讨语言障碍儿童建立友谊的概念。
IF 1.5 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2024-02-14 DOI: 10.1111/1460-6984.13021
Lenka Janik Blaskova, Jenny L. Gibson
<div> <section> <h3> Purpose</h3> <p>Sociometric studies and adult reports have established that children with Language Disorder (LD) are at risk of peer relationship difficulties. However, we have limited knowledge of how children with LD understand friendship, whom they deem as a good or bad friend, and what role their friendship concepts play in their relationships with peers. This exploratory study aimed to conduct a qualitative investigation into the friendship concepts that children with LD hold and to explore their strategies for making friends.</p> </section> <section> <h3> Methods</h3> <p>We conducted multiple, art-informed interviews on the topic of friendship with 14 children with LD at the age of 6–8 years. Participating children were based in the United Kingdom and Republic of Ireland. They attended enhanced provision, specific speech and language classes and mainstream classrooms. We used framework analysis to map children's responses to Selman's (1979) developmental model of interpersonal understanding, which espouses a theory of children's social development within the context of peer relationships.</p> </section> <section> <h3> Results</h3> <p>The understanding of friendship formation in children with LD varied from physical presence to mutual support and sharing. Children's ideas about a good/bad friend represented the lowest developmental stage. Participants from the mainstream classroom demonstrated the highest stages of interpersonal understanding. Children with LD did not mention their language abilities as a barrier to making friends.</p> </section> <section> <h3> Conclusion</h3> <p>There are limited studies exploring friendship directly from children with LD, and this study provides insights into this gap, by utilising art-informed interviews. Children's immature understanding of a good/bad friend points towards a potential susceptibility to false friends, which we suggest needs further empirical validation. We also found that children with LD did not pay attention to their language difficulties when making friends, which raises questions about the ways diagnoses are shared with children.</p> </section> <section> <h3> WHAT THIS PAPER ADDS</h3> <section> <h3> What is already known on the subject</h3> <div> <ul> <li>Children with Language Disorder (LD) are at risk of peer relationship
目的:社会计量学研究和成人报告已经证实,语言障碍(LD)儿童有可能在同伴关系方面遇到困难。然而,我们对语言障碍儿童如何理解友谊、他们认为谁是好朋友或坏朋友,以及他们的友谊观念在他们与同伴的关系中所起的作用了解有限。这项探索性研究旨在对患有 LD 的儿童所持有的友谊观念进行定性调查,并探索他们的交友策略:我们以友谊为主题,对 14 名 6-8 岁的 LD 儿童进行了多次艺术性访谈。参与访谈的儿童来自英国和爱尔兰共和国。他们就读于强化班、特殊言语和语言班以及主流班级。我们采用框架分析法将儿童的反应与塞尔曼(Selman,1979 年)的人际理解发展模型相联系,该模型支持儿童在同伴关系背景下的社会发展理论:结果:患有 LD 的儿童对建立友谊的理解各不相同,从身体上的存在到相互支持和分享。儿童对好朋友/坏朋友的认识处于最低发展阶段。主流班级的参与者对人际关系的理解达到了最高阶段。有语言障碍的儿童没有提到他们的语言能力是交朋友的障碍:直接从 LD 儿童的角度探讨友谊的研究非常有限,本研究通过利用以艺术为基础的访谈为这一空白提供了见解。儿童对 "好朋友"/"坏朋友 "的理解尚不成熟,这表明他们可能容易交到假朋友,我们认为这需要进一步的实证验证。我们还发现,患有 LD 的儿童在交朋友时并没有注意到自己的语言障碍,这就提出了关于如何与儿童分享诊断结果的问题:对这一主题的已有认识 有语言障碍(LD)的儿童有可能在同伴关系方面遇到困难。迄今为止的研究都是基于社会计量学和成人报告。只有少数研究采用了儿童参与式研究方法,直接让有语言障碍的儿童参与探讨他们的友谊关系。 本文补充:本文直接询问有语言障碍的儿童对友谊的理解和交友策略。身体接近和游戏对儿童理解友谊很重要,尤其是在识别好朋友和坏朋友方面。此外,患有 LD 的儿童并不认为语言和交流是交友的障碍。这项研究的潜在或实际临床意义是什么?应定期评估有关友谊和好/坏朋友的概念,并(在适当的情况下)有针对性地采取干预措施。本研究强调,有必要继续讨论与患有 LD 的儿童分享诊断结果的做法。
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引用次数: 0
‘Communication is difficult’: Speech, language and communication needs of people with young onset or rarer forms of non-language led dementia 沟通很困难":年轻痴呆症患者或较罕见的非语言性痴呆症患者的言语、语言和交流需求。
IF 1.5 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2024-02-08 DOI: 10.1111/1460-6984.13018
Anna Volkmer, Lisa Cross, Lily Highton, Connie Jackson, Chloe Smith, Emilie Brotherhood, Emma V. Harding, Cath Mummery, Jonathan Rohrer, Rimona Weil, Keir Yong, Sebastian Crutch, Chris J. D. Hardy
<div> <section> <h3> Background</h3> <p>People with behavioural variant frontotemporal dementia, Lewy body dementia, posterior cortical atrophy and young onset Alzheimer's disease may experience language and communication difficulties. However, the role of speech and language interventions for people with these non-language led dementias has received little attention.</p> </section> <section> <h3> Aims</h3> <p>This study aimed to explore the experiences and perspectives of people living with these conditions, and their families, regarding their language and communication difficulties and how speech and language therapy could address these needs.</p> </section> <section> <h3> Methods</h3> <p>This study employed a qualitative design to explore the experiences of people living with or caring for somebody with behavioural variant frontotemporal dementia, Lewy body dementia, posterior cortical atrophy or young onset Alzheimer's disease, and to understand their opinions about speech and language therapy. Participants were recruited from a support service connected to a dementia clinic to attend one of five focus group meetings. Videorecorded focus groups and interviews were transcribed, and reflexive thematic analysis was used to analyse data from people affected by each type of dementia.</p> </section> <section> <h3> Results</h3> <p>A total of 25 participants were recruited to the study, with representation across the different forms of non-language led dementias. The four main themes identified were: (1) communication difficulties as a key difficulty, (2) loss and loneliness, (3) speech and language therapy, and (4) the role of the caregiver. Sixteen subthemes were also identified which highlighted individual issues across disease types.</p> </section> <section> <h3> Discussion</h3> <p>Although all the forms of dementia studied here are not considered to be language-led, people with these conditions and/or their care partners identified speech, language and communication as common challenges. These communication difficulties were reported to have a negative impact on their social participation and mental health and participants felt speech and language interventions could help. There is a need for research exploring speech and language interventions developed for and with people with non-language led dementias and their care partners, to ensure they meet the needs of the people they are designed for.</p> </section>
背景:行为变异性额颞叶痴呆症、路易体痴呆症、后皮质萎缩症和年轻阿尔茨海默氏症患者可能会遇到语言和交流障碍。目的:本研究旨在探讨这些疾病的患者及其家人在语言和交流障碍方面的经验和观点,以及言语治疗如何满足这些需求:本研究采用定性设计,探讨行为变异型额颞叶痴呆症、路易体痴呆症、后皮质萎缩症或年轻阿尔茨海默氏症患者或其护理人员的经历,并了解他们对言语和语言治疗的看法。参与者是从一家与痴呆症诊所相关的支持服务机构招募的,他们将参加五次焦点小组会议中的一次。焦点小组会议和访谈的录像均已转录,并采用反思性主题分析法对来自各类痴呆症患者的数据进行了分析:本研究共招募了 25 名参与者,涵盖了不同形式的非语言性痴呆症。确定的四大主题是(1) 沟通困难是主要困难,(2) 失去亲人和孤独感,(3) 言语治疗,(4) 照顾者的角色。此外,还确定了 16 个次主题,强调了不同疾病类型的个别问题:讨论:尽管本文研究的所有痴呆症形式都不被认为是由语言导致的,但这些疾病的患者和/或他们的护理伙伴认为言语、语言和交流是共同面临的挑战。据报告,这些交流困难对他们的社会参与和心理健康造成了负面影响,参与者认为语言和交流干预措施可以起到帮助作用。有必要开展研究,探索针对非语言性痴呆症患者及其护理伙伴的言语和语言干预措施,以确保这些措施能够满足他们的需求:有关该主题的已知信息 原发性进行性失语症患者存在言语、语言和交流障碍,目前已开发出多种言语和语言干预措施来满足这类人群的需求。然而,非语言性痴呆症患者也可能出现言语、语言和交流障碍,而人们对解决这些障碍的干预措施知之甚少。本文对现有知识的补充 与行为变异型额颞叶痴呆症、路易体痴呆症、后皮质萎缩症和年轻发病型阿尔茨海默氏症患者共同生活或照顾这些患者的人报告说,他们会遇到言语、语言和交流障碍,这些障碍会影响痴呆症患者的社会参与和情绪。本研究的参与者还分享了他们对如何从疾病的最初阶段开始进行言语和语言干预的看法。这项工作有哪些潜在或实际的临床意义?言语和语言治疗师需要满足痴呆症患者在言语、语言和交流方面的个人需求,即使是那些不被认为是由语言导致的需求。目前提供的言语和语言治疗服务无法满足非语言主导型痴呆症患者的需求,因此需要开展进一步研究,以开发满足这些需求的干预措施和服务。
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引用次数: 0
The risk factors for silent aspiration: A retrospective case series and literature review 无声吸入的风险因素:回顾性病例系列和文献综述
IF 1.5 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2024-02-01 DOI: 10.1111/1460-6984.13013
Barbara Jamróz, Maria Sobol, Joanna Chmielewska-Walczak, Magdalena Milewska, Kazimierz Niemczyk
<div> <section> <h3> Aim</h3> <p>Evidence shows that 20%–30% of patients who aspirate do so silently. Research to date has not demonstrated clear evidence to indicate which patients are at higher risk of silent aspiration. Our aim was to use univariate logistic regression analysis of retrospective case review to determine potential patterns of silent aspiration.</p> </section> <section> <h3> Materials and methods</h3> <p>We conducted a retrospective analysis of 455 fiberoptic endoscopic evaluation of swallowing (FEES) reports. The patients were divided into four groups: G1 – neurological diseases (<i>n</i> = 93), G2 – head and neck surgery (<i>n</i> = 200), G3 – gastroenterological diseases (<i>n</i> = 94) and G4 – other patients (<i>n</i> = 68). Data included the occurrence or absence of saliva penetration or aspiration, of silent fluid/solid food penetration or aspiration, type of penetration or aspiration, occurrence of cranial nerve paresis, radiotherapy and tracheostomy. Univariate logistic regression was used to evaluate independent risk factors of silent aspiration in the study population. Three models with different independent variables were considered.</p> </section> <section> <h3> Results</h3> <p>There is a statistically significant difference in the frequency of occurrence of silent penetration and aspiration within the groups (<i>p</i> < 0.001), with intraglutative being most frequent. Fluid and food penetration and aspiration correlated with saliva penetration and aspiration in all groups (<i>p</i> < 0.001). Cranial nerve paresis (IX and X), radiotherapy and tracheostomy correlate with saliva penetration and aspiration (<i>p</i> = 0.020 for cranial nerve paresis; <i>p</i> = 0.004 for radiotherapy; <i>p</i> < 0.001 for tracheostomy). One hundred and fifteen patients (45.81%) in the subgroup of patients with intraglutative aspiration had cranial nerve paresis (IX, X or IX–X).</p> </section> <section> <h3> Conclusions</h3> <p>Patients who should be prioritised or considered to be at a higher need of instrumental swallowing evaluation are those with IX and X cranial nerve paresis, tracheostomy and those who have had radiotherapy, with saliva swallowing problems, especially after paraganglioma, thyroid and parathyroid glands and middle and posterior fossa tumour surgery.</p> </section> <section> <h3> WHAT THIS PAPER ADDS</h3> <section> <h3> What is already known on the subject</h3> <div> <ul> <li>Clinical signs of p
有证据显示,20%-30% 的吸入患者是无声吸入。迄今为止的研究还没有明确的证据表明哪些患者发生无声吸痰的风险较高。我们的目的是通过对回顾性病例进行单变量逻辑回归分析,确定无声吸痰的潜在模式。
{"title":"The risk factors for silent aspiration: A retrospective case series and literature review","authors":"Barbara Jamróz,&nbsp;Maria Sobol,&nbsp;Joanna Chmielewska-Walczak,&nbsp;Magdalena Milewska,&nbsp;Kazimierz Niemczyk","doi":"10.1111/1460-6984.13013","DOIUrl":"10.1111/1460-6984.13013","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Aim&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Evidence shows that 20%–30% of patients who aspirate do so silently. Research to date has not demonstrated clear evidence to indicate which patients are at higher risk of silent aspiration. Our aim was to use univariate logistic regression analysis of retrospective case review to determine potential patterns of silent aspiration.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Materials and methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;We conducted a retrospective analysis of 455 fiberoptic endoscopic evaluation of swallowing (FEES) reports. The patients were divided into four groups: G1 – neurological diseases (&lt;i&gt;n&lt;/i&gt; = 93), G2 – head and neck surgery (&lt;i&gt;n&lt;/i&gt; = 200), G3 – gastroenterological diseases (&lt;i&gt;n&lt;/i&gt; = 94) and G4 – other patients (&lt;i&gt;n&lt;/i&gt; = 68). Data included the occurrence or absence of saliva penetration or aspiration, of silent fluid/solid food penetration or aspiration, type of penetration or aspiration, occurrence of cranial nerve paresis, radiotherapy and tracheostomy. Univariate logistic regression was used to evaluate independent risk factors of silent aspiration in the study population. Three models with different independent variables were considered.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;There is a statistically significant difference in the frequency of occurrence of silent penetration and aspiration within the groups (&lt;i&gt;p&lt;/i&gt; &lt; 0.001), with intraglutative being most frequent. Fluid and food penetration and aspiration correlated with saliva penetration and aspiration in all groups (&lt;i&gt;p&lt;/i&gt; &lt; 0.001). Cranial nerve paresis (IX and X), radiotherapy and tracheostomy correlate with saliva penetration and aspiration (&lt;i&gt;p&lt;/i&gt; = 0.020 for cranial nerve paresis; &lt;i&gt;p&lt;/i&gt; = 0.004 for radiotherapy; &lt;i&gt;p&lt;/i&gt; &lt; 0.001 for tracheostomy). One hundred and fifteen patients (45.81%) in the subgroup of patients with intraglutative aspiration had cranial nerve paresis (IX, X or IX–X).&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusions&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Patients who should be prioritised or considered to be at a higher need of instrumental swallowing evaluation are those with IX and X cranial nerve paresis, tracheostomy and those who have had radiotherapy, with saliva swallowing problems, especially after paraganglioma, thyroid and parathyroid glands and middle and posterior fossa tumour surgery.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; WHAT THIS PAPER ADDS&lt;/h3&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; What is already known on the subject&lt;/h3&gt;\u0000 \u0000 &lt;div&gt;\u0000 &lt;ul&gt;\u0000 \u0000 &lt;li&gt;Clinical signs of p","PeriodicalId":49182,"journal":{"name":"International Journal of Language & Communication Disorders","volume":"59 4","pages":"1538-1552"},"PeriodicalIF":1.5,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139661845","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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International Journal of Language & Communication Disorders
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