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'Don't let it hold you back' - The experience of transition to adulthood in young people with primary ciliary dyskinesia: An interpretative phenomenological analysis. 别让它拖你后腿"--原发性睫状肌运动障碍青少年向成年过渡的经历:解释性现象学分析。
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2024-08-01 Epub Date: 2024-01-28 DOI: 10.1177/13591053231223912
Rhys Dore, Isabella E Nizza, Hannah M Mitchison, Celine Lewis

Primary ciliary dyskinesia (PCD) is a rare, chronic genetic condition with variable features arising from motile cilia dysfunction, including recurrent respiratory infections, sinonasal disease, reduced hearing, infertility and situs inversus. The aim of the study was to understand the experiences of young people with PCD as they transition into adulthood and adult healthcare services. An interpretative phenomenological analytical method was applied. Semi-structured interviews were conducted with three participants aged 18-24 years. Four interconnected group experiential themes were identified: (1) reconceptualising a stigmatised identity, (2) sharing the journey to independence, (3) entering adulthood with newfound autonomy, (4) anticipating an uncertain future. Overall, we found that transition for young people with PCD presents as a complex period marked by identity-formation, creating systems of support and becoming an autonomous adult. Facilitation of personalised and integrated approaches to care should be prioritised. Our findings are important to help health professionals provide appropriate, anticipatory support.

原发性纤毛运动障碍(PCD)是一种罕见的慢性遗传病,因纤毛运动功能障碍而表现出多种特征,包括反复呼吸道感染、鼻窦疾病、听力下降、不育和坐骨神经反位。本研究旨在了解患有 PCD 的年轻人在向成年和成人医疗服务过渡时的经历。研究采用了解释现象学分析方法。研究人员对三位 18-24 岁的参与者进行了半结构式访谈。确定了四个相互关联的群体体验主题:(1) 重新认识被污名化的身份,(2) 分享走向独立的历程,(3) 以新发现的自主性步入成年,(4) 预见不确定的未来。总之,我们发现,患有 PCD 的青少年的过渡时期是一个复杂的时期,其特点是身份形成、创建支持系统和成为自主的成年人。应优先考虑促进个性化的综合护理方法。我们的研究结果对于帮助医疗专业人员提供适当的预见性支持非常重要。
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引用次数: 0
Is fear of disease progression associated with antiretroviral therapy adherence in persons with HIV/AIDS? 对疾病恶化的恐惧是否与艾滋病毒/艾滋病患者坚持抗逆转录病毒疗法有关?
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2024-08-01 Epub Date: 2024-01-22 DOI: 10.1177/13591053231224177
Chan-Woo Yeom, Hyeju Ha, Bong-Jin Hahm, Sun Hee Lee, Nam Joong Kim, Eun-Jung Shim

We examined the mediating role of depression and anxiety on the relationship between fear of disease progression (FoP) and antiretroviral therapy (ART) adherence and the moderating role of social support in the FoP-depression/anxiety-ART adherence relationship in persons with HIV/AIDS (PWHA). 202 PWHA completed self-report measures. Simple mediation and moderated mediation analyses were performed. FoP was directly and negatively associated with ART adherence, and the mediating role of depression in this relationship was significant. Indirect effect of FoP mediated by anxiety on ART adherence was not significant. The moderating effect of social support was significant in the FoP-depression pathway, while the indirect effect of FoP on ART adherence mediated by depression was greatest at a higher level of social support and lower level of FoP. The results suggest the relevance of high FoP and depression-mediated FoP in ART adherence and social support may attenuate the negative impact of FoP.

我们研究了抑郁和焦虑对艾滋病病毒感染者/艾滋病患者(PWHA)疾病进展恐惧(FoP)和坚持抗逆转录病毒疗法(ART)之间关系的中介作用,以及社会支持在疾病进展恐惧-抑郁/焦虑-坚持抗逆转录病毒疗法关系中的调节作用。202 名艾滋病感染者完成了自我报告测量。研究人员进行了简单中介分析和调节中介分析。FoP与坚持抗逆转录病毒疗法直接负相关,抑郁在这种关系中的中介作用显著。焦虑对坚持抗逆转录病毒疗法的间接影响不显著。在 FoP-抑郁路径中,社会支持的调节作用显著,而在较高的社会支持水平和较低的 FoP 水平下,由抑郁介导的 FoP 对坚持抗逆转录病毒疗法的间接影响最大。结果表明,在坚持抗逆转录病毒疗法的过程中,高FoP和抑郁介导的FoP具有相关性,而社会支持可能会减轻FoP的负面影响。
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引用次数: 0
Cross-country assessment of the unique contributions of psychological factors to vaccination: Perspectives on the COVID-19 pandemic. 跨国评估心理因素对疫苗接种的独特贡献:对 COVID-19 大流行的看法。
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2024-07-31 DOI: 10.1177/13591053241266592
Peter Adu, Tosin Popoola, Naved Iqbal, Anja Roemer, Sunny Collings, Clive Aspin, Oleg N Medvedev, Colin R Simpson

We have identified the most relevant and significant psychological factors in relation to COVID-19 vaccination attitudes in Ghana, Germany, New Zealand and India. This study recruited 1822 participants from the general populations of India (n = 411), New Zealand (n = 413), Ghana (n = 523) and Germany (n = 475) to participate in a cross-sectional online survey. After controlling for the country of residence, individual psychological factors played a significant role in shaping attitudes towards COVID-19 vaccination. The results also revealed strong direct predictors that explained significant portions of the variance in the COVID-19 vaccination attitudes. Positive affect emerged as the strongest contributor in Ghana (7%), while self-compassion strongly influenced COVID-19 vaccination attitudes in India (66%). Dispositional optimism was the strongest predictor in New Zealand (5%). In Germany, compassion towards others was the strongest positive predictor (2%), while psychological distress had a strong negative impact (3%). Results highlight the importance of promoting emotional well-being to enhance vaccination coverage.

我们确定了加纳、德国、新西兰和印度与 COVID-19 疫苗接种态度最相关和最重要的心理因素。本研究从印度(n = 411)、新西兰(n = 413)、加纳(n = 523)和德国(n = 475)的普通人群中招募了 1822 名参与者参与横断面在线调查。在对居住国进行控制后,个人心理因素在影响人们对 COVID-19 疫苗接种的态度方面发挥了重要作用。结果还显示,一些强有力的直接预测因素解释了 COVID-19 疫苗接种态度中的很大一部分变异。在加纳,积极情绪的影响最大(7%),而在印度,自我同情对 COVID-19 疫苗接种态度的影响最大(66%)。在新西兰,倾向性乐观是最强的预测因素(5%)。在德国,对他人的同情是最强的积极预测因素(2%),而心理困扰则有很强的消极影响(3%)。研究结果凸显了促进情绪健康对提高疫苗接种覆盖率的重要性。
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引用次数: 0
Cross-cultural validation of the Jenkins Sleep Scale in Spanish-speaking countries. 詹金斯睡眠量表在西班牙语国家的跨文化验证。
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2024-07-30 DOI: 10.1177/13591053241261349
Luis Palao-Loayza, Daniel E Yupanqui-Lorenzo, Tania Arauco-Lozada, Tomás Caycho-Rodríguez, Heber Domingo Seminario Ortiz, Marlon Elías Lobos Rivera, Manuel Antonio Cardoza-Sernaqué, Luis Alexander Pulido-Joo, Víctor Pulido-Capurro, Eduardo Cárcamo-Zepeda, María-Isabel Mendoza-Sierra, Ma de Lourdes Cuellar-Hernández, Alonso Torres López, Julio Torales, Iván Barrios

The study aimed to validate the Jenkins Sleep Scale (JSS-4) in six Spanish-Speaking countries. A total of 1726 people participated and were distributed between men (32.4%) and women (67.6%). Confirmatory factor analysis confirmed the unidimensional structure and high reliability of the JSS-4 overall (α = 0.85, ω = 0.81) and within each country. The invariance analysis revealed that JSS-4 exhibited complete invariance across countries, thus establishing a robust foundation for inter-group comparisons. Interestingly, a comparative analysis revealed significant differences in the average levels of sleep difficulties, with particularly high rates in Spain and Chile. Item Response Theory (IRT) showed sufficient discrimination parameters for all items, and a correlation of 0.998 between Confirmatory Factor Analysis (CFA) and IRT highlighted the robustness and reliability of the results obtained. In summary, JSS-4 exhibits strong evidence of validity and consistency in measurement invariance across the six countries.

该研究旨在六个西班牙语国家验证詹金斯睡眠量表(JSS-4)。共有 1 726 人参与,其中男性占 32.4%,女性占 67.6%。确认性因子分析证实了 JSS-4 的单维结构和高可靠性(α = 0.85,ω = 0.81),以及在每个国家内的可靠性。不变性分析表明,JSS-4 在不同国家之间表现出完全的不变性,从而为组间比较奠定了坚实的基础。有趣的是,比较分析表明,睡眠困难的平均水平存在显著差异,西班牙和智利的睡眠困难发生率尤其高。项目反应理论(IRT)显示所有项目都有足够的区分参数,确认性因子分析(CFA)和 IRT 之间的相关性为 0.998,这突出表明了所得结果的稳健性和可靠性。总之,JSS-4 在六个国家的测量不变性方面表现出很强的有效性和一致性。
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引用次数: 0
The experience of self-compassion training among NHS healthcare professionals. 英国国家医疗服务系统(NHS)医护人员的自我同情培训体验。
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2024-07-30 DOI: 10.1177/13591053241267041
Sarah Wason, Ceri Sims

Self-compassion in healthcare professionals (HCPs) is under-researched and undervalued. Promoting self-compassion within healthcare could have far-reaching benefits. This research study explores the experience of four NHS HCPs receiving a single short self-compassion training, with recommended at-home practices completed over 4 weeks. Subsequently, semi-structured interviews gathered information about their experience, resultant wellbeing and any impact on colleagues and patients. The main themes emerging from analysis of the interviews were motivation, permission and prioritisation. The motivation to practise self-compassion, and share this learning resulted from improved understanding of its potential benefits. Permission ties in with the notion of common humanity in self-compassion and its impact on negative self-talk and negative attitudes to self-compassion in a workplace. Prioritisation acknowledges the challenges for HCPs of investing time in self-compassion practice despite overstretched HCP workloads. Further consideration of these themes may help to better target any future research into strategies for enabling self-compassion among HCPs.

对医疗保健专业人员(HCPs)的自我同情研究不足,其价值也被低估。在医疗保健领域促进自我同情会带来深远的益处。本研究探讨了四名英国国家医疗服务系统(NHS)医护人员在接受一次短期自我同情培训后的体验,并建议他们在 4 周内完成居家练习。随后,半结构式访谈收集了有关他们的经历、由此产生的幸福感以及对同事和患者的影响的信息。对访谈进行分析后得出的主要主题是动机、许可和优先级。对其潜在益处有了更深入的了解,就有了练习自我同情和分享学习成果的动力。允许与自我同情中的共同人性概念及其对消极的自我对话和工作场所中对自我同情的消极态度的影响有关。优先考虑承认了卫生保健人员在工作负担过重的情况下仍要投入时间进行自我同情练习所面临的挑战。对这些主题的进一步考虑可能有助于更好地确定未来对促进高级保健人员自我同情策略的研究目标。
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引用次数: 0
The experience of living with vitiligo in Nigeria: A participatory Interpretative Phenomenological Analysis. 尼日利亚白癜风患者的生活经历:参与式解释现象学分析。
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2024-07-30 DOI: 10.1177/13591053241261684
Nick Taylor, Ogo Maduesesi, Vasilis S Vasiliou, Andrew R Thompson

Vitiligo is a visible depigmenting skin condition, particularly noticeable on Black skin. There is widespread misunderstanding of the condition. Using a participatory form of Interpretative Phenomenological Analysis (IPA), we conducted eight semi-structured interviews with Nigerians living with vitiligo. Participants described their initial attempts to understand the condition, which typically drew on both traditional illness beliefs, religious influences, and the biomedical disease model. All participants reported experiencing marked stigmatization and discrimination. Participants experienced distress associated with thoughts about the personal meaning of the disease including its impact on their appearance and from concerns about anticipated and direct discrimination. Despite the wide-ranging impact, the participants' narratives also contained references to the development of strategies that maintained wellbeing. This study provides valuable insights into the role of faith and traditional beliefs in both the experience and management of vitiligo in Nigeria. These insights can be used to develop individual and community interventions.

白癜风是一种明显的脱色性皮肤病,在黑人皮肤上尤为明显。人们对这种疾病普遍存在误解。我们采用参与式解释现象学分析法(IPA),对患有白癜风的尼日利亚人进行了八次半结构化访谈。参与者描述了他们最初试图了解这种疾病的过程,这些过程通常借鉴了传统疾病信仰、宗教影响和生物医学疾病模型。所有参与者都报告说经历过明显的羞辱和歧视。参与者在思考疾病对个人的意义(包括对外貌的影响)时,以及在担心预期和直接的歧视时,都会感到痛苦。尽管受到了广泛的影响,但参与者的叙述中也提到了维持健康的策略发展。这项研究对尼日利亚人的信仰和传统信念在白癜风的经历和管理中的作用提供了宝贵的见解。这些见解可用于制定个人和社区干预措施。
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引用次数: 0
The reciprocal relationship between prosocial behaviour and self-perceived physical health: The role of positive affect and openness to experience. 亲社会行为与自我感觉身体健康之间的相互关系:积极情绪和经验开放性的作用。
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2024-07-30 DOI: 10.1177/13591053241267095
Xiaojun Yang, Peng Sun, Xiaonan Yao, Yu Kou

The present study used a cross-lagged design to explore the bidirectional relationship between adolescents' prosocial behaviour and self-perceived physical health and to explore the mediating role of positive affect and the moderating role of openness to experience. A total of 1525 middle school students (Mage = 12.41, 47% male) in northern China were surveyed for 3 years. The results showed the following: (1) prosocial behaviour at T1 positively predicted self-perceived physical health at T3; and vice versa; and (2) this observed relation between prosocial behaviour and self-perceived physical health was explained by positive affect; (3) the mediating role of positive affect on the path from prosocial behaviour at T1 to self-perceived physical health at T3 was observed only among adolescents with high openness traits. This finding verified the protective effect of prosocial behaviour on the healthy development of the actor.

本研究采用交叉滞后设计,探讨青少年亲社会行为与自我感觉身体健康之间的双向关系,并探讨积极情绪的中介作用和经验开放性的调节作用。研究共对中国北方的 1525 名中学生(年龄=12.41,男性占 47%)进行了为期 3 年的调查。结果显示(1)T1的亲社会行为正向预测T3的自我感觉身体健康,反之亦然;(2)亲社会行为与自我感觉身体健康之间的关系由积极情感解释;(3)从T1的亲社会行为到T3的自我感觉身体健康的路径上,只有在高开放性特质的青少年中观察到积极情感的中介作用。这一发现验证了亲社会行为对行为者健康成长的保护作用。
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引用次数: 0
Does sunlight exposure predict next-night sleep? A daily diary study among U.S. adults. 日光照射能预测第二天晚上的睡眠吗?一项针对美国成年人的每日日记研究。
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2024-07-30 DOI: 10.1177/13591053241262643
Austen R Anderson, Lindsey Ostermiller, Mallory Lastrapes, Lauren Hales

Poor sleep is becoming increasingly prevalent and is associated with adverse health outcomes. Sunlight exposure may improve sleep by regulating circadian rhythms, increasing vitamin D, and influencing melatonin production. However, research on the sunlight-sleep association is limited, especially outside of cross-sectional designs. This study examined associations between daily self-reported sunlight exposure and next-night sleep quality in 103 adults for up to 70 days. The timing of sunlight exposure predicted next-night sleep quality. Specifically, morning sunlight exposure, relative to no sunlight, predicted better sleep quality based on responses to the brief Pittsburg Sleep Quality Index. Duration of sunlight exposure was generally not associated with sleep quality. Morning sunlight may regulate circadian rhythms, subsequently improving sleep. Findings have potential implications for sleep interventions and daylight savings time policies. Future research should test whether morning sunlight exposure can enhance the effectiveness of sleep interventions.

睡眠质量差的现象越来越普遍,并与不良的健康后果有关。日光照射可通过调节昼夜节律、增加维生素 D 和影响褪黑激素的分泌来改善睡眠。然而,有关阳光与睡眠关系的研究非常有限,尤其是在横断面设计之外。这项研究调查了103名成年人在长达70天的时间里每天自我报告的日照时间与隔夜睡眠质量之间的关系。日照时间预示着第二天晚上的睡眠质量。具体来说,根据对简短的匹兹堡睡眠质量指数(Pittsburg Sleep Quality Index)的反应,早上晒太阳比不晒太阳预示着更高的睡眠质量。日照时间一般与睡眠质量无关。晨光可调节昼夜节律,从而改善睡眠。研究结果对睡眠干预措施和夏令时政策具有潜在影响。未来的研究应测试晨光照射是否能提高睡眠干预的效果。
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引用次数: 0
Effectiveness of yoga and laughter yoga in improving psychological resilience of mothers with babies hospitalized in neonatal intensive care unit. 瑜伽和笑瑜伽对改善新生儿重症监护室住院婴儿母亲的心理适应能力的效果。
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2024-07-27 DOI: 10.1177/13591053241262006
Zerrin Çiğdem, Emine Sarikamiş Kale, Tuba Koç Özkan

This randomized controlled study aimed to determine the effectiveness of yoga and laughter yoga approaches in enhancing psychological resilience of mothers with babies hospitalized in the neonatal intensive care unit. The Mothers were randomized into three groups as yoga, laughter yoga, and control groups. The mothers received a total of 10 yoga/laughter yoga sessions for 45 minutes twice a week as home-based exercises. Depression, anxiety, stress, and psychological resilience outcomes were evaluated at baseline and after 5th and 10th sessions. The study was completed with 60 mothers including 20 mothers in the yoga group, 19 mothers in the laughter yoga group, and 21 mothers in the control group. There were statistically significant differences between the groups in terms of depression, anxiety, stress, and psychological resilience after 5th and 10th sessions. Yoga and laughter yoga was effective for increasing psychological resilience and alleviating depression, anxiety, stress.

这项随机对照研究旨在确定瑜伽和大笑瑜伽方法在增强新生儿重症监护室住院婴儿母亲的心理复原力方面的有效性。母亲们被随机分为三组,即瑜伽组、欢笑瑜伽组和对照组。母亲们每周两次在家练习瑜伽/大笑瑜伽,每次 45 分钟,共 10 节。抑郁、焦虑、压力和心理复原力结果分别在基线、第 5 次和第 10 次课程后进行评估。这项研究共有 60 位母亲参加,其中瑜伽组 20 位母亲,大笑瑜伽组 19 位母亲,对照组 21 位母亲。在第 5 次和第 10 次课程后,各组在抑郁、焦虑、压力和心理复原力方面的差异有统计学意义。瑜伽和欢笑瑜伽能有效增强心理复原力,缓解抑郁、焦虑和压力。
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引用次数: 0
Psychological experiences of Druze women with breast cancer. 患乳腺癌的德鲁兹妇女的心理经历。
IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2024-07-27 DOI: 10.1177/13591053241262640
Avital Gershfeld-Litvin, Itay Ressler, Khola Daher, Samer Halabi

The purpose of this study was to explore the experiences of Druze women who were diagnosed with breast cancer. Semi-structured interviews were conducted with nine Druze women. Inductive thematic analysis was used to analyze the data and three themes were generated. The first was "cancer discourse": participants utilized codeswitching and medical jargon in their rhetoric, in a manner that seemed to imply difficulty to speak directly about their experiences. The second was "self-image": the cancer and its treatments seem to have had an impact on participants' body image and overall sense of femininity. The third was "coping": sense and meaning-making as well as faith and family were identified as major coping mechanisms. Findings suggest a need for cultural competence in psychological interventions for breast cancer survivors.

本研究旨在探讨被诊断出患有乳腺癌的德鲁兹妇女的经历。研究人员对九名德鲁兹妇女进行了半结构式访谈。采用归纳式主题分析法对数据进行分析,并产生了三个主题。第一个主题是 "癌症话语":参与者在言辞中使用了代码转换和医学术语,这种方式似乎意味着她们很难直接谈论自己的经历。第二个主题是 "自我形象":癌症及其治疗似乎影响了参与者的身体形象和整体女性感。第三是 "应对":感觉和意义的创造以及信仰和家庭被认为是主要的应对机制。研究结果表明,在对乳腺癌幸存者进行心理干预时需要具备文化能力。
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引用次数: 0
期刊
Journal of Health Psychology
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