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Forced to adapt: Structural constraints and healthcare trade-offs among transgender and gender-diverse populations in the United States 被迫适应:美国跨性别和性别多样化人群中的结构性限制和医疗保健权衡
IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-12-04 DOI: 10.1016/j.ssmqr.2025.100682
Harry Barbee , Jordan Ramnarine , Nik M. Lampe , Marci Exsted , Ellesse-Roselee Akré
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引用次数: 0
Introducing new technologies while maintaining high reliability: Comparison of two hospitals 在保持高可靠性的同时引入新技术:两家医院的比较
IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-12-04 DOI: 10.1016/j.ssmqr.2025.100684
Carolin Auschra, Jörg Sydow
Introducing new technologies is a challenge to organizations that strive for reliability. With the help of practice theory and a special focus on resourcing practices, we conducted a qualitative case study on the introduction of two technologies in two German hospitals: one introducing a digital anesthesia documentation software, the other one a robot-assisted knee arthroplasty. Our findings illustrate that, to introduce such technologies, the organizations involved enacted specific practices, among them resourcing practices, in order to increase reliability during all steps of the introduction process. Our study also reveals that, throughout all phases, it is important to collaborate with the technology provider in order to acquire knowledge not only about the new technology, but also about the introduction process and to maintain reliability.
引入新技术对于追求可靠性的组织来说是一个挑战。在实践理论的帮助下,我们特别关注资源实践,对两家德国医院的两项技术的引入进行了定性案例研究:一项引入了数字麻醉记录软件,另一项引入了机器人辅助膝关节置换术。我们的研究结果表明,为了引入这些技术,相关组织制定了具体的实践,其中包括资源实践,以便在引入过程的所有步骤中增加可靠性。我们的研究还表明,在所有阶段,与技术供应商合作是非常重要的,这不仅是为了获取有关新技术的知识,也是为了获取有关引入过程和保持可靠性的知识。
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引用次数: 0
Bureaucratic violence: Professionals’ views of the financial experiences of terminally ill migrants 官僚暴力:专业人士对绝症移民财务经历的看法
IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-12-04 DOI: 10.1016/j.ssmqr.2025.100680
Tim Sedgley , Joanne Alexander , Laurence Lessard-Phillips , Aisha Macgregor , Liz Forbat

Background

Having a terminal illness is associated with an increased risk of living in poverty and destitution at end of life. This is more pronounced for migrants who may not have the same social and cultural capital, or local family support, that established citizens have. This paper explores the financial challenges for migrants with a terminal illness.

Methodology

Qualitative interviews were conducted with healthcare staff, and legal and migration specialists supporting migrants with a terminal illness in the UK. A total of 22 people were interviewed, comprising 14 working within health/palliative care settings, four in legal/policy settings, and four in migrant support.

Findings

Thematic analysis identified that having a terminal illness as a migrant accompanies severe financial and material challenge. Migrants continued to work while receiving chemotherapy and used unregulated money lenders to stave off poverty. The expense of visa applications, insecure visa terms, and exclusion from statutory and healthcare support combined to produce enormous financial, emotional and physical strain on terminally ill migrants. Interviewees situated these challenges as both impediments to their work supporting migrants, and as constituting a form of bureaucratic violence.

Conclusion

Financial precarity for migrants with terminal illness was exacerbated by bureaucratic systems and processes (e.g., immigration policy and welfare exclusion). There is urgent need for systemic reform to ensure that good quality of living and dying is not a privilege of the financially secure. However, this is predicated on a political will and interest to improve the lives and deaths of migrants with terminal illness.
患有绝症与生命结束时生活在贫困和匮乏中的风险增加有关。对于那些可能不像当地居民那样拥有社会和文化资本或当地家庭支持的移民来说,这种情况更为明显。本文探讨了患有绝症的移民面临的经济挑战。方法:对医疗保健人员以及在英国为患有绝症的移民提供支持的法律和移民专家进行定性访谈。总共采访了22人,其中14人在保健/姑息治疗机构工作,4人在法律/政策机构工作,4人在移民支助机构工作。研究结果:专题分析表明,患有绝症的移民会带来严重的经济和物质挑战。移民在接受化疗的同时继续工作,并利用不受监管的放债人来摆脱贫困。签证申请的费用、不安全的签证条款,以及被排除在法定和医疗支持之外,这些因素加在一起,给身患绝症的移民带来了巨大的经济、情感和身体压力。受访者认为这些挑战既阻碍了他们支持移民的工作,也构成了一种官僚暴力。结论官僚制度和程序(如移民政策和福利排斥)加剧了绝症移民的经济不稳定。迫切需要进行系统性改革,以确保良好的生活质量和死亡不是经济上有保障的人的特权。然而,这是基于改善身患绝症的移徙者的生活和死亡的政治意愿和兴趣。
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引用次数: 0
Longitudinal reflections on family caregiving experiences: Insights from solicited diaries of caregivers of people living with dementia in British Columbia, Canada 对家庭照护经验的纵向反思:来自加拿大不列颠哥伦比亚省痴呆症患者照护者征求日记的见解
IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-12-04 DOI: 10.1016/j.ssmqr.2025.100677
Kishore Seetharaman , Lucy Kervin , Koushambhi Khan , Heather Cooke , Jennifer Baumbusch
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引用次数: 0
“I'm staying as informed as I can and trying to make nutritional & lifestyle amendments”: COVID long-haulers’ strategies for managing uncertainty and assessing the trustworthiness of COVID-19-related information “我尽我所能了解情况,并试图改变营养和生活方式”:COVID长途运输公司管理不确定性和评估COVID-19相关信息可信度的策略
IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-12-04 DOI: 10.1016/j.ssmqr.2025.100681
Beth St. Jean , Katherine F. Raymond , Brooke Fisher Liu , Duli Shi , Miranda Downey , Twanna Hodge , Jane Behre , Nicole Miller
COVID long-haulers face a great deal of uncertainty and information-related challenges that can impede their ability to cope with and manage this serious chronic health condition. We conducted an explanatory sequential mixed-methods study involving an online survey (n = 135) and follow-up interviews (n = 29) to investigate the information-related experiences of COVID long-haulers. In this paper, we share the strategies they used to navigate uncertainty and to assess the trustworthiness of COVID-19-related information. We found that participants experienced a great deal of uncertainty, often relating to the fear, anxiety, and depression they felt as they were unsure whether they would ever recover. Nearly all participants shared strategies they used to deal with uncertainty, which included seeking, sharing, and/or avoiding information; using information to manage one's health; taking control of what they can and/or giving up control over things they cannot; and accepting their situation. With specific regard to information management, participants shared several strategies they used to assess the trustworthiness of COVID-19-related information. These included looking into the source and/or authors of the information, making sure that the authors provided evidence and citations for their claims, investigating why the information was being shared, making sure that the source/authors acknowledged remaining gaps or uncertainty in our knowledge, and checking multiple sources to cross-verify the information they had found. Our findings have important implications for the design of optimal approaches that can help to support and facilitate COVID long-haulers’ uncertainty management and information assessment efforts.
COVID - 19长途航空公司面临着大量不确定性和与信息相关的挑战,这些挑战可能会阻碍他们应对和管理这一严重慢性健康状况的能力。我们进行了一项解释性顺序混合方法研究,包括在线调查(n = 135)和随访访谈(n = 29),以调查COVID - 19长途运输人员的信息相关经历。在本文中,我们分享了他们用于应对不确定性和评估covid -19相关信息可信度的策略。我们发现,参与者经历了大量的不确定性,通常与他们感到的恐惧、焦虑和抑郁有关,因为他们不确定自己是否会康复。几乎所有的参与者都分享了他们用来处理不确定性的策略,包括寻找、分享和/或避免信息;利用信息管理个人健康;控制他们能控制的和/或放弃他们不能控制的;接受他们的处境。在信息管理方面,与会者分享了他们用来评估covid -19相关信息可信度的几种策略。这些措施包括调查信息的来源和/或作者,确保作者为他们的主张提供证据和引用,调查信息被共享的原因,确保来源/作者承认我们的知识中仍存在差距或不确定性,并检查多个来源以交叉验证他们发现的信息。我们的研究结果对设计最佳方法具有重要意义,这些方法有助于支持和促进COVID长途运输公司的不确定性管理和信息评估工作。
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引用次数: 0
Experiences of a drug decriminalization policy among police and people who use drugs in Baltimore City: a post-structural policy analysis 巴尔的摩市警察和吸毒者毒品非刑事化政策的经验:后结构政策分析
IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-12-04 DOI: 10.1016/j.ssmqr.2025.100679
Saba Rouhani , Bradley E. Silberzahn , Laura N. Sisson , Abigail K. Winiker , Jinwoo Kim , Leanne Zhang , Kristin E. Schneider , Susan G. Sherman
Drug decriminalization aims to reduce the harms of punitive enforcement while improving police-community relations. Baltimore City implemented de facto decriminalization in 2020, declining to prosecute simple drug possession cases. We examined perspectives of 26 people who use drugs (PWUD) and 22 police officers on policy impacts using semi-structured interviews conducted in 2023–2024. Using post-structural policy analysis, we explored support for criminalization, experiences of and support for the decriminalization policy, and perceptions of persistent or emerging challenges after its implementation. Both PWUD and police criticized criminalization of drug possession as ineffective and inefficient, agreeing that policing should focus on more serious and violent crime rather than personal drug use. Reflecting on decriminalization, PWUD reported persistent distrust and fear of police despite reduced risk of arrest and described encounters as unpredictable. Police officers described the policy as compromising their ability to maintain public order or respond effectively to community complaints about drug activity. Both groups identified police inaction as problematic but framed it differently—PWUD perceived intentional negligence on the part of police, while police perceived the policy to fundamentally constrain their ability to fulfill their role. Participants from both groups highlighted underlying neighborhood disinvestment and absence of social services as key challenges to improving public health and safety. Effective drug policy reform requires comprehensive approaches that couple non-punitive policies with clearly refocused policing protocols and robust community investment.
毒品非刑事化旨在减少惩罚性执法的危害,同时改善警察与社区的关系。巴尔的摩市在2020年实施了事实上的非刑事化,拒绝起诉简单的毒品持有案件。我们在2023年至2024年期间,通过半结构化访谈,研究了26名吸毒者(PWUD)和22名警察对政策影响的看法。使用后结构政策分析,我们探讨了对刑事定罪的支持,非刑事化政策的经验和支持,以及对实施后持续存在或新出现的挑战的看法。PWUD和警方都批评将持有毒品定为刑事犯罪是无效和低效的,一致认为警察应该把重点放在更严重和暴力的犯罪上,而不是个人吸毒。考虑到除罪化,PWUD报告称,尽管逮捕风险降低,但对警察的不信任和恐惧持续存在,并将遭遇描述为不可预测的。警务人员称,这项政策损害了他们维持公共秩序或有效回应社区对毒品活动投诉的能力。这两个组织都认为警察的不作为是有问题的,但对问题的理解不同——pwud认为是警察的故意疏忽,而警察则认为这项政策从根本上限制了他们履行职责的能力。这两个群体的与会者都强调,潜在的社区投资减少和缺乏社会服务是改善公共卫生和安全的主要挑战。有效的毒品政策改革需要综合的方法,将非惩罚性政策与明确重新定位的警务协议和强有力的社区投资结合起来。
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引用次数: 0
Corrigendum to “Key users and the creation of everyday relations with digital technologies in care” [SSM - Qualitative Research in Health 7C (2025) 100547] “关键用户和与护理中的数字技术建立日常关系”的勘误表[SSM -卫生定性研究7C (2025) 100547]
IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-12-01 DOI: 10.1016/j.ssmqr.2025.100609
Vlas Nikulkin, Catharina Margaretha van Leersum, Alexander Peine
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引用次数: 0
Transportation, administrative burden, and COVID-19: A structural intersectional analysis of barriers to HIV care among Black sexual minority men living with HIV in the US South 交通、行政负担和COVID-19:美国南部感染艾滋病毒的黑人性少数男性艾滋病毒护理障碍的结构交叉分析
IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-12-01 DOI: 10.1016/j.ssmqr.2025.100675
Chadwick K. Campbell , Hannah E. Reynolds , Kirstin Kielhold , Daniel E. Siconolfi , Stephen D. Ramos , Susan M. Kegeles , Erik D. Storholm
While much research has focused on individual (e.g., mental health, substance use) and structural factors (e.g., stigma, institutional racism) driving HIV inequities, less studied are the macro-structural factors like policies governing healthcare and transportation. Using the framework of structural intersectionality, we explore how transportation barriers and administrative burden – the experience of accessing safety net services as burdensome – interfered with sustained HIV care engagement among Black sexual minority men living with HIV (BSMM+) in the US South. Between July 2022 and September 2023, we conducted qualitative interviews with 27 BSMM+. Interviews averaged 60 min, and data were analyzed using codebook thematic analysis. Transportation barriers included limited bus routes, reduced capacity during COVID-19, and long travel times. Administrative burden included: not knowing how to access benefits; inconsistent benefit eligibility, required frequent renewals of public insurance; and waiting in long lines for services. Most barriers existed prior to, and were exacerbated by, COVID-related restrictions. Further, barriers intersected such as when reduced capacity on public transit overlapped with changing clinic hours. Individual-level factors have long been the focus of HIV prevention and care interventions. Our findings offer important insights into how macro-structural barriers influence HIV care engagement. Importantly, macro-structural barriers do not impact all people equally. The need for, and access to transportation and safety net services vary by factors such as race, class, and geography, with the most marginalized being the most likely to face these hurdles. Additional research and policy changes are needed to address macro-structural factors and achieve equitable HIV outcomes.
虽然许多研究集中在导致艾滋病毒不平等的个人因素(如精神健康、药物使用)和结构因素(如耻辱、体制性种族主义)上,但对宏观结构因素(如管理医疗保健和交通的政策)的研究较少。利用结构交叉性的框架,我们探讨了交通障碍和行政负担-获得安全网服务的经验是负担-如何干扰美国南部感染艾滋病毒的黑人性少数男性(BSMM+)的持续艾滋病毒护理参与。在2022年7月至2023年9月期间,我们对27名BSMM+进行了定性访谈。访谈平均为60分钟,数据分析采用代码本主题分析。交通障碍包括公交路线有限、2019冠状病毒病期间运力下降以及旅行时间长。行政负担包括:不知道如何获得福利;福利资格不一致,需要频繁更新公共保险;还要排长队等候服务。大多数障碍在covid - 19相关限制之前就存在,并因这些限制而加剧。此外,当公共交通容量减少与诊所时间变化重叠时,障碍就会交叉。长期以来,个人层面的因素一直是艾滋病毒预防和护理干预的重点。我们的研究结果为宏观结构障碍如何影响艾滋病毒护理参与提供了重要见解。重要的是,宏观结构障碍对所有人的影响并不平等。对交通和安全网服务的需求和获取因种族、阶级和地理等因素而异,最边缘化的人最有可能面临这些障碍。需要进行更多的研究和政策改革,以解决宏观结构因素并实现公平的艾滋病毒结果。
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引用次数: 0
Corrigendum to “On-screen medicine. How patients present themselves to medical specialists in video consultations” [SSM - Qualitative Research in Health 8C (2025) 100643] “屏幕上的医学”的更正。患者如何在视频咨询中向医学专家展示自己" [SSM -健康定性研究8C (2025) 100643]
IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-12-01 DOI: 10.1016/j.ssmqr.2025.100656
Anja M.B. Jensen, Sif Sofie Vange, Signe Smith Jervelund, Anne Sofie Borsch
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引用次数: 0
“Stop acting like a diva”: Responses to sexual violence in young adult romance novels “别装得像个天后”:对青少年言情小说中性暴力的回应
IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-11-28 DOI: 10.1016/j.ssmqr.2025.100671
Margaret M. Palmer
Young Adult Literature (YAL) provides adolescents with cultural scripts for understanding gender, sexuality, and power, making it essential to examine portrayals of sexual violence and its aftermath. They can normalize sexual harm by suggesting that girls must manage violence on their own and that institutions will not intervene, or they can challenge rape culture by modeling resistance and accountability. This paper analyzes 20 popular YAL novels published between 2005 and 2013 using iterative inductive content analysis (ICA), an approach involving repeated cycles of reading, coding, and refining categories. I find that characters employ six tactics: saying no, joking, threatening violence, creating space, relocation, and violence, both independently and in combination when responding to sexual violence. Schools are portrayed as failing girls, treating sexual harassment as misunderstandings and dismissing girls as “divas” when they protest; notably, school discipline disproportionately targets Latino boys as perpetrators while excusing white boys, who more frequently commit sexual violence in this sample. Police are almost entirely absent, responding to sexual violence in only two texts. Collectively, these patterns demonstrate how young adult romance novels reproduce central assumptions of rape culture: that sexual violence is an individual rather than institutional issue, that resistance is constrained by gender, and that institutional accountability is not reliable.
青少年文学(YAL)为青少年提供了理解性别、性和权力的文化脚本,因此审视性暴力及其后果的描述至关重要。他们可以通过暗示女孩必须自己处理暴力,机构不会干预,使性伤害正常化,或者他们可以通过树立抵制和问责的榜样,挑战强奸文化。本文使用迭代归纳内容分析(ICA)分析了2005年至2013年间出版的20本YAL流行小说,这是一种涉及阅读、编码和精炼类别的重复循环的方法。我发现角色在应对性暴力时使用了六种策略:拒绝、开玩笑、暴力威胁、创造空间、搬迁和暴力,这些策略既可以单独使用,也可以结合使用。学校被描绘成失败的女孩,将性骚扰视为误解,并在女孩抗议时将其视为“天后”;值得注意的是,学校纪律不成比例地将拉丁裔男孩作为施暴者,而原谅白人男孩,后者在本样本中更频繁地实施性暴力。警察几乎完全缺席,只有两条短信回应性暴力。总的来说,这些模式表明了年轻成人浪漫小说是如何再现强奸文化的核心假设的:性暴力是个人问题,而不是制度问题,反抗受到性别的限制,制度责任不可靠。
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引用次数: 0
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SSM. Qualitative research in health
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