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Effects of the After Deployment Adaptive Parenting Tools Intervention on Social Functioning in Veterans and Their Partners: A Pilot Study 部署后适应性育儿工具干预对退伍军人及其伴侣社会功能的影响:一项试点研究
IF 2.6 3区 心理学 Q1 FAMILY STUDIES Pub Date : 2025-06-12 DOI: 10.1111/famp.70046
Petrus G. J. Janssen, Sabine Stoltz, Antonius H. N. Cillessen, Elisa van Ee

Deployment-related PTSD can negatively impact social functioning in veteran families. Individualized PTSD-focused therapy does not consistently lead to improved social functioning. Addressing social difficulties more directly in these families is thus important. The goal of this study was to conduct an observational pilot of the clinical effectiveness of after deployment adaptive parenting tools (ADAPT), a parenting intervention for veterans and their partners. Participants were recruited at Psychotrauma Center South Netherlands of Reinier van Arkel, an institute of psychiatric care in The Netherlands. Social functioning (family functioning, parent reported child functioning, parental attachment) was assessed at baseline, 4-month post-baseline (end-of-treatment), and 10-month post-baseline. Veteran outcomes in ADAPT were compared with outcomes for veterans undergoing treatment as usual (TAU) consisting of individualized PTSD treatment. Emotion regulation and mentalization were tested as possible mediators of effect. Results showed a direct and sustained reduction in perceived posttreatment family dysfunction in veterans, and preliminary evidence of a decrease in perceived family dysfunction in partners at 10-month post-baseline. Although veterans in both ADAPT and TAU groups received PTSD therapy and reported a reduction in PTSD symptoms, only the ADAPT group showed enhanced family functioning. No significant effects were found on child functioning and parental attachment. No mediation effects were found for emotion regulation and mentalization. Low statistical power may explain the lack of significant findings. This study provides initial evidence of ADAPT's clinical effectiveness in improving family functioning, yet future research should examine the mediating processes, preferably using longer time frames with more follow-up measurements.

与部署相关的创伤后应激障碍会对退伍军人家庭的社会功能产生负面影响。以创伤后应激障碍为重点的个体化治疗并不总是能改善社会功能。因此,更直接地处理这些家庭中的社会困难是很重要的。本研究的目的是对调适性育儿工具——调适性育儿工具对退伍军人及其伴侣的临床干预效果进行观察性试点研究。参与者是在荷兰精神病护理研究所——南荷兰Reinier van Arkel的精神创伤中心招募的。社会功能(家庭功能、父母报告的儿童功能、父母依恋)在基线、基线后4个月(治疗结束)和基线后10个月进行评估。在ADAPT中退伍军人的结果与接受常规治疗(TAU)的退伍军人的结果进行比较,包括个体化的创伤后应激障碍治疗。情绪调节和心理化作为可能的中介进行了测试。结果显示,退伍军人治疗后感知到的家庭功能障碍有直接和持续的减少,初步证据表明,在基线后10个月,伴侣感知到的家庭功能障碍也有减少。尽管ADAPT组和TAU组的退伍军人都接受了PTSD治疗,并报告PTSD症状减轻,但只有ADAPT组表现出增强的家庭功能。未发现对儿童功能和父母依恋有显著影响。情绪调节与心理化无中介作用。低统计能力可能解释了缺乏重要发现的原因。本研究为ADAPT在改善家庭功能方面的临床有效性提供了初步证据,但未来的研究应检查中介过程,最好使用更长的时间框架和更多的随访测量。
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引用次数: 0
Parenting Self-Efficacy Within the First Year Postpartum in Non-Birthing Parents: A Scoping Review 非生育父母产后一年内的父母自我效能:一项范围回顾
IF 2.6 3区 心理学 Q1 FAMILY STUDIES Pub Date : 2025-06-12 DOI: 10.1111/famp.70048
Justine Dol, Jennifer A. Parker, Christine T. Chambers, Phillip Joy, Patricia Leahy-Warren, Cindy-Lee Dennis, Marilyn Macdonald, Kristy Hancock

Parenting self-efficacy is a parent's belief in their ability to execute tasks related to raising children and providing them with care to ensure healthy development. While considerable research has been completed with birthing parents, the breadth of work that has been conducted on non-birthing parents is not known. The objective of this scoping review was to identify and analyze the literature on parenting self-efficacy in non-birthing parents within the first year postpartum. The search was completed on October 28, 2024. All qualitative and quantitative study designs were included. Titles, abstracts, and full text were screened by two reviewers. Overall, 125 studies reported on parenting self-efficacy in non-birthing parents. Over two-thirds (69.6%) of studies were published since 2011, with most being quantitative (91.2%). Only four studies included 2SLGBTQAA+ parents, only one of which reported on parenting self-efficacy differentiated by group. Over half (56.0%) of the studies used the term self-efficacy, followed by competence (28.0%) and confidence (16.0%). The measurement tool that was most used was the Parenting Sense of Competence Scale and the most common co-reported outcomes were depression and social support. In conclusion, while the field of research on parenting self-efficacy in non-birthing parents is growing, there is also a dearth of evidence on 2SLGTBQAA+ parents' parenting self-efficacy.

父母自我效能感是父母对自己执行与抚养孩子有关的任务并为他们提供照顾以确保他们健康成长的能力的信念。虽然对生育父母的大量研究已经完成,但对非生育父母进行的工作的广度尚不清楚。本综述的目的是识别和分析有关产后一年内未生育父母的育儿自我效能的文献。搜寻工作于2024年10月28日完成。包括所有定性和定量研究设计。题目、摘要和全文由两位审稿人筛选。总体而言,125项研究报告了非生育父母的育儿自我效能感。超过三分之二(69.6%)的研究发表于2011年以后,其中大多数是定量的(91.2%)。只有4项研究纳入了2SLGBTQAA+父母,其中只有1项研究报告了父母自我效能感的群体差异。超过一半(56.0%)的研究使用了“自我效能”一词,其次是“能力”(28.0%)和“信心”(16.0%)。最常用的测量工具是父母能力感量表,最常见的共同报告结果是抑郁和社会支持。综上所述,在非生育父母的育儿自我效能感研究领域不断发展的同时,关于2SLGTBQAA+父母的育儿自我效能感的证据也很缺乏。
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引用次数: 0
Parents Plus Systemic, Solution-Focused Parent Training Programs: An Updated Systematic Review and Meta-Analysis 父母加上系统的,以解决方案为重点的父母培训计划:更新的系统回顾和元分析
IF 2.6 3区 心理学 Q1 FAMILY STUDIES Pub Date : 2025-06-11 DOI: 10.1111/famp.70049
Claire O'Dwyer, Conal Twomey, Brid Davis, John Sharry, Eileen Brosnan, Alan Carr

This systematic review and meta-analysis of Parent Plus (PP) Program evaluation studies aimed to update a previous meta-analysis published in 2017. PP programs are systemic, solution-focused, group-based parent training interventions for the prevention and treatment of a range of child and adolescent problems. Controlled or uncontrolled, randomized or non-randomized trials involving at least 10 cases which evaluated PP programs were included in the review. PsycINFO, PubMed, CINAHL, and ERIC databases were searched from January 2016 to January 2014. Risk of bias was evaluated with RoB2 and ROBINS-I. Since the last meta-analysis, the pool of PP studies has increased by 25%. This updated meta-analysis included 21 studies involving 1179 families. In controlled trials, there were significant between-group, post-intervention effect sizes for child behavior (g = 0.42 [0.25, 0.59], p < 0.001, k = 13), goal attainment (g = 1.22 [0.83, 1.60], p < 0.001, k = 9), parental satisfaction (g = 0.67 [0.36, 0.98], p < 0.001, k = 8) and parental stress (g = 0.45 [0.20, 0.71], p < 0.01, k = 10) favoring PP programs. The main limitation of the review was the risk of bias in the primary studies reviewed. This updated meta-analysis shows that PP programs are evidence-based, systemic interventions that may lead to positive outcomes for families of children with emotional and behavioral problems, post-divorce adjustment difficulties, intellectual disability, ADHD, and at risk of obesity.

Trial Registration: PROSPERO: CRD42024504594

本研究系统回顾和荟萃分析了Parent Plus (PP)项目评估研究,旨在更新2017年发表的一项荟萃分析。PP项目是系统的、以解决方案为重点的、以团体为基础的家长培训干预措施,用于预防和治疗一系列儿童和青少年问题。本综述纳入了至少10例评估PP方案的对照或非对照、随机或非随机试验。检索PsycINFO、PubMed、CINAHL和ERIC数据库,检索时间为2016年1月至2014年1月。采用RoB2和ROBINS-I评估偏倚风险。自上次荟萃分析以来,PP研究的数量增加了25%。这项更新的荟萃分析包括21项研究,涉及1179个家庭。在对照试验中,儿童行为(g = 0.42 [0.25, 0.59], p < 0.001, k = 13)、目标实现(g = 1.22 [0.83, 1.60], p < 0.001, k = 9)、父母满意度(g = 0.67 [0.36, 0.98], p < 0.001, k = 8)和父母压力(g = 0.45 [0.20, 0.71], p < 0.01, k = 10)的干预后组间效应显著。本综述的主要局限性是所综述的主要研究存在偏倚风险。这一最新的荟萃分析表明,PP项目是基于证据的系统性干预措施,可能会为有情绪和行为问题、离婚后适应困难、智力残疾、多动症和肥胖风险的儿童的家庭带来积极的结果。试验注册:PROSPERO: CRD42024504594
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引用次数: 0
Dyadic Reports of Interparental Relationship Quality and Intentions to Continue Fostering Among Coupled Foster Caregivers 父母间关系质量和继续寄养意愿的二元报告
IF 2.6 3区 心理学 Q1 FAMILY STUDIES Pub Date : 2025-05-29 DOI: 10.1111/famp.70044
Evin Winkelman Richardson, Jacquelyn K. Mallette, Ted G. Futris, Rachel Brown, Jessica Starke, Shuangyue Cui, Lydia Shepherd

The United States is in a foster care crisis with nearly 400,000 children in need of care and not enough foster homes to fill this need. Therefore, recruiting and retaining high-quality foster care homes is essential for the placement stability and well-being of some of our society's most vulnerable children. For foster caregivers in a couple relationship, the health of the couple and coparenting relationship may play a major role in their well-being and satisfaction, influencing their retention. Guided by existing literature and the sound house theory (Gottman and Silver 2015), the current study employs latent profile analysis to examine the interparental relationship quality of 79 different-sex foster caregiver couples, potential covariates of their interparental relationship quality, and their intent to continue fostering for the next 12 months. Three groups of foster caregiver couples emerged where (1) both partners reported high interparental relationship quality, (2) both partners reported moderate relationship quality, and (3) fathers reported moderate relationship quality and mothers reported low relationship quality. Couple and foster caregiver demographic characteristics were not associated with foster caregiver couple groups. Foster mothers in groups where foster fathers reported moderate interparental relationship quality and mothers reported low interparental relationship quality reported significantly lower intentions to continue fostering. These findings have potential implications for foster caregiver screening and expanding formal support resources to promote retention. Future research is needed with larger and generalizable samples to further assess the efficacy of couple relationship education on relationship quality and retention of foster caregiver couples.

美国正处于寄养危机之中,有近40万儿童需要照顾,却没有足够的寄养家庭来满足这一需求。因此,招募和保留高质量的寄养家庭对于我们社会中一些最弱势儿童的安置稳定性和福祉至关重要。对于夫妻关系中的寄养照顾者,夫妻的健康和亲子关系可能在他们的幸福感和满意度中发挥重要作用,影响他们的保留。本研究在现有文献和健全房屋理论(Gottman and Silver 2015)的指导下,采用潜在剖面分析来检验79对不同性别的寄养照顾者夫妇的父母间关系质量,他们的父母间关系质量的潜在协变量,以及他们在未来12个月内继续抚养的意愿。三组寄养照顾者夫妻出现在(1)双方都报告高的父母间关系质量,(2)双方都报告中等的关系质量,(3)父亲报告中等的关系质量,母亲报告低的关系质量。夫妇和寄养照顾者的人口统计学特征与寄养照顾者夫妇组无关。在养父关系质量中等而养母关系质量较低的群体中,养母继续抚养的意愿明显较低。这些发现对寄养照顾者筛选和扩大正式支持资源以促进保留具有潜在的意义。为了进一步评估夫妻关系教育对寄养照顾者夫妻关系质量和保留的影响,未来的研究需要更大、更广泛的样本。
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引用次数: 0
Parent–Adolescent Relationship Quality and Parenting Stress Across More Than Two Decades: The Mediating Role of Depressive Symptoms 二十多年来亲子关系质量与养育压力:抑郁症状的中介作用
IF 2.6 3区 心理学 Q1 FAMILY STUDIES Pub Date : 2025-05-29 DOI: 10.1111/famp.70043
Weiman Xu, Gilbert R. Parra, Thulitha Wickrama, Michael J. Merten

Parenting stress is associated with negative outcomes for both parents and their children, and it may be influenced by the quality of relationships that parents had with their own parents. To enhance understanding of this intergenerational relation, the present study examined whether stability and change in depressive symptoms mediated the association between parent–adolescent relationship quality during adolescence and subsequent parenting stress almost 25 years later. Using data from all five waves of the National Longitudinal Study of Adolescent to Adult Health (Add Health) restricted dataset from the United States, the study included adolescents who were between 12 and18 years old at Wave 1 and had at least one child at Wave 5 (2016–2018; N = 4890; Mage at Wave 1 = 15.67, SDage at Wave 1 = 1.50). A modified version of the random intercept cross-lagged model was used to account for both within- and between-person levels of depressive symptoms. Findings indicated that high levels of parent–adolescent relationship quality (with both mothers and fathers) were related to low levels of depressive symptoms that were stable over the almost 25 years of the study (between-person individual differences). In turn, low levels of depressive symptoms that were stable over time were associated with low levels of parenting stress in parenthood. Results underscore the potential long-term value of interventions that enhance parent–adolescent relationship quality in adolescence, as these could reduce enduring depressive symptoms and parenting stress in future generations.

养育压力与父母和孩子的负面结果有关,并且可能受到父母与自己父母的关系质量的影响。为了加深对这种代际关系的理解,本研究考察了抑郁症状的稳定性和变化是否介导了青春期父母-青少年关系质量与近25年后父母压力之间的关联。该研究使用了来自美国国家青少年到成人健康纵向研究(Add Health)限制数据集的所有五波数据,包括在第一波12至18岁之间的青少年,在第五波(2016-2018;n = 4890;法师在波1 = 15.67,法师在波1 = 1.50)。随机截距交叉滞后模型的改进版本被用于解释人与人之间和人与人之间的抑郁症状水平。研究结果表明,高水平的亲子关系质量(与母亲和父亲)与低水平的抑郁症状有关,这种症状在近25年的研究中保持稳定(人与人之间的个体差异)。反过来,低水平的抑郁症状随着时间的推移而稳定,与父母的低水平育儿压力有关。研究结果强调了提高青春期亲子关系质量的干预措施的潜在长期价值,因为这些干预措施可以减少后代的持久抑郁症状和养育压力。
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引用次数: 0
Developing Evidence-Informed Support Groups for Families of Incarcerated People: Findings From a Qualitative Study 为被监禁者的家庭发展循证支持小组:一项定性研究的结果
IF 2.6 3区 心理学 Q1 FAMILY STUDIES Pub Date : 2025-05-29 DOI: 10.1111/famp.70042
Janani Umamaheswar, Eman Tadros, Arden Richards-Karamarkovich

Researchers have extensively documented the financial, social, emotional, and psychological challenges that families of incarcerated people face, and there are growing calls for programs and services to help these families confront the collateral consequences of imprisonment. This article uses data from an ethnographic study exploring how family members of people in prison constructed and leveraged communities of support to help them cope with the stressors of having an incarcerated loved one. Drawing on 8 months of observations of a support group for families of people in prison and in-depth interviews with eight participants in this support group, we present findings related to family members' perspectives on the challenges they face, their reasons for joining the support group, and the group's strengths and limitations. Based on these findings, we argue that support groups for families of incarcerated people should be facilitated by trained professionals who are well versed in the unique traumas associated with contact with the criminal legal system.

研究人员广泛地记录了被监禁者家庭所面临的经济、社会、情感和心理挑战,越来越多的人呼吁提供项目和服务,帮助这些家庭面对监禁的附带后果。本文使用了一项民族志研究的数据,探讨了监狱囚犯的家庭成员如何构建和利用支持社区来帮助他们应对有一个被监禁的亲人的压力。通过对一个监狱囚犯家庭支持小组长达8个月的观察,以及对该支持小组的8位参与者的深入访谈,我们提出了与家庭成员对他们所面临的挑战的看法、他们加入支持小组的原因以及该小组的优势和局限性有关的发现。基于这些发现,我们认为应该由训练有素的专业人员为被监禁者家庭的支持团体提供便利,这些专业人员精通与刑事法律系统接触相关的独特创伤。
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引用次数: 0
Family Resilience and Perceived Stress: A Three-Level Meta-Analysis 家庭弹性与感知压力:一个三水平元分析
IF 2.6 3区 心理学 Q1 FAMILY STUDIES Pub Date : 2025-05-19 DOI: 10.1111/famp.70045
Rui Li, Tingni Mi, Donghong Wu, ZengYan Guo, Zhihong Ren

Although numerous studies have observed a negative correlation between family resilience and perceived stress, the strength of this relationship has exhibited significant variability in previous research. This study aimed to elucidate the relationship between family resilience and perceived stress, investigating the moderating roles of various factors. Employing a three-level meta-analysis, the research scrutinized 23 selected studies involving 17,480 participants and 99 effect sizes, following a comprehensive literature search and screening. The results revealed a significant negative correlation between family resilience and perceived stress, r = −0.25. Notably, the family resilience systems theory showed a significant negative correlation, r = −0.28, than other models, suggesting its superior ability to explain the resilience-stress relationship. Furthermore, the study found that the mean age of adults significantly moderated this relationship, with older adults demonstrating a more pronounced negative correlation, r = −0.24, implying that established resilience practices and life experience may enhance stress management in this group. These findings highlight the need for age-specific interventions that target the management of family resilience and perceived stress, emphasizing the critical role of appropriate theoretical frameworks.

虽然许多研究已经观察到家庭弹性和感知压力之间的负相关,但这种关系的强度在以前的研究中表现出显著的差异。本研究旨在探讨家庭心理弹性与感知压力之间的关系,并探讨各种因素的调节作用。在进行了全面的文献检索和筛选之后,该研究采用了三层次的荟萃分析,仔细审查了23项选定的研究,涉及17,480名参与者和99种效应值。结果显示,家庭弹性与感知压力呈显著负相关,r = - 0.25。值得注意的是,与其他模型相比,家庭弹性系统理论显示出显著的负相关,r = - 0.28,表明其在解释弹性-压力关系方面的能力更强。此外,研究发现,成年人的平均年龄显著调节了这一关系,老年人表现出更明显的负相关,r = - 0.24,这意味着既定的弹性实践和生活经验可能会增强这一群体的压力管理。这些发现强调了针对家庭弹性和感知压力管理的年龄特定干预措施的必要性,强调了适当理论框架的关键作用。
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引用次数: 0
A Pilot Study of an Attachment-Based Parenting Intervention for Parents of Adolescents in China: Translation, Modifications, and Preliminary Effectiveness 依恋型教养干预对中国青少年父母的初步研究:翻译、修改和初步效果
IF 2.6 3区 心理学 Q1 FAMILY STUDIES Pub Date : 2025-05-19 DOI: 10.1111/famp.70040
Lin Bao, Anna Kristen, Helen Liu, Sebastian Dys, Yu Gao, Qian Wu, Bin Xiao, Jingjing Xu, Hongyu Zhang, Wen Zhang, Zhiyong Zhang, Marlene M. Moretti

Adolescent mental health problems have increased internationally, and over one-quarter of Chinese adolescents—approximately 40 million teens—have reported significant mental health problems in recent years. This study tailored and evaluated the acceptance, uptake, and effectiveness of Connect, a brief manualized trauma-informed and attachment-based parenting program, for Mandarin-speaking families in Beijing, China. 30 parents (aged 36–50 years, Mage = 44.6, SD = 3.2; 83.3% mothers, 16.7% fathers) of youth aged 10–16 years (Mage = 13.4, SD = 1.5; 50.0% female) were enrolled in a single-arm pilot study with preprogram and postprogram assessments of youth mental health, parental functioning, and quality of parent–child relationships. Careful translation was necessary to retain program nuances and meaning, including references to Chinese idioms and poems to enhance cultural meaning. Program modifications included tailoring role plays to reflect culturally relevant domains of parent–youth conflict, direct prompting of parents in reflection exercises and discussions, and a deeper emphasis on empathy in parent–child relationships. These modifications enhanced rather than diminished core program fidelity within this cultural context. Program enrolment, attendance, retention, and parents' feedback revealed strong program acceptance and perceived cultural fit. Parents also reported significant reductions in youth internalizing and externalizing problems, youth-to-parent and parent-to-youth physical and psychological aggression, parent depressed mood, and parenting strain. The findings align with previous randomized clinical trials and implementation studies of Connect across diverse countries, contexts, and clinical populations. Replication is required with larger samples, randomized designs, and using parent and youth measures to sensitively capture the quality of parent–child relationships.

青少年心理健康问题在国际上日益严重,近年来,超过四分之一的中国青少年——大约4000万青少年——报告了严重的心理健康问题。本研究针对中国北京的普通话家庭,为30位家长(年龄36-50岁,Mage = 44.6, SD = 3.2;83.3%为母亲,16.7%为父亲)10-16岁青少年(Mage = 13.4, SD = 1.5;(50.0%为女性)参加了一项单臂先导研究,对青少年心理健康、父母功能和亲子关系质量进行了计划前和计划后的评估。仔细的翻译是必要的,以保留节目的细微差别和意义,包括引用中国成语和诗歌,以增强文化意义。项目修改包括调整角色扮演,以反映与文化相关的亲子冲突领域,在反思练习和讨论中直接提示父母,以及更深入地强调亲子关系中的同理心。在这种文化背景下,这些修改增强而不是削弱了核心程序的保真度。课程的入学率、出勤率、留校率和家长的反馈都显示出学生对课程的接受程度和文化契合度。父母也报告了青少年内化和外化问题、青少年对父母和父母对青少年的身体和心理攻击、父母抑郁情绪和养育压力的显著减少。这些发现与之前在不同国家、背景和临床人群中进行的随机临床试验和Connect实施研究相一致。需要复制更大的样本,随机设计,并使用父母和青少年的措施,以敏感地捕捉亲子关系的质量。
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引用次数: 0
Can Sexual and Gender Minority Individuals Benefit From General Couple Relationship Education?: Comparative Benefits in Individual and Relational Functioning 性和性别少数群体能从普通夫妻关系教育中受益吗?:个体和关系功能的比较利益
IF 2.6 3区 心理学 Q1 FAMILY STUDIES Pub Date : 2025-05-15 DOI: 10.1111/famp.70047
Mengiln Wei, Francesca Adler-Baeder, Julianne McGill

Couple relationship education (CRE) programs have been widely implemented across the nation for decades and serve an increasingly diverse population of couples; however, effectiveness studies have continued to focus on the experiences of the “average” participant, thus overlooking the experience of minoritized populations. Few studies have centered on the experiences of sexual and gender minority (SGM) individuals, especially those who identify as SGM but are in different-gender appearing relationships. Using a sample of 153 SGM CRE participants (80% cisgender women, 52% identified as bisexual or pansexual, 57% had a different-gender partner) and 2061 non-SGM participants who are racially and economically diverse, this study compared baseline differences and post-program growth trajectories between SGM and non-SGM participants in relationship quality, skills, mental, and physical health symptoms. Results show that SGM and non-SGM participants have similar average levels of relationship functioning and skills at baseline, but SGM participants report more mental health symptoms and lower sleep quality, on average. Following propensity score matching, growth curve models indicated no differences in the significant growth for both groups from baseline to 6 months in relationship quality, skills, and sleep quality, suggesting similar benefits. However, a significant interaction effect indicated that SGM participants improved more in mental health symptoms compared to non-SGM participants. This is encouraging evidence that SGM individuals can benefit from general CRE and further validates efforts for inclusion.

夫妻关系教育(CRE)项目已经在全国范围内广泛实施了几十年,服务于日益多样化的夫妻群体;然而,有效性研究继续侧重于“一般”参与者的经验,从而忽略了少数群体的经验。很少有研究集中在性少数和性别少数(SGM)个体的经历上,特别是那些认同为SGM但处于不同性别表现的关系中的个体。本研究使用153名SGM CRE参与者(80%为顺性女性,52%为双性恋或泛性恋,57%有不同性别的伴侣)和2061名种族和经济不同的非SGM参与者的样本,比较了SGM和非SGM参与者在关系质量、技能、心理和身体健康症状方面的基线差异和项目后的增长轨迹。结果表明,SGM和非SGM参与者在基线时的关系功能和技能的平均水平相似,但SGM参与者报告的平均心理健康症状更多,睡眠质量更低。根据倾向评分匹配,增长曲线模型显示,从基线到6个月,两组在关系质量、技能和睡眠质量方面的显著增长没有差异,表明类似的益处。然而,显著的交互效应表明,与非SGM参与者相比,SGM参与者在心理健康症状方面改善更多。这是令人鼓舞的证据,表明SGM个体可以从一般CRE中受益,并进一步验证了纳入的努力。
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引用次数: 0
Evaluation of the Health-Related Quality of Life and Mental Health of Parents With Children and Adolescents With a Rare Disease Based on the Results of a Randomized Controlled Trial to Investigate a Family-Based Intervention and an Online Intervention for Affected Families (CARE-FAM-NET) 基于家庭干预和影响家庭在线干预(CARE-FAM-NET)的随机对照试验结果评价患有罕见病儿童和青少年父母的健康相关生活质量和心理健康
IF 2.6 3区 心理学 Q1 FAMILY STUDIES Pub Date : 2025-05-15 DOI: 10.1111/famp.70041
Antonia Steinberg, Johannes Boettcher, Anna Leidger, Ania C. Muntau, Jonas Denecke, Nicole Kaiser, Anne Daubmann, Antonia Zapf, Karl Wegscheider, Ann Kathrin Ozga, Anna Isabella Suling, Monika Bullinger, Julia Quitmann, Jörg Dirmaier, Stefanie Witt, Farhad Rezvani, Christine Mundlos, Lisa Biehl, Miriam Rassenhofer, Jörg M. Fegert, Dunja Tutus, Gerald Willms, Jan Zeidler, Nicolas Pardey, Johann-Matthias Graf von der Schulenburg, Silke Wiegand-Grefe

Parents caring for children with rare diseases are more impaired regarding health-related quality of life (HRQoL) and mental health than healthy controls and norm data. To address the research gap in psychological care for these parents, this study evaluates the effectiveness of two family-based interventions. The children affected by rare disease and their families network (CARE-FAM-NET) study is a multicenter randomized controlled 2 × 2 factorial trial for affected families with children (0–21 years). This paper focuses on evaluating the impact of two interventions, one face-to-face (CARE-FAM) and one online (WEP-CARE), on the HRQoL and mental health of parents. One thousand, one hundred sixty-eight parents participated: TAU = 291, CARE-FAM = 296, WEP-CARE = 300, and CARE-FAM + WEP-CARE combined = 281. Data were collected at four time points over a period of 18 months using standardized questionnaires. The results had to be interpreted exploratively. The results indicate that there are no clinically relevant differences in the parents' HRQoL and mental health between the treatment groups. However, time-dependent differences in the intervention effects for WEP-CARE were observed. Although the results did not show clear relevant differences between conditions, trends in improvement in HrQoL and mental health were identified. CARE-FAM shows a greater reduction in parental distress and WEP-CARE shows a greater distortion of distress, particularly at T3 and T4. Given the exploratory nature of this study, it highlights the urgent need for further confirmatory research in this area.

与健康对照和标准数据相比,照顾罕见病儿童的父母在健康相关生活质量(HRQoL)和心理健康方面受到的损害更大。为了解决这些父母心理护理方面的研究空白,本研究评估了两种基于家庭的干预措施的有效性。受罕见病影响的儿童及其家庭网络(CARE-FAM-NET)研究是一项多中心随机对照2 × 2因子试验,针对有儿童的患病家庭(0-21岁)。本文主要评估面对面(CARE-FAM)和在线(WEP-CARE)两种干预措施对家长HRQoL和心理健康的影响。1668名家长参与:TAU = 291名,CARE-FAM = 296名,WEP-CARE = 300名,CARE-FAM + WEP-CARE联合= 281名。在18个月的时间里,使用标准化问卷在四个时间点收集数据。必须探索性地解释结果。结果显示,治疗组间家长的HRQoL和心理健康状况无临床相关差异。然而,观察到WEP-CARE干预效果的时间依赖性差异。虽然结果没有显示出不同情况之间的明显相关差异,但确定了HrQoL和心理健康改善的趋势。CARE-FAM组表现出更大程度的父母痛苦减少,而WEP-CARE组表现出更大程度的痛苦扭曲,尤其是在T3和T4阶段。鉴于本研究的探索性,迫切需要在该领域进行进一步的验证性研究。
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Family Process
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