Pub Date : 2024-07-20DOI: 10.1016/j.ssmqr.2024.100465
John L. Oliffe , Nina Gao , Mary T. Kelly , Alex Broom , Damien Ridge , Zac E. Seidler , Paul Sharp , Simon M. Rice
Illuminating relational gendered dimensions of emotions in heterosexual cisgender men’s intimate partnerships, this study addresses a significant knowledge gap in masculinities, emotionality and health work. Thematic analyses of individual photovoice interviews with 92 men from diverse locales and ethnocultural backgrounds revealed a trilogy of men’s practices regarding emotions. Emotional restraint was embodied by men withholding rather than freely expressing emotions, wherein participants justified diverse practices as the by-product of not understanding women partners’ emotionality and working to balance emotions in the relationship. In coached emotions men spoke about needing to unlearn suppressing their emotions while relying on women partners’ expertise for becoming more emotionally expressive and available. This included work around reading and accommodating their partner’s emotions. Emotionally orientated men positioned themselves as relationship ready, whereby they were equally or more emotional than their partners. This emotionality was claimed as an asset and strength integral to building contemporary intimate partner relationships. The findings highlight most men as operating across the three themes, revealing how wide-ranging socially constructed emotions are influenced by gender relations and a plurality of masculinities. Also afforded by these results are directions for working with heterosexual cisgender men to advance gender equity in heterosexual intimate partner relationships.
{"title":"Relational gendered dimensions of emotions in heterosexual cisgender Men’s intimate partnerships","authors":"John L. Oliffe , Nina Gao , Mary T. Kelly , Alex Broom , Damien Ridge , Zac E. Seidler , Paul Sharp , Simon M. Rice","doi":"10.1016/j.ssmqr.2024.100465","DOIUrl":"10.1016/j.ssmqr.2024.100465","url":null,"abstract":"<div><p>Illuminating relational gendered dimensions of emotions in heterosexual cisgender men’s intimate partnerships, this study addresses a significant knowledge gap in masculinities, emotionality and health work. Thematic analyses of individual photovoice interviews with 92 men from diverse locales and ethnocultural backgrounds revealed a trilogy of men’s practices regarding emotions. <em>Emotional restraint</em> was embodied by men withholding rather than freely expressing emotions, wherein participants justified diverse practices as the by-product of not understanding women partners’ emotionality and working to balance emotions in the relationship. In <em>coached emotions</em> men spoke about needing to unlearn suppressing their emotions while relying on women partners’ expertise for becoming more emotionally expressive and available. This included work around reading and accommodating their partner’s emotions. <em>Emotionally orientated</em> men positioned themselves as relationship ready, whereby they were equally or more emotional than their partners. This emotionality was claimed as an asset and strength integral to building contemporary intimate partner relationships. The findings highlight most men as operating across the three themes, revealing how wide-ranging socially constructed emotions are influenced by gender relations and a plurality of masculinities. Also afforded by these results are directions for working with heterosexual cisgender men to advance gender equity in heterosexual intimate partner relationships.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100465"},"PeriodicalIF":1.8,"publicationDate":"2024-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S266732152400074X/pdfft?md5=44898481ade59abc06d7738c66769871&pid=1-s2.0-S266732152400074X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141850166","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-20DOI: 10.1016/j.ssmqr.2024.100464
Danya E. Keene , Gabriela Olea Vargas , Annie Harper
Since 2017, more than a dozen municipalities and five states have passed Right to Counsel (RTC) legislation that guarantees access to free full-scope legal representation for eligible tenants facing eviction. Given the novelty of RTC, much remains unknown about the impacts of these programs or policies on individual renters and their communities. Among these unknown impacts is the way that RTC may affect individual tenant health and population health more broadly. Qualitative research is critical to understanding how these policies are experienced on the ground and how they may affect health and well-being. Responding to this need, we collected qualitative data with more than 100 RTC tenants and other stakeholders in Connecticut, during the first year of the state's statewide RTC policy. Our data show the multiple ways that RTC can help tenants stay in their homes, preventing the well documented health consequences of eviction. Our data also suggest ways that RTC can help tenants secure less health harming outcomes, even when a forced move is unavoidable. Beyond individual impacts, we observe both potential and limitations of RTC in addressing tenant health and health equity more broadly. We do not see evidence in our data that, by itself, CT-RTC substantially changes dynamics between landlords and tenants in ways that would support tenant health. However, we do see ways that RTC can support building collective tenant power that advances systemic changes in the service of housing justice and health equity.
{"title":"Tenant right to counsel and health: Pathways and possibilities","authors":"Danya E. Keene , Gabriela Olea Vargas , Annie Harper","doi":"10.1016/j.ssmqr.2024.100464","DOIUrl":"10.1016/j.ssmqr.2024.100464","url":null,"abstract":"<div><p>Since 2017, more than a dozen municipalities and five states have passed Right to Counsel (RTC) legislation that guarantees access to free full-scope legal representation for eligible tenants facing eviction. Given the novelty of RTC, much remains unknown about the impacts of these programs or policies on individual renters and their communities. Among these unknown impacts is the way that RTC may affect individual tenant health and population health more broadly. Qualitative research is critical to understanding how these policies are experienced on the ground and how they may affect health and well-being. Responding to this need, we collected qualitative data with more than 100 RTC tenants and other stakeholders in Connecticut, during the first year of the state's statewide RTC policy. Our data show the multiple ways that RTC can help tenants stay in their homes, preventing the well documented health consequences of eviction. Our data also suggest ways that RTC can help tenants secure less health harming outcomes, even when a forced move is unavoidable. Beyond individual impacts, we observe both potential and limitations of RTC in addressing tenant health and health equity more broadly. We do not see evidence in our data that, by itself, CT-RTC substantially changes dynamics between landlords and tenants in ways that would support tenant health. However, we do see ways that RTC can support building collective tenant power that advances systemic changes in the service of housing justice and health equity.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100464"},"PeriodicalIF":1.8,"publicationDate":"2024-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000738/pdfft?md5=c5c1d30b150c3a4837f0a9a4a27022fd&pid=1-s2.0-S2667321524000738-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141842006","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-20DOI: 10.1016/j.ssmqr.2024.100462
Felicity Slocombe , Elizabeth Peel , Alison Pilnick , Saul Albert
Although discussion of reminiscence is prevalent in dementia care research, few studies have examined what actually occurs in these interactions, and how they are structured. This study examined how reminiscence activities are structured and negotiated in a care home environment. Informal one-to-one reminiscence interactions between people living with dementia and professional carers were transcribed from a larger video dataset. We used Conversation Analysis to examine reminiscence sequences in a novel relational approach that explored the interactional practices used by carers and people living with dementia. We identified divergences between manualised practice recommendations and observed interactional practices, such as the rarity of open questions, and frequent use of closed questions. This was contrary to current practice recommendations. These and other divergences demonstrate the value of interactional research in informing reminiscence practice and training manuals. By examining how reminiscence operates in practice, our approaches to conducting such activities can be more empirically informed. Our findings can be used to advise and guide those doing reminiscence work in care home settings, and improve the inclusiveness of reminiscence interactions. Through incorporating empirically informed techniques that both carers and people with dementia use in practice, we can facilitate interactions around memories which are supportive of people with dementia's identity.
{"title":"Reminiscence respecified: A conversation analytic examination of practice in a specialist dementia care home","authors":"Felicity Slocombe , Elizabeth Peel , Alison Pilnick , Saul Albert","doi":"10.1016/j.ssmqr.2024.100462","DOIUrl":"10.1016/j.ssmqr.2024.100462","url":null,"abstract":"<div><p>Although discussion of reminiscence is prevalent in dementia care research, few studies have examined what actually occurs in these interactions, and how they are structured. This study examined how reminiscence activities are structured and negotiated in a care home environment. Informal one-to-one reminiscence interactions between people living with dementia and professional carers were transcribed from a larger video dataset. We used Conversation Analysis to examine reminiscence sequences in a novel relational approach that explored the interactional practices used by carers and people living with dementia. We identified divergences between manualised practice recommendations and observed interactional practices, such as the rarity of open questions, and frequent use of closed questions. This was contrary to current practice recommendations. These and other divergences demonstrate the value of interactional research in informing reminiscence practice and training manuals. By examining how reminiscence operates in practice, our approaches to conducting such activities can be more empirically informed. Our findings can be used to advise and guide those doing reminiscence work in care home settings, and improve the inclusiveness of reminiscence interactions. Through incorporating empirically informed techniques that both carers and people with dementia use in practice, we can facilitate interactions around memories which are supportive of people with dementia's identity.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100462"},"PeriodicalIF":1.8,"publicationDate":"2024-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000714/pdfft?md5=9a5493cd5744a8fbe6557b445ee568f0&pid=1-s2.0-S2667321524000714-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141839730","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Black and Hispanic adolescents in New York City experience high rates of pregnancy and sexually transmitted infections. A comprehensive understanding of the complexity of adolescent sexual health and family planning decisions and experiences can provide insights into the sustained disparities and inform practice, policy, and future research. The goal of this study was to explore and analyze this complexity, centering Black and Hispanic adolescent mothers as the experts on sexual and reproductive experiences from pre-pregnancy through parenting. As part of formative research for a human-centered design study, we interviewed 16 Black and Hispanic adolescent mothers living in New York City. Using situational analysis, we mapped relationships, discourse, and social structures to explore the various factors that inform adolescent sexual health decisions, in particular choices about contraception. Situational analysis found that, besides interpersonal factors, organizations and non-human elements like social media and physical birth control devices affected adolescent family planning in three social arenas: home, healthcare, and school. Within and across these arenas, adolescents lacked consistent sexual health education and contraceptive counseling and faced gendered expectations of their behaviors. Participants described parents and healthcare providers as most responsible for providing sexual health counseling yet described parents as uncomfortable or overreactive and healthcare workers as paternalistic and biased. A consideration of the many factors that inform sexual health decision-making and recognition of adolescents’ desire for parents and healthcare providers to be a source of education can address health disparities and promote adolescent sexual health and wellbeing.
{"title":"A comprehensive view of adolescent sexual health and family planning from the perspective of Black and Hispanic adolescent mothers in New York city","authors":"Lauren Gerchow , Yzette Lanier , Anne-Laure Fayard , Allison Squires","doi":"10.1016/j.ssmqr.2024.100460","DOIUrl":"10.1016/j.ssmqr.2024.100460","url":null,"abstract":"<div><p>Black and Hispanic adolescents in New York City experience high rates of pregnancy and sexually transmitted infections. A comprehensive understanding of the complexity of adolescent sexual health and family planning decisions and experiences can provide insights into the sustained disparities and inform practice, policy, and future research. The goal of this study was to explore and analyze this complexity, centering Black and Hispanic adolescent mothers as the experts on sexual and reproductive experiences from pre-pregnancy through parenting. As part of formative research for a human-centered design study, we interviewed 16 Black and Hispanic adolescent mothers living in New York City. Using situational analysis, we mapped relationships, discourse, and social structures to explore the various factors that inform adolescent sexual health decisions, in particular choices about contraception. Situational analysis found that, besides interpersonal factors, organizations and non-human elements like social media and physical birth control devices affected adolescent family planning in three social arenas: home, healthcare, and school. Within and across these arenas, adolescents lacked consistent sexual health education and contraceptive counseling and faced gendered expectations of their behaviors. Participants described parents and healthcare providers as most responsible for providing sexual health counseling yet described parents as uncomfortable or overreactive and healthcare workers as paternalistic and biased. A consideration of the many factors that inform sexual health decision-making and recognition of adolescents’ desire for parents and healthcare providers to be a source of education can address health disparities and promote adolescent sexual health and wellbeing.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100460"},"PeriodicalIF":1.8,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000696/pdfft?md5=f48a1bf6fe63d5ac804e5d84e31b38b3&pid=1-s2.0-S2667321524000696-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141732459","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-14DOI: 10.1016/j.ssmqr.2024.100459
Hagai Boas , Orit Chorowicz Bar-Am
{"title":"Choosing people: How do Israeli kidney donors and surrogates select their recipients?","authors":"Hagai Boas , Orit Chorowicz Bar-Am","doi":"10.1016/j.ssmqr.2024.100459","DOIUrl":"10.1016/j.ssmqr.2024.100459","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100459"},"PeriodicalIF":1.8,"publicationDate":"2024-07-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000684/pdfft?md5=cde43642d3a6546012defb3f9da1a55f&pid=1-s2.0-S2667321524000684-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141705521","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-09DOI: 10.1016/j.ssmqr.2024.100458
Naomi Gilhuis , Teun Eikenaar , Lars Stevenson
When police personnel suffering from work-related psychological injuries seek support and recognition from their organization, a complex dynamic can unfold. This may even be experienced as morally injurious, thus adding to the initial psychological injury. This article delves into this issue in the context of Dutch police personnel, analyzing the narratives of 13 (former) police officers through the theoretical framework of Moral Injury, (mis)recognition, and bureaucracy. Their stories reveal that these officers, having learned to view their organization as their ‘blue family’, yearned for support and recognition, while inherent bureaucratic constraints prevented the police organization from offering genuine recognition. The result was an isolating and existence-denying experience. Bureaucratic logic tends to make the police organization approach recognition-seeking officers as suspects obligated to prove their ‘sick status,’ while it simultaneously creates tendencies to ‘sanitize’ the organization from their illness. Such an interaction becomes a Sisyphean struggle for officers, igniting a 'solidified fight mode' in them and worsening their feelings of misrecognition. Ultimately, this dynamic may be characterized as morally injurious. These findings emphasize the importance of recognition, especially for officers dealing with psychological injuries, and allow us to distinguish between affirmative recognition (perpetuating unhealthy post-injury dynamics) and transformative recognition (changing them toward meaningful change). This study thus advances the understanding of how organizations can both hinder and promote recognition and support, underscoring the pivotal role of transformative recognition to foster healing from the initial psychological injury and prevent moral injury in the injury's aftermath.
{"title":"Sisyphus in Court: Moral injury and requests for recognition in the dynamic between the Dutch police organization and their personnel in the wake of work related psychological injuries","authors":"Naomi Gilhuis , Teun Eikenaar , Lars Stevenson","doi":"10.1016/j.ssmqr.2024.100458","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100458","url":null,"abstract":"<div><p>When police personnel suffering from work-related psychological injuries seek support and recognition from their organization, a complex dynamic can unfold. This may even be experienced as morally injurious, thus adding to the initial psychological injury. This article delves into this issue in the context of Dutch police personnel, analyzing the narratives of 13 (former) police officers through the theoretical framework of Moral Injury, (mis)recognition, and bureaucracy. Their stories reveal that these officers, having learned to view their organization as their ‘blue family’, yearned for support and recognition, while inherent bureaucratic constraints prevented the police organization from offering genuine recognition. The result was an isolating and existence-denying experience. Bureaucratic logic tends to make the police organization approach recognition-seeking officers as suspects obligated to prove their ‘sick status,’ while it simultaneously creates tendencies to ‘sanitize’ the organization from their illness. Such an interaction becomes a Sisyphean struggle for officers, igniting a 'solidified fight mode' in them and worsening their feelings of misrecognition. Ultimately, this dynamic may be characterized as morally injurious. These findings emphasize the importance of recognition, especially for officers dealing with psychological injuries, and allow us to distinguish between affirmative recognition (perpetuating unhealthy post-injury dynamics) and transformative recognition (changing them toward meaningful change). This study thus advances the understanding of how organizations can both hinder and promote recognition and support, underscoring the pivotal role of transformative recognition to foster healing from the initial psychological injury and prevent moral injury in the injury's aftermath.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100458"},"PeriodicalIF":1.8,"publicationDate":"2024-07-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000672/pdfft?md5=725150c8f7f93d479fceb7fd1ac54086&pid=1-s2.0-S2667321524000672-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141604938","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This article uses the concept of compassionate deception to understand the complexity and duality at stake when health professionals and family members lie when caring for people with dementia. Drawing on ethnographic fieldwork at two Danish nursing homes, we argue that compassionate deception conceptually illustrates the fine balance we observed of using lies and deception, while simultaneously acting with recognition and care towards residents. Ethical standards in dementia care do not recommend lying. Nonetheless, based on the practices and perspectives of health professionals and family members we direct ethnographic attention towards the intersections of caring and lying. Focusing on everyday social interactions and negotiations in the nursing home context, this study emphasizes the delicate balance between employing lies and deception, and fostering recognition in the context of dementia care. The study underlines the importance of taking the mundane care practices, the interpersonal relationships, as well as the work conditions and institutional pressure of health professionals into account when discussing care ethics in dementia.
{"title":"Compassionate deception: An ethnographic study of how and why health professionals and family members lie when caring for people with dementia in Danish nursing homes","authors":"Sofie Smedegaard Skov , Anja M.B. Jensen , Gitte Rasmussen , Anna Paldam Folker , Sigurd Lauridsen","doi":"10.1016/j.ssmqr.2024.100457","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100457","url":null,"abstract":"<div><p>This article uses the concept of compassionate deception to understand the complexity and duality at stake when health professionals and family members lie when caring for people with dementia. Drawing on ethnographic fieldwork at two Danish nursing homes, we argue that compassionate deception conceptually illustrates the fine balance we observed of using lies and deception, while simultaneously acting with recognition and care towards residents. Ethical standards in dementia care do not recommend lying. Nonetheless, based on the practices and perspectives of health professionals and family members we direct ethnographic attention towards the intersections of caring and lying. Focusing on everyday social interactions and negotiations in the nursing home context, this study emphasizes the delicate balance between employing lies and deception, and fostering recognition in the context of dementia care. The study underlines the importance of taking the mundane care practices, the interpersonal relationships, as well as the work conditions and institutional pressure of health professionals into account when discussing care ethics in dementia.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100457"},"PeriodicalIF":1.8,"publicationDate":"2024-07-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000660/pdfft?md5=dbb52a03b1a21633571f54558e4a1b19&pid=1-s2.0-S2667321524000660-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141604939","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-02DOI: 10.1016/j.ssmqr.2024.100456
Guusje Jol , Tessa van Charldorp , Hedwig te Molder , Nienke van Trommel
{"title":"“Do you have questions?” How sequential placement shapes the uptake of question invitations in HPV vaccine treatment recommendations in the Netherlands","authors":"Guusje Jol , Tessa van Charldorp , Hedwig te Molder , Nienke van Trommel","doi":"10.1016/j.ssmqr.2024.100456","DOIUrl":"10.1016/j.ssmqr.2024.100456","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100456"},"PeriodicalIF":1.8,"publicationDate":"2024-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000659/pdfft?md5=5e1147cc34ba2d9feccd35fb1a4520cd&pid=1-s2.0-S2667321524000659-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141693693","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This study seeks to understand how healthcare providers perceive systemic- and individual-level factors affecting rural patients' access to care and how this information impacts providers’ approach to cancer screening and prevention recommendations. Over a six-month period in 2021, we conducted semi-structured interviews with primary care providers, nurse navigators, and community health workers affiliated with a regional health system to better understand their perceptions of cancer control in rural communities. Thematic analysis was conducted to identify key themes and develop a conceptual framework to describe the pathway between information-gathering and care coordination – as well as how trust affects these relationships. We found that provider beliefs about barriers facing rural patients influence care recommendations and patient interactions. These beliefs and subsequent interactions affect trust between providers and patients, which influences whether rural patients are willing to believe providers, their adherence to care recommendations, and the information patients are willing to share with providers.
{"title":"Understanding the impact of healthcare providers’ perspectives on cancer control in rural communities: A qualitative study","authors":"Alee Lockman , Mariam Krikorian Atkinson , Keelin McGee , Tenille Oderwald , James McGee","doi":"10.1016/j.ssmqr.2024.100452","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100452","url":null,"abstract":"<div><p>This study seeks to understand how healthcare providers perceive systemic- and individual-level factors affecting rural patients' access to care and how this information impacts providers’ approach to cancer screening and prevention recommendations. Over a six-month period in 2021, we conducted semi-structured interviews with primary care providers, nurse navigators, and community health workers affiliated with a regional health system to better understand their perceptions of cancer control in rural communities. Thematic analysis was conducted to identify key themes and develop a conceptual framework to describe the pathway between information-gathering and care coordination – as well as how trust affects these relationships. We found that provider beliefs about barriers facing rural patients influence care recommendations and patient interactions. These beliefs and subsequent interactions affect trust between providers and patients, which influences whether rural patients are willing to believe providers, their adherence to care recommendations, and the information patients are willing to share with providers.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100452"},"PeriodicalIF":1.8,"publicationDate":"2024-06-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000611/pdfft?md5=20806c2a113acfc0003d78e364906c7d&pid=1-s2.0-S2667321524000611-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141485704","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-06-28DOI: 10.1016/j.ssmqr.2024.100453
Carolyn Sufrin , Tali Ziv , Lauren Dayton , Carl Latkin , Camille Kramer
Background
Many pregnant individuals with opioid use disorder (OUD) spend time in jail, yet access to standard of care medications for OUD (MOUD) in jail is limited. Though qualitative studies of non-incarcerated pregnant and non-pregnant incarcerated individuals with OUD demonstrate complexities that must be considered in delivering effective care, studies with pregnant, incarcerated patients with OUD are lacking.
Methods
We conducted semi-structured qualitative interviews from October 2020–November 2021 with pregnant and postpartum people with OUD who were currently or previously in jail in Florida, Maryland, Ohio, and Virginia. Interview guides incorporated understandings of the power dynamics of incarceration and gendered expectations of motherhood. We analyzed transcripts using descriptive phenomenology to identify themes around experiences of treatment or withdrawal in jail and upon release.
Results
We interviewed 32 women, 23 pregnant and nine postpartum. Some received MOUD in jail and others endured withdrawal. All participants expressed concern for their babies. Five themes emerged: 1)lack of counseling or accurate information about MOUD in pregnancy; 2)absent, delayed, or coercive care in jail; 3)experiences of stigma and discrimination from staff and caregivers; 4)structural barriers to safe transitions and continuing MOUD; and 5)the destructive presence of child protective services for care continuity. These factors all influenced their ability to recover.
Conclusions
Jails must provide OUD care that is attentive to pregnancy physiology, pregnancy-stigma, reentry needs, and patients’ fetal-newborn concerns. Tailoring care specific to pregnancy and postpartum context can improve recovery success, reduce overdose, and promote intergenerational equity.
{"title":"“They talked to me like I was dirt under their feet:” Treatment and withdrawal experiences of incarcerated pregnant people with opioid use disorder in four U.S. states","authors":"Carolyn Sufrin , Tali Ziv , Lauren Dayton , Carl Latkin , Camille Kramer","doi":"10.1016/j.ssmqr.2024.100453","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100453","url":null,"abstract":"<div><h3>Background</h3><p>Many pregnant individuals with opioid use disorder (OUD) spend time in jail, yet access to standard of care medications for OUD (MOUD) in jail is limited. Though qualitative studies of non-incarcerated pregnant and non-pregnant incarcerated individuals with OUD demonstrate complexities that must be considered in delivering effective care, studies with pregnant, incarcerated patients with OUD are lacking.</p></div><div><h3>Methods</h3><p>We conducted semi-structured qualitative interviews from October 2020–November 2021 with pregnant and postpartum people with OUD who were currently or previously in jail in Florida, Maryland, Ohio, and Virginia. Interview guides incorporated understandings of the power dynamics of incarceration and gendered expectations of motherhood. We analyzed transcripts using descriptive phenomenology to identify themes around experiences of treatment or withdrawal in jail and upon release.</p></div><div><h3>Results</h3><p>We interviewed 32 women, 23 pregnant and nine postpartum. Some received MOUD in jail and others endured withdrawal. All participants expressed concern for their babies. Five themes emerged: 1)lack of counseling or accurate information about MOUD in pregnancy; 2)absent, delayed, or coercive care in jail; 3)experiences of stigma and discrimination from staff and caregivers; 4)structural barriers to safe transitions and continuing MOUD; and 5)the destructive presence of child protective services for care continuity. These factors all influenced their ability to recover.</p></div><div><h3>Conclusions</h3><p>Jails must provide OUD care that is attentive to pregnancy physiology, pregnancy-stigma, reentry needs, and patients’ fetal-newborn concerns. Tailoring care specific to pregnancy and postpartum context can improve recovery success, reduce overdose, and promote intergenerational equity.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100453"},"PeriodicalIF":1.8,"publicationDate":"2024-06-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000623/pdfft?md5=965f00790e3f067b5477a0da2648c109&pid=1-s2.0-S2667321524000623-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141481628","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}