Pub Date : 2024-06-17DOI: 10.3109/13668250.2024.2362979
Nic McKenzie, Brigit Mirfin-Veitch, Henrietta Trip, Jennifer Conder
People with intellectual disabilities have traditionally been excluded from Advance Care (AC) planning. This study aimed to improve access to and the quality of AC planning for this community.A Par...
{"title":"My plan for a good life, right to the end: An accessible approach to advance care planning","authors":"Nic McKenzie, Brigit Mirfin-Veitch, Henrietta Trip, Jennifer Conder","doi":"10.3109/13668250.2024.2362979","DOIUrl":"https://doi.org/10.3109/13668250.2024.2362979","url":null,"abstract":"People with intellectual disabilities have traditionally been excluded from Advance Care (AC) planning. This study aimed to improve access to and the quality of AC planning for this community.A Par...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"195 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-06-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141508772","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-19DOI: 10.3109/13668250.2024.2340518
Sarah A. Hall, Roger J. Stancliffe
Adults with intellectual and developmental disabilities want to be included in all aspects of community life, but social inclusion continues to be very limited.We used a qualitative multiple case s...
有智力和发育障碍的成年人希望融入社区生活的各个方面，但社会融入仍然非常有限。
{"title":"Participation in mainstream community groups by older United States adults with intellectual and developmental disabilities: A multiple case study","authors":"Sarah A. Hall, Roger J. Stancliffe","doi":"10.3109/13668250.2024.2340518","DOIUrl":"https://doi.org/10.3109/13668250.2024.2340518","url":null,"abstract":"Adults with intellectual and developmental disabilities want to be included in all aspects of community life, but social inclusion continues to be very limited.We used a qualitative multiple case s...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"39 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-04-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140630527","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-10DOI: 10.3109/13668250.2024.2336076
Jan Idle, Sally Robinson, Karen R. Fisher, Heikki Ikäheimo, Ciara Smyth, Jung Yoon
Many people with disability experience harm in everyday interactions that can leave them feeling insulted, degraded, silenced, or rejected. We adopt the term “everyday harm” to describe this undere...
{"title":"Conceptualising the everyday harm experienced by people with cognitive disability: A scoping review of microaggression and emotional and psychological abuse","authors":"Jan Idle, Sally Robinson, Karen R. Fisher, Heikki Ikäheimo, Ciara Smyth, Jung Yoon","doi":"10.3109/13668250.2024.2336076","DOIUrl":"https://doi.org/10.3109/13668250.2024.2336076","url":null,"abstract":"Many people with disability experience harm in everyday interactions that can leave them feeling insulted, degraded, silenced, or rejected. We adopt the term “everyday harm” to describe this undere...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"38 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140613759","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-04DOI: 10.3109/13668250.2024.2333264
Rianne Suelmann, Eric Blaauw
Addiction medicine still largely neglects the topic of mild and borderline intellectual disabilities (MBID), although patients with MBID are considered a risk group for substance-related problems a...
{"title":"The association of cognitive functioning and substance use disorders with adaptive impairments of inpatients in forensic addiction treatment","authors":"Rianne Suelmann, Eric Blaauw","doi":"10.3109/13668250.2024.2333264","DOIUrl":"https://doi.org/10.3109/13668250.2024.2333264","url":null,"abstract":"Addiction medicine still largely neglects the topic of mild and borderline intellectual disabilities (MBID), although patients with MBID are considered a risk group for substance-related problems a...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"38 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-04-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140613766","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-04DOI: 10.3109/13668250.2024.2334336
Ilan Wiesel, Christine Bigby, Ellen van Holstein, Brendan Gleeson
Despite growing recognition of their right for inclusion in society, people with intellectual disabilities are often excluded from mainstream services, or experience poor service outcomes.Taking a ...
{"title":"Inclusive mainstream services for people with intellectual disabilities: A relational approach","authors":"Ilan Wiesel, Christine Bigby, Ellen van Holstein, Brendan Gleeson","doi":"10.3109/13668250.2024.2334336","DOIUrl":"https://doi.org/10.3109/13668250.2024.2334336","url":null,"abstract":"Despite growing recognition of their right for inclusion in society, people with intellectual disabilities are often excluded from mainstream services, or experience poor service outcomes.Taking a ...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"115 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-04-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140601237","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-29DOI: 10.3109/13668250.2024.2317794
Sandra V. Loosli, Lennart C. Neumann, Elisabeth Wlasich, Catharina Prix, Laura Koll, Endy Weidinger, Jonathan Vöglein, Olivia Wagemann, Adrian Danek, Georg Nübling, Johannes Levin
The CAMDEX-DS is an instrument to diagnose Alzheimer’s disease (AD) in Down syndrome consisting of an informant interview and a cognitive test battery (CAMCOG-DS). Measurement properties of the Ger...
{"title":"Measurement properties of the German version of the Cambridge examination for mental disorders of older people with Down syndrome and others with intellectual disabilities (CAMDEX-DS)","authors":"Sandra V. Loosli, Lennart C. Neumann, Elisabeth Wlasich, Catharina Prix, Laura Koll, Endy Weidinger, Jonathan Vöglein, Olivia Wagemann, Adrian Danek, Georg Nübling, Johannes Levin","doi":"10.3109/13668250.2024.2317794","DOIUrl":"https://doi.org/10.3109/13668250.2024.2317794","url":null,"abstract":"The CAMDEX-DS is an instrument to diagnose Alzheimer’s disease (AD) in Down syndrome consisting of an informant interview and a cognitive test battery (CAMCOG-DS). Measurement properties of the Ger...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"22 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-02-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140007276","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-29DOI: 10.3109/13668250.2024.2317799
Gabriela I. Coñoman, Vicenta Ávila, Carmen Carmona
People with intellectual disabilities may find difficulties in their school-to-work transition. The current study aimed to determine which factors have been investigated and which are relevant to t...
{"title":"Initiatives to support the school-to-work transition of people with intellectual disabilities: a systematic review","authors":"Gabriela I. Coñoman, Vicenta Ávila, Carmen Carmona","doi":"10.3109/13668250.2024.2317799","DOIUrl":"https://doi.org/10.3109/13668250.2024.2317799","url":null,"abstract":"People with intellectual disabilities may find difficulties in their school-to-work transition. The current study aimed to determine which factors have been investigated and which are relevant to t...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"5 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-02-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140007524","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-26DOI: 10.3109/13668250.2024.2317792
Verena Hofmann, Dagmar Orthmann Bless
Individuals with Down syndrome are an at-risk population for severe COVID-19 outcomes, due to genetic predispositions and comorbidities. The current study focused on differences between persons wit...
{"title":"COVID-19 in patients with Down syndrome: Characteristics of hospitalisation and disease progression compared to patients without Down syndrome","authors":"Verena Hofmann, Dagmar Orthmann Bless","doi":"10.3109/13668250.2024.2317792","DOIUrl":"https://doi.org/10.3109/13668250.2024.2317792","url":null,"abstract":"Individuals with Down syndrome are an at-risk population for severe COVID-19 outcomes, due to genetic predispositions and comorbidities. The current study focused on differences between persons wit...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"15 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-02-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139969557","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-30DOI: 10.3109/13668250.2023.2297447
Tal Araten-Bergman, Christine Bigby
This study explores the perceptions of supported accommodation staff and their managers of the support needs of residents ageing with intellectual disabilities, and their experiences of adjusting s...
{"title":"Supporting healthy ageing for people with intellectual disabilities in group homes: Staff experiences","authors":"Tal Araten-Bergman, Christine Bigby","doi":"10.3109/13668250.2023.2297447","DOIUrl":"https://doi.org/10.3109/13668250.2023.2297447","url":null,"abstract":"This study explores the perceptions of supported accommodation staff and their managers of the support needs of residents ageing with intellectual disabilities, and their experiences of adjusting s...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"2 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139664548","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-24DOI: 10.3109/13668250.2023.2295244
Joanne Mampaso Desbrow, Álvaro Moraleda Ruano, Diego Galán-Casado, Diana Ruiz-Vicente
One of the main challenges facing individuals with an intellectual disability is the stigma associated with the various obstacles that hinder their process of full integration. Despite the efforts ...
{"title":"Stigmatising young people with intellectual disability: Perceptions of the main stakeholders at a Spanish university","authors":"Joanne Mampaso Desbrow, Álvaro Moraleda Ruano, Diego Galán-Casado, Diana Ruiz-Vicente","doi":"10.3109/13668250.2023.2295244","DOIUrl":"https://doi.org/10.3109/13668250.2023.2295244","url":null,"abstract":"One of the main challenges facing individuals with an intellectual disability is the stigma associated with the various obstacles that hinder their process of full integration. Despite the efforts ...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"26 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-01-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139551595","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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