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Colorectal cancer survivors' adjustment to permanent colostomy in Switzerland: A qualitative analysis. 瑞士大肠癌幸存者对永久性结肠造口术的适应情况:定性分析。
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-02-01 Epub Date: 2024-03-14 DOI: 10.1177/13591053241237569
Thierry Mathieu, Sarah Cairo Notari, Fabienne Fasseur, Nicolas Favez

Colostomized colorectal cancer survivors present physical, psychological, and social difficulties after treatment, which complicate their return to normal life. Nevertheless, we lack insight into their lived transition experience after treatment in Switzerland. We led nine semi-structured interviews with participants who had a colostomy for a mean of 16.4 years. The participants' mean age was 73.1 years. Through an inductive thematic analysis, we highlighted several adaptation difficulties. Their body image was poor, and they behaved differently than before the surgery. For fear of being rejected, they concealed their colostomy. However, they felt isolated and often wished for more support. They may be in a vicious circle where their difficulties are maintained. We advocate that supporting survivors psychologically beyond the end of their treatment is essential to facilitate adjustment and overcome cancer.

结肠直肠癌幸存者在治疗后面临着生理、心理和社交方面的困难,这使他们恢复正常生活变得更加复杂。然而,我们对他们在瑞士接受治疗后的过渡生活经历缺乏深入了解。我们主持了九次半结构式访谈,访谈对象为平均接受结肠造口术 16.4 年的幸存者。参与者的平均年龄为 73.1 岁。通过归纳式主题分析,我们强调了几个适应困难。他们的身体形象不佳,行为举止与手术前不同。由于害怕被拒绝,他们隐瞒了结肠造口术。然而,她们感到孤立无援,常常希望得到更多的支持。他们可能会陷入一个恶性循环,使自己的困难持续存在。我们主张,为幸存者提供治疗结束后的心理支持,对于帮助他们适应和战胜癌症至关重要。
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引用次数: 0
Validation of the Sibling Perception Questionnaire in healthy siblings of children with chronic illnesses. 在慢性病患儿的健康兄弟姐妹中验证兄弟姐妹感知问卷。
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-02-01 Epub Date: 2024-03-14 DOI: 10.1177/13591053241235095
Abbi L Gutierrez, Christine A Limbers

The purpose of the study was to assess the psychometric properties of the parent-report version of the Sibling Perception Questionnaire (SPQ) in well-siblings. Participants were 200 caregivers of healthy children ages 9-17 years who had a sibling (ages 0-18 years) diagnosed with cancer, diabetes, cystic fibrosis, epilepsy, spina bifida, or congenital heart disease. The SPQ had acceptable internal consistency reliability for the total score (α = 0.83) and displayed acceptable convergent validity as evidenced by medium to large positive correlations with the Strengths and Difficulties Questionnaire and Pediatric Quality of Life Inventory 4.0 (r's ranged from 0.39 to 0.56). The original four-factor model displayed a poor model fit (CFI = 0.6, RMSEA = 0.11, TLI = 0.55, SRMR = 0.14) in comparison to a revised, 14-item four-factor model (CFI = 0.92, RMSEA = 0.07, TLI = 0.90, SRMR = 0.06). The shortened, 14-item parent-report version of the SPQ largely demonstrated good psychometric properties and has the potential to reduce the burden of caregivers filling out the measure.

本研究旨在评估父母报告版兄弟姐妹感知问卷(SPQ)在兄弟姐妹中的心理测量特性。研究对象是 200 名 9-17 岁健康儿童的照顾者,他们的兄弟姐妹(0-18 岁)被诊断患有癌症、糖尿病、囊性纤维化、癫痫、脊柱裂或先天性心脏病。SPQ 总分的内部一致性信度可接受(α = 0.83),与优势与困难问卷和儿科生活质量量表 4.0 之间存在中等至较大的正相关(r 值介于 0.39 至 0.56 之间),显示出可接受的收敛效度。与修订后的 14 个项目的四因素模型(CFI = 0.92、RMSEA = 0.07、TLI = 0.90、SRR = 0.06)相比,原始的四因素模型显示出较低的模型拟合度(CFI = 0.6、RMSEA = 0.11、TLI = 0.55、SRR = 0.14)。缩短后的 14 项家长报告版 SPQ 在很大程度上表现出了良好的心理测量特性,并有可能减轻照顾者填写问卷的负担。
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引用次数: 0
Men's experiences of a personalised, appearance-based, facial-morphing, safer drinking intervention. 男性对个性化、基于外表、面部变形的更安全饮酒干预措施的体验。
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-02-01 Epub Date: 2024-03-26 DOI: 10.1177/13591053241238166
Ian R Burgess, Alison Owen, Keira Scholtens, Sarah Grogan

Risky alcohol consumption behaviours remain commonplace, representing a major threat to health and safety, and are especially evidenced by young university students. Consequently, new interventions targeting this high-risk group are required. The current study investigated young male university students' experiences of a personalised, appearance-based, facial morphing, safer drinking intervention. Twenty-five male student participants were recruited, aged 18-34 years. Inductive thematic analysis of data gathered whilst participants were immersed in the intervention, and thereby exposed to alcohol-aged images of their own faces, produced four primary themes: alcohol as a threat to appearance and health, motivations to protect appearance, motivational aspects of the intervention, and proposed improvements and applications. The results of the current study suggested that participants expressed intentions towards healthier consumption/maintenance of already non-risky intake, supporting the potential of the facial-morphing appearance-based approach to address risky alcohol consumption, even in high-risk groups.

危险的饮酒行为仍然普遍存在,对健康和安全构成重大威胁,在青年大学生中表现尤为明显。因此,需要针对这一高风险群体采取新的干预措施。本研究调查了年轻男大学生对个性化、基于外观、面部变形、提高饮酒安全的干预措施的体验。研究共招募了 25 名男大学生,年龄在 18-34 岁之间。当参与者沉浸在干预中并因此接触到自己面部的酒精年龄图像时,对收集到的数据进行了归纳式主题分析,得出了四个主要主题:酒精对外表和健康的威胁、保护外表的动机、干预的动机方面以及改进和应用建议。目前的研究结果表明,参与者表达了更健康的消费意向/保持已经不危险的摄入量,这支持了基于面部变形外观的方法解决危险饮酒问题的潜力,即使在高风险群体中也是如此。
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引用次数: 0
Letting go of control: A qualitative descriptive study exploring parents' perspectives on their child's transition from pediatric to adult care for inflammatory bowel disease. 放手控制:一项定性描述性研究,探索父母对其子女从炎症性肠病儿科治疗过渡到成人治疗的看法。
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-02-01 Epub Date: 2024-03-24 DOI: 10.1177/13591053241237861
Allison Bihari, Karen J Goodman, Eytan Wine, Cynthia H Seow, Karen I Kroeker

Parents of young adults with chronic disease are important stakeholders in their child's transition from pediatric to adult care. There remains a gap in characterizing the parent experience during transition. This study describes the experiences of 13 mothers of young adults with inflammatory bowel disease during their child's transition. Most parents expressed fear and sadness about their child transitioning. Themes relating to involvement in their child's adult care included: direct involvement (sub-themes: disease management; logistics of care); and indirect involvement. Reasons for involvement included themes of parent's feelings and child's circumstances. Themes of involvement were discussed in terms of previous research on parenting of children with chronic disease. We suggest that future efforts focus on improving empathy and understanding toward parents of transitioning children and providing resources on how they can best support their child during transition and transfer to adult care.

患有慢性疾病的年轻成年人的父母是其子女从儿科护理过渡到成人护理的重要利益相关者。在描述父母在过渡时期的经历方面仍然存在差距。本研究描述了 13 位患有炎症性肠病的年轻成年人的母亲在孩子过渡期间的经历。大多数家长对孩子的转归表示恐惧和悲伤。与参与子女成年后的护理有关的主题包括:直接参与(次主题:疾病管理;护理的后勤工作)和间接参与。参与的原因包括父母的感受和子女的情况。参与的主题是根据以前对慢性病患儿父母的研究进行讨论的。我们建议,今后的工作重点应是增进对转归儿童父母的同情和理解,并提供资源,帮助他们在孩子转归和转入成人护理期间为其提供最好的支持。
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引用次数: 0
The impact of a personal cancer diagnosis on adolescent and young adult cancer survivors' social connectedness: A qualitative analysis.
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-01-31 DOI: 10.1177/13591053241311977
Pooja Rao, Joel E Segel, Kristin Bingen, Katie A Devine, Allison M Scott, Laura M Koehly, Ashton M Verdery, Courtney L Rumbaugh, Emily Wasserman, Heather J Costigan, Smita Dandekar, Kevin Rakszawski, Natthapol Songdej, George F Blackall, Monali Vasekar, Seema Naik, Eugene J Lengerich, Lauren J Van Scoy

Adolescent/young adult cancer survivors (AYACS) are diagnosed with cancer between 15 and 39 years of age. Improving AYACS' survivorship quality is crucial-including improving social connectedness, a construct describing the quality, structure and function of social relationships. With better understanding of AYACS' social connectedness, network-based interventions can be developed to foster social health. This study explored how a personal cancer diagnosis impacts AYACS' social connectedness among 35 AYACS 15-25 years old. Three themes emerged through thematic analysis: (1) AYACS experience substantial heterogeneity related to social support needs; (2) AYACS leverage multiple relationships and resources when seeking support after a personal cancer diagnosis; (3) AYACS' individual experiences were unique in that some noted positive changes, whereas others noted negative changes in relationships within social networks, specifically with peers. These findings create a foundation to develop social programming, foster peer relationships, and incorporate social science methods to aid intervention development to strengthen AYACS' social connectedness.

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引用次数: 0
PTSD symptoms in war-displaced refugees diagnosed with hypertension or type 2 diabetes: Prevalence and correlates.
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-01-31 DOI: 10.1177/13591053251315890
Omar Gammoh, Mariam Al-Ameri, Sireen Abdul Rahim Shilbayeh, Alaa Aa Aljabali, Khlood Mohammad Aldossary, Hayam Ali AlRasheed

War-displaced refugees are subjected to ongoing mental and somatic health issues that impair their well-being. This study examined the prevalence and risk factors for self-reported PTSD symptoms in war-displaced Syrian refugees residing in Jordan who had been diagnosed with at least with either hypertension or type 2 diabetes. The sample included 165 women (50.3%) and 162 men (49.7%); and 186 (56.7%) were older than 50 years. Self-reported PTSD symptoms were assessed using a validated Arabic scale. Data analysis revealed that 229/327 participants (69.8%) scored above the threshold for severe PTSD symptoms. The multivariable binary logistic regression analysis demonstrated that participants reporting a lack of medications or symptoms of chronic non-specific widespread pain were at significantly higher odds for severe PTSD, respectively. Prompt logistic, medical, and psychiatric care is required to alleviate the high trauma burden in this fragile population.

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引用次数: 0
Psychological well-being factors and the likelihood of transitioning from overweight and obesity to normal weight at population level: Evidence from two cohort studies of UK adults.
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-01-31 DOI: 10.1177/13591053251313589
I Gusti Ngurah Edi Putra, Michael Daly, Eric Robinson

We examined the prospective associations between psychological well-being related factors (depressive symptoms, life satisfaction, self-efficacy) and transitioning from overweight and obesity to normal body weight (vs persistence of overweight and obesity) and change in body mass index (BMI). We used multiple baselines and follow-ups from the National Child and Development Study (NCDS; 8513 observations) and the British Cohort Study (BCS; 11,113 observations). A proportion (8%-9%) of participants with overweight and obesity (BMI ≥25) at baseline transitioned into normal weight (BMI 18.5-<25) by follow-ups. There was no evidence of better psychological well-being related factors (e.g. lower depressive symptoms) being significantly associated with a transition from overweight and obesity to normal weight or reduced BMI in each cohort and pooled cohort analyses. However, age and gender were associated with transition. At population level, better psychological well-being may not be associated with likelihood of weight loss once obesity is developed in adulthood.

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引用次数: 0
Prerequisites for self-care actions in individuals with restless legs syndrome-A deductive qualitative analysis based on the COM-B model.
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-01-31 DOI: 10.1177/13591053251315379
Elzana Odzakovic, Anna Eliasson, Paula Jansson, Maria Lagerqwist, Bengt Fridlund, Lise-Lotte Jonasson, Martin Ulander, Jonas Lind, Anders Broström

Restless Legs Syndrome (RLS) affects 3% of the world's population, causing tingling sensations primarily in the legs. Incorporating self-care activities could improve the management of RLS symptoms, yet knowledge about effective self-care actions is limited. This study employs the Capability, Opportunity, and Motivation-Behaviour (COM-B) model to explore self-care behaviours in individuals with RLS, as research in this area is sparse. Qualitative content analysis of interviews with 28 participants with RLS, 26 subcategories emerged, aligning with the COM-B model's components. The first part, Capability, highlighted the importance of being able to be in motion, while the second, Opportunity referred to situations where there was a lack of trust and guidance for self-care. The third part, Motivation, emphasised the importance of fixed routines of sleep, rest, and activity. These identified prerequisites can inform the development of screening instruments and patient-reported outcome measures to evaluate self-care needs and interventions for individuals with RLS.

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引用次数: 0
A qualitative exploration into the lived experiences of females with a gastrointestinal condition.
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-01-31 DOI: 10.1177/13591053251315685
Elizabeth Dent, Nicola Davinson, Stephanie Wilkie, Diane Stevens

Research typically addresses the experiences of those with gastrointestinal (GI) conditions using quantitative methods, even though qualitative exploration of lived experiences could provide valuable knowledge for health and policy stakeholders. The study explored the lived experiences of eight females with irritable bowel syndrome (IBS) or inflammatory bowel disease (IBD) using semi-structured interviews. Reflexive thematic analysis (RTA) identified five themes: negative emotional experiences, coping with daily life, a barrier in daily life, lived experiences of remission and lack of awareness: better informing others of GI conditions. Themes suggested complex experiences of those living with IBS or IBD, with embarrassment, negatively affected romantic relationships, and a general lack of awareness of these conditions, ameliorated by forging the experience of positive aspects including strong social networks, remission as a period of relief, and finding adaptive coping strategies.

{"title":"A qualitative exploration into the lived experiences of females with a gastrointestinal condition.","authors":"Elizabeth Dent, Nicola Davinson, Stephanie Wilkie, Diane Stevens","doi":"10.1177/13591053251315685","DOIUrl":"https://doi.org/10.1177/13591053251315685","url":null,"abstract":"<p><p>Research typically addresses the experiences of those with gastrointestinal (GI) conditions using quantitative methods, even though qualitative exploration of lived experiences could provide valuable knowledge for health and policy stakeholders. The study explored the lived experiences of eight females with irritable bowel syndrome (IBS) or inflammatory bowel disease (IBD) using semi-structured interviews. Reflexive thematic analysis (RTA) identified five themes: negative emotional experiences, coping with daily life, a barrier in daily life, lived experiences of remission and lack of awareness: better informing others of GI conditions. Themes suggested complex experiences of those living with IBS or IBD, with embarrassment, negatively affected romantic relationships, and a general lack of awareness of these conditions, ameliorated by forging the experience of positive aspects including strong social networks, remission as a period of relief, and finding adaptive coping strategies.</p>","PeriodicalId":51355,"journal":{"name":"Journal of Health Psychology","volume":" ","pages":"13591053251315685"},"PeriodicalIF":2.5,"publicationDate":"2025-01-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143076541","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Adolescent health behavior profiles and associations with mental health in a longitudinal study.
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-01-31 DOI: 10.1177/13591053251314328
Katherine M Kidwell, Rebecca L Brock, Cara Tomaso, Eric Phillips, Tiffany D James, Amy Lazarus Yaroch, Jennie L Hill, Jennifer Mize Nelson, Terry T-K Huang, W Alex Mason, Kimberly Andrews Espy, Timothy D Nelson

To characterize adolescent health behavior profiles and associations with mental health, mixture models using data from two assessment points (N = 201; Female = 53.7%, Time 1 m-age = 15.4 years; Time 2 m-age = 16.3 years) identified three distinct health behavior patterns. Profile 1 (27.9% of sample) had overall healthy behaviors (e.g. diet, physical activity, sleep), except nearly half tried e-cigarettes. Profile 2 (51.9%) had above average physical activity, minimal substance use, but diets high in sugar and below average sleep. The smallest, most concerning group (20.2%, Profile 3), had high caffeine and sugar consumption, low fruit/vegetable intake, below-average sleep duration, were physically inactive, and had the most substance use. Profile 3 adolescents had greater parent psychopathology and co-occurring and future mental health symptoms (p < 0.001). The findings provide important insights into the interrelated nature of adolescent health behaviors and their connection to mental health. Identifying high-risk groups allows for tailored, efficient intervention efforts.

{"title":"Adolescent health behavior profiles and associations with mental health in a longitudinal study.","authors":"Katherine M Kidwell, Rebecca L Brock, Cara Tomaso, Eric Phillips, Tiffany D James, Amy Lazarus Yaroch, Jennie L Hill, Jennifer Mize Nelson, Terry T-K Huang, W Alex Mason, Kimberly Andrews Espy, Timothy D Nelson","doi":"10.1177/13591053251314328","DOIUrl":"https://doi.org/10.1177/13591053251314328","url":null,"abstract":"<p><p>To characterize adolescent health behavior profiles and associations with mental health, mixture models using data from two assessment points (<i>N</i> = 201; Female = 53.7%, Time 1 <i>m</i>-age = 15.4 years; Time 2 <i>m</i>-age = 16.3 years) identified three distinct health behavior patterns. Profile 1 (27.9% of sample) had overall healthy behaviors (e.g. diet, physical activity, sleep), except nearly half tried e-cigarettes. Profile 2 (51.9%) had above average physical activity, minimal substance use, but diets high in sugar and below average sleep. The smallest, most concerning group (20.2%, Profile 3), had high caffeine and sugar consumption, low fruit/vegetable intake, below-average sleep duration, were physically inactive, and had the most substance use. Profile 3 adolescents had greater parent psychopathology and co-occurring and future mental health symptoms (<i>p</i> < 0.001). The findings provide important insights into the interrelated nature of adolescent health behaviors and their connection to mental health. Identifying high-risk groups allows for tailored, efficient intervention efforts.</p>","PeriodicalId":51355,"journal":{"name":"Journal of Health Psychology","volume":" ","pages":"13591053251314328"},"PeriodicalIF":2.5,"publicationDate":"2025-01-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143069587","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Journal of Health Psychology
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