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Navigating autonomy, privacy, and ageism in robot home care with aged users: A preliminary analysis of ROB-IN. 在有老年用户的机器人家庭护理中驾驭自主性、隐私和年龄歧视:ROB-IN 的初步分析。
IF 1.7 2区 哲学 Q2 ETHICS Pub Date : 2024-07-31 DOI: 10.1111/bioe.13340
Belen Liedo

In this article, I propose an ethical analysis of assistive domestic robots for older users. In doing so, I illustrate my inquiry with the example of ROB-IN assistive robot. ROB-IN is a Spanish project which is devoted to developing a robot that will perform in the private home of nondependent, aged users. It is aimed to help people in their daily activities and contribute to appropriate health monitoring. One of their potentially most useful features is related to data gathering and sharing. For the inquiry on the ethical underpinnings of this case, I develop a framework for domestic assistive robots for competent older adults drawn on the ethics of care. I assess that this type of robots could be ethically appraised attending to their impact on the well-being and autonomy of users. I approach autonomy from a relational perspective, and I delve into the relationship between autonomy and well-being through the concept of paternalism. I argue that this type of assistive robots should never act paternalistically. Given ROB-IN great implications regarding privacy, I subsequently explore the ways in which the privacy of users should be respected in their interaction with assistive robots, focusing on the relation with autonomy and well-being. Lastly, I highlight the need for avoiding ageism. This investigation focuses on aged users, but it is suggested that the situation of caregivers should be also the object of further investigations.

在本文中,我将对面向老年用户的家用辅助机器人进行伦理分析。为此,我以 ROB-IN 辅助机器人为例进行说明。ROB-IN 是西班牙的一个项目,致力于开发一种可以在非独立的老年用户的私人住宅中使用的机器人。其目的是帮助人们进行日常活动,并为适当的健康监测做出贡献。其最有用的潜在功能之一与数据收集和共享有关。为了探究本案例的伦理基础,我从护理伦理出发,为有能力的老年人开发了一个家用辅助机器人框架。我认为,可以根据机器人对用户福祉和自主权的影响,对这类机器人进行伦理评估。我从关系的角度来探讨自主性,并通过家长制的概念来深入研究自主性与福祉之间的关系。我认为,这类辅助机器人绝不应采取家长式的行为。鉴于 ROB-IN 对隐私的重大影响,我随后探讨了在用户与辅助机器人的互动中应如何尊重用户的隐私,重点关注自主性与幸福感之间的关系。最后,我强调了避免年龄歧视的必要性。本次调查的重点是老年用户,但也建议进一步调查护理人员的情况。
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引用次数: 0
The sufficiency theory of justice and the allocation of health resources 正义的充足性理论与医疗资源的分配。
IF 1.7 2区 哲学 Q2 ETHICS Pub Date : 2024-07-30 DOI: 10.1111/bioe.13338
Dick Timmer

According to the sufficiency theory of justice in health, justice requires that people have equal access to adequate health. In this article, I lay out the structure of this view and I assess its distributive implications for setting priority (i) between health needs across persons and (ii) between health care spending and other societal goods. I argue, first, that according to the sufficiency theory, deficiency in health cannot be completely offset by providing other societal goods. And, second, that it can prevent the medicalization of societies by stressing that improvements beyond the level of adequate health have relatively little weight, if any, from the standpoint of justice.

根据健康公正的充足性理论,公正要求人们平等地获得充足的健康。在这篇文章中,我阐述了这一观点的结构,并评估了它对确定(i) 不同人群健康需求之间的优先次序和(ii) 医疗支出与其他社会产品之间的优先次序的分配影响。首先,我认为根据充足性理论,提供其他社会产品并不能完全弥补健康方面的不足。其次,该理论可以防止社会医疗化,因为它强调,从公正的角度看,超出适足健康水平的改善即使有份量,也相对较小。
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引用次数: 0
Digital medication and patients' right of autonomy in Spain. 西班牙的数字医疗和患者自主权。
IF 1.7 2区 哲学 Q2 ETHICS Pub Date : 2024-07-30 DOI: 10.1111/bioe.13335
Salvador Pérez Álvarez

The progress the Internet has experienced in recent years has brought about huge changes and social transformation in all aspects of our lives. One such aspect greatly impacted has been our health, where we can talk about the existence of an 'Internet of Medical Things'. Amid this digital drift, we have seen the development of pharmaceutical drugs that provide information to patients and their attending healthcare teams concerning medication, doses ingested, and time of ingestion. These are digital pills or digital medication. In this context, the purpose of my paper is to analyze the ethical and legal impact of digital medication, further analyzing the implications concerning the right of service users to make decisions over their own health in Spain.

近年来,互联网的发展给我们生活的方方面面带来了巨大的变化和社会转型。其中一个受到巨大影响的方面就是我们的健康,我们可以谈论 "医疗物联网 "的存在。在这一数字漂移的过程中,我们看到了药品的发展,这些药品可以向患者及其就诊的医疗团队提供有关药物、摄入剂量和摄入时间的信息。这就是数字药片或数字药物。在此背景下,我的论文旨在分析数字药物在伦理和法律方面的影响,并进一步分析其对西班牙服务用户就自身健康做出决定的权利的影响。
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引用次数: 0
Does contract surrogacy undermine gender equality? 合同代孕会破坏性别平等吗?
IF 1.7 2区 哲学 Q2 ETHICS Pub Date : 2024-07-27 DOI: 10.1111/bioe.13337
Jesse Hill

Some feminists hold that surrogacy contracts should be unenforceable or illegal because they contribute to and perpetuate unjust gender inequalities. I argue that in developed countries, surrogacy contracts either wouldn't have these negative effects or that these effects could be mitigated via regulation. Furthermore, the existence of a regulated surrogacy market is preferable on consequentialist grounds.

一些女权主义者认为,代孕合同应该是不可执行或非法的,因为它们助长并延续了不公正的性别不平等。我认为,在发达国家,代孕合同要么不会产生这些负面影响,要么可以通过监管来减轻这些影响。此外,从结果论的角度来看,存在一个规范的代孕市场是可取的。
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引用次数: 0
Let the foxes run free: Arresting bioethics' inward turn 让狐狸自由驰骋:阻止生命伦理学的内向转向
IF 1.7 2区 哲学 Q2 ETHICS Pub Date : 2024-07-27 DOI: 10.1111/bioe.13336
Dominic Robin

As bioethics matures, a number of voices have called for a narrowing of what officially “counts” as bioethics. Bioethics defined broadly, they argue, creates a space that lacks objectivity and rigor, jeopardizing the credibility of the profession. Although a variety of proposed solutions exist, most advance a definitional narrowing of bioethics. In doing so, they mimic the siloed nature of the academy writ large, an institution that organizes itself through the logic of atomization, the belief that knowledge is generated through the process of isolation, examination, theorization, and ultimately reintegration. Borrowing language from Isaiah Berlin's essay “The Hedgehog and the Fox,” I argue that bioethics has thrived precisely because it stands distinct from other departments of learning, constituting one of the few places within the academy where true inter, multi, and cross-disciplinary scholarship can thrive. Reducing bioethics to an internally defined set of axiomatic rationales does violence to this vision, eroding, in the process, one of the field's greatest assets.

随着生物伦理学的成熟,一些人呼吁缩小生物伦理学正式 "定义 "的范围。他们认为,广义的生物伦理会造成缺乏客观性和严谨性的空间,危及该行业的公信力。尽管有各种不同的解决方案,但大多数方案都在缩小生命伦理学的定义范围。在这样做的过程中,他们模仿了整个学术界各自为政的性质,一个通过原子化逻辑来组织自己的机构,相信知识是通过隔离、审查、理论化和最终重新整合的过程产生的。借用以赛亚-伯林(Isaiah Berlin)的散文《刺猬与狐狸》中的语言,我认为,生命伦理学之所以能够蓬勃发展,正是因为它有别于其他学科,是学术界为数不多的真正跨学科、多学科和交叉学科的学术研究场所之一。将生命伦理学归结为一套内部定义的公理,是对这一愿景的践踏,并在这一过程中侵蚀了这一领域最宝贵的财富之一。
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引用次数: 0
The ethics of overriding patient refusals during 5150s and other involuntary psychiatric holds 在 5150s 和其他非自愿精神病治疗期间推翻病人拒绝的伦理问题。
IF 1.7 2区 哲学 Q2 ETHICS Pub Date : 2024-07-11 DOI: 10.1111/bioe.13331
Alexander Quan

Involuntary psychiatric holds, such as the 5150 hold in California, allow for an individual to be taken into custody for evaluation and treatment for up to 72 h when they present a risk of danger to themselves. 5150s and other coerced holds present a bioethical tension as patient autonomy is overridden to provide psychiatric care. I discuss two arguments that aim to provide ethical justifications for overriding patient autonomy during 5150 holds: the “clinical benefit” and “lack of capacity” arguments. By demonstrating that these arguments do not always hold, I argue that overriding patient autonomy during 5150 holds is not always ethical and can be harmful. Lastly, I make recommendations for the 5150 and similar involuntary psychiatric holds to minimize harmful breaches of patient dignity: creating consistent field guidelines for assessing prehospital capacity, educating prehospital providers about the potential harms of 5150s, and utilizing existing support structures within the social context of the patient when they have capacity to refuse further prehospital care.

非自愿的精神病治疗,如加利福尼亚州的 5150 扣留,允许在患者有自我危险的情况下,对其进行长达 72 小时的拘留,以便对其进行评估和治疗。5150和其他强制扣留带来了生物伦理上的紧张关系,因为病人的自主权被凌驾于提供精神治疗之上。我讨论了两个论点,它们旨在为在 5150 暂停治疗期间凌驾于病人自主权之上提供伦理理由:"临床利益 "和 "缺乏行为能力 "论点。通过证明这些论点并不总是站得住脚,我认为在 5150 暂停治疗期间凌驾于病人自主权之上并不总是合乎伦理的,而且可能是有害的。最后,我对5150和类似的非自愿精神病患者留置提出了建议,以最大限度地减少对患者尊严的伤害:为院前能力评估制定一致的现场指南,教育院前医疗服务提供者5150的潜在危害,当患者有能力拒绝进一步的院前护理时,利用患者社会背景下的现有支持结构。
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引用次数: 0
Reproductive Technologies and family ties 生殖技术与家庭关系。
IF 1.7 2区 哲学 Q2 ETHICS Pub Date : 2024-07-10 DOI: 10.1111/bioe.13334
Ji-Young Lee, Seppe Segers
<p>In vitro fertilization (IVF) revolutionized procreation and family-making in the late 1970s by making possible the separation of <i>conception</i> from <i>sex</i>. Since the birth of the first “IVF baby” Louise Brown in 1978, techniques like IVF have routinized rapidly, against initial predictions: it is estimated that at least 12 million babies have been born with the help of IVF and other assisted reproductive technologies (ART).1 Furthermore, ART-related births are projected to reach at least 167 million people by the year 2100—if not much more.2 On the surface, it seems that everybody's reproductive autonomy is expanding in virtue of these developments: aspiring parents can potentially procreate with the help of third parties, as with innovations like gestational surrogacy and uterus transplantation (UTx), and even those not actively trying to procreate have options to cryopreserve their own gametes for later use. Given that people nowadays delay childbearing for various reasons3 and one in six people are reported to experience infertility worldwide,4 it seems plausible to assume that aspiring parents will continue to turn to reproductive technologies in the hopes of attaining biogenetic procreation where “natural” conception is not an option.</p><p>Despite this apparent normalization of ART as a mode of family-making, however, it would be naïve as bioethicists to assume that the only effect of such technologies is that of medically “solving” people's infertility problems and expanding reproductive autonomy.5 The narrative that the aim of ART is to treat infertility obscures and simplifies its far-reaching (and perhaps unintended) social implications and side effects, including for example, the gendered burdens and costs it can exacerbate for would-be gestators,6 and also disputes over parental rights.7 Bioethicists have shown that ART may be a useful lens through which to probe the normative boundaries of kinship,8 and even the legitimacy of the desire for biogenetically related children.9 At the same time, it is clear that the differentiated (un)availability of ART at the global level reflect pre-existing inequalities in the social sphere, such as socioeconomic disparities10 and sexual and racial discrimination in reproductive medicine.11 As such, the myriad functions, usage, and implementation of ART can be unpredictable, morally ambivalent, and unique to the social settings under which they are deployed. Uncertainties about the social construction of reproduction and family ties therefore gives rise to a need for continued scholarship in bioethics. Providing practitioners, third parties, and service users with actionable and up-to-date insights on how best to operationalize reproductive technologies in the name of family ties, while also promoting awareness about their current limitations, is an ethically important task.</p><p>Many of the open-ended questions one might ask in this field invite philosophical considerations. Who does ART
Pérez-Hernández 和 De Proost 从社会人类学和道德科学的角度出发,旨在将对生育决策的道德哲学分析建立在 "混乱的现实 "的基础上,而这种决策正是由 "混乱的现实 "构成的。卡瓦列雷的论点回应了对国家资助的生育治疗提出的两种反对意见:所谓的 "万金油 "反对意见和 "规范合法化 "反对意见。她的论述与所谓的 "中间需求 "14 方法产生了共鸣,尽管其角度略有不同,侧重于支撑有价值生活项目的欲望,而不是对实现合理有价值生活做出核心贡献的一般活动和经验类别。卡瓦列雷对 "规范合法化 "反对意见的批判则集中于这样一个论点,即压迫性的(养育和生育)规范不应该通过让那些由于生育状况而处于不利地位的人首当其冲来解决。巴伦的分析侧重于 "完全代孕 "或 "双亲代孕"(DDS)安排,即:预期父母中没有一方与预期子女有遗传关系的生育行为。巴伦批判性地探讨了将双亲代孕与有计划的私人收养分开处理的意图主义理由,并得出结论认为,诉诸意图不能作为区分这两种做法的理由。因此,"私人收养 "和 "完全代孕 "应被解释为在道德上、社会上和实践上等同的安排。在下一篇文章中,梅丽-梅尔滕斯(Mayli Mertens)和海蒂-梅尔滕斯(Heidi Mertes)16 对不孕不育治疗的典型结果衡量标准,即每位患者或每个周期的累积健康活产率(HLBR)进行了批判性的重新评估。作者认为,采用健康活产率标准会造成一种解释上的自我实现预言:那些在治疗后顺利产下健康婴儿的人认为自己是 "成功的",而那些没有成功的人则认为自己是失败的。然而,有许多方法可以减轻不孕症带来的痛苦,甚至包括停止试管婴儿治疗。因此,Mertens 和 Mertes 提出了另一种衡量结果的方法,这种方法对于患者在治疗后是否怀上了孩子更加中立。他们认为,成功治疗的定义是,相对于刚进入诊所时的 "不孕不育 "状态,患者在离开诊所时能够减轻痛苦。这并不要求使用者带着孩子离开诊所才算 "成功",尽管带着孩子离开诊所对他们来说仍然是一个积极的结果。"傅慧娴和赵悦17 解释了中国女同性恋夫妇的生育限制,由于同性婚姻被禁止,她们的关系不受法律保护。她们的分析体现了一方面作为规范框架的立法与另一方面人们追求自己所关心的事物的道德现实之间的脱节所带来的道德影响,同时也面临着传统家庭观念和父权制意识形态基于性取向限制生育自由的问题。文章探讨了确定父母身份的不同说法,并寻求女同性恋夫妇在中国社会中获得更好的生育和养育保护的可能途径。生殖技术与亲缘关系是埃维-肯德尔(Evie Kendal)18 篇文章的重点。Kendal 利用虚构的小故事说明了生殖技术如何使亲子关系复杂化。特别是,由于生殖技术的使用和类似父母的社会安排,在有许多潜在 "父母 "候选人的情况下,典型的亲子关系归属策略(如遗传、妊娠)就显得不够充分。在肯德尔看来,这些复杂性并不是完全拒绝生殖技术或重塑传统家庭结构的理由,而是以性别、性和文化包容的方式重新想象家庭的建立。
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引用次数: 0
Can a human right to good mental health be justified? 享有良好心理健康的人权是否合理?
IF 1.7 2区 哲学 Q2 ETHICS Pub Date : 2024-07-04 DOI: 10.1111/bioe.13329
Phil Bielby

Can a human right to good mental health be justified? This is an under-explored question: until recently, rights in relation to mental health have been framed and debated primarily in terms of their relevance to psychosocial disability and mental ill-health/mental distress. By contrast, in this article, I propose the basis of a normative justification for a population-wide right to good mental health, focusing in particular on individuals who do not experience mental ill-health/distress or do not have (or may never have) a psychiatric diagnosis or a psychosocial disability. The article is structured into three parts. First, I will outline the emergence of a population-wide right to good mental health in mental health discourse, led by recent reports published by the former United Nations Special Rapporteur on the Right to Health, Danius Pūras. I will then go on to explore what we might understand by ‘good mental health’. Finally, I will explain how a right to good mental health may be justified, drawing on insights from compassion, ‘vulnerable agency’, and James Wilson's account of ‘a right to public health’. I then respond to feasibility and demandingness concerns about such a right, which together inform the basis of the qualified public health right to good mental health I propose.

享有良好心理健康的人权是否合理?这是一个尚未得到充分探讨的问题:直到最近,与心理健康有关的权利还主要是从其与社会心理残疾和精神疾病/精神痛苦的相关性方面进行阐述和辩论的。相比之下,在这篇文章中,我提出了全民享有良好精神健康权利的规范性理由基础,尤其关注那些没有经历过精神疾病/精神痛苦或没有(或可能永远不会有)精神病诊断或社会心理残疾的个人。本文分为三个部分。首先,我将概述在前联合国健康权特别报告员达尼乌斯-普拉斯(Danius Pūras)最近发表的报告的引领下,精神健康话语中出现的全民良好精神健康权。然后,我将继续探讨我们对 "良好心理健康 "的理解。最后,我将借鉴同情心、"弱势代理 "以及詹姆斯-威尔逊(James Wilson)关于 "公共健康权 "的论述,解释如何为享有良好心理健康的权利提供正当理由。然后,我将对这种权利的可行性和需求性问题做出回应,这些问题共同构成了我所提出的良好心理健康的公共健康权的基础。
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引用次数: 0
Rethinking ‘family’: A call for conceptual amelioration 重新思考 "家庭":呼吁改善概念。
IF 1.7 2区 哲学 Q2 ETHICS Pub Date : 2024-07-01 DOI: 10.1111/bioe.13333
Ryan Xia-Hui Lam

The modern concept of ‘family’ in the United States recognizes many types of social groups as families, a conceptual shift which was largely helped along by advancements in assisted reproductive technologies enabling those formerly unable to biologically reproduce to have children, as well as by social movements aimed at garnering recognition for these emergent nonbiologically related social groups spearheaded by LGBTQ+ and adoption activists. That these social groups are now recognized as types of families is unquestionably an improvement to the concept, though there are still defects in the concept that preclude these nonnuclear families from achieving the same social–ontological status as nuclear families. Drawing from the nascent philosophical field of conceptual engineering, I analyze our current conception of ‘family’ and argue that it is tacitly exclusionary of nonnuclear families, which can be attributed to a combination of widespread genetic essentialism and linguistic practices that unduly cast the nuclear family as a more desirable type of family by emphasizing genetic relatedness as a valuable quality. I then offer proposals to ameliorate these defects, such as educational interventions to reduce genetic essentialism and the introduction of new terminology that does not connote one type of family as being superior to another. In doing so, my hope is to reveal and begin to resolve an overlooked defect in the concept of ‘family’ in order to bolster the movement to view all families as equal.

美国的现代 "家庭 "概念承认多种类型的社会群体为家庭,这一概念的转变在很大程度上得益于辅助生殖技术的进步,使那些过去无法进行生物繁殖的人也能生育子女,同时也得益于由 LGBTQ+ 和领养活动家发起的旨在为这些新兴的非生物相关社会群体争取认可的社会运动。这些社会群体现在被承认为家庭类型,无疑是对这一概念的改进,尽管这一概念仍存在缺陷,使这些非核心家庭无法获得与核心家庭相同的社会本体地位。我从概念工程这一新生的哲学领域出发,分析了我们目前对 "家庭 "的概念,并认为这一概念默认了对非核心家庭的排斥,这可归因于普遍存在的遗传本质论和语言实践,后者通过强调遗传亲缘关系是一种有价值的品质,不恰当地将核心家庭塑造成一种更理想的家庭类型。随后,我提出了改善这些缺陷的建议,如采取教育干预措施来减少遗传本质论,以及引入新的术语,不将一种类型的家庭视为优于另一种类型的家庭。这样做,我希望能揭示并开始解决 "家庭 "概念中被忽视的缺陷,以支持将所有家庭视为平等的运动。
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引用次数: 0
Revealing misattributed parentage through the integration of genetic information into the electronic health record 通过将基因信息纳入电子健康记录,揭示错误的亲子关系。
IF 1.7 2区 哲学 Q2 ETHICS Pub Date : 2024-06-28 DOI: 10.1111/bioe.13332
Sivan Tamir, Sivan Gazit, Shiri Sivan, Tal Patalon

The integration of genetic information (GI) into the electronic health record (EHR) seems inevitable as the mainstreaming of genomics continues. Such newly provided accessibility to GI could be beneficial for improving health care, as well as for supporting clinical decision-making and health management. Notwithstanding these promising benefits, the automatic integration of GI into the EHR, allowing unrestricted access to one's GI through patient portals, carries various knowledge-related risks for patients. This article is focused on the potential case of inadvertently revealing misattributed parentage through such practice. The article aims to identify key clinical and ethical implications of such revelation for adult patients. Clinical implications include, for example, altering the physician-patient interaction and the need to enhance physician's genetic literacy to improve genetic-information-specific communication skills. Ethical implications yield arguments supporting disclosure of MP, such as autonomy, individuals' right to know medical information pertaining to them, and the right to know one's genetic origins. Arguments opposing disclosure of MP centre on the right not to know GI and concerns for post-disclosure family relationships. Following the clinical and ethical analyses of these respective implications, we consider how such integration of GI into the EHR ought to be carried out, ethically. We therefore suggest a solution, featuring an autonomy-based approach, built around EHR users' right not to know. Our solution of nuanced consent options (including a ‘genetic ignorance option’) is designed to enable patients' informed exposure to GI through the EHR, allowing them some control over their self- and familial narrative.

随着基因组学的不断主流化,将基因信息(GI)整合到电子健康记录(EHR)中似乎不可避免。这种新提供的 GI 可访问性可能有利于改善医疗保健,并支持临床决策和健康管理。尽管这些好处前景广阔,但将 GI 自动整合到电子病历中,允许通过患者门户不受限制地访问自己的 GI,也会给患者带来各种与知识相关的风险。本文主要讨论通过这种做法无意中泄露错误亲子关系的潜在案例。文章旨在明确这种披露对成年患者的主要临床和伦理影响。临床影响包括,例如,改变医生与患者之间的互动,以及需要提高医生的遗传学素养,以改善与遗传信息相关的沟通技巧。伦理方面的影响产生了支持公开重大疾病信息的论点,如自主权、个人对与其相关的医疗信息的知情权以及对自身基因来源的知情权。反对公开 MP 的论点主要集中在不了解 GI 的权利和对公开后家庭关系的担忧上。在对这些各自的影响进行临床和伦理分析后,我们考虑了如何从伦理角度将基因图谱整合到电子病历中。因此,我们围绕电子病历用户的知情权,提出了一个以自主权为基础的解决方案。我们的解决方案包含细微差别的同意选项(包括 "基因无知选项"),旨在通过电子病历让患者在知情的情况下接触基因信息,使他们能够在一定程度上控制自己和家人的叙述。
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引用次数: 0
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Bioethics
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