Pub Date : 2025-12-01Epub Date: 2025-11-13DOI: 10.1016/j.ridd.2025.105161
Xinzhi Hu , Jiafu Huang , Byungmo Ku , Healy Sean , Chunxiao Li
Background
Parental support constitutes a critical determinant of physical activity (PA) engagement in children and adolescents with autism spectrum disorder (ASD), yet its predictors remain understudied. Grounded in an extended Theory of Planned Behavior (TPB) framework, this study examines the sequential relationships between parental support intention, parental action planning, parental support, and PA in this population.
Methods
A cross-sectional survey was conducted with 164 parents/caregivers of children and adolescents with ASD in China. The parents/caregivers completed a survey form measuring key TPB constructs of interest.
Results
Only 18.3 % of children and adolescents with ASD met the WHO’s recommended guideline of at least 60 min of daily PA. Path analysis revealed that parental support intentions directly predicted parental action planning (β = 0.52) and parental support (β = 0.34), while action planning mediated the intention-behavior relationship. Further, parental support mediated the intention-PA association (β = 0.41) and served as the critical pathway linking intention to children's PA through a chain mediation model (support intention → action planning → parental support → PA).
Conclusion
The extended TPB model elucidates the mechanisms underlying parental support for children and adolescents with ASD. These findings underscore the necessity to strengthen parental intentions, develop actionable plans, and implement integrated support strategies for promoting PA in this population.
{"title":"Bridging the intention-behavior gap: The role of action planning in parental support for physical activity in children and adolescents with autism spectrum disorder","authors":"Xinzhi Hu , Jiafu Huang , Byungmo Ku , Healy Sean , Chunxiao Li","doi":"10.1016/j.ridd.2025.105161","DOIUrl":"10.1016/j.ridd.2025.105161","url":null,"abstract":"<div><h3>Background</h3><div>Parental support constitutes a critical determinant of physical activity (PA) engagement in children and adolescents with autism spectrum disorder (ASD), yet its predictors remain understudied. Grounded in an extended Theory of Planned Behavior (TPB) framework, this study examines the sequential relationships between parental support intention, parental action planning, parental support, and PA in this population.</div></div><div><h3>Methods</h3><div>A cross-sectional survey was conducted with 164 parents/caregivers of children and adolescents with ASD in China. The parents/caregivers completed a survey form measuring key TPB constructs of interest.</div></div><div><h3>Results</h3><div>Only 18.3 % of children and adolescents with ASD met the WHO’s recommended guideline of at least 60 min of daily PA. Path analysis revealed that parental support intentions directly predicted parental action planning (β = 0.52) and parental support (β = 0.34), while action planning mediated the intention-behavior relationship. Further, parental support mediated the intention-PA association (β = 0.41) and served as the critical pathway linking intention to children's PA through a chain mediation model (support intention → action planning → parental support → PA).</div></div><div><h3>Conclusion</h3><div>The extended TPB model elucidates the mechanisms underlying parental support for children and adolescents with ASD. These findings underscore the necessity to strengthen parental intentions, develop actionable plans, and implement integrated support strategies for promoting PA in this population.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"167 ","pages":"Article 105161"},"PeriodicalIF":2.6,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145524841","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-11-01Epub Date: 2025-10-03DOI: 10.1016/j.ridd.2025.105115
Alecia Mercier , Jessica Koslouski , Sandra Chafouleas , Sophie Hall , Caroline G. Richter
Objective
This review aimed to compile and report on existing emotional well-being (EWB) subjective report measures that have been developed, adapted, or validated on individuals with intellectual and developmental disabilities (IDD).
Method
Following PRISMA guidelines, this review searched three databases using search terms related to EWB, IDD, and measurement. Two independent reviewers screened titles and abstracts, then reviewed the full texts to include articles that used an EWB-related measure, had an IDD sample, and reported psychometric evidence (% agreement = 97.41, k = 91.92). For each included article, two coders extracted data, and an item analysis was performed to identify EWB and non-EWB items included in each located measure.
Results
This review identified 33 articles and 20 subjective report measures that were developed, adapted, or validated for individuals with IDD. Most existing measures focus on quality of life rather than treating EWB as a distinct, stand-alone construct, and include only a few EWB items. The included measures were mostly validated on adults and older adults with mild to moderate ID and show varying psychometric evidence across and within measures.
Conclusions
This review clarifies the current state of EWB measurement in individuals with IDD and provides an organized summary of existing EWB measures. These findings can guide the continued development of EWB research in the IDD population by identifying knowledge gaps and pointing to future directions. Findings also help inform the selection of subjective report measures for assessing EWB in individuals with IDD.
{"title":"Defining and measuring emotional well-being in intellectual and developmental disabilities: A scoping review","authors":"Alecia Mercier , Jessica Koslouski , Sandra Chafouleas , Sophie Hall , Caroline G. Richter","doi":"10.1016/j.ridd.2025.105115","DOIUrl":"10.1016/j.ridd.2025.105115","url":null,"abstract":"<div><h3>Objective</h3><div>This review aimed to compile and report on existing emotional well-being (EWB) subjective report measures that have been developed, adapted, or validated on individuals with intellectual and developmental disabilities (IDD).</div></div><div><h3>Method</h3><div>Following PRISMA guidelines, this review searched three databases using search terms related to EWB, IDD, and measurement. Two independent reviewers screened titles and abstracts, then reviewed the full texts to include articles that used an EWB-related measure, had an IDD sample, and reported psychometric evidence (% agreement = 97.41, <em>k</em> = 91.92). For each included article, two coders extracted data, and an item analysis was performed to identify EWB and non-EWB items included in each located measure.</div></div><div><h3>Results</h3><div>This review identified 33 articles and 20 subjective report measures that were developed, adapted, or validated for individuals with IDD. Most existing measures focus on quality of life rather than treating EWB as a distinct, stand-alone construct, and include only a few EWB items. The included measures were mostly validated on adults and older adults with mild to moderate ID and show varying psychometric evidence across and within measures.</div></div><div><h3>Conclusions</h3><div>This review clarifies the current state of EWB measurement in individuals with IDD and provides an organized summary of existing EWB measures. These findings can guide the continued development of EWB research in the IDD population by identifying knowledge gaps and pointing to future directions. Findings also help inform the selection of subjective report measures for assessing EWB in individuals with IDD.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"166 ","pages":"Article 105115"},"PeriodicalIF":2.6,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145222987","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-11-01Epub Date: 2025-09-30DOI: 10.1016/j.ridd.2025.105113
Eman Al-Zboon
This qualitative study employed Interpretative Phenomenological Analysis (IPA) to explore the beliefs and lived experiences of teachers who are blind (TWB) in Jordan regarding the use of artificial intelligence (AI) in education. Data were collected through semi-structured interviews with 14 TWB and a focus group with 8 additional teachers, recruited via snowball and purposive sampling. Findings reveal that TWB actively use various AI applications, including Siri, ChatGPT, currency and image readers, screen readers, and AI-powered search engines like Google and YouTube. Key domains of AI use include daily life, environmental recognition, education, and communication, while mobility, entertainment, and teaching were less common. The study identifies multiple factors shaping AI use, such as personal characteristics, environmental and technological contexts, and socio-cultural influences. Participants reported significant barriers, including limited training, financial constraints, accessibility challenges, and misconceptions about AI. TWB offered practical suggestions to enhance AI adoption in their professional and personal lives. The study concludes with recommendations for policy, practice, and future research to better support AI integration for TWB.
{"title":"Beliefs of teachers who are blind related to the use of artificial intelligence (AI) in Jordan","authors":"Eman Al-Zboon","doi":"10.1016/j.ridd.2025.105113","DOIUrl":"10.1016/j.ridd.2025.105113","url":null,"abstract":"<div><div>This qualitative study employed Interpretative Phenomenological Analysis (IPA) to explore the beliefs and lived experiences of teachers who are blind (TWB) in Jordan regarding the use of artificial intelligence (AI) in education. Data were collected through semi-structured interviews with 14 TWB and a focus group with 8 additional teachers, recruited via snowball and purposive sampling. Findings reveal that TWB actively use various AI applications, including Siri, ChatGPT, currency and image readers, screen readers, and AI-powered search engines like Google and YouTube. Key domains of AI use include daily life, environmental recognition, education, and communication, while mobility, entertainment, and teaching were less common. The study identifies multiple factors shaping AI use, such as personal characteristics, environmental and technological contexts, and socio-cultural influences. Participants reported significant barriers, including limited training, financial constraints, accessibility challenges, and misconceptions about AI. TWB offered practical suggestions to enhance AI adoption in their professional and personal lives. The study concludes with recommendations for policy, practice, and future research to better support AI integration for TWB.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"166 ","pages":"Article 105113"},"PeriodicalIF":2.6,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145183878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-11-01Epub Date: 2025-10-13DOI: 10.1016/j.ridd.2025.105124
Ciara McBride , Laura McHugh , Lisa Flanagan , Margaret Farrelly
{"title":"A systematic review of the efficacy of circle of security for parents of children with a developmental delay or intellectual disability","authors":"Ciara McBride , Laura McHugh , Lisa Flanagan , Margaret Farrelly","doi":"10.1016/j.ridd.2025.105124","DOIUrl":"10.1016/j.ridd.2025.105124","url":null,"abstract":"","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"166 ","pages":"Article 105124"},"PeriodicalIF":2.6,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145294257","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-11-01Epub Date: 2025-10-22DOI: 10.1016/j.ridd.2025.105131
Julie Enkebølle Hansen , Carlo Schuengel , Agnes Willemen , Anne Stuart , Mette Skovgaard Væver , Katrine Røhder
Aim
To examine group differences and longitudinal trajectories in mother-infant interactions following an interim clinical diagnosis of high risk of CP up to 15 months corrected age.
Method
This prospective observational study followed infants born in Denmark with (n = 23) or without (n = 36) identified high risk of cerebral palsy and their parents over time. Mother-infant interactions were assessed at 15 weeks, 9 months, and 15 months using the Coding Interactive Behavior manual. Group differences and trajectories in mother-infant interactions were analyzed using Generalized Estimating Equations (GEE) with bootstrapping to obtain robust estimates
Results
At 15 weeks (T1), the high-risk CP group differed significantly from the comparison group on all observed interactional dimensions, showing lower levels of maternal acknowledging (b = −0.93, p < .001), infant social initiation (b = −0.54, p = .007), and dyadic reciprocity (b = −0.58, p = .041), and higher levels of maternal intrusiveness (b = 1.04, p < .001) and dyadic constriction (b = 0.73, p = .018). While differences in maternal acknowledging and dyadic reciprocity were only present at 15 weeks, maternal intrusiveness and infant social initiation differences were present at 15 weeks and 15 months. Dyadic constriction differences were present across all time points.
Conclusion
Early differences in mother-infant interaction between dyads with and without infant CP risk underscore the importance of tailoring interventions to read and respond to subtle infant cues. Supporting the parent–infant relationship from early infancy might enhance the effectiveness of early intervention and promote more optimal socio-emotional development.
目的:研究15个月矫正年龄的CP高风险中期临床诊断后母婴互动的组间差异和纵向轨迹。方法:这项前瞻性观察性研究随访了在丹麦出生的(n = 23)或未(n = 36)确定脑瘫高风险的婴儿及其父母。在15周、9个月和15个月时使用编码互动行为手册评估母婴互动。结果:在15周(T1)时,高危CP组在所有观察到的互动维度上都与对照组有显著差异,显示出较低的母亲认知水平(b = -0.93, p )。在有和没有婴儿CP风险的两对母子之间的早期互动差异强调了定制干预的重要性,以阅读和回应婴儿的微妙线索。从婴儿早期开始支持亲子关系可以提高早期干预的有效性,促进更理想的社会情感发展。
{"title":"Mother-infant interactions in infants at high risk of cerebral palsy compared to a low-risk group: A longitudinal study of the first 15 months","authors":"Julie Enkebølle Hansen , Carlo Schuengel , Agnes Willemen , Anne Stuart , Mette Skovgaard Væver , Katrine Røhder","doi":"10.1016/j.ridd.2025.105131","DOIUrl":"10.1016/j.ridd.2025.105131","url":null,"abstract":"<div><h3>Aim</h3><div>To examine group differences and longitudinal trajectories in mother-infant interactions following an interim clinical diagnosis of high risk of CP up to 15 months corrected age.</div></div><div><h3>Method</h3><div>This prospective observational study followed infants born in Denmark with (<em>n</em> = 23) or without (<em>n</em> = 36) identified high risk of cerebral palsy and their parents over time. Mother-infant interactions were assessed at 15 weeks, 9 months, and 15 months using the Coding Interactive Behavior manual. Group differences and trajectories in mother-infant interactions were analyzed using Generalized Estimating Equations (GEE) with bootstrapping to obtain robust estimates</div></div><div><h3>Results</h3><div>At 15 weeks (T1), the high-risk CP group differed significantly from the comparison group on all observed interactional dimensions, showing lower levels of maternal acknowledging (<em>b</em> = −0.93, <em>p</em> < .001), infant social initiation (<em>b</em> = −0.54, <em>p</em> = .007), and dyadic reciprocity (<em>b</em> = −0.58, <em>p</em> = .041), and higher levels of maternal intrusiveness (<em>b</em> = 1.04, <em>p</em> < .001) and dyadic constriction (<em>b</em> = 0.73, <em>p</em> = .018). While differences in maternal acknowledging and dyadic reciprocity were only present at 15 weeks, maternal intrusiveness and infant social initiation differences were present at 15 weeks and 15 months. Dyadic constriction differences were present across all time points.</div></div><div><h3>Conclusion</h3><div>Early differences in mother-infant interaction between dyads with and without infant CP risk underscore the importance of tailoring interventions to read and respond to subtle infant cues. Supporting the parent–infant relationship from early infancy might enhance the effectiveness of early intervention and promote more optimal socio-emotional development.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"166 ","pages":"Article 105131"},"PeriodicalIF":2.6,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145356780","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Intellectual Disability (ID) is characterized by significant limitations in intellectual functioning and adaptive behavior. Quality of Life (QoL) is increasingly important in evaluating health interventions and support programs, helping improve resource allocation. In the context of ID, Generic QoL is considered a more valuable measure than Health-Related QoL. Objectives: This study has two main goals: a) to adapt and validate the Italian BASIQ instrument for assessing QoL in adults with ID for European Portuguese, and b) to analyse the relationship between QoL and health resource consumption in people with ID living in residential facilities. Methods: The instrument combines quantitative and qualitative measures, assessing nine QoL domains through Direct Interviews (DI), Proxy Questionnaires (PQ), and External Assessor Questionnaires (EAQ). It was administered to 111 adults with ID from two residential facilities in Lisbon. For the correlational analysis between QoL and costs, a sample of 102 individuals from one facility was used. Results: The instrument showed strong psychometric properties (Cronbach's alpha > 0.870 for all three instruments) and satisfactory inter-rater reliability (Cohen's K > 0.7). The nine domains are positively correlated with each other for the PQ, for all EAQ domains, and for about half of DI domains. In the analysis of QoL and costs, approximately 34 % of total costs were linked to QoL, particularly those related to outside activities and selfcare/ leisure services, rather than to human resources or health care. Conclusions: The study supports the validity of the BASIQ-PT for assessing QoL in people with ID, highlighting its potential for practical applications and program development. Additionally, other factors impacting QoL, such as the quality of relationships between people with ID and professionals, should be considered in future analyses.
智力残疾(ID)的特征是智力功能和适应性行为的显著限制。生活质量(QoL)在评估健康干预和支持计划方面越来越重要,有助于改善资源分配。在ID的背景下,通用生活质量被认为比健康相关生活质量更有价值。目的:本研究有两个主要目的:a)对意大利BASIQ工具进行改进和验证,以评估欧洲葡萄牙人成年身份证患者的生活质量;b)分析居住在住宅设施中的身份证患者的生活质量与卫生资源消耗的关系。方法:采用定量与定性相结合的方法,通过直接访谈(DI)、代理问卷(PQ)和外部评估问卷(EAQ)对9个生活质量领域进行评估。对来自里斯本两家住宅机构的111名有身份证的成年人进行了研究。对于生活质量和成本之间的相关性分析,使用了来自一家机构的102名个体样本。结果:该仪器具有较强的心理测量特性(三种仪器的Cronbach’s alpha >均为0.870)和令人满意的量表间信度(Cohen’s K >为0.7)。这9个结构域在PQ、所有EAQ结构域和大约一半的DI结构域之间呈正相关。在对生活质量和费用的分析中,大约34% 总费用与生活质量有关,特别是与外部活动和自我保健/休闲服务有关的费用,而不是与人力资源或保健有关的费用。结论:本研究支持BASIQ-PT评估ID患者生活质量的有效性,突出了其实际应用和项目开发的潜力。此外,在未来的分析中,应该考虑影响生活质量的其他因素,例如ID患者与专业人员之间的关系质量。
{"title":"Portuguese validation of the Italian BASIQ quality of life assessment battery and implications for health resource consumption","authors":"Joana Lindim Pereira , Dália Nogueira , Annamaria Bianco , Marco Bertelli","doi":"10.1016/j.ridd.2025.105130","DOIUrl":"10.1016/j.ridd.2025.105130","url":null,"abstract":"<div><h3>Introduction</h3><div>Intellectual Disability (ID) is characterized by significant limitations in intellectual functioning and adaptive behavior. Quality of Life (QoL) is increasingly important in evaluating health interventions and support programs, helping improve resource allocation. In the context of ID, Generic QoL is considered a more valuable measure than Health-Related QoL. <strong>Objectives</strong>: This study has two main goals: a) to adapt and validate the Italian BASIQ instrument for assessing QoL in adults with ID for European Portuguese, and b) to analyse the relationship between QoL and health resource consumption in people with ID living in residential facilities. <strong>Methods</strong>: The instrument combines quantitative and qualitative measures, assessing nine QoL domains through Direct Interviews (DI), Proxy Questionnaires (PQ), and External Assessor Questionnaires (EAQ). It was administered to 111 adults with ID from two residential facilities in Lisbon. For the correlational analysis between QoL and costs, a sample of 102 individuals from one facility was used. <strong>Results</strong>: The instrument showed strong psychometric properties (Cronbach's alpha > 0.870 for all three instruments) and satisfactory inter-rater reliability (Cohen's K > 0.7). The nine domains are positively correlated with each other for the PQ, for all EAQ domains, and for about half of DI domains. In the analysis of QoL and costs, approximately 34 % of total costs were linked to QoL, particularly those related to outside activities and selfcare/ leisure services, rather than to human resources or health care. <strong>Conclusions</strong>: The study supports the validity of the BASIQ-PT for assessing QoL in people with ID, highlighting its potential for practical applications and program development. Additionally, other factors impacting QoL, such as the quality of relationships between people with ID and professionals, should be considered in future analyses.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"166 ","pages":"Article 105130"},"PeriodicalIF":2.6,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145318789","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-11-01Epub Date: 2025-10-16DOI: 10.1016/j.ridd.2025.105126
Clarissa Moreira , Cristina Simões , André Oliveira , Karrie Shogren , Mayumi Haiwara , Armanda Pereira , Pedro Rosário , Rodrigo Gomes , Fernando Gomes , Sofia Santos
This study examined the correlations between adaptive behavior, support needs, quality of life (QOL), and self-determination in adults with intellectual and developmental disabilities (IDD). The sample comprised 80 adults (>18 y, 27 ± 13.8), 40 women and 40 men, with mild and moderate IDD, all institutionalized. Portuguese versions of four instruments were administered: Adaptive Behavior Scale, Supports Intensity Scale, Personal Outcomes Scale, and Self-Determination Inventory. These were administered to better understand how these constructs interact with and influence one another in real-life contexts. The correlations between self-determination and adaptive behavior were weak to moderate, highlighting a more complex and possibly indirect relationship between these two constructs. Self-determination showed negative correlations with support needs, indicating that individuals with more supports need may face more barriers to acting autonomously or making meaningful choices. The findings revealed significant and positive correlations between the core components and essential characteristics of self-determination and various QOL domains. This suggests that individuals who report a higher QOL also tend to demonstrate greater self-determined behavior and are more likely to engage in volitional behavior. Notably, both QOL and support needs emerged as significant and robust predictors of self-determination, underscoring the central role played by contextual and environmental factors in shaping one’s capacity to act with agency. These findings underscore the importance of fostering environments that not only reduce unnecessary support dependence, but also actively promote QOL, autonomy, and meaningful participation. Thus, services and policies can more effectively support the realization of self-determination for people with IDD.
本研究探讨了智力和发育障碍(IDD)成人的适应行为、支持需求、生活质量(QOL)和自我决定之间的相关性。样本包括80名成人(>18 y, 27 ± 13.8),40名女性和40名男性,均患有轻度和中度IDD,均住院治疗。采用葡萄牙语版本的四种工具:适应行为量表、支持强度量表、个人结果量表和自决量表。这些实验是为了更好地理解这些构念在现实生活中是如何相互作用和影响的。自我决定和适应行为之间的相关性介于弱到中等之间,这表明这两个构念之间存在着更为复杂且可能是间接的关系。自我决定与支持需求呈负相关,表明需要更多支持的个体在自主行动或做出有意义的选择时可能面临更多障碍。结果表明,自我决定的核心成分和基本特征与各生活质量域之间存在显著的正相关关系。这表明,报告生活质量较高的个体也倾向于表现出更大的自主行为,更有可能从事意志行为。值得注意的是,生活质量和支持需求都是自我决定的重要而有力的预测因素,强调了背景和环境因素在塑造一个人的能动性行动能力方面所起的核心作用。这些发现强调了培育环境的重要性,不仅要减少不必要的支持依赖,而且要积极促进生活质量、自主性和有意义的参与。因此,服务和政策可以更有效地支持缺碘症患者实现自决。
{"title":"Exploring the interplay between adaptive behavior, support needs, quality of life, and self-determination with persons with intellectual and developmental disabilities","authors":"Clarissa Moreira , Cristina Simões , André Oliveira , Karrie Shogren , Mayumi Haiwara , Armanda Pereira , Pedro Rosário , Rodrigo Gomes , Fernando Gomes , Sofia Santos","doi":"10.1016/j.ridd.2025.105126","DOIUrl":"10.1016/j.ridd.2025.105126","url":null,"abstract":"<div><div>This study examined the correlations between adaptive behavior, support needs, quality of life (QOL), and self-determination in adults with intellectual and developmental disabilities (IDD). The sample comprised 80 adults (>18 y, 27 ± 13.8), 40 women and 40 men, with mild and moderate IDD, all institutionalized. Portuguese versions of four instruments were administered: Adaptive Behavior Scale, Supports Intensity Scale, Personal Outcomes Scale, and Self-Determination Inventory. These were administered to better understand how these constructs interact with and influence one another in real-life contexts. The correlations between self-determination and adaptive behavior were weak to moderate, highlighting a more complex and possibly indirect relationship between these two constructs. Self-determination showed negative correlations with support needs, indicating that individuals with more supports need may face more barriers to acting autonomously or making meaningful choices. The findings revealed significant and positive correlations between the core components and essential characteristics of self-determination and various QOL domains. This suggests that individuals who report a higher QOL also tend to demonstrate greater self-determined behavior and are more likely to engage in volitional behavior. Notably, both QOL and support needs emerged as significant and robust predictors of self-determination, underscoring the central role played by contextual and environmental factors in shaping one’s capacity to act with agency. These findings underscore the importance of fostering environments that not only reduce unnecessary support dependence, but also actively promote QOL, autonomy, and meaningful participation. Thus, services and policies can more effectively support the realization of self-determination for people with IDD.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"166 ","pages":"Article 105126"},"PeriodicalIF":2.6,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145314259","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Williams syndrome (WS) is a genetic neurodevelopmental disorder affecting intellectual, cognitive, and language development. We re-examined the phonological-semantic imbalance hypothesis by probing phonological and semantic processing abilities within the same task context, in 19 children with WS and 57 typically developing (TD) children. Participants saw pictures pairs, heard their names, and indicated whether the words were related; the words, if related, shared either phonological or semantic features. Using a generalized linear mixed model, results showed that WS children exhibited a stronger preference for phonological associations over semantic associations, compared to TD children, after controlling for general verbal or non-verbal abilities. Both groups showed similar sensitivity to phonological relations, but WS children showed reduced sensitivity to semantic ones. This pattern suggests that WS individuals have a less developed or an atypical semantic network, emphasizing the need for language intervention to focus on semantic levels of processing.
{"title":"Preserved phonological but impaired semantic processing in Williams syndrome: Evidence from a word association judgment task","authors":"Amandine Hippolyte , Steve Majerus , Nathalie Marec-Breton , Christelle Declercq , Laure Ibernon","doi":"10.1016/j.ridd.2025.105134","DOIUrl":"10.1016/j.ridd.2025.105134","url":null,"abstract":"<div><div>Williams syndrome (WS) is a genetic neurodevelopmental disorder affecting intellectual, cognitive, and language development. We re-examined the phonological-semantic imbalance hypothesis by probing phonological and semantic processing abilities within the same task context, in 19 children with WS and 57 typically developing (TD) children. Participants saw pictures pairs, heard their names, and indicated whether the words were related; the words, if related, shared either phonological or semantic features. Using a generalized linear mixed model, results showed that WS children exhibited a stronger preference for phonological associations over semantic associations, compared to TD children, after controlling for general verbal or non-verbal abilities. Both groups showed similar sensitivity to phonological relations, but WS children showed reduced sensitivity to semantic ones. This pattern suggests that WS individuals have a less developed or an atypical semantic network, emphasizing the need for language intervention to focus on semantic levels of processing.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"166 ","pages":"Article 105134"},"PeriodicalIF":2.6,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145395002","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-11-01Epub Date: 2025-10-28DOI: 10.1016/j.ridd.2025.105140
Ghaleb Alnahdi , Elsayed Elshabrawi Ahmed Hassanein , Taha R. Adawi
Background
This study investigates Family Quality of Life (FQoL) among mothers of children with intellectual disabilities across three Arab countries: Saudi Arabia, Egypt, and Qatar.
Method
Data were collected from 373 mothers using the Beach Center Family Quality of Life Scale. Repeated measures ANOVA and multiple regression analyses were conducted to assess differences across FQoL domains and identify associated demographic predictors.
Results
Results reveal varying levels of satisfaction across FQoL domains, with Family Interaction scoring the highest and Emotional Wellbeing the lowest. Factors such as the mother's age, the child's disability severity, and country of residence significantly influence satisfaction levels in some domains.
Conclusion
The findings highlight the importance of culturally responsive supports, particularly in the emotional domain, and suggest that tailored interventions addressing demographic and contextual factors may enhance the well-being of mothers of children with intellectual disabilities in the Arab region.
{"title":"Perspectives on family wellbeing among mothers of children with intellectual disabilities in the Arab World","authors":"Ghaleb Alnahdi , Elsayed Elshabrawi Ahmed Hassanein , Taha R. Adawi","doi":"10.1016/j.ridd.2025.105140","DOIUrl":"10.1016/j.ridd.2025.105140","url":null,"abstract":"<div><h3>Background</h3><div>This study investigates Family Quality of Life (FQoL) among mothers of children with intellectual disabilities across three Arab countries: Saudi Arabia, Egypt, and Qatar.</div></div><div><h3>Method</h3><div>Data were collected from 373 mothers using the Beach Center Family Quality of Life Scale. Repeated measures ANOVA and multiple regression analyses were conducted to assess differences across FQoL domains and identify associated demographic predictors.</div></div><div><h3>Results</h3><div>Results reveal varying levels of satisfaction across FQoL domains, with Family Interaction scoring the highest and Emotional Wellbeing the lowest. Factors such as the mother's age, the child's disability severity, and country of residence significantly influence satisfaction levels in some domains.</div></div><div><h3>Conclusion</h3><div>The findings highlight the importance of culturally responsive supports, particularly in the emotional domain, and suggest that tailored interventions addressing demographic and contextual factors may enhance the well-being of mothers of children with intellectual disabilities in the Arab region.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"166 ","pages":"Article 105140"},"PeriodicalIF":2.6,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145402703","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Despite sustained interest in quality of life (QoL) within the field of intellectual disabilities (ID), the contributors to its enhancement remain unclear. This large-scale study (n = 567) aimed to investigate the relationship between numeracy and QoL in adults with ID—according to their severity—and to examine this relationship with regard to other functional academic skills.
Method
Participants included adults with mild, moderate, and severe to profound ID living in supported residential facilities. QoL was assessed using the Personal Outcomes Scale for Adults, encompassing eight dimensions categorised into three high-level factors: independence including self-determination; social participation including interpersonal relationships, social inclusion, and rights; and well-being including emotional, physical, and material well-being. A numeracy scale was designed with items related to the mathematical processing of the Vineland Adaptive Behavior Scales, Second Edition. Partial correlations and linear mixed models were used to not only confirm the existence of a relationship between numeracy and QoL but also investigate whether numeracy can be considered a unique predictor of QoL.
Results
Findings revealed that numeracy is significantly associated with QoL across all levels of ID, even when controlling for literacy, thereby emerging as a unique predictor of personal development, self-determination, and social participation among individuals with mild to moderate ID and of self-determination among those with severe to profound ID.
Conclusion
The results emphasise numeracy’s importance in improving the QoL of adults with ID, highlighting the need to refine its role within the support frameworks designed for this population.
{"title":"Math for life: Understanding the contribution of numeracy to the quality of life of adults with mild to profound intellectual disabilities","authors":"Maëlle Neveu , Guillaume Verdure , Laurent Lefebvre , Audrey Vicenzutto , Romina Rinaldi","doi":"10.1016/j.ridd.2025.105127","DOIUrl":"10.1016/j.ridd.2025.105127","url":null,"abstract":"<div><h3>Aim</h3><div>Despite sustained interest in quality of life (QoL) within the field of intellectual disabilities (ID), the contributors to its enhancement remain unclear. This large-scale study (n = 567) aimed to investigate the relationship between numeracy and QoL in adults with ID—according to their severity—and to examine this relationship with regard to other functional academic skills.</div></div><div><h3>Method</h3><div>Participants included adults with mild, moderate, and severe to profound ID living in supported residential facilities. QoL was assessed using the Personal Outcomes Scale for Adults, encompassing eight dimensions categorised into three high-level factors: <em>independence</em> including self-determination; <em>social participation</em> including interpersonal relationships, social inclusion, and rights; and <em>well-being</em> including emotional, physical, and material well-being. A numeracy scale was designed with items related to the mathematical processing of the Vineland Adaptive Behavior Scales, Second Edition. Partial correlations and linear mixed models were used to not only confirm the existence of a relationship between numeracy and QoL but also investigate whether numeracy can be considered a unique predictor of QoL.</div></div><div><h3>Results</h3><div>Findings revealed that numeracy is significantly associated with QoL across all levels of ID, even when controlling for literacy, thereby emerging as a unique predictor of <em>personal development</em>, <em>self-determination</em>, and <em>social participation</em> among individuals with mild to moderate ID and of <em>self-determination</em> among those with severe to profound ID.</div></div><div><h3>Conclusion</h3><div>The results emphasise numeracy’s importance in improving the QoL of adults with ID, highlighting the need to refine its role within the support frameworks designed for this population.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"166 ","pages":"Article 105127"},"PeriodicalIF":2.6,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145318738","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}