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Validation of the Parent Version of the Nighttime Fears Scale (NFS-P) for Children Aged 3–8 Years 验证针对 3-8 岁儿童的家长版夜间恐惧量表(NFS-P)。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-09-08 DOI: 10.1111/cch.13323
Mireia Orgilés, Teresa Galán-Luque, José Pedro Espada, Alexandra Morales

Background

Nighttime fears are highly prevalent in children, ranging from normative fears to triggering fear-related anxiety disorders. The lack of available assessment instruments recently prompted the development of the Nighttime Fears Scale (NFS) for children aged 8–12 years. The present study aimed to adapt and psychometrically evaluate the parent-reported version for children aged 3–8 years (NFS-P) as a complement for younger children.

Methods

Two hundred eighty-four Spanish-speaking parents (47% girls) completed the NFS-P and anxiety measures.

Results

Confirmatory factor analyses supported a four-factor structure of the NFS-P. Strong internal consistency and validity evidence were obtained. No significant differences were found in NFS-P scores between sexes and age groups.

Conclusions

The findings offer support for the use of the NFS-P as a valuable instrument in clinical and research settings, supplementing the NFS for older children. Both scales provide an efficient means to comprehensively assess the presence and intensity of typical nighttime fears across preschool and school years.

背景:夜间恐惧在儿童中非常普遍,从正常的恐惧到引发与恐惧相关的焦虑症,不一而足。由于缺乏可用的评估工具,最近开发了针对 8-12 岁儿童的夜间恐惧量表(NFS)。本研究旨在对家长报告的 3-8 岁儿童版本(NFS-P)进行改编和心理测量学评估,作为对年幼儿童的补充:284 位讲西班牙语的家长(47% 为女孩)完成了 NFS-P 和焦虑测量:结果:确认性因素分析支持 NFS-P 的四因素结构。结果:确认性因素分析支持 NFS-P 的四因素结构,并获得了较强的内部一致性和有效性证据。NFS-P得分在性别和年龄组之间未发现明显差异:结论:研究结果支持将 NFS-P 作为临床和研究环境中的一种有价值的工具,以补充适用于年龄较大儿童的 NFS。这两种量表为全面评估学龄前和学龄期典型夜间恐惧的存在和强度提供了有效的方法。
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引用次数: 0
Proportion, Correlates and the Associations of Meeting 24-h Movement Guidelines With Mental Well-Being and Psychological Distress: A Cross-Sectional Study of 10 589 Chinese Students 符合 24 小时运动准则的比例、相关性及其与心理健康和心理困扰的关系:一项针对 10 589 名中国学生的横断面研究。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-09-08 DOI: 10.1111/cch.13329
Hao Zhang, Jing Sheng, Xinpei Yue, Hao Lou, Xiaolei Ban, Wencan Wu, Ran Li, Genli Gao, Chongjian Wang, Xiaomin Lou, Xian Wang

Background

The increased trends in psychological distress and mental illness have been of great significance in public health concerns. The study aimed to investigate the proportion and correlates of meeting 24-h movement guidelines (including moderate to vigorous physical activity, screen time and sleep duration) and the associations between 24-h movement guidelines met and mental well-being and psychological distress in a large sample of Chinese students.

Methods

All participants received a physical examination and filled out questionnaires in this study. Chi-square tests were used to analyse the proportion of reaching 24-h guidelines by gender and logistic regression was used to analyse correlates of meeting 24-h guidelines. Two binary logistic regression models were used to analyse the association between meeting 24-h guidelines and mental well-being and psychological distress. The back-propagation artificial neural network was used to describe the importance of the independent variables.

Results

The findings revealed a generally low rate of meeting the 24-h movement guidelines, particularly concerning moderate to vigorous physical activity (16.5%). Meeting all three guidelines was related to better mental health in both boys and girls. Particularly, meeting screen time guideline and meeting sleep duration guideline appeared to be more important on mental outcomes, compared to meeting moderate to vigorous physical activity guideline. Compared with boys, girls were more susceptible to the influences of 24-h movement guidelines on mental health.

Conclusions

Meeting all three components of the 24-h movement guidelines was associated with the most favourable mental health outcomes for both boys and girls. Thus, maintaining a daily balance of sufficient physical activity, limited screen time, and adequate sleep is crucial for enhancing the mental health status of students.

背景:心理困扰和精神疾病的增加趋势一直是公共卫生关注的重要问题。本研究旨在调查大样本中国学生中达到24小时运动指南(包括中强度体育锻炼、屏幕时间和睡眠时间)的比例和相关因素,以及达到24小时运动指南与心理健康和心理困扰之间的关联:方法:所有参与者都接受了体检并填写了调查问卷。采用卡方检验分析不同性别达到 24 小时运动量标准的比例,采用逻辑回归分析达到 24 小时运动量标准的相关因素。研究使用了两个二元逻辑回归模型来分析符合 24 小时指南与精神健康和心理困扰之间的关联。使用反向传播人工神经网络来描述自变量的重要性:研究结果表明,符合 24 小时运动指南的比例普遍较低,尤其是中度至剧烈运动(16.5%)。在男孩和女孩中,符合所有三项指导原则与改善心理健康有关。特别是,与达到中度至剧烈运动标准相比,达到屏幕时间标准和睡眠时间标准似乎对心理健康更为重要。与男孩相比,女孩更容易受到 24 小时运动指南对心理健康的影响:结论:对男孩和女孩而言,满足 24 小时运动量指南的所有三项要求与最有利的心理健康结果相关。因此,保持每天充足的体育锻炼、有限的屏幕时间和充足的睡眠对提高学生的心理健康状况至关重要。
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引用次数: 0
Factors Associated With Screen Time Among Preschool Children in Lima, Peru 秘鲁利马学龄前儿童屏幕时间的相关因素。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-09-05 DOI: 10.1111/cch.13330
Kiomi Yabiku-Soto, Lorena Saavedra-Garcia, Jamee Guerra Valencia, Akram Hernández-Vásquez, Francisco Diez-Canseco

Objective

This study aims to identify factors associated with excessive screen time among preschoolers in Lima, Peru.

Methods

Cross-sectional analysis from a 2019 panel study in Lima, Peru, was conducted focusing on women, aged 18 and above, who are mothers of 3- to 5-year-olds in mid-high and mid-low districts. There were two outcome variables: excessive TV and excessive electronic devices screen time, defined as ≥ 1 h of screen exposure for each one. Explored factors included the mother’s age, education and wealth index and the children’s age, sex, physical activity, day care attendance and ultra-processed food consumption. Crude (cPR) and adjusted prevalence ratios (aPR) were estimated for the association between associated factors and excessive screen time using the GLM Poisson of with a logarithmic link.

Results

Excessive TV screen time and electronic devices prevalence was 74% and 36.9%, respectively. For TV screen time, a high wealth index (aPR 1.13; 95%CI: 1.03–1.23) and children’s age (aPR 1.18; 95%CI: 1.08–1.29 for 4 years, PR = 1.17; 95%CI: 1.07–1.28 for 5 years) were significant. For electronic devices, significant associations included mothers with more than 3 children (aPR 0.77; 95%CI: 0.62–0.96), being single (aPR 1.27; 95%CI: 1.01–1.58) and a high wealth index (aPR 1.38; 95%CI: 1.13–1.68). Furthermore, significant associations were found between excessive electronic device screen time and consumption of candies and chocolates (aPR 1.38; 95%CI: 1.08–1.77).

Conclusions

Seven out of 10 preschool children exceeded the recommended television screen time. Certain characteristics of the children, their mothers and the family’s socio-economic situation are related to excessive television screen time and excessive electronic device screen time.

研究目的本研究旨在确定秘鲁利马学龄前儿童屏幕时间过长的相关因素:对秘鲁利马的一项 2019 年面板研究进行了横截面分析,重点关注中高区和中低区的 18 岁及以上女性,她们都是 3 至 5 岁儿童的母亲。结果变量有两个:过多的电视时间和过多的电子设备屏幕时间,每个变量的定义是屏幕接触时间≥ 1 小时。探讨的因素包括母亲的年龄、教育程度和财富指数,以及儿童的年龄、性别、体育活动、日托出席率和超加工食品消费量。使用带对数链接的 GLM Poisson 估计了相关因素与过度屏幕时间之间的粗略流行率(cPR)和调整流行率(aPR):结果:过度使用电视屏幕和电子设备的比例分别为 74% 和 36.9%。就电视屏幕时间而言,高财富指数(aPR 1.13;95%CI:1.03-1.23)和儿童年龄(aPR 1.18;95%CI:4 岁为 1.08-1.29;PR = 1.17;95%CI:5 岁为 1.07-1.28)具有显著相关性。就电子设备而言,与下列因素有重要关联的是:母亲有 3 个以上子女(aPR 0.77;95%CI:0.62-0.96)、单身(aPR 1.27;95%CI:1.01-1.58)和财富指数高(aPR 1.38;95%CI:1.13-1.68)。此外,研究还发现,电子设备屏幕时间过长与糖果和巧克力消费量之间存在明显关联(aPR 1.38;95%CI:1.08-1.77):10名学龄前儿童中有7名超过了建议的电视屏幕时间。儿童、其母亲和家庭社会经济状况的某些特征与过长的电视屏幕时间和过长的电子设备屏幕时间有关。
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引用次数: 0
Development and Validation of the Questionnaire of Young People's Participation–Young Adults (QYPP-YA) 青少年参与问卷调查(QYPP-YA)的开发与验证。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-09-05 DOI: 10.1111/cch.13326
Chirine Cytera, Holger Muehlan, Marion Rapp, Audrey Guyard, Ute Thyen, Silke Schmidt, Henriette Markwart, the TRANS-DISAB Collaborative Group

Background

The Questionnaire of Young People's Participation (QYPP) was developed for use in children and adolescents. To track participation throughout transition from childhood to adulthood, we adapted it for young adults using focus groups. Aim of this study was to validate this measure, the QYPP–Young Adults (QYPP-YA).

Methods

We recruited young adults with cerebral palsy (CP) and a representative, same-aged sample of the general population (GP). The GP-sample was split into two equivalent subsamples, one part to identify the factor structure via exploratory factor analysis and another part to test the resulting model via confirmatory factor analysis. Reliability and different forms of validity were investigated.

Results

The final QYPP-YA includes 17 items assigned to six domains (Autonomy, Independency, Intimate Relationships, Interpersonal Relationships, Social Life, Online Communication). Scales show satisfying internal consistencies in the CP-sample and in the GP-sample, except for ‘Online Communication’. Convergent, divergent and known-group validity were confirmed.

Conclusions

The QYPP-YA instrument features promising psychometric characteristics to assess key domains of participation in healthy and disabled young adults. It provides a multidimensional, economic and sound assessment for use in population surveys and clinical trials.

背景:青少年参与问卷调查(QYPP)是为儿童和青少年开发的。为了跟踪从童年到成年的整个过渡时期的参与情况,我们利用焦点小组对其进行了改编,使其适用于年轻人。本研究的目的是验证这一测量方法,即 QYPP-年轻成年人(QYPP-YA):我们招募了患有脑瘫(CP)的年轻成年人和具有代表性的同龄普通人群(GP)样本。普通人群样本被分成两个等效的子样本,一部分用于通过探索性因子分析确定因子结构,另一部分用于通过确认性因子分析检验得出的模型。对可靠性和不同形式的有效性进行了调查:最终的 QYPP-YA 包括分配给六个领域(自主、独立、亲密关系、人际关系、社会生活、在线交流)的 17 个项目。除 "在线交流 "外,CP 样本和 GP 样本的量表显示出令人满意的内部一致性。结论:QYPP-YA工具具有良好的心理测量特征,可用于评估健康和残疾年轻人参与的关键领域。它为人口调查和临床试验提供了一种多维、经济、可靠的评估方法。
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引用次数: 0
Prevention of Violence Against Children: A Qualitative Exploration of Colombian Policymakers', Programme Facilitators' and Caregivers' Perceptions 预防针对儿童的暴力:对哥伦比亚政策制定者、计划推动者和照顾者看法的定性探索
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-28 DOI: 10.1111/cch.13325
Jorge Cuartas, Luciana Beccassino, Helen Baker-Henningham, Oscar Iván Pineda Díaz, María Fernanda Rodríguez

Objective

Violence against children (VAC) is a global public health and human rights issue that can lead to long-lasting negative consequences for individual and societal outcomes. While extensive evidence indicates that parenting programmes might be effective in preventing VAC, there are several unsolved questions on how to ensure interventions are acceptable, feasible, effective and sustainable, particularly in low- and- middle-income countries (LMICs).

Method

In this study, we report findings from a qualitative examination of policymakers' (N = 10), early childhood and parenting programme facilitators' (N = 20) and parents' and other caregivers' (N = 38) perspectives on VAC prevention to examine the implementation ecosystem of parenting programmes in Colombia, including contextual risk and protection factors, features of existing programmes, and stakeholders' needs. We conducted interviews and focus groups using a semistructured format, along with a thematic approach, to analyse the data from each group of participants (i.e., policymakers, facilitators and caregivers) independently.

Results

Overall, the data revealed the critical role of intersecting and interacting factors at the micro (e.g., caregivers' capabilities and beliefs), meso (e.g., programme content and delivery approaches) and macro (e.g., policymakers' vision and existing infrastructure) levels in exacerbating risks/imposing barriers versus protecting/promoting VAC prevention.

Conclusions

These findings provide evidence on the implementation ecosystem of prevention programmes to inform the design of novel strategies and programmes aimed at preventing violence and promoting families' well-being and young children's development.

目标 暴力侵害儿童(VAC)是一个全球性的公共卫生和人权问题,可对个人和社会造成长期的负面影响。虽然有大量证据表明,亲职教育计划可以有效预防暴力侵害儿童行为,但如何确保干预措施是可接受的、可行的、有效的和可持续的,特别是在中低收入国家(LMICs),还有一些问题没有解决。 方法 在本研究中,我们报告了对政策制定者(10 人)、幼儿和育儿计划促进者(20 人)以及父母和其他照护者(38 人)关于预防自愿幼儿保育的观点进行定性研究的结果,以考察哥伦比亚育儿计划的实施生态系统,包括背景风险和保护因素、现有计划的特点以及利益相关者的需求。我们采用半结构化形式进行了访谈和焦点小组讨论,并采用主题方法对每组参与者(即政策制定者、促进者和照顾者)的数据进行了独立分析。 结果 总体而言,数据揭示了微观(如护理人员的能力和信念)、中观(如计划内容和实施方法)和宏观(如政策制定者的愿景和现有基础设施)层面的交叉和相互作用因素在加剧风险/设置障碍与保护/促进预防自愿咨询方面的关键作用。 结论 这些研究结果为预防计划的实施生态系统提供了证据,为设计旨在预防暴力、促进家庭幸福和幼儿发展的新战略和计划提供了参考。
{"title":"Prevention of Violence Against Children: A Qualitative Exploration of Colombian Policymakers', Programme Facilitators' and Caregivers' Perceptions","authors":"Jorge Cuartas,&nbsp;Luciana Beccassino,&nbsp;Helen Baker-Henningham,&nbsp;Oscar Iván Pineda Díaz,&nbsp;María Fernanda Rodríguez","doi":"10.1111/cch.13325","DOIUrl":"https://doi.org/10.1111/cch.13325","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>Violence against children (VAC) is a global public health and human rights issue that can lead to long-lasting negative consequences for individual and societal outcomes. While extensive evidence indicates that parenting programmes might be effective in preventing VAC, there are several unsolved questions on how to ensure interventions are acceptable, feasible, effective and sustainable, particularly in low- and- middle-income countries (LMICs).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>In this study, we report findings from a qualitative examination of policymakers' (<i>N</i> = 10), early childhood and parenting programme facilitators' (<i>N</i> = 20) and parents' and other caregivers' (<i>N</i> = 38) perspectives on VAC prevention to examine the implementation ecosystem of parenting programmes in Colombia, including contextual risk and protection factors, features of existing programmes, and stakeholders' needs. We conducted interviews and focus groups using a semistructured format, along with a thematic approach, to analyse the data from each group of participants (i.e., policymakers, facilitators and caregivers) independently.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Overall, the data revealed the critical role of intersecting and interacting factors at the micro (e.g., caregivers' capabilities and beliefs), meso (e.g., programme content and delivery approaches) and macro (e.g., policymakers' vision and existing infrastructure) levels in exacerbating risks/imposing barriers versus protecting/promoting VAC prevention.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>These findings provide evidence on the implementation ecosystem of prevention programmes to inform the design of novel strategies and programmes aimed at preventing violence and promoting families' well-being and young children's development.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"50 5","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-08-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142089827","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Reaction to Diagnosis and Parental Concerns in Parents of Children and Young Adults With XYY Syndrome 患有 XYY 综合征的儿童和青少年的父母对诊断的反应和父母的担忧。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-26 DOI: 10.1111/cch.13324
Laura Zampini, Paola Zanchi, Gaia Silibello, Domenica Mastromattei, Paola Francesca Ajmone, Francesca Dall'Ara, Federico Monti, Maria Antonella Costantino, Paola Giovanna Vizziello

Background

There is a growing interest in exploring parents' views on the benefits of early diagnosis and awareness of sex chromosome trisomies. However, only a few studies focus specifically on the experience of parents of children with XYY syndrome. The present study aimed to assess, in parents of individuals with XYY, the perceived severity of their children's condition, their level of satisfaction with the disclosure process and their concerns about their children's present and future condition.

Methods

A national online sample of 56 Italian parents of children and young adults diagnosed with XYY syndrome participated in the study. They filled out a specifically developed online survey that assessed their children's areas of concern, their experience with the disclosure process and their worries about their children's condition.

Results

Seventy per cent of the parents received a prenatal diagnosis, whereas 30% received a postnatal diagnosis. High individual variability was found in the parent report of their child's condition. The most frequent areas of concern were attention regulation, emotion control and behaviour control. Individuals with a postnatal diagnosis showed more severe profiles. Parents were generally dissatisfied with the disclosure process, with no differences between prenatal and postnatal disclosure. However, more than 50% of the parents who received a prenatal disclosure reported that their child's condition was less severe than they had expected. In contrast, only 11% of the parents with postnatal disclosure reported this situation. Parents' concerns were negatively related to global satisfaction with the disclosure process and the correspondence between current and expected conditions but positively associated with the child's severity level.

Conclusions

The results suggest that clear and realistic information during the disclosure process to parents is needed in both prenatal and postnatal communication and may alleviate parents' concerns.

背景:人们越来越关注探讨父母对早期诊断的益处的看法以及对性染色体三体症的认识。然而,只有少数研究特别关注 XYY 综合征患儿父母的经历。本研究旨在评估 XYY 患儿家长对其子女病情严重程度的看法、他们对披露过程的满意度以及他们对子女目前和未来病情的担忧:这项研究在意大利全国范围内进行了在线抽样调查,共有 56 名被诊断患有 XYY 综合征的儿童和青少年的家长参加。他们填写了一份专门制作的在线调查表,该调查表评估了他们对子女的关注领域、他们在披露过程中的经历以及他们对子女病情的担忧:结果:70%的家长接受了产前诊断,30%接受了产后诊断。家长对子女病情的报告存在很大的个体差异。最常见的问题是注意力调节、情绪控制和行为控制。产后确诊患儿的情况更为严重。家长普遍对披露过程不满意,产前和产后披露过程没有差异。不过,在接受产前信息披露的父母中,有 50%以上的人表示他们孩子的病情没有他们预想的那么严重。相比之下,只有 11% 的接受产后信息披露的父母报告了这种情况。家长的担忧与对信息披露过程的总体满意度和当前状况与预期状况之间的对应关系呈负相关,但与孩子的严重程度呈正相关:结果表明,在产前和产后的沟通中,都需要在向父母披露信息的过程中提供清晰、真实的信息,这样可以减轻父母的担忧。
{"title":"Reaction to Diagnosis and Parental Concerns in Parents of Children and Young Adults With XYY Syndrome","authors":"Laura Zampini,&nbsp;Paola Zanchi,&nbsp;Gaia Silibello,&nbsp;Domenica Mastromattei,&nbsp;Paola Francesca Ajmone,&nbsp;Francesca Dall'Ara,&nbsp;Federico Monti,&nbsp;Maria Antonella Costantino,&nbsp;Paola Giovanna Vizziello","doi":"10.1111/cch.13324","DOIUrl":"10.1111/cch.13324","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>There is a growing interest in exploring parents' views on the benefits of early diagnosis and awareness of sex chromosome trisomies. However, only a few studies focus specifically on the experience of parents of children with XYY syndrome. The present study aimed to assess, in parents of individuals with XYY, the perceived severity of their children's condition, their level of satisfaction with the disclosure process and their concerns about their children's present and future condition.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A national online sample of 56 Italian parents of children and young adults diagnosed with XYY syndrome participated in the study. They filled out a specifically developed online survey that assessed their children's areas of concern, their experience with the disclosure process and their worries about their children's condition.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Seventy per cent of the parents received a prenatal diagnosis, whereas 30% received a postnatal diagnosis. High individual variability was found in the parent report of their child's condition. The most frequent areas of concern were attention regulation, emotion control and behaviour control. Individuals with a postnatal diagnosis showed more severe profiles. Parents were generally dissatisfied with the disclosure process, with no differences between prenatal and postnatal disclosure. However, more than 50% of the parents who received a prenatal disclosure reported that their child's condition was less severe than they had expected. In contrast, only 11% of the parents with postnatal disclosure reported this situation. Parents' concerns were negatively related to global satisfaction with the disclosure process and the correspondence between current and expected conditions but positively associated with the child's severity level.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The results suggest that clear and realistic information during the disclosure process to parents is needed in both prenatal and postnatal communication and may alleviate parents' concerns.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"50 5","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-08-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.13324","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142074609","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Disseminating the F-Words for Child Development to Parents of Children With Developmental Disabilities in Iran: A Qualitative Pilot Feasibility Study 向伊朗发育障碍儿童的家长传播儿童发展 F 词汇:定性试点可行性研究》。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-21 DOI: 10.1111/cch.13321
Zahra Maleki, Seifollah Heidarabadi, Ahmad Mohammadi, Saber Azami-Aghdash, Peter Rosenbaum, Andrea Cross, Alice Kelen Soper

Background

Attitudes toward childhood disability have historically focused on biomedical efforts on ‘fixing’. The introduction of WHO's ICF framework for health and Canadian researchers' ‘F-words’ (functioning, fitness, fun, friends, family and future) have significantly changed the field. To explore whether the F-words ideas influenced parents' perspectives on their child's abilities and rehabilitation goals, this qualitative pilot study introduced the F-words to Iranian parents with a child with a developmental disability.

Methods

This study was conducted in Tabriz, Iran, in 2023, using Iranian educational F-words materials built on ideas available on the CanChild F-words Knowledge Hub. Data were collected through semistructured interviews with five mothers of children <5 years old with a developmental disability before and after attending an ‘F-words Awareness Session’ and analysed using thematic analysis.

Results

In the preinterviews, six themes (and 20 subthemes) were identified: (i) routines (5); (ii) challenges (4); (iii) parental concerns (3); (iv) child's needs and priorities (3); (v) the role of parents in satisfying needs and challenges (2); and (vi) expectations of rehabilitation (3). In the postinterview, the same six themes and four additional subthemes emerged.

Conclusion

Findings from the pilot study showed that the intervention had an impact on the attitudes and behaviours of participants. Specifically, teaching about the F-words reduced parents' emphasis on the concept of ‘normality’. Families' positive response to the ‘F-words Awareness Session’ indicates their openness to incorporating this approach into their daily lives. These findings highlight the potential benefits of utilizing the F-words in rehabilitation in Iran. Studies like these can serve as a foundation for developing effective strategies for integrating the F-words into existing rehabilitation practices in Iran.

背景:对儿童残疾的态度历来侧重于生物医学的 "修复 "工作。世界卫生组织的《国际功能、残疾和健康分类》(ICF)健康框架和加拿大研究人员提出的 "F-words"(功能、健康、乐趣、朋友、家庭和未来)极大地改变了这一领域。为了探究 "F-words "理念是否会影响家长对子女能力和康复目标的看法,本定性试点研究向有发育障碍子女的伊朗家长介绍了 "F-words":本研究于 2023 年在伊朗大不里士进行,使用的伊朗 F-words 教育材料基于 CanChild F-words Knowledge Hub 上的观点。通过对五位儿童母亲进行半结构式访谈收集数据:在预访谈中,确定了六个主题(和 20 个次主题):(i) 常规(5);(ii) 挑战(4);(iii) 父母的担忧(3);(iv) 儿童的需求和优先事项(3);(v) 父母在满足需求和应对挑战方面的作用(2);(vi) 对康复的期望(3)。在后访谈中,出现了同样的六个主题和另外四个次主题:试点研究结果表明,干预措施对参与者的态度和行为产生了影响。具体来说,关于 "F-words "的教学减少了家长对 "正常 "概念的重视。家庭对 "F-words 认识课程 "的积极反应表明,他们愿意将这种方法融入日常生活。这些研究结果凸显了在伊朗康复中使用 F-words 的潜在益处。类似的研究可以作为制定有效战略的基础,将 F-words 纳入伊朗现有的康复实践中。
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引用次数: 0
Religious Coping as Mediator of Sense of Competence and Post-traumatic Growth in Mothers of Children With Cerebral Palsy 宗教应对是脑瘫儿童母亲能力感和创伤后成长的中介。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-15 DOI: 10.1111/cch.13322
Noor ul Ain, Anam Ali, Nazia Bashir

Objectives

The present study aimed to determine whether religious coping mediates the relationship between parenting sense of competence (PSOC) and post-traumatic growth (PTG).

Method

Cross-sectional research design was used. A sample of 74 mothers (age range; 20–45 years) of CP children (age range; 2–9 years) was collected through purposive sampling from different physiotherapy centres and special education schools of Lahore. PSOC scale, brief RCOPE and PTG inventory were used.

Results

Positive religious coping partially mediated (β = 0.190, 95% CI [0.026, 0.374], p < 0.05) between PSOC and PTG. Partial mediation exists between PSOC and appreciation of life through pathway of positive religious coping (β = 0.040, 95% CI [0.007, 0.075], p < 05). Full mediation exists between PSOC and personal strength through pathway of positive religious coping (β = 0.041, 95% CI [0.001, 0.081], p < 0.05) and through negative religious coping (β = 0.034, 95% CI [0.002, 0.066], p < 0.05). Positive religious coping fully mediated (β = 0.029, 95% CI [0.007, 0.058], p < 0.05) between PSOC and spiritual change. Moreover, indirect effect of PSOC on relating to others and new possibilities through positive and negative religious coping was non-significant, indicating no mediation.

Conclusion

Positive religious coping affected the association between PSOC and PTG, that is, mothers of CP children having high parenting competence are more likely to use positive religious coping strategies that results in more PTG.

研究目的:本研究旨在确定宗教应对方式是否对养育能力感(PSOC)和创伤后成长(PTG)之间的关系具有中介作用:本研究旨在确定宗教应对是否能调节养育能力感(PSOC)与创伤后成长(PTG)之间的关系:方法:采用横断面研究设计。方法:采用横断面研究设计,从拉合尔市不同的物理治疗中心和特殊教育学校有目的抽样,收集了 74 位 CP 儿童(2-9 岁)的母亲(年龄在 20-45 岁之间)。研究使用了PSOC量表、简明RCOPE和PTG问卷:结果:积极的宗教应对方式在一定程度上起到了中介作用(β = 0.190,95% CI [0.026,0.374],p 结论:积极的宗教应对方式影响了 PSOC 和 PTG 之间的关系:积极的宗教应对会影响 PSOC 与 PTG 之间的关联,即养育能力高的 CP 儿童的母亲更有可能使用积极的宗教应对策略,从而导致更多的 PTG。
{"title":"Religious Coping as Mediator of Sense of Competence and Post-traumatic Growth in Mothers of Children With Cerebral Palsy","authors":"Noor ul Ain,&nbsp;Anam Ali,&nbsp;Nazia Bashir","doi":"10.1111/cch.13322","DOIUrl":"10.1111/cch.13322","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Objectives</h3>\u0000 \u0000 <p>The present study aimed to determine whether religious coping mediates the relationship between parenting sense of competence (PSOC) and post-traumatic growth (PTG).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Cross-sectional research design was used. A sample of 74 mothers (age range; 20–45 years) of CP children (age range; 2–9 years) was collected through purposive sampling from different physiotherapy centres and special education schools of Lahore. PSOC scale, brief RCOPE and PTG inventory were used.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Positive religious coping partially mediated (β = 0.190, 95% CI [0.026, 0.374], <i>p</i> &lt; 0.05) between PSOC and PTG. Partial mediation exists between PSOC and appreciation of life through pathway of positive religious coping (β = 0.040, 95% CI [0.007, 0.075], <i>p</i> &lt; 05). Full mediation exists between PSOC and personal strength through pathway of positive religious coping (β = 0.041, 95% CI [0.001, 0.081], <i>p</i> &lt; 0.05) and through negative religious coping (β = 0.034, 95% CI [0.002, 0.066], <i>p</i> &lt; 0.05). Positive religious coping fully mediated (β = 0.029, 95% CI [0.007, 0.058], <i>p</i> &lt; 0.05) between PSOC and spiritual change. Moreover, indirect effect of PSOC on relating to others and new possibilities through positive and negative religious coping was non-significant, indicating no mediation.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Positive religious coping affected the association between PSOC and PTG, that is, mothers of CP children having high parenting competence are more likely to use positive religious coping strategies that results in more PTG.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"50 5","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-08-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141984016","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Healthcare Professionals' Perspectives on the Use of Standing Frames for Children Diagnosed With Cerebral Palsy: An Explanatory Mixed Methods Study 医护人员对确诊为脑瘫的儿童使用站立架的看法:一项解释性混合方法研究。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-14 DOI: 10.1111/cch.13320
Michaela Andersen, Lærke Hartvig Krarup, Nanna Rolving, Anders Holsgaard-Larsen, Charlotte Pawlowski, Helle Mätzke Rasmussen, Maja Husted Hubeishy

Background

Standing frames are commonly used by healthcare professionals in their practice with children with cerebral palsy (CP) who do not have an independent standing function. A better understanding of healthcare professionals' attitudes and experiences with standing frames may impact practice and rehabilitation. Therefore, this study aimed to investigate the standing frame practice among healthcare professionals and expand their attitude and experience with the use of standing frames for children with CP.

Methods

This is an explanatory sequential mixed methods study. A cross-sectional survey was conducted, providing quantitative data on 210 healthcare professionals' use of standing frames. The quantitative data were descriptively analysed. Subsequently, the results from the survey were followed up with five focus group interviews of healthcare professionals (n = 14). The qualitative data were analysed using thematic analysis, enabling integration between the quantitative and qualitative data.

Results

When quantitative and qualitative data are integrated, expansion between the two datasets occurred. The quantitative dataset emphasised the use of GMFCS levels as a guideline for recommending standing frames, whereas the qualitative data showed that the healthcare professionals' recommendations were based on individual needs. Furthermore, the healthcare professionals expanded the quantitative data, showing that the healthcare professionals' considerations regarding age and dosage were based on clinical experience, and saw the standing frame as having many benefits.

Conclusion

The healthcare professionals had a child-centred approach, where the child's need for using a standing frame was assessed based on the functional level, stage of development, cognitive level and clinical assessment. All of these considerations showed that the use of standing frames for children with CP was individualised, thereby making it difficult to make unified descriptions.

背景:对于没有独立站立功能的脑性瘫痪(CP)儿童,医护人员通常会使用站立架。更好地了解医护人员对站立架的态度和经验可能会对实践和康复产生影响。因此,本研究旨在调查医护人员的站立架使用情况,并拓展他们对 CP 儿童使用站立架的态度和经验:这是一项解释性顺序混合方法研究。我们进行了一项横断面调查,提供了 210 名医护人员使用站立架的定量数据。对定量数据进行了描述性分析。随后,对调查结果进行了跟进,对医护人员进行了五次焦点小组访谈(n = 14)。采用主题分析法对定性数据进行了分析,从而实现了定量数据与定性数据的整合:结果:定量和定性数据整合后,两个数据集之间出现了扩展。定量数据集强调了使用 GMFCS 水平作为推荐站立架的指导原则,而定性数据则表明医护人员的建议是基于个人需求的。此外,医护人员对定量数据进行了扩展,表明医护人员对年龄和剂量的考虑是基于临床经验,并认为站立架有很多好处:医护人员采用了以儿童为中心的方法,根据儿童的功能水平、发育阶段、认知水平和临床评估来评估儿童是否需要使用站立架。所有这些因素都表明,CP 儿童使用站立架是因人而异的,因此很难做出统一的描述。
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引用次数: 0
Cognitive enhancement through technology: A review of transcranial electrical stimulation (TES) interventions in children and adolescents with specific learning disabilities 通过技术提高认知能力:对有特殊学习障碍的儿童和青少年进行经颅电刺激(TES)干预的综述。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-08 DOI: 10.1111/cch.13318
Elahe Fathi Azar, Mahnaz Hejazi-Shirmard, Hooshang Mirzaie

Background

In recent years, the exploration of innovative interventions for addressing problems of children and adolescents with specific learning disabilities (SLD) has garnered significant attention within the realm of neurocognitive research. Transcranial electrical stimulation (TES) has emerged as a promising tool for enhancing cognitive skills in children, offering a non-invasive and safe method that may particularly benefit those with learning difficulties. We aimed to appraise the extent and the quality of studies about impact of TES on cognitive skills including academic skills in children and adolescents with SLD.

Methods

A literature search was performed according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Articles published between January 2000 and January 2024 were searched in PubMed, Embase, Scopus, Web of Science and Google Scholar. The study eligibility criteria were previously established according to the PICO model. The Physiotherapy Evidence Database (PEDro) scale and Cochrane Collaboration tool (ROB2) were used to assess the methodological quality and the risk of bias of the included studies, respectively.

Results

The initial search yielded 1571 studies among which 30 studies were systematically reviewed. The total number of participants was 224 individuals (intervention: 114; control: 110). Findings showed significant improvements in reading skills such as text reading, high-frequency word reading speed and efficiency and mathematical skills. Conversely, other cognitive skills such as working memory were not improved in people with dyslexia and dyscalculia.

Discussion

TES interventions can positively affect cognitive skills in children and adolescents with SLD; However, due to the small number of studies, medium methodological quality and high risk of bias, caution should be taken when interpreting the results.

背景:近年来,为解决有特殊学习障碍(SLD)的儿童和青少年的问题而进行的创新干预探索在神经认知研究领域引起了极大关注。经颅电刺激(TES)已成为提高儿童认知能力的一种有前途的工具,它提供了一种非侵入性的安全方法,尤其能使有学习困难的儿童受益。我们的目的是评估有关颅内电刺激对认知能力(包括有 SLD 的儿童和青少年的学习能力)影响的研究的范围和质量:方法:根据《系统综述和元分析首选报告项目》(PRISMA)指南进行文献检索。在 PubMed、Embase、Scopus、Web of Science 和 Google Scholar 中检索了 2000 年 1 月至 2024 年 1 月间发表的文章。研究资格标准是根据 PICO 模型确定的。物理治疗证据数据库(PEDro)量表和 Cochrane 协作工具(ROB2)分别用于评估纳入研究的方法学质量和偏倚风险:初步检索共获得 1571 项研究,对其中 30 项研究进行了系统审查。参与者总数为 224 人(干预:114 人;对照:110 人)。研究结果表明,阅读能力(如文字阅读、高频词阅读速度和效率)和数学能力都有明显提高。相反,阅读障碍和计算障碍患者的其他认知能力(如工作记忆)没有得到改善:讨论:TES干预措施可对患有SLD的儿童和青少年的认知能力产生积极影响;然而,由于研究数量少、方法学质量中等、偏倚风险高,在解释结果时应谨慎。
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引用次数: 0
期刊
Child Care Health and Development
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