Pub Date : 2024-04-16DOI: 10.1016/j.ssmqr.2024.100430
Rigel Paciente , Helen Morgan , Angus Cook , Yael Perry , Ashleigh Lin , Penelope Strauss
LGBTQA + people are less likely to access mental health care despite an increased risk of adverse mental health outcomes including suicidal thoughts and behaviours. The present study aimed to explore Australian LGBTQA + young people's perceptions of key factors associated with access to suicide prevention services. A qualitative design, utilising inductive thematic analysis, was employed to explore participants' experiences within different service settings. Twenty-seven LGBTQA + young people who had experienced suicidal thoughts and/or behaviours took part in this study. LGBTQA+ and general service accessibility concerns were reported by participants. Themes pertaining to LGBTQA + -inclusive practices were more commonly reported to be a barrier. Whereas visibility of LGBTQA + -inclusive practice was reported to be a key facilitator for service access. These findings indicate that existing concerns of LGBTQA + competency among clinicians more broadly are echoed within mental health and suicide prevention services. Further education for mental health clinicians on the determinants of poor mental health in LGBTQA + young people may improve barriers to access in this population. Specific recommendations are provided to address issues in clinical practice and improve care of LGBTQA + young people.
{"title":"Perspectives of LGBTQA+ young people on suicide prevention services in Australia","authors":"Rigel Paciente , Helen Morgan , Angus Cook , Yael Perry , Ashleigh Lin , Penelope Strauss","doi":"10.1016/j.ssmqr.2024.100430","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100430","url":null,"abstract":"<div><p>LGBTQA + people are less likely to access mental health care despite an increased risk of adverse mental health outcomes including suicidal thoughts and behaviours. The present study aimed to explore Australian LGBTQA + young people's perceptions of key factors associated with access to suicide prevention services. A qualitative design, utilising inductive thematic analysis, was employed to explore participants' experiences within different service settings. Twenty-seven LGBTQA + young people who had experienced suicidal thoughts and/or behaviours took part in this study. LGBTQA+ and general service accessibility concerns were reported by participants. Themes pertaining to LGBTQA + -inclusive practices were more commonly reported to be a barrier. Whereas visibility of LGBTQA + -inclusive practice was reported to be a key facilitator for service access. These findings indicate that existing concerns of LGBTQA + competency among clinicians more broadly are echoed within mental health and suicide prevention services. Further education for mental health clinicians on the determinants of poor mental health in LGBTQA + young people may improve barriers to access in this population. Specific recommendations are provided to address issues in clinical practice and improve care of LGBTQA + young people.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"5 ","pages":"Article 100430"},"PeriodicalIF":0.0,"publicationDate":"2024-04-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000398/pdfft?md5=8f09e7cba68e68f681137310b775b774&pid=1-s2.0-S2667321524000398-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140639360","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-09DOI: 10.1016/j.ssmqr.2024.100429
Mari R. Tarantino , Regina L. Tham , Meg R. Quint , Jessica Kremen , Kaiden Kane , Mauricio Rangel-Gomez , Elizabeth Boskey , Rena Xu , Sari L. Reisner
Transgender and gender diverse youth and young adults (TGDY) experience higher mental health morbidity, including self-harm, suicide ideation, and suicide attempts, as compared to cisgender peers. Support from family members is associated with improved mental health outcomes for TGDY. However, little is known about the process that caregivers who consider themselves supportive undergo and how caregiver-youth relationships evolve through a TGDY's gender journey. Through a reflexive thematic analysis of 14 interviews conducted with caregivers of TGDY from April–July 2022, we sought to understand how caregivers who considered themselves supportive of TGDY navigated shifting relationships with themselves, their children, and their communities. Applying theories of Ambiguous Loss and Thriving Through Relationships, findings coalesced around several themes including reflecting on change, re-negotiating interpersonal relationships, and educating through relationships. The gender journeys of TGDY required caregivers to navigate relationships with self (feeling loss and wrestling with worry for their child), negotiate relationships with others (disclosing to extended family and social networks), and educate themselves and others through relationships (connecting through personal narratives from other families, parents supporting parents, learning to advocate for their child). The process of caregivers learning to support their children was facilitated through profound intrapersonal and interpersonal reflection, connection, and community. Understanding this process is important to inform educational interventions and programs that help caregivers learn to support and advocate effectively for TGDY.
{"title":"“We followed their lead”: Exploring relational change and support among caregivers of transgender and gender diverse youth","authors":"Mari R. Tarantino , Regina L. Tham , Meg R. Quint , Jessica Kremen , Kaiden Kane , Mauricio Rangel-Gomez , Elizabeth Boskey , Rena Xu , Sari L. Reisner","doi":"10.1016/j.ssmqr.2024.100429","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100429","url":null,"abstract":"<div><p>Transgender and gender diverse youth and young adults (TGDY) experience higher mental health morbidity, including self-harm, suicide ideation, and suicide attempts, as compared to cisgender peers. Support from family members is associated with improved mental health outcomes for TGDY. However, little is known about the process that caregivers who consider themselves supportive undergo and how caregiver-youth relationships evolve through a TGDY's gender journey. Through a reflexive thematic analysis of 14 interviews conducted with caregivers of TGDY from April–July 2022, we sought to understand how caregivers who considered themselves supportive of TGDY navigated shifting relationships with themselves, their children, and their communities. Applying theories of Ambiguous Loss and Thriving Through Relationships, findings coalesced around several themes including reflecting on change, re-negotiating interpersonal relationships, and educating through relationships. The gender journeys of TGDY required caregivers to navigate relationships with self (feeling loss and wrestling with worry for their child), negotiate relationships with others (disclosing to extended family and social networks), and educate themselves and others through relationships (connecting through personal narratives from other families, parents supporting parents, learning to advocate for their child). The process of caregivers learning to support their children was facilitated through profound intrapersonal and interpersonal reflection, connection, and community. Understanding this process is important to inform educational interventions and programs that help caregivers learn to support and advocate effectively for TGDY.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"5 ","pages":"Article 100429"},"PeriodicalIF":0.0,"publicationDate":"2024-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000386/pdfft?md5=548961ea7342a2566a16324e13918a17&pid=1-s2.0-S2667321524000386-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140549856","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This study explored African migrant women's clay ingestion experiences during pregnancy against a backdrop of health risks warnings in order, to inform public health interventions by the UK Food Standards Agency and Public Health England, now known as the UK Health Security Agency. An interpretative phenomenological approach (IPA) was utilized, and data were collected with a total of 30 participants through individual in-depth interviews and one focus group discussion. Findings showed clay ingestion is a fluid and widely accepted cultural practice among African communities with most participants having been socialized into ingestion during childhood, through family influences and current social networks in their adulthood. Vomiting, nausea, spitting, appetite challenges, and cravings were cited as the main reasons for clay ingestion during pregnancy. With strong claims regarding its effectiveness, clay was ingested every day by most participants, and at times in large quantities despite the potential health risks. This calls for innovative and culturally sensitive public health interventions starting with the inclusion of clay ingestion health risk messages in maternal health nutrition information within antenatal settings. This can be done as part of multilevel interventions informed by life course approaches, which also consider community health messages and an enabling regulatory policy framework focusing on clay sold for human ingestion.
{"title":"Experiences of geophagy during pregnancy among African migrant women in London: Implications for public health interventions","authors":"Cathrine Madziva , Martha Judith Chinouya , Kezia Njoroge","doi":"10.1016/j.ssmqr.2024.100431","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100431","url":null,"abstract":"<div><p>This study explored African migrant women's clay ingestion experiences during pregnancy against a backdrop of health risks warnings in order, to inform public health interventions by the UK Food Standards Agency and Public Health England, now known as the UK Health Security Agency. An interpretative phenomenological approach (IPA) was utilized, and data were collected with a total of 30 participants through individual in-depth interviews and one focus group discussion. Findings showed clay ingestion is a fluid and widely accepted cultural practice among African communities with most participants having been socialized into ingestion during childhood, through family influences and current social networks in their adulthood. Vomiting, nausea, spitting, appetite challenges, and cravings were cited as the main reasons for clay ingestion during pregnancy. With strong claims regarding its effectiveness, clay was ingested every day by most participants, and at times in large quantities despite the potential health risks. This calls for innovative and culturally sensitive public health interventions starting with the inclusion of clay ingestion health risk messages in maternal health nutrition information within antenatal settings. This can be done as part of multilevel interventions informed by life course approaches, which also consider community health messages and an enabling regulatory policy framework focusing on clay sold for human ingestion.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"5 ","pages":"Article 100431"},"PeriodicalIF":0.0,"publicationDate":"2024-04-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000404/pdfft?md5=5cb4173ad93fbeecaf863545b4c1dfad&pid=1-s2.0-S2667321524000404-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140540748","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-06DOI: 10.1016/j.ssmqr.2024.100423
Julie Brimblecombe , Megan Ferguson , Sarah Connally , Emma McMahon , Eddie Miles , Emma Tonkin
{"title":"Inquiry into CHITTLEBOROUGH et al 2023 article","authors":"Julie Brimblecombe , Megan Ferguson , Sarah Connally , Emma McMahon , Eddie Miles , Emma Tonkin","doi":"10.1016/j.ssmqr.2024.100423","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100423","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"5 ","pages":"Article 100423"},"PeriodicalIF":0.0,"publicationDate":"2024-04-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000325/pdfft?md5=b9f4b3473793cf873d2733a4ef4b7467&pid=1-s2.0-S2667321524000325-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140551528","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-01DOI: 10.1016/j.ssmqr.2024.100427
Danielle Klassen , Genevieve Montemurro , Jenn Flynn , Kim Raine , Kate Storey
The school is an ideal setting to promote children's health and is an equitable way to reach children in early developmental years. Healthy children are stronger learners and wholistic health approaches taken in schools can help children thrive. Interventions in the school are strengthened when school, home, and community work together, yet many interventions have not reported the school and community connection and influence. The purpose of this study was to determine if and how the intervention, APPLE Schools, has impacted the community environment. One community in Alberta, Canada was chosen as a case study. An instrumental case study approach was taken, and data generation was guided by focused ethnography. Data were generated through community partner interviews (n = 17) and document analysis. Reflexive thematic analysis was used to analyze data. Results were represented by three main themes and demonstrated APPLE Schools created impact beyond the school setting through a stepped approach: 1) Foundation: establishes a healthy school culture; 2) Action: tying the work of schools and communities together; and 3) Impact: changes in school practices ripple out to promote health in the community. This research provides compelling evidence that comprehensive school health approaches can impact community environments outside the school and result in stronger health promoting practices both within and outside the school.
学校是促进儿童健康的理想场所,也是帮助早期发育阶段儿童的公平途径。健康的儿童学习能力更强,学校采取的全面健康方法有助于儿童茁壮成长。当学校、家庭和社区共同努力时,学校的干预措施就会得到加强,但许多干预措施并没有报告学校和社区之间的联系和影响。本研究的目的是确定 "APPLE 学校 "这一干预措施是否以及如何影响社区环境。我们选择了加拿大艾伯塔省的一个社区作为案例研究对象。研究采用了工具性案例研究方法,并以重点人种学为指导进行数据生成。数据通过社区合作伙伴访谈(n = 17)和文件分析产生。数据分析采用了反思性主题分析法。研究结果由三大主题组成,并表明 APPLE 学校通过阶梯式方法在学校环境之外产生了影响:1)基础:建立健康的学校文化;2)行动:将学校和社区的工作联系在一起;3)影响:学校实践的变化波及到社区,促进社区健康。这项研究提供了令人信服的证据,证明全面的学校健康方法可以影响校外的社区环境,并在校内外产生更有力的促进健康的做法。
{"title":"“It trickles into the community”: A case study of the transfer of health promoting practices from school to community in Canada","authors":"Danielle Klassen , Genevieve Montemurro , Jenn Flynn , Kim Raine , Kate Storey","doi":"10.1016/j.ssmqr.2024.100427","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100427","url":null,"abstract":"<div><p>The school is an ideal setting to promote children's health and is an equitable way to reach children in early developmental years. Healthy children are stronger learners and wholistic health approaches taken in schools can help children thrive. Interventions in the school are strengthened when school, home, and community work together, yet many interventions have not reported the school and community connection and influence. The purpose of this study was to determine if and how the intervention, APPLE Schools, has impacted the community environment. One community in Alberta, Canada was chosen as a case study. An instrumental case study approach was taken, and data generation was guided by focused ethnography. Data were generated through community partner interviews (n = 17) and document analysis. Reflexive thematic analysis was used to analyze data. Results were represented by three main themes and demonstrated APPLE Schools created impact beyond the school setting through a stepped approach: 1) Foundation: establishes a healthy school culture; 2) Action: tying the work of schools and communities together; and 3) Impact: changes in school practices ripple out to promote health in the community. This research provides compelling evidence that comprehensive school health approaches can impact community environments outside the school and result in stronger health promoting practices both within and outside the school.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"5 ","pages":"Article 100427"},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000362/pdfft?md5=8183129b1208273228bdd43b91e7c13d&pid=1-s2.0-S2667321524000362-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140555646","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-03-30DOI: 10.1016/j.ssmqr.2024.100428
Marewa Glover, Emma Hurrell
Tobacco smoking is a leading cause of early death. In 2022, New Zealand legislated to introduce three previously untried tobacco ‘endgame’ policies aimed at reducing demand for cigarettes and restricting supply. This study aimed to determine how a key stakeholder group, NZ adults with no intent or low belief that they could stop smoking by 2025, understood proposals to restrict nicotine in combustible tobacco and the number of tobacco retailers to a very low level, annually raise the age of purchase, set minimum prices, and ban filters.
The Affective Propositional Evaluation model was used to analyze participants' comprehension of the policies. That model and discourse analysis worked well for distinguishing which policies were familiar to participants and for determining participants' understanding. Responses and discourse on the novel policies (denicotinization, sinking lid on age of purchase, filter ban), the semi-familiar policy (reducing the number of retailers), and most familiar minimum pricing policy differed qualitatively. Compared to familiar policies evaluative judgements of the novel policies were often inconclusive. If approval of a novel policy was expressed, propositional evaluations suggested that approval was for the intent (to prevent young people from smoking) rather than the means to achieve it. The results complement the ‘endgame’ policy literature, adding the strength of feelings towards, and nuances of doubt about, the potential effects and unintended consequences and provides useful information for formulating metrics for future evaluation of ‘endgame’ policies.
{"title":"How New Zealand adults who smoked understand novel tobacco ‘endgame’ policies. Qualitative analysis using the associative propositional evaluation model to determine comprehension.","authors":"Marewa Glover, Emma Hurrell","doi":"10.1016/j.ssmqr.2024.100428","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100428","url":null,"abstract":"<div><p>Tobacco smoking is a leading cause of early death. In 2022, New Zealand legislated to introduce three previously untried tobacco ‘endgame’ policies aimed at reducing demand for cigarettes and restricting supply. This study aimed to determine how a key stakeholder group, NZ adults with no intent or low belief that they could stop smoking by 2025, understood proposals to restrict nicotine in combustible tobacco and the number of tobacco retailers to a very low level, annually raise the age of purchase, set minimum prices, and ban filters.</p><p>The Affective Propositional Evaluation model was used to analyze participants' comprehension of the policies. That model and discourse analysis worked well for distinguishing which policies were familiar to participants and for determining participants' understanding. Responses and discourse on the novel policies (denicotinization, sinking lid on age of purchase, filter ban), the semi-familiar policy (reducing the number of retailers), and most familiar minimum pricing policy differed qualitatively. Compared to familiar policies evaluative judgements of the novel policies were often inconclusive. If approval of a novel policy was expressed, propositional evaluations suggested that approval was for the intent (to prevent young people from smoking) rather than the means to achieve it. The results complement the ‘endgame’ policy literature, adding the strength of feelings towards, and nuances of doubt about, the potential effects and unintended consequences and provides useful information for formulating metrics for future evaluation of ‘endgame’ policies.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"5 ","pages":"Article 100428"},"PeriodicalIF":0.0,"publicationDate":"2024-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000374/pdfft?md5=4be34143f4c2e11c4352789fc9c65314&pid=1-s2.0-S2667321524000374-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140351821","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-03-30DOI: 10.1016/j.ssmqr.2024.100417
Felipe Szabzon , Lenora Bruhn , Cristobal Abarca Brown , Daniela Ravelli Cabrini , Elisangela Miranda , Geilson Lima Santana , Laura Helena Andrade
{"title":"Reframing the method: Report on the adaptation of an ethnographic study to virtual collaborative research on mental health in a low-income neighbourhood during the COVID-19 pandemic in Sao Paulo, Brazil","authors":"Felipe Szabzon , Lenora Bruhn , Cristobal Abarca Brown , Daniela Ravelli Cabrini , Elisangela Miranda , Geilson Lima Santana , Laura Helena Andrade","doi":"10.1016/j.ssmqr.2024.100417","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100417","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"5 ","pages":"Article 100417"},"PeriodicalIF":0.0,"publicationDate":"2024-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S266732152400026X/pdfft?md5=cff60d30a220da19d925a72a553d842c&pid=1-s2.0-S266732152400026X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140347233","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-03-30DOI: 10.1016/j.ssmqr.2024.100425
Alberto Ardissone
This paper presents the findings of a qualitative study conducted in Italy about a peculiar online health community named #TERAPIADOMICILIARECOVID19 (#TDC19), which, since April 2020, has assisted people with COVID-19 with early-at-home therapy delivered by volunteer doctors, free of charge for patients. The aim of the paper was to analyse patients' motivations and strategies when negotiating risk in the context of this choice. Findings showed that patients' choices were the outcome of a process that forms an entangled ecology of care involving several dimensions, crossing micro, meso and macro levels: a) the process of knowledge-building by assessing mass-media, ascertaining the best protocol and recalling previous experiences with similar diseases; b) the experience of feeling abandoned by general practitioners (GPs) and healthcare institutions; c) the positive encounter with #TDC19's posts of gratitude written by people who were cured by #TDC19 doctors. In the end, patients' choice was not a leap of faith; they negotiated and balanced out the perceived risks associated with COVID-19 and with the possible available choices (GPs, do-it-yourself, #TDC19-doctors) based on a strategy that chiefly encompassed a blend of rational and in-between logics.
{"title":"“In such a dark period, the only light”: Patients’ motivations and strategies to seek care from an online health community during the COVID-19 pandemic","authors":"Alberto Ardissone","doi":"10.1016/j.ssmqr.2024.100425","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100425","url":null,"abstract":"<div><p>This paper presents the findings of a qualitative study conducted in Italy about a peculiar online health community named #TERAPIADOMICILIARECOVID19 (#TDC19), which, since April 2020, has assisted people with COVID-19 with early-at-home therapy delivered by volunteer doctors, free of charge for patients. The aim of the paper was to analyse patients' motivations and strategies when negotiating risk in the context of this choice. Findings showed that patients' choices were the outcome of a process that forms an entangled ecology of care involving several dimensions, crossing micro, meso and macro levels: a) the process of knowledge-building by assessing mass-media, ascertaining the best protocol and recalling previous experiences with similar diseases; b) the experience of feeling abandoned by general practitioners (GPs) and healthcare institutions; c) the positive encounter with #TDC19's posts of gratitude written by people who were cured by #TDC19 doctors. In the end, patients' choice was not a leap of faith; they negotiated and balanced out the perceived risks associated with COVID-19 and with the possible available choices (GPs, do-it-yourself, #TDC19-doctors) based on a strategy that chiefly encompassed a blend of rational and in-between logics.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"5 ","pages":"Article 100425"},"PeriodicalIF":0.0,"publicationDate":"2024-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000349/pdfft?md5=f92e60008f739be780536d56114bc7b4&pid=1-s2.0-S2667321524000349-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140347234","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-03-30DOI: 10.1016/j.ssmqr.2024.100426
Janet E. Childerhose , Brent Emerson , Andrew Schamess , Jacqueline Caputo , Marcus Williams , Maryanna D. Klatt
Persons with sickle cell disease exhibit high levels of distress, which has been documented with validated measures. However, there has been little qualitative investigation of the sources of distress in the lives of persons with sickle cell or the strategies they use to manage different sources of distress. Our study sought to: (1) identify sources of distress for persons with sickle cell, (2) explore management strategies for different sources of distress, (3) inform content development of the future mobile phone application, and (4) incorporate patient voices in the design and development phases of the future mobile phone application. In this manuscript, we present findings for the first objective. Using convenience sampling, we recruited participants with sickle cell (n = 11) from a home visit program at The Ohio State University Wexner Medical Center between February and July 2021. One team member conducted one-on-one semi-structured interviews with participants. We coded and analyzed all transcripts. Participants identified clinical encounters in the emergency department and intermediate care center to manage acute pain flares as the most profound source of distress. Our analysis identified four themes: (1) Pain has performative features, (2) Stigma and racism surround care, (3) Sickle cell is a neglected disease, and (4) Participants lack control over their pain management plan. Researchers may wish to consider how these settings can foster distress, and providers may wish to adopt participant recommendations to reduce distress associated with seeking pain treatment in acute care settings.
{"title":"“I can't cry on cue”: Exploring distress experiences of persons with sickle cell","authors":"Janet E. Childerhose , Brent Emerson , Andrew Schamess , Jacqueline Caputo , Marcus Williams , Maryanna D. Klatt","doi":"10.1016/j.ssmqr.2024.100426","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100426","url":null,"abstract":"<div><p>Persons with sickle cell disease exhibit high levels of distress, which has been documented with validated measures. However, there has been little qualitative investigation of the sources of distress in the lives of persons with sickle cell or the strategies they use to manage different sources of distress. Our study sought to: (1) identify sources of distress for persons with sickle cell, (2) explore management strategies for different sources of distress, (3) inform content development of the future mobile phone application, and (4) incorporate patient voices in the design and development phases of the future mobile phone application. In this manuscript, we present findings for the first objective. Using convenience sampling, we recruited participants with sickle cell (n = 11) from a home visit program at The Ohio State University Wexner Medical Center between February and July 2021. One team member conducted one-on-one semi-structured interviews with participants. We coded and analyzed all transcripts. Participants identified clinical encounters in the emergency department and intermediate care center to manage acute pain flares as the most profound source of distress. Our analysis identified four themes: (1) Pain has performative features, (2) Stigma and racism surround care, (3) Sickle cell is a neglected disease, and (4) Participants lack control over their pain management plan. Researchers may wish to consider how these settings can foster distress, and providers may wish to adopt participant recommendations to reduce distress associated with seeking pain treatment in acute care settings.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"5 ","pages":"Article 100426"},"PeriodicalIF":0.0,"publicationDate":"2024-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000350/pdfft?md5=1b649e4c9c015fdd5b23b26af691331b&pid=1-s2.0-S2667321524000350-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140343806","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-03-30DOI: 10.1016/j.ssmqr.2024.100424
Annabel Levesque PhD , Mitch Verde PhD , Han Z. Li PhD , Bin Yu PhD, MD , Xinguang Chen PhD, MD
Nonadherence to physicians’ recommendations can have a detrimental impact on patient health, to say nothing of the financial cost to the already unsustainable Canadian healthcare system. This comparative study aimed at gaining a deeper understanding of the factors influencing adherence to prescribed medications and lifestyle change recommendations among First Nations patients and patients of European ancestry. In-depth, face-to-face interviews were conducted with 40 participants in Northern British Columbia, Canada. Interviews were transcribed and qualitatively analyzed. Results show that medical adherence derives from an interaction between personal factors and situational or external factors. A comparative analysis revealed that a disproportionate number of First Nations patients faced situational barriers that impeded with medical adherence. These factors include geographical isolation, lack of access to a regular doctor, negative healthcare experiences, and financial constraints. Analyzed through a postcolonial interpretive lens, the research findings highlight the need to reduce systemic barriers within the healthcare system and the wider social context, especially among First Nations patients living in remote communities.
{"title":"Factors influencing medical adherence among First Nations patients and patients of European ancestry: Data from Canada","authors":"Annabel Levesque PhD , Mitch Verde PhD , Han Z. Li PhD , Bin Yu PhD, MD , Xinguang Chen PhD, MD","doi":"10.1016/j.ssmqr.2024.100424","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100424","url":null,"abstract":"<div><p>Nonadherence to physicians’ recommendations can have a detrimental impact on patient health, to say nothing of the financial cost to the already unsustainable Canadian healthcare system. This comparative study aimed at gaining a deeper understanding of the factors influencing adherence to prescribed medications and lifestyle change recommendations among First Nations patients and patients of European ancestry. In-depth, face-to-face interviews were conducted with 40 participants in Northern British Columbia, Canada. Interviews were transcribed and qualitatively analyzed. Results show that medical adherence derives from an interaction between personal factors and situational or external factors. A comparative analysis revealed that a disproportionate number of First Nations patients faced situational barriers that impeded with medical adherence. These factors include geographical isolation, lack of access to a regular doctor, negative healthcare experiences, and financial constraints. Analyzed through a postcolonial interpretive lens, the research findings highlight the need to reduce systemic barriers within the healthcare system and the wider social context, especially among First Nations patients living in remote communities.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"5 ","pages":"Article 100424"},"PeriodicalIF":0.0,"publicationDate":"2024-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000337/pdfft?md5=8d8bed0f8becf33a07b1b3b8f8de6e30&pid=1-s2.0-S2667321524000337-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140345301","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}