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Assessing Age-Friendly Community Initiatives: Developing a Novel Survey Tool for Assessment and Evaluation. 评估老年友好社区倡议:开发用于评估和评价的新型调查工具。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-10-18 DOI: 10.1093/geront/gnae146
Sarah Webster, Madison Robertson, Christian Keresztes, John Puxty

Background and objectives: Age-Friendly Community Initiatives (AFCIs) have gained recognition as essential responses to the needs of aging populations. Despite their growing significance, there is a notable lack of effective measurement tools to assess the planning, implementation, and sustainability of AFCIs. The purpose of this study was to develop and validate a survey tool for evaluating AFCIs.

Research design and methods: A sequential exploratory mixed-method design was used in two phases. First, we identified key themes from interviews with AFCI leads to generate AFCI survey items and regional workshops. Then, we conducted a pilot of the survey and assessed its measurement properties.

Results: Thematic analysis of interviews with 68 key informants from 58 AFCIs revealed four main themes: AFCI priorities, enablers, challenges, and benefits. These themes, combined with feedback from AFCI stakeholders at the regional workshops and a AFCI conference, informed the development and refinement of a reliable and valid AFCI survey in 2019, supported by a high Cronbach's Alpha value (α = 0.881). Steps were identified to maintain and sustain the AFCI survey over time.

Discussion and implications: The survey accommodates AFCIs' diverse demographics, governance structures, and priorities with a standardized and flexible approach for effective measurement. This research contributes to the academic understanding of AFCIs and aids community leaders and policymakers in planning, implementing, and evaluating AFCIs.

背景和目标:老龄友好社区倡议(AFCIs)已被公认为是满足老龄人口需求的重要对策。尽管其重要性与日俱增,但明显缺乏有效的测量工具来评估 AFCI 的规划、实施和可持续性。本研究的目的是开发并验证一种用于评估全自动空调系统的调查工具:研究设计和方法:采用了一种顺序探索性混合方法设计,分为两个阶段。首先,我们通过对全氟化学品倡议牵头人的访谈确定了关键主题,从而产生了全氟化学品倡议调查项目和地区研讨会。然后,我们对调查进行了试点,并评估了其测量特性:对来自 58 个全 球青少年培训机构的 68 名关键信息提供者的访谈进行了主题分析,发现了四个主要主题:结果:对来自 58 个非洲金融机构的 68 位关键信息提供者的访谈进行了专题分析,发现了四大主题:非洲金融机构的优先事项、推动因素、挑战和效益。这些主题,再加上在地区研讨会和一次全 球气候行动会议上来自全球气候行动利益相关方的反馈,为 2019 年制定和完善可靠有效的全 球气候行动调查提供了依据,并得到了较高的 Cronbach's Alpha 值(α = 0.881)的支持。讨论和影响:该调查以标准化和灵活的方法,有效地衡量了亚洲渔委会不同的人口构成、管理结构和优先事项。这项研究有助于学术界对全美家庭护理机构的了解,也有助于社区领导和政策制定者规划、实施和评估全美家庭护理机构。
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引用次数: 0
Cognitive Trajectories and Associated Social and Behavioral Determinants Among Racial/Ethnic Minority Older Adults in the United States. 美国少数种族/族裔老年人的认知轨迹及相关社会和行为决定因素》(Cognitive Trajectories and Associated Social and Behavioral Determinants Among Racial/Ethnic Minority Older Adults in the United States)。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-10-15 DOI: 10.1093/geront/gnae147
Kun Wang, Xiayu Summer Chen, Xiaoyi Zeng, Bei Wu, Jinyu Liu, Jane Daquin, Clara Li

Background and objectives: Despite higher risks of developing Alzheimer's disease and Alzheimer's disease-related dementias (AD/ADRD) among racial/ethnic minority populations, some maintain good cognition until old age. This study aimed to investigate heterogeneous cognitive trajectories among non-Hispanic Black and Hispanic older adults, examine cognitive impairment prevalence across trajectory classes, and identify associated social and behavioral determinants.

Research design and methods: Using 11 waves of data from the Health and Retirement Study (1996-2016), 1,322 non-Hispanic Black and 747 Hispanic adults aged 50 + with normal cognition in 1996 were included. Latent class growth modeling and multinomial logistic regressions were performed to examine cognitive trajectories and associated determinants.

Results: For both racial/ethnic groups, three trajectory classes were identified: high, medium, and low cognition. In the low cognition class, 87% and 100% of non-Hispanic Black and Hispanic participants developed cognitive impairment. For both racial/ethnic groups, older age and living in rural areas during school time increased the likelihood of being in the low cognition class, while more education was associated with a lower likelihood. Unique risk and protective determinants for non-Hispanic Black and Hispanic participants were also identified.

Discussion and implications: This study reveals the heterogeneity of cognitive trajectories among racial/ethnic minority older adults and various associated social and behavioral determinants. More prevention interventions and accessible, affordable diagnosis and treatment should be provided to older racial/ethnic minorities with these characteristics to reduce disparities. More research is needed to further explore associations between unique determinants and cognition in racial/ethnic minority populations to better inform interventions.

背景和目的:尽管种族/族裔少数群体罹患阿尔茨海默病和阿尔茨海默病相关痴呆症(AD/ADRD)的风险较高,但有些人直到老年仍保持良好的认知能力。本研究旨在调查非西班牙裔黑人和西班牙裔老年人的异质性认知轨迹,检查不同轨迹等级的认知障碍发生率,并确定相关的社会和行为决定因素:利用 "健康与退休研究"(Health and Retirement Study,1996-2016 年)的 11 波数据,纳入了 1996 年认知正常、年龄在 50 岁以上的 1,322 名非西班牙裔黑人和 747 名西班牙裔成年人。研究人员采用潜类增长模型和多项式逻辑回归来研究认知轨迹和相关决定因素:结果:在这两个种族/族裔群体中,确定了三个认知轨迹等级:高认知、中认知和低认知。在低认知等级中,非西班牙裔黑人和西班牙裔参与者中分别有 87% 和 100% 出现认知障碍。对于这两个种族/族裔群体来说,年龄越大和上学期间居住在农村地区的人进入低认知等级的可能性越大,而教育程度越高的人进入低认知等级的可能性越小。研究还发现了非西班牙裔黑人和西班牙裔参与者的独特风险和保护性决定因素:本研究揭示了少数种族/族裔老年人认知轨迹的异质性以及各种相关的社会和行为决定因素。应向具有这些特征的少数种族/族裔老年人提供更多的预防干预措施以及方便、可负担的诊断和治疗,以减少差异。还需要开展更多的研究,进一步探索少数种族/族裔人口中独特的决定因素与认知之间的关联,以便更好地为干预措施提供信息。
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引用次数: 0
Busy Ethic: A Validation of a Popular Concept. 忙碌的职业道德:一个流行概念的验证。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-10-15 DOI: 10.1093/geront/gnae138
Hanna van Solinge, David J Ekerdt, Kène Henkens

Background and objectives: The busy ethic for retirement, as proposed by Ekerdt (1986), is a prescriptive norm that esteems an occupied, active lifestyle. This research is a first attempt to measure the busy ethic in a standardized way and apply it to a population-based sample. Objectives are: to examine whether a busy ethic is affirmed by retirees; to test busy ethic endorsement by different segments of the retired population; and to examine whether endorsement is associated with selected activities.

Research design and methods: We developed a scale measuring the busy ethic for a survey among 1,143 Dutch retirees. We tested two sets of hypotheses about social factors that might explain subscription to a busy norm: a hypothesis about modernization (i.e., individual autonomy from social control) that would reduce busy ethic endorsement and a hypothesis about differential exposure to expectations.

Results: Greater consent to the busy ethic was associated with circumstances that enable active lifestyles (perceived income adequacy, self-reported health), that raise one's social value (education), and that entail more social connectedness (religious service attendance). Busy ethic agreement was positively associated with engagement in paid work, productive social activities, and group recreation.

Discussion and implications: We found substantial endorsement of the importance of activity for oneself and others. The idealization of a busy retirement as a good retirement may be a seeming way for retirees to defer old age. At the same time, a prescriptive norm of activation may put strain on older adults who are less capable of conforming.

背景和目标:埃克特(Ekerdt,1986 年)提出的 "忙碌的退休伦理 "是一种规范性准则,推崇忙碌、积极的生活方式。本研究首次尝试以标准化的方式衡量忙碌伦理,并将其应用于人口样本。目标是:研究退休人员是否认可忙碌伦理;测试不同退休人群对忙碌伦理的认可程度;以及研究认可程度是否与选定的活动有关:我们制定了一个衡量忙碌伦理的量表,对 1,143 名荷兰退休人员进行了调查。我们测试了两组可能解释繁忙规范认同的社会因素的假设:一个是关于现代化(即个人不受社会控制的自主性)会减少繁忙道德认同的假设,另一个是关于不同期望的假设:对忙碌伦理的更大认同与促成积极生活方式的环境(认为收入充足、自我报告的健康状况)、提高个人社会价值的环境(教育)以及需要更多社会联系的环境(参加宗教仪式)有关。忙碌伦理的认同与参与有偿工作、生产性社会活动和集体娱乐活动呈正相关:讨论与启示:我们发现,很多人赞同活动对自己和他人的重要性。把忙碌的退休生活理想化为美好的退休生活,这似乎是退休人员推迟老年生活的一种方式。与此同时,规定性的活动规范可能会给不太能够顺应潮流的老年人带来压力。
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引用次数: 0
"What Does 'Age-Friendly' Mean to You?" The Role of Microaggressions in a Retirement and Assisted Living Community. "'老年友好'对您意味着什么?退休和辅助生活社区中的微言微语的作用。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-10-15 DOI: 10.1093/geront/gnae140
Tina R Kilaberia, E-Shien Chang, Deborah K Padgett, Mark Lachs, Tony Rosen

Background and objectives: In conversations about expanding age-friendly ecosystems, the concept of "age-friendliness" has not been explored in relation to residential settings.

Research design and methods: This multiple case study compared four residents' perspectives on the age-friendliness of a retirement and assisted living community, combining individual semi-structured interviews with observational data and organizational document analyses in a contextualist thematic examination.

Results: Three themes depict (A) existing experiences of the setting as "age-friendly" and the tension of the built design vs. identity; (B) resident-to-resident microaggressions, delineated into four sub-themes including identity-related, intergenerational, condition-related microaggressions and their influence on social isolation; and (C) desired experiences of the setting as "age-friendly" reflecting the social design. In cases of visibly perceptible diversity (white cane, darker skin tone), residents fared worse in experiencing microaggressions stemming from ableism, racism, and age differences. Conversely, in cases of visibly imperceptible diversity, residents had more positive or entirely positive experiences. Although the setting met many environmental and healthcare needs, it lacked design factors prioritizing meaningful social relationships between residents, impacting social isolation.

Discussion and implications: Resident-to-resident social relationships are key in the experience of a retirement and assisted living community as age-friendly. Resident-to-resident microaggressions undermine perceptions of the community as age-friendly, and influence social isolation. We reflect on the organizational role in mitigating against negative social relationships and social isolation to maximize dignity.

背景和目标:在关于扩大老年友好生态系统的讨论中,"老年友好 "的概念还没有在住宅环境中得到探讨:这项多案例研究比较了四位居民对一个退休和辅助生活社区的老年友好性的看法,结合了个人半结构式访谈、观察数据和组织文件分析,进行了一次情境主义主题审查:结果:三个主题描述了(A)"老年友好 "环境的现有体验以及建筑设计与身份之间的紧张关系;(B)居民对居民的微侵害,分为四个子主题,包括与身份相关、代际相关、与条件相关的微侵害及其对社会隔离的影响;以及(C)反映社会设计的 "老年友好 "环境的期望体验。在可以明显感觉到多样性(白手杖、深肤色)的情况下,居民在遭遇源于能力主义、种族主义和年龄差异的微攻击方面表现较差。相反,在明显感觉不到多样性的情况下,居民们则有更多积极或完全积极的体验。虽然该环境满足了许多环境和医疗保健需求,但它缺乏优先考虑居民之间有意义的社交关系的设计因素,从而影响了社会隔离:居民与居民之间的社交关系是体验老年友好型退休和辅助生活社区的关键。居民与居民之间的微言微语会破坏人们对社区作为老年友好社区的认知,并影响社会隔离。我们反思了组织在减少负面社会关系和社会隔离方面的作用,以最大限度地维护尊严。
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引用次数: 0
Housing and Community Partner Views on the Benefits of Housing with Services: The Right Care, Right Place, Right Time Program. 住房和社区合作伙伴对住房与服务的益处的看法:正确的护理、正确的地点、正确的时间计划。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-10-15 DOI: 10.1093/geront/gnae141
Edward Alan Miller, Pamela Nadash, Elizabeth Simpson, Marc A Cohen

Background and objectives: Older adult-focused housing with services programs seek to improve access to supportive services, particularly among individuals residing in subsidized housing. The Right Care, Right Place, Right Time (R3) program comprises two on-site wellness teams responsible for 400 participants across seven housing sites in Greater Boston. These embedded teams work directly with residents to address health-related needs and access to services. This study reports on the perceived benefits of participating in the R3 program from the perspective of housing staff and community partners.

Research design and methods: Data were derived from 24 semi-structured interviews conducted as part of a program evaluation. Participants described resident, housing, and system-related reasons for deciding to participate in the R3 program and experiences of their participation.

Results: In addition to positive overall assessments, housing partner interviewees reported concrete and psychosocial benefits for housing residents (e.g., connecting with resources, enabling longer stays, empowering residents, alleviating distress) and staffing and resident-related benefits. Community partners perceived more appropriate utilization of services by residents (e.g., reducing emergency transports).

Discussion and implications: Findings elucidate why housing and community partners might be motivated to integrate housing, health, and supportive care to affordable housing for older adults using a wellness team.

背景和目标:以老年人为重点的住房与服务计划旨在改善获得支持性服务的途径,尤其是居住在补贴住房中的个人。正确的护理、正确的地点、正确的时间(R3)计划由两个现场健康团队组成,负责大波士顿地区七个住房地点的 400 名参与者。这些嵌入式团队直接与居民合作,以解决与健康有关的需求和获得服务的机会。本研究从住房工作人员和社区合作伙伴的角度出发,报告了参与 R3 计划所感受到的益处:数据来自 24 个半结构式访谈,这些访谈是计划评估的一部分。参与者描述了决定参与 R3 计划的居民、住房和系统相关原因,以及参与计划的经历:除了积极的总体评价外,住房合作伙伴受访者还报告了为住房居民带来的具体和社会心理方面的益处(例如,与资源建立联系、延长居住时间、增强居民能力、减轻痛苦),以及与工作人员和居民相关的益处。社区合作伙伴认为居民可以更合理地利用服务(如减少紧急转运):讨论与启示:研究结果阐明了为什么住房和社区合作伙伴会有动力利用健康团队将住房、健康和支持性护理整合到老年人可负担得起的住房中。
{"title":"Housing and Community Partner Views on the Benefits of Housing with Services: The Right Care, Right Place, Right Time Program.","authors":"Edward Alan Miller, Pamela Nadash, Elizabeth Simpson, Marc A Cohen","doi":"10.1093/geront/gnae141","DOIUrl":"https://doi.org/10.1093/geront/gnae141","url":null,"abstract":"<p><strong>Background and objectives: </strong>Older adult-focused housing with services programs seek to improve access to supportive services, particularly among individuals residing in subsidized housing. The Right Care, Right Place, Right Time (R3) program comprises two on-site wellness teams responsible for 400 participants across seven housing sites in Greater Boston. These embedded teams work directly with residents to address health-related needs and access to services. This study reports on the perceived benefits of participating in the R3 program from the perspective of housing staff and community partners.</p><p><strong>Research design and methods: </strong>Data were derived from 24 semi-structured interviews conducted as part of a program evaluation. Participants described resident, housing, and system-related reasons for deciding to participate in the R3 program and experiences of their participation.</p><p><strong>Results: </strong>In addition to positive overall assessments, housing partner interviewees reported concrete and psychosocial benefits for housing residents (e.g., connecting with resources, enabling longer stays, empowering residents, alleviating distress) and staffing and resident-related benefits. Community partners perceived more appropriate utilization of services by residents (e.g., reducing emergency transports).</p><p><strong>Discussion and implications: </strong>Findings elucidate why housing and community partners might be motivated to integrate housing, health, and supportive care to affordable housing for older adults using a wellness team.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":null,"pages":null},"PeriodicalIF":4.6,"publicationDate":"2024-10-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142480388","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Association between mobility limitations and cognitive decline in community-dwelling older adults: the English Longitudinal Study of Ageing. 社区老年人行动不便与认知能力下降之间的关系:英国老龄化纵向研究。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-10-15 DOI: 10.1093/geront/gnae139
Bi-Fei Cao, Rui Zhou, Hao-Wen Chen, Yong-Qi Liang, Kuan Liu, Wei-Dong Fang, Rui-Dian Huang, Yi-Ning Huang, Qi Zhong, Xian-Bo Wu

Background and objectives: Mobility limitations has been linked to cognition. However, little is known about the relationship between mobility decline and cognitive decline. This study investigated the effect of mobility limitations and decline on cognitive decline in a population-based cohort of older adults.

Result design and methods: A population-based cohort of 9695 cognitively intact participants (mean age = 65.4 years, standard deviation [SD] = 10.4) was assessed. Mobility limitation scores ranging from 0-10 were assessed at baseline (wave 4) by using self-reporting difficulty in a set of 10 activities, and a higher score indicated worse mobility. A subset of 9250 participants underwent two mobility assessments at waves 3 and 4, and were categorized into normal mobility or mobility decline (defined as wave 4 - wave 3 > 1 SD of wave 3). Linear mixed models were used to assess the longitudinal contribution of mobility limitations and decline to cognitive decline.

Results: During a median follow-up period of 9.4 years (SD 1.8), the participants in the highest quartile of mobility scores displayed an accelerated cognitive decline (-0.191 SD/year, 95% CI = -0.223, -0.159) compared with those in the lowest quartile. Notably, individuals experiencing mobility decline exhibited a marked cognitive decline (-0.179 SD/year, 95% CI = -0.220, -0.139), potentially influenced by factors such as physical activity and depression.

Discussion and implications: Mobility limitations and decline significantly correlate with cognitive decline in older adults, highlighting that mobility-focused interventions in healthcare strategies to preserve cognition.

背景和目的:行动不便与认知能力有关。然而,人们对行动能力下降与认知能力下降之间的关系知之甚少。本研究调查了以人群为基础的老年人队列中行动能力限制和下降对认知能力下降的影响:对 9695 名认知能力完好的参与者(平均年龄 = 65.4 岁,标准差 [SD] = 10.4)进行了评估。在基线(第 4 波)时,通过自我报告在一组 10 项活动中遇到的困难,评估了 0-10 分的行动受限程度,得分越高表示行动能力越差。9250名参与者在第3波和第4波接受了两次行动能力评估,并被分为行动能力正常或行动能力下降(定义为第4波-第3波>第3波的1 SD)。研究采用线性混合模型来评估行动能力限制和下降对认知能力下降的纵向影响:在9.4年(标准差为1.8)的中位数随访期间,行动能力评分最高四分位数的参与者与最低四分位数的参与者相比,认知能力下降速度加快(-0.191标准差/年,95% CI = -0.223,-0.159)。值得注意的是,行动能力下降的人表现出明显的认知能力下降(-0.179 SD/年,95% CI = -0.220,-0.139),这可能受到体育锻炼和抑郁等因素的影响:讨论与启示:行动能力的限制和下降与老年人认知能力的下降密切相关,这表明在医疗保健策略中应采取以行动能力为重点的干预措施来保护认知能力。
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引用次数: 0
Conducting Assessments of Community-Based Programs for Individuals with Dementia and their Family Caregivers. 对痴呆症患者及其家庭护理人员的社区计划进行评估。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-10-15 DOI: 10.1093/geront/gnae145
Allison R Heid, Steven H Zarit

While the gold standard for intervention science is the randomized controlled trial (RCT), there is growing emphasis on the practical implementation and evaluation of evidence-based programs into community agencies. Assessment of program efficacy by community-based organizations can confirm planned delivery of services, implementation fidelity, and demonstrate positive outcomes, which can provide justification for funding. Methods and measures used in an RCT, however, often cannot be implemented in non-research settings and different approaches are needed. This manuscript reviews the emerging literature on program evaluation work and draws upon the authors' experiences conducting evaluations with three community-based organizations funded by Administration for Community Living to implement programs for individuals with dementia and their family care partners. This manuscript argues for an examination of the expectations of evaluation efforts for translation of research-based trials to practice and emphasizes three main strategies for assessment: (1) Development of brief tailored assessments; (2) Measuring fidelity of implementation of the program; and (3) Measuring acceptability of the program to clients.

虽然干预科学的黄金标准是随机对照试验(RCT),但人们越来越重视在社区机构中实际实施和评估循证计划。社区机构对计划效果进行评估,可以确认计划提供的服务、实施的忠实性,并展示积极的成果,从而为资金提供依据。然而,在 RCT 中使用的方法和措施往往无法在非研究环境中实施,因此需要采用不同的方法。本手稿回顾了有关项目评估工作的新兴文献,并借鉴了作者在三个社区组织中开展评估的经验,这三个组织由社区生活管理局(Administration for Community Living)资助,为痴呆症患者及其家庭护理伙伴实施项目。本手稿主张对评估工作的期望进行审查,以便将基于研究的试验转化为实践,并强调了评估的三大策略:(1)开发简短的定制评估;(2)衡量计划实施的忠实度;以及(3)衡量客户对计划的接受度。
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引用次数: 0
End-of-life doulas: A systematic integrative review and redirection. 临终陪护:系统性综合审查和重新定向。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-10-15 DOI: 10.1093/geront/gnae144
Amber D Thompson, Rebecca L Utz

Background and objectives: End-of-life doulas (EOLD) are an emerging role providing non-medical support and advocacy for the dying and their families. Research about EOLD is new and currently highlights a need for more clarity in role definition and application. This review aims to comprehensively analyze existing knowledge regarding EOLD and their role in end-of-life care.

Research design and methods: A systematic and comprehensive search of nine bibliographic databases identified all published academic articles related to EOLD (as named, self-identified, and/or trained) research from inception to June 2023. This review utilized an integrative approach and textual narrative synthesis to summarize the existing body of research findings related to EOLD.

Results: Twenty-five articles were identified, representing multiple disciplines including health and medicine, public health, social/behavioral sciences, and humanities. Research on EOLD has rapidly increased in recent years and is showing signs of maturation. The review focuses specifically on summarizing the breadth and depth of identified research on EOLD and critically analyzes emergent themes from the review: Application, Perception, Identity, and Future Research Directions.

Discussion and implications: This review provides the most comprehensive review of the research literature on EOLD to date. Thematic findings for future research directions have provided the basis of a redirected research agenda to guide the field going forward. There is still a need to clarify who EOLD are and how they are being conceptualized by multiple stakeholders. Future research must address these missing voices to fully grasp the value and unique role that EOLD contribute to EOL care.

背景和目标:临终陪护(EOLD)是一种新兴的角色,为临终者及其家人提供非医疗支持和宣传。有关临终陪伴者的研究是一项新工作,目前需要进一步明确临终陪伴者的角色定义和应用。本综述旨在全面分析有关临终关怀的现有知识及其在临终关怀中的作用:对九个文献数据库进行了系统而全面的检索,确定了从开始到 2023 年 6 月所有已发表的与 EOLD(命名、自我认定和/或训练)研究相关的学术文章。本综述采用了综合方法和文字叙述综合法来总结与 EOLD 相关的现有研究成果:结果:确定了 25 篇文章,代表了多个学科,包括健康与医学、公共卫生、社会/行为科学和人文科学。近年来,有关 EOLD 的研究迅速增加,并呈现出成熟的迹象。本综述特别侧重于总结已确定的 EOLD 研究的广度和深度,并对综述中出现的主题进行批判性分析:讨论和影响:本综述是迄今为止最全面的 EOLD 研究文献综述。关于未来研究方向的主题发现为重新制定研究议程提供了基础,以指导该领域的发展。仍有必要澄清 EOLD 是什么,以及多方利益相关者是如何将其概念化的。未来的研究必须解决这些缺失的声音,以充分把握 EOLD 对临终关怀的价值和独特作用。
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引用次数: 0
Capitalizing on Dementia Care Mapping in an Evaluation of a Montessori-Based Intervention for Individuals Living with Dementia. 在对以蒙特梭利为基础的痴呆症患者干预措施的评估中利用痴呆症护理图。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-10-14 DOI: 10.1093/geront/gnae135
Jennifer M Kinney, Leah M Janssen, Kathleen M Farfsing, Michael R Hughes

Background and objectives: Montessori-based interventions (MBIs) promote quality of life among older adults living with dementia. We used Dementia Care Mapping (DCM) to evaluate the impact of a small-scale MBI. DCM is a systematic observation tool that records the behavior and mood/engagement of individuals living with dementia and can be used to improve quality of care and well-being.

Research design and methods: Pre- and post-intervention data from 15 care community residents compared: 1) residents' range and types of behaviors, 2) their mood/engagement and 3) staff behaviors that facilitated and impeded residents' personhood. In this mixed-methods study, deductive qualitative content analysis of DCM field notes further explored staff behaviors.

Results: Post-intervention, a significantly higher proportion of residents' behaviors had the potential to promote their well-being, although there was little change in mood/engagement while engaging in those behaviors. Post-intervention, there was also a significant increase in staff behaviors that facilitated, and a decrease in staff behaviors that impeded, residents' personhood. Further, post-intervention, staff interactions with residents were more open-ended and inclusive. Although some staff behaviors still excluded residents, the exclusion was more benign than pre-intervention.

Discussion and implications: DCM documented incremental changes toward person-centered care, and DCM field notes provided insight into missed opportunities for effective staff interactions with residents. Taken together, findings provide additional support for the use of MBIs and highlights the usefulness of DCM, especially its associated field notes, to help researchers and practitioners create environments that promote the personhood that individuals living with dementia deserve.

背景和目标:基于蒙特梭利的干预(MBIs)可提高老年痴呆症患者的生活质量。我们使用痴呆症护理图谱(DCM)来评估小规模 MBI 的影响。DCM 是一种系统性观察工具,可记录痴呆症患者的行为和情绪/参与情况,并可用于改善护理质量和福祉:研究设计和方法:对 15 名护理社区居民干预前和干预后的数据进行比较:研究设计:对 15 名护理社区居民的干预前和干预后数据进行比较:1)居民的行为范围和类型;2)他们的情绪/参与度;3)工作人员促进和阻碍居民人格发展的行为。在这项混合方法研究中,对 DCM 现场记录的演绎定性内容分析进一步探讨了工作人员的行为:干预后,尽管居民在参与这些行为时的情绪/参与度变化不大,但有可能促进其福祉的居民行为比例明显增加。干预后,工作人员促进居民人格发展的行为显著增加,而妨碍居民人格发展的行为则有所减少。此外,干预后,工作人员与居民的互动更加开放和包容。虽然某些员工行为仍然排斥住户,但与干预前相比,排斥行为更加良性:DCM 记录了向 "以人为本 "的护理方向发展的渐进变化,DCM 的现场记录让我们深入了解了员工与住户进行有效互动时错失的机会。综上所述,研究结果为使用 MBI 提供了更多支持,并凸显了 DCM(尤其是其相关的现场记录)在帮助研究人员和从业人员创建促进痴呆症患者应有的人格的环境方面的实用性。
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引用次数: 0
Caregiving Trajectories and Unmet Care Needs in Later Life. 晚年的护理轨迹和未满足的护理需求。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-10-14 DOI: 10.1093/geront/gnae136
Vicki A Freedman, Jennifer C Cornman, Jennifer L Wolff

Background and objectives: The evolution of care networks accompanying older adults' changing care needs-and implications for unmet care needs-are not well described.

Research design and methods: Using group-based trajectory models, we identify 4 incident care need patterns ("care need trajectory groups") for 1,038 older adults in the 2012-2018 National Health and Aging Trends Study and 5 caregiving patterns ("caregiving trajectory groups") and a transient group among their 4,106 caregivers. We model associations between care need/caregiving trajectory groups and the rate of (approximating the proportion of rounds with) unmet care needs. We illustrate how predicted rates vary by care need trajectory groups and by network composition for networks with 2 caregivers.

Results: The percentage of rounds with unmet care needs varies from 13% among older adults with few, stable needs to 62% among those with many, stable needs (p<.01). In models, care need trajectory group is strongly associated with the rate of unmet care needs; among those with steep increasing care needs, network composition is also predictive. For older adults with steep increasing care needs, when one caregiver provides high, variable and another medium, stable care hours, the predicted rate of unmet care needs is low (0.16) and similar to those with few, stable care needs (0.12).

Discussion and implications: Findings highlight the complexity and heterogeneity of older adults' care needs and caregiving patterns over time. For those with rapidly increasing needs, identifying and assessing the evolving care network may be a fruitful direction for forestalling unmet care needs.

研究背景和目的:研究设计和方法:利用基于群体的轨迹模型,我们在 2012-2018 年全国健康与老龄化趋势研究中为 1038 名老年人确定了 4 种护理需求模式("护理需求轨迹群体"),并在 4106 名护理人员中确定了 5 种护理模式("护理轨迹群体")和一个临时群体。我们建立了护理需求/护理轨迹组与未满足护理需求率(近似于有护理需求的轮次比例)之间的关联模型。我们说明了在有 2 名护理人员的网络中,根据护理需求轨迹组别和网络组成预测的比率是如何变化的:结果:护理需求未得到满足的轮次比例从需求少且稳定的老年人的 13% 到需求多且稳定的老年人的 62% 不等(讨论与启示:研究结果凸显了护理需求的复杂性和异质性:研究结果凸显了老年人护理需求和护理模式的复杂性和异质性。对于那些需求迅速增加的老年人,识别和评估不断变化的护理网络可能是防止护理需求得不到满足的一个有效方向。
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