SSM. Qualitative research in health最新文献

{"title":"Uncertainty and mental health: A qualitative scoping review","authors":"Hanna Kienzler ,&nbsp;Alessandro Massazza ,&nbsp;Rebecca Kuykendall ,&nbsp;Nancy Tamimi ,&nbsp;Weeam Hammoudeh ,&nbsp;Rita Giacaman","doi":"10.1016/j.ssmqr.2024.100521","DOIUrl":"10.1016/j.ssmqr.2024.100521","url":null,"abstract":"<div><div>Reports highlight that the ‘golden age of stability and predictability’ in the latter half of the twentieth century has abruptly drawn to a close and been replaced by a phase of great uncertainty. Quantitative research has established an association between high levels of uncertainty with worsening mental health problems such as depression, anxiety and psychological distress. Important research gaps remain including how people experience and understand uncertainty; what coping mechanisms people use to navigate and manage uncertainties; and what mental health and psychosocial support services are available to those who need them. This paper aims to fill these knowledge gaps through a qualitative scoping review. Our results show the relationship between uncertainty and mental health is co-constitutive and dynamic as people draw on various personal, social and cultural resources to manage and deal with their situations and people’s ability to cope with uncertainties are linked to the environment and social contexts in which they live and which are in a constant state of flux. We recommend that mental health care and social support responses to experiences of uncertainty be promoted at all social-ecological levels and involve all relevant stakeholders beyond the medical sector.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100521"},"PeriodicalIF":1.8,"publicationDate":"2024-12-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174110","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“I'm learning to live after cancer and its treatment”: Exploring the challenges of cancer survivorship in Arkansas","authors":"Ramey Moore ,&nbsp;Emily Hallgren ,&nbsp;Shani Worrell ,&nbsp;Anna Wahls ,&nbsp;Sarah K. Council ,&nbsp;Deanne L. King ,&nbsp;Rajalakshmi Cheerla ,&nbsp;Donya Watson ,&nbsp;Jacquelene Childs ,&nbsp;Martha Garrett-Shaver ,&nbsp;Pearl A. McElfish","doi":"10.1016/j.ssmqr.2024.100519","DOIUrl":"10.1016/j.ssmqr.2024.100519","url":null,"abstract":"<div><h3>Purpose</h3><div>This study explores challenges faced by a large, diverse sample of cancer survivors who received care in the rural state of Arkansas to provide holistic insight into the quality of survivorship.</div></div><div><h3>Methods</h3><div>We used a theory-driven exploratory descriptive design to explore cancer survivors’ (n = 519) biggest cancer-related challenges.</div></div><div><h3>Results</h3><div>Cancer survivors’ challenges were organized using <em>a priori</em> domains from the Quality of Survival framework: quality of life, survival, managing the side effects, and managing the economic impact. Nearly half (48.4%) of all responses identified challenges related to quality of life, and 39.7% of all responses focused on the challenges of managing the side effects of cancer and its treatment. Managing the economic impact (6.9%) and survival (4.9%) were also identified as challenges by survivors.</div></div><div><h3>Conclusions</h3><div>Survivors faced a range of challenges from cancer and its treatment. Survivors primarily faced psychosocial challenges, issues with ongoing care, and physical and/or functional sequelae. Managing the economic impact and financial toxicity of cancer treatment and surviving cancer and its treatment were less frequently identified among the challenges faced by survivors.</div></div><div><h3>Implications for cancer survivors</h3><div>Our analysis highlights the importance of understanding the psychosocial and physical sequelae of cancer and its treatment. Our research helps fill significant gaps in the literature, improving the understanding of rural cancer survivorship. Nuanced understanding of survivors’ experiences, using theory-driven qualitative and mixed-methods approaches, will continue to be critical for developing effective, evidence-based practices to meet the needs of survivors.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100519"},"PeriodicalIF":1.8,"publicationDate":"2024-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174112","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Unpacking diverse pathways to adolescent pregnancy in Cambodia: Qualitative research with girls in rural, peri-urban, and urban settings","authors":"Marie Habito ,&nbsp;Elissa Kennedy ,&nbsp;Chandara Gnim ,&nbsp;Morina Heak ,&nbsp;Vutha Phon ,&nbsp;Maki Akiyama ,&nbsp;Gerda Binder ,&nbsp;Stephen Bell ,&nbsp;Peter Azzopardi ,&nbsp;Julie Hennegan","doi":"10.1016/j.ssmqr.2024.100518","DOIUrl":"10.1016/j.ssmqr.2024.100518","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100518"},"PeriodicalIF":1.8,"publicationDate":"2024-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143175750","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The impact of patient and public involvement in healthcare services: A conceptual review spanning social sciences and health sciences","authors":"Mio Fredriksson ,&nbsp;Filipa Sampaio ,&nbsp;Linda Moberg","doi":"10.1016/j.ssmqr.2024.100517","DOIUrl":"10.1016/j.ssmqr.2024.100517","url":null,"abstract":"<div><div>To understand patient and public involvement (PPI) and its potential impact in the healthcare services more comprehensively, the social science literature on public participation in governing public services must be integrated with the health science literature. To facilitate planning and evaluation of PPI-activities, the aim of this article is to review conceptual discussions of involvement/participation and impact, and summarize and integrate these in a way that advances the conceptual understanding of impact of PPI in healthcare services. Based on the review, we present a conceptual integration chart of impact areas, categories and types. There are three overarching areas: (i) impact on individuals; (ii) impact on the health system; and (iii) impact on decision-making processes and society. The overarching areas contain the categories: (i) citizens, patients, and decision-makers; (ii) service provision, and public health; and (iii) decision-making, policy and state, and public and society. Under these categories, the most commonly encountered impact types are presented.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100517"},"PeriodicalIF":1.8,"publicationDate":"2024-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174162","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"‘‘There's no quick fix!’’ Factors influencing rapid weight loss practices in Irish horseracing and the potential scope for change","authors":"D. O'Neill ,&nbsp;G. Warrington ,&nbsp;L. King ,&nbsp;J. Pugh ,&nbsp;A. McGoldrick ,&nbsp;S. O'Connor ,&nbsp;S.J. Cullen","doi":"10.1016/j.ssmqr.2024.100520","DOIUrl":"10.1016/j.ssmqr.2024.100520","url":null,"abstract":"<div><div>Despite safe methods of weight management being reported, adverse rapid weight loss (RWL) practices persist in horseracing. The aims of this study were to understand the factors that influence persistent RWL to ultimately develop potential solutions to ameliorate the associated issues. Semi-structured interviews were conducted with 33 participants representing relevant sectors of the Irish horseracing industry (jockeys n = 15; trainers/owners/breeders n = 7; health professionals n = 6; racing officials n = 5). Three higher order themes, each containing sub-themes were generated via reflexive thematic analysis: 1) Industry acceptance of RWL/wasting (broad awareness of the severity of RWL, RWL/wasting is part of the job, traditionalist attitude to jockey athletic identity) 2) Change is needed but will face barriers (alter minimum weight &amp; claims, individualise minimum riding weights, implement mandatory education and supports for jockeys), and 3) Change requires a multifaceted, strategic approach (provide scientific rationale for change, industry wide approach is required). This study provides a comprehensive framework for understanding the factors influencing persistent RWL and provides potential changes to limit RWL. Implementing a multifaceted solution adapted to the context of horseracing is recommended, while industry agreement and endorsement of change by role models may facilitate change. Developing an evidence-based rationale should be priority to reduce RWL.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100520"},"PeriodicalIF":1.8,"publicationDate":"2024-12-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143172937","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Responsibility, resentment, and red tape: Exploring stigma experiences among assistance program users in Missouri","authors":"A. Terhaar ,&nbsp;E.K. Barnidge ,&nbsp;M. Somheil ,&nbsp;H. Bednarek","doi":"10.1016/j.ssmqr.2024.100511","DOIUrl":"10.1016/j.ssmqr.2024.100511","url":null,"abstract":"<div><h3>Background</h3><div>Although assistance programs (i.e. Medicaid, SNAP, and food pantries) are proven to ensure access to necessary resources and improve health outcomes, evidence shows that participants experience stigma due to their participation in these programs, creating barriers to participation and further marginalization of low-income families. In the U.S., welfare stigma is rooted in values of personal responsibility that perpetuate harmful stereotypes about assistance users. Internalized, interpersonal, and structural stigma are manifestations of stigma that may be experienced by assistance users.</div></div><div><h3>Methods</h3><div>One-on-one, semi-structured interviews were conducted with a geographically stratified sample of adult Medicaid participants in Missouri (n = 72). Interviews were transcribed verbatim and analyzed using inductive and deductive coding. Thematic content analysis was employed to derive and report the main themes.</div></div><div><h3>Results</h3><div>Among our sample, internalized, interpersonal, and structural stigma were experienced through the value of personal responsibility, program design and implementation, and program utilization. Through the value of personal responsibility, participants shared feelings of shame related to using public assistance (internalized stigma) and exceptionalism when comparing themselves to other users of public assistance (interpersonal stigma). Within program implementation, participants reported the prejudice they experienced through interactions with programmatic staff (interpersonal stigma) and described experiencing administrative barriers to accessing programs (structural stigma). Lastly, participants discussed how stigma influenced their utilization of public assistance programs, including decisions to enroll and engage in programs.</div></div><div><h3>Conclusion</h3><div>Our study adds to existing understanding about how assistance users experience stigma and how internalized, interpersonal, and structural stigma impact assistance program uptake and utilization.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100511"},"PeriodicalIF":1.8,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143173928","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“I trust the health care system, but I also do a little bit of research to understand more”: Vaccine decision-making processes of Vietnamese American parents as acts of agency","authors":"Kim-Phuong Truong-Vu ,&nbsp;Juhee Woo","doi":"10.1016/j.ssmqr.2024.100514","DOIUrl":"10.1016/j.ssmqr.2024.100514","url":null,"abstract":"<div><div>Parents with access to healthcare providers decide to vaccinate their children after engaging in a series of health behaviors, including scheduling annual checkups, listening to vaccine recommendations, and choosing which recommendations to follow. However, few studies in the US have focused on the decision-making processes of parents who consent to vaccinations. Instead, scholars have focused on US-born parents who reject or delay immunizations. This study uses an intersectional lens to analyze in-depth, semi-structured interviews with 41 Vietnamese American parents residing in Southern California to study how they came to their decisions about immunizing their children with specific vaccines. It found that even though parents varied in socioeconomic status and reported trust in immunizations and the US healthcare system, their vaccine decision-making processes included three dynamic tactics before consenting: accessing and evaluating vaccine information from professional and informal networks, independently researching vaccine literature, and asking healthcare providers additional vaccine-related questions. For these parents, receiving advanced and culturally competent vaccine notifications and recommendations influenced their active participation in the decision-making process. Illuminating how these parents command their agency by deliberately engaging in multi-step vaccine decision-making processes, these findings challenge the racialization of Asian Americans as model minorities who passively cooperate with medical recommendations.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100514"},"PeriodicalIF":1.8,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143172932","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Precarity, agency and trust: Vaccination decision-making in the context of the UK asylum system","authors":"Anna Deal ,&nbsp;Maha Salloum ,&nbsp;Sally E. Hayward ,&nbsp;Alison F. Crawshaw ,&nbsp;Felicity Knights ,&nbsp;Jessica Carter ,&nbsp;Isra Al-Sharabi ,&nbsp;Reem Yahia ,&nbsp;Stephanie Fisher ,&nbsp;Beatriz Morais ,&nbsp;Oumnia Bouaddi ,&nbsp;Lucy Jones ,&nbsp;Anna Miller ,&nbsp;Sandra Mounier-Jack ,&nbsp;Sally Hargreaves","doi":"10.1016/j.ssmqr.2024.100515","DOIUrl":"10.1016/j.ssmqr.2024.100515","url":null,"abstract":"<div><h3>Background</h3><div>Individuals living in initial asylum accommodation are at increased risk of vaccine-preventable disease, yet confidence in vaccination may be low in these settings. Our aim was to understand the influence of experiences within the UK asylum system on vaccine confidence and decision-making from a sociological perspective.</div></div><div><h3>Methods</h3><div>In-depth semi-structured interviews were carried out on views and experiences around vaccination (09/2020-08/2021) with individuals seeking asylum or having recently been granted asylum (&lt;10 years in the UK). Interviews were audio-recorded, transcribed and analysed in NVivo 12 using a reflexive thematic analysis through an inductive approach.</div></div><div><h3>Results</h3><div>25 participants were interviewed (mean age: 37 years, mean time in UK: 6 years, 72% female), of whom 13 were living in asylum accommodation at the time of interview. Analysis generated three main themes: 1) the detrimental impact of trauma and fear, both within the UK asylum system and prior, on perceptions of risk and vaccination decisions, 2) the effect of marginalisation, discrimination and neglect within the asylum system on an individual's trust and 3) the structural violence and restricted agency imposed on asylum seekers and its effect on ability and motivation to vaccinate. Past trauma or negative experiences since arriving in the UK, such as feeling forced to receive ‘invasive’ healthcare interventions in asylum accommodation may lead to distrust, increased perception of danger and avoidance of perceived ‘risks’ such as vaccination. Participants described how their struggle to cover basic necessities, social isolation and precarious living conditions imposed by the asylum system left them with more pressing priorities than vaccination. Participants who perceived that they had been cared for with empathy in the healthcare system or who described feeling empowered to make their own decision about vaccination often suggested they would be likely to accept vaccination if offered.</div></div><div><h3>Conclusions</h3><div>Asylum seekers and refugees have often experienced substantial trauma and precarity and have a lack of agency directly imposed on them by the asylum system. These factors are likely to impact trust and decision-making around vaccination, with some also representing systemic or structural barriers to accessing services. Formative experiences in the UK are key to establishing trust in healthcare settings; a trauma-informed approach should be central in developing vaccination interventions for these groups, particularly in asylum accommodation.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100515"},"PeriodicalIF":1.8,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143172933","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Emotional health in adolescents from a critical perspective: Photo-elicitation in a cross-cultural neighborhood","authors":"Josefina Núñez Sahr ,&nbsp;Matthew Bennett ,&nbsp;Laura Medina-Perucha ,&nbsp;Constanza Jacques-Aviñó","doi":"10.1016/j.ssmqr.2024.100516","DOIUrl":"10.1016/j.ssmqr.2024.100516","url":null,"abstract":"<div><div>Adolescent emotional health and well-being have been of growing interest as a result of the disproportionate impact that the COVID-19 syndemic has had on this population. Currently, most available evidence approaches this problem from an adult-centered perspective. Our study used visual methodology to critically analyze the sociocultural and environmental factors which may promote emotional health in adolescents residing in a cross-cultural neighborhood in Barcelona. Photo-elicitation was used to capture the perspective of 86 adolescents aged 15–17 years in a privately-owned but state-funded school. The sample included 43 boys, 42 girls, and 1 person whose gender was not specified. 44 participants had at least one parent born outside of Spain. Each participant submitted a photograph, which was used to share personal narratives by inspiring discussions about the context and significance of the image in group settings and through individual written reflections. The resulting image-text units were analyzed collaboratively during group discussions, followed by data organization, coding, and thematic analysis. Most photographs were situated in the Barcelona metropolitan area, and the most commonly photographed location was inside the home. Well-being was intricately tied to emotional bonds with family, pets, and, to a lesser extent, friendship. Additionally, well-being was associated with nature, physical activity, and creativity. Important gender differences were observed highlighting the continued influence of conventional gender norms, and the family's migration history emerged as a relevant axis influencing emotional health. This study highlights the importance of forging participatory spaces for dialogue, both among peers and between adolescents and adults. By amplifying the voices and experiences of adolescents, these findings contribute to a nuanced understanding of the factors influencing emotional well-being and can provide insight into future research and interventions by directly considering the adolescent perspective.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100516"},"PeriodicalIF":1.8,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143172939","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Impaired face-to-face interaction and emotional energy in cochlear implant usage: Strategies for social inclusion in everyday life among young people with hearing loss","authors":"Kim Sune Karrasch Jepsen,&nbsp;Inge Kryger Pedersen","doi":"10.1016/j.ssmqr.2024.100512","DOIUrl":"10.1016/j.ssmqr.2024.100512","url":null,"abstract":"<div><div>Cochlear implantation is a standardized medical treatment for children and adolescents with severe to profound hearing loss. Medico-clinical research reports good communicative outcomes, especially for those individuals implanted early and who receive aural-verbal habilitation. However, as revealed by studies of other groups with hearing loss, research into pragmatic skills finds variable conversational problems, and quantitative psychosocial studies report more difficulties compared with hearing control groups. These findings pose questions about how everyday social interaction and participation in key settings of socialization occur outside test settings. Developing micro-sociological explanations from Erving Goffman's work and theories of ritual interaction, this article presents a framework that explains problematic findings as resulting from micro-interactional barriers in face-to-face situations. Informal group situations and noise make participants fall out of sync in their interactions, which facilitates micro-social exclusion and defensive strategies. This explanation is qualified in the context of Denmark with an interview-based analysis of how young adults implanted as children have experienced micro-barriers across school trajectories and informal group participations. Furthermore, their experiences suggest that domains of matchup, including multi-modal communication, can be decisive for supporting social participation of children and adolescents with hearing loss in mainstream society.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100512"},"PeriodicalIF":1.8,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174107","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}