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The role of perceived social support for outcomes for the long-term health condition hypermobile Ehlers-Danlos syndrome. 感知社会支持对长期健康状况多动型埃勒-丹洛斯综合征结果的作用。
IF 2.2 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2026-02-03 DOI: 10.1177/13591053251410690
Kimberley C Schenke, Joanna Foster, Danielle Stephens-Lewis

Social connection is a key health determinant yet remains under-researched in long-term conditions marked by isolation such as hypermobile Ehlers-Danlos Syndrome (hEDS). Individuals with hEDS are especially vulnerable due to the condition's complex and often misunderstood symptoms. This study presents the first high-powered quantitative investigation (n = 401) of perceived social support and companionship in hEDS. Using validated, theory-informed measures, we examined whether loneliness, support from family and friends, and dog guardianship predicted physical, mental, and social wellbeing outcomes. Loneliness was the most robust and consistent predictor, linked to poorer outcomes. Support from friends predicted some wellbeing indicators, whereas family support and dog guardianship had minimal predictive value. These findings have practical implications: interventions targeting loneliness and peer connection may be more effective than generalised or pet-based support. This research offers a novel contribution to understanding social determinants in chronic, stigmatised conditions, with relevance for intervention design and health policy.

社会关系是一个关键的健康决定因素,但在以过度移动的埃勒-丹洛斯综合征(hEDS)为特征的长期孤立状况下,社会关系仍未得到充分研究。由于病情复杂且经常被误解的症状,患有hEDS的个体特别容易受到伤害。本研究提出了首个高强度的定量调查(n = 401)的感知社会支持和陪伴在hEDS。使用经过验证的、有理论依据的测量方法,我们研究了孤独、家人和朋友的支持以及狗的监护是否能预测身体、心理和社会健康结果。孤独是最可靠和最一致的预测因素,与较差的结果有关。来自朋友的支持可以预测一些幸福指标,而家庭支持和狗的监护则具有最小的预测价值。这些发现具有实际意义:针对孤独和同伴关系的干预措施可能比一般或基于宠物的支持更有效。这项研究为理解慢性、污名化疾病的社会决定因素提供了新的贡献,与干预设计和卫生政策相关。
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引用次数: 0
Prevalence, severity, and risk factors of post-traumatic stress disorder among Palestinian women diagnosed with breast cancer: Cross-sectional study. 巴勒斯坦女性乳腺癌患者中创伤后应激障碍的患病率、严重程度和危险因素:横断面研究
IF 2.2 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2026-02-03 DOI: 10.1177/13591053251414461
Sana Al-Aqqad, Abdallah Alwawi, Ali Aldirawi, Hala Isleem, Aya Abo Tmam, Rasha Janajreh, Fatima Swan

Breast cancer leads to significant psychological distress, including post-traumatic stress disorder (PTSD). We determined the prevalence, severity, and risk factors of PTSD among women diagnosed with breast cancer. This cross-sectional study evaluated PTSD symptoms in 218 women with breast cancer who were recruited using convenience sampling from two oncology facilities. Data were collected using a structured self-administered questionnaire that included sociodemographic, clinical characteristics, and DSM-5 (Posttraumatic Stress Disorder Checklist, PCL-5). The prevalence of PTSD was 38%, and the mean (PCL-5 score ⩾33) was 28.7 (±12.4), ranging from 6 to 76. Around half of the participants have mild symptom severity. The findings showed that higher PTSD symptom severity was significantly associated with younger age, low education, refugee camp residence, advanced cancer stage, undergoing mastectomy, and receiving chemotherapy (p < 0.05). PTSD was widespread, and this finding has stressed the necessity for frequent PTSD screening and trauma-informed psychosocial assistance in Palestinian oncology treatment.

乳腺癌会导致严重的心理困扰,包括创伤后应激障碍(PTSD)。我们确定了乳腺癌患者中PTSD的患病率、严重程度和危险因素。本横断面研究评估了218名乳腺癌妇女的创伤后应激障碍症状,这些妇女采用方便抽样从两家肿瘤学机构招募。数据采用结构化的自我管理问卷收集,包括社会人口学、临床特征和DSM-5(创伤后应激障碍检查表,PCL-5)。PTSD的患病率为38%,平均(PCL-5评分大于或等于33)为28.7(±12.4),范围从6到76。大约一半的参与者有轻微的症状严重。研究结果显示,较高的创伤后应激障碍症状严重程度与年龄小、受教育程度低、难民营居住、癌症晚期、乳房切除术和接受化疗显著相关
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引用次数: 0
Development and initial validation of a brief measure of uncertainty in rheumatic disease. 风湿病不确定度简要测量方法的开发和初步验证。
IF 2.2 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2026-01-31 DOI: 10.1177/13591053261416359
Caleb Bolden, Lucy Finkelstein-Fox, April Jorge, Angela Wen, Christine Yeung, Claire Cook, Flavia V Castelino, Hyon K Choi, Cory Perugino, John H Stone, Elyse R Park, Corrie Stone-Johnson, Stacey Ivits, Peter A Merkel, Zachary S Wallace, Daniel L Hall

Patients with rheumatic diseases face uncertainty which is associated with decreased well-being. Current abbreviated uncertainty measures use non-statistically derived sample questions. Using a multiphase approach, we developed a brief measure of uncertainty in rheumatic disease (bURD). In Phase 1, 132 adults with rheumatic diseases completed quantitative measures of uncertainty in rheumatic disease (MUIS-S, investigator adapted), anxiety (GAD-7), depression (PHQ-8), sickness impact (SIP), sleep quality (PSQI-Item 6), and sleep duration. An exploratory factor analysis was used to simplify the uncertainty measure for internal consistency and convergent validity. In Phase 2, 475 adults with vasculitis completed the brief measure for confirmatory factor analysis and a qualitative open-ended item assessing the primary source(s) of vasculitis-related uncertainty for reflexive thematic analysis. The brief measure had high internal consistency and good convergent validity with key outcomes for individuals living with SARDs. The brief measure is a psychometrically strong measure of rheumatic related uncertainty.

风湿病患者面临不确定性,这与幸福感下降有关。目前简略的不确定度测量使用非统计导出的样本问题。采用多阶段方法,我们开发了风湿病(bURD)不确定性的简要测量方法。在第一阶段,132名患有风湿病的成年人完成了风湿病不确定性(MUIS-S,研究者适应)、焦虑(GAD-7)、抑郁(PHQ-8)、疾病影响(SIP)、睡眠质量(PSQI-Item 6)和睡眠时间的定量测量。采用探索性因子分析简化了内部一致性和收敛效度的不确定度测量。在第2阶段,475名患有血管炎的成年人完成了验证性因素分析的简短测量和一个定性开放式项目,评估血管炎相关不确定性的主要来源,用于反身性主题分析。简要测量结果具有较高的内部一致性和良好的收敛效度,适用于急性呼吸障碍患者。简要测量是风湿病相关不确定性的心理测量学上强有力的测量。
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引用次数: 0
A feasibility study for a randomised control trial on the effects of engagement with a dental anxiety online peer support group. 参与牙科焦虑在线同伴支持小组的随机对照试验的可行性研究。
IF 2.2 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2026-01-30 DOI: 10.1177/13591053261415658
Caitlin Sorrell, Neil S Coulson, Heather Buchanan

This mixed-methods study aimed to evaluate the feasibility of a Randomised Control Trial (RCT) on the effects of engagement with a Dental Anxiety (DA) Online Support Group (OSG) in an adult population. The study aimed to recruit 38 adults with DA through social media within 3 months and assumed an attrition rate of 33%. Participants completed pre- and post-measures of DA and intention to attend routine dental care. They were randomised to a wait-list control or the OSG. Semi-structured interviews were conducted with OSG participants. Forty participants were recruited within 3 months and attrition was 7.5%. Most participants were positive about the OSG, although a small number did not find it valuable. The effect size for the measure of DA indicates a sample size of 72 for a fully powered RCT. An RCT is both feasible and appropriate to further understand the effect of OSGs on DA.

这项混合方法的研究旨在评估一项随机对照试验(RCT)的可行性,以评估成年人参加牙科焦虑(DA)在线支持小组(OSG)的影响。该研究旨在通过社交媒体在3个月内招募38名患有DA的成年人,并假设流失率为33%。参与者完成了DA的前后测量和参加常规牙科护理的意向。他们被随机分配到等候名单对照组或OSG组。与OSG参与者进行了半结构化访谈。在3个月内招募了40名参与者,流失率为7.5%。大多数与会者对OSG持积极态度,尽管少数人认为它没有价值。DA测量的效应量表明,全功率RCT的样本量为72。为了进一步了解osg对DA的影响,RCT是可行的,也是合适的。
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引用次数: 0
Through mothers' eyes: A qualitative exploration of raising a child with cystic fibrosis. 通过母亲的眼睛:培养囊性纤维化儿童的定性探索。
IF 2.2 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2026-01-30 DOI: 10.1177/13591053251412174
Selin Söyünmez, Yağmur Sezer Efe, Mehmet Köse

This study aimed to explore the experiences and perceptions of mothers of children with cystic fibrosis. A qualitative phenomenological design was used. The study included 11 mothers selected via purposive sampling. Data were collected through in-depth individual interviews using a semi-structured interview form and analyzed with Braun and Clarke's six-phase thematic analysis using MAXQDA 2020. Four main themes and 15 sub-themes were identified: Living with Cystic Fibrosis, The Multidimensional Burden of Chronic Care, Psychosocial Adaptation and Coping Process, and Journey Through the Healthcare System. Cystic fibrosis creates a multifaceted burden-physical, psychological, financial, and social-affecting not only mothers but also other family members. While the diagnosis and treatment process is often challenging, some mothers experienced personal growth and developed coping strategies. Their experiences with the healthcare system varied, with both positive and negative encounters reported.

本研究旨在探讨患有囊性纤维化儿童的母亲的经历和看法。采用定性现象学设计。该研究包括通过有目的抽样选择的11位母亲。数据收集采用半结构化访谈形式进行深度个人访谈,并使用MAXQDA 2020进行Braun和Clarke的六阶段主题分析。确定了四个主题和15个副主题:囊性纤维化患者的生活,慢性护理的多维负担,心理社会适应和应对过程,以及通过医疗保健系统的旅程。囊性纤维化造成多方面的负担——身体上、心理上、经济上和社会上——不仅影响母亲,也影响其他家庭成员。虽然诊断和治疗过程往往充满挑战,但一些母亲经历了个人成长,并制定了应对策略。他们与卫生保健系统的经历各不相同,有积极的和消极的遭遇报告。
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引用次数: 0
Exploring predictors of anxiety in patients with relapsing-remitting multiple sclerosis. 探讨复发缓解型多发性硬化症患者焦虑的预测因素。
IF 2.2 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2026-01-30 DOI: 10.1177/13591053261416350
Katerina Poprelka, Theodoros Fasilis, Panayiotis Patrikelis, Maria Stefanatou, Evniki Ntinopoulou, Anastasia Verentzioti, Athanasia Alexoudi, Lampis C Stavrinou, Stefanos Korfias, Stylianos Gatzonis

This study investigated the prevalence of anxiety and examined demographic, clinical, and psychological factors associated with anxiety in 80 persons with relapsing-remitting multiple sclerosis (pwMS) compared to 80 matched healthy controls. Disease severity was assessed using the Expanded Disability Status Scale (EDSS). Participants completed validated questionnaires measuring anxiety, depression, alexithymia, psychological resilience, and stigma. Relative to controls, pwMS exhibited significantly higher levels of anxiety, depression, and alexithymia, with no significant differences in resilience. Hierarchical regression analyses identified depression and stigma as the strongest predictors of anxiety. Given the high correlation between depression and anxiety, a secondary analysis excluding depression revealed stigma and resilience as significant predictors. These results indicate that anxiety in pwMS is influenced by multiple psychological and social factors beyond depression. Based on these findings, the study suggests that interventions addressing both psychological and social dimensions may be important for managing anxiety in this population.

本研究调查了80名复发-缓解型多发性硬化症(pwMS)患者的焦虑患病率,并检查了与焦虑相关的人口学、临床和心理因素,与80名匹配的健康对照进行了比较。使用扩展残疾状态量表(EDSS)评估疾病严重程度。参与者完成了有效的问卷,测量焦虑、抑郁、述情障碍、心理弹性和耻辱感。与对照组相比,pwMS患者表现出更高水平的焦虑、抑郁和述情障碍,但在恢复力方面没有显著差异。分层回归分析发现,抑郁和病耻感是焦虑的最强预测因子。考虑到抑郁和焦虑之间的高度相关性,一项排除抑郁的二次分析显示,耻辱和恢复力是重要的预测因素。这些结果表明,pwMS患者的焦虑除受抑郁因素影响外,还受多种心理和社会因素的影响。基于这些发现,研究表明,针对心理和社会层面的干预措施可能对控制这一人群的焦虑很重要。
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引用次数: 0
The effectiveness of psychological interventions for older adults with hip fractures: A systematic review and meta-analysis. 心理干预对老年人髋部骨折的有效性:系统回顾和荟萃分析。
IF 2.2 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2026-01-30 DOI: 10.1177/13591053251414003
Jian Song, Chun Huang, Xueyi Wei, Zirong Tao, Lingli Peng

This study systematically assessed the effectiveness of theory-based psychological interventions on psychosocial outcomes and physical function in older adults with hip fractures. We searched six English and three Chinese databases, grey literature, and reference lists for records up to January 2025, identifying randomised controlled trials (RCTs) or controlled clinical trials (CCTs) reporting relevant outcomes (e.g. anxiety, depression, and hip joint function). Meta-analysis was performed when feasible; otherwise, narrative synthesis was used. Sixteen studies (n = 1558) were included, with 13 suitable for meta-analysis. The results indicated that psychological interventions were associated with improvements in psychosocial outcomes, although no statistically significant effect was observed on physical function. Subgroup analysis suggested that patients aged ≤ 70 years may experience greater improvement in anxiety, whereas those older than 70 showed a more pronounced trend in depression reduction. Mindfulness-based interventions also demonstrated potential for alleviating symptoms of anxiety and depression. However, due to methodological limitations and the risk of bias in the included studies, the current evidence requires further validation to strengthen its validity. Future research should prioritise high-quality RCTs with clearly defined intervention durations, adopt multimodal intervention approaches, and enhance the assessment of physical function and clinically relevant outcomes to accumulate more robust evidence.

本研究系统地评估了基于理论的心理干预对老年髋部骨折患者心理社会结局和身体功能的有效性。我们检索了截至2025年1月的6个英文和3个中文数据库、灰色文献和参考文献列表,确定了报告相关结果(如焦虑、抑郁和髋关节功能)的随机对照试验(rct)或对照临床试验(cct)。可行时进行meta分析;否则,采用叙事综合。纳入16项研究(n = 1558),其中13项适合meta分析。结果表明,心理干预与心理社会结果的改善有关,尽管在生理功能方面没有观察到统计学上显著的影响。亚组分析表明,年龄≤70岁的患者在焦虑方面可能会有更大的改善,而70岁以上的患者在抑郁方面的减少趋势更为明显。以正念为基础的干预也显示出减轻焦虑和抑郁症状的潜力。然而,由于方法学的局限性和纳入研究的偏倚风险,目前的证据需要进一步验证以加强其有效性。未来的研究应优先考虑具有明确干预时间的高质量rct,采用多模式干预方法,并加强对身体功能和临床相关结果的评估,以积累更有力的证据。
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引用次数: 0
Using the behaviour change intervention ontology to examine the inclusion, delivery and experience of behaviour change techniques in a youth health promotion programme. 使用行为改变干预本体论来检查青年健康促进方案中行为改变技术的包含、实施和经验。
IF 2.2 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2026-01-30 DOI: 10.1177/13591053251408386
Kristina Pfeffer, Malte Nejst Larsen, Chiara Cimenti, Peter Krustrup, Nikos Ntoumanis

Adolescents from low socioeconomic backgrounds face disproportionate risks to health and well-being, underscoring the need for targeted, evidence-based interventions. Systematic extraction of active ingredients in interventions can inform the design of more effective interventions. This study aims to (1) identify Behaviour Change Techniques (BCTs) and Mechanisms of Actions (MoAs) used to change behaviour in the '11 for Health' programme, (2) interview programme receivers and deliverers exploring their experiences with BCTs and MoAs. Twenty-four BCTs were coded in the manual with 10 associated MoAs. Thematic analysis of interviews generated 16 codes for adolescents and 17 for teachers, each mapped onto BCTs. Adolescents highlighted, 'social support' and 'agree outcome goal', while teachers emphasised 'social support' and 'information about health consequences'. Further research is needed to substantiate whether potential refinements to the programme and inclusion of new BCTs, as identified in the interviews, could lead to enhanced effectiveness and long-term impact of the programme.Trial registration: This is a secondary analysis of a clinical trial, which has been registered at: ClinicalTrials.gov ID: NCT03647007.

社会经济背景较低的青少年在健康和福祉方面面临着不成比例的风险,因此需要有针对性的循证干预措施。系统地提取干预措施中的有效成分可以为设计更有效的干预措施提供信息。本研究旨在(1)确定“11健康”项目中用于改变行为的行为改变技术(bct)和行动机制(MoAs),(2)采访项目接受者和提供者,探讨他们使用bct和MoAs的经验。24个bct在手册中编码,并附有10个相关的moa。访谈的专题分析产生了16个青少年代码和17个教师代码,每个代码都映射到btc上。青少年强调“社会支持”和“同意的结果目标”,而教师强调“社会支持”和“关于健康后果的信息”。需要进一步的研究来证实在访谈中确定的对方案的潜在改进和纳入新的btc是否可以提高方案的有效性和长期影响。试验注册:这是对临床试验的二次分析,该试验已在ClinicalTrials.gov上注册,ID: NCT03647007。
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引用次数: 0
Insomnia and short video addiction in firefighters: A chain mediation and network analysis of social support and flourishing. 消防员失眠与短视频成瘾:社会支持与繁荣的连锁中介与网络分析。
IF 2.2 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2026-01-30 DOI: 10.1177/13591053251409900
Ruifeng Liu, Hanbin Yu, Feifei Li, Yi Hou, Xinli Chi

Guided by self-determination theory, this study investigated the bidirectional relationship between insomnia and short video addiction as well as their associations with mental health symptoms among Chinese firefighters during the organizational restructuring period (2018-2023). Utilizing a cross-sectional design with data from 3657 firefighters, LV-SEM was conducted. The findings revealed that both insomnia and short video addiction were directly associated with mental health symptoms and were associated with mental health symptoms through a chain mediation involving perceived social support and flourishing. Network analysis also demonstrated significant positive associations between insomnia and short video addiction, as well as between perceived social support and flourishing, with insomnia showing a stronger association with mental health symptoms. These results provide important implications for developing mental health interventions for firefighters, suggesting that priority be given to regulating short video use, enhancing social support, promoting flourishing, and improving sleep quality to comprehensively improve firefighters' mental health.

本研究以自我决定理论为指导,探讨了2018-2023年组织重组时期我国消防队员失眠与短视频成瘾的双向关系及其与心理健康症状的关系。利用来自3657名消防员的横截面设计数据,LV-SEM进行了研究。研究结果表明,失眠和短视频成瘾都与心理健康症状直接相关,并通过感知社会支持和繁荣的连锁中介与心理健康症状相关。网络分析还表明,失眠与短视频成瘾之间,以及感知到的社会支持与繁荣之间存在显著的正相关,失眠与心理健康症状之间存在更强的关联。建议从规范短视频使用、加强社会支持、促进繁荣、改善睡眠质量等方面入手,全面改善消防员心理健康。
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引用次数: 0
Social and healthcare assistance needs in Italian transgender and gender diverse young adults: A qualitative study. 意大利跨性别和性别多样化年轻人的社会和保健援助需求:一项定性研究。
IF 2.2 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2026-01-30 DOI: 10.1177/13591053251410399
Veronica Della Casa, Elena Trombini, Marina Miscioscia, Paola Rigo, Miriam Battistini, Federica Andrei

Gender incongruence increasingly leads individuals to seek gender-affirming hormone therapy and surgeries. In Italy, however, general healthcare services often lack the specialization needed to address the specific needs. With a person-centered approach and a qualitative methodology, this study explores individual perspectives on promoting transgender and gender diverse people's well-being and highlights the relationship between gender incongruence, psychosocial health, and healthcare access. Seventeen participants aged 19-31 years old who experienced gender incongruence or gender dysphoria and sought medical or psychological support for hormone therapy attended a semi-structured interview processed through Thematic Analysis. Findings revealed significant barriers to adequate healthcare and social support, negatively impacting participants' well-being. Mediating factors such as peer awareness, family acceptance, and inclusive education emerged as protective. The study also discusses broader societal consequences of insufficient support and presents useful strategies to develop affirmative and inclusive practices aimed at improving access to care and psychosocial outcomes.

性别不一致越来越多地导致个人寻求性别确认激素治疗和手术。然而,在意大利,一般保健服务往往缺乏满足具体需求所需的专业化。本研究采用以人为本的方法和定性方法,探讨了促进跨性别和性别多元化人群福祉的个人观点,并强调了性别不一致、社会心理健康和医疗保健获取之间的关系。17名年龄在19-31岁之间,经历过性别不一致或性别不安并寻求激素治疗的医学或心理支持的参与者参加了通过主题分析处理的半结构化访谈。调查结果显示,在获得充分的医疗保健和社会支持方面存在重大障碍,对参与者的福祉产生了负面影响。同伴意识、家庭接纳和全纳教育等中介因素发挥了保护作用。该研究还讨论了支持不足的更广泛的社会后果,并提出了有用的战略,以制定积极和包容的做法,旨在改善获得护理和心理社会结果的机会。
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引用次数: 0
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Journal of Health Psychology
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