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Centre de recherche de l’Académie militaire de Saint-Cyr Coëtquidan et la Croix-Rouge française, Les enjeux de l’autonomie des systèmes d’armes létaux, Pédone, Paris, 2022. Saint-Cyr Coëtquidan 军事学院研究中心和法国红十字会,《Les enjeux de l'autonomie des systèmes d'armes létaux》,Pédone,巴黎,2022 年。
Pub Date : 2024-01-01 DOI: 10.3917/jibes.343.0082
Christian Byk
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引用次数: 0
Chapitre 3. Inégalités dans le dépistage et la prévention du VIH/SIDA. 第 3 章:艾滋病毒/艾滋病筛查和预防中的不平等现象。
Pub Date : 2024-01-01 DOI: 10.3917/jibes.343.0047
Nonvignon Marius Kêdoté, Anne-Marie Duguet, Joseph Giovanni Agbahoungba, Flore A Gangbo

Despite progress in the detection and treatment of the Human Immunodeficiency Virus (HIV), major challenges remain in developing countries due to insufficient resources and infrastructure. The number of people living with HIV who do not know their serostatus has fallen worldwide. However, a number of existing obstacles stand in the way of better results. The socio-cultural context in Africa hampers knowledge and understanding of the disease, leading to stigmatizing attitudes, reluctance to undergo screening and poor access to treatment.Inequalities also exist within the countries of the North, as in the case of the French West Indies, which benefit from a policy to combat HIV/AIDS, with results that fall short of those in mainland France. For this reason, we have chosen to compare the situation in the West Indies with that in Benin, in the context of African culture.Our analysis takes stock of the issues and prospects linked to the accessibility and use of screening care in sub-Saharan Africa and the French Departments of America (DFA).In both cases, fear of the disease, stigmatization, fear of a positive HIV test result and fear of disclosing the test result limit preventive and treatment actions for an effective fight against HIV.In sub-Saharan Africa, women are more likely to accept a screening test than men. Certain populations, including adolescents and homosexuals, are in a vulnerable position. The comparison reveals similar attitudes and suggests actions or recommendations in both countries that have produced results.Innovative strategies and specific programs must be implemented to turn the tide in the fight against the HIV epidemic.

尽管在检测和治疗人类免疫缺陷病毒(HIV)方面取得了进展,但由于资源和基础设施不足,发展中国家仍面临重大挑战。全世界不知道自己血清状况的艾滋病毒感染者人数已经下降。然而,现有的一些障碍阻碍了取得更好的成果。非洲的社会文化背景阻碍了人们对艾滋病的认识和了解,导致了轻蔑的态度、不愿接受筛查和难以获得治疗。北方国家内部也存在不平等现象,例如法属西印度群岛,这些国家受益于防治艾滋病毒/艾滋病的政策,但结果却不如法国本土。在这两种情况下,对疾病的恐惧、污名化、对艾滋病毒检测结果呈阳性的恐惧以及对公开检测结果的恐惧,都限制了为有效防治艾滋病毒而采取的预防和治疗行动。某些人群,包括青少年和同性恋者,处于弱势地位。比较显示了两国类似的态度,并提出了已见成效的行动或建议。
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引用次数: 0
Chapitre 5. From individuals to social: The needs for a global ethics overview in pharmacogenomics. 第 5 章.从个人到社会:药物基因组学全球伦理概览的需求。
Pub Date : 2024-01-01 DOI: 10.3917/jibes.343.0085
Anastasia Constantin, Alfonsina Faya Robles, Emmanuelle Rial-Sebbag

As a part of personalized medicine, pharmacogenomics (PGx) allows practitioners to provide the right drug for a given patient, in accordance with the result of a genetic test. This practice raises many ethical issues that are discussed in the literature, sometimes within the larger context of personalized medicine. This article is based on a literature review that is original insofar as it is interdisciplinary and based on an approach that articulates individual and social rights. Here, we propose to reconsider some classic ethical issues, such as informed consent, incidental findings and data protection which are raised by genetic testing and also by PGx in the same or in a different way. We also analyse broader collective issues around racialization and health equality. Our purpose is to contribute in drawing links and parallels between individual rights and collective rights using a social approach. This analysis discusses these ethical issues in research and in clinical setting, understanding the treatment of the individual in his dual quality of patient and research participant.

作为个性化医疗的一部分,药物基因组学(PGx)允许医生根据基因检测结果为特定患者提供合适的药物。这种做法引发了许多伦理问题,文献中对此进行了讨论,有时是在个性化医疗的大背景下进行讨论。本文以文献综述为基础,具有独创性,因为它是跨学科的,并以阐明个人和社会权利的方法为基础。在此,我们建议重新考虑一些经典的伦理问题,如知情同意、偶然发现和数据保护,这些问题由基因检测和 PGx 以相同或不同的方式提出。我们还分析了围绕种族化和健康平等的更广泛的集体问题。我们的目的是采用社会方法,在个人权利和集体权利之间建立联系和平行关系。本分析讨论了研究和临床环境中的这些伦理问题,理解了个人作为病人和研究参与者的双重身份所受到的待遇。
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引用次数: 0
Chapitre 2. L’autonomisation des comités nationaux d’éthique de la recherche en Afrique : perspective historique et enjeux actuels. 第 2 章.增强非洲国家研究伦理委员会的能力:历史视角与当前问题。
Pub Date : 2024-01-01 DOI: 10.3917/jibes.343.0029
V Martin-Schmets, O Bah-Sow, M Boko, F Gangbo, C Giquel, E Ouattara, D Pathé, L Penali, V Pirard, A-L Morin

Since the 60s, and particularly after various scandals in the 90s, national research ethics committees in Africa have established themselves as key players in the field of international clinical research. Notably based on the principle of double ethical review, their existence has historically been aimed at preventing a form of ethical dumping, a temptation that still exists today on the part of some research promoters. While the international framework of “soft” law has favored their emergence and legitimacy, a legal and regulatory framework of “hard” law is also necessary at local level for each national research ethics committee, to ensure its proper functioning and the optimal fulfillment of its missions. The aim of this article is to analyze the similarities and differences between three national ethics committees in Africa, specifically the CNERS of Guinea, the CNERS of Benin and the CNESVS of Côte d’Ivoire, in terms of status, missions, legal or regulatory ground and, more generally, autonomy. This analysis will enable us, on the one hand, to take account of common logistical difficulties and, on the other, to go beyond differences in legal status and missions to define what enables this type of committee to fully exercise its role(s). Finally, this article proposes to model the various elements that contribute to the autonomy and resilience of a national research ethics committee, around a notion proposed on this occasion: the “circles of autonomy”.

自 20 世纪 60 年代以来,特别是在 90 年代的各种丑闻之后,非洲的国家研究伦理委员 会已成为国际临床研究领域的主要参与者。特别是在双重伦理审查原则的基础上,这些委员会的存在历来旨在防止某种形式的伦理倾销,而这种诱惑在今天对某些研究促进者来说依然存在。虽然国际软法框架有利于伦理委员会的出现和合法化,但在地方一级,每个国家的研究伦理委员会也需要一个硬法的法律和监管框架,以确保其正常运作并以最佳方式履行其使命。本文旨在分析非洲三个国家伦理委员会,特别是几内亚的 CNERS、贝宁的 CNERS 和 Côte d’Ivoire 的 CNESVS,在地位、使命、法律或监管依据以及更广泛的自主权方面的异同。这种分析一方面使我们能够考虑到后勤方面的共同困难,另一方面使我们能够超越法律地位和任务方面的差异,确定是什么使这类委员会能够充分发挥其作用。最后,本文建议围绕本次会议提出的一个概念:"自治圈"(“circle of autonomy”),对有助于国家研究伦理委员会自主性和复原力的各种因素进行建模。
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引用次数: 0
J-F Delfraisy, C. Kirchner, Questions d’éthique au temps de la Covid-19, La Documentation française, Paris, 2023. J-F Delfraisy, C. Kirchner, Questions d'éthique au temps de la Covid-19, La Documentation française, Paris, 2023.
Pub Date : 2024-01-01 DOI: 10.3917/jibes.343.0082b
Christian Byk
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引用次数: 0
Revue de livres. 书评
Christian Byk
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引用次数: 0
Chapitre 4. Subventions discriminatoires de soins medicaux à l’épreuve du principe éthique de la justice : cas d’un service d’orl au burkina faso. 第 4 章:根据公正的伦理原则检验歧视性医疗补贴:布基纳法索耳鼻喉科服务的案例。
Pub Date : 2024-01-01 DOI: 10.3917/jibes.343.0069
Richard Wend-Lasida Ouedraogo, Guillaume Durand, Diataga Sylvestre Yonli, Tarcissus Konsem

Introduction: A legal exception to the principle of equal health rights, discriminatory subsidies often pose an ethical dilemma in the field of application.

Aim: To analyze discriminatory subsidies for healthcare in the light of the ethical principle of justice and to propose alternatives to any inherent legal and ethical conflicts.

Method: This was a qualitative, descriptive and analytical study based on semi-structured interviews with caregivers.

Results: Participants felt that the application of discriminatory subsidies has a negative impact on substantial distributive justice. The infringements of the award conditions were exclusively for the benefit of the patients concerned. Their impact was considered positive on distributive justice and negative on formal justice.

Discussion: Discriminatory care subsidies generally stem from a legal requirement whose application should not be ambiguous. It is apparent that the infringements of the conditions for attribution were in favour of substantial distributive justice. This opposition is a potential source of decision-making difficulties for caregivers who often choose to violate conditions for the benefit of their indigent patients. There are therefore violations of ethically understandable standards, which must be admitted. This could be done through the provision of exceptions for the application of standards for ”noble causes” and conscientious objection clauses in health policy texts.

Conclusion: The legitimacy of health policy norms is essential for their effective application, hence the interest of taking distributive justice into account in the genesis of formal norms.

导言:目的:根据正义的伦理原则分析医疗保健方面的歧视性补贴,并就任何固有的法律和伦理冲突提出替代方案:这是一项定性、描述性和分析性研究,以对护理人员进行半结构化访谈为基础:结果:参与者认为,歧视性补贴的实施对实质性的分配公正产生了负面影响。违反奖励条件完全是为了相关患者的利益。讨论:讨论:歧视性护理补贴一般源于法律规定,其适用不应含糊不清。显然,对归属条件的违反有利于实质性的分配公正。这种对立是护理人员决策困难的潜在根源,他们往往为了贫困患者的利益而选择违反条件。因此,必须承认存在违反伦理上可以理解的标准的情况。要做到这一点,可以在卫生政策文本中规定为 ”崇高事业”和出于良心拒服兵役条款而适用标准的例外情况:卫生政策准则的合法性对其有效实施至关重要,因此在制定正式准则时应考虑到分配正义。
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引用次数: 0
Chapter 8. How can digitalization contribute to the transformation of food systems towards sustainability? Analysing the farm to fork strategy with the digitalization lens and raising possible ethical rules. 第 8 章数字化如何促进粮食系统向可持续方向转变?从数字化视角分析 "从农场到餐桌 "战略,并提出可能的道德规则。
Pub Date : 2024-01-01 DOI: 10.3917/jibes.344.0145
Silvia Rolandi, Gianluca Brunori

The present contribution aims to provide an overview of the role attributed to digitalization in relation to the EU Farm to Fork Strategy. The Strategy represents the set of instruments that the European Commission identified to achieve a European Union sustainable food system, and the role attributed to digitalization is pivotal, as the main overall instrument to boost sustainability. Based on the existing literature on the specific subject matter, the authors attempt to provide an analysis of the document looking for specific references to digitalization and highlighting possible emerging related ethical issues with the aim of initiating the discourse for further research on possible legal solutions.

本文旨在概述数字化在欧盟 "从农场到餐桌 "战略中的作用。该战略是欧盟委员会为实现欧盟可持续食品体系而确定的一套工具,而数字化作为促进可持续性的主要总体工具,其作用举足轻重。作者根据有关该特定主题的现有文献,试图对该文件进行分析,寻找有关数字化的具体提法,并强调可能出现的相关伦理问题,目的是为进一步研究可能的法律解决方案展开讨论。
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引用次数: 0
Chapitre 4. L’accident du travail chez soi. 第 4 章 家庭事故家庭事故
Delphine Ronet-Yague

The widespread use of teleworking during the health crisis reduced the flow of occupational accident claims by 20%. This applies to commuting accidents, as well as claims related to « immediate » or “deferred” risks (Rapp. annuel 2020 de l’Assurance maladie - Risques professionnels : Eléments statistiques et financiers, déc. 2021, p. 2 and 113). On the basis of these figures, working at home could be analyzed as a means of preventing occupational risks and improving workers’ health. In reality, however, these figures should not obscure the fact that telecommuting is a major occupational hazard. This is all the more the case given that, while telecommuting was not very widespread before the pandemic, it is now popular with employees and is being developed by many companies as a source of productivity (Rapp. CNP, May 16 2022). We therefore need to keep a close eye on the development of workplace accident legislation in this area, its adaptability to the specific claims experience of teleworkers and its perfectibility, not forgetting the thorny question of the possible recognition of the employer’s inexcusable fault in the event of the accident being covered by professional legislation.

在健康危机期间,远程办公的广泛使用使工伤事故索赔减少了 20%。这适用于通勤事故,以及与« 即时 »或“延迟”风险有关的索赔(Rapp. annuel 2020 de l’Assurance maladie - Risques professionnels :Eléments statistiques et financiers, déc.2021 年,第 2 页和第 113 页)。根据这些数字,可以分析出在家工作是预防职业风险和改善工人健康的一种手段。但实际上,这些数字不应掩盖电子通勤是一种重大职业危害的事实。尽管远程办公在大流行病之前并不普遍,但现在却受到了员工的欢迎,许多公司都将其作为提高生产力的一种手段(Rapp. CNP,2022 年 5 月 16 日)。因此,我们需要密切关注该领域工伤事故立法的发展,关注其对远程办公人员特殊索赔经历的适应性及其完善性,同时也不要忘记一个棘手的问题,即在专业立法涵盖事故的情况下,雇主不可原谅的过失是否可能得到承认。
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引用次数: 0
Revue de livres. 书评
Christian Byk
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引用次数: 0
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Journal international de bioethique et d'ethique des sciences
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