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'Does that mean you will be violent?': A qualitative exploration into Autistic women's experiences of relationships with lecturers at university. 这是否意味着你会有暴力倾向?自闭症女性与大学讲师关系的定性探索。
IF 5.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-07-26 DOI: 10.1177/13623613241264887
Sophie Phillips

Lay abstract: It is documented that more Autistic woman are becoming university students, but their experiences are not often explored. Eleven Autistic women students made artefacts (such as writing, paintings or poems) and took part in interviews to share their experiences at university. Five participants were undergraduate students and six participants were postgraduate students. The artefacts and words participants shared were looked at closely and some common themes were decided. How lecturers talk to Autistic women students was looked at. Participants said they were lucky if they met helpful lecturers. Also, autism acceptance was explored. Overall, how lecturers treat Autistic women at university is very important. Also, Autistic women students' opinions about making university a more welcoming place need to be listened to.

内容提要:有资料显示,越来越多的自闭症女性成为大学生,但她们的经历却不常被探究。11 名自闭症女大学生制作了手工艺品(如写作、绘画或诗歌),并参加了访谈,分享她们在大学的经历。其中五人是本科生,六人是研究生。我们仔细研究了参与者分享的作品和文字,并确定了一些共同的主题。我们研究了讲师如何与自闭症女学生交谈。参与者表示,如果她们遇到了乐于助人的讲师,那是她们的幸运。此外,还探讨了对自闭症的接受程度。总体而言,大学讲师如何对待自闭症女学生非常重要。此外,还需要听取自闭症女学生的意见,使大学成为一个更受欢迎的地方。
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引用次数: 0
The long-lasting benefits of pre-kindergarten education on autistic children's working memory development. 学前教育对自闭症儿童工作记忆发展的长期益处。
IF 5.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-07-26 DOI: 10.1177/13623613241265996
Sohyun An Kim

Lay abstract: Working memory is an important skill for school success, and it involves holding information in our memory while using it to solve complex problems. However, autistic children often have difficulties with working memory tasks. Also, kindergarteners on the autism spectrum tend to be less school-ready compared with their peers. In addition, children from disadvantaged backgrounds tend to struggle more with working memory and school readiness skills. All preschool-age children on the autism spectrum in the United States are entitled to pre-kindergarten (pre-K) education. However, it is unclear whether attending pre-K helps with children's working memory development in the long run. This study tested whether attending pre-K benefits children's working memory development in the long run. It also tested whether pre-K is especially helpful for autistic children's working memory development. It was found that children who attended pre-K outperformed their peers who did not attend pre-K during the first 2 years of elementary school. However, after first grade, such benefits diminished. Importantly, autistic children who attended pre-K did not demonstrate advanced working memory immediately in kindergarten, but they started to outperform their autistic peers who did not attend pre-K during first grade to third grade. This finding highlights the importance of pre-K education for autistic children in particular. It is also important for educators and parents to understand autistic children's unique learning paths that may be different from non-autistic children. This article discusses specific ways for educators to take full advantage of the long-lasting benefits of pre-K education in autistic children's working memory development.

内容摘要:工作记忆是学业成功的一项重要技能,它包括将信息保存在我们的记忆中,同时利用它来解决复杂的问题。然而,自闭症儿童在完成工作记忆任务时往往会遇到困难。同时,与同龄人相比,自闭症谱系中的幼儿园儿童在入学准备方面往往较差。此外,来自贫困家庭的儿童在工作记忆和入学准备技能方面往往更加吃力。在美国,所有学龄前自闭症儿童都有权接受学前教育。然而,从长远来看,学前教育是否有助于儿童工作记忆的发展尚不清楚。本研究测试了就读学前班是否有助于儿童工作记忆的长期发展。研究还测试了学前班是否特别有助于自闭症儿童工作记忆的发展。研究发现,参加学前班的儿童在小学前两年的表现优于未参加学前班的同龄儿童。然而,一年级之后,这种优势就会减弱。重要的是,上过学前班的自闭症儿童并没有在幼儿园立即表现出高级工作记忆,但他们在一年级到三年级期间的表现开始优于没有上过学前班的自闭症儿童。这一发现凸显了学前教育对自闭症儿童的重要性。对于教育工作者和家长来说,了解自闭症儿童可能不同于非自闭症儿童的独特学习路径也很重要。本文讨论了教育工作者充分利用学前教育对自闭症儿童工作记忆发展的长期益处的具体方法。
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引用次数: 0
Oral care interventions for autistic individuals: A systematic review. 针对自闭症患者的口腔护理干预措施:系统综述。
IF 5.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-07-26 DOI: 10.1177/13623613241260171
Lucía I Floríndez, Dominique H Como, Evelyn Law, Christine F Tran, Robert Johnson, José C Polido, Sharon A Cermak, Leah I Stein Duker

Lay abstract: Oral care-related challenges are well documented in the autistic community; dental care remains one of the most prevalent unmet health needs among autistic individuals. This review examined interventions designed to improve oral health in autistic individuals from children and adult populations. Through a systematic process, 36 studies were identified. These studies focused on improving home-based oral care skills and routines and reducing fear, anxiety, and/or negative behaviors in the dental clinic. Studies incorporated different types of techniques for facilitating oral care practice, including preparatory interventions to support home-based hygiene activities or improve an approaching dental encounter (n = 29), most often using visual aids, and/or strategies to manage behavioral difficulties exhibited in the dental office (n = 17). Some studies used both approaches (n = 10), combining visual aids prior to a visit with behavior management. Using an evidence-based rubric, we reviewed the methodological quality of the studies and found that most were only "adequate" (n = 8) or "weak" (n = 23) in reporting their evidence. This review has two key findings: (1) there is support for preparatory home-based visual interventions to improve toothbrushing and/or ready patients for dental visits; and (2) distraction or sensory-reducing interventions may also improve experiences in the dental clinic. Only one study purposefully recruited autistic adults, and no studies included intervention elements tailored to race/ethnicity, culture, and/or socioeconomic status. This review highlights the need for more studies investigating the impact of oral care-related interventions for autistic individuals of all ages and identifies a gap in interventions for autistic adults and those from minoritized populations.

业余摘要:自闭症群体中与口腔护理相关的挑战有据可查;牙科护理仍是自闭症患者最普遍的未满足的健康需求之一。本综述研究了旨在改善儿童和成人自闭症患者口腔健康的干预措施。通过系统化流程,确定了 36 项研究。这些研究的重点是改善家庭口腔护理技能和常规,减少在牙科诊所的恐惧、焦虑和/或负面行为。研究采用了不同类型的技术来促进口腔护理实践,包括支持家庭卫生活动或改善即将到来的牙科就诊的准备性干预(n = 29),最常见的是使用视觉辅助工具,和/或管理在牙科诊所表现出的行为困难的策略(n = 17)。有些研究同时使用两种方法(10 项),将就诊前的视觉辅助工具与行为管理相结合。我们使用循证评分标准审查了这些研究的方法质量,发现大多数研究在报告证据方面仅为 "充分"(8 项)或 "薄弱"(23 项)。本综述有两个关键发现:(1)支持基于家庭的预备性视觉干预,以改善刷牙情况和/或让患者为牙科就诊做好准备;(2)分散注意力或减少感觉的干预也可能改善患者在牙科诊所的就诊体验。只有一项研究特意招募了患有自闭症的成年人,没有研究包含针对种族/民族、文化和/或社会经济地位的干预内容。本综述强调了需要更多的研究来调查口腔护理相关干预措施对所有年龄段自闭症患者的影响,并指出了针对自闭症成人和少数民族人群的干预措施的不足之处。
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引用次数: 0
Coming out autistic at work: A review of the literature. 在工作中表现出自闭症:文献综述。
IF 5.2 2区 心理学 Q1 Psychology Pub Date : 2024-07-01 Epub Date: 2023-11-08 DOI: 10.1177/13623613231206420
Melissa A Sreckovic, Tia R Schultz, Suzanne Kucharczyk, Nancy Welsh-Young

Lay abstract: Research consistently documents the poor postsecondary outcomes of autistic individuals. It is important to identify supports that help autistic individuals get and keep jobs to improve postsecondary outcomes. Autism diagnosis disclosure at work may serve as a support (e.g., receiving accommodations) or as a barrier (e.g., discrimination) to getting and keeping employment, but little is known about the lived experiences of autistic individuals on diagnosis disclosure at work. To better understand why individuals on the spectrum choose to pursue disclosure or choose not to disclose at work, how they disclose, and the consequences of that disclosure, a state-of-the-art literature review was conducted. Ten studies met the final inclusion criteria and were synthesized to provide guidance to autistic individuals, families, and professionals who support their transition to employment. Findings from the review indicate that diagnosis disclosure is a highly complex decision. Across reviewed studies, participants chose to pursue disclosure for specific reasons, including access to accommodations or support, increase understanding, and advocate for self or others. Autistic individuals participating across reviewed studies shared they chose not to disclose primarily due to fears of discrimination and experience of stigma. Both the hopes (access to accommodations and supports) and fears (bullying and discrimination) were validated in the experienced consequences of disclosure. More research is needed on the contextual experiences of how individuals on the spectrum disclose their diagnosis at work.

文章摘要:研究一致记录了自闭症患者中学后学习成绩不佳的情况。重要的是要确定帮助自闭症患者找到并保住工作的支持,以提高中学后的成绩。工作中的自闭症诊断披露可能是获得和保持就业的支持(例如,获得住宿)或障碍(例如,歧视),但对自闭症患者在工作中的诊断披露生活经历知之甚少。为了更好地理解为什么这些人选择在工作中披露或不披露,他们是如何披露的,以及披露的后果,进行了一项最新的文献综述。10项研究符合最终纳入标准,并进行了综合,为支持自闭症患者向就业过渡的个人、家庭和专业人士提供指导。审查结果表明,披露诊断是一个高度复杂的决定。在审查的研究中,参与者出于特定原因选择披露,包括获得住宿或支持、增进理解以及为自己或他人辩护。参与审查研究的自闭症患者表示,他们之所以选择不披露,主要是因为担心受到歧视和耻辱。希望(获得便利和支持)和恐惧(欺凌和歧视)都在披露的经验后果中得到了验证。需要对频谱上的个人如何在工作中披露他们的诊断的背景经验进行更多的研究。
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引用次数: 0
Cognitive emotion regulation difficulties increase affective reactivity to daily-life stress in autistic adolescents and young adults. 认知情绪调节困难增加了自闭症青少年和年轻人对日常生活压力的情感反应。
IF 5.2 2区 心理学 Q1 Psychology Pub Date : 2024-07-01 Epub Date: 2023-10-26 DOI: 10.1177/13623613231204829
Laura Ilen, Clémence Feller, Maude Schneider

Lay abstract: Previous research has shown that autistic individuals report high levels of perceived stress and have an increased likelihood of developing mental health difficulties. Increase in individuals' negative emotions in relation to perceived stress (i.e. affective reactivity to stress) is a known risk factor for mental health difficulties. In this study, we investigated perceived daily stress and affective reactivity to stress in autistic (n = 39, age = 18.4) and non-autistic (n = 55, age = 18.1) adolescents and young adults. We used the ecological momentary assessment, a technique that allows to assess individuals repeatedly in their daily life using their smartphone. Moreover, participants filled a questionnaire to evaluate the strategies they use to regulate emotions when faced with difficulties. Finally, a clinical interview and a parent-report questionnaire were used to assess mental health symptoms. Autistic youth reported higher levels of perceived daily stress compared with non-autistic peers. Moreover, they showed increased affective reactivity to stress related to their daily activities. Autistic participants reported more emotion regulation difficulties (e.g. more repetitive thinking of difficulties) compared with non-autistic participants. Difficulties in emotion regulation increased negative emotions in relation to stress and might contribute to the severity of mental health symptoms. We conclude that adolescents and young adults with autism report high perceived stress in their daily lives. To minimize the negative impact of stress and the development of mental health symptoms, people supporting autistic young people could focus on stress management skills and the strategies that the youth use to manage emotions.

文章摘要:先前的研究表明,自闭症患者的压力感很高,出现心理健康问题的可能性增加。与感知压力相关的个人负面情绪的增加(即对压力的情感反应)是心理健康困难的一个已知风险因素。在这项研究中,我们调查了自闭症(n = 39岁,年龄 = 18.4)和非自闭症(n = 55岁,年龄 = 18.1)青少年。我们使用了生态瞬时评估,这是一种可以使用智能手机在日常生活中反复评估个体的技术。此外,参与者填写了一份问卷,评估他们在面对困难时调节情绪的策略。最后,使用临床访谈和家长报告问卷来评估心理健康症状。与非自闭症同龄人相比,自闭症青年的日常压力水平更高。此外,他们对与日常活动相关的压力表现出更高的情感反应。与非自闭症参与者相比,自闭症参与者报告了更多的情绪调节困难(例如,对困难的重复思考更多)。情绪调节的困难增加了与压力有关的负面情绪,并可能导致心理健康症状的严重性。我们得出的结论是,患有自闭症的青少年和年轻人在日常生活中感受到的压力很大。为了最大限度地减少压力和心理健康症状发展的负面影响,支持自闭症年轻人的人可以专注于压力管理技能和年轻人管理情绪的策略。
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引用次数: 0
Infant responses to direct gaze and associations to autism: A live eye-tracking study. 婴儿对直接凝视的反应与自闭症的关联:一项实时眼动追踪研究。
IF 5.2 2区 心理学 Q1 Psychology Pub Date : 2024-07-01 Epub Date: 2023-10-26 DOI: 10.1177/13623613231203037
Maja Rudling, Pär Nyström, Giorgia Bussu, Sven Bölte, Terje Falck-Ytter

Lay abstract: When other people look directly towards us, we often respond by looking back at them, and such direct-gaze responses are important for establishing eye contact. Atypical eye contact is common in autism, but how and when this aspect of autism develops is not well understood. Here, we studied whether how much and how quickly infants respond to others' direct gaze is associated with autism in toddlerhood. We did this by measuring direct-gaze responses in a playful social interaction using live eye tracking. The study included 169 infants, of whom 129 had an elevated likelihood of developing autism due to having a first-degree family member with the condition, and 40 with typical likelihood of autism. In the elevated likelihood group, 35 were diagnosed with autism spectrum disorder at 3 years of age, and 94 were not. The results showed that infants in all three groups tended to increase their looking towards the adult's face after the adult looked directly at them. However, neither how much nor how quickly the infants responded to direct gaze by looking back at the adult reliably differentiated the infants with or without subsequent autism. While infants in the elevated likelihood of autism and subsequent diagnosis group tended to look away quicker from faces with direct gaze than infants in the typical likelihood group, this measure did not differentiate between the two elevated likelihood groups. We interpret the results as supporting the view that atypical direct-gaze responses are not early markers of autism.

抽象:当别人直视我们时,我们通常会回头看他们,这种直接的凝视反应对建立眼神交流很重要。非典型的眼神交流在自闭症中很常见,但自闭症的这一方面是如何以及何时发展的还不清楚。在这里,我们研究了婴儿对他人直接凝视的反应程度和速度是否与蹒跚学步的自闭症有关。我们通过实时眼动追踪来测量有趣的社交互动中的直接凝视反应。这项研究包括169名婴儿,其中129名婴儿因其一级家庭成员患有自闭症而患自闭症的可能性较高,40名婴儿患有自闭症的典型可能性较高。在高可能性组中,35人在3岁时被诊断为自闭症谱系障碍 年龄,94岁没有。结果显示,在成年人直视婴儿后,这三组婴儿都倾向于增加他们对成年人脸的注视。然而,无论婴儿通过回头看成年人对直接凝视的反应有多大,有多快,都不能可靠地区分患有或不患有自闭症的婴儿。虽然自闭症和随后诊断的可能性较高组的婴儿往往比典型可能性组的婴儿更快地用直接凝视的方式将目光从脸上移开,但这一测量并没有区分两个可能性较高组。我们将这些结果解释为支持非典型的直接凝视反应不是自闭症的早期标志的观点。
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引用次数: 0
Is parent education a factor in identifying autism/takiwātanga in an ethnic cohort of Pacific children in Aotearoa, New Zealand? A national cross-sectional study using linked administrative data. 在新西兰奥特亚罗瓦太平洋岛屿族裔儿童队列中,父母教育是否是识别自闭症/takiwātanga 的一个因素?一项利用关联行政数据进行的全国横断面研究。
IF 5.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-07-01 Epub Date: 2023-12-28 DOI: 10.1177/13623613231217800
Jesse Kokaua, Betty Kolose-Pulefolau, Troy Ruhe, Faith Aldridge, Siale Foliaki, Liam Kokaua, Talai Mapusua, Joanne Dacombe, Rosalina Richards, Russell Blakelock, Nicholas Bowden

Lay abstract: Previous studies of autism in Aotearoa, New Zealand, suggest that fewer Pacific children receive an autism diagnosis compared to European children. This study aimed to explore if formal education qualification of parents is related to receiving an autism diagnosis for their Pacific child. Our findings show that autism was identified in 1.1% of Pacific children compared with 1.6% among non-Māori, non-Pacific children. Parents with higher levels of education were more likely to receive an autism diagnosis for their Pacific child. While the study findings indicate education plays a positive role in receiving a diagnosis for autistic children, they suggest a systemic failure of supporting Pacific parents and communities to navigate the health and education systems that exist in Aotearoa, New Zealand.

Lay 摘要:以往在新西兰奥特亚罗瓦进行的自闭症研究表明,与欧洲儿童相比,太平洋岛屿族裔儿童接受自闭症诊断的人数较少。本研究旨在探讨父母的正规教育资格是否与太平洋地区儿童接受自闭症诊断有关。我们的研究结果表明,1.1%的太平洋裔儿童被确诊患有自闭症,而非毛利裔、非太平洋裔儿童的这一比例为1.6%。受教育程度较高的家长更有可能为其太平洋岛屿族裔子女做出自闭症诊断。研究结果表明,教育在自闭症儿童获得诊断方面发挥着积极作用,但同时也表明,在支持太平洋裔家长和社区驾驭新西兰奥特亚罗瓦现有的卫生和教育系统方面存在系统性失误。
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引用次数: 0
Barriers to healthcare and a 'triple empathy problem' may lead to adverse outcomes for autistic adults: A qualitative study. 医疗保健障碍和“三重移情问题”可能会导致自闭症成年人的不良后果:一项定性研究。
IF 5.2 2区 心理学 Q1 Psychology Pub Date : 2024-07-01 Epub Date: 2023-10-17 DOI: 10.1177/13623613231205629
Sebastian Ck Shaw, Laura Carravallah, Mona Johnson, Jane O'Sullivan, Nicholas Chown, Stuart Neilson, Mary Doherty

Lay abstract: Autistic people live with more mental and physical health conditions and, on average, die younger than non-autistic people. Despite widespread commitments to tackling these issues, autistic people still report various barriers to accessing healthcare. This article aims to explore the area in depth, from the perspective of autistic people. This research benefits from being led by autistic people, for autistic people - all of the researchers are autistic, and most of us are also medical doctors. Data, in the form of written comments and stories, were collected as part of a large survey. Here, we explored these for common themes and possible deeper meaning within the experiences. People who took part reported a variety of barriers. Here, our article gives voice to their stories, in their own words. Themes included: early barriers; communication mismatch; doubt - in oneself and from doctors; helplessness and fear; and healthcare avoidance and adverse health outcomes. Our findings allowed us to create a model that aimed to understand and explain the reported barriers in the context of the previously known consequences. We also built on wider autism theories to explain our findings in more depth.

文章摘要:自闭症患者的心理和身体健康状况比非自闭症患者更差,平均而言,他们的死亡年龄也更小。尽管人们普遍致力于解决这些问题,但自闭症患者在获得医疗保健方面仍然存在各种障碍。本文旨在从自闭症患者的角度,深入探讨这一领域。这项研究得益于自闭症患者的领导,对于自闭症患者来说——所有的研究人员都是自闭症患者,我们大多数人也是医生。作为一项大型调查的一部分,收集了书面评论和故事形式的数据。在这里,我们探讨了这些共同的主题和经验中可能更深层次的意义。参与者报告了各种各样的障碍。在这里,我们的文章用他们自己的话为他们的故事发声。主题包括:早期障碍;通信失配;怀疑——来自自己和医生;无助和恐惧;以及避免医疗保健和不良健康后果。我们的发现使我们能够创建一个模型,旨在了解和解释先前已知后果背景下报告的障碍。我们还建立在更广泛的自闭症理论的基础上,更深入地解释我们的发现。
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引用次数: 0
Emotion recognition in autism spectrum condition during the COVID-19 pandemic. 新冠肺炎大流行期间自闭症谱系条件下的情绪识别。
IF 5.2 2区 心理学 Q1 Psychology Pub Date : 2024-07-01 Epub Date: 2023-10-26 DOI: 10.1177/13623613231203306
Tim Schnitzler, Christoph Korn, Sabine C Herpertz, Thomas Fuchs

Lay abstract: In the COVID-19 pandemic, wearing face masks became mandatory to prevent the spread of the virus. However, they restrict the ability to recognize emotions to the upper part of the face. Since individuals with autism spectrum condition often tend to look at the lower half of the face, they may be particularly restricted in emotion recognition by people wearing masks, since they are now forced to look at the upper half of the face. The current study compared the recognition of facially expressed emotions between individuals with and without autism spectrum condition. Each photo was shown in three types, once uncovered, once with face mask, and once with sunglasses. Our results revealed a reduction in accuracy of individuals with autism spectrum condition at recognizing emotions in all three stimulus types and exhibited more difficulties distinguishing anger, fear, pride, and embarrassment. During the emotion recognition task, there was no difference in which facial areas the groups looked at. We did not find evidence that the disadvantages of individuals with autism spectrum condition in emotion recognition were due to looking at different areas of the face.

文章摘要:在新冠肺炎大流行期间,戴口罩成为防止病毒传播的强制要求。然而,它们将识别情绪的能力限制在面部上部。由于患有自闭症谱系疾病的人通常倾向于看下半张脸,戴口罩的人可能会特别限制他们的情绪识别,因为他们现在被迫看上半张脸。目前的研究比较了患有和不患有自闭症谱系疾病的人对面部表情的识别。每张照片有三种类型,一种是不戴口罩,一种戴墨镜。我们的研究结果显示,自闭症谱系障碍患者在识别所有三种刺激类型的情绪方面的准确性都有所下降,并且在区分愤怒、恐惧、自豪和尴尬方面表现出更多的困难。在情绪识别任务中,各组观察的面部区域没有差异。我们没有发现证据表明自闭症谱系患者在情绪识别方面的劣势是由于观察面部的不同区域造成的。
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引用次数: 0
Characterizing mechanisms of caregiver-mediated naturalistic developmental behavioral interventions for autistic toddlers: A randomized clinical trial. 照顾者介导的自闭症幼儿自然发展行为干预机制:一项随机临床试验。
IF 5.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-07-01 Epub Date: 2023-11-24 DOI: 10.1177/13623613231213283
Maranda K Jones, Bailey J Sone, Jeffrey Grauzer, Laura Sudec, Aaron Kaat, Megan Y Roberts

Lay abstract: Caregiver-mediated early interventions support caregivers' use of strategies to improve their young autistic child's communication. In the current clinical trial, we sought to isolate the most effective strategies to improve short-term and long-term child communication outcomes. Results demonstrated how children may benefit from caregiver prompts to facilitate long-term language outcomes. In conclusion, the current study improves our understanding of how early intervention facilitates child communication outcomes.

摘要:照护者介入的早期干预支持照护者使用策略改善年幼自闭症儿童的沟通。在目前的临床试验中,我们试图分离出最有效的策略来改善短期和长期的儿童沟通结果。结果表明,儿童如何从照顾者的提示中受益,以促进长期的语言成果。总之,目前的研究提高了我们对早期干预如何促进儿童沟通结果的理解。
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引用次数: 0
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Autism
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