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Associations between receptive and expressive vocabulary and early literacy in young students with intellectual disabilities using AAC 使用AAC的年轻智障学生的接受性和表达性词汇与早期读写能力的关系
IF 2.6 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2026-02-01 DOI: 10.1016/j.ridd.2026.105239
Line Britt Ulriksen , Marthe Bilet-Mossige , Kenneth Larsen , Anders Nordahl-Hansen

Purpose

This study examined the associations between receptive and expressive vocabulary and early literacy skills (i.e., phonological awareness and letter-sound knowledge) among 39 students aged 6–14 years with intellectual disabilities, autism, and/or Down syndrome who use augmentative and alternative communication (AAC). Receptive and expressive vocabulary are identified as a key risk factor for developing reading skills in students with intellectual disabilities who use AAC.

Methods

Spearman’s correlation analyses and generalized linear models were conducted throughout this non-experimental investigation to examine the association between receptive and expressive vocabulary, phonological awareness (sound blending and initial sound recognition), and letter-sound knowledge.

Results

Findings revealed a significant correlation between expressive vocabulary (i.e., words children can use in speech) and both letter-sound knowledge and sound blending, contrary to prior research. Additionally, students’ receptive and expressive vocabulary showed no correlation with their early literacy skills. Binomial Generalized Linear Models (mixed-effects models) highlighted the importance of receptive vocabulary in early literacy development. Furthermore, looking at the differences within the sample, students with autism and intellectual disability requiring AAC had a higher negative probability of maximum scores in early literacy skills.

Conclusions

These findings deepen understanding of how the correlations between receptive and expressive vocabulary relate to early literacy skills. This may contribute to more targeted interventions and provide implications for practitioners and their teaching within receptive and expressive vocabulary and early literacy components, which will benefit this population in further reading development.
目的研究39名6-14岁智力障碍、自闭症和/或唐氏综合症学生的接受性和表达性词汇与早期读写能力(即语音意识和字母-声音知识)之间的关系,这些学生使用辅助和替代沟通(AAC)。接受性和表达性词汇被认为是使用AAC的智障学生发展阅读技能的关键风险因素。方法采用spearman相关分析和广义线性模型研究接受性词汇和表达性词汇、语音意识(混音和初始语音识别)和字母语音知识之间的关系。结果研究发现,表达性词汇(即儿童在讲话中可以使用的词汇)与字母-声音知识和声音混合之间存在显著相关性,这与先前的研究相反。此外,学生的接受性和表达性词汇与他们的早期读写能力没有相关性。二项广义线性模型(混合效应模型)强调了接受性词汇在早期读写能力发展中的重要性。此外,观察样本内的差异,需要AAC的自闭症和智力残疾学生在早期读写技能上获得最高分的负概率更高。这些发现加深了对接受性词汇和表达性词汇与早期读写能力之间关系的理解。这可能有助于更有针对性的干预,并为实践者及其在接受性和表达性词汇和早期识字成分方面的教学提供启示,这将有利于这一人群的进一步阅读发展。
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引用次数: 0
Preliminary psychometric evaluation of the Greek little developmental coordination disorder questionnaire (LDCDQ-GR) 希腊小发育协调障碍问卷(LDCDQ-GR)的初步心理测量评价
IF 2.6 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2026-02-01 DOI: 10.1016/j.ridd.2026.105236
Tania Kalaitzi , Pavlos Kitixis , Dimitrios Zafeiriou , Ioannis Poulis , George Paras

Background

Developmental Coordination Disorder (DCD) is a multifactorial motor disorder that significantly impacts a child’s activities of daily living and academic skills. Identifying signs of DCD early is essential to enable timely support and reduce the risk of long-term difficulties.

Aims

This cross-sectional study aimed to further investigate the psychometric properties of the Greek version of the Little Developmental Coordination Disorder Questionnaire (LDCDQ) by carrying out appropriate analyses in a convenience sample of 3- to 5- year old children in Greece.

Methods

A total of 362 preschool children aged 3–5 years old from 39 municipal kindergartens in Thessaloniki, Greece participated in this study. Parents filled out the Greek LDCDQ. Internal consistency of the LDCDQ-GR was determined by Cronbach’s alpha. Construct validity was investigated using factor analysis

Results

Internal consistency of the LDCDQ-GR was 0.88. Factor analysis resulted in three factors (Locomotor, Fine motor and General Coordination skills). No effects of age (H(2) = 3.93, p = 0.14, η2 = 0.005) and gender (H(1) = 2.75, p = 0.09, η2 = 0.005) were depicted for the LDCDQ-GR final score.

Conclusion

LDCDQ-GR appears to be a reliable and well-structured questionnaire for identifying preschool-aged (3–5 years old) children in Greece who may be at risk for DCD.
发展协调障碍(DCD)是一种多因素的运动障碍,严重影响儿童的日常生活活动和学习技能。及早发现DCD的迹象对于及时提供支助和减少长期困难的风险至关重要。目的本横断面研究旨在通过对希腊3- 5岁儿童的方便样本进行适当的分析,进一步探讨希腊版小发育协调障碍问卷(LDCDQ)的心理测量特性。方法对希腊塞萨洛尼基市39所市立幼儿园362名3-5岁学龄前儿童进行研究。家长们填写了希腊LDCDQ表格。采用Cronbach’s alpha测定LDCDQ-GR的内部一致性。结果LDCDQ-GR的内部一致性为0.88。因子分析得出三个因素(运动、精细运动和一般协调技能)。年龄(H(2) = 3.93,p = 0.14,η2 = 0.005)和性别(H(1) = 2.75,p = 0.09,η2 = 0.005)对LDCDQ-GR最终评分没有影响。结论ldcdq - gr似乎是一份可靠且结构良好的问卷,用于识别希腊可能存在DCD风险的学龄前(3-5岁)儿童。
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引用次数: 0
Sleep in children with spinal muscular atrophy and their caregivers: Exploring sleep problems and the need for care 脊髓性肌萎缩症儿童及其护理人员的睡眠:探索睡眠问题和护理需求
IF 2.6 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2026-02-01 DOI: 10.1016/j.ridd.2026.105238
Ilse Margot van Rijssen , Sanne Rodenburg , Mattijs Alsem , Raquel Hulst , Jan Willem Gorter , Irene Oude Lansink , Ludo van der Pol , Esther Veldhoen , Olaf Verschuren
Sleep-disordered breathing in children with spinal muscular atrophy (SMA) is well recognized, yet little is known about everyday, non-respiratory sleep problems and their impact on caregivers. The purpose of this study is to describe the caregiver-reported frequency and type of sleep problems in children with spinal muscular atrophy (SMA) and to evaluate the sleep satisfaction of their child and their own sleep. Furthermore, we assessed the relationship between child and caregiver sleep. Finally, we compared sleep outcomes of children with SMA to that of typically developing (TD) children and their caregivers. Fifty-one children with SMA (age range: 0–16), 287 TD children (age range: 0–16) and their caregivers participated in this cross-sectional, exploratory observational questionnaire study. Night-time waking, snoring, pain or discomfort and daytime fatigue were more common in children with SMA. Caregivers of children with SMA were less satisfied about their child’s and own sleep, and more often reported feeling sleep deprived. We recommend regular assessment of sleep in children with SMA and their families in pediatric healthcare practice.
脊髓性肌萎缩症(SMA)儿童的睡眠呼吸障碍是公认的,但对日常非呼吸性睡眠问题及其对护理人员的影响知之甚少。本研究的目的是描述照顾者报告的脊髓性肌萎缩症(SMA)儿童睡眠问题的频率和类型,并评估他们的孩子和自己的睡眠满意度。此外,我们评估了儿童和照顾者睡眠之间的关系。最后,我们将SMA儿童的睡眠结果与正常发育(TD)儿童及其照顾者的睡眠结果进行了比较。51名SMA儿童(年龄范围:0-16岁)、287名TD儿童(年龄范围:0-16岁)及其照顾者参与了本横断面探索性观察性问卷研究。夜间醒来、打鼾、疼痛或不适以及白天疲劳在SMA儿童中更为常见。患有SMA的儿童的看护人对他们的孩子和自己的睡眠都不太满意,而且更经常报告感到睡眠不足。我们建议在儿科保健实践中定期评估SMA儿童及其家庭的睡眠。
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引用次数: 0
The relationship between social media use and adolescent inattention and impulsivity: A systematic review 社交媒体使用与青少年注意力不集中和冲动之间的关系:一项系统综述
IF 2.6 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2026-02-01 DOI: 10.1016/j.ridd.2026.105237
Rosa Angela Fabio , Giulia Picciotto

Objective

This systematic review aims to evaluate the association between social media use (SMU) and ADHD-related outcomes—primarily inattention and impulsivity—among adolescents aged 10–19 years.

Methods

A systematic literature search was conducted across PsycINFO, Scopus, PubMed, Cochrane Library, and Embase in June 2025. Search terms included: ("social media" OR "social network" OR "social networking site" OR Instagram OR TikTok OR Facebook) AND (adolescen* OR teen* OR youth) AND (ADHD OR "attention deficit" OR inattention OR impulsivit* OR hyperactiv*). Eligible studies included both general population samples and adolescents diagnosed with attention-deficit/hyperactivity disorder (ADHD). Filters were applied to include articles published in English between 2015 and 2025. Although a formal risk of bias assessment was not conducted, study characteristics and methodological variability were qualitatively evaluated.

Results

Twenty-five studies met the inclusion criteria and were synthesized. Across both clinical and non-clinical samples, most studies reported a significant association between problematic social media use and ADHD-related traits or symptoms, particularly inattention. Evidence for associations with impulsivity was also observed, whereas findings related to hyperactivity were less consistent and less frequently examined. However, considerable heterogeneity in study design, measurement tools, and operationalization of SMU limited direct comparability and synthesis.

Conclusion

Problematic social media use appears to be associated with increased inattention- and impulsivity-related outcomes in adolescents. While current evidence suggests a meaningful link, the predominance of cross-sectional designs limits conclusions about directionality. Future research should adopt longitudinal and experimental approaches, employ standardized and conceptually precise measures of social media use, and clarify the role of specific ADHD dimensions.
目的本系统综述旨在评估10-19岁青少年社交媒体使用(SMU)与adhd相关结果(主要是注意力不集中和冲动)之间的关系。方法于2025年6月对PsycINFO、Scopus、PubMed、Cochrane Library和Embase进行系统文献检索。搜索词包括:(“社交媒体”或“社交网络”或“社交网站”或Instagram或TikTok或Facebook)和(青少年*或青少年*或青年)和(ADHD或“注意力缺陷”或注意力不集中或冲动*或多动*)。符合条件的研究包括一般人群样本和诊断为注意力缺陷/多动障碍(ADHD)的青少年。过滤器用于包括2015年至2025年期间发表的英文文章。虽然没有进行正式的偏倚风险评估,但对研究特征和方法变异性进行了定性评估。结果25项研究符合纳入标准。在临床和非临床样本中,大多数研究都报告了有问题的社交媒体使用与adhd相关特征或症状(尤其是注意力不集中)之间的显著关联。与冲动相关的证据也被观察到,而与多动相关的发现则不太一致,也不太经常被检查。然而,在研究设计、测量工具和SMU操作上的相当大的异质性限制了直接的可比性和综合。结论:有问题的社交媒体使用似乎与青少年注意力不集中和冲动相关的结果增加有关。虽然目前的证据表明存在有意义的联系,但横截面设计的优势限制了关于方向性的结论。未来的研究应该采用纵向和实验的方法,采用标准化和概念上精确的社交媒体使用测量方法,并明确特定ADHD维度的作用。
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引用次数: 0
Navigating healthcare among Canadians with ASD during transitions to adulthood: How does it look like from the perspectives of stakeholders? 从利益相关者的角度看,加拿大ASD患者在成年期的医疗保健导航是怎样的?
IF 2.6 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2026-02-01 DOI: 10.1016/j.ridd.2026.105222
Parisa Ghanouni, Paige Kavanaugh

Introduction

The transition to adulthood presents specific challenges for individuals with autism spectrum disorder (ASD) and their parents, particularly in navigating healthcare systems and adapting routines. Despite the importance of this transition, effectively navigating the healthcare system remains difficult and there is limited information specifically on healthcare navigation. This study aims to address this gap by exploring the experiences of stakeholders to gain a comprehensive understanding and identify crucial components for successfully navigating healthcare systems.

Methods

In-depth interviews were conducted with 20 participants, including 6 youth with ASD, 10 parents of youth with ASD, and 4 service providers from Canadian provinces. The interviews were analyzed thematically to extract meaningful insights.

Results

Thematic analysis revealed three main themes essential to navigating the healthcare system: (a) information sharing, emphasizing the significance of accessible and comprehensive information exchange regarding healthcare resources; (b) community-based programs, underscoring the role of community resources and support networks in facilitating healthcare access and transition; and (c) healthcare coordination, highlighting the necessity of tailored and ongoing support mechanisms to assist individuals with ASD during the transition process.

Conclusion

This study contributes to the existing literature on the transition to adulthood for individuals with ASD by identifying key factors influencing healthcare system navigation. Recognizing and addressing these factors are vital due to their profound impact on youth and their families. The findings highlight the importance of accessing navigational services to facilitate a successful transition of healthcare systems and can inform the development of navigational support interventions.

Contribution to the literature

  • There is limited information about how individuals with ASD navigate healthcare services as they transition to adulthood.
  • This study explored experiences of individuals with ASD, their parents and service providers during transition to adulthood.
  • This project highlights how best we can support individuals with autism during navigating healthcare services.
对于自闭症谱系障碍(ASD)患者及其父母来说,向成年的过渡提出了具体的挑战,特别是在导航医疗系统和适应日常生活方面。尽管这种转变很重要,但有效地导航医疗保健系统仍然很困难,而且关于医疗保健导航的具体信息有限。本研究旨在通过探索利益相关者的经验来解决这一差距,以获得全面的理解并确定成功导航医疗保健系统的关键组成部分。方法对20名参与者进行深度访谈,其中包括6名青少年ASD患者、10名青少年ASD患者的父母和4名来自加拿大各省的服务提供者。对访谈进行了主题分析,以提取有意义的见解。结果主题分析揭示了医疗系统导航的三个基本主题:(a)信息共享,强调医疗资源可及性和全面性信息交换的重要性;(b)以社区为基础的方案,强调社区资源和支持网络在促进获得医疗保健和过渡方面的作用;(c)卫生保健协调,强调在过渡过程中需要有针对性和持续的支持机制来帮助自闭症患者。结论本研究通过确定影响医疗保健系统导航的关键因素,对ASD个体向成年过渡的现有文献有所贡献。认识和处理这些因素至关重要,因为它们对青年及其家庭产生深远影响。研究结果强调了获取导航服务对促进医疗保健系统成功转型的重要性,并可以为导航支持干预措施的发展提供信息。对文献的贡献•关于ASD患者如何在过渡到成年期时导航医疗保健服务的信息有限。•本研究探讨了自闭症患者、他们的父母和服务提供者在过渡到成年期间的经历。•该项目突出了我们如何在医疗保健服务中为自闭症患者提供最好的支持。
{"title":"Navigating healthcare among Canadians with ASD during transitions to adulthood: How does it look like from the perspectives of stakeholders?","authors":"Parisa Ghanouni,&nbsp;Paige Kavanaugh","doi":"10.1016/j.ridd.2026.105222","DOIUrl":"10.1016/j.ridd.2026.105222","url":null,"abstract":"<div><h3>Introduction</h3><div>The transition to adulthood presents specific challenges for individuals with autism spectrum disorder (ASD) and their parents, particularly in navigating healthcare systems and adapting routines. Despite the importance of this transition, effectively navigating the healthcare system remains difficult and there is limited information specifically on healthcare navigation. This study aims to address this gap by exploring the experiences of stakeholders to gain a comprehensive understanding and identify crucial components for successfully navigating healthcare systems.</div></div><div><h3>Methods</h3><div>In-depth interviews were conducted with 20 participants, including 6 youth with ASD, 10 parents of youth with ASD, and 4 service providers from Canadian provinces. The interviews were analyzed thematically to extract meaningful insights.</div></div><div><h3>Results</h3><div>Thematic analysis revealed three main themes essential to navigating the healthcare system: (a) information sharing, emphasizing the significance of accessible and comprehensive information exchange regarding healthcare resources; (b) community-based programs, underscoring the role of community resources and support networks in facilitating healthcare access and transition; and (c) healthcare coordination, highlighting the necessity of tailored and ongoing support mechanisms to assist individuals with ASD during the transition process.</div></div><div><h3>Conclusion</h3><div>This study contributes to the existing literature on the transition to adulthood for individuals with ASD by identifying key factors influencing healthcare system navigation. Recognizing and addressing these factors are vital due to their profound impact on youth and their families. The findings highlight the importance of accessing navigational services to facilitate a successful transition of healthcare systems and can inform the development of navigational support interventions.</div></div><div><h3>Contribution to the literature</h3><div><ul><li><span>•</span><span><div>There is limited information about how individuals with ASD navigate healthcare services as they transition to adulthood.</div></span></li></ul><ul><li><span>•</span><span><div>This study explored experiences of individuals with ASD, their parents and service providers during transition to adulthood.</div></span></li></ul></div><div><ul><li><span>•</span><span><div>This project highlights how best we can support individuals with autism during navigating healthcare services.</div></span></li></ul></div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"169 ","pages":"Article 105222"},"PeriodicalIF":2.6,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146078719","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Accelerometer-measured physical activity among children and adolescents with and without neurodevelopmental disorders: A systematic review and meta-analysis 有或无神经发育障碍的儿童和青少年用加速计测量的身体活动:一项系统回顾和荟萃分析
IF 2.6 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2026-01-24 DOI: 10.1016/j.ridd.2026.105233
Xiao Liang , Raffy C.F. Chan , Justin A. Haegele , Sean Healy , Richard H. Xu , Chang Liu , Ming Chen , Minghui Li , Hui Zhang , Cindy H.P. Sit , David H.K. Shum

Purpose

Physical inactivity is a health concern for children and adolescents with neurodevelopmental disorders (NDDs) as it directly increases their risk of developing various health problems. Evidence on differences in accelerometer-assessed physical activity between children and adolescents with and without NDDs is inconclusive. And age- and body mass index (BMI)-related effects on physical activity remain unclear.

Methods

The systematic literature searches were performed in 6 databases up to March 2025. Methodological quality was evaluated by the Newcastle–Ottawa Scales. Data were pooled using a random-effects model. Hedges’ g was used to express the effect size index with 95 % confidence interval (CI). Meta-regression on age and BMI was also performed to investigate the potential moderating effects.

Results

Out of the 2167 studies initially identified, 28 were included in the analysis, which comprised total physical activity (TPA), moderate-to-vigorous physical activity (MVPA), and light physical activity (LPA) included in the meta-analysis, respectively. These studies involved 1060 children and adolescents with NDDs and 1820 without, aged 6.6–16.9 years. A small-to-moderate effect size exists for the difference in TPA (g=-0.299) and MVPA (g=-0.479) between children and adolescents with and without NDD, particularly indicating a difference in 12.7 min of MVPA daily. The difference in LPA was not significant (g=0.450, p = 0.125). The decline in MVPA with age was more pronounced in those with NDDs, and the difference in MVPA was smaller for those with lower BMI.

Conclusion

The variation in MVPA differences by age and BMI highlights the need to develop better physical activity habits and reduce these disparities for children and adolescents with NDDs.
目的缺乏身体活动是患有神经发育障碍的儿童和青少年的一个健康问题,因为它直接增加了他们发展各种健康问题的风险。有和没有ndd的儿童和青少年在加速计评估的身体活动差异的证据尚无定论。年龄和身体质量指数(BMI)对身体活动的影响尚不清楚。方法系统检索截至2025年3月的6个数据库的文献。采用纽卡斯尔-渥太华量表评估方法学质量。数据采用随机效应模型汇总。用对冲系数(Hedges’g)表示效应大小指数,置信区间为95 %。还对年龄和BMI进行meta回归,以调查潜在的调节作用。在最初确定的2167项研究中,有28项纳入了分析,分别包括meta分析中的总身体活动(TPA)、中至高强度身体活动(MVPA)和轻度身体活动(LPA)。这些研究涉及1060名患有ndd的儿童和青少年以及1820名没有ndd的儿童和青少年,年龄在6.6-16.9岁之间。在有和没有NDD的儿童和青少年之间,TPA (g=-0.299)和MVPA (g=-0.479)的差异存在小到中等的效应量,特别是每日MVPA的差异为12.7 min。LPA差异无统计学意义(g=0.450, p = 0.125)。ndd患者的MVPA随年龄的下降更为明显,而BMI较低的患者的MVPA差异较小。结论MVPA随年龄和BMI的差异表明,儿童和青少年ndd患者需要养成良好的体育活动习惯,并减少这些差异。
{"title":"Accelerometer-measured physical activity among children and adolescents with and without neurodevelopmental disorders: A systematic review and meta-analysis","authors":"Xiao Liang ,&nbsp;Raffy C.F. Chan ,&nbsp;Justin A. Haegele ,&nbsp;Sean Healy ,&nbsp;Richard H. Xu ,&nbsp;Chang Liu ,&nbsp;Ming Chen ,&nbsp;Minghui Li ,&nbsp;Hui Zhang ,&nbsp;Cindy H.P. Sit ,&nbsp;David H.K. Shum","doi":"10.1016/j.ridd.2026.105233","DOIUrl":"10.1016/j.ridd.2026.105233","url":null,"abstract":"<div><h3>Purpose</h3><div>Physical inactivity is a health concern for children and adolescents with neurodevelopmental disorders (NDDs) as it directly increases their risk of developing various health problems. Evidence on differences in accelerometer-assessed physical activity between children and adolescents with and without NDDs is inconclusive. And age- and body mass index (BMI)-related effects on physical activity remain unclear.</div></div><div><h3>Methods</h3><div>The systematic literature searches were performed in 6 databases up to March 2025. Methodological quality was evaluated by the Newcastle–Ottawa Scales. Data were pooled using a random-effects model. Hedges’ <em>g</em> was used to express the effect size index with 95 % confidence interval (CI). Meta-regression on age and BMI was also performed to investigate the potential moderating effects.</div></div><div><h3>Results</h3><div>Out of the 2167 studies initially identified, 28 were included in the analysis, which comprised total physical activity (TPA), moderate-to-vigorous physical activity (MVPA), and light physical activity (LPA) included in the meta-analysis, respectively. These studies involved 1060 children and adolescents with NDDs and 1820 without, aged 6.6–16.9 years. A small-to-moderate effect size exists for the difference in TPA (g=-0.299) and MVPA (g=-0.479) between children and adolescents with and without NDD, particularly indicating a difference in 12.7 min of MVPA daily. The difference in LPA was not significant (<em>g</em>=0.450, p = 0.125). The decline in MVPA with age was more pronounced in those with NDDs, and the difference in MVPA was smaller for those with lower BMI.</div></div><div><h3>Conclusion</h3><div>The variation in MVPA differences by age and BMI highlights the need to develop better physical activity habits and reduce these disparities for children and adolescents with NDDs.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"169 ","pages":"Article 105233"},"PeriodicalIF":2.6,"publicationDate":"2026-01-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146038816","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Participation patterns and associated factors in children and adolescents with autism spectrum disorder: A nationwide population study 儿童和青少年自闭症谱系障碍的参与模式及相关因素:一项全国性的人口研究
IF 2.6 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2026-01-23 DOI: 10.1016/j.ridd.2026.105232
Che-Yu Lin , Lin-Ju Kang , Hua-Fang Liao , Pou-Leng Cheong , Chia-Feng Yen , Tsan-Hon Liou , Yen-Tzu Wu , Pei-Ying Yang

Background

Participation is central to development and quality of life in autism spectrum disorder (ASD). Most evidence derives from Western populations, and little is known about how body function and environmental components of the International Classification of Functioning, Disability and Health (ICF) shape participation across developmental stages in East Asia.

Purpose

To examine participation patterns and associated factors among Taiwanese children and adolescents with ASD using a national dataset.

Methods

Data were drawn from the Taiwan Databank of Persons with Disabilities, including 5190 children (aged 6–12) and 3603 adolescents (aged 13–17) with clinically confirmed ASD. Participation frequency and independence across six domains were assessed using the Functioning Scale of the Disability Evaluation System–Child version (FUNDES-Child). Body function and environmental factors were evaluated with standardized subscales. Analysis of covariance compared age groups, and multiple regression identified predictors. Robustness was tested using E-values.

Results

Children showed lower participation frequency, whereas adolescents had reduced independence in social domains. Mental and speech impairments were the strongest limiting factors, while physical and sensory impairments were less influential. Environmental supports, particularly caregiver assistance, social attitudes, and accessibility, were significant predictors. E-values indicated moderate robustness for daily living and mobility (3.11 – 3.47), very high robustness for environmental assistance and social attitude supports (27.7).

Conclusion

Findings highlight the interplay of functional limitations and contextual supports. E-value analyses confirm the robustness of communication-related impairments and environmental supports, suggesting interventions in these domains are most reliable for enhancing participation in East Asian children and adolescents with ASD.
参与对自闭症谱系障碍(ASD)的发展和生活质量至关重要。大多数证据来自西方人群,对于国际功能、残疾和健康分类(ICF)的身体功能和环境成分如何影响东亚各发育阶段的参与,人们知之甚少。目的利用国家数据分析台湾自闭症儿童和青少年的参与模式及其相关因素。方法数据来源于台湾残疾人数据库,纳入临床确诊ASD的儿童5190例(6-12岁)和青少年3603例(13-17岁)。使用儿童版残疾评估系统(funds - child)的功能量表评估了六个领域的参与频率和独立性。采用标准化亚量表对机体功能和环境因素进行评价。协方差分析比较了年龄组,多元回归确定了预测因子。采用e值检验稳健性。结果儿童在社交活动中的参与频率较低,青少年在社交活动中的独立性较低。精神和语言障碍是最强的限制因素,而身体和感觉障碍的影响较小。环境支持,特别是照顾者的帮助,社会态度和可及性是重要的预测因素。e值表明日常生活和流动性的稳健性中等(3.11 - 3.47),环境援助和社会态度支持的稳健性非常高(27.7)。结论研究结果强调了功能限制和环境支持的相互作用。e值分析证实了沟通相关障碍和环境支持的稳健性,表明这些领域的干预措施对于提高东亚自闭症儿童和青少年的参与是最可靠的。
{"title":"Participation patterns and associated factors in children and adolescents with autism spectrum disorder: A nationwide population study","authors":"Che-Yu Lin ,&nbsp;Lin-Ju Kang ,&nbsp;Hua-Fang Liao ,&nbsp;Pou-Leng Cheong ,&nbsp;Chia-Feng Yen ,&nbsp;Tsan-Hon Liou ,&nbsp;Yen-Tzu Wu ,&nbsp;Pei-Ying Yang","doi":"10.1016/j.ridd.2026.105232","DOIUrl":"10.1016/j.ridd.2026.105232","url":null,"abstract":"<div><h3>Background</h3><div>Participation is central to development and quality of life in autism spectrum disorder (ASD). Most evidence derives from Western populations, and little is known about how body function and environmental components of the International Classification of Functioning, Disability and Health (ICF) shape participation across developmental stages in East Asia.</div></div><div><h3>Purpose</h3><div>To examine participation patterns and associated factors among Taiwanese children and adolescents with ASD using a national dataset.</div></div><div><h3>Methods</h3><div>Data were drawn from the Taiwan Databank of Persons with Disabilities, including 5190 children (aged 6–12) and 3603 adolescents (aged 13–17) with clinically confirmed ASD. Participation frequency and independence across six domains were assessed using the Functioning Scale of the Disability Evaluation System–Child version (FUNDES-Child). Body function and environmental factors were evaluated with standardized subscales. Analysis of covariance compared age groups, and multiple regression identified predictors. Robustness was tested using E-values.</div></div><div><h3>Results</h3><div>Children showed lower participation frequency, whereas adolescents had reduced independence in social domains. Mental and speech impairments were the strongest limiting factors, while physical and sensory impairments were less influential. Environmental supports, particularly caregiver assistance, social attitudes, and accessibility, were significant predictors. E-values indicated moderate robustness for daily living and mobility (3.11 – 3.47), very high robustness for environmental assistance and social attitude supports (27.7).</div></div><div><h3>Conclusion</h3><div>Findings highlight the interplay of functional limitations and contextual supports. E-value analyses confirm the robustness of communication-related impairments and environmental supports, suggesting interventions in these domains are most reliable for enhancing participation in East Asian children and adolescents with ASD.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"169 ","pages":"Article 105232"},"PeriodicalIF":2.6,"publicationDate":"2026-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146038819","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Latent profiles of depression and post-traumatic growth and their associations with social support and religious participation in mothers of children with developmental disabilities in South Korea 韩国发育性残疾儿童母亲的抑郁症和创伤后成长的潜在特征及其与社会支持和宗教参与的关系
IF 2.6 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2026-01-23 DOI: 10.1016/j.ridd.2026.105235
Soo Kyung Park , Haenim Lee

Background

Mothers of children with developmental disabilities (DD) experience chronic and cumulative stress, yet many also report positive psychological changes such as post-traumatic growth (PTG). Few studies have examined how depression and PTG co-occur as distinct mental-health patterns or how psychosocial resources influence these profiles. This study identified latent profiles of depression and PTG among Korean mothers of children with DD and examined whether social support and religious participation predicted profile membership.

Method

A total of 488 mothers of children with DD participated in a survey conducted in Seoul and surrounding areas (2017–2018). Measures included the Post-Traumatic Growth Inventory, PHQ-9 depression scale, perceived informal support, formal service use, and religious participation. Latent profile analysis (LPA) was used to identify distinct psychological profiles, followed by multinomial logistic regression to examine predictors of class membership.

Results

A three-class solution best represented the data: (1) Low PTG/High Depression (13.4 %), (2) Moderate PTG/Moderate Depression (47.9 %), and (3) High PTG/Low Depression (38.6 %). Higher levels of family support, formal support services for caregivers, and active religious participation significantly increased the likelihood of belonging to the High PTG/Low Depression class. Self-rated health also differentiated class membership.

Conclusions

Mothers of children with DD demonstrate heterogeneous combinations of distress and growth, supporting a dual-axis understanding of mental health. Social support—especially family support—and active religious participation emerged as key correlates of more adaptive profiles. Findings highlight the importance of culturally embedded support systems and tailored interventions that address both distress reduction and growth promotion.
患有发育障碍(DD)儿童的母亲经历了慢性和累积的压力,但许多母亲也报告了积极的心理变化,如创伤后成长(PTG)。很少有研究调查抑郁症和PTG如何作为不同的心理健康模式共同发生,或社会心理资源如何影响这些特征。本研究在韩国有DD儿童的母亲中发现了抑郁症和PTG的潜在特征,并研究了社会支持和宗教参与是否能预测特征成员。方法在首尔及周边地区(2017-2018年)对488名DD患儿母亲进行调查。测量包括创伤后成长量表、PHQ-9抑郁量表、感知非正式支持、正式服务使用和宗教参与。使用潜在特征分析(LPA)来识别不同的心理特征,然后使用多项逻辑回归来检查班级成员的预测因子。结果3类解最能代表数据:(1)低PTG/高抑郁(13.4 %),(2)中度PTG/中度抑郁(47.9 %),(3)高PTG/低抑郁(38.6 %)。较高水平的家庭支持、对照顾者的正式支持服务和积极的宗教参与显著增加了属于高PTG/低抑郁类别的可能性。自我评估的健康状况也区分了班级成员。结论DD患儿的母亲表现出痛苦和成长的异质性组合,支持对心理健康的双轴理解。社会支持——尤其是家庭支持——和积极的宗教参与成为了更具适应性的关键因素。研究结果强调了文化嵌入式支持系统和量身定制的干预措施的重要性,以解决减少痛苦和促进成长的问题。
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引用次数: 0
“It was like everything happened at once”: Interviews with parents about having a child with intellectual disability and behaviours that challenge “就像所有的事情都同时发生了”:采访父母关于有一个智力残疾的孩子和有挑战的行为
IF 2.6 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2026-01-22 DOI: 10.1016/j.ridd.2026.105230
Constanza López Radrigán , Paulina S. Arango Uribe , Fernanda Gatica Ces
This article explores the experiences of parents of children and adolescents with intellectual disability who exhibit behaviours that challenge (BtC). Using a qualitative approach, fifteen mothers and three fathers participated in in-depth interviews, which were coded using thematic analysis. We found three themes: (1) parents’ experiences raising a child with intellectual disability and BtC, (2) parents’ attributions regarding their child’s BtC, and (3) parents’ perceptions about factors that have supported or hindered their role as parents. Findings offer a situated account of experiences shaped by children’s needs and broader sociocultural and structural dynamics. This research highlights how parenting a child with intellectual disability and BtC is not solely a matter of individual or familial responsibility, but it is embedded in collective social arrangements. This contributes to a contextualised understanding of parenting processes in complex situations, promoting the development of family-centred and culturally relevant supports within the Chilean context.
本文探讨了智力残疾儿童和青少年表现出挑战行为(BtC)的父母的经历。采用定性方法,15名母亲和3名父亲参加了深入访谈,并使用主题分析对访谈进行编码。我们发现了三个主题:(1)父母抚养智障和BtC儿童的经历;(2)父母对孩子BtC的归因;(3)父母对支持或阻碍他们扮演父母角色的因素的看法。调查结果提供了儿童需求和更广泛的社会文化和结构动态所形成的经验的定位说明。这项研究强调了如何养育有智力残疾和BtC的孩子不仅仅是个人或家庭责任的问题,而是嵌入到集体社会安排中。这有助于对复杂情况下的养育过程进行情境化理解,促进在智利环境中发展以家庭为中心和与文化相关的支持。
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引用次数: 0
Facilitators and barriers to augmentative and alternative communication (AAC) adoption for children with autism spectrum disorder (ASD): Teachers’ perspectives 自闭症谱系障碍(ASD)儿童采用辅助和替代沟通(AAC)的促进因素和障碍:教师的观点。
IF 2.6 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2026-01-20 DOI: 10.1016/j.ridd.2026.105227
Talal E. Alhuzimi

Background

Children with Autism Spectrum Disorder (ASD) often experience significant challenges in verbal and social communication, which can hinder their ability to express needs, interact socially, and participate in educational settings. Augmentative and Alternative Communication (AAC) systems ranging from low-tech tools like picture exchange systems to high-tech speech-generating devices are widely used to support and enhance communication in individuals with limited or nonverbal speech abilities.

Aim

This study investigated the perspective of teachers on identifying the facilitators and barriers of AAC usage using the TAM approach.

Method

Questionnaires were completed by 101 in-service teachers from Saudi Arabia teaching with direct experience in using and supporting AAC in the classrooms. They responded to the developed questionnaire covering various types of facilitators, barriers, perceived usefulness of AAC use, perceived ease of use of AAC, teachers’ attitude towards AAC, behavioral intention of teachers to use AAC, and adoption as well as implementation of AAC. The data obtained from the questionnaire were statistically analyzed using IBM SPSS software.

Results

The findings showed that perceived usefulness as well as perceived ease of use mediated the impact of facilitators and barriers of AAC. Moreover, teachers’ attitude was also found to mediate the impact of perceived usefulness and perceived ease of use on behavioral intention to use. Along with this, the sequential mediation of perceived usefulness or ease of use with teachers’ attitude was also established.

Conclusions

To facilitate the effective adoption of AAC, it is imperative that educational institutions provide sustained, practice-oriented professional development, guarantee consistent and equitable access to AAC technologies, and cultivate a school culture that actively endorses and systematically integrates AAC practices across teaching teams.
背景:患有自闭症谱系障碍(ASD)的儿童在语言和社会沟通方面经常遇到重大挑战,这可能会阻碍他们表达需求、社交互动和参与教育环境的能力。辅助和替代沟通(AAC)系统,从低技术的工具,如图片交换系统到高科技的语音生成设备,被广泛用于支持和加强有限或非语言能力的个体的沟通。目的:本研究利用TAM方法,探讨教师在识别AAC使用的促进因素和障碍方面的观点。方法:对101名沙特阿拉伯在职教师进行问卷调查,这些教师在课堂上有使用和支持AAC的直接经验。他们对问卷进行了回答,问卷内容包括各种类型的辅助因素、障碍、感知到的AAC使用有用性、感知到的AAC使用易用性、教师对AAC的态度、教师使用AAC的行为意向、采用和实施AAC。采用IBM SPSS软件对问卷数据进行统计分析。结果:感知有用性和感知易用性对辅助因素和障碍的影响具有中介作用。此外,教师的态度还会中介感知有用性和感知易用性对行为使用意图的影响。同时,也建立了感知有用性或易用性与教师态度的序贯中介关系。结论:为了促进AAC的有效采用,教育机构必须提供持续的、以实践为导向的专业发展,保证一致和公平地获得AAC技术,并培养一种积极支持和系统地整合整个教学团队AAC实践的学校文化。
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引用次数: 0
期刊
Research in Developmental Disabilities
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