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Caring for the caregiver: An exploration of the experiences of caregivers of adults with mental illness 关爱照顾者:探索成年精神病患者照顾者的经历
Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-02-15 DOI: 10.1016/j.ssmqr.2024.100406
Edward Cruz , Melissa A. Paré , Clementa Stan , Jennifer Voth , Leslee Ward , Mona Taboun

Based on the 2017 Canadian Survey on Disability, more than two million Canadians 15 years of age or older are living with a mental health-related disability. Subsequently, access and delivery of mental health services in Canada, more specifically in Ontario, have shifted to a shared responsibility between healthcare providers and the individual client's informal caregivers. Unfortunately, the role of the caregiver has been historically underappreciated and undervalued, leaving caregivers with few supports to help them manage and cope with caregiving responsibilities. This paper reports the results of a qualitative descriptive study that explored the lived experiences of caregivers who are providing care to an adult family member who is living with a mental illness in Windsor-Essex County, Ontario. Twenty-one participants volunteered to be interviewed for this study via telephone or online on Microsoft Teams. All interviews were audio-recorded and transcribed verbatim. Data analysis followed Braun and Clarke's framework for reflexive thematic analysis. Four themes were identified from the 21 interviews: 1) personal impact of being a caregiver, 2) stress associated with navigating the system, 3) complexity of the caregiving burden, and 4) caregivers as buffers of the failings of the system. Results demonstrate that caregiving is a stressful responsibility and, without sufficient supports, can impair the wellbeing of both the caregiver and the care recipient. As such, apart from recognizing informal caregivers as partners in the care of persons living with mental illness in the community, there is also a need to acknowledge that they, too, require supports to ensure that their health and well-being are not compromised in providing care to their loved one(s).

根据 2017 年加拿大残疾调查,超过 200 万 15 岁或以上的加拿大人患有与精神健康相关的残疾。因此,在加拿大,尤其是在安大略省,心理健康服务的获取和提供已经转变为医疗服务提供者和个人客户的非正式照顾者之间的共同责任。遗憾的是,照护者的作用历来被低估和轻视,使得照护者几乎得不到任何支持来帮助他们管理和应对照护责任。本文报告了一项定性描述性研究的结果,该研究探讨了安大略省温莎-艾塞克斯郡(Windsor-Essex County)患有精神疾病的成年家庭成员的照料者的生活经历。21 名参与者自愿通过电话或在线 Microsoft Teams 接受了本研究的访谈。所有访谈都进行了录音和逐字记录。数据分析遵循 Braun 和 Clarke 的反思性主题分析框架。从 21 个访谈中确定了四个主题:1) 作为照顾者的个人影响;2) 与驾驭系统相关的压力;3) 照顾负担的复杂性;4) 照顾者作为系统故障的缓冲器。研究结果表明,护理是一项压力巨大的责任,如果没有足够的支持,护理者和接受护理者的福祉都会受到损害。因此,除了承认非正规护理者是社区中精神病患者护理工作的合作伙伴之外,还需要承认他们也需要支持,以确保他们在为其亲人提供护理的过程中健康和幸福不受损害。
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引用次数: 0
“The coaches always make the health decisions”: Conflict of interest as exploitation in power five college football "教练总是做出健康方面的决定":五强大学橄榄球队利用利益冲突
Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-02-14 DOI: 10.1016/j.ssmqr.2024.100405
Nathan Kalman-Lamb , Derek Silva

Much research exists on conflict of interest in high-performance sport in the global North. Yet, the research conducted particularly into US college football—a fairly unique social site of athletic labor given that the fact that enormous revenue is produced by professionalized work that is not compensated—is largely quantitative in nature. In this study, we conducted semi-structured qualitative interviews with twenty-five former power five football players Based on our conversations with former college football players in order to interrogate in a more granular way how and why conflict of interest undermines health and safety in the sport. We found that the well-being of college football players is consistently jeopardized because of the financial imperatives that shape the sport and compromise the care players receive from medical practitioners beholden to the team's ‘need’ to win at all costs. In addition to the inherent concerns this raises about the state of medicine in college athletics, we would also contend that the experiences of the players we spoke to offer a crucial intervention into the debate over ‘exploitation’ in college sport. While exploitation is generally understood in economic terms based on the question of how and to whom the value produced through the commodity spectacle of college sport is distributed, we contend that it should also be understood in terms of the attendant harms. The testimony in this article contributes to the literature on conflict of interest principally by providing some of the most rich and evocative available testimony about how and why conflict of interest occurs and what the implications are for the players whose care is compromised by it.

关于全球北方高水平体育运动中利益冲突的研究很多。然而,特别是对美国大学橄榄球的研究--由于职业化工作产生的巨额收入没有报酬,因此橄榄球劳动的社会场所相当独特--主要是定量研究。在本研究中,我们对 25 名前五大橄榄球队球员进行了半结构化定性访谈,在此基础上,我们与前大学橄榄球队球员进行了对话,以更细致的方式探讨利益冲突如何以及为何会破坏这项运动的健康与安全。我们发现,大学橄榄球运动员的健康状况一直受到经济因素的影响,而经济因素又决定了橄榄球运动的发展,并影响了球员从医疗从业者那里获得的医疗服务,而医疗从业者则受制于球队不惜一切代价取胜的 "需要"。除了这引起的对大学体育医学现状的担忧之外,我们还认为,与我们交谈过的球员的经历为有关大学体育中 "剥削 "的讨论提供了一个重要的切入点。虽然剥削一般是从经济角度来理解的,即通过大学体育的商品奇观所产生的价值如何分配以及分配给谁的问题,但我们认为,剥削也应从随之而来的伤害角度来理解。本文中的证词为利益冲突方面的文献做出了贡献,主要是提供了一些最丰富、最令人回味的证词,说明利益冲突是如何发生的、为什么会发生,以及对因利益冲突而受到损害的球员有什么影响。
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引用次数: 0
Continuing the conversation about strengths-based approaches and deficit discourses in Aboriginal and Torres Strait Islander nutrition research; response to Brimblecombe et al., 2023 在土著居民和托雷斯海峡岛民营养研究中继续进行关于基于优势的方法和赤字论述的对话;对 Brimblecombe 等人的回应,2023 年
Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-02-10 DOI: 10.1016/j.ssmqr.2024.100400
Robyn Delbridge , Tamara Mackean , Roland Wilson , John Coveney , Emma Chittleborough , Annabelle Wilson
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引用次数: 0
"It’s not at all the same as being in the same room, being in the same space": Older adult technology use and activity place modification during COVID-19 lockdown "这与在同一个房间、同一个空间里完全不同":COVID-19 封锁期间老年人的技术使用和活动场所调整
Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-02-10 DOI: 10.1016/j.ssmqr.2024.100401
Amber D. DeJohn , Michael J. Widener , Kathi Wilson , Alex Mihailidis

1 This study investigates how information and communication technology (ICT) facilitated older adults’ home modification to encompass pre-pandemic activities, as well as the health implications of this transition. Using a sample of 24 adults (65+) who lived in the Toronto area during the first summer of the pandemic (May 2020–August 2020), we conduct a qualitative thematic analysis of interviews about daily life, health, and ICT use. We employ difference of means and proportions tests using De Jong Gierveld 6-item loneliness scores to contextualize qualitative findings. We identified four qualitative themes encompassing a sense of loss of in-person socializing, ICT use to adapt routines and socializing to the home, and impacts on mental and physical health. Older adults adapted their homes into an activity place, although ICT was not key to this transition for everyone. Longing for third places suggests spatial agency is important for emotional well-being.

1 本研究调查了信息和通信技术(ICT)如何促进老年人的家庭改造,以涵盖大流行前的活动,以及这一转变对健康的影响。我们以大流行的第一个夏季(2020 年 5 月至 2020 年 8 月)居住在多伦多地区的 24 名成年人(65 岁以上)为样本,对有关日常生活、健康和信息与通信技术使用情况的访谈进行了定性主题分析。我们使用 De Jong Gierveld 6 项孤独感评分进行了均值差异和比例检验,从而将定性研究结果具体化。我们确定了四个定性主题,包括失去人际交往的感觉、使用信息和通信技术将日常活动和社交活动调整到家中,以及对身心健康的影响。老年人将自己的家改造成了一个活动场所,尽管信息和通信技术并不是每个人实现这一转变的关键。对 "第三空间 "的憧憬表明,空间机构对情感健康非常重要。
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引用次数: 0
Understanding risk evaluation practices in buying, cooking, and consuming pork in relation to Taenia solium taeniosis: A qualitative study in rural farming communities in Tanzania 了解在购买、烹饪和食用猪肉时与猪痢疾梭菌有关的风险评估做法:坦桑尼亚农村农业社区的定性研究
Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-02-10 DOI: 10.1016/j.ssmqr.2023.100385
Karen Schou Møller , Séverine Thys , Sarah Gabriël , Stig Milan Thamsborg
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引用次数: 0
Applying a behavioral science lens to maternity care in Liberia: How scarcity, salience, and structural factors impact likelihood of facility delivery 将行为科学视角应用于利比里亚的产妇护理:稀缺性、突出性和结构性因素如何影响设施分娩的可能性
Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-02-09 DOI: 10.1016/j.ssmqr.2024.100409
Sara V. Flanagan , Allison Schachter , Sophie T. Parwon , Mbalu W. Jusu , Thon Okanlawon , Jana Smith

Delivery in well-equipped facilities is important to prevent the major causes of maternal mortality. Social and structural barriers are well established across low-resource contexts; less understood is the interaction between the psychological dimensions of behavior and a pregnant woman's environment to either facilitate or hinder facility delivery. We conducted formative research applying the behavioral design approach to explore this context shaping decision-making and behavior of pregnant women, and others with influence, in Grand Cape Mount, Liberia. In-depth interviews (n = 58) were conducted in 2021 with pregnant and postpartum women, family members, facility-based providers, trained traditional midwives, community health assistants, and community leaders. Our findings highlight that while most women intend to deliver in a facility, poverty compounds difficulties at each step of the continuum of care, with the cumulative impact making facility-based delivery more difficult for lower-income, rural women to achieve. Delivering in a facility requires extensive planning and saving to overcome these difficulties and we present insights into the context contributing to a series of delays across the course of a woman's pregnancy – from initial care seeking through preparing and seeking care for childbirth, to arriving and receiving care at the facility. Our findings reveal the importance of delays earlier in pregnancy, as poor families have to weigh trade-offs of various aspects of planning and saving more carefully while also faced with chronic scarcity and competing demands for attention. Behavioral solutions that support women to make these difficult decisions and empower communities to address local challenges are still sorely needed.

在设备齐全的设施中分娩对于预防孕产妇死亡的主要原因非常重要。在资源匮乏的情况下,社会和结构性障碍已得到公认;但人们对行为的心理层面与孕妇所处环境之间的相互作用,从而促进或阻碍设施接生的了解则较少。我们在利比里亚大角山开展了一项形成性研究,运用行为设计方法来探索影响孕妇及其他有影响力的人的决策和行为的环境。2021 年,我们对孕妇和产后妇女、家庭成员、医疗机构提供者、训练有素的传统助产士、社区卫生助理和社区领袖进行了深入访谈(n = 58)。我们的调查结果表明,虽然大多数妇女都希望在医疗机构分娩,但贫困加剧了连续护理过程中每一步的困难,累积的影响使低收入农村妇女更难在医疗机构分娩。在医疗机构分娩需要大量的计划和储蓄来克服这些困难,我们将深入分析导致妇女在整个怀孕过程中出现一系列延误的原因--从最初寻求医疗服务,到准备和寻求分娩护理,再到到达医疗机构并接受护理。我们的研究结果揭示了在怀孕早期出现延误的重要性,因为贫困家庭不得不在计划和储蓄的各个方面更仔细地权衡利弊,同时还要面对长期的资源匮乏和相互竞争的关注需求。目前仍亟需行为解决方案来支持妇女做出这些艰难的决定,并增强社区应对当地挑战的能力。
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引用次数: 0
Voices of experience: Lay perspectives on severe maternal morbidity in Appalachia 经验的声音:阿巴拉契亚地区严重孕产妇发病率的非专业观点
Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-02-09 DOI: 10.1016/j.ssmqr.2024.100410
Anna Hansen , Cassidy Carter , Nancy Schoenberg , Carrie Oser
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引用次数: 0
Exploring the social determinants of health from the perspectives of people with spinal cord injuries: A disability studies approach 从脊髓损伤者的角度探索健康的社会决定因素:残疾研究方法
Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-02-08 DOI: 10.1016/j.ssmqr.2024.100408
Alfiya Battalova , Sheemouna Gurung , Hailey-Thomas Ford , Gurkaran Singh , W. Ben Mortenson , Habib Chaudhury

The social determinants of health is an internationally recognized approach to analyzing the impact of non-medical factors on individual health. However, disability is mostly associated with inherent vulnerability without recognition of the social factors. The goal of this qualitative study is to examine the lived experiences of persons living with spinal cord injury (SCI) in coping and managing their health and functioning and to explore an interaction between their embodied experiences and structural issues that contribute to health and wellbeing of people with spinal cord injuries. A thematic analysis of 30 semi-structured interviews generated three themes that highlighted the tensions between the materiality of disability and the barriers associated with stigma, between the self-management strategies and the healthcare access, and finally between access to the formal supports and the invisible costs of living with a spinal cord injury. The findings emphasize the need to re-evaluate public health approaches, recognize the linkages between inequalities linked to disability, and incorporate an embodiment lens from a disability justice perspective.

健康的社会决定因素是国际公认的分析非医疗因素对个人健康影响的方法。然而,残疾大多与固有的脆弱性相关联,而没有认识到社会因素。本定性研究的目的是考察脊髓损伤(SCI)患者在应对和管理其健康和功能方面的生活经验,并探讨他们的体现性经验与结构性问题之间的相互作用,这些问题有助于脊髓损伤患者的健康和福祉。对 30 个半结构式访谈进行的主题分析产生了三个主题,突出了残疾的物质性和与耻辱相关的障碍之间的紧张关系,自我管理策略和医疗保健之间的紧张关系,以及获得正式支持和脊髓损伤患者生活的隐形成本之间的紧张关系。研究结果强调,有必要重新评估公共卫生方法,认识到与残疾有关的不平等之间的联系,并从残疾公正的角度纳入体现视角。
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引用次数: 0
Cultivating psychological well-being amongst older gay men: A qualitative exploration 培养老年男同性恋者的心理健康:定性探索
Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-02-08 DOI: 10.1016/j.ssmqr.2024.100403
Anthony Theodore Amato , Tessa Wonsiak , Ingrid Handlovsky , Olivier Ferlatte , Hannah Kia , John L. Oliffe
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引用次数: 0
Housing and health: A multidimensional, qualitative analysis of the experiences of asylum seekers and refugees living in German reception centres 住房与健康:对居住在德国收容中心的寻求庇护者和难民的经历进行多维定性分析
Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-02-08 DOI: 10.1016/j.ssmqr.2024.100407
Eilin Rast , Maren Hintermeier , Kayvan Bozorgmehr , Louise Biddle

Objectives

Housing is an important social determinant of health, but the perspectives of asylum seekers and refugees (ASR) in large, centralised reception centres remain under-researched. We therefore sought to examine which housing aspects in reception centres are deemed relevant for health by ASR in Germany.

Methods

Based on 47 interviews with 42 ASR in Germany originating from three different studies, we conducted a secondary qualitative analysis. We mapped interview transcripts onto existing housing frameworks and generated four central themes regarding the relationship between housing and health in reception centres.

Results

Housing affected ASR health in four key ways: 1) Material conditions, including crowding, hygiene conditions and inability to secure doors, created and exacerbated physical and mental health issues, 2) the unpredictability and instability of housing impeded integration and disrupted social and professional support networks, 3) through forced residential assignment and limited autonomy, "homemaking" is severely constrained, leading to worsened mental health, and 4) reception centres do not make sufficient accommodations for individuals with specific medical needs.

Conclusion

This study offers a broad perspective on the relationship between ASR reception centres and health. It is evident that this housing context is not conducive to health. Instead, centralised accommodation facilities exacerbate existing health conditions through excessive overcrowding, insufficient infrastructure and the inability to meet health-related needs. Stressful living environments and frequent transfers further burden psychosocial health by impeding a sense of belonging and comfort and by disrupting social and care networks. Current accommodation policy and practice need to be reconsidered to safeguard the health of ASR.

目标住房是影响健康的一个重要社会决定因素,但对大型集中接待中心的寻求庇护者和难民(ASR)的观点研究仍然不足。因此,我们试图研究德国的寻求庇护者和难民认为收容中心的哪些住房方面与健康有关。方法基于三项不同研究对德国 42 名寻求庇护者和难民进行的 47 次访谈,我们进行了二次定性分析。我们将访谈记录映射到现有的住房框架中,并就接待中心的住房与健康之间的关系提出了四个中心主题。结果住房在四个主要方面影响了 ASR 的健康:1)物质条件,包括拥挤、卫生条件和无法确保门的安全,造成并加剧了身体和精神健康问题;2)住房的不可预测性和不稳定性阻碍了融合,破坏了社会和职业支持网络;3)通过强制分配居住地和有限的自主权,"家务劳动 "受到严重限制,导致精神健康状况恶化;4)接待中心没有为有特殊医疗需求的个人提供足够的便利。很明显,这种住房环境不利于健康。相反,由于过度拥挤、基础设施不足以及无法满足与健康有关的需求,集中住宿设施加剧了现有的健康状况。紧张的居住环境和频繁的搬迁阻碍了归属感和舒适感,扰乱了社会和护理网络,从而进一步加重了社会心理健康的负担。需要重新考虑当前的住宿政策和做法,以保障 ASR 的健康。
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引用次数: 0
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SSM. Qualitative research in health
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