SSM. Qualitative research in health最新文献

英文中文

The silence of reason: Ethnography of the management of secrecy among young people living with HIV in Kinshasa 理性的沉默：金沙萨年轻艾滋病毒感染者保密管理的人种学

IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

SSM. Qualitative research in health

Pub Date : 2025-12-18 DOI: 10.1016/j.ssmqr.2025.100687

Emilia Brazy-Nancy, Elysée Manziasi Sumbi, Petros Isaakidis, Gisèle Mucinya, Umberto Pellecchia

引用次数: 0

Eviction as structural community violence: Qualitative focus group findings from the social epidemiology to combat unjust residential evictions (SECURE) study 驱逐作为结构性社区暴力：来自社会流行病学的定性焦点小组调查结果，以打击不公正的住宅驱逐（SECURE）研究

IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

SSM. Qualitative research in health

Pub Date : 2025-12-17 DOI: 10.1016/j.ssmqr.2025.100691

Shawnita Sealy-Jefferson , Loretta J. Ross , Tamika Anderson-Mays , Cassy Jones-McBryde , Kyra Sanders , Roquesha Oneal , JoAnn M. Booth , Jacqueline Brown , Tamika Anderson , Maria Hill , Scarlett Bellamy

Background

While growing quantitative evidence documents spillover effects of neighborhood eviction on the health of community members, limited qualitative data exists to identify specific mechanisms of these associations.

Objective

To understand how Black women experience living in neighborhoods where other people are evicted from their homes.

Methods

As part of the Social Epidemiology to Combat Unjust Residential Evictions (SECURE) Study, we conducted n = 16 focus groups among n = 86 Black reproductive age women from Wayne, Oakland, and Macomb Counties in Michigan (2021–2024). The study was informed by several theoretical frameworks including reproductive justice and intersectionality. We used a semi-structured facilitation guide for focus group discussions. We used a grounded theory approach for data analysis, with line-by-line, open coding of professionally transcribed transcripts, using Atlas.ti software. Themes and subthemes emerged based on density of codes in the data.

Results

Thematic analysis revealed several negative impacts specific to the community violence of eviction (n = 209 quotes) including: (1) understanding housing instability caused by eviction, (2) observing belongings removed, (3) eviction and community degradation, (4) mental and emotional responses to witnessing eviction, and (5) neighborhood gentrification.

Significance

Findings emphasize that landlord business practices and behaviors before, during, and after residential evictions should be considered an important source of structural community violence. Future policy solutions, social activism, and intervention studies are warranted.

Impact

This is the first qualitative study to document potential mechanisms of associations between neighborhood evictions and adverse health among Black communities, and data suggests that evictions are an underacknowledged source of neighborhood structural violence.

虽然越来越多的定量证据证明了邻里驱逐对社区成员健康的溢出效应，但现有的定性数据有限，无法确定这些关联的具体机制。目的了解黑人妇女生活在其他人被赶出家园的社区中的经历。方法作为“打击不公正住宅驱逐的社会流行病学研究”（SECURE）的一部分，我们在2021-2024年期间对来自密歇根州韦恩、奥克兰和马科姆县的86名黑人育龄妇女进行了n = 16个焦点小组的调查。这项研究以若干理论框架为依据，包括生殖正义和交叉性。我们在焦点小组讨论中使用了半结构化的促进指南。我们使用基于理论的方法进行数据分析，使用Atlas对专业转录的文本逐行开放编码。ti的软件。主题和子主题的出现是基于数据中代码的密度。结果专题分析揭示了驱逐社区暴力特有的几个负面影响（n = 209个引用），包括：(1)了解驱逐导致的住房不稳定；(2)观察被移走的财产；(3)驱逐与社区退化；(4)目睹驱逐时的心理和情绪反应；(5)社区士绅化。研究结果强调，房东在驱逐居民之前、期间和之后的商业行为和行为应被视为结构性社区暴力的重要来源。未来的政策解决方案、社会行动主义和干预研究是必要的。这是第一项定性研究，记录了黑人社区中邻里驱逐与不良健康之间的潜在关联机制，数据表明，驱逐是社区结构性暴力的一个未被充分认识的来源。

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引用次数: 0

Using metaphor analysis to understand personal and familial experiences with behavioral variant frontotemporal dementia 运用隐喻分析了解行为变异性额颞叶痴呆患者的个人和家庭经历

IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

SSM. Qualitative research in health

Pub Date : 2025-12-16 DOI: 10.1016/j.ssmqr.2025.100686

Makenna May , Ying Zhang , Laynie Dratch , William M.P. Klein , Weiyi Mu , Megan T. Cho , Jill Owczarzak

Frontotemporal dementia (FTD) is a progressive neurodegenerative condition that causes changes in behavior, personality, and language. As researchers better understand the genetic components of FTD, the number of people pursuing genetic testing, either due to their own symptoms of FTD or their family history, is increasing, making it important to understand the impact of genetic diagnosis on lived experience. Individuals may use metaphors to describe, process, and make sense of their experiences with illness. This qualitative study explores how individuals use metaphors to describe personal and familial experiences with behavioral variant FTD (bvFTD) in order to understand what themes may arise in genetic counseling sessions and to accordingly tailor clinical care. The data for this analysis comes from two study populations: asymptomatic individuals with confirmed genetic risk for bvFTD (n = 16) and individuals diagnosed with bvFTD (n = 9). A secondary analysis of 25 semi-structured interviews was completed. Abductive analysis and metaphor analysis were used to identify the primary metaphors through which participants described their experiences with bvFTD. Two of the main themes expressed by metaphors – (1) lack of control over the disease and (2) uncertainty about inheritance and symptoms – consistently conveyed that participants were grappling with how to understand their lives in the past, present, and future. This study suggests that metaphors can provide valuable insight into how clients are revising their life narratives when bvFTD causes biographical disruption. These findings have important implications for genetic counselors working with individuals who have neurodegenerative conditions.

额颞叶痴呆（FTD）是一种进行性神经退行性疾病，会导致行为、个性和语言的改变。随着研究人员更好地了解FTD的遗传成分，由于自己的FTD症状或家族史而进行基因检测的人数正在增加，因此了解基因诊断对生活经历的影响变得非常重要。个人可能会使用隐喻来描述、处理和理解他们的疾病经历。本定性研究探讨个体如何使用隐喻来描述行为变异FTD （bvFTD）的个人和家庭经历，以了解遗传咨询会议中可能出现的主题，并相应地调整临床护理。该分析的数据来自两个研究人群：证实有bvFTD遗传风险的无症状个体（n = 16）和诊断为bvFTD的个体（n = 9）。对25个半结构化访谈进行了二次分析。采用溯因分析和隐喻分析来确定参与者描述其bvFTD经历的主要隐喻。通过隐喻表达的两个主题——(1)对疾病缺乏控制和(2)对遗传和症状的不确定性——一致地传达了参与者正在努力理解他们过去、现在和未来的生活。这项研究表明，当bvFTD导致传记中断时，隐喻可以为客户如何修改他们的生活叙述提供有价值的见解。这些发现对与神经退行性疾病患者一起工作的遗传咨询师具有重要意义。

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引用次数: 0

Understanding lived experience-driven co-production in health and social services: The sowing and growing model 了解卫生和社会服务中以生活经验为导向的合作生产：播种和生长模式

IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

SSM. Qualitative research in health

Pub Date : 2025-12-16 DOI: 10.1016/j.ssmqr.2025.100688

Gillian Mulvale , Jenn Green , Sandra Moll , Nicoline Vackerberg , Glenn Robert , Michael Larkin , Sofia Kjellström , Puspita Hossain , Le-Tien Bhaskar , Esther Lim , Shioma-Lei Craythorne

引用次数: 0

“They need to know we're human beings:” health practitioners and structural invulnerability amidst COVID-19 “他们需要知道我们是人：”在COVID-19中，卫生从业人员和结构的无坚不摧

IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

SSM. Qualitative research in health

Pub Date : 2025-12-16 DOI: 10.1016/j.ssmqr.2025.100689

Anthony M. Jimenez, Hannah M. Cormier

Research illustrates a structural lack of support that health practitioners (physicians, nurses, mental health providers, and healthcare volunteers) have had to contend with amidst the COVID-19 pandemic, but few studies explicitly explore what support means to health practitioners. We take up this question in our study. Drawing on an analysis of 24 semi-structured, in-depth interviews and participant observation (i.e., public meetings/events) with health practitioners in Rochester, New York, we argue that in an era of worsening structural violence, health practitioners are unable to be vulnerable human beings. We find that health practitioners conceptualize support as humanizing. Beyond practicality, support allows health practitioners to do things that makes them feel more like human beings: (1) connect and cultivate professional relationships with one another, (2) be emotionally vulnerable, and (3) provide care that they set out to provide. Within a healthcare system defined by capitalist principles, these meanings of support are construed as “unproductive,” leading practitioners to experience isolation, dehumanization, and moral injury. Adding nuance to the theoretical framework of structural violence and contributing to the literature on health practitioner experiences, our research shows that the US healthcare system is structurally violent not just because it causes harm, but also because it prevents practitioners from processing harm. We call this structural invulnerability – a set of social, cultural, political, and economic conditions and expectations that prevent practitioners from being vulnerable human beings. In short, for health practitioners, support is not just about safeguarding human life but also their own humanity.

研究表明，在COVID-19大流行期间，卫生从业人员（医生、护士、精神卫生提供者和卫生保健志愿者）不得不应对结构性缺乏支持的问题，但很少有研究明确探讨支持对卫生从业人员意味着什么。我们在研究中讨论了这个问题。根据对纽约州罗切斯特市卫生从业人员进行的24次半结构化深度访谈和参与者观察（即公开会议/活动）的分析，我们认为，在一个结构性暴力日益恶化的时代，卫生从业人员无法成为脆弱的人。我们发现，卫生从业人员概念化的支持人性化。除了实用性之外，支持还可以让健康从业者做一些让他们感觉更像人类的事情：(1)相互联系和培养专业关系，(2)情感上脆弱，(3)提供他们打算提供的护理。在由资本主义原则定义的医疗保健系统中，这些支持的含义被解释为“无效”，导致从业者经历孤立、非人化和道德伤害。我们的研究为结构性暴力的理论框架增加了细微差别，并为有关医疗从业者经验的文献做出了贡献，我们的研究表明，美国医疗体系在结构上是暴力的，不仅因为它会造成伤害，还因为它阻止了从业人员处理伤害。我们称之为结构性的坚不可摧——一系列社会、文化、政治和经济条件和期望，阻止从业者成为脆弱的人。简而言之，对卫生从业人员来说，支持不仅是为了保护人的生命，也是为了保护他们自己的人性。

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引用次数: 0

Mapping the benefits and harms of antenatal and newborn screening programmes 绘制出产前和新生儿筛查规划的利与弊

IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

SSM. Qualitative research in health

Pub Date : 2025-12-05 DOI: 10.1016/j.ssmqr.2025.100683

Lisa Hinton , Abigail McNiven , Ashley White , Louise Locock , Stavros Petrou , Oliver Rivero-Arias , Felicity Boardman

Health screening is undergoing seismic change that includes the potential forpersonalized medicine, big data, whole genome sequencing, artificial intelligence and the development of novel and experimental therapies. Acceptability research typically gathers cross-sectional data that identifies and characterizes the harms and benefits of screening programmes, as well as the ways they are experienced, weighed and valued by different groups. Efforts to integrate these types of data into the evidence synthesis and evaluative processes of health screening policy-makers have demonstrated that stakeholders perceive a ‘panoramic’ range of harms and benefits of screening far beyond the remit of policy criteria, and ‘ripple’ backwards and forwards in time. However, relatively few studies have explored these wider impacts of screening and perceptions at different time points.

Using the conceptual lens of a ‘reproductive journey’, this paper builds on existing health screening acceptability research by drawing on diverse and longitudinal qualitative datasets to demonstrate the evolving nature of harms and benefits across time, place and context. Secondary analysis, using situational mapping, of eight large interview datasets collected in the United Kingdom has identified a wide range of harms and benefits related to antenatal and newborn reproductive screening and demonstrated the complexity and vast range of experiences that surround these journeys. The analysis demonstrates that over time and space harms and benefits can have cumulative and amplifying effects, and the need for methodological development in acceptability research that meaningfully incorporates these complex and nuanced harms and benefits is paramount.

健康筛查正在经历翻天覆地的变化，其中包括个性化医疗、大数据、全基因组测序、人工智能以及新型和实验性疗法的发展。可接受性研究通常收集横断面数据，以确定和描述筛查方案的危害和益处，以及不同群体对这些方案的体验、权衡和评价方式。将这些类型的数据纳入健康筛查政策制定者的证据综合和评估过程的努力表明，利益攸关方认为筛查的“全景”范围的危害和益处远远超出了政策标准的范围，并在时间上前后“涟漪”。然而，相对较少的研究探讨了不同时间点筛查和认知的更广泛影响。利用“生殖之旅”的概念视角，本文以现有的健康筛查可接受性研究为基础，利用各种纵向定性数据集，展示了不同时间、地点和背景下危害和益处的演变性质。对在英国收集的8个大型访谈数据集进行情景映射的二次分析，确定了与产前和新生儿生殖筛查相关的广泛危害和益处，并展示了围绕这些旅程的复杂性和广泛的经验。分析表明，随着时间和空间的推移，危害和益处会产生累积和放大的影响，在可接受性研究中，有必要开发方法，有意义地将这些复杂而微妙的危害和益处结合起来。

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引用次数: 0

Forced to adapt: Structural constraints and healthcare trade-offs among transgender and gender-diverse populations in the United States 被迫适应：美国跨性别和性别多样化人群中的结构性限制和医疗保健权衡

IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

SSM. Qualitative research in health

Pub Date : 2025-12-04 DOI: 10.1016/j.ssmqr.2025.100682

Harry Barbee , Jordan Ramnarine , Nik M. Lampe , Marci Exsted , Ellesse-Roselee Akré

引用次数: 0

Introducing new technologies while maintaining high reliability: Comparison of two hospitals 在保持高可靠性的同时引入新技术：两家医院的比较

IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

SSM. Qualitative research in health

Pub Date : 2025-12-04 DOI: 10.1016/j.ssmqr.2025.100684

Carolin Auschra, Jörg Sydow

Introducing new technologies is a challenge to organizations that strive for reliability. With the help of practice theory and a special focus on resourcing practices, we conducted a qualitative case study on the introduction of two technologies in two German hospitals: one introducing a digital anesthesia documentation software, the other one a robot-assisted knee arthroplasty. Our findings illustrate that, to introduce such technologies, the organizations involved enacted specific practices, among them resourcing practices, in order to increase reliability during all steps of the introduction process. Our study also reveals that, throughout all phases, it is important to collaborate with the technology provider in order to acquire knowledge not only about the new technology, but also about the introduction process and to maintain reliability.

引入新技术对于追求可靠性的组织来说是一个挑战。在实践理论的帮助下，我们特别关注资源实践，对两家德国医院的两项技术的引入进行了定性案例研究：一项引入了数字麻醉记录软件，另一项引入了机器人辅助膝关节置换术。我们的研究结果表明，为了引入这些技术，相关组织制定了具体的实践，其中包括资源实践，以便在引入过程的所有步骤中增加可靠性。我们的研究还表明，在所有阶段，与技术供应商合作是非常重要的，这不仅是为了获取有关新技术的知识，也是为了获取有关引入过程和保持可靠性的知识。

引用次数: 0

Bureaucratic violence: Professionals’ views of the financial experiences of terminally ill migrants 官僚暴力：专业人士对绝症移民财务经历的看法

IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

SSM. Qualitative research in health

Pub Date : 2025-12-04 DOI: 10.1016/j.ssmqr.2025.100680

Tim Sedgley , Joanne Alexander , Laurence Lessard-Phillips , Aisha Macgregor , Liz Forbat

Background

Having a terminal illness is associated with an increased risk of living in poverty and destitution at end of life. This is more pronounced for migrants who may not have the same social and cultural capital, or local family support, that established citizens have. This paper explores the financial challenges for migrants with a terminal illness.

Methodology

Qualitative interviews were conducted with healthcare staff, and legal and migration specialists supporting migrants with a terminal illness in the UK. A total of 22 people were interviewed, comprising 14 working within health/palliative care settings, four in legal/policy settings, and four in migrant support.

Findings

Thematic analysis identified that having a terminal illness as a migrant accompanies severe financial and material challenge. Migrants continued to work while receiving chemotherapy and used unregulated money lenders to stave off poverty. The expense of visa applications, insecure visa terms, and exclusion from statutory and healthcare support combined to produce enormous financial, emotional and physical strain on terminally ill migrants. Interviewees situated these challenges as both impediments to their work supporting migrants, and as constituting a form of bureaucratic violence.

Conclusion

Financial precarity for migrants with terminal illness was exacerbated by bureaucratic systems and processes (e.g., immigration policy and welfare exclusion). There is urgent need for systemic reform to ensure that good quality of living and dying is not a privilege of the financially secure. However, this is predicated on a political will and interest to improve the lives and deaths of migrants with terminal illness.

患有绝症与生命结束时生活在贫困和匮乏中的风险增加有关。对于那些可能不像当地居民那样拥有社会和文化资本或当地家庭支持的移民来说，这种情况更为明显。本文探讨了患有绝症的移民面临的经济挑战。方法：对医疗保健人员以及在英国为患有绝症的移民提供支持的法律和移民专家进行定性访谈。总共采访了22人，其中14人在保健/姑息治疗机构工作，4人在法律/政策机构工作，4人在移民支助机构工作。研究结果：专题分析表明，患有绝症的移民会带来严重的经济和物质挑战。移民在接受化疗的同时继续工作，并利用不受监管的放债人来摆脱贫困。签证申请的费用、不安全的签证条款，以及被排除在法定和医疗支持之外，这些因素加在一起，给身患绝症的移民带来了巨大的经济、情感和身体压力。受访者认为这些挑战既阻碍了他们支持移民的工作，也构成了一种官僚暴力。结论官僚制度和程序（如移民政策和福利排斥）加剧了绝症移民的经济不稳定。迫切需要进行系统性改革，以确保良好的生活质量和死亡不是经济上有保障的人的特权。然而，这是基于改善身患绝症的移徙者的生活和死亡的政治意愿和兴趣。

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引用次数: 0

“You're not necessarily pregnant”: Confusion about emergency contraception “你不一定怀孕了”：对紧急避孕的困惑

IF 2.5 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

SSM. Qualitative research in health

Pub Date : 2025-12-04 DOI: 10.1016/j.ssmqr.2025.100678

Jennifer Mueller , Alicia VandeVusse , Laura D. Lindberg

Misconceptions about what emergency contraception does are common and have resulted in policy efforts to restrict access. Understanding the beliefs and reasoning behind people's uncertainty and lack of knowledge about emergency contraception helps shed light on key misconceptions and how advocates, providers, and researchers can improve clarity. We conducted a secondary analysis using previously collected qualitative data from card sort and vignette activities focused on scenarios related to emergency contraception and if participants considered these scenarios abortions (N = 64). We identified three major themes related to participants' classification of emergency contraception: uncertainty and pregnancy liminality; timing and mechanism of action; and the role of intention and overlap with medication abortion. Our study demonstrates that people lack a consistent, coherent understanding of what emergency contraception does, which has implications for contraceptive access and service provision. Furthermore, these misconceptions can become politicized and undergird the rationale for restrictions on sexual and reproductive health care.

关于紧急避孕的作用的误解很常见，并导致限制获取的政策努力。了解人们对紧急避孕的不确定性和缺乏知识背后的信念和原因，有助于揭示关键的误解，以及倡导者、提供者和研究人员如何提高清晰度。我们使用先前从卡片分类和小插曲活动中收集的定性数据进行了二次分析，重点关注与紧急避孕有关的场景，以及参与者是否认为这些场景是堕胎（N = 64）。我们确定了与参与者紧急避孕分类相关的三个主要主题：不确定性和怀孕阈限；作用的时机和机制；而意图的作用又与药物流产重叠。我们的研究表明，人们对紧急避孕的作用缺乏一致、连贯的理解，这对避孕药具的获取和服务提供产生了影响。此外，这些误解可能变得政治化，并成为限制性保健和生殖保健的理由。

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