Battisti, D. (2023). Attitudes, intentions and procreative responsibility in current and future assisted reproduction. Bioethics, 37(5), 449–461. https://doi.org/10.1111/bioe.13150.
The name ‘McDougall’ is incorrectly spelled as ‘McDougal’ on pages 453 and 454.
The phrase ‘focus-agent focus’ on page 454 is incorrect and should read ‘future-agent focus’.
The part of the sentence "implies the prospective parents" should be replaced with "commits", and the word "have" in the same sentence should be replaced with "having". This sentence should read: "Considering this, we can recognize that the parent-child relationship argument commits procreators to having attitudes and intentions that are not in contrast with the desires and hopes that their children's lives go well and that they are safe from suffering" paragraph 4, page 456.
The word ‘having’ should be replaced with ‘parenting’ in the final paragraph of page 455. This sentence should read: ‘On the one hand, the distinction between creating and parenting a child enables us to justify the fact that the beginning of a parent–child relationship is also morally relevant in the procreative context’.
The word ‘having’ should be replaced with ‘creating’ on the first line of page 456. This sentence should read: ‘To explain the moral relevance of the distinction between creating and parenting a child let us consider again the example of the couple that, through PGD plus IVF, deliberately select a child with a disability D’.
{"title":"Corrigendum to: Attitudes, intentions and procreative responsibility in current and future assisted reproduction","authors":"","doi":"10.1111/bioe.13278","DOIUrl":"10.1111/bioe.13278","url":null,"abstract":"<p>Battisti, D. (2023). Attitudes, intentions and procreative responsibility in current and future assisted reproduction. <i>Bioethics, 37</i>(5), 449–461. https://doi.org/10.1111/bioe.13150.</p><p>The name ‘McDougall’ is incorrectly spelled as ‘McDougal’ on pages 453 and 454.</p><p>The phrase ‘focus-agent focus’ on page 454 is incorrect and should read ‘future-agent focus’.</p><p>The part of the sentence \"implies the prospective parents\" should be replaced with \"commits\", and the word \"have\" in the same sentence should be replaced with \"having\". This sentence should read: \"Considering this, we can recognize that the parent-child relationship argument commits procreators to having attitudes and intentions that are not in contrast with the desires and hopes that their children's lives go well and that they are safe from suffering\" paragraph 4, page 456.</p><p>The word ‘having’ should be replaced with ‘parenting’ in the final paragraph of page 455. This sentence should read: ‘On the one hand, the distinction between creating and parenting a child enables us to justify the fact that the beginning of a parent–child relationship is also morally relevant in the procreative context’.</p><p>The word ‘having’ should be replaced with ‘creating’ on the first line of page 456. This sentence should read: ‘To explain the moral relevance of the distinction between creating and parenting a child let us consider again the example of the couple that, through PGD plus IVF, deliberately select a child with a disability D’.</p>","PeriodicalId":55379,"journal":{"name":"Bioethics","volume":"38 4","pages":"377"},"PeriodicalIF":2.2,"publicationDate":"2024-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/bioe.13278","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140066278","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Caspar W. Safarlou, Annelien L. Bredenoord, Roel Vermeulen, Karin R. Jongsma
Exposome research is put forward as a major tool for solving the nature-versus-nurture debate because the exposome is said to represent “the nature of nurture.” Against this influential idea, we argue that the adoption of the nature-versus-nurture debate into the exposome research program is a mistake that needs to be undone to allow for a proper bioethical assessment of exposome research. We first argue that this adoption is originally based on an equivocation between the traditional nature-versus-nurture debate and a debate about disease prediction/etiology. Second, due to this mistake, exposome research is pushed to adopt a limited conception of agential control that is harmful to one's thinking about the good that exposome research can do for human health and wellbeing. To fully excise the nature-versus-nurture debate from exposome research, we argue that exposome researchers and bioethicists need to think about the exposome afresh from the perspective of actionability. We define the concept of actionability and related concepts and show how these can be used to analyze the ethical aspects of the exposome. In particular, we focus on refuting the popular “gun analogy” in exposome research, returning results to study participants and risk-taking in the context of a well-lived life.
{"title":"Nature-versus-nurture considered harmful: Actionability as an alternative tool for understanding the exposome from an ethical perspective","authors":"Caspar W. Safarlou, Annelien L. Bredenoord, Roel Vermeulen, Karin R. Jongsma","doi":"10.1111/bioe.13276","DOIUrl":"10.1111/bioe.13276","url":null,"abstract":"<p>Exposome research is put forward as a major tool for solving the nature-versus-nurture debate because the exposome is said to represent “the nature of nurture.” Against this influential idea, we argue that the adoption of the nature-versus-nurture debate into the exposome research program is a mistake that needs to be undone to allow for a proper bioethical assessment of exposome research. We first argue that this adoption is originally based on an equivocation between the traditional nature-versus-nurture debate and a debate about disease prediction/etiology. Second, due to this mistake, exposome research is pushed to adopt a limited conception of agential control that is harmful to one's thinking about the good that exposome research can do for human health and wellbeing. To fully excise the nature-versus-nurture debate from exposome research, we argue that exposome researchers and bioethicists need to think about the exposome afresh from the perspective of actionability. We define the concept of actionability and related concepts and show how these can be used to analyze the ethical aspects of the exposome. In particular, we focus on refuting the popular “gun analogy” in exposome research, returning results to study participants and risk-taking in the context of a well-lived life.</p>","PeriodicalId":55379,"journal":{"name":"Bioethics","volume":"38 4","pages":"356-366"},"PeriodicalIF":2.2,"publicationDate":"2024-03-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/bioe.13276","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140029633","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Cryonics is the practice of cryopreserving the bodies or brains of legally dead individuals with the hope that these individuals will be reanimated in the future. A standard argument for cryonics says that cryonics is prudentially justified despite uncertainty about its success because at worst it will leave you no worse off than you otherwise would have been had you not chosen cryonics, and at best it will leave you much better off than you otherwise would have been. Thus, it is a good, no-risk bet; in game-theoretic terms, cryonics is a weakly dominant strategy relative to refraining from utilizing cryonics. I object to this argument for two reasons. First, I argue that there is a practically relevant chance that cryonics will put you into an inescapable and very bad situation. Hence, cryonics is neither a no-risk bet nor a weakly dominant strategy. Second, I argue that the experience of being reanimated and living in the distant future would likely be transformative, and this likelihood undermines your justification for thinking that reanimation would be beneficial to you. I conclude that the standard argument does not show that cryonics is prudentially justified.
{"title":"Cryonics: Traps and transformations","authors":"Daniel Story","doi":"10.1111/bioe.13277","DOIUrl":"10.1111/bioe.13277","url":null,"abstract":"<p>Cryonics is the practice of cryopreserving the bodies or brains of legally dead individuals with the hope that these individuals will be reanimated in the future. A standard argument for cryonics says that cryonics is prudentially justified despite uncertainty about its success because at worst it will leave you no worse off than you otherwise would have been had you not chosen cryonics, and at best it will leave you much better off than you otherwise would have been. Thus, it is a good, no-risk bet; in game-theoretic terms, cryonics is a weakly dominant strategy relative to refraining from utilizing cryonics. I object to this argument for two reasons. First, I argue that there is a practically relevant chance that cryonics will put you into an inescapable and very bad situation. Hence, cryonics is neither a no-risk bet nor a weakly dominant strategy. Second, I argue that the experience of being reanimated and living in the distant future would likely be transformative, and this likelihood undermines your justification for thinking that reanimation would be beneficial to you. I conclude that the standard argument does not show that cryonics is prudentially justified.</p>","PeriodicalId":55379,"journal":{"name":"Bioethics","volume":"38 4","pages":"351-355"},"PeriodicalIF":2.2,"publicationDate":"2024-02-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139998376","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Both trolleys and war leave innocent victims to suffer death and injury. Trolley problems accounting for the injured, and not only the dead, tease out intuitions about liability that enhance our understanding of the obligation to provide compensation and medical care to civilian victims of war. Like many trolley victims, civilians in war may suffer justifiable, excusable, or negligent harms that demand compensation. Chief among these is collateral harm befalling civilians. Collateral harm is endemic to war and comprises permissible but unavoidable death or injury following necessary and proportionate military operations. Although state armies sometimes offer condolence payments for civilian death, injury, and property loss, they deny liability. Instead, they use compensation to enhance counterinsurgency efforts and assuage feelings of agent regret. As part of the medical rules of eligibility, Coalition forces in Iraq and Afghanistan also provided medical care to victims of collateral harm. However, they denied care to similarly sick or injured civilians. While compensation is often justified to cure the harm civilians suffer, the differential use of medical resources is not. Rather, medical care remains subject to the principle of beneficence and medical need. The duty to provide civilian healthcare in war, particularly in wars of humanitarian intervention, is far-reaching and imposes significant costs that military and medical ethics are yet to recognize.
{"title":"Treating the innocent victims of trolleys and war.","authors":"Michael L Gross","doi":"10.1111/bioe.13273","DOIUrl":"https://doi.org/10.1111/bioe.13273","url":null,"abstract":"<p><p>Both trolleys and war leave innocent victims to suffer death and injury. Trolley problems accounting for the injured, and not only the dead, tease out intuitions about liability that enhance our understanding of the obligation to provide compensation and medical care to civilian victims of war. Like many trolley victims, civilians in war may suffer justifiable, excusable, or negligent harms that demand compensation. Chief among these is collateral harm befalling civilians. Collateral harm is endemic to war and comprises permissible but unavoidable death or injury following necessary and proportionate military operations. Although state armies sometimes offer condolence payments for civilian death, injury, and property loss, they deny liability. Instead, they use compensation to enhance counterinsurgency efforts and assuage feelings of agent regret. As part of the medical rules of eligibility, Coalition forces in Iraq and Afghanistan also provided medical care to victims of collateral harm. However, they denied care to similarly sick or injured civilians. While compensation is often justified to cure the harm civilians suffer, the differential use of medical resources is not. Rather, medical care remains subject to the principle of beneficence and medical need. The duty to provide civilian healthcare in war, particularly in wars of humanitarian intervention, is far-reaching and imposes significant costs that military and medical ethics are yet to recognize.</p>","PeriodicalId":55379,"journal":{"name":"Bioethics","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2024-02-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139934385","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Joona Räsänen, Andreas Bengtson, Hugo Cossette-Lefebvre, Kasper Lippert-Rasmussen
Herjeet Kaur Marway recently proposed the Principle of Procreative Justice, which says that reproducers have a strong moral obligation to avoid completing race and colour injustices through their selection choices. In this article, we analyze this principle and argue, appealing to a series of counterexamples, that some of the implications of Marway's Principle of Procreative Justice are difficult to accept. This casts doubt on whether the principle should be adopted. Also, we show that there are some more principled worries regarding Marway's idea of a strong pro tanto duty not to complete injustices through one's procreative choices. Nonetheless, we believe Marway's arguments point in the right general direction regarding duties and structural injustice. Thus, in the final part, we suggest a positive proposal on how it would be possible to respond to the cases we raise. More specifically, we explore the suggestion that agents have a pro tanto duty to participate in eliminating structural injustice. Importantly, this duty can be satisfied, not only in procreation choices but in multiple ways.
Herjeet Kaur Marway 最近提出了 "生育正义原则"(Principle of Procreative Justice),认为生育者有强烈的道德义务避免通过选择完成种族和肤色的不公正。在本文中,我们对这一原则进行了分析,并通过一系列反例论证了马威的 "生育正义原则 "的某些含义是难以接受的。这使我们对是否应采纳该原则产生了怀疑。此外,我们还指出,对于马威提出的不通过生育选择完成不公正行为的强烈亲权义务这一观点,存在一些更具原则性的担忧。尽管如此,我们相信马威的论证在义务和结构性不公正方面指出了正确的大方向。因此,在最后一部分,我们就如何应对我们提出的案例提出了一个积极的建议。更具体地说,我们探讨了代理人有责任参与消除结构性不公正的建议。重要的是,这种责任不仅可以在生育选择中得到满足,而且可以通过多种方式得到满足。
{"title":"A critical take on procreative justice","authors":"Joona Räsänen, Andreas Bengtson, Hugo Cossette-Lefebvre, Kasper Lippert-Rasmussen","doi":"10.1111/bioe.13274","DOIUrl":"10.1111/bioe.13274","url":null,"abstract":"<p>Herjeet Kaur Marway recently proposed the Principle of Procreative Justice, which says that reproducers have a strong moral obligation to avoid completing race and colour injustices through their selection choices. In this article, we analyze this principle and argue, appealing to a series of counterexamples, that some of the implications of Marway's Principle of Procreative Justice are difficult to accept. This casts doubt on whether the principle should be adopted. Also, we show that there are some more principled worries regarding Marway's idea of a strong pro tanto duty not to complete injustices through one's procreative choices. Nonetheless, we believe Marway's arguments point in the right general direction regarding duties and structural injustice. Thus, in the final part, we suggest a positive proposal on how it would be possible to respond to the cases we raise. More specifically, we explore the suggestion that agents have a pro tanto duty to participate in eliminating structural injustice. Importantly, this duty can be satisfied, not only in procreation choices but in multiple ways.</p>","PeriodicalId":55379,"journal":{"name":"Bioethics","volume":"38 4","pages":"367-374"},"PeriodicalIF":2.2,"publicationDate":"2024-02-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139934384","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This analysis investigates whether solidarity is an appropriate concept for thinking about justifications for a just distribution of bioethical goods in the international arena. This will be explored by looking at the national origins of the idea of justifying solidarity in the form of the health care that welfare states offer. Following that, ‘life’ and ‘health’ will be placed within a philosophical context by focusing on the main arguments of John Rawls and Amartya Sen and the role of solidarity in these two theories of justice will be analysed. It will be shown that these theories assume that solidarity is not a prerequisite for just international structures. Finally, the possibility will be discussed, that there is a degree of uncertainty surrounding justifications for fair distribution in the international context that can result when the concepts of solidarity and justice are handled imprecisely.
{"title":"The role of the concept of solidarity for just distribution of bioethical goods in the international area","authors":"Nadja Wolf","doi":"10.1111/bioe.13271","DOIUrl":"10.1111/bioe.13271","url":null,"abstract":"<p>This analysis investigates whether solidarity is an appropriate concept for thinking about justifications for a just distribution of bioethical goods in the international arena. This will be explored by looking at the national origins of the idea of justifying solidarity in the form of the health care that welfare states offer. Following that, ‘life’ and ‘health’ will be placed within a philosophical context by focusing on the main arguments of John Rawls and Amartya Sen and the role of solidarity in these two theories of justice will be analysed. It will be shown that these theories assume that solidarity is not a prerequisite for just international structures. Finally, the possibility will be discussed, that there is a degree of uncertainty surrounding justifications for fair distribution in the international context that can result when the concepts of solidarity and justice are handled imprecisely.</p>","PeriodicalId":55379,"journal":{"name":"Bioethics","volume":"38 4","pages":"344-350"},"PeriodicalIF":2.2,"publicationDate":"2024-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/bioe.13271","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139898350","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
In biomedical ethics, there is widespread acceptance of moral realism, the view that moral claims express a proposition and that at least some of these propositions are true. Biomedical ethics is also in the business of attributing moral obligations, such as “S should do X.” The problem, as we argue, is that against the background of moral realism, most of these attributions are erroneous or inaccurate. The typical obligation attribution issued by a biomedical ethicist fails to truly capture the person's actual obligations. We offer a novel argument for rife error in obligation attribution. The argument starts with the idea of an epistemic burden. Epistemic burdens are all of those epistemic obstacles one must surmount in order to achieve some aim. Epistemic burdens shape decision-making such that given two otherwise equal options, a person will choose the option that has the lesser of epistemic burdens. Epistemic burdens determine one's potential obligations and, conversely, their non-obligations. The problem for biomedical ethics is that ethicists have little to no access to others' epistemic burdens. Given this lack of access and the fact that epistemic burdens determine potential obligations, biomedical ethicists often can only attribute accurate obligations out of luck. This suggests that the practice of attributing obligations in biomedical ethics is rife with error. To resolve this widespread error, we argue that this practice should be abolished from the discourse of biomedical ethics.
{"title":"Abolishing morality in biomedical ethics","authors":"Parker Crutchfield, Scott Scheall","doi":"10.1111/bioe.13275","DOIUrl":"10.1111/bioe.13275","url":null,"abstract":"<p>In biomedical ethics, there is widespread acceptance of moral realism, the view that moral claims express a proposition and that at least some of these propositions are true. Biomedical ethics is also in the business of attributing moral obligations, such as “S should do X.” The problem, as we argue, is that against the background of moral realism, most of these attributions are erroneous or inaccurate. The typical obligation attribution issued by a biomedical ethicist fails to truly capture the person's actual obligations. We offer a novel argument for rife error in obligation attribution. The argument starts with the idea of an epistemic burden. Epistemic burdens are all of those epistemic obstacles one must surmount in order to achieve some aim. Epistemic burdens shape decision-making such that given two otherwise equal options, a person will choose the option that has the lesser of epistemic burdens. Epistemic burdens determine one's potential obligations and, conversely, their non-obligations. The problem for biomedical ethics is that ethicists have little to no access to others' epistemic burdens. Given this lack of access and the fact that epistemic burdens determine potential obligations, biomedical ethicists often can only attribute accurate obligations out of luck. This suggests that the practice of attributing obligations in biomedical ethics is rife with error. To resolve this widespread error, we argue that this practice should be abolished from the discourse of biomedical ethics.</p>","PeriodicalId":55379,"journal":{"name":"Bioethics","volume":"38 4","pages":"316-325"},"PeriodicalIF":2.2,"publicationDate":"2024-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139898348","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
The World Medical Association has announced that a new revision process of the Declaration of Helsinki has been started. This article will identify the criticisms that have been made in the bioethics literature, particularly since the last revision. In addition, criticisms are discussed that were made in the literature even before the last revision and have not fallen silent. The plausibility of the recommendation for a change in the Declaration of Helsinki is examined.
{"title":"The Declaration of Helsinki in bioethics literature since the last revision in 2013","authors":"Hans-Jörg Ehni, Urban Wiesing","doi":"10.1111/bioe.13270","DOIUrl":"10.1111/bioe.13270","url":null,"abstract":"<p>The World Medical Association has announced that a new revision process of the Declaration of Helsinki has been started. This article will identify the criticisms that have been made in the bioethics literature, particularly since the last revision. In addition, criticisms are discussed that were made in the literature even before the last revision and have not fallen silent. The plausibility of the recommendation for a change in the Declaration of Helsinki is examined.</p>","PeriodicalId":55379,"journal":{"name":"Bioethics","volume":"38 4","pages":"335-343"},"PeriodicalIF":2.2,"publicationDate":"2024-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/bioe.13270","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139898349","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Divergences and controversies are inevitable in the discussion of freedoms and rights, especially in the matter of reproduction. The Chinese first social egg freezing lawsuit raises the question: is the freedom to freeze eggs for social reasons justified because it is an instance of reproductive rights? This paper accepts social egg freezing as desirable reproductive freedom, but following Harel's approach and considering two theories of rights, the choice and interest theories of rights, we argue that social egg freezing is not a reproductive right because one cannot justify a right or an instance of rights via merely describing the function of those instances that have been justified as right, that is, the choice theory lacks justifying normativity. Since reserving fertility and a suspension from reproduction do not serve reproductive ends per se, the sufficient reason for demanding social egg freezing as a right should be found in other ends rather than in right-to-reproduce, that is, the interest theory denies the demand as a right-to-reproduce. Permitting it on any grounds without guaranteeing adequate and accessible resources, especially in light of cross-border reproductive care, raises serious questions about reproductive equality and violates the idea of reproductive rights. Therefore, any ground for social egg freezing should be weighed against whether more pressing reproductive needs, specifically those that are justified as rights, have been met. It would be social progress to shoulder these burdens for the vulnerable and then allow social egg freezing—if right-to-reproduce were not the only privilege of the few.
{"title":"Social egg freezing and reproductive rights justification: A perspective from China","authors":"Zhaochen Wang, Yuzhi Fan, Wenchen Shao","doi":"10.1111/bioe.13272","DOIUrl":"10.1111/bioe.13272","url":null,"abstract":"<p>Divergences and controversies are inevitable in the discussion of freedoms and rights, especially in the matter of reproduction. The Chinese first social egg freezing lawsuit raises the question: is the freedom to freeze eggs for social reasons justified because it is an instance of reproductive rights? This paper accepts social egg freezing as desirable reproductive freedom, but following Harel's approach and considering two theories of rights, the choice and interest theories of rights, we argue that social egg freezing is not a reproductive right because one cannot justify a right or an instance of rights via merely describing the function of those instances that have been justified as right, that is, the choice theory lacks justifying normativity. Since reserving fertility and a suspension from reproduction do not serve reproductive ends <i>per se</i>, the sufficient reason for demanding social egg freezing as a right should be found in other ends rather than in right-to-reproduce, that is, the interest theory denies the demand as a right-to-reproduce. Permitting it on any grounds without guaranteeing adequate and accessible resources, especially in light of cross-border reproductive care, raises serious questions about reproductive equality and violates the idea of reproductive rights. Therefore, any ground for social egg freezing should be weighed against whether more pressing reproductive needs, specifically those that are justified as rights, have been met. It would be social progress to shoulder these burdens for the vulnerable and then allow social egg freezing—if right-to-reproduce were not the only privilege of the few.</p>","PeriodicalId":55379,"journal":{"name":"Bioethics","volume":"38 4","pages":"326-334"},"PeriodicalIF":2.2,"publicationDate":"2024-02-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139747856","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
<p>Bioethics as a field has sometimes struggled to have, and demonstrate, “real-world” impact. Notwithstanding the fact that bioethics lies at the practical/applied end of the ethics spectrum, and for some can only really be understood as a field concerned with ‘practical ought questions’,1 it is hopefully not too controversial to say that bioethics has tended to adopt a relatively passive ‘if we build it, they will come’ attitude to impact. That is, impact being achieved ad hoc through, for example, committee work, rather than systematically as a planned output of research.2 The problem with this kind of approach is that clinicians and policymakers at all levels will be largely unaware of much of the bioethics literature, and bioethicists may not always have a full understanding of evolving clinical realities. As such, bioethicists may not be producing work that resonates sufficiently with decision makers, even if they happened to come across it at an apposite time. An obvious recent example was the response of the bioethics community to the COVID-19 pandemic. Countless publications explored various challenges, but there is an open question as to how much impact resulted.</p><p>Efforts to overcome accusations of ivory tower ethics have included the so-called ‘empirical turn’ in bioethics.3 That is, combining normative and empirical inquiry with the aim of grounding ethical theorising in context.4 Whilst not universally adopted, there has certainly been a strong uptake of empirical bioethics methods and methodologies, as scholars look to orient their works towards practice and impact. Complementing this empirical turn, and possibly even prior to it, a literature has been developing that consider impact in different ways—focussing on the idea of translational bioethics. The first use of this term is often attributed to Cribb, who argued in 2010 that just as scientific research paradigms have ‘bench to bedside’ process, so might bioethics, explicitly introducing the idea that translational work might be undertaken to develop impact from bioethics research.5 Bærøe later explicitly developed this idea of translational bioethics.6 More recently, Sisk and colleagues have argued for the incorporation of implementation science into bioethics, to ensure that impact is achieved.7</p><p>Whether positioned as parallel to, or part of, empirical bioethics, this developing literature is distinct, as it is concerned with the role of bioethics research in policy and practice, and how this relationship can be characterised—in terms of process, scope, and direction. Important questions in translational bioethics discourse include: How should translational bioethics be defined? What is the purpose of translational bioethics? Is there a need for translational bioethics? What does good translational bioethics look like? How can/should translational bioethics be evaluated?</p><p>These questions formed the basis of a workshop hosted at the University of Bristol in Septe
{"title":"Translational bioethics","authors":"Jordan A. Parsons, Pamela Cairns, Jonathan Ives","doi":"10.1111/bioe.13269","DOIUrl":"10.1111/bioe.13269","url":null,"abstract":"<p>Bioethics as a field has sometimes struggled to have, and demonstrate, “real-world” impact. Notwithstanding the fact that bioethics lies at the practical/applied end of the ethics spectrum, and for some can only really be understood as a field concerned with ‘practical ought questions’,1 it is hopefully not too controversial to say that bioethics has tended to adopt a relatively passive ‘if we build it, they will come’ attitude to impact. That is, impact being achieved ad hoc through, for example, committee work, rather than systematically as a planned output of research.2 The problem with this kind of approach is that clinicians and policymakers at all levels will be largely unaware of much of the bioethics literature, and bioethicists may not always have a full understanding of evolving clinical realities. As such, bioethicists may not be producing work that resonates sufficiently with decision makers, even if they happened to come across it at an apposite time. An obvious recent example was the response of the bioethics community to the COVID-19 pandemic. Countless publications explored various challenges, but there is an open question as to how much impact resulted.</p><p>Efforts to overcome accusations of ivory tower ethics have included the so-called ‘empirical turn’ in bioethics.3 That is, combining normative and empirical inquiry with the aim of grounding ethical theorising in context.4 Whilst not universally adopted, there has certainly been a strong uptake of empirical bioethics methods and methodologies, as scholars look to orient their works towards practice and impact. Complementing this empirical turn, and possibly even prior to it, a literature has been developing that consider impact in different ways—focussing on the idea of translational bioethics. The first use of this term is often attributed to Cribb, who argued in 2010 that just as scientific research paradigms have ‘bench to bedside’ process, so might bioethics, explicitly introducing the idea that translational work might be undertaken to develop impact from bioethics research.5 Bærøe later explicitly developed this idea of translational bioethics.6 More recently, Sisk and colleagues have argued for the incorporation of implementation science into bioethics, to ensure that impact is achieved.7</p><p>Whether positioned as parallel to, or part of, empirical bioethics, this developing literature is distinct, as it is concerned with the role of bioethics research in policy and practice, and how this relationship can be characterised—in terms of process, scope, and direction. Important questions in translational bioethics discourse include: How should translational bioethics be defined? What is the purpose of translational bioethics? Is there a need for translational bioethics? What does good translational bioethics look like? How can/should translational bioethics be evaluated?</p><p>These questions formed the basis of a workshop hosted at the University of Bristol in Septe","PeriodicalId":55379,"journal":{"name":"Bioethics","volume":"38 3","pages":"173-176"},"PeriodicalIF":2.2,"publicationDate":"2024-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/bioe.13269","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139736835","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}