This correspondence builds upon the significant findings presented by Klafke et al. regarding the qualitative analysis of interprofessional patient-nurse-physician. interactions in counseling lifestyle medicine in oncology. We discuss the critical need to. address diverse patient characteristics, acknowledge dynamics of oppression, and. integrate multicultural competence into CIH practices. Additionally, we propose. strategies to enhance support and resources for diverse patient populations, particularly through the training of healthcare practitioners.
这篇通讯基于 Klafke 等人就肿瘤科生活方式医学咨询中跨专业病人-护士-医生互动的定性分析所提出的重要发现。我们讨论了解决不同患者特征、承认压迫动态以及将多元文化能力融入 CIH 实践的迫切需要。此外，我们还提出了加强对不同患者群体的支持和资源的策略，特别是通过对医疗保健从业人员的培训。
{"title":"Addressing diversity and multicultural competence in integrative counseling for oncology patients: A commentary on Klafke et al.","authors":"Rudi Haryadi , Masnurrima Heriansyah, Dony Apriatama, Hanik Mufaridah, Sri Wahyuni Adiningtiyas, Yurike Kinanthy Karamoy","doi":"10.1016/j.pec.2024.108488","DOIUrl":"10.1016/j.pec.2024.108488","url":null,"abstract":"<div><div>This correspondence builds upon the significant findings presented by Klafke et al. regarding the qualitative analysis of interprofessional patient-nurse-physician. interactions in counseling lifestyle medicine in oncology. We discuss the critical need to. address diverse patient characteristics, acknowledge dynamics of oppression, and. integrate multicultural competence into CIH practices. Additionally, we propose. strategies to enhance support and resources for diverse patient populations, particularly through the training of healthcare practitioners.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108488"},"PeriodicalIF":2.9,"publicationDate":"2024-10-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142631561","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-28DOI: 10.1016/j.pec.2024.108487
Neda Karimi , Alison R. Moore , Ashleigh Jones , Annabelle Lukin , Joseph L. Pipicella , Astrid-Jane Williams , Watson Ng , Ria Kanazaki , Viraj Kariyawasam , Nikola Mitrev , Keval Pandya , Jane M. Andrews , Susan J. Connor
Objectives
This study explored the prevalence and degree of misalignment between gastroenterologists and people with inflammatory bowel disease (IBD) and investigated communication features related to misalignment.
Methods
A mixed-methods approach incorporated qualitative and quantitative analyses of consultations and post-consultation patient and doctor interviews. Gastroenterologists at two Australian teaching hospitals and IBD patients participated in this study. Doctor-patient misalignment about topics discussed in consultations was quantified using patient and doctor interviews. Predictors of misalignment were hypothesised through a linguistic analysis of consultations and tested quantitatively.
Results
Data from 69 patients and seven gastroenterologists showed that consultation participants had different perceptions about at least one aspect of care in 36 % of the consultations. Predictors of misalignment included missing the opportunity to clarify an issue or concern and missing the opportunity to explain the rationale for a diagnosis or recommendation.
Conclusion
Staying on the topic until the patient is ready to move on and using so-called related messages in questions and explanations increases the likelihood of doctor-patient alignment.
Practice implications
Generic and IBD-specific clinician- and patient-targeted interventions should cover strategies for adequately discussing patients’ issues and concerns and clinicians’ clinical reasoning. These strategies should also be considered in designing health promotion activities.
{"title":"On being on the same page: Predictors of gastroenterologist-patient misalignment in inflammatory bowel disease","authors":"Neda Karimi , Alison R. Moore , Ashleigh Jones , Annabelle Lukin , Joseph L. Pipicella , Astrid-Jane Williams , Watson Ng , Ria Kanazaki , Viraj Kariyawasam , Nikola Mitrev , Keval Pandya , Jane M. Andrews , Susan J. Connor","doi":"10.1016/j.pec.2024.108487","DOIUrl":"10.1016/j.pec.2024.108487","url":null,"abstract":"<div><h3>Objectives</h3><div>This study explored the prevalence and degree of misalignment between gastroenterologists and people with inflammatory bowel disease (IBD) and investigated communication features related to misalignment.</div></div><div><h3>Methods</h3><div>A mixed-methods approach incorporated qualitative and quantitative analyses of consultations and post-consultation patient and doctor interviews. Gastroenterologists at two Australian teaching hospitals and IBD patients participated in this study. Doctor-patient misalignment about topics discussed in consultations was quantified using patient and doctor interviews. Predictors of misalignment were hypothesised through a linguistic analysis of consultations and tested quantitatively.</div></div><div><h3>Results</h3><div>Data from 69 patients and seven gastroenterologists showed that consultation participants had different perceptions about at least one aspect of care in 36 % of the consultations. Predictors of misalignment included missing the opportunity to clarify an issue or concern and missing the opportunity to explain the rationale for a diagnosis or recommendation.</div></div><div><h3>Conclusion</h3><div>Staying on the topic until the patient is ready to move on and using so-called related messages in questions and explanations increases the likelihood of doctor-patient alignment.</div></div><div><h3>Practice implications</h3><div>Generic and IBD-specific clinician- and patient-targeted interventions should cover strategies for adequately discussing patients’ issues and concerns and clinicians’ clinical reasoning. These strategies should also be considered in designing health promotion activities.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108487"},"PeriodicalIF":2.9,"publicationDate":"2024-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142578428","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-28DOI: 10.1016/j.pec.2024.108482
Sabrina K.W. Wong , Jeremy Lew , Winnie Soon , Konstadina Griva , Helen Elizabeth Smith , Su Chi Lim
Background
Self-management is impacted by knowledge, self-efficacy, psychological health (general mental health and diabetes-related distress) and physical health (KSPP), and variations in KSPP contribute to heterogeneity in diabetes self-management education (DSME) program outcomes. This study aimed to identify unique KSPP profiles, and their associations with self-management behaviors.
Methods
A cross-sectional survey was conducted in 518 participants with type 2 diabetes. Diabetes knowledge, self-efficacy, diabetes-related distress, mental and physical health, self-care, medication adherence and social support were assessed. A mixed-model latent profile analysis was conducted on eight KSPP variables, and sociodemographic, self-care (diet, physical activity, and medication adherence), and glycemic levels were compared across profiles.
Results
Four unique KSPP profiles were identified: profile 1 (untroubled), profile 2 (distressed: diabetes-specific), profile 3 (distressed: global) and profile 4 (activated). Profile 3 was associated with the lowest self-care, highest glycemic and lowest social support levels. Profile 4 was associated with the highest self-care, lowest glycemic and highest social support levels.
Conclusions
Our study identified novel KSPP profiles, which were associated with differential self-management behaviors and metabolic profiles.
Practice implications
Identifying KSPP profiles might improve self-management support through identifying clustering of care needs, and support more targeted DSME development.
{"title":"Profiles of knowledge, self-efficacy, psychological and physical health in type 2 diabetes and its association with outcomes","authors":"Sabrina K.W. Wong , Jeremy Lew , Winnie Soon , Konstadina Griva , Helen Elizabeth Smith , Su Chi Lim","doi":"10.1016/j.pec.2024.108482","DOIUrl":"10.1016/j.pec.2024.108482","url":null,"abstract":"<div><h3>Background</h3><div>Self-management is impacted by knowledge, self-efficacy, psychological health (general mental health and diabetes-related distress) and physical health (KSPP), and variations in KSPP contribute to heterogeneity in diabetes self-management education (DSME) program outcomes. This study aimed to identify unique KSPP profiles, and their associations with self-management behaviors.</div></div><div><h3>Methods</h3><div>A cross-sectional survey was conducted in 518 participants with type 2 diabetes. Diabetes knowledge, self-efficacy, diabetes-related distress, mental and physical health, self-care, medication adherence and social support were assessed. A mixed-model latent profile analysis was conducted on eight KSPP variables, and sociodemographic, self-care (diet, physical activity, and medication adherence), and glycemic levels were compared across profiles.</div></div><div><h3>Results</h3><div>Four unique KSPP profiles were identified: profile 1 (untroubled), profile 2 (distressed: diabetes-specific), profile 3 (distressed: global) and profile 4 (activated). Profile 3 was associated with the lowest self-care, highest glycemic and lowest social support levels. Profile 4 was associated with the highest self-care, lowest glycemic and highest social support levels.</div></div><div><h3>Conclusions</h3><div>Our study identified novel KSPP profiles, which were associated with differential self-management behaviors and metabolic profiles.</div></div><div><h3>Practice implications</h3><div>Identifying KSPP profiles might improve self-management support through identifying clustering of care needs, and support more targeted DSME development.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108482"},"PeriodicalIF":2.9,"publicationDate":"2024-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142578429","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-28DOI: 10.1016/j.pec.2024.108486
Carmen Traseira Pedraz , Catherine Wong , Nirupama DeSilva , Megan Gribbons , Katelyn K. Jetelina , Jasmin A. Tiro , Jenny KR Francis
Objectives
We aimed to describe contraceptive methods used by clinicians who counsel adolescents to create an aggregate perspective which could be shared with patients. We also explored which method clinicians would recommend to a hypothetical daughter to identify associations between clinicians who had used long-acting reversible contraception (LARC) and potential recommendations.
Methods
An online survey was sent to pediatric and adolescent gynecology academic societies and fellowship/division directors to share with their clinicians. Frequency and percentage of self-reported personal/partner contraceptive method ever use was calculated. Bivariate tests evaluated the relationship between personal LARC use and contraception recommendations.
Results
Across 669 clinicians, 46 % reported personal/partner LARC use, and 77 % recommended LARC to a hypothetical daughter. LARC users were more likely to recommend LARC for a hypothetical daughter (89 % LARC users recommend it versus 66 % non-LARC users, p < 0.01).
Conclusion
Results can support shared decision-making counseling discussions. When families ask, “what do you use” or “what would you start for your daughter,” clinicians might consider sharing this aggregate perspective.
Practice implications
In this study, clinicians who personally use LARC were more likely to recommend LARC for a hypothetical daughter. Clinicians can share this aggregate perspective to reduce personal bias during contraceptive counselling.
{"title":"Exploring adolescent contraceptive counseling: A hypothetical daughter scenario","authors":"Carmen Traseira Pedraz , Catherine Wong , Nirupama DeSilva , Megan Gribbons , Katelyn K. Jetelina , Jasmin A. Tiro , Jenny KR Francis","doi":"10.1016/j.pec.2024.108486","DOIUrl":"10.1016/j.pec.2024.108486","url":null,"abstract":"<div><h3>Objectives</h3><div>We aimed to describe contraceptive methods used by clinicians who counsel adolescents to create an aggregate perspective which could be shared with patients. We also explored which method clinicians would recommend to a hypothetical daughter to identify associations between clinicians who had used long-acting reversible contraception (LARC) and potential recommendations.</div></div><div><h3>Methods</h3><div>An online survey was sent to pediatric and adolescent gynecology academic societies and fellowship/division directors to share with their clinicians. Frequency and percentage of self-reported personal/partner contraceptive method ever use was calculated. Bivariate tests evaluated the relationship between personal LARC use and contraception recommendations.</div></div><div><h3>Results</h3><div>Across 669 clinicians, 46 % reported personal/partner LARC use, and 77 % recommended LARC to a hypothetical daughter. LARC users were more likely to recommend LARC for a hypothetical daughter (89 % LARC users recommend it versus 66 % non-LARC users, p < 0.01).</div></div><div><h3>Conclusion</h3><div>Results can support shared decision-making counseling discussions. When families ask, “what do you use” or “what would you start for your daughter,” clinicians might consider sharing this aggregate perspective.</div></div><div><h3>Practice implications</h3><div>In this study, clinicians who personally use LARC were more likely to recommend LARC for a hypothetical daughter. Clinicians can share this aggregate perspective to reduce personal bias during contraceptive counselling.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108486"},"PeriodicalIF":2.9,"publicationDate":"2024-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142590678","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-28DOI: 10.1016/j.pec.2024.108485
Emma G. Bryan , Huan Chen , Melissa Vilaro , Haoran Chu , Gabriella Grillo , Palani Te , Miriam Buhr , Stephen Anton , Janice L. Krieger
Objective
This study aimed to identify communication strategies that virtual humans (VHs) discussing clinical trials can use to foster positive relationships with older women to better deliver research education.
Methods
A template thematic analysis and matrix analysis of 10 interviews and 3 focus groups with 37 older women identifying as White non-Hispanic, Black, or Hispanic/Latinx were conducted.
Results
VHs can foster positive relationships with older women during clinical trial education by communicating social support. At the same time, VHs should convey credibility. Factors shaping experiences of the VHs’ support and credibility include race and ethnicity, comfort with research and technology, and current health status.
Conclusion
Deploying communication strategies that foster positive relationships between VHs and older women are crucial for optimizing the use of VHs during clinical trial education for populations historically excluded from research.
Practice implications
This study provides a cohesive framework guiding the development of VH clinical trial educators for older women to meet their communication needs. The framework may extend to other populations historically excluded from research and real human clinical trial educators.
Funding
This work was supported by the National Institute on Aging National Institutes of Health, Award R24AG074867 (PIs: Krieger and Anton).
{"title":"Developing a supportive virtual human to deliver clinical trial education for older women and other populations historically excluded from research","authors":"Emma G. Bryan , Huan Chen , Melissa Vilaro , Haoran Chu , Gabriella Grillo , Palani Te , Miriam Buhr , Stephen Anton , Janice L. Krieger","doi":"10.1016/j.pec.2024.108485","DOIUrl":"10.1016/j.pec.2024.108485","url":null,"abstract":"<div><h3>Objective</h3><div>This study aimed to identify communication strategies that virtual humans (VHs) discussing clinical trials can use to foster positive relationships with older women to better deliver research education.</div></div><div><h3>Methods</h3><div>A template thematic analysis and matrix analysis of 10 interviews and 3 focus groups with 37 older women identifying as White non-Hispanic, Black, or Hispanic/Latinx were conducted.</div></div><div><h3>Results</h3><div>VHs can foster positive relationships with older women during clinical trial education by communicating social support. At the same time, VHs should convey credibility. Factors shaping experiences of the VHs’ support and credibility include race and ethnicity, comfort with research and technology, and current health status.</div></div><div><h3>Conclusion</h3><div>Deploying communication strategies that foster positive relationships between VHs and older women are crucial for optimizing the use of VHs during clinical trial education for populations historically excluded from research.</div></div><div><h3>Practice implications</h3><div>This study provides a cohesive framework guiding the development of VH clinical trial educators for older women to meet their communication needs. The framework may extend to other populations historically excluded from research and real human clinical trial educators.</div></div><div><h3>Funding</h3><div>This work was supported by the National Institute on Aging National Institutes of Health, Award R24AG074867 (PIs: Krieger and Anton).</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108485"},"PeriodicalIF":2.9,"publicationDate":"2024-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142548593","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-28DOI: 10.1016/j.pec.2024.108484
Tammy C Hoffmann, Elizabeth Gibson
Objective
To analyse the scope and characteristics of freely available online patient decision aids.
Methods
An international environmental scan of online decision aids, with no language restriction, was conducted by searching aids in the recent Cochrane review and 35 online sources. Aid characteristics were extracted and analysed.
Results
Of 1555 decision aids identified, there were 1222 unique aids after removing duplicates. Of these, 785 met eligibility criteria. The aids were from 17 countries (30 % from the Netherlands, 20 % from the US) and 44 % in English. Nearly all had a downloadable PDF or were printable and 32 % were interactive web-based. Many aids (72 %) were about a treatment decision. Most common diseases addressed were cancer (23 %), especially breast cancer, musculoskeletal diseases (11 %), and genitourinary system diseases (10 %).
Conclusions
There are many freely available decision aids, with most addressing treatment decisions and particular health conditions. Many (21 %) of the aids identified were duplicates, some topics are covered by multiple versions of decision aids, and other topics have few decision aids.
Practice implications
While many decision aids exist online, initiatives are needed to minimise aid duplication, achieve better distribution of aids across health decisions/topics, encourage greater collaboration between developers, and adaption of existing aids.
{"title":"An international environmental scan of the scope and characteristics of patient decision aids which are freely available online","authors":"Tammy C Hoffmann, Elizabeth Gibson","doi":"10.1016/j.pec.2024.108484","DOIUrl":"10.1016/j.pec.2024.108484","url":null,"abstract":"<div><h3>Objective</h3><div>To analyse the scope and characteristics of freely available online patient decision aids.</div></div><div><h3>Methods</h3><div>An international environmental scan of online decision aids, with no language restriction, was conducted by searching aids in the recent Cochrane review and 35 online sources. Aid characteristics were extracted and analysed.</div></div><div><h3>Results</h3><div>Of 1555 decision aids identified, there were 1222 unique aids after removing duplicates. Of these, 785 met eligibility criteria. The aids were from 17 countries (30 % from the Netherlands, 20 % from the US) and 44 % in English. Nearly all had a downloadable PDF or were printable and 32 % were interactive web-based. Many aids (72 %) were about a treatment decision. Most common diseases addressed were cancer (23 %), especially breast cancer, musculoskeletal diseases (11 %), and genitourinary system diseases (10 %).</div></div><div><h3>Conclusions</h3><div>There are many freely available decision aids, with most addressing treatment decisions and particular health conditions. Many (21 %) of the aids identified were duplicates, some topics are covered by multiple versions of decision aids, and other topics have few decision aids.</div></div><div><h3>Practice implications</h3><div>While many decision aids exist online, initiatives are needed to minimise aid duplication, achieve better distribution of aids across health decisions/topics, encourage greater collaboration between developers, and adaption of existing aids.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108484"},"PeriodicalIF":2.9,"publicationDate":"2024-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142631566","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-24DOI: 10.1016/j.pec.2024.108479
Rikke Nicoline Stokholm , Pia Kirkegaard , Mette Bach Larsen , Henrik Hein Lauridsen , Dawn Stacey , Diane M. Harper , Karen Sepucha , Kirsten McCaffery , Maren Reder , Michael Pignone , Mirjam Fransen , Robert J. Volk , Yvonne Wengström , Adrian Edwards , Berit Andersen
Objectives
This study aimed to investigate the perspectives of international experts and Danish citizens on relevant knowledge about population-based breast, colorectal and cervical cancer screening.
Methods
This was a qualitative interview study with focus group interviews with experts and Danish citizens eligible for breast, colorectal and/or cervical cancer screening. Data were collected using semi-structured interview guides, audio-recorded and transcribed verbatim. A thematic analysis was conducted.
Results
Participants were nine international experts from Germany, Canada, the USA, Sweden, the Netherlands and Australia, and 54 citizens from Denmark. Most citizens had 'adequate' or 'problematic' levels of health literacy. Themes that experts and citizens agreed on were: knowledge about the disease and symptoms, practical information about screening, benefits of screening, the option of non-participation and the importance of having numeric information of possible screening outcomes. Experts agreed on the importance of knowledge about the harms of screening, but only a minority of citizens considered this important.
Conclusions
The experts and citizens disagreed on the relevance of knowledge about harms of screening and agreed on other relevant knowledge.
Practice implications
What experts and citizens find important may not align when making informed decisions. Therefore, experts and citizens needs to be involved when developing questionnaires.
{"title":"Perspectives of international experts and the Danish citizens on the ‘relevant knowledge’ that citizens need for making informed choices about participation in cancer screening: Qualitative study","authors":"Rikke Nicoline Stokholm , Pia Kirkegaard , Mette Bach Larsen , Henrik Hein Lauridsen , Dawn Stacey , Diane M. Harper , Karen Sepucha , Kirsten McCaffery , Maren Reder , Michael Pignone , Mirjam Fransen , Robert J. Volk , Yvonne Wengström , Adrian Edwards , Berit Andersen","doi":"10.1016/j.pec.2024.108479","DOIUrl":"10.1016/j.pec.2024.108479","url":null,"abstract":"<div><h3>Objectives</h3><div>This study aimed to investigate the perspectives of international experts and Danish citizens on relevant knowledge about population-based breast, colorectal and cervical cancer screening.</div></div><div><h3>Methods</h3><div>This was a qualitative interview study with focus group interviews with experts and Danish citizens eligible for breast, colorectal and/or cervical cancer screening. Data were collected using semi-structured interview guides, audio-recorded and transcribed verbatim. A thematic analysis was conducted.</div></div><div><h3>Results</h3><div>Participants were nine international experts from Germany, Canada, the USA, Sweden, the Netherlands and Australia, and 54 citizens from Denmark. Most citizens had 'adequate' or 'problematic' levels of health literacy. Themes that experts and citizens agreed on were: knowledge about the disease and symptoms, practical information about screening, benefits of screening, the option of non-participation and the importance of having numeric information of possible screening outcomes. Experts agreed on the importance of knowledge about the harms of screening, but only a minority of citizens considered this important.</div></div><div><h3>Conclusions</h3><div>The experts and citizens disagreed on the relevance of knowledge about harms of screening and agreed on other relevant knowledge.</div></div><div><h3>Practice implications</h3><div>What experts and citizens find important may not align when making informed decisions. Therefore, experts and citizens needs to be involved when developing questionnaires.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108479"},"PeriodicalIF":2.9,"publicationDate":"2024-10-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142565309","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-24DOI: 10.1016/j.pec.2024.108481
Don E. Willis , Ji Li , James P. Selig , Ramey Moore , Alia Green , Rachel S. Purvis , Nakita Lovelady , Michael D. Macechko , Pearl A. McElfish
Objective
We assessed healthcare provider recommendations for COVID-19 vaccination, disparities across sociodemographic factors, and associations with health care coverage, social norms, COVID-19 vaccine hesitancy, and Fox News preference.
Methods
We utilized random sample survey data of Arkansas residents (N = 2201) collected in October 2022 to identify adults with a personal provider who make up the analytical sample of this study (n = 1804).
Results
Over a third (37.2 %; n = 607) of the weighted sample did not receive a recommendation. Adjusted odds of receiving a recommendation were positively associated with health care coverage (aOR=1.66; 95 % CI [1.05, 2.64]) and negatively associated with perceiving "very few” (aOR=0.48; 95 % CI [0.33, 0.72]) or “some but not many” (aOR=0.57; 95 % CI [0.41, 0.80]) rather than “nearly all” people close to them to be vaccinated. Adjusted odds of receiving a recommendation were negatively associated with being very hesitant (vs. not at all hesitant) (aOR=0.65; 95 % CI [0.47, 0.88]).
Conclusion
Provider recommendations for COVID-19 vaccination were not provided for a large portion of Arkansas adults, were inconsistently provided across sociodemographic groups, and were associated with health care coverage, social norms, and vaccine hesitancy.
Practice implications
Intervening on disparities in COVID-19 vaccination may require addressing disparities in provider recommendations.
我们评估了医疗保健提供者对 COVID-19 疫苗接种的建议、不同社会人口因素之间的差异，以及与医疗保健覆盖率、社会规范、COVID-19 疫苗犹豫不决和福克斯新闻偏好之间的关联。我们利用 2022 年 10 月收集的阿肯色州居民随机抽样调查数据（N = 2201），确定了有个人医疗保健提供者的成年人，他们构成了本研究的分析样本（n = 1804）。接受推荐的调整几率与医疗保健覆盖率呈正相关（aOR=1.66；95 % CI [1.05，2.64]），与认为 "很少"（aOR=0.48；95 % CI [0.33，0.72]）或 "一些但不是很多"（aOR=0.57；95 % CI [0.41，0.80]）而不是认为 "几乎所有 "身边的人都要接种疫苗呈负相关。接受推荐的调整后几率与非常犹豫（与完全不犹豫相比）呈负相关（aOR=0.65；95 % CI [0.47，0.88]）。结论阿肯色州的大部分成年人都没有获得医疗服务提供者关于COVID-19疫苗接种的建议，不同社会人口群体获得建议的情况也不一致，并且与医疗保健覆盖率、社会规范和疫苗犹豫不决有关。
{"title":"Healthcare provider recommendations for COVID-19 vaccination: Prevalence, disparities, and correlates","authors":"Don E. Willis , Ji Li , James P. Selig , Ramey Moore , Alia Green , Rachel S. Purvis , Nakita Lovelady , Michael D. Macechko , Pearl A. McElfish","doi":"10.1016/j.pec.2024.108481","DOIUrl":"10.1016/j.pec.2024.108481","url":null,"abstract":"<div><h3>Objective</h3><div>We assessed healthcare provider recommendations for COVID-19 vaccination, disparities across sociodemographic factors, and associations with health care coverage, social norms, COVID-19 vaccine hesitancy, and Fox News preference.</div></div><div><h3>Methods</h3><div>We utilized random sample survey data of Arkansas residents (N = 2201) collected in October 2022 to identify adults with a personal provider who make up the analytical sample of this study (n = 1804).</div></div><div><h3>Results</h3><div>Over a third (37.2 %; n = 607) of the weighted sample <em>did not receive a recommendation</em>. Adjusted odds of receiving a recommendation were <em>positively</em> associated with health care coverage (aOR=1.66; 95 % CI [1.05, 2.64]) and <em>negatively</em> associated with perceiving \"very few” (aOR=0.48; 95 % CI [0.33, 0.72]) or “some but not many” (aOR=0.57; 95 % CI [0.41, 0.80]) rather than “nearly all” people close to them to be vaccinated. Adjusted odds of receiving a recommendation were <em>negatively</em> associated with being very hesitant (vs. not at all hesitant) (aOR=0.65; 95 % CI [0.47, 0.88]).</div></div><div><h3>Conclusion</h3><div>Provider recommendations for COVID-19 vaccination were not provided for a large portion of Arkansas adults, were inconsistently provided across sociodemographic groups, and were associated with health care coverage, social norms, and vaccine hesitancy.</div></div><div><h3>Practice implications</h3><div>Intervening on disparities in COVID-19 vaccination may require addressing disparities in provider recommendations.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108481"},"PeriodicalIF":2.9,"publicationDate":"2024-10-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142587068","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-24DOI: 10.1016/j.pec.2024.108475
L. Mertens , T. Kasmi , GE Bekkering , K. Hannes , M. Vermandere , N. Delvaux , P. Van Bostraeten , J. Jaeken , T. van der Weijden , J. Rademakers , B. Aertgeerts
Objective
We aim to provide an updated literature overview on patient-reported barriers and facilitators to participation in SDM across different patient groups and healthcare settings to uncover the ‘common ground’ and to reach for a more generalizable, uniform and inclusive insight in patients’ perspective on participation in SDM.
Methodology
We conducted a qualitative meta-summary, using five databases. Search terms were based on the concepts: ‘decision-making’, ‘patient participation’, ‘patient perceptions’ and ‘study design’ (of patient reporting).
Results
We found 9265 unique references, selected 209 studies for further sampling and finally withheld 90 studies for further analysis in this review. In total, we identified 34 different barriers and facilitators. Based on most frequently reported barriers and facilitators, we defined four broad analytical themes corresponding to patients’ shared expectations concerning doctors’, patients’ and others’ facilitative roles in SDM: (1) ‘Doctors explaining well’, (2) ‘Doctors listening well, and fostering a trusting relationship’, (3) ‘Patients being assertive, (4) ‘Patients being socially supported’.
Conclusion
The majority of barriers and facilitators we found transcended differences in patient characteristics or healthcare setting, suggesting that patients are, overall, facing shared challenges and opportunities in SDM, that are mostly generalizable and irrespective of variabilities in decisional setting or patient group. We uncovered new trends such as patients’ growing openness to assertiveness and the involvement of significant others, and highlighted some culture-based nuances, compared to earlier literature.
Practice Implications
These new insights need to be integrated in SDM strategies so that they may serve the ethical imperative of a greater equality and inclusion of diverse patient groups in different SDM settings.
{"title":"Shared challenges and opportunities: Uncovering common ground in patient participation across different healthcare settings and patient groups. A qualitative meta-summary on patient-reported barriers and facilitators to participation in shared decision-making","authors":"L. Mertens , T. Kasmi , GE Bekkering , K. Hannes , M. Vermandere , N. Delvaux , P. Van Bostraeten , J. Jaeken , T. van der Weijden , J. Rademakers , B. Aertgeerts","doi":"10.1016/j.pec.2024.108475","DOIUrl":"10.1016/j.pec.2024.108475","url":null,"abstract":"<div><h3>Objective</h3><div>We aim to provide an updated literature overview on patient-reported barriers and facilitators to participation in SDM across different patient groups and healthcare settings to uncover the ‘common ground’ and to reach for a more generalizable, uniform and inclusive insight in patients’ perspective on participation in SDM.</div></div><div><h3>Methodology</h3><div>We conducted a qualitative meta-summary, using five databases. Search terms were based on the concepts: ‘decision-making’, ‘patient participation’, ‘patient perceptions’ and ‘study design’ (of patient reporting).</div></div><div><h3>Results</h3><div>We found 9265 unique references, selected 209 studies for further sampling and finally withheld 90 studies for further analysis in this review. In total, we identified 34 different barriers and facilitators. Based on most frequently reported barriers and facilitators, we defined four broad analytical themes corresponding to patients’ shared expectations concerning doctors’, patients’ and others’ facilitative roles in SDM: (1) ‘<em>Doctors explaining well</em>’, (2) ‘<em>Doctors listening well, and fostering a trusting relationship’</em>, (3) ‘<em>Patients being assertive</em>, (4) ‘<em>Patients being socially supported’</em>.</div></div><div><h3>Conclusion</h3><div>The majority of barriers and facilitators we found transcended differences in patient characteristics or healthcare setting, suggesting that patients are, overall, facing shared challenges and opportunities in SDM, that are mostly generalizable and irrespective of variabilities in decisional setting or patient group. We uncovered new trends such as patients’ growing openness to assertiveness and the involvement of significant others, and highlighted some culture-based nuances, compared to earlier literature.</div></div><div><h3>Practice Implications</h3><div>These new insights need to be integrated in SDM strategies so that they may serve the ethical imperative of a greater equality and inclusion of diverse patient groups in different SDM settings.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108475"},"PeriodicalIF":2.9,"publicationDate":"2024-10-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142587067","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-24DOI: 10.1016/j.pec.2024.108483
Ayşegül Hülcen Dönmez, Ramazan Özgür Çatar
Purpose
The objective of this study is to adapt the Health Literacy Sensitive Communication Scale (HL-COM) for Turkish society and to evaluate its validity and reliability.
Method
The scale's psychometric properties were evaluated including reliability and construct validity, through measures such as internal consistency, item-total correlation coefficients and Confirmatory Factor Analysis (CFA), respectively. A sample of 221 patients with diabetes was selected to participate in the study.
Findings
The HL-COM displayed satisfactory internal consistency (Cronbach's alpha values.95) and time based stability (ICC values.98). Item-total score correlations revealed moderate associations between each item and the scale, with all items adequately representing the construct. The content validity index (CVI) was.93. According to the findings of confirmatory factor analysis obtained from the validity analysis, the fit index of the scale was found to be χ2/df = 2,21 and the scale had a one factor structure. In addition, other good fit indexes of the model also show that the proposed model is acceptable [GFI= .94, RMSEA= .074, CFI= .98, AGFI= .90, NFI= .97]
Conclusion
The findings indicate that Turkish version of the HL-COM is a valid and reliable instrument to assess the health sensitive communication proficiencies of healthcare professionals from the perspective of patients with diabetes.
{"title":"Turkish adaptation of health literacy sensitive communication scale: A validity and reliability study","authors":"Ayşegül Hülcen Dönmez, Ramazan Özgür Çatar","doi":"10.1016/j.pec.2024.108483","DOIUrl":"10.1016/j.pec.2024.108483","url":null,"abstract":"<div><h3>Purpose</h3><div>The objective of this study is to adapt the Health Literacy Sensitive Communication Scale (HL-COM) for Turkish society and to evaluate its validity and reliability.</div></div><div><h3>Method</h3><div>The scale's psychometric properties were evaluated including reliability and construct validity, through measures such as internal consistency, item-total correlation coefficients and Confirmatory Factor Analysis (CFA), respectively. A sample of 221 patients with diabetes was selected to participate in the study.</div></div><div><h3>Findings</h3><div>The HL-COM displayed satisfactory internal consistency (Cronbach's alpha values.95) and time based stability (ICC values.98). Item-total score correlations revealed moderate associations between each item and the scale, with all items adequately representing the construct. The content validity index (CVI) was.93. According to the findings of confirmatory factor analysis obtained from the validity analysis, the fit index of the scale was found to be χ2/df = 2,21 and the scale had a one factor structure. In addition, other good fit indexes of the model also show that the proposed model is acceptable [GFI= .94, RMSEA= .074, CFI= .98, AGFI= .90, NFI= .97]</div></div><div><h3>Conclusion</h3><div>The findings indicate that Turkish version of the HL-COM is a valid and reliable instrument to assess the health sensitive communication proficiencies of healthcare professionals from the perspective of patients with diabetes.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108483"},"PeriodicalIF":2.9,"publicationDate":"2024-10-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142552448","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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