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Case Management for Enhancing Wellbeing, Resilience, and Quality of Life in Caregivers of Children and Adolescents With Chronic Illnesses and Disabilities: A Systematic Review and Meta-Analysis. 提高患有慢性疾病和残疾的儿童和青少年照顾者的幸福感、复原力和生活质量的案例管理:系统回顾和荟萃分析。
IF 1.6 3区 医学 Q2 NURSING Pub Date : 2025-06-01 DOI: 10.1111/nhs.70096
Jan Broll, Sarah K Schäfer, Jutta Stoffers-Winterling, Sarah Hölzen, Isabella Helmreich, Klaus Lieb

Caregivers of children and adolescents with chronic illnesses often experience mental health challenges, which increase their risk of poor quality of life. This systematic review evaluates the effectiveness of case management interventions in improving caregivers' positive mental health, psychological distress, and satisfaction with health care services. We included (cluster) randomized controlled trials that evaluated the effects of case management. Systematic searches were conducted in PubMed, Scopus, CENTRAL, and PsycINFO up to 30 June 2024. Risk of bias was assessed using the Cochrane tool (RoB 2), and multi-level meta-analyses were performed for post-intervention outcomes, while follow-up data were synthesized qualitatively due to limited long-term evidence. A total of 17 studies were included, providing multiple effect estimates for different types of outcomes, showing small positive effects of case management on mental health (analyses based on 8 studies), psychological distress (6 studies), and satisfaction with health services (9 studies). Although case management interventions show promise in supporting carers, the limited number of studies limits the strength and generalizability of the findings. Further research is needed to explore the long-term effectiveness of such interventions. Trial Registration: The review protocol was prospectively registered at PROSPERO (CRD4202453375).

患有慢性疾病的儿童和青少年的照料者往往面临精神健康挑战,这增加了他们生活质量低下的风险。本系统回顾评估个案管理干预在改善照护者积极心理健康、心理困扰和对医疗服务满意度方面的有效性。我们纳入了评估病例管理效果的随机对照试验。系统检索PubMed、Scopus、CENTRAL和PsycINFO,截止到2024年6月30日。使用Cochrane工具(RoB 2)评估偏倚风险,并对干预后结果进行多层次荟萃分析,同时由于长期证据有限,对随访数据进行定性综合。总共纳入了17项研究,对不同类型的结果提供了多重效应估计,显示病例管理对心理健康(基于8项研究的分析)、心理困扰(6项研究)和卫生服务满意度(9项研究)有微小的积极影响。尽管病例管理干预在支持护理人员方面显示出希望,但有限的研究数量限制了研究结果的强度和普遍性。需要进一步的研究来探索这些干预措施的长期有效性。试验注册:审查方案在PROSPERO前瞻性注册(CRD4202453375)。
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引用次数: 0
Determination of the Relationship Between Care Burden, Health Anxiety and Depression Levels of Caregivers of Patients Who Have Undergone Oncological Surgery. 肿瘤手术患者照护者护理负担、健康焦虑和抑郁水平关系的研究
IF 2.1 3区 医学 Q2 NURSING Pub Date : 2025-06-01 DOI: 10.1111/nhs.70164
Beyza Bicer Ozturk, Zuleyha Simsek Yaban

This study was designed to determine the care burden, health anxiety and depression levels of caregivers of patients with oncological surgery and the relationship between these variables. A descriptive and correlational study was conducted with 162 caregivers of patients who underwent surgery due to cancer. Data were collected using "Caregiver Identification Form", "The Zarit Caregiver Burden Scale", "The Beck Depression Inventory", and "The Health Anxiety Inventory". The caregivers had moderate and severe levels of caregiver burden (51.79 ± 13.53), depression (17.27 ± 9.58), and health anxiety (26.44 ± 8.93). There was a statistically significant positive weak relationship between the caregivers' health anxiety caregiver burden and depression levels. It was determined that the caregivers of the patients also have needs like the patients. It is necessary to understand what the caregiver is going through at every stage of the cancer patient's treatment process. Planning a holistic care that includes the patient's caregivers will improve the well-being of the caregiver while also contributing to the development of the well-being of the patient receiving care.

本研究旨在探讨肿瘤手术患者护理人员的护理负担、健康焦虑和抑郁水平,以及这些变量之间的关系。对162名因癌症接受手术的患者的护理人员进行了一项描述性和相关性研究。采用“照顾者识别表”、“Zarit照顾者负担量表”、“Beck抑郁量表”和“健康焦虑量表”收集数据。照顾者有中重度照顾负担(51.79±13.53)、抑郁(17.27±9.58)、健康焦虑(26.44±8.93)。照顾者健康、焦虑、照顾者负担与抑郁水平呈显著正相关。确定患者的护理人员也有像患者一样的需求。有必要了解护理人员在癌症患者治疗过程的每个阶段都经历了什么。规划一个包括病人的护理人员的整体护理将改善护理人员的福祉,同时也有助于病人接受护理的福祉的发展。
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引用次数: 0
Using Best-Worst Scaling to Identify and Prioritize Supportive Care Needs From Breast Cancer Patients' Perspective: A Mixed-Methods Study Based on an Emotional Lexicon. 从乳腺癌患者的角度使用最佳-最差量表来识别和优先考虑支持性护理需求:基于情感词典的混合方法研究。
IF 2.1 3区 医学 Q2 NURSING Pub Date : 2025-06-01 DOI: 10.1111/nhs.70163
Bingqian Guo, Jianyao Tang, Wenji Li, Yalan Song, Hui Yang, Yusheng Liu, Jing Chi, Chuhan Zhong, Shisi Deng, Zihan Guo, Yujie Zhang, Wenqiong Cao, Yanni Wu

Breast cancer remains a global health challenge, imposing significant physical and psychological burdens. With a growing focus on patient-centered care, identifying priority supportive care needs from the perspective of patients with breast cancer is crucial. Current research often relies on standardized tools and single-method approaches, missing the complexity and diversity of breast cancer patients' needs. To address this gap, this study aims to identify and prioritize the supportive care needs most relevant to patients with breast cancer using multiple sources, including an emotional lexicon, the Best-Worst Scaling method, and semi-structured interviews. Based on an emotional lexicon of breast cancer, 50 supportive care needs items were initially identified. These items were further expanded through semi-structured interviews with 25 breast cancer patients and 12 healthcare professionals. Subsequently, the refined list of 60 items was incorporated into a Best-Worst Scaling (BWS) questionnaire to assess patient preferences. To ensure clarity and precision, an expert consensus meeting was conducted to finalize the items. The findings serve as a guide for future research to improve healthcare quality from the breast cancer patient's perspective.

乳腺癌仍然是一项全球健康挑战,造成严重的身体和心理负担。随着对以患者为中心的护理的日益关注,从乳腺癌患者的角度确定优先的支持性护理需求至关重要。目前的研究往往依赖于标准化的工具和单一的方法,忽视了乳腺癌患者需求的复杂性和多样性。为了解决这一差距,本研究旨在通过多种来源,包括情感词汇、最佳最差量表方法和半结构化访谈,确定和优先考虑与乳腺癌患者最相关的支持性护理需求。基于乳腺癌的情感词汇,最初确定了50个支持性护理需求项目。通过对25名乳腺癌患者和12名保健专业人员进行半结构化访谈,进一步扩大了这些项目。随后,将精炼后的60个项目纳入最佳最差量表(BWS)问卷,以评估患者的偏好。为确保清晰和精确,举行了一次专家协商一致意见会议,以最后确定这些项目。这些发现为今后的研究提供了指导,以从乳腺癌患者的角度提高医疗质量。
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引用次数: 0
Factors and Experiences of Self-Management in Patients With Enterostomy: A Scoping Review and Synthetic Framework. 肠造口患者自我管理的因素和经验:范围综述和综合框架。
IF 2.1 3区 医学 Q2 NURSING Pub Date : 2025-06-01 DOI: 10.1111/nhs.70146
Yashi Zou, Juan Du, Yanlin Shen, Runju Deng, Jing Tan, Huijuan Ma

This review aims to systematically and comprehensively identify the factors and experiences of self-management in patients with enterostomy and to develop a framework for synthesizing factors and experiences. A scoping review of studies focusing on factors and experiences of self-management in patients with enterostomy was conducted. A comprehensive search was conducted in seven databases (PubMed, CINAHL, Embase, Web of Science, CNKI, Wanfang, and China Biomedical Database). Fourteen studies (10 quantitative studies, 3 qualitative studies, and 1 study of nominal group technique approach) were included. The self-management framework for patients with enterostomy encompassed three systems, which were the personal system (sociodemographic variables, stoma, diet, exercise management, psychological status, and sexual and reproductive), the interpersonal system (families, peers, healthcare professionals), and the social systems (government, hospitals, and communities). Four key elements, including information, communication, support, and decision-making, interacted between the three systems. This scoping review developed a self-management framework for patients with enterostomy on the basis of King's Conceptual System, which can be utilized to develop systematic interventions for this population.

本文旨在系统、全面地识别肠造口患者自我管理的因素和经验,并建立一个综合因素和经验的框架。对肠造口患者自我管理的因素和经验进行了范围综述。综合检索了PubMed、CINAHL、Embase、Web of Science、CNKI、万方、中国生物医学数据库等7个数据库。共纳入14项研究(10项定量研究、3项定性研究和1项名义群体技术方法研究)。肠造口患者自我管理框架包括三个系统,即个人系统(社会人口学变量、造口、饮食、运动管理、心理状态、性和生殖)、人际系统(家庭、同伴、医护人员)和社会系统(政府、医院和社区)。信息、沟通、支持和决策等四个关键要素在这三个系统之间相互作用。本综述在King概念系统的基础上为肠造口患者制定了一个自我管理框架,该框架可用于为该人群制定系统干预措施。
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引用次数: 0
Evaluation of Organ Donation Attitudes in The Context of Health Literacy and Fatalism: A Cross-Sectional Correlational Study. 健康素养与宿命论背景下器官捐献态度的评估:一项横断面相关研究。
IF 2.1 3区 医学 Q2 NURSING Pub Date : 2025-06-01 DOI: 10.1111/nhs.70145
Duygu Öztaş, Sultan Türkmen Keskin, Yasemin Uğurlu, Şenay Akgün

The aim of the study is to investigate the relationships among health literacy (HL), fatalistic tendencies, and attitudes toward organ donation. A cross-sectional correlational study design was employed. The sample consists of 1566 voluntary participants residing in four major cities in the Central Anatolian Region of Türkiye. Data were collected via an online form between August 1 and December 31, 2023, using the Organ Donation Attitude Scale, Health Literacy Scale-14, and Fatalism Tendency Scale. Mediation analysis was performed utilizing Hayes' PROCESS Macro (Model 4). Of the participants, 72.8% demonstrated knowledge about organ transplantation, and 40.4% reported having considered organ donation after death. The analyses revealed that fatalistic tendencies explained 5.4% of the variance in humanity and moral conviction and 13.31% of the variance in negative attitudes. Additionally, HL partially mediated the relationship between fatalistic tendencies and attitudes toward organ donation. These findings suggest that addressing fatalism and improving HL could positively influence perceptions of organ donation.

摘要本研究旨在探讨健康素养、宿命论倾向与器官捐献态度之间的关系。采用横断面相关研究设计。样本由居住在中部安纳托利亚基耶省四个主要城市的1566名自愿参与者组成。数据于2023年8月1日至12月31日通过在线表格收集,使用器官捐赠态度量表、健康素养量表-14和宿命论倾向量表。采用Hayes’PROCESS Macro(模型4)进行中介分析。在参与者中,72.8%的人表示了解器官移植,40.4%的人表示考虑过死后捐献器官。分析显示,宿命论倾向解释了5.4%的人性和道德信念差异,13.31%的消极态度差异。此外,HL在宿命论倾向与器官捐赠态度之间有部分中介作用。这些发现表明,解决宿命论和改善HL可以积极影响器官捐赠的观念。
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引用次数: 0
Social Support and Anxiety-Depression-Stress Among Patients Undergoing Hemodialysis in War-Torn Syria. 饱受战争蹂躏的叙利亚血液透析患者的社会支持和焦虑-抑郁-压力
IF 2.1 3区 医学 Q2 NURSING Pub Date : 2025-06-01 DOI: 10.1111/nhs.70165
Fatema Ahmed, Seba Harphoush, Waleed Ksebe, Qingyuan Ye, Wang Dandan, Haya Radwan

This study aims to clarify the current state of social support and the relationship with anxiety, depression, and stress among Syrian patients undergoing hemodialysis. A cross-sectional study was conducted with 250 patients undergoing hemodialysis at three public hospitals in Syria. The study included 250 Syrian patients who were undergoing hemodialysis and had a median age of 52.2 years (range: 18-79 years). Pearson correlation analysis revealed negative coefficients between social support and the other three variables, suggesting that higher levels of social support are associated with lower levels of depression and stress, with both correlations being statistically significant, as indicated by the double asterisks. Multiple linear regression analysis suggested that exercise, financial support, comorbidity, and diabetes were factors affecting depression; exercise, systolic blood pressure, employment, comorbidity, and duration per week were factors affecting anxiety; and exercise, systolic blood pressure, diabetes, financial support, comorbidity, and gender were factors affecting stress. This study highlights the high levels of psychological distress among patients undergoing hemodialysis in Syria and the modest role of social support in mitigating psychosocial burdens among Syrians.

本研究旨在了解叙利亚血液透析患者的社会支持现状及其与焦虑、抑郁和压力的关系。对叙利亚三家公立医院接受血液透析的250名患者进行了横断面研究。该研究包括250名正在接受血液透析的叙利亚患者,中位年龄为52.2岁(范围:18-79岁)。皮尔逊相关分析显示,社会支持与其他三个变量之间存在负系数,表明较高的社会支持水平与较低的抑郁和压力水平相关,两者的相关性在统计上都是显著的,如双星号所示。多元线性回归分析表明,运动、经济支持、合并症和糖尿病是影响抑郁的因素;运动、收缩压、就业、合并症和每周持续时间是影响焦虑的因素;运动、收缩压、糖尿病、经济支持、合并症和性别是影响压力的因素。这项研究强调了叙利亚接受血液透析的患者的高水平心理困扰,以及社会支持在减轻叙利亚人的社会心理负担方面的适度作用。
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引用次数: 0
Etiological Factors of Ineffective Health Maintenance Behaviors in Fertile Women Who do Not Wish to Become Pregnant: Systematic Review. 不希望怀孕的育龄妇女健康维护行为无效的病因学因素:系统综述。
IF 2.1 3区 医学 Q2 NURSING Pub Date : 2025-06-01 DOI: 10.1111/nhs.70161
Nathaly Bianka Moraes Fróes, Juliana Cunha Maia, Viviane Martins da Silva, Marcos Venícios de Oliveira Lopes

Understanding factors that influence contraceptive practice is important to ease preferred contraception provision, compatible with user lifestyle, to facilitate contraceptive continuation. This study aimed to identify etiological factors and populations at risk related to the nursing diagnosis Ineffective Health Maintenance Behaviors in women who do not wish to become pregnant. A systematic review of etiology and risk was performed using descriptors related to female contraception, influencing factors of the nursing diagnosis and nursing diagnosis in study. Scopus, PubMed, Embase, BVS, Ovid, WoS, PsycINFO, CINAHL, GoogleScholar and ProQuest were searched between November 4, 2023 and May 13, 2024. Primary studies addressing factors consistent with the diagnosis in study in women aged 14-50 who do not wish to become pregnant, in patient's perspectives, were included. Eleven etiological factors were identified. Inadequate health literacy and low educational level were considered precipitating and predisposing factors to ineffective health maintenance behaviors by meta-analysis. Causal relationships were established for the remaining factors. Accurate identification of factors that prevent women to use contraception, involving diverse levels of causal relationships will allow nursing assessment integrated to patient's reality.

了解影响避孕措施的因素对于减轻提供与使用者生活方式相适应的首选避孕措施,促进避孕措施的继续使用具有重要意义。本研究旨在探讨不愿怀孕妇女护理诊断为无效健康维持行为的相关病因及危险人群。采用与女性避孕相关的描述词、护理诊断的影响因素及本研究的护理诊断对其病因及风险进行系统综述。Scopus, PubMed, Embase, BVS, Ovid, WoS, PsycINFO, CINAHL, GoogleScholar和ProQuest在2023年11月4日至2024年5月13日之间进行了检索。在14-50岁不希望怀孕的女性中,从患者的角度考虑了与诊断一致的主要研究。确定了11种病因。meta分析认为健康素养不高、文化程度低是导致健康维护行为无效的促发因素。对其余因素建立了因果关系。准确识别妨碍妇女使用避孕措施的因素,包括不同层次的因果关系,将使护理评估与患者的实际情况相结合。
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引用次数: 0
Barriers and Facilitators to Medication Adherence Among Individuals With Mental Disorders: A Qualitative Systematic Review and Evidence Synthesis. 精神障碍患者药物依从性的障碍和促进因素:一项定性系统评价和证据综合。
IF 2.1 3区 医学 Q2 NURSING Pub Date : 2025-06-01 DOI: 10.1111/nhs.70153
Alwin Issac, Shalini Ganesh Nayak, Rebecca George, T Priyadarshini, Jaison Jacob

Non-adherence to psychotropic medications remains a major concern among psychiatric patients, exacerbating symptoms and increasing the risk of relapses, rehospitalization, and suicide. This meta-synthesis aims at consolidating the findings from qualitative research on barriers and facilitators to medication adherence from the perspectives of individuals with mental disorders, their caregivers, and healthcare providers. A comprehensive search was conducted across PubMed, CINAHL, Scopus, Web of Science, ProQuest, and ClinicalKey, including qualitative studies published in English from 2000 to 2024. The methodological quality was assessed using Walsh and Downe's checklist and data were thematically analyzed using Lucas's framework. The review found 15 barriers such as stigma, unpleasant side effects and fear of abuse, misperception, lack of insight, forgetfulness, and lack of accessibility and availability of healthcare providers, and 10 facilitators including shared decision-making, quality information, personable attributes of healthcare providers, a steady medication schedule, and a support network for medication adherence. Identifying barriers and facilitators of the study to medication adherence in persons with mental disorders is essential for developing personalized treatment plans to enhance adherence and ensure effective management of psychiatric conditions.

不坚持服用精神药物仍然是精神病患者的一个主要问题,它加剧了症状,增加了复发、再住院和自杀的风险。本meta-synthesis旨在从精神障碍患者、其护理者和医疗保健提供者的角度巩固对药物依从性的障碍和促进因素的定性研究结果。对PubMed、CINAHL、Scopus、Web of Science、ProQuest和ClinicalKey进行了全面的检索,包括2000年至2024年发表的英文定性研究。使用Walsh和Downe的检查表评估方法学质量,并使用Lucas的框架对数据进行主题分析。回顾发现了15个障碍,如耻辱、令人不快的副作用和对滥用的恐惧、误解、缺乏洞察力、健忘、缺乏卫生保健提供者的可及性和可用性;10个促进因素,包括共享决策、质量信息、卫生保健提供者的个人属性、稳定的用药时间表和药物依从性支持网络。确定研究中精神障碍患者药物依从性的障碍和促进因素对于制定个性化治疗计划以提高依从性和确保有效管理精神疾病至关重要。
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引用次数: 0
Socio-Economic, Knowledge, and Attitudinal Determinants of Schizophrenia Health-Seeking Behavior Among Caregivers: Findings From a Multi-Setting Cross-Sectional Study in Indonesia. 社会经济、知识和态度决定精神分裂症护理者寻求健康行为:来自印度尼西亚多环境横断面研究的结果。
IF 2.1 3区 医学 Q2 NURSING Pub Date : 2025-06-01 DOI: 10.1111/nhs.70155
Marthoenis Marthoenis, Rizki Fitryasari, Sri Warsini, Martina Martina, Said Usman

Health-seeking behavior is essential for improving mental health outcomes in schizophrenia care. This study examines socio-economic, knowledge, and attitudinal factors influencing caregivers' health-seeking behavior in Indonesia. A cross-sectional study involving 672 caregivers was conducted at specialized psychiatric outpatient clinics in three provinces of Indonesia using convenience sampling, with face-to-face interviews used to collect sociodemographic and health-seeking data. Mental health literacy was assessed with the Public Perceptions of Mental Illness Questionnaire, and help-seeking behavior was measured using the Inventory of Attitudes towards Mental Health Services. Multiple linear regression identified predictors, including socio-economic status, knowledge, attitudes, and caregiving practices. Income and employment status significantly predicted health-seeking behavior, with higher income and self-employment linked to greater engagement. Knowledge about mental illness, positive attitudes, and caregiving practices were also positively associated. The models explained 28% to 57% of the variance in help-seeking behavior. Socio-economic factors, mental health literacy, and attitudes shape caregivers' health-seeking behavior. Interventions enhancing knowledge, reducing stigma, and supporting caregivers may improve help-seeking and mental health care utilization. The study was reported in accordance with the STROBE guidelines.

寻求健康的行为对于改善精神分裂症治疗中的心理健康结果至关重要。本研究探讨影响印尼照护者求医行为的社会经济、知识和态度因素。本研究采用方便抽样的方法,在印度尼西亚三个省的精神病专科门诊进行了一项涉及672名护理人员的横断面研究,并采用面对面访谈的方式收集社会人口统计学和求医数据。采用《公众心理疾病认知问卷》评估心理健康素养,采用《心理健康服务态度问卷》评估求助行为。多元线性回归确定了预测因子,包括社会经济地位、知识、态度和护理实践。收入和就业状况显著预测了寻求健康的行为,高收入和自营职业与更大的参与有关。对精神疾病的了解、积极的态度和护理实践也呈正相关。这些模型解释了求助行为中28%到57%的差异。社会经济因素、心理健康素养和态度影响照顾者的求医行为。干预措施提高知识,减少耻辱,并支持照顾者可以提高寻求帮助和精神卫生保健的利用。这项研究是按照STROBE指南报道的。
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引用次数: 0
Invisible Struggle: Diabetes Self-Management Through the Eyes of Diabetic Individuals With Retinopathy. 看不见的斗争:糖尿病视网膜病变患者的自我管理。
IF 2.1 3区 医学 Q2 NURSING Pub Date : 2025-06-01 DOI: 10.1111/nhs.70144
Tuğba Bilgehan, Münevver Sönmez, Hülya Türkçapar, Meleknur Göktaş

Individuals diagnosed with diabetic retinopathy may experience difficulties in performing daily life activities and maintaining diabetes self-management due to vision problems. This study aimed to conduct an in-depth investigation into challenges and needs experienced in diabetes self-management by individuals diagnosed with diabetic retinopathy. This study employed a descriptive phenomenology study design. Data were collected from 13 diabetic patients through a questionnaire and semi-structured interview form, and were analyzed using the NVivo 12 program. When the qualitative data in the study were analyzed, two main themes were identified for diabetic individuals with retinopathy: daily struggles experienced during diabetes self-management and supportive requirements required for diabetes management. The daily struggles theme included the subthemes of psychological, treatment monitoring, physical activity, and nutrition, while the supportive requirements theme consisted of the subthemes of social support, diabetes technologies, lifestyle changes, and coping methods. Findings indicate that diabetic individuals diagnosed with diabetic retinopathy experienced significant difficulties in the areas of psychology, nutrition, treatment monitoring, and physical activity. They emphasized the need for coping methods and supportive resources for effective diabetes management.

由于视力问题,被诊断为糖尿病视网膜病变的个体可能在日常生活活动和维持糖尿病自我管理方面遇到困难。本研究旨在深入调查糖尿病视网膜病变患者在糖尿病自我管理方面的挑战和需求。本研究采用描述性现象学研究设计。通过问卷调查和半结构化访谈形式收集了13例糖尿病患者的数据,并使用NVivo 12程序进行分析。当分析研究中的定性数据时,确定了糖尿病视网膜病变患者的两个主要主题:糖尿病自我管理期间的日常斗争和糖尿病管理所需的支持性要求。日常斗争主题包括心理、治疗监测、身体活动和营养等分主题,而支持需求主题包括社会支持、糖尿病技术、生活方式改变和应对方法等分主题。研究结果表明,被诊断为糖尿病视网膜病变的糖尿病患者在心理、营养、治疗监测和身体活动方面遇到了很大的困难。他们强调需要有效管理糖尿病的应对方法和支持性资源。
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