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Chapitre 17. Du père caché au père révélé, l’émergence d’un lien sui generis. 第17章。从隐藏的父亲到显露的父亲,一种独特的纽带出现了。
Pub Date : 2023-01-01 DOI: 10.54695/jibes.342.0221
Sarah Lanau

The bioethics bill reflects a paradigm shift in filiation. Indeed, the bill provides for the lifting of donor anonymity at the age of majority of the child born of the donation. However, the legislator does not provide for a specific legal regime qualifying the link between the donor and the child born of the donation. It thus proceeds to a negative qualification of a situation that nevertheless entails important legal consequences. One then wonders about the nature of this relationship and about the potential consequences induced by the lifting of anonymity, consequences that are both legal and social. This article will then make it possible to dissociate the notion of filiation and the progressive emergence of the right of access to one’s origins.

生命伦理法案反映了婚姻模式的转变。事实上,该法案规定,在捐赠所生的孩子年满成年时,取消捐赠者的匿名性。但是,立法者并没有规定具体的法律制度来限定捐赠者与捐赠所生的孩子之间的联系。因此,它转而对一种情况作出否定的限定,尽管这种情况会产生重要的法律后果。人们不禁要问,这种关系的本质是什么,匿名的解除会带来什么潜在后果,这些后果既有法律意义,也有社会意义。然后,本文将有可能将亲缘关系的概念与逐渐出现的接近一个人起源的权利分离开来。
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引用次数: 0
Revue de livres. 书评。
Pub Date : 2023-01-01 DOI: 10.3917/jibes.341.0128
Christian Byk
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引用次数: 0
Chapitre 2. La e-santé, une technologie qui creuse ou qui comble le fossé entre pays du premier et du tiers monde ? 第二章。电子卫生,一项扩大或缩小第一世界和第三世界国家之间差距的技术?
Pub Date : 2023-01-01 DOI: 10.54695/jibes.333.0035
Nathalie Devillier

Although e-health has gained prominence in the Sustainable Development Goals, the lack of Development Goals, the lack of precise indicators makes it difficult to measure its impact. It was not until 2017 and the 2017 and the International Telecommunication Union’s Action Plan for governments to put in place quantitative and qualitative evaluation criteria. However, e-health remains the fertile ground for frugal innovations based in particular on mobile health.

尽管电子保健在可持续发展目标中占有突出地位,但由于缺乏发展目标,缺乏精确的指标,因此难以衡量其影响。直到2017年以及国际电信联盟的《行动计划》,各国政府才制定了定量和定性的评估标准。然而,电子医疗仍然是基于移动医疗的廉价创新的沃土。
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引用次数: 0
Chapitre 6. Révisions des lois de bioéthique et recherche sur l’embryon humain : une analyse psychosociale des États Généraux de la Bioéthique. 第6章)。生命伦理学和人类胚胎研究法律的修订:对生命伦理学一般状态的心理社会分析。
Pub Date : 2023-01-01 DOI: 10.3917/jibes.333.0075
Eloïse Vinson, Thémis Apostolidis, Renata Lira Dos Santos Aléssio, Maria de Fátima De Souza Santos, Lionel Dany

Bioethics are widely used in the course of biomedical science’s evolution. It allows to question ethical aspects underlying the setting of new research and clinical intervention techniques. This ethical thinking reflects norms and values socially admitted and question the way new scientific information are integrated to individuals’ system of knowing. Human embryo research, subject to bioethics laws revisions, represents an almost prototypical object of these issues, both lay and scientific. This study aims to study these issues through the context of bioethics revision laws, from users’ comments on Estates-General of Bioethics website, using the social representations theorical frame. A thematic content analysis has been performed. Results shows that embryo status is a structural argument of the debate, and that the opinion on human embryo research results from a set of ethical concerns that come from socially anchored values, accounting for the way individuals define science, biotechnologies and research on the living, that we also find in the bioethics legislation.

生命伦理学在生物医学的发展过程中得到了广泛的应用。它允许对新研究和临床干预技术设置的伦理方面提出质疑。这种伦理思维反映了社会公认的规范和价值观,并质疑新的科学信息融入个人的方式。认识系统。人类胚胎研究,受制于生物伦理法律的修订,代表了这些问题的一个几乎原型的对象,无论是世俗的还是科学的。本研究旨在通过生物伦理修订法律的背景来研究这些问题,从用户’运用社会表征理论框架对生物伦理三级委员会网站进行评价。进行了专题内容分析。结果表明,胚胎状态是辩论的一个结构性论点,对人类胚胎研究的看法源于一系列来自社会锚定价值观的伦理问题,考虑到个人定义科学、生物技术和对生命的研究的方式,我们也在生物伦理立法中发现。
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引用次数: 0
Chapitre 15. L’accès aux origines personnelles. 第15章)。获取个人起源。
Pub Date : 2023-01-01 DOI: 10.54695/jibes.342.0201
Emmanuel Terrier

Law n° 2021-1017 of August 2nd. 2021 allows children born of assisted reproduction with a third party donor to have access, as of their majority, to non-identifying data and the identity of this third party. Without calling into question the principle of anonymity, it enshrines the right of access to origins. The reasons for this development are to be found in the evolution of European law, rather than in a logical evolution of French bioethics law. However, such an enshrinement is not without difficulties, both in terms of the concrete and technical implementation of this access to origins and in terms of the practical consequences in the realisation of access to this right for the children benefiting from this system.

法律n # 176;8月2日2021-1017。2021年允许通过第三方捐赠者辅助生殖出生的儿童在成年后获得非识别数据和该第三方的身份。在不质疑匿名原则的前提下,它将获取来源的权利奉为神圣。这种发展的原因可以在欧洲法律的演变中找到,而不是在法国生物伦理法的逻辑演变中找到。然而,无论是在具体和技术上执行这种接触起源的机会方面,还是在实现从这一制度中受益的儿童获得这一权利方面的实际后果方面,这种纳入并非没有困难。
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引用次数: 0
Chapitre 4. PMA : la nouvelle donne. La révision de la loi de bioéthique en 2021. 第四章。PMA:新游戏。2021年生物伦理学法的修订。
Pub Date : 2023-01-01 DOI: 10.54695/jibes.342.0055
Dominique Mehl

The new version of the bioethics law adopted in 2021 is distinguished first and foremost by its openness. It legitimises access to medically assisted procreation for lesbian couples and single women. It allows young adults born through gamete donation to know their origins. It allows any woman to freeze her oocytes with a view to a subsequent pregnancy, without any medical condition. At the same time, the new law is characterised by its moderation. These new freedoms do not challenge the primacy of conjugal parenthood. Multiple parenthood is not on the agenda. The law establishes a differentiated filiation between heterosexual parentage and homoparentage. It confirms the absolute ban on surrogate motherhood. Between authorisations and prohibitions, the fourth bioethics law promotes a tempered liberalism.

2021年通过的新生命伦理法的最大特点是开放性。它使女同性恋夫妇和单身妇女获得医疗辅助生育的权利合法化。它允许通过配子捐赠出生的年轻人了解他们的来源。它允许任何妇女冷冻她的卵母细胞,以期随后怀孕,而不需要任何医疗条件。同时,新法律的特点是温和。这些新的自由并不会挑战夫妻父母的首要地位。多重父母不在议事日程上。法律规定了异性恋父母和同性恋父母之间的区别。它证实了对代孕母亲的绝对禁止。在授权和禁止之间,第四生物伦理学法提倡一种温和的自由主义。
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引用次数: 0
Revue de livres. 书评。
Christian Byk
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引用次数: 0
Chapitre 4. Autonomy of minors questioned: Russian case with the loss of medical secrecy. Chapitre 4。未成年人自主权受到质疑:俄罗斯丧失医疗保密的案例。
Pub Date : 2023-01-01 DOI: 10.3917/jibes.341.0057
Boris Sergeevich Solozhenkin

What is the value of confidentiality? Russian society faced this issue in 2020, when minors aged 15 to 18 lost their privacy. The amendment to the Federal Law, caused the situation, was received ambiguously, but quickly ceased to be the subject of public discussion. In my article, I study this event in a bioethical context, considering the topics of privacy, autonomy and relativity. Social discussion was not productive, since the arguments of both sides contained a double-edged argument: depending on existing relations in a family, the amendment will have a positive or negative meaning. By pointing out all the weaknesses of this shift in emphasis to relationships (that also implies the uselessness of the concept of relational autonomy here), I designate a real problem. A conflict situation has evolved both within bioethical principles and within the single principle – respect for autonomy. Due to the lack of confidentiality, the opportunity to act according to one’s own personal plan, presupposed by informed consent, is devalued. Autonomy turns out to be incomplete, twofold: it exists only for onetime decisions, and it is not in the long-term perspective because of a possibility of interference by others (parents, guardians) in this decision-making process. Since such criteria of autonomous action as intentionality and noncontrol may be violated, the autonomy of minors becomes contradictory. To avoid this, the autonomy should be either established as partial, or, by insisting on the return of confidentiality back to minors of the specified age, restored as full. Partial autonomy is a paradox, and a teenager should be endowed with what I call, considering the age criteria, the “presumption of autonomy”. If we do not give up autonomy completely, then we must restore its context consistently and non-contradictory: the ability of minors of this age category to make medically significant decisions requires the restoration of confidentiality and vice versa. Additionally, I investigate privacy’s impact on confidentiality: in Russian bioethics and medical practice, privacy is not considered as a source of other rights, the initial principle organizing the discourse.

保密的价值是什么?俄罗斯社会在2020年面临这个问题,当时15至18岁的未成年人失去了隐私。《联邦法》修正案引起了这种情况,人们对它的态度含糊不清,但很快就不再是公众讨论的主题。在我的文章中,我在生物伦理的背景下研究了这一事件,考虑了隐私、自主性和相对性的主题。社会讨论没有产生效果,因为双方的论点都包含了一把双刃剑:根据家庭中现有的关系,修正案将具有积极或消极的意义。通过指出这种将重点转向关系的所有弱点(这也暗示了关系自治概念在这里的无用性),我指出了一个真正的问题。在生物伦理原则和单一原则内部,冲突局势已经演变。尊重自主权。由于缺乏保密性,按照自己的个人计划行事的机会(以知情同意为前提)被贬低了。自主性被证明是不完整的,双重的:它只存在于一次性的决定中,它不存在于长期的观点中,因为在这个决策过程中可能会受到他人(父母、监护人)的干扰。由于故意性和非控制性等自主行为的标准可能被违反,未成年人的自主性就成为矛盾。为了避免这种情况,应该将自主权确立为部分的,或者通过坚持将保密权交还给规定年龄的未成年人,将其恢复为完全的。部分自主是一个悖论,考虑到年龄标准,青少年应该被赋予我所说的“自主推定”(”如果我们不完全放弃自主权,那么我们必须始终如一和不矛盾地恢复其背景:这一年龄段的未成年人作出重大医疗决定的能力要求恢复保密性,反之亦然。此外,我还调查了隐私对保密性的影响:在俄罗斯的生物伦理和医疗实践中,隐私不被视为其他权利的来源,这是组织话语的最初原则。
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引用次数: 0
Chapitre 1. Santé publique et prise en charge des maladies. 第一章的标题。公共卫生和疾病管理。
Pub Date : 2023-01-01 DOI: 10.54695/jibes.333.0027
Vincent-Pierre Comiti

The history of environmental damages is linked to the development of diseases. Conversely, individual and collective protection measures for the living environment. Were often beneficial to health.

环境破坏的历史与疾病的发展有关。反之,个人和集体对生活环境的保护措施。通常对健康有益。
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引用次数: 0
Chapitre 7. Repenser la communauté virtuelle avec Michel Henry. 第7章)。与米歇尔·亨利一起重新思考虚拟社区。
Pub Date : 2023-01-01 DOI: 10.3917/jibes.332.0101
Nancy Zgheib

This article presents a phenomenological approach of a virtual society. Michel Henry outlined a phenomenology of living community and a critical approach of the technical and technological progress. Those approaches call into question the possibility of intersubjective relations within virtual society during the current sanitary crisis that led to a lack of live communication. There couldn’t be neither being – with, nor being – in – common disincarnate, every intersubjective relation needs a living charnel presence.

本文提出了虚拟社会的现象学方法。米歇尔·亨利概述了生活社区的现象学和技术进步的批判方法。在当前卫生危机导致缺乏实时沟通的情况下,这些方法对虚拟社会中主体间关系的可能性提出了质疑。不可能两者都不存在。With, not being –& # 8211;每个主体间关系都需要一个活生生的通道存在。
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Journal international de bioethique et d'ethique des sciences
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