Jack Stancel-Lewis, Tom Dening, Eithne Heffernan, Adrian C Davis, Helen Henshaw
Hearing loss affects an estimated 18 million UK adults and is the third leading cause of years lived with disability worldwide. Hearing loss diminishes quality of life, activities of daily living, mental health, and negatively impacts the economy. When left unaddressed, hearing loss exacerbates health inequalities and is associated with an increased risk of developing dementia. Hearing loss and dementia frequently co-occur and have overlapping risk factors. People from disadvantaged backgrounds typically access hearing and memory services at a more progressed stage of their conditions. Early intervention is essential to mitigate negative effects and reduce disease burden. Universal adult hearing screening is not currently recommended by the UK National Screening Committee, despite evidence of cost-effectiveness and international recommendations. We argue that the UK should adopt targeted, risk-stratified screening that prioritises those at greatest risk of dementia and people in deprived communities, where unmet need is highest. Such an approach is practical, equitable, and consistent with the Governments' prevention and personalised care agenda set out in the 10-year Health Plan for England. We outline the evidence, discuss implementation pathways, and call on policymakers to commission a targeted, risk-stratified adult hearing screening pilot. A successful programme would address unmet need, reduce inequalities, and further inform global debates on hearing screening strategies.
{"title":"Hearing screening for healthy ageing: The UK should take a targeted approach.","authors":"Jack Stancel-Lewis, Tom Dening, Eithne Heffernan, Adrian C Davis, Helen Henshaw","doi":"10.1093/geront/gnaf295","DOIUrl":"https://doi.org/10.1093/geront/gnaf295","url":null,"abstract":"<p><p>Hearing loss affects an estimated 18 million UK adults and is the third leading cause of years lived with disability worldwide. Hearing loss diminishes quality of life, activities of daily living, mental health, and negatively impacts the economy. When left unaddressed, hearing loss exacerbates health inequalities and is associated with an increased risk of developing dementia. Hearing loss and dementia frequently co-occur and have overlapping risk factors. People from disadvantaged backgrounds typically access hearing and memory services at a more progressed stage of their conditions. Early intervention is essential to mitigate negative effects and reduce disease burden. Universal adult hearing screening is not currently recommended by the UK National Screening Committee, despite evidence of cost-effectiveness and international recommendations. We argue that the UK should adopt targeted, risk-stratified screening that prioritises those at greatest risk of dementia and people in deprived communities, where unmet need is highest. Such an approach is practical, equitable, and consistent with the Governments' prevention and personalised care agenda set out in the 10-year Health Plan for England. We outline the evidence, discuss implementation pathways, and call on policymakers to commission a targeted, risk-stratified adult hearing screening pilot. A successful programme would address unmet need, reduce inequalities, and further inform global debates on hearing screening strategies.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-12-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145716746","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Yara K Haddad, Matthew W Brault, Briana Moreland, Cora Peterson, Xinjian Zhang, Karen Thomas, Farah Sublett, Michelle Dougherty, Laurie Imhof, Madeleine E Hackney, Camille P Vaughan, Theodore M Johnson, Elizabeth A Phelan, Gwen Bergen, David B Rein
Background and objectives: Falls are a leading cause of injury and death among older adults (65+). The CDC's STEADI initiative aims to reduce falls by screening to find at-risk individuals, evaluation, and then addressing modifiable risk factors. This study evaluated the effectiveness of implementing a STEADI-based multi-component fall prevention approach via telemedicine in primary care.
Research design and methods: A randomized controlled quality improvement trial (STEADI Options) was conducted during the COVID-19 pandemic (07/2020-12/2021). Primary care professionals (PCPs) were randomized to either standard-of-care (SOC) or intervention. The intervention included a fall risk assessment by a research nurse, who shared STEADI-based recommendations with PCPs. Recommended interventions were administered at the discretion of PCPs. Outcomes included self-reported falls (primary), medically treated falls, fall-related service utilization (physical therapy, occupational therapy, eye care, podiatry), and medication changes, assessed over one year. Analyses followed an intent-to-treat approach.
Results: Among 660 participants (353 SOC; 307 intervention), the cohort was predominantly female (67.7%), aged 65-79 (73.6%), and non-Hispanic White (56.1%). Intervention participants had higher average Stay Independent Screener (SIS) scores (6.3 vs. 5.2; p < 0.001). Overall, 5.5% reported a fall in the past 12 months. No significant differences were observed between groups in fall-related outcomes (e.g., medically treated falls odds ratio (adjusted for SIS): 0.741; 95% CI: 0.411-1.336).
Discussion and implications: Although no significant differences were found, limited recruitment, low baseline fall rates, and unmeasured adherence may have impacted results. Further research is needed to evaluate the feasibility and effectiveness of telemedicine-based STEADI interventions in primary care.
背景和目的:跌倒是老年人(65岁以上)受伤和死亡的主要原因。美国疾病控制与预防中心的STEADI计划旨在通过筛查发现有风险的个体,评估,然后解决可改变的风险因素来减少跌倒。本研究评估了通过远程医疗在初级保健中实施基于steadi的多成分跌倒预防方法的有效性。研究设计和方法:在2019冠状病毒病大流行期间(2020年7月- 2021年12月)进行随机对照质量改善试验(STEADI Options)。初级保健专业人员(pcp)被随机分配到标准护理组(SOC)或干预组。干预措施包括由一名研究护士进行跌倒风险评估,该护士与pcp分享了基于steadi的建议。推荐的干预措施由pcp自行决定。结果包括自我报告的跌倒(初级)、药物治疗的跌倒、跌倒相关服务的利用(物理治疗、职业治疗、眼科护理、足部治疗)和药物改变,评估时间超过一年。分析采用意向治疗方法。结果:在660名参与者中(353名SOC, 307名干预),队列主要是女性(67.7%),65-79岁(73.6%)和非西班牙裔白人(56.1%)。干预参与者的平均住院独立筛查(SIS)评分较高(6.3 vs. 5.2; p)。讨论和意义:虽然没有发现显著差异,但有限的招募、较低的基线跌倒率和未测量的依从性可能会影响结果。需要进一步的研究来评估基于远程医疗的STEADI干预在初级保健中的可行性和有效性。
{"title":"Evaluating the Effectiveness of a Telemedicine-Based STEADI Implementation in Primary Care on Fall Outcomes: The STEADI Options Randomized Controlled Trial.","authors":"Yara K Haddad, Matthew W Brault, Briana Moreland, Cora Peterson, Xinjian Zhang, Karen Thomas, Farah Sublett, Michelle Dougherty, Laurie Imhof, Madeleine E Hackney, Camille P Vaughan, Theodore M Johnson, Elizabeth A Phelan, Gwen Bergen, David B Rein","doi":"10.1093/geront/gnaf292","DOIUrl":"https://doi.org/10.1093/geront/gnaf292","url":null,"abstract":"<p><strong>Background and objectives: </strong>Falls are a leading cause of injury and death among older adults (65+). The CDC's STEADI initiative aims to reduce falls by screening to find at-risk individuals, evaluation, and then addressing modifiable risk factors. This study evaluated the effectiveness of implementing a STEADI-based multi-component fall prevention approach via telemedicine in primary care.</p><p><strong>Research design and methods: </strong>A randomized controlled quality improvement trial (STEADI Options) was conducted during the COVID-19 pandemic (07/2020-12/2021). Primary care professionals (PCPs) were randomized to either standard-of-care (SOC) or intervention. The intervention included a fall risk assessment by a research nurse, who shared STEADI-based recommendations with PCPs. Recommended interventions were administered at the discretion of PCPs. Outcomes included self-reported falls (primary), medically treated falls, fall-related service utilization (physical therapy, occupational therapy, eye care, podiatry), and medication changes, assessed over one year. Analyses followed an intent-to-treat approach.</p><p><strong>Results: </strong>Among 660 participants (353 SOC; 307 intervention), the cohort was predominantly female (67.7%), aged 65-79 (73.6%), and non-Hispanic White (56.1%). Intervention participants had higher average Stay Independent Screener (SIS) scores (6.3 vs. 5.2; p < 0.001). Overall, 5.5% reported a fall in the past 12 months. No significant differences were observed between groups in fall-related outcomes (e.g., medically treated falls odds ratio (adjusted for SIS): 0.741; 95% CI: 0.411-1.336).</p><p><strong>Discussion and implications: </strong>Although no significant differences were found, limited recruitment, low baseline fall rates, and unmeasured adherence may have impacted results. Further research is needed to evaluate the feasibility and effectiveness of telemedicine-based STEADI interventions in primary care.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145688638","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Background and objectives: Emerging public health discourse increasingly frames brain health and dementia prevention as matters of personal responsibility and urge individuals to adopt modifiable behaviours across the life course. This study examines how adults at different life stages perceive dementia risk and engage with brain health practices, with particular attention to how these behaviours are socially structured and culturally mediated.
Research design and methods: Using a life course perspective and an abductive critical realist approach, this qualitative study draws on semi-structured interviews with 33 participants (aged 19-81) recruited across three generational cohorts: younger adults (n = 11), middle-aged adults (n = 8), and older adults (n = 14). Abductive thematic analysis was employed to examine how participants understand brain health, dementia, and responsibility for the management and prevention of these aspects of late-life health.
Results: Participants articulated diverse and age-contingent understandings of brain health. While younger adults associated prevention with aspirational self-optimisation, middle-aged adults emphasised routine, sustainability and caregiving-informed insight. Older adults, often informed by lived proximity to dementia, described adaptive strategies to preserve brain health amidst physical limitations. Across all groups, health practices were framed through an ethos of personal accountability, though often enacted within structurally constrained contexts.
Discussion and implications: Findings emphasise the need to critically engage with how dementia prevention discourse is differentially internalised across the life course. Public health strategies should balance behavioural interventions with honest acknowledgement of the structural conditions which stratify distributions of brain health risk and opportunities for prevention.
{"title":"'Brain Health' - The emergence of a new healthy construct and its role in everyday life.","authors":"Joyce Siette, Gilbert Knaggs, Sarabpreet Singh","doi":"10.1093/geront/gnaf288","DOIUrl":"https://doi.org/10.1093/geront/gnaf288","url":null,"abstract":"<p><strong>Background and objectives: </strong>Emerging public health discourse increasingly frames brain health and dementia prevention as matters of personal responsibility and urge individuals to adopt modifiable behaviours across the life course. This study examines how adults at different life stages perceive dementia risk and engage with brain health practices, with particular attention to how these behaviours are socially structured and culturally mediated.</p><p><strong>Research design and methods: </strong>Using a life course perspective and an abductive critical realist approach, this qualitative study draws on semi-structured interviews with 33 participants (aged 19-81) recruited across three generational cohorts: younger adults (n = 11), middle-aged adults (n = 8), and older adults (n = 14). Abductive thematic analysis was employed to examine how participants understand brain health, dementia, and responsibility for the management and prevention of these aspects of late-life health.</p><p><strong>Results: </strong>Participants articulated diverse and age-contingent understandings of brain health. While younger adults associated prevention with aspirational self-optimisation, middle-aged adults emphasised routine, sustainability and caregiving-informed insight. Older adults, often informed by lived proximity to dementia, described adaptive strategies to preserve brain health amidst physical limitations. Across all groups, health practices were framed through an ethos of personal accountability, though often enacted within structurally constrained contexts.</p><p><strong>Discussion and implications: </strong>Findings emphasise the need to critically engage with how dementia prevention discourse is differentially internalised across the life course. Public health strategies should balance behavioural interventions with honest acknowledgement of the structural conditions which stratify distributions of brain health risk and opportunities for prevention.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145688596","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"On Transitions and Care Work in Andrea Pallaoro's Monica.","authors":"Ronald W Berkowsky","doi":"10.1093/geront/gnaf284","DOIUrl":"https://doi.org/10.1093/geront/gnaf284","url":null,"abstract":"","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-12-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145670726","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Meghan Fadel, John Shean, Eva Jackson, Janicka D Harris, Juan Rodríguez, Shelby Sutton Roberts
In 2005, congressional support led to the creation of the Healthy Brain Initiative (HBI) and the collaboration between the Alzheimer's Association and the Centers for Disease Control and Prevention to prioritize brain health in public health practice. Over 20 years, the HBI has developed and implemented the HBI Road Map Series to increase the capacity of health departments to integrate dementia into health departments nationwide, aligning frameworks like the Essential Public Health Services and focusing on health equity across the life course. A growing number of HBI partners now work together to implement public health strategies that promote brain health, address dementia, and support people living with dementia and caregivers. Recognizing opportunities to influence the trajectory of public health action, the HBI prioritizes growing the availability and use of dementia-related public health data and equipping the public health workforce with the knowledge and confidence to make change. This article documents the history and evolution of the HBI, including a description of current efforts and the broader public health context to which it has contributed; efforts of the HBI and partners in national, state, local, territorial, and tribal public health agencies have led to transformative change.
{"title":"The Healthy Brain Initiative-expanding public health capacity to address dementia.","authors":"Meghan Fadel, John Shean, Eva Jackson, Janicka D Harris, Juan Rodríguez, Shelby Sutton Roberts","doi":"10.1093/geront/gnaf220","DOIUrl":"10.1093/geront/gnaf220","url":null,"abstract":"<p><p>In 2005, congressional support led to the creation of the Healthy Brain Initiative (HBI) and the collaboration between the Alzheimer's Association and the Centers for Disease Control and Prevention to prioritize brain health in public health practice. Over 20 years, the HBI has developed and implemented the HBI Road Map Series to increase the capacity of health departments to integrate dementia into health departments nationwide, aligning frameworks like the Essential Public Health Services and focusing on health equity across the life course. A growing number of HBI partners now work together to implement public health strategies that promote brain health, address dementia, and support people living with dementia and caregivers. Recognizing opportunities to influence the trajectory of public health action, the HBI prioritizes growing the availability and use of dementia-related public health data and equipping the public health workforce with the knowledge and confidence to make change. This article documents the history and evolution of the HBI, including a description of current efforts and the broader public health context to which it has contributed; efforts of the HBI and partners in national, state, local, territorial, and tribal public health agencies have led to transformative change.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":"S10-S16"},"PeriodicalIF":3.2,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12736971/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145245660","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Joseph E Gaugler, Elma Johnson, Gary Epstein-Lubow, Lauren Parker, Fayron Epps, Ashley Millenbah
The Centers for Disease Control and Prevention-funded Building Our Largest Dementia (BOLD) Infrastructure's Public Health Center of Excellence on Dementia Caregiving (PHCOE-DC) is one of three national centers designed to help public health departments strengthen and grow their Alzheimer's disease and related dementia initiatives. The PHCOE-DC specializes in disseminating tools and resources to help public health agencies develop programming and partnerships that support family caregivers of individuals with dementia. Through its reach and dissemination efforts, the PHCOE-DC has helped to elevate dementia caregiving as a priority for public health departments. Since 2020, the PHCOE-DC has increased visibility for the role of public health in strengthening the support infrastructure for family caregivers of individuals with dementia and has established a network of national leaders in dementia caregiving. This article summarizes PHCOE-DC's past work and potential future activities as the Center continues to elevate dementia caregiving as a priority for public health.
{"title":"Building a public health infrastructure to support family caregivers of people with dementia.","authors":"Joseph E Gaugler, Elma Johnson, Gary Epstein-Lubow, Lauren Parker, Fayron Epps, Ashley Millenbah","doi":"10.1093/geront/gnaf223","DOIUrl":"10.1093/geront/gnaf223","url":null,"abstract":"<p><p>The Centers for Disease Control and Prevention-funded Building Our Largest Dementia (BOLD) Infrastructure's Public Health Center of Excellence on Dementia Caregiving (PHCOE-DC) is one of three national centers designed to help public health departments strengthen and grow their Alzheimer's disease and related dementia initiatives. The PHCOE-DC specializes in disseminating tools and resources to help public health agencies develop programming and partnerships that support family caregivers of individuals with dementia. Through its reach and dissemination efforts, the PHCOE-DC has helped to elevate dementia caregiving as a priority for public health departments. Since 2020, the PHCOE-DC has increased visibility for the role of public health in strengthening the support infrastructure for family caregivers of individuals with dementia and has established a network of national leaders in dementia caregiving. This article summarizes PHCOE-DC's past work and potential future activities as the Center continues to elevate dementia caregiving as a priority for public health.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":"S37-S45"},"PeriodicalIF":3.2,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12736984/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145201922","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Healthy Brain Initiative and Building Our Largest Dementia Infrastructure initiatives: 20 years of building a strong public health infrastructure.","authors":"Lisa C McGuire, Heidi L Holt","doi":"10.1093/geront/gnaf225","DOIUrl":"10.1093/geront/gnaf225","url":null,"abstract":"","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":"S1-S9"},"PeriodicalIF":3.2,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12736980/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145226351","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Brian Kaskie, Julie Bobitt, Yogesh Shah, Sarah Khasawinah
In 2017, the United States Senate Special Committee on Aging added public health to the Alzheimer's disease and related dementias (ADRD) policy platform by introducing the Building Our Largest Dementia Infrastructure for Alzheimer's Act. Since then, 34 state health departments, 7 local, 2 territorial, and 1 tribal health organization have received a BOLD Program award from the Centers for Disease Control. With the support of the Alzheimer's Association and university-based Centers of Excellence, their efforts have increased public awareness, expanded training of health-care providers, linked public health programs and health-care systems, and supported programs to reduce the risk for ADRD. In this forum, we draw on examples of federal and state policymaking targeting persons living with dementia and demonstrate how iron triangles consisting of advocacy organizations, public servants and policymakers have been critical in building a public policy platform for more than 50 years. We then consider how public health leadership may rely on such iron triangles to expand their role, focusing on the critical role assumed by professional and academic organizations in educating and training those who may help respond to the public health crisis being presented by the booming number of older Americans with ADRD.
{"title":"Placing public health onto the Alzheimer's disease and related dementias public policy platform.","authors":"Brian Kaskie, Julie Bobitt, Yogesh Shah, Sarah Khasawinah","doi":"10.1093/geront/gnaf224","DOIUrl":"10.1093/geront/gnaf224","url":null,"abstract":"<p><p>In 2017, the United States Senate Special Committee on Aging added public health to the Alzheimer's disease and related dementias (ADRD) policy platform by introducing the Building Our Largest Dementia Infrastructure for Alzheimer's Act. Since then, 34 state health departments, 7 local, 2 territorial, and 1 tribal health organization have received a BOLD Program award from the Centers for Disease Control. With the support of the Alzheimer's Association and university-based Centers of Excellence, their efforts have increased public awareness, expanded training of health-care providers, linked public health programs and health-care systems, and supported programs to reduce the risk for ADRD. In this forum, we draw on examples of federal and state policymaking targeting persons living with dementia and demonstrate how iron triangles consisting of advocacy organizations, public servants and policymakers have been critical in building a public policy platform for more than 50 years. We then consider how public health leadership may rely on such iron triangles to expand their role, focusing on the critical role assumed by professional and academic organizations in educating and training those who may help respond to the public health crisis being presented by the booming number of older Americans with ADRD.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":"S75-S84"},"PeriodicalIF":3.2,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12736972/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145245748","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Breana Dorame, Kelsey Donnellan, Breannon Babbel, Ron Eppes, Bill Benson, Kendra Kuehn, Megan Dicken, Courtney Hoskins
While American Indian, Alaska Native, and Native Hawaiian (AI/AN/NH) populations have disproportionately been affected by dementia, these communities are resilient and offer critical insight about dementia and brain health through the aging process. Existing dementia education often neglects cultural nuances and realities that influence health beliefs and practices in these communities, focusing on disparities or erasing Native experiences entirely. This article highlights the importance and impact of culturally tailoring dementia education, serving as a call to action for providers, policymakers, and partners to consider the needs of AI/AN/NH communities when addressing dementia. As the only Centers for Disease Control and Prevention-funded AI/AN Resource Center for Brain Health, the International Association for Indigenous Aging (IA2) has employed a multifaceted, strength-based approach for effectively engaging with and supporting Native populations in addressing disparities in dementia and brain health. This approach enables the co-creation of inclusive, impactful dementia education resources that resonate with AI/AN/NH populations. IA2's work underscores the importance of integrating community engagement, Indigenous knowledge, and traditional practice into public health frameworks to address the complex challenges dementia poses in Native communities.
{"title":"Culturally responsive approaches to brain health and dementia education for American Indian, Alaska Native, and Native Hawaiian communities.","authors":"Breana Dorame, Kelsey Donnellan, Breannon Babbel, Ron Eppes, Bill Benson, Kendra Kuehn, Megan Dicken, Courtney Hoskins","doi":"10.1093/geront/gnaf233","DOIUrl":"10.1093/geront/gnaf233","url":null,"abstract":"<p><p>While American Indian, Alaska Native, and Native Hawaiian (AI/AN/NH) populations have disproportionately been affected by dementia, these communities are resilient and offer critical insight about dementia and brain health through the aging process. Existing dementia education often neglects cultural nuances and realities that influence health beliefs and practices in these communities, focusing on disparities or erasing Native experiences entirely. This article highlights the importance and impact of culturally tailoring dementia education, serving as a call to action for providers, policymakers, and partners to consider the needs of AI/AN/NH communities when addressing dementia. As the only Centers for Disease Control and Prevention-funded AI/AN Resource Center for Brain Health, the International Association for Indigenous Aging (IA2) has employed a multifaceted, strength-based approach for effectively engaging with and supporting Native populations in addressing disparities in dementia and brain health. This approach enables the co-creation of inclusive, impactful dementia education resources that resonate with AI/AN/NH populations. IA2's work underscores the importance of integrating community engagement, Indigenous knowledge, and traditional practice into public health frameworks to address the complex challenges dementia poses in Native communities.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":"S53-S59"},"PeriodicalIF":3.2,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12736973/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145253612","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Beth Marks, Jasmina Sisirak, Matthew P Janicki, Kathryn P Service, Karen Watchman
Adults with intellectual and developmental disabilities (IDD) face disproportionately high rates of chronic conditions, including an elevated risk for dementia. Yet access to appropriate brain health promotion and dementia care remains limited due to stigma, underdiagnosis, misdiagnosis, and systemic barriers. This article presents the Healthy Brain Initiative for People with Intellectual and Developmental Disabilities (HBI-PwIDD), which aims to (1) raise awareness of brain health and support health-promoting approaches for people with IDD experiencing Alzheimer's disease and related dementias; (2) build interprofessional partnerships to develop an inclusive, competent workforce; and (3) strengthen engagement of people with IDD and their supporters in accessing quality healthcare and improving outcomes. Applying a disability intersectionality lens, we integrate brain health promotion with dementia-capable services, emphasizing the critical role of disability-inclusive public health planning. We highlight person-centered approaches grounded in legal and human rights principles that provide access to brain health care and community-based supports. Finally, we discuss how tailored public health messaging and evidence-based workforce strategies can advance national and state brain health and dementia plans and improve equity in care for individuals with IDD. This paper illustrates how integrating disability-inclusive practices within public health systems can promote inclusive aging, improve dementia-related outcomes, and guide gerontologists in building inclusive, life course-oriented models of care.
{"title":"Advancing inclusive brain health and dementia care for people with intellectual and developmental disabilities: a public health framework.","authors":"Beth Marks, Jasmina Sisirak, Matthew P Janicki, Kathryn P Service, Karen Watchman","doi":"10.1093/geront/gnaf222","DOIUrl":"10.1093/geront/gnaf222","url":null,"abstract":"<p><p>Adults with intellectual and developmental disabilities (IDD) face disproportionately high rates of chronic conditions, including an elevated risk for dementia. Yet access to appropriate brain health promotion and dementia care remains limited due to stigma, underdiagnosis, misdiagnosis, and systemic barriers. This article presents the Healthy Brain Initiative for People with Intellectual and Developmental Disabilities (HBI-PwIDD), which aims to (1) raise awareness of brain health and support health-promoting approaches for people with IDD experiencing Alzheimer's disease and related dementias; (2) build interprofessional partnerships to develop an inclusive, competent workforce; and (3) strengthen engagement of people with IDD and their supporters in accessing quality healthcare and improving outcomes. Applying a disability intersectionality lens, we integrate brain health promotion with dementia-capable services, emphasizing the critical role of disability-inclusive public health planning. We highlight person-centered approaches grounded in legal and human rights principles that provide access to brain health care and community-based supports. Finally, we discuss how tailored public health messaging and evidence-based workforce strategies can advance national and state brain health and dementia plans and improve equity in care for individuals with IDD. This paper illustrates how integrating disability-inclusive practices within public health systems can promote inclusive aging, improve dementia-related outcomes, and guide gerontologists in building inclusive, life course-oriented models of care.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":"S60-S67"},"PeriodicalIF":3.2,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12736998/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145201632","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}