Jan Broll, Sarah K Schäfer, Jutta Stoffers-Winterling, Sarah Hölzen, Isabella Helmreich, Klaus Lieb
Caregivers of children and adolescents with chronic illnesses often experience mental health challenges, which increase their risk of poor quality of life. This systematic review evaluates the effectiveness of case management interventions in improving caregivers' positive mental health, psychological distress, and satisfaction with health care services. We included (cluster) randomized controlled trials that evaluated the effects of case management. Systematic searches were conducted in PubMed, Scopus, CENTRAL, and PsycINFO up to 30 June 2024. Risk of bias was assessed using the Cochrane tool (RoB 2), and multi-level meta-analyses were performed for post-intervention outcomes, while follow-up data were synthesized qualitatively due to limited long-term evidence. A total of 17 studies were included, providing multiple effect estimates for different types of outcomes, showing small positive effects of case management on mental health (analyses based on 8 studies), psychological distress (6 studies), and satisfaction with health services (9 studies). Although case management interventions show promise in supporting carers, the limited number of studies limits the strength and generalizability of the findings. Further research is needed to explore the long-term effectiveness of such interventions. Trial Registration: The review protocol was prospectively registered at PROSPERO (CRD4202453375).
{"title":"Case Management for Enhancing Wellbeing, Resilience, and Quality of Life in Caregivers of Children and Adolescents With Chronic Illnesses and Disabilities: A Systematic Review and Meta-Analysis.","authors":"Jan Broll, Sarah K Schäfer, Jutta Stoffers-Winterling, Sarah Hölzen, Isabella Helmreich, Klaus Lieb","doi":"10.1111/nhs.70096","DOIUrl":"10.1111/nhs.70096","url":null,"abstract":"<p><p>Caregivers of children and adolescents with chronic illnesses often experience mental health challenges, which increase their risk of poor quality of life. This systematic review evaluates the effectiveness of case management interventions in improving caregivers' positive mental health, psychological distress, and satisfaction with health care services. We included (cluster) randomized controlled trials that evaluated the effects of case management. Systematic searches were conducted in PubMed, Scopus, CENTRAL, and PsycINFO up to 30 June 2024. Risk of bias was assessed using the Cochrane tool (RoB 2), and multi-level meta-analyses were performed for post-intervention outcomes, while follow-up data were synthesized qualitatively due to limited long-term evidence. A total of 17 studies were included, providing multiple effect estimates for different types of outcomes, showing small positive effects of case management on mental health (analyses based on 8 studies), psychological distress (6 studies), and satisfaction with health services (9 studies). Although case management interventions show promise in supporting carers, the limited number of studies limits the strength and generalizability of the findings. Further research is needed to explore the long-term effectiveness of such interventions. Trial Registration: The review protocol was prospectively registered at PROSPERO (CRD4202453375).</p>","PeriodicalId":49730,"journal":{"name":"Nursing & Health Sciences","volume":"27 2","pages":"e70096"},"PeriodicalIF":1.6,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12061487/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144056945","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This study was designed to determine the care burden, health anxiety and depression levels of caregivers of patients with oncological surgery and the relationship between these variables. A descriptive and correlational study was conducted with 162 caregivers of patients who underwent surgery due to cancer. Data were collected using "Caregiver Identification Form", "The Zarit Caregiver Burden Scale", "The Beck Depression Inventory", and "The Health Anxiety Inventory". The caregivers had moderate and severe levels of caregiver burden (51.79 ± 13.53), depression (17.27 ± 9.58), and health anxiety (26.44 ± 8.93). There was a statistically significant positive weak relationship between the caregivers' health anxiety caregiver burden and depression levels. It was determined that the caregivers of the patients also have needs like the patients. It is necessary to understand what the caregiver is going through at every stage of the cancer patient's treatment process. Planning a holistic care that includes the patient's caregivers will improve the well-being of the caregiver while also contributing to the development of the well-being of the patient receiving care.
{"title":"Determination of the Relationship Between Care Burden, Health Anxiety and Depression Levels of Caregivers of Patients Who Have Undergone Oncological Surgery.","authors":"Beyza Bicer Ozturk, Zuleyha Simsek Yaban","doi":"10.1111/nhs.70164","DOIUrl":"10.1111/nhs.70164","url":null,"abstract":"<p><p>This study was designed to determine the care burden, health anxiety and depression levels of caregivers of patients with oncological surgery and the relationship between these variables. A descriptive and correlational study was conducted with 162 caregivers of patients who underwent surgery due to cancer. Data were collected using \"Caregiver Identification Form\", \"The Zarit Caregiver Burden Scale\", \"The Beck Depression Inventory\", and \"The Health Anxiety Inventory\". The caregivers had moderate and severe levels of caregiver burden (51.79 ± 13.53), depression (17.27 ± 9.58), and health anxiety (26.44 ± 8.93). There was a statistically significant positive weak relationship between the caregivers' health anxiety caregiver burden and depression levels. It was determined that the caregivers of the patients also have needs like the patients. It is necessary to understand what the caregiver is going through at every stage of the cancer patient's treatment process. Planning a holistic care that includes the patient's caregivers will improve the well-being of the caregiver while also contributing to the development of the well-being of the patient receiving care.</p>","PeriodicalId":49730,"journal":{"name":"Nursing & Health Sciences","volume":"27 2","pages":"e70164"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12151819/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144267816","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Breast cancer remains a global health challenge, imposing significant physical and psychological burdens. With a growing focus on patient-centered care, identifying priority supportive care needs from the perspective of patients with breast cancer is crucial. Current research often relies on standardized tools and single-method approaches, missing the complexity and diversity of breast cancer patients' needs. To address this gap, this study aims to identify and prioritize the supportive care needs most relevant to patients with breast cancer using multiple sources, including an emotional lexicon, the Best-Worst Scaling method, and semi-structured interviews. Based on an emotional lexicon of breast cancer, 50 supportive care needs items were initially identified. These items were further expanded through semi-structured interviews with 25 breast cancer patients and 12 healthcare professionals. Subsequently, the refined list of 60 items was incorporated into a Best-Worst Scaling (BWS) questionnaire to assess patient preferences. To ensure clarity and precision, an expert consensus meeting was conducted to finalize the items. The findings serve as a guide for future research to improve healthcare quality from the breast cancer patient's perspective.
{"title":"Using Best-Worst Scaling to Identify and Prioritize Supportive Care Needs From Breast Cancer Patients' Perspective: A Mixed-Methods Study Based on an Emotional Lexicon.","authors":"Bingqian Guo, Jianyao Tang, Wenji Li, Yalan Song, Hui Yang, Yusheng Liu, Jing Chi, Chuhan Zhong, Shisi Deng, Zihan Guo, Yujie Zhang, Wenqiong Cao, Yanni Wu","doi":"10.1111/nhs.70163","DOIUrl":"https://doi.org/10.1111/nhs.70163","url":null,"abstract":"<p><p>Breast cancer remains a global health challenge, imposing significant physical and psychological burdens. With a growing focus on patient-centered care, identifying priority supportive care needs from the perspective of patients with breast cancer is crucial. Current research often relies on standardized tools and single-method approaches, missing the complexity and diversity of breast cancer patients' needs. To address this gap, this study aims to identify and prioritize the supportive care needs most relevant to patients with breast cancer using multiple sources, including an emotional lexicon, the Best-Worst Scaling method, and semi-structured interviews. Based on an emotional lexicon of breast cancer, 50 supportive care needs items were initially identified. These items were further expanded through semi-structured interviews with 25 breast cancer patients and 12 healthcare professionals. Subsequently, the refined list of 60 items was incorporated into a Best-Worst Scaling (BWS) questionnaire to assess patient preferences. To ensure clarity and precision, an expert consensus meeting was conducted to finalize the items. The findings serve as a guide for future research to improve healthcare quality from the breast cancer patient's perspective.</p>","PeriodicalId":49730,"journal":{"name":"Nursing & Health Sciences","volume":"27 2","pages":"e70163"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144267819","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Yashi Zou, Juan Du, Yanlin Shen, Runju Deng, Jing Tan, Huijuan Ma
This review aims to systematically and comprehensively identify the factors and experiences of self-management in patients with enterostomy and to develop a framework for synthesizing factors and experiences. A scoping review of studies focusing on factors and experiences of self-management in patients with enterostomy was conducted. A comprehensive search was conducted in seven databases (PubMed, CINAHL, Embase, Web of Science, CNKI, Wanfang, and China Biomedical Database). Fourteen studies (10 quantitative studies, 3 qualitative studies, and 1 study of nominal group technique approach) were included. The self-management framework for patients with enterostomy encompassed three systems, which were the personal system (sociodemographic variables, stoma, diet, exercise management, psychological status, and sexual and reproductive), the interpersonal system (families, peers, healthcare professionals), and the social systems (government, hospitals, and communities). Four key elements, including information, communication, support, and decision-making, interacted between the three systems. This scoping review developed a self-management framework for patients with enterostomy on the basis of King's Conceptual System, which can be utilized to develop systematic interventions for this population.
本文旨在系统、全面地识别肠造口患者自我管理的因素和经验,并建立一个综合因素和经验的框架。对肠造口患者自我管理的因素和经验进行了范围综述。综合检索了PubMed、CINAHL、Embase、Web of Science、CNKI、万方、中国生物医学数据库等7个数据库。共纳入14项研究(10项定量研究、3项定性研究和1项名义群体技术方法研究)。肠造口患者自我管理框架包括三个系统,即个人系统(社会人口学变量、造口、饮食、运动管理、心理状态、性和生殖)、人际系统(家庭、同伴、医护人员)和社会系统(政府、医院和社区)。信息、沟通、支持和决策等四个关键要素在这三个系统之间相互作用。本综述在King概念系统的基础上为肠造口患者制定了一个自我管理框架,该框架可用于为该人群制定系统干预措施。
{"title":"Factors and Experiences of Self-Management in Patients With Enterostomy: A Scoping Review and Synthetic Framework.","authors":"Yashi Zou, Juan Du, Yanlin Shen, Runju Deng, Jing Tan, Huijuan Ma","doi":"10.1111/nhs.70146","DOIUrl":"10.1111/nhs.70146","url":null,"abstract":"<p><p>This review aims to systematically and comprehensively identify the factors and experiences of self-management in patients with enterostomy and to develop a framework for synthesizing factors and experiences. A scoping review of studies focusing on factors and experiences of self-management in patients with enterostomy was conducted. A comprehensive search was conducted in seven databases (PubMed, CINAHL, Embase, Web of Science, CNKI, Wanfang, and China Biomedical Database). Fourteen studies (10 quantitative studies, 3 qualitative studies, and 1 study of nominal group technique approach) were included. The self-management framework for patients with enterostomy encompassed three systems, which were the personal system (sociodemographic variables, stoma, diet, exercise management, psychological status, and sexual and reproductive), the interpersonal system (families, peers, healthcare professionals), and the social systems (government, hospitals, and communities). Four key elements, including information, communication, support, and decision-making, interacted between the three systems. This scoping review developed a self-management framework for patients with enterostomy on the basis of King's Conceptual System, which can be utilized to develop systematic interventions for this population.</p>","PeriodicalId":49730,"journal":{"name":"Nursing & Health Sciences","volume":"27 2","pages":"e70146"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144180216","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Duygu Öztaş, Sultan Türkmen Keskin, Yasemin Uğurlu, Şenay Akgün
The aim of the study is to investigate the relationships among health literacy (HL), fatalistic tendencies, and attitudes toward organ donation. A cross-sectional correlational study design was employed. The sample consists of 1566 voluntary participants residing in four major cities in the Central Anatolian Region of Türkiye. Data were collected via an online form between August 1 and December 31, 2023, using the Organ Donation Attitude Scale, Health Literacy Scale-14, and Fatalism Tendency Scale. Mediation analysis was performed utilizing Hayes' PROCESS Macro (Model 4). Of the participants, 72.8% demonstrated knowledge about organ transplantation, and 40.4% reported having considered organ donation after death. The analyses revealed that fatalistic tendencies explained 5.4% of the variance in humanity and moral conviction and 13.31% of the variance in negative attitudes. Additionally, HL partially mediated the relationship between fatalistic tendencies and attitudes toward organ donation. These findings suggest that addressing fatalism and improving HL could positively influence perceptions of organ donation.
{"title":"Evaluation of Organ Donation Attitudes in The Context of Health Literacy and Fatalism: A Cross-Sectional Correlational Study.","authors":"Duygu Öztaş, Sultan Türkmen Keskin, Yasemin Uğurlu, Şenay Akgün","doi":"10.1111/nhs.70145","DOIUrl":"10.1111/nhs.70145","url":null,"abstract":"<p><p>The aim of the study is to investigate the relationships among health literacy (HL), fatalistic tendencies, and attitudes toward organ donation. A cross-sectional correlational study design was employed. The sample consists of 1566 voluntary participants residing in four major cities in the Central Anatolian Region of Türkiye. Data were collected via an online form between August 1 and December 31, 2023, using the Organ Donation Attitude Scale, Health Literacy Scale-14, and Fatalism Tendency Scale. Mediation analysis was performed utilizing Hayes' PROCESS Macro (Model 4). Of the participants, 72.8% demonstrated knowledge about organ transplantation, and 40.4% reported having considered organ donation after death. The analyses revealed that fatalistic tendencies explained 5.4% of the variance in humanity and moral conviction and 13.31% of the variance in negative attitudes. Additionally, HL partially mediated the relationship between fatalistic tendencies and attitudes toward organ donation. These findings suggest that addressing fatalism and improving HL could positively influence perceptions of organ donation.</p>","PeriodicalId":49730,"journal":{"name":"Nursing & Health Sciences","volume":"27 2","pages":"e70145"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12105880/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144152605","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Fatema Ahmed, Seba Harphoush, Waleed Ksebe, Qingyuan Ye, Wang Dandan, Haya Radwan
This study aims to clarify the current state of social support and the relationship with anxiety, depression, and stress among Syrian patients undergoing hemodialysis. A cross-sectional study was conducted with 250 patients undergoing hemodialysis at three public hospitals in Syria. The study included 250 Syrian patients who were undergoing hemodialysis and had a median age of 52.2 years (range: 18-79 years). Pearson correlation analysis revealed negative coefficients between social support and the other three variables, suggesting that higher levels of social support are associated with lower levels of depression and stress, with both correlations being statistically significant, as indicated by the double asterisks. Multiple linear regression analysis suggested that exercise, financial support, comorbidity, and diabetes were factors affecting depression; exercise, systolic blood pressure, employment, comorbidity, and duration per week were factors affecting anxiety; and exercise, systolic blood pressure, diabetes, financial support, comorbidity, and gender were factors affecting stress. This study highlights the high levels of psychological distress among patients undergoing hemodialysis in Syria and the modest role of social support in mitigating psychosocial burdens among Syrians.
{"title":"Social Support and Anxiety-Depression-Stress Among Patients Undergoing Hemodialysis in War-Torn Syria.","authors":"Fatema Ahmed, Seba Harphoush, Waleed Ksebe, Qingyuan Ye, Wang Dandan, Haya Radwan","doi":"10.1111/nhs.70165","DOIUrl":"https://doi.org/10.1111/nhs.70165","url":null,"abstract":"<p><p>This study aims to clarify the current state of social support and the relationship with anxiety, depression, and stress among Syrian patients undergoing hemodialysis. A cross-sectional study was conducted with 250 patients undergoing hemodialysis at three public hospitals in Syria. The study included 250 Syrian patients who were undergoing hemodialysis and had a median age of 52.2 years (range: 18-79 years). Pearson correlation analysis revealed negative coefficients between social support and the other three variables, suggesting that higher levels of social support are associated with lower levels of depression and stress, with both correlations being statistically significant, as indicated by the double asterisks. Multiple linear regression analysis suggested that exercise, financial support, comorbidity, and diabetes were factors affecting depression; exercise, systolic blood pressure, employment, comorbidity, and duration per week were factors affecting anxiety; and exercise, systolic blood pressure, diabetes, financial support, comorbidity, and gender were factors affecting stress. This study highlights the high levels of psychological distress among patients undergoing hemodialysis in Syria and the modest role of social support in mitigating psychosocial burdens among Syrians.</p>","PeriodicalId":49730,"journal":{"name":"Nursing & Health Sciences","volume":"27 2","pages":"e70165"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144286943","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nathaly Bianka Moraes Fróes, Juliana Cunha Maia, Viviane Martins da Silva, Marcos Venícios de Oliveira Lopes
Understanding factors that influence contraceptive practice is important to ease preferred contraception provision, compatible with user lifestyle, to facilitate contraceptive continuation. This study aimed to identify etiological factors and populations at risk related to the nursing diagnosis Ineffective Health Maintenance Behaviors in women who do not wish to become pregnant. A systematic review of etiology and risk was performed using descriptors related to female contraception, influencing factors of the nursing diagnosis and nursing diagnosis in study. Scopus, PubMed, Embase, BVS, Ovid, WoS, PsycINFO, CINAHL, GoogleScholar and ProQuest were searched between November 4, 2023 and May 13, 2024. Primary studies addressing factors consistent with the diagnosis in study in women aged 14-50 who do not wish to become pregnant, in patient's perspectives, were included. Eleven etiological factors were identified. Inadequate health literacy and low educational level were considered precipitating and predisposing factors to ineffective health maintenance behaviors by meta-analysis. Causal relationships were established for the remaining factors. Accurate identification of factors that prevent women to use contraception, involving diverse levels of causal relationships will allow nursing assessment integrated to patient's reality.
{"title":"Etiological Factors of Ineffective Health Maintenance Behaviors in Fertile Women Who do Not Wish to Become Pregnant: Systematic Review.","authors":"Nathaly Bianka Moraes Fróes, Juliana Cunha Maia, Viviane Martins da Silva, Marcos Venícios de Oliveira Lopes","doi":"10.1111/nhs.70161","DOIUrl":"10.1111/nhs.70161","url":null,"abstract":"<p><p>Understanding factors that influence contraceptive practice is important to ease preferred contraception provision, compatible with user lifestyle, to facilitate contraceptive continuation. This study aimed to identify etiological factors and populations at risk related to the nursing diagnosis Ineffective Health Maintenance Behaviors in women who do not wish to become pregnant. A systematic review of etiology and risk was performed using descriptors related to female contraception, influencing factors of the nursing diagnosis and nursing diagnosis in study. Scopus, PubMed, Embase, BVS, Ovid, WoS, PsycINFO, CINAHL, GoogleScholar and ProQuest were searched between November 4, 2023 and May 13, 2024. Primary studies addressing factors consistent with the diagnosis in study in women aged 14-50 who do not wish to become pregnant, in patient's perspectives, were included. Eleven etiological factors were identified. Inadequate health literacy and low educational level were considered precipitating and predisposing factors to ineffective health maintenance behaviors by meta-analysis. Causal relationships were established for the remaining factors. Accurate identification of factors that prevent women to use contraception, involving diverse levels of causal relationships will allow nursing assessment integrated to patient's reality.</p>","PeriodicalId":49730,"journal":{"name":"Nursing & Health Sciences","volume":"27 2","pages":"e70161"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144327530","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Alwin Issac, Shalini Ganesh Nayak, Rebecca George, T Priyadarshini, Jaison Jacob
Non-adherence to psychotropic medications remains a major concern among psychiatric patients, exacerbating symptoms and increasing the risk of relapses, rehospitalization, and suicide. This meta-synthesis aims at consolidating the findings from qualitative research on barriers and facilitators to medication adherence from the perspectives of individuals with mental disorders, their caregivers, and healthcare providers. A comprehensive search was conducted across PubMed, CINAHL, Scopus, Web of Science, ProQuest, and ClinicalKey, including qualitative studies published in English from 2000 to 2024. The methodological quality was assessed using Walsh and Downe's checklist and data were thematically analyzed using Lucas's framework. The review found 15 barriers such as stigma, unpleasant side effects and fear of abuse, misperception, lack of insight, forgetfulness, and lack of accessibility and availability of healthcare providers, and 10 facilitators including shared decision-making, quality information, personable attributes of healthcare providers, a steady medication schedule, and a support network for medication adherence. Identifying barriers and facilitators of the study to medication adherence in persons with mental disorders is essential for developing personalized treatment plans to enhance adherence and ensure effective management of psychiatric conditions.
不坚持服用精神药物仍然是精神病患者的一个主要问题,它加剧了症状,增加了复发、再住院和自杀的风险。本meta-synthesis旨在从精神障碍患者、其护理者和医疗保健提供者的角度巩固对药物依从性的障碍和促进因素的定性研究结果。对PubMed、CINAHL、Scopus、Web of Science、ProQuest和ClinicalKey进行了全面的检索,包括2000年至2024年发表的英文定性研究。使用Walsh和Downe的检查表评估方法学质量,并使用Lucas的框架对数据进行主题分析。回顾发现了15个障碍,如耻辱、令人不快的副作用和对滥用的恐惧、误解、缺乏洞察力、健忘、缺乏卫生保健提供者的可及性和可用性;10个促进因素,包括共享决策、质量信息、卫生保健提供者的个人属性、稳定的用药时间表和药物依从性支持网络。确定研究中精神障碍患者药物依从性的障碍和促进因素对于制定个性化治疗计划以提高依从性和确保有效管理精神疾病至关重要。
{"title":"Barriers and Facilitators to Medication Adherence Among Individuals With Mental Disorders: A Qualitative Systematic Review and Evidence Synthesis.","authors":"Alwin Issac, Shalini Ganesh Nayak, Rebecca George, T Priyadarshini, Jaison Jacob","doi":"10.1111/nhs.70153","DOIUrl":"10.1111/nhs.70153","url":null,"abstract":"<p><p>Non-adherence to psychotropic medications remains a major concern among psychiatric patients, exacerbating symptoms and increasing the risk of relapses, rehospitalization, and suicide. This meta-synthesis aims at consolidating the findings from qualitative research on barriers and facilitators to medication adherence from the perspectives of individuals with mental disorders, their caregivers, and healthcare providers. A comprehensive search was conducted across PubMed, CINAHL, Scopus, Web of Science, ProQuest, and ClinicalKey, including qualitative studies published in English from 2000 to 2024. The methodological quality was assessed using Walsh and Downe's checklist and data were thematically analyzed using Lucas's framework. The review found 15 barriers such as stigma, unpleasant side effects and fear of abuse, misperception, lack of insight, forgetfulness, and lack of accessibility and availability of healthcare providers, and 10 facilitators including shared decision-making, quality information, personable attributes of healthcare providers, a steady medication schedule, and a support network for medication adherence. Identifying barriers and facilitators of the study to medication adherence in persons with mental disorders is essential for developing personalized treatment plans to enhance adherence and ensure effective management of psychiatric conditions.</p>","PeriodicalId":49730,"journal":{"name":"Nursing & Health Sciences","volume":"27 2","pages":"e70153"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144267815","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Marthoenis Marthoenis, Rizki Fitryasari, Sri Warsini, Martina Martina, Said Usman
Health-seeking behavior is essential for improving mental health outcomes in schizophrenia care. This study examines socio-economic, knowledge, and attitudinal factors influencing caregivers' health-seeking behavior in Indonesia. A cross-sectional study involving 672 caregivers was conducted at specialized psychiatric outpatient clinics in three provinces of Indonesia using convenience sampling, with face-to-face interviews used to collect sociodemographic and health-seeking data. Mental health literacy was assessed with the Public Perceptions of Mental Illness Questionnaire, and help-seeking behavior was measured using the Inventory of Attitudes towards Mental Health Services. Multiple linear regression identified predictors, including socio-economic status, knowledge, attitudes, and caregiving practices. Income and employment status significantly predicted health-seeking behavior, with higher income and self-employment linked to greater engagement. Knowledge about mental illness, positive attitudes, and caregiving practices were also positively associated. The models explained 28% to 57% of the variance in help-seeking behavior. Socio-economic factors, mental health literacy, and attitudes shape caregivers' health-seeking behavior. Interventions enhancing knowledge, reducing stigma, and supporting caregivers may improve help-seeking and mental health care utilization. The study was reported in accordance with the STROBE guidelines.
{"title":"Socio-Economic, Knowledge, and Attitudinal Determinants of Schizophrenia Health-Seeking Behavior Among Caregivers: Findings From a Multi-Setting Cross-Sectional Study in Indonesia.","authors":"Marthoenis Marthoenis, Rizki Fitryasari, Sri Warsini, Martina Martina, Said Usman","doi":"10.1111/nhs.70155","DOIUrl":"https://doi.org/10.1111/nhs.70155","url":null,"abstract":"<p><p>Health-seeking behavior is essential for improving mental health outcomes in schizophrenia care. This study examines socio-economic, knowledge, and attitudinal factors influencing caregivers' health-seeking behavior in Indonesia. A cross-sectional study involving 672 caregivers was conducted at specialized psychiatric outpatient clinics in three provinces of Indonesia using convenience sampling, with face-to-face interviews used to collect sociodemographic and health-seeking data. Mental health literacy was assessed with the Public Perceptions of Mental Illness Questionnaire, and help-seeking behavior was measured using the Inventory of Attitudes towards Mental Health Services. Multiple linear regression identified predictors, including socio-economic status, knowledge, attitudes, and caregiving practices. Income and employment status significantly predicted health-seeking behavior, with higher income and self-employment linked to greater engagement. Knowledge about mental illness, positive attitudes, and caregiving practices were also positively associated. The models explained 28% to 57% of the variance in help-seeking behavior. Socio-economic factors, mental health literacy, and attitudes shape caregivers' health-seeking behavior. Interventions enhancing knowledge, reducing stigma, and supporting caregivers may improve help-seeking and mental health care utilization. The study was reported in accordance with the STROBE guidelines.</p>","PeriodicalId":49730,"journal":{"name":"Nursing & Health Sciences","volume":"27 2","pages":"e70155"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144182880","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Individuals diagnosed with diabetic retinopathy may experience difficulties in performing daily life activities and maintaining diabetes self-management due to vision problems. This study aimed to conduct an in-depth investigation into challenges and needs experienced in diabetes self-management by individuals diagnosed with diabetic retinopathy. This study employed a descriptive phenomenology study design. Data were collected from 13 diabetic patients through a questionnaire and semi-structured interview form, and were analyzed using the NVivo 12 program. When the qualitative data in the study were analyzed, two main themes were identified for diabetic individuals with retinopathy: daily struggles experienced during diabetes self-management and supportive requirements required for diabetes management. The daily struggles theme included the subthemes of psychological, treatment monitoring, physical activity, and nutrition, while the supportive requirements theme consisted of the subthemes of social support, diabetes technologies, lifestyle changes, and coping methods. Findings indicate that diabetic individuals diagnosed with diabetic retinopathy experienced significant difficulties in the areas of psychology, nutrition, treatment monitoring, and physical activity. They emphasized the need for coping methods and supportive resources for effective diabetes management.
{"title":"Invisible Struggle: Diabetes Self-Management Through the Eyes of Diabetic Individuals With Retinopathy.","authors":"Tuğba Bilgehan, Münevver Sönmez, Hülya Türkçapar, Meleknur Göktaş","doi":"10.1111/nhs.70144","DOIUrl":"10.1111/nhs.70144","url":null,"abstract":"<p><p>Individuals diagnosed with diabetic retinopathy may experience difficulties in performing daily life activities and maintaining diabetes self-management due to vision problems. This study aimed to conduct an in-depth investigation into challenges and needs experienced in diabetes self-management by individuals diagnosed with diabetic retinopathy. This study employed a descriptive phenomenology study design. Data were collected from 13 diabetic patients through a questionnaire and semi-structured interview form, and were analyzed using the NVivo 12 program. When the qualitative data in the study were analyzed, two main themes were identified for diabetic individuals with retinopathy: daily struggles experienced during diabetes self-management and supportive requirements required for diabetes management. The daily struggles theme included the subthemes of psychological, treatment monitoring, physical activity, and nutrition, while the supportive requirements theme consisted of the subthemes of social support, diabetes technologies, lifestyle changes, and coping methods. Findings indicate that diabetic individuals diagnosed with diabetic retinopathy experienced significant difficulties in the areas of psychology, nutrition, treatment monitoring, and physical activity. They emphasized the need for coping methods and supportive resources for effective diabetes management.</p>","PeriodicalId":49730,"journal":{"name":"Nursing & Health Sciences","volume":"27 2","pages":"e70144"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12119164/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144175301","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}