Background: Individuals experiencing perinatal loss are entitled to respectful maternity care, but a paucity of research examines respectful care at the time of pregnancy loss.
Method: We used data from an online cross-sectional survey (July 2020-February 2022), where 172 individuals reported on early (miscarriage) and late (late second trimester, stillbirth, neonatal death) losses since 2009. We aimed to explore inequities in respectful care experiences among individuals experiencing a late versus early perinatal loss in Canada. We assessed their experiences using the Mothers' Autonomy in Decision Making (MADM) scale and the Mothers on Respect Index (MORi). We created the Compassionate Disclosure of (perinatal) Loss (CDL) index to measure respectful care at the time of a loss. A single separate item, provider not listening to the individual's expression of concerns during pregnancy, was also analyzed.
Results: The early and late loss groups differed in education levels. Individuals who self-identified as Indigenous/Black/People of Color (IBPOC) had lower odds of scoring in the top quartile on MADM and MORi scales (AOR = 0.31, 95% CI 0.13, 0.75; AOR = 0.34, 95% CI 0.13, 0.86); and higher odds of reporting that providers did not listen to their concerns prior to the loss (AOR = 2.61, 95% CI 1.24, 5.48). Psychometric analysis supported the CDL index. Participants experiencing late loss had higher odds of reporting top quartile CDL scores than those experiencing early loss (AOR = 3.08, CI 1.22, 7.77).
Conclusion: Canadian individuals with perinatal loss report disproportionately poorer care when they are experiencing a miscarriage and when they identify as IBPOC.
背景:经历围产期损失的个人有权获得尊重的产妇护理,但缺乏研究检查在怀孕损失时的尊重护理。方法:我们使用了一项在线横断面调查(2020年7月至2022年2月)的数据,其中172人报告了自2009年以来的早期(流产)和晚期(妊娠中期晚期、死胎、新生儿死亡)损失。我们的目的是探讨在加拿大经历晚期和早期围产期损失的个体之间尊重护理经验的不平等。我们使用母亲决策自主权(MADM)量表和母亲尊重指数(MORi)来评估她们的经历。我们创建了(围产期)损失的同情披露(CDL)指数来衡量在损失时的尊重护理。还分析了一个单独的项目,即提供者在怀孕期间没有倾听个人的担忧表达。结果:早衰组和晚衰组受教育程度不同。自认为是土著/黑人/有色人种(IBPOC)的个体在MADM和MORi量表上得分前四分位数的几率较低(AOR = 0.31, 95% CI 0.13, 0.75; AOR = 0.34, 95% CI 0.13, 0.86);报告提供者在损失前没有倾听他们的担忧的几率更高(AOR = 2.61, 95% CI 1.24, 5.48)。心理测量分析支持CDL指数。经历晚期丧失的参与者比经历早期丧失的参与者报告最高四分位数CDL评分的几率更高(AOR = 3.08, CI 1.22, 7.77)。结论:加拿大个体围产期损失报告不成比例的较差护理时,他们正在经历流产,当他们确定为IBPOC。
{"title":"Inequities in Care During Pregnancy Loss: Empirical Insights From Experiences With Canadian Perinatal Care.","authors":"Wendy A Hall, Nisha Malhotra, Esther Clark, Karen Hodge, Gabrielle Griffith, Saraswathi Vedam","doi":"10.1111/birt.70020","DOIUrl":"https://doi.org/10.1111/birt.70020","url":null,"abstract":"<p><strong>Background: </strong>Individuals experiencing perinatal loss are entitled to respectful maternity care, but a paucity of research examines respectful care at the time of pregnancy loss.</p><p><strong>Method: </strong>We used data from an online cross-sectional survey (July 2020-February 2022), where 172 individuals reported on early (miscarriage) and late (late second trimester, stillbirth, neonatal death) losses since 2009. We aimed to explore inequities in respectful care experiences among individuals experiencing a late versus early perinatal loss in Canada. We assessed their experiences using the Mothers' Autonomy in Decision Making (MADM) scale and the Mothers on Respect Index (MORi). We created the Compassionate Disclosure of (perinatal) Loss (CDL) index to measure respectful care at the time of a loss. A single separate item, provider not listening to the individual's expression of concerns during pregnancy, was also analyzed.</p><p><strong>Results: </strong>The early and late loss groups differed in education levels. Individuals who self-identified as Indigenous/Black/People of Color (IBPOC) had lower odds of scoring in the top quartile on MADM and MORi scales (AOR = 0.31, 95% CI 0.13, 0.75; AOR = 0.34, 95% CI 0.13, 0.86); and higher odds of reporting that providers did not listen to their concerns prior to the loss (AOR = 2.61, 95% CI 1.24, 5.48). Psychometric analysis supported the CDL index. Participants experiencing late loss had higher odds of reporting top quartile CDL scores than those experiencing early loss (AOR = 3.08, CI 1.22, 7.77).</p><p><strong>Conclusion: </strong>Canadian individuals with perinatal loss report disproportionately poorer care when they are experiencing a miscarriage and when they identify as IBPOC.</p>","PeriodicalId":55350,"journal":{"name":"Birth-Issues in Perinatal Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2025-09-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145193864","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}