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Rawls, race, and the 20th-century bioethics 罗尔斯、种族与 20 世纪生命伦理学。
IF 2.2 2区 哲学 Q2 ETHICS Pub Date : 2024-05-20 DOI: 10.1111/bioe.13301
Akshay Pendyal
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引用次数: 0
Reply to Rawls's, race, and 20th century bioethics 对罗尔斯、种族和 20 世纪生命伦理学的答复。
IF 2.2 2区 哲学 Q2 ETHICS Pub Date : 2024-05-20 DOI: 10.1111/bioe.13298
Robert Baker
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引用次数: 0
New perspectives on women's reproductive rights 妇女生殖权利的新视角。
IF 2.2 2区 哲学 Q2 ETHICS Pub Date : 2024-05-20 DOI: 10.1111/bioe.13308
Mansoureh Moaya, Shadab Shahali, Minoor Lamyian, Alireza Milanifar, Seyed-Mohammad Azin
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引用次数: 0
Transnational review on the use of information and communication technologies and technoscience in healthcare: Their impact on the autonomy and governance of individuals and communities. 关于在医疗保健领域使用信息和传播技术及技术科学的跨国审查:它们对个人和社区的自主权和管理的影响。
IF 2.2 2区 哲学 Q2 ETHICS Pub Date : 2024-05-18 DOI: 10.1111/bioe.13303
Concepción Unanue Cuesta

The impact and use of Information and Communication Technologies (ICTs) in healthcare settings has been increasing since 2019. This is greatly due to the COVID-19 pandemic. But beyond accommodating an extraordinary and complex situation in terms of healthcare services, or beyond replacing personalised care delivered by healthcare professionals (HCPs), has there been a process of information and consultation for communities and HCPs? Do we have the basic requirements needed to make such use commonplace in health care? What will the impact be on communities and their governance? Have we arrived here by consensus or by imposition? Our purpose has been to conduct a transnational analysis by approaching communities, social actors, and healthcare professionals in three territories in a pilot study following a qualitative methodology. The aim being to discover the potential impact of such measures beyond the right to health and if such measures are compatible with the purpose of population settling in rural areas. Furthermore, to identify if this entails a conflict of value and priorities or if we need new ethical reviews both for communities and healthcare professionals.

自 2019 年以来,信息和通信技术(ICTs)在医疗机构中的影响和使用不断增加。这在很大程度上归功于 COVID-19 大流行。但是,除了在医疗保健服务方面适应特殊而复杂的情况,或取代医疗保健专业人员(HCPs)提供的个性化护理之外,社区和医疗保健专业人员是否有一个信息和咨询的过程?我们是否具备在医疗保健中普及这种使用所需的基本要求?这将对社区及其管理产生什么影响?我们是达成共识还是强加于人?我们的目的是在一项采用定性方法的试点研究中,通过接触三个地区的社区、社会行动者和医疗保健专业人员,进行跨国分析。目的是发现这些措施对健康权的潜在影响,以及这些措施是否符合农村地区人口定居的目的。此外,还要确定这是否会引起价值和优先事项的冲突,或者我们是否需要对社区和医疗专业人员进行新的伦理审查。
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引用次数: 0
Bioethical challenges in postwar development aid: The Rwandan case study 战后发展援助中的生物伦理挑战:卢旺达案例研究。
IF 1.7 2区 哲学 Q2 ETHICS Pub Date : 2024-05-17 DOI: 10.1111/bioe.13304
Łukasz Wiktor, Maria Damps, Grace Kansayisa, Szymon Pietrzak, Bartłomiej Osadnik

This article considers aspects of a development aid that provides medical support to strengthen pediatric orthopedics in Rwanda. We present part of the Afriquia foundation work, a nonprofit foundation from Poland involved in supporting the medical sector in Rwanda as a sign of global solidarity and the human right to health. The main foundation's activity is the treatment of orthopedic problems among Rwandan citizens. We present a case study of two children under the care of the Afiquia foundation. 11-year-old Seraphine treated due to the consequences of right tibia osteomyelitis and 11-year-old Lavi suffering from osteogenesis imperfecta. Both children were treated surgically in Poland due to Rwanda's lack of treatment possibilities. After the applied treatment, Seraphine walks correctly without crutches and can attend school and thrive among her peers. Lavi has not sustained any fragility fracture since the surgery in Poland. He is healthy and constantly ongoing his rehabilitation including gait training. The described cases initiated development aid in Rwanda, supplying hospitals with orthopedic implants and training medical staff. The growing number of humanitarian crises across the globe and the people affected requires increasing organizations involved in providing relief. The emphasis should be on global education, aiming to make the recipients reflect and prepare them to face humanitarian crises.

本文探讨了为加强卢旺达小儿矫形外科而提供医疗支持的发展援助的各个方面。我们介绍了 Afriquia 基金会的部分工作,这是一个来自波兰的非营利性基金会,参与支持卢旺达的医疗部门,以体现全球团结和人类的健康权。该基金会的主要活动是治疗卢旺达公民的矫形问题。我们将介绍由阿菲基亚基金会照顾的两名儿童的案例研究。11岁的塞拉芬(Seraphine)因右胫骨骨髓炎而接受治疗,11岁的拉维(Lavi)患有成骨不全症。由于卢旺达缺乏治疗条件,这两名儿童都在波兰接受了手术治疗。经过治疗,塞拉芬不用拐杖就能正常行走,可以上学,在同龄人中茁壮成长。自从在波兰接受手术以来,拉维没有发生过任何脆性骨折。他身体健康,并不断进行康复训练,包括步态训练。上述案例启动了卢旺达的发展援助,为医院提供矫形植入物并培训医务人员。全球人道主义危机日益增多,受影响的人也越来越多,这就需要越来越多的组织参与救援。重点应放在全球教育上,目的是让受援者进行反思,为应对人道主义危机做好准备。
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引用次数: 0
Ethical challenges in health care during collective hunger strikes in public or occupied spaces 在公共场所或被占领场所集体绝食期间的医疗保健伦理挑战。
IF 2.2 2区 哲学 Q2 ETHICS Pub Date : 2024-05-17 DOI: 10.1111/bioe.13306
Dominik Haselwarter, Katja Kuehlmeyer, Verina Wild

Public collective hunger strikes take place in complex social and political contexts, require medical attention and present ethical challenges to physicians. Empirical research, the ethical debate to date and existing guidelines by the World Medical Association focus almost exclusively on hunger strikes in detention. However, the public space differs substantially with regard to the conditions for the provision of health care and the diverse groups of healthcare providers or stakeholders involved. By reviewing empirical research on the experience of health professionals with public collective hunger strikes, we identified the following ethical challenges: (1) establishment of a trustful physician–striker relationship, (2) balancing of medico-ethical principles in medical decision-making, (3) handling of loyalty conflicts and (4) preservation of professional independence and the risk of political instrumentalization. Some of these challenges have already been described and discussed, yet not contextualized for public collective strikes, while others are novel. The presence of voluntary physicians may offer opportunities for a trustful relationship and, hence, for ethical treatment decisions. According to our findings, it requires more attention to how to realise autonomous medical decisions in the complex context of a dynamic, often unstructured and politically charged setting, which ethical norms should shape the professional role of voluntary physicians, and what is the influence of the hunger strikers' collective on individual healthcare decisions. Our article can serve as a starting point for further ethical discussion. It can also provide the basis for the development of potential guidelines to support health professionals involved in public collective hunger strikes.

公众集体绝食发生在复杂的社会和政治背景下,需要医疗关注,并对医生提出了伦理挑战。经验研究、迄今为止的伦理辩论和世界医学协会的现有指导方针几乎完全侧重于拘留所中的绝食。然而,在提供医疗服务的条件以及所涉及的不同医疗服务提供者或利益相关者群体方面,公共空间存在很大差异。通过回顾有关医疗专业人员参与公共集体绝食行动经验的实证研究,我们发现了以下伦理挑战:(1)建立医生与绝食者之间的信任关系,(2)在医疗决策中平衡医学伦理原则,(3)处理忠诚冲突,以及(4)维护专业独立性和政治工具化风险。其中一些挑战已被描述和讨论过,但没有结合公共集体罢工的背景,而另一些挑战则是新的。自愿医生的存在可能会为建立信任关系提供机会,从而为做出合乎道德的治疗决定提供机会。根据我们的研究结果,需要更多地关注如何在一个动态的、往往是非结构化的、充满政治色彩的复杂环境中实现自主的医疗决策,哪些道德规范应塑造志愿医生的专业角色,以及绝食者集体对个人医疗决策的影响。我们的文章可以作为进一步伦理讨论的起点。它还可以为制定潜在的指导方针提供依据,以支持参与公共集体绝食斗争的医疗专业人员。
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引用次数: 0
Mental patient—Psychiatric ethics from a patient's perspective By  Abigail Gosselin, Cambridge, MA: The MIT Press.  2022.  308pp. $45.00 (Paperback), ISBN: 9780262544313 精神病人--从病人的角度看精神伦理学 Abigail Gosselin 著,马萨诸塞州剑桥:麻省理工学院出版社。2022.308页。45.00美元(平装本),ISBN:9780262544313
IF 2.2 2区 哲学 Q2 ETHICS Pub Date : 2024-05-15 DOI: 10.1111/bioe.13309
Sam Wilkinson
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引用次数: 0
Does a lack of emotions make chatbots unfit to be psychotherapists? 缺乏情感会让聊天机器人不适合做心理治疗师吗?
IF 2.2 2区 哲学 Q2 ETHICS Pub Date : 2024-05-12 DOI: 10.1111/bioe.13299
Mehrdad Rahsepar Meadi, Justin S. Bernstein, Neeltje Batelaan, Anton J. L. M. van Balkom, Suzanne Metselaar

Mental health chatbots (MHCBs) designed to support individuals in coping with mental health issues are rapidly advancing. Currently, these MHCBs are predominantly used in commercial rather than clinical contexts, but this might change soon. The question is whether this use is ethically desirable. This paper addresses a critical yet understudied concern: assuming that MHCBs cannot have genuine emotions, how this assumption may affect psychotherapy, and consequently the quality of treatment outcomes. We argue that if MHCBs lack emotions, they cannot have genuine (affective) empathy or utilise countertransference. Consequently, this gives reason to worry that MHCBs are (a) more liable to harm and (b) less likely to benefit patients than human therapists. We discuss some responses to this worry and conclude that further empirical research is necessary to determine whether these worries are valid. We conclude that, even if these worries are valid, it does not mean that we should never use MHCBs. By discussing the broader ethical debate on the clinical use of chatbots, we point towards how further research can help us establish ethical boundaries for how we should use mental health chatbots.

旨在帮助个人应对心理健康问题的心理健康聊天机器人(MHCB)正在迅速发展。目前,这些 MHCBs 主要用于商业而非临床环境,但这种情况可能很快就会改变。问题是这种使用在伦理上是否可取。本文探讨了一个重要但未被充分研究的问题:假设 MHCB 不能拥有真实情感,这一假设可能会如何影响心理治疗,进而影响治疗结果的质量。我们认为,如果精神障碍患者缺乏情感,他们就无法产生真正的(情感)共情,也无法利用反移情。因此,我们有理由担心,与人类治疗师相比,多器官功能障碍患者(a)更容易受到伤害,(b)更不可能使患者受益。我们讨论了对这种担忧的一些回应,并得出结论:有必要开展进一步的实证研究,以确定这些担忧是否成立。我们的结论是,即使这些担忧成立,也并不意味着我们永远都不应该使用移动医疗设备。通过讨论有关聊天机器人临床使用的更广泛的伦理争论,我们指出了进一步的研究可以如何帮助我们确定如何使用心理健康聊天机器人的伦理界限。
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引用次数: 0
Refugees' right to health: A case study of Poland's disparate migration policies 难民的健康权:波兰不同移民政策的案例研究。
IF 1.7 2区 哲学 Q2 ETHICS Pub Date : 2024-05-08 DOI: 10.1111/bioe.13300
Krzysztof Kędziora

Poland has faced two waves of migration: the first was of irregular asylum seekers, which led to the humanitarian crisis on the eastern EU–Belarusian border since 2021; the second was of Ukrainians fleeing the Russian invasion. Although there are noticeable differences between these situations, and between the different reactions of the Polish authorities, it is possible to juxtapose them in terms of the right to health. The normative content of refugee and human rights law is the starting point for reconstructing the meaning of the terms ‘refugee’ and ‘right to health’. A refugee is a person who needs international protection because of a well-founded fear of harm, which is not limited to persecution as defined by the Refugee Convention but also includes situations of international and non-international armed conflict. The right to health, which includes, inter alia, entitlements to a ‘system of health protection’ and ‘underlying determinations of health’, is reconstructed on the basis of human rights law and refugee and migration law. There are no legal and moral grounds to grant the right to health differentially to different groups of refugees. Nondiscriminatory health policy requires that refugees have the same access to health care as nationals, although their specific health needs resulting from past experiences and refugee situation require special treatment, that is, an appropriate refugee health policy. The broad understanding of the underlying determinants of health demonstrates the importance of overall migration policy for refugees’ health, which can jeopardise the fragile good of refugee health.

波兰面临着两次移民潮:第一次是非正常寻求庇护者,导致了自 2021 年以来欧盟东部与白俄罗斯边境的人道主义危机;第二次是逃离俄罗斯入侵的乌克兰人。尽管这些情况之间以及波兰当局的不同反应之间存在着明显的差异,但从健康权的角度来看,还是可以将它们并列起来。难民法和人权法的规范性内容是重新构建 "难民 "和 "健康权 "这两个术语含义的出发点。难民是指因有充分理由担心受到伤害而需要国际保护的人,这不仅限于《难民公约》所定义的迫害,还包括国际和非国际武装冲突的情况。健康权,除其他外,包括享有 "健康保护制度 "和 "健康基本决定 "的权利,是在人权 法、难民法和移民法的基础上重新构建的。在法律和道德上都没有理由对不同的难民群体给予不同的健康权。非歧视性的卫生政策要求难民享有与国民相同的医疗保健,尽管他们因过去的经历和难民处境而产生的特殊健康需求需要特殊对待,即适当的难民卫生政策。对健康的基本决定因素的广泛了解表明,总体移民政策对难民健康十分重要,可能会危及难民健康的脆弱局面。
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引用次数: 0
Value change, reprogenetic technologies, and the axiological underpinnings of reproductive choice. 价值变化、生殖遗传技术和生殖选择的公理基础。
IF 2.2 2区 哲学 Q2 ETHICS Pub Date : 2024-05-08 DOI: 10.1111/bioe.13287
Jon Rueda

Value change is a phenomenon that is gaining increasing attention in ethical analyses of technologies. However, a comprehensive study of how reprogenetic technologies and values coevolve is lacking. To remedy this gap, in this overview article, I address the relationship between reprogenetics and value change. This contribution thus argues for the importance of investigating the phenomenon of value change in relation to the technological controversies discussed in bioethics. To meet this goal, I begin by clarifying, first, how technologies shape reproductive choice. I then clarify what "values" and "moral values" are, how reprogenetic technologies are value laden, and what values are often discussed in reprogenetics debates. Next, I show five types of value changes that have occurred in advance in reproductive and genetic technologies. Finally, I argue for the bioethical relevance of discussing future techno-value change, pointing out the descriptive and normative challenges of this philosophical endeavor.

价值变化是技术伦理分析中日益受到关注的一种现象。然而,关于生殖遗传学技术与价值观如何共同发展的全面研究还很缺乏。为了弥补这一空白,我在这篇综述性文章中探讨了生殖遗传学与价值变化之间的关系。因此,这篇文章论证了研究与生命伦理学所讨论的技术争议相关的价值变化现象的重要性。为了实现这一目标,我首先阐明了技术是如何影响生殖选择的。然后,我澄清了什么是 "价值观 "和 "道德价值观",生殖遗传学技术如何带有价值观,以及在生殖遗传学辩论中经常讨论哪些价值观。接下来,我展示了生殖和基因技术发展过程中出现的五种价值变化。最后,我论证了讨论未来技术价值变化的生物伦理相关性,指出了这一哲学努力所面临的描述性和规范性挑战。
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引用次数: 0
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Bioethics
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