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Reminiscence respecified: A conversation analytic examination of practice in a specialist dementia care home 重新诠释回忆:以对话分析法研究痴呆症专业护理院的做法
IF 1.8 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-07-20 DOI: 10.1016/j.ssmqr.2024.100462
Felicity Slocombe , Elizabeth Peel , Alison Pilnick , Saul Albert

Although discussion of reminiscence is prevalent in dementia care research, few studies have examined what actually occurs in these interactions, and how they are structured. This study examined how reminiscence activities are structured and negotiated in a care home environment. Informal one-to-one reminiscence interactions between people living with dementia and professional carers were transcribed from a larger video dataset. We used Conversation Analysis to examine reminiscence sequences in a novel relational approach that explored the interactional practices used by carers and people living with dementia. We identified divergences between manualised practice recommendations and observed interactional practices, such as the rarity of open questions, and frequent use of closed questions. This was contrary to current practice recommendations. These and other divergences demonstrate the value of interactional research in informing reminiscence practice and training manuals. By examining how reminiscence operates in practice, our approaches to conducting such activities can be more empirically informed. Our findings can be used to advise and guide those doing reminiscence work in care home settings, and improve the inclusiveness of reminiscence interactions. Through incorporating empirically informed techniques that both carers and people with dementia use in practice, we can facilitate interactions around memories which are supportive of people with dementia's identity.

尽管在痴呆症护理研究中对回忆的讨论非常普遍,但很少有研究对这些互动中实际发生的情况以及它们是如何组织的进行了研究。本研究探讨了在护理之家环境中如何组织和协商回忆活动。我们从一个较大的视频数据集中转录了痴呆症患者和专业护理人员之间一对一的非正式回忆互动。我们采用对话分析法,以一种新颖的关系式方法研究回忆序列,探索照护者和痴呆症患者之间的互动实践。我们发现了手册中的实践建议与观察到的互动实践之间存在差异,例如很少使用开放式问题,而经常使用封闭式问题。这与当前的实践建议背道而驰。这些差异和其他差异表明了互动研究在为回忆实践和培训手册提供信息方面的价值。通过研究回忆在实践中是如何运作的,我们开展这类活动的方法就能更有实证依据。我们的研究结果可以为在护理之家环境中开展回忆工作的人员提供建议和指导,并提高回忆互动的包容性。通过融入护理人员和痴呆症患者在实践中都会使用的经验技巧,我们可以促进围绕回忆的互动,从而支持痴呆症患者的身份认同。
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引用次数: 0
A comprehensive view of adolescent sexual health and family planning from the perspective of Black and Hispanic adolescent mothers in New York city 从纽约市黑人和西班牙裔未成年母亲的角度全面看待青少年性健康和计划生育问题
IF 1.8 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-07-17 DOI: 10.1016/j.ssmqr.2024.100460
Lauren Gerchow , Yzette Lanier , Anne-Laure Fayard , Allison Squires

Black and Hispanic adolescents in New York City experience high rates of pregnancy and sexually transmitted infections. A comprehensive understanding of the complexity of adolescent sexual health and family planning decisions and experiences can provide insights into the sustained disparities and inform practice, policy, and future research. The goal of this study was to explore and analyze this complexity, centering Black and Hispanic adolescent mothers as the experts on sexual and reproductive experiences from pre-pregnancy through parenting. As part of formative research for a human-centered design study, we interviewed 16 Black and Hispanic adolescent mothers living in New York City. Using situational analysis, we mapped relationships, discourse, and social structures to explore the various factors that inform adolescent sexual health decisions, in particular choices about contraception. Situational analysis found that, besides interpersonal factors, organizations and non-human elements like social media and physical birth control devices affected adolescent family planning in three social arenas: home, healthcare, and school. Within and across these arenas, adolescents lacked consistent sexual health education and contraceptive counseling and faced gendered expectations of their behaviors. Participants described parents and healthcare providers as most responsible for providing sexual health counseling yet described parents as uncomfortable or overreactive and healthcare workers as paternalistic and biased. A consideration of the many factors that inform sexual health decision-making and recognition of adolescents’ desire for parents and healthcare providers to be a source of education can address health disparities and promote adolescent sexual health and wellbeing.

纽约市黑人和西班牙裔青少年的怀孕率和性传播感染率都很高。全面了解青少年性健康和计划生育决策及经历的复杂性,可以帮助我们深入了解持续存在的差异,并为实践、政策和未来研究提供依据。本研究的目标是探索和分析这种复杂性,以黑人和西班牙裔青少年母亲为中心,了解她们从怀孕前到养育子女期间的性和生育经历。作为以人为中心的设计研究的形成性研究的一部分,我们采访了居住在纽约市的 16 位黑人和西班牙裔青少年母亲。通过情境分析,我们绘制了人际关系、话语和社会结构图,以探索影响青少年性健康决策的各种因素,尤其是避孕选择。情景分析发现,除了人际关系因素外,组织和非人类因素(如社交媒体和实物节育器)也在三个社会领域影响着青少年的计划生育:家庭、医疗保健和学校。在这些领域内和领域间,青少年缺乏持续的性健康教育和避孕咨询,并面临着对其行为的性别期望。受试者认为父母和医疗保健提供者在提供性健康咨询方面负有最大责任,但他们又认为父母会感到不自在或反应过度,而医疗保健工作者则具有家长作风和偏见。考虑到影响性健康决策的诸多因素,并认识到青少年希望父母和医疗保健提供者成为教育的来源,可以解决健康方面的差异,促进青少年的性健康和福祉。
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引用次数: 0
Choosing people: How do Israeli kidney donors and surrogates select their recipients? 选择人群:以色列肾脏捐献者和代孕者如何选择受体?
IF 1.8 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-07-14 DOI: 10.1016/j.ssmqr.2024.100459
Hagai Boas , Orit Chorowicz Bar-Am
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引用次数: 0
Sisyphus in Court: Moral injury and requests for recognition in the dynamic between the Dutch police organization and their personnel in the wake of work related psychological injuries 法庭上的西西弗斯:荷兰警察组织及其人员在与工作有关的心理伤害发生后的动态中的精神伤害和认可请求
IF 1.8 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-07-09 DOI: 10.1016/j.ssmqr.2024.100458
Naomi Gilhuis , Teun Eikenaar , Lars Stevenson

When police personnel suffering from work-related psychological injuries seek support and recognition from their organization, a complex dynamic can unfold. This may even be experienced as morally injurious, thus adding to the initial psychological injury. This article delves into this issue in the context of Dutch police personnel, analyzing the narratives of 13 (former) police officers through the theoretical framework of Moral Injury, (mis)recognition, and bureaucracy. Their stories reveal that these officers, having learned to view their organization as their ‘blue family’, yearned for support and recognition, while inherent bureaucratic constraints prevented the police organization from offering genuine recognition. The result was an isolating and existence-denying experience. Bureaucratic logic tends to make the police organization approach recognition-seeking officers as suspects obligated to prove their ‘sick status,’ while it simultaneously creates tendencies to ‘sanitize’ the organization from their illness. Such an interaction becomes a Sisyphean struggle for officers, igniting a 'solidified fight mode' in them and worsening their feelings of misrecognition. Ultimately, this dynamic may be characterized as morally injurious. These findings emphasize the importance of recognition, especially for officers dealing with psychological injuries, and allow us to distinguish between affirmative recognition (perpetuating unhealthy post-injury dynamics) and transformative recognition (changing them toward meaningful change). This study thus advances the understanding of how organizations can both hinder and promote recognition and support, underscoring the pivotal role of transformative recognition to foster healing from the initial psychological injury and prevent moral injury in the injury's aftermath.

当遭受与工作有关的心理伤害的警务人员寻求组织的支持和认可时,可能会出现一种复杂的动态。这甚至可能被视为道德上的伤害,从而加重了最初的心理伤害。本文以荷兰警务人员为背景深入探讨了这一问题,通过道德伤害、(错误)认可和官僚主义的理论框架分析了 13 名(前)警官的叙述。他们的故事表明,这些警官已经学会将他们的组织视为自己的 "蓝色大家庭",渴望得到支持和认可,而固有的官僚主义束缚阻碍了警察组织给予真正的认可。其结果是一种与世隔绝、否定存在的经历。官僚逻辑倾向于使警察组织将寻求认可的警官视为有义务证明其 "病态身份 "的嫌疑人,同时产生了使组织 "净化 "其病态的倾向。这样的互动对警官来说是一种西西弗斯式的挣扎,点燃了他们的 "固化战斗模式",加剧了他们被误认的感觉。最终,这种动态可能会被定性为道德伤害。这些发现强调了认可的重要性,尤其是对处理心理伤害的警官而言,并使我们能够区分肯定性认可(延续不健康的受伤后动态)和转化性认可(改变他们,使其发生有意义的变化)。因此,本研究加深了人们对组织如何既阻碍又促进认可和支持的理解,强调了变革性认可在促进最初心理伤害的愈合和防止伤害后的道德伤害方面的关键作用。
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引用次数: 0
Compassionate deception: An ethnographic study of how and why health professionals and family members lie when caring for people with dementia in Danish nursing homes 富有同情心的欺骗:对丹麦养老院中医护人员和家庭成员在照顾痴呆症患者时如何以及为何撒谎的人种学研究
IF 1.8 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-07-05 DOI: 10.1016/j.ssmqr.2024.100457
Sofie Smedegaard Skov , Anja M.B. Jensen , Gitte Rasmussen , Anna Paldam Folker , Sigurd Lauridsen

This article uses the concept of compassionate deception to understand the complexity and duality at stake when health professionals and family members lie when caring for people with dementia. Drawing on ethnographic fieldwork at two Danish nursing homes, we argue that compassionate deception conceptually illustrates the fine balance we observed of using lies and deception, while simultaneously acting with recognition and care towards residents. Ethical standards in dementia care do not recommend lying. Nonetheless, based on the practices and perspectives of health professionals and family members we direct ethnographic attention towards the intersections of caring and lying. Focusing on everyday social interactions and negotiations in the nursing home context, this study emphasizes the delicate balance between employing lies and deception, and fostering recognition in the context of dementia care. The study underlines the importance of taking the mundane care practices, the interpersonal relationships, as well as the work conditions and institutional pressure of health professionals into account when discussing care ethics in dementia.

本文使用 "同情性欺骗 "这一概念来理解医护人员和家庭成员在照顾痴呆症患者时撒谎的复杂性和双重性。通过在丹麦两家疗养院进行人种学实地调查,我们认为,同情性欺骗从概念上说明了我们所观察到的使用谎言和欺骗的微妙平衡,同时又对住院患者给予认可和关怀。痴呆症护理的道德标准不建议说谎。然而,基于医疗专业人员和家庭成员的实践和观点,我们将人种学的注意力引向了关爱与谎言的交叉点。本研究以养老院中的日常社会互动和协商为重点,强调了在痴呆症护理中使用谎言和欺骗与促进认可之间的微妙平衡。本研究强调,在讨论痴呆症护理伦理问题时,必须考虑到医护人员的日常护理实践、人际关系以及工作条件和机构压力。
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引用次数: 0
“Do you have questions?” How sequential placement shapes the uptake of question invitations in HPV vaccine treatment recommendations in the Netherlands "您有问题吗?在荷兰,HPV 疫苗治疗建议中的顺序安排如何影响问题邀请的接受度
IF 1.8 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-07-02 DOI: 10.1016/j.ssmqr.2024.100456
Guusje Jol , Tessa van Charldorp , Hedwig te Molder , Nienke van Trommel
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引用次数: 0
Understanding the impact of healthcare providers’ perspectives on cancer control in rural communities: A qualitative study 了解医疗服务提供者的观点对农村社区癌症控制的影响:定性研究
IF 1.8 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-06-28 DOI: 10.1016/j.ssmqr.2024.100452
Alee Lockman , Mariam Krikorian Atkinson , Keelin McGee , Tenille Oderwald , James McGee

This study seeks to understand how healthcare providers perceive systemic- and individual-level factors affecting rural patients' access to care and how this information impacts providers’ approach to cancer screening and prevention recommendations. Over a six-month period in 2021, we conducted semi-structured interviews with primary care providers, nurse navigators, and community health workers affiliated with a regional health system to better understand their perceptions of cancer control in rural communities. Thematic analysis was conducted to identify key themes and develop a conceptual framework to describe the pathway between information-gathering and care coordination – as well as how trust affects these relationships. We found that provider beliefs about barriers facing rural patients influence care recommendations and patient interactions. These beliefs and subsequent interactions affect trust between providers and patients, which influences whether rural patients are willing to believe providers, their adherence to care recommendations, and the information patients are willing to share with providers.

本研究旨在了解医疗服务提供者如何看待影响农村患者获得医疗服务的系统和个人层面的因素,以及这些信息如何影响医疗服务提供者对癌症筛查和预防建议的态度。2021 年,在为期六个月的时间里,我们对一个地区卫生系统下属的初级保健提供者、护士导航员和社区卫生工作者进行了半结构化访谈,以更好地了解他们对农村社区癌症控制的看法。我们进行了专题分析,以确定关键主题,并制定了一个概念框架来描述信息收集和护理协调之间的途径,以及信任如何影响这些关系。我们发现,医疗服务提供者对农村患者所面临障碍的看法会影响护理建议和患者互动。这些信念和随后的互动影响着医疗服务提供者和患者之间的信任,而这种信任又影响着农村患者是否愿意相信医疗服务提供者、他们对护理建议的坚持程度以及患者愿意与医疗服务提供者分享的信息。
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引用次数: 0
“They talked to me like I was dirt under their feet:” Treatment and withdrawal experiences of incarcerated pregnant people with opioid use disorder in four U.S. states "他们跟我说话,就好像我是他们脚下的泥土:"美国四个州患有阿片类药物使用障碍的被监禁孕妇的治疗和戒毒经历
IF 1.8 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-06-28 DOI: 10.1016/j.ssmqr.2024.100453
Carolyn Sufrin , Tali Ziv , Lauren Dayton , Carl Latkin , Camille Kramer

Background

Many pregnant individuals with opioid use disorder (OUD) spend time in jail, yet access to standard of care medications for OUD (MOUD) in jail is limited. Though qualitative studies of non-incarcerated pregnant and non-pregnant incarcerated individuals with OUD demonstrate complexities that must be considered in delivering effective care, studies with pregnant, incarcerated patients with OUD are lacking.

Methods

We conducted semi-structured qualitative interviews from October 2020–November 2021 with pregnant and postpartum people with OUD who were currently or previously in jail in Florida, Maryland, Ohio, and Virginia. Interview guides incorporated understandings of the power dynamics of incarceration and gendered expectations of motherhood. We analyzed transcripts using descriptive phenomenology to identify themes around experiences of treatment or withdrawal in jail and upon release.

Results

We interviewed 32 women, 23 pregnant and nine postpartum. Some received MOUD in jail and others endured withdrawal. All participants expressed concern for their babies. Five themes emerged: 1)lack of counseling or accurate information about MOUD in pregnancy; 2)absent, delayed, or coercive care in jail; 3)experiences of stigma and discrimination from staff and caregivers; 4)structural barriers to safe transitions and continuing MOUD; and 5)the destructive presence of child protective services for care continuity. These factors all influenced their ability to recover.

Conclusions

Jails must provide OUD care that is attentive to pregnancy physiology, pregnancy-stigma, reentry needs, and patients’ fetal-newborn concerns. Tailoring care specific to pregnancy and postpartum context can improve recovery success, reduce overdose, and promote intergenerational equity.

背景许多患有阿片类药物使用障碍(OUD)的孕妇都在监狱中度过,但在监狱中获得治疗 OUD 的标准药物却很有限。虽然对未被监禁的怀孕和未怀孕的被监禁 OUD 患者的定性研究表明,在提供有效护理时必须考虑到复杂性,但对怀孕的被监禁 OUD 患者的研究还很缺乏。方法我们于 2020 年 10 月至 2021 年 11 月对佛罗里达州、马里兰州、俄亥俄州和弗吉尼亚州目前或以前在监狱服刑的怀孕和产后 OUD 患者进行了半结构化定性访谈。访谈指南包含了对监禁权力动态的理解和对母亲身份的性别期望。我们使用描述性现象学分析了访谈记录,以确定围绕在监狱中和出狱后的治疗或戒断经历的主题。其中一些人在狱中接受了 "谅解与宽容 "治疗,另一些人则经历了戒断治疗。所有参与者都表达了对婴儿的担忧。访谈中出现了五个主题:1)缺乏关于孕期乳房发育迟缓症的咨询或准确信息;2)监狱中缺乏、延迟或强迫性护理;3)来自工作人员和护理人员的羞辱和歧视;4)安全过渡和继续乳房发育迟缓症的结构性障碍;5)儿童保护服务对持续护理的破坏性存在。这些因素都影响了他们的康复能力。结论监狱必须提供关注妊娠生理、妊娠耻辱、重返社会需求和患者对胎儿-新生儿关注的 OUD 护理。针对孕期和产后情况提供量身定制的护理可提高康复成功率、减少用药过量并促进代际公平。
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引用次数: 0
The worry of the next meal: Food insecurity experiences of street-connected children in Ethiopia 担心下一顿饭:埃塞俄比亚与街头有联系的儿童的粮食不安全经历
IF 1.8 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-06-25 DOI: 10.1016/j.ssmqr.2024.100451
Siyane Deressa, Joost Dessein

Food insecurity is a growing global concern, with millions of people suffering from hunger and malnutrition every day. Street-connected children are disproportionately vulnerable to food insecurity due to their living conditions and social status. However, little is known about their food insecurity experience, particularly in low- and middle-income countries. This study, therefore, aims to address this gap by examining the food insecurity experiences of street-connected children in Jimma, Ethiopia. This qualitative study was conducted from July to September 2021, and involved children living on the streets in various parts of Jimma city. In this study, we utilized interviews, focus group discussions, and field observations to investigate food acquisition strategies, hunger experiences, coping mechanisms, and challenges in food access among these children. Our findings indicate that street-connected children struggle to secure adequate, safe, and stable food, encountering pervasive hunger. Their limited resources and income exacerbate their dietary challenges. Their lack of food access not only represents a major challenge in their day-to-day lives but is also central to the various vulnerabilities and adversities they face. Moreover, their persistent hunger complicates their ability to improve their living conditions and exit from the street life. In conclusion, the study underscores the urgent need for focused attention on alleviating food insecurity among street-connected children, particularly in low-income countries.

粮食不安全是一个日益严重的全球问题,每天都有数百万人遭受饥饿和营养不良。与街头有联系的儿童由于其生活条件和社会地位,更容易受到粮食不安全的影响。然而,人们对他们的粮食不安全经历知之甚少,尤其是在中低收入国家。因此,本研究旨在通过考察埃塞俄比亚吉马市与街头有联系的儿童的粮食不安全经历来填补这一空白。这项定性研究于 2021 年 7 月至 9 月进行,涉及吉马市多个地区的流浪儿童。在这项研究中,我们通过访谈、焦点小组讨论和实地观察,调查了这些儿童的食物获取策略、饥饿经历、应对机制和食物获取方面的挑战。我们的研究结果表明,与街头有联系的儿童难以获得充足、安全和稳定的食物,普遍面临饥饿问题。他们有限的资源和收入加剧了他们的饮食挑战。无法获得食物不仅是他们日常生活中的一大挑战,也是他们所面临的各种脆弱性和逆境的核心。此外,持续的饥饿使他们改善生活条件和摆脱街头生活的能力变得更加复杂。总之,这项研究强调,迫切需要重点关注缓解与街头有联系的儿童的粮食不安全问题,特别是在低收入国家。
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引用次数: 0
Assembling vaccine perspectives: Vaccination and moral self-talk in the journals of white US mothers during Covid-19 汇集疫苗观点:19世纪美国白人母亲日记中的疫苗接种和道德自我对话
IF 1.8 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-06-25 DOI: 10.1016/j.ssmqr.2024.100454
Katherine A. Mason , Heather M. Wurtz , Sofia Boracci , Sarah S. Willen
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引用次数: 0
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SSM. Qualitative research in health
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