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Why Did I Lose Vision? A Qualitative Study of Patient Perceptions of the Causes of Age-Related Macular Disease 我为什么会失明?患者对老年性黄斑病变病因认知的定性研究
Pub Date : 2007-01-01 DOI: 10.1080/13882350701327715
M. Crossland, Cecil G. Helman, M. Feely, Elizabeth S. Gould, Gary S. Rubin
Background: Public understanding of age-related macular degeneration (AMD) is lower than that of other eye diseases such as cataract or glaucoma. The purpose of this study was to determine what reasons people with AMD give for their vision loss. Methods: Fifteen adults with AMD causing significant visual loss performed a detailed one-to-one semi-structured interview. Qualitative analysis techniques were used to identify themes and frequency of responses. Results: Sixty percent (9/15) of the participants identified aging as the principal cause of their vision loss. Two participants (13%) volunteered smoking as being a contributing factor. Common misconceptions included vision loss being attributable to trauma (2/15), medical or surgical intervention (2/15), and overuse of the eyes in earlier life (2/15). No patients mentioned genetic factors as being of importance. Conclusion: Patients with macular disease attribute their vision loss to many factors. Less than two-thirds identify their vision problem as be...
背景:公众对年龄相关性黄斑变性(AMD)的认识低于其他眼病,如白内障或青光眼。这项研究的目的是确定AMD患者视力丧失的原因。方法:对15名AMD患者进行了详细的一对一半结构化访谈。定性分析技术用于确定主题和频率的反应。结果:60%(9/15)的参与者认为衰老是他们视力丧失的主要原因。两名参与者(13%)自愿将吸烟作为致病因素。常见的误解包括视力丧失可归因于创伤(2/15),医疗或手术干预(2/15)以及早期过度使用眼睛(2/15)。没有患者认为遗传因素很重要。结论:黄斑病患者的视力下降是由多种因素引起的。不到三分之二的人认为他们的视力问题是……
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引用次数: 2
Where Are All the Clients? Barriers to Referral for Low Vision Rehabilitation 客户都到哪里去了?转介低视力康复的障碍
Pub Date : 2007-01-01 DOI: 10.1080/13882350701481033
R. S. Adam, D. Pickering
Background: As the prevalence of visual impairment rapidly increases, the services offered by the Canadian National Institute for the Blind (CNIB) will become even more important. As most clients are referred to the CNIB by their ophthalmologist or optometrist, maximising the efficiency of these referrals is the first step in the appropriate delivery of CNIB low vision rehabilitation services. This pilot study examined the barriers that prevent ideal referral practices by ophthalmologists in the Greater Toronto Area to the Toronto District CNIB. Methods: A survey questionnaire was completed by 29 Toronto-area ophthalmologists identified in a simple random sample. Results: Key barriers to referral included misconceptions regarding referral criterion and lack of information regarding CNIB services. Interpretation: Resulting recommendations included an educational campaign to teach Toronto-area ophthalmologists about CNIB services, as well as the necessary criteria for referring patients. There is no minimum...
背景:随着视力障碍的患病率迅速增加,加拿大国家盲人研究所(CNIB)提供的服务将变得更加重要。由于大多数病人是由眼科医生或验光师转介到康复所,因此,提高这些转介的效率是康复所适当提供低视力康复服务的第一步。这项试点研究检查了阻碍大多伦多地区眼科医生向多伦多地区CNIB进行理想转诊的障碍。方法:对多伦多地区随机抽取的29名眼科医生进行问卷调查。结果:转诊的主要障碍包括对转诊标准的误解和缺乏有关CNIB服务的信息。解读:最终的建议包括开展教育活动,向多伦多地区的眼科医生介绍CNIB服务,以及转诊患者的必要标准。没有最低要求……
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引用次数: 21
Magnification Ratios and Working Distances of “Head and Attachment Magnifiers” Made by Eschenbach Eschenbach制造的“头部和附件放大镜”的放大倍率和工作距离
Pub Date : 2007-01-01 DOI: 10.1080/13882350701608973
T. Tanabe, H. Uozato, K. Tsuji
Purpose: Because magnification ratios (MRs) indicated (IMRs) in catalogues of “Head and Attachment Magnifiers” made by Eschenbach are not common values, we examined the IMRs in relation to the working distances (WDs) indicated (IWDs) in the catalogues and then calculated the corrected WDs. Methods: From information about loupes given in the catalogues and measurements made with a lensometer, we determined (1) the power of each magnifier and (2) the accommodation needed; we then (3) calculated the MR and (4) established the corrected WD. Results: When used within the IWD, monocular loupe had an MR that was the same as the IMR. However, for binocular loupes, the MR was lower than the IMR. When the loupes were used at the revised WD recommended by the engineer of Eschenbach, binocular loupes had an IMR of “–1,” meaning that a WD shorter than the revised WD was needed to attain the IMR. Conclusion: With Eschenbach head and attachment magnifiers, the IMR is only attained when viewed at a shorter WD than that i...
目的:由于Eschenbach制作的“头部和附件放大镜”目录中显示的放大倍率(mr) (IMRs)不是通用值,我们检查了与目录中显示的工作距离(WDs) (IWDs)相关的放大倍率(mr),然后计算校正后的WDs。方法:根据目录中给出的放大镜信息和用透镜计测量的结果,我们确定了(1)每个放大镜的功率和(2)所需的调节;然后(3)计算MR,(4)建立校正WD。结果:在内窥镜内使用时,单眼镜的MR与内窥镜相同。然而,对于双目镜,MR低于IMR。当镜在Eschenbach工程师推荐的修正WD下使用时,双眼镜的IMR为“-1”,这意味着需要比修正WD短的WD来达到IMR。结论:使用Eschenbach头和附着放大镜,只有在较短的WD下才能获得IMR。
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引用次数: 0
Barriers to the Provision of Clinical Low-Vision Services Among Ophthalmologists in Nigeria 尼日利亚眼科医生提供临床低视力服务的障碍
Pub Date : 2007-01-01 DOI: 10.1080/13882350701198702
O. Okoye, A. Aghaji, R. Umeh, D. Nwagbo, A. Chuku
Objectives: To identify the perceived barriers to the provision of clinical low-vision service among ophthalmologists in Nigeria, with a view to proffering measures for their removal. Methods: A cross-sectional survey of ophthalmologists attending the Annual Ophthalmological Society of Nigeria Congress in September 2005 was conducted. Using self-administered questionnaires, information relevant to low-vision practice and the perceived barriers to the provision of low-vision services was garnered. Results: Eighty-three (70.9%) ophthalmologists out of 117 eligible participants at the congress responded to all of the questions and returned the study questionnaires. Non-availability of low-vision devices within the country (88%), lack of training in low-vision care (73.5%), lack of public awareness of low-vision care and its practitioners (60.2%), and the ophthalmologists' preoccupation with general ophthalmic practice (56.6%) were cited as the major barriers. With regard to the fellows and the residents in t...
目的:确定在尼日利亚眼科医生中提供临床低视力服务的感知障碍,以期提供消除障碍的措施。方法:对2005年9月参加尼日利亚眼科学会年会的眼科医生进行横断面调查。使用自我填写的问卷,收集了有关低视力实践和提供低视力服务的感知障碍的信息。结果:117名符合条件的与会眼科医生中有83名(70.9%)回答了所有问题并返回了研究问卷。国内缺乏低视力设备(88%)、缺乏低视力保健培训(73.5%)、公众对低视力保健及其从业人员缺乏认识(60.2%)以及眼科医生对一般眼科实践的关注(56.6%)被认为是主要障碍。关于这里的研究员和住院医生…
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引用次数: 22
Characterization of the Living Environments of End-Stage Glaucoma Patients and Use of Low-Vision Care Services: A Physician Survey Study 终末期青光眼患者的生活环境特征和低视力护理服务的使用:一项医师调查研究
Pub Date : 2007-01-01 DOI: 10.1080/13882350701327640
J. Walt, T. Chiang, L. Stern, J. Doyle
Background: The objective of this study was to obtain ophthalmologists' characterization of their end-stage glaucoma patients and their assessment of key factors that may influence the referral patterns for low-vision care services. Methods: A survey of ophthalmologists in the United States was performed in June 2004 to measure physician demographics and professional activities, patient demographics, disease states and disability, and patient referral by physicians for low-vision care services. Results: The majority of the 100 respondents were male (87%) in private practice (52%) with mean age of 45 years (range = 29–46). Overall, 87% of respondents saw an average of over 150 glaucoma patients per year, diagnosing between 20 and 50 glaucoma patients annually. For patients with glaucoma, surveyed ophthalmologists reported 12% (range = 0–60%) had end-stage glaucoma, of which 30% had diabetes, 16% had retinopathy, and 6% will progress to bilateral blindness. Physicians estimated 60% of end-stage glaucoma pat...
背景:本研究的目的是获得眼科医生对其终末期青光眼患者的特征,以及他们对可能影响低视力护理服务转诊模式的关键因素的评估。方法:2004年6月对美国眼科医生进行了一项调查,测量了医生的人口统计数据和专业活动、患者的人口统计数据、疾病状态和残疾情况,以及医生对低视力护理服务的患者转诊情况。结果:100名被调查者中男性居多(87%),在私人执业(52%),平均年龄45岁(29-46岁)。总体而言,87%的受访者平均每年看150多名青光眼患者,每年诊断20至50名青光眼患者。对于青光眼患者,接受调查的眼科医生报告12%(范围= 0-60%)患有终末期青光眼,其中30%患有糖尿病,16%患有视网膜病变,6%会发展为双侧失明。医生估计60%的终末期青光眼…
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引用次数: 2
Disclosing the secrets of braille reading: Computer-aided registration and interactive analysis 揭示盲文阅读的秘密:计算机辅助配准与交互分析
Pub Date : 2006-01-01 DOI: 10.1080/13882350601061976
Björn Breidegard, Bodil Jönsson, K. Fellenius, S. Strömqvist
The pilot project reported here utilized the first technology ever developed for the computerized on-line registration and analysis of finger movements during Braille reading. Five congenitally blind subjects performed tactile reading of pedagogically carefully selected texts. Two specialists in visual impairments analyzed the computer-registered reading activities using specially designed interaction software. The subjects themselves were interviewed and contributed to discussions about their own individual reading styles. The analyses of this first handful of subjects reveal a number of important strategies and preferences with regard to on-line tactile reading. Further, the results challenge several assumptions and practices in Braille teaching. This pilot project lays the foundation for more comprehensive large-scale studies—both cross-sectional and longitudinal ones—studies long wanted in the domain of tactile reading.
这里报告的试点项目利用了有史以来第一项技术,用于计算机在线注册和分析盲文阅读过程中的手指运动。五名先天失明的受试者对精心挑选的课文进行触觉阅读。两位视觉障碍专家使用专门设计的交互软件分析了计算机记录的阅读活动。研究对象本人接受了采访,并参与了关于他们个人阅读风格的讨论。对前几个研究对象的分析揭示了一些关于在线触觉阅读的重要策略和偏好。此外,研究结果对盲文教学中的一些假设和实践提出了挑战。这个试点项目为更全面的大规模研究奠定了基础——包括横向和纵向的研究——触觉阅读领域长期以来的研究。
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引用次数: 9
Body Awareness and Dance-Based Training for Persons with Acquired Blindness—Effects on Balance and Gait Speed 后天性失明者身体意识及舞蹈训练对平衡及步态速度之影响
Pub Date : 2006-01-01 DOI: 10.1080/13882350600964667
L. Larsson, K. Frändin
Background: Visual impairment may cause difficulties with motor skills involving postural control. As a part of rehabilitation, it is important to assess whether training can affect postural control in individuals with visual impairment. Aim: The purpose was to assess the effect of body awareness exercises and dance-based training on balance and gait speed in individuals of working age with acquired blindness. Method: Eight subjects with acquired blindness, aged 30–62 years, were recruited from the Low Vision Clinic of Stockholm. An ABA Single Subject Research Design was used. Results of one-leg stance, functional reach, maximum step length, timed up and go, and self-selected and maximum gait speeds were inspected visually and analyzed according to the 2-SD band method. The intervention included body awareness exercises and dance-based training twice a week for eight weeks. Results: Seven subjects completed the study. According to the 2-SD band technique, functional reach increased significantly in six of...
背景:视力障碍可能导致包括姿势控制在内的运动技能障碍。作为康复的一部分,评估训练是否能影响视力障碍患者的姿势控制是很重要的。目的:目的是评估身体意识练习和舞蹈训练对工作年龄获得性失明个体平衡和步态速度的影响。方法:从斯德哥尔摩低视力诊所招募8例获得性失明患者,年龄30 ~ 62岁。采用ABA单受试者研究设计。单腿站立、功能伸展、最大步长、起跑时间、自选步态速度和最大步态速度目测结果,并根据2-SD波段法进行分析。干预包括身体意识练习和舞蹈训练,每周两次,持续八周。结果:7名受试者完成了研究。根据2-SD波段技术,6例患者的功能范围明显增加。
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引用次数: 19
Vision Impairment by Choice: Why Do Patients Decline Macular Hole Surgery? 选择性视力损害:为什么患者拒绝黄斑孔手术?
Pub Date : 2006-01-01 DOI: 10.1080/13882350601096345
W. Wittich, O. Overbury, Rong Zhou, Donald H. Watanabe, M. Kapusta
Introduction: Vision care providers generally assume that patients who are affected with treatable vision impairment are interested in appropriate medical options. It has been our clinical experience, however, that approximately 10% of macular hole (MH) patients opt to decline surgery, even though its beneficial effects have been well established. They, thereby, choose to remain visually impaired in the affected eye. The present study investigated visual acuity in the unaffected eye, living distance from the hospital, and the presence of other age-related medical conditions as possible factors in the decision-making process of seniors affected with MH. Method: Thirty patients (aged 59–81 years) who declined treatment between 1998 and 2003 were matched on age and gender with a group of patients who chose the surgical intervention during the same time period. Information from their medical files was used for statistical comparison. Results: The groups did not differ statistically with regard to acuity in th...
简介:视力保健提供者通常认为,患有可治疗的视力障碍的患者对适当的医疗选择感兴趣。然而,根据我们的临床经验,大约10%的黄斑孔(MH)患者选择拒绝手术,尽管手术的有益效果已经得到了很好的证实。因此,他们选择在受影响的眼睛中保持视力受损。本研究调查了未受影响眼的视力、离医院的距离以及其他与年龄相关的医疗状况作为影响老年MH患者决策过程的可能因素。方法:将1998年至2003年期间拒绝治疗的30例患者(年龄59-81岁)与同一时期选择手术干预的一组患者进行年龄和性别匹配。他们的医疗档案资料用于统计比较。结果:两组患者的视力差异无统计学意义。
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引用次数: 1
Provision of Appropriate Eye Care Services for Adults with Learning Disabilities: the Experience of a Specialist Multi-Professional Visual Assessment Clinic in Northern Ireland 为有学习障碍的成年人提供适当的眼保健服务:北爱尔兰一家多专业视力评估诊所的经验
Pub Date : 2006-01-01 DOI: 10.1080/13882350600805753
J. Lindsay, A. Crocker, P. Browne, D. Hassan, A. Jackson
Introduction: Adults with learning disabilities find it difficult to access conventional eye care services. The result is that refractive errors remain uncorrected, treatable pathology goes undetected and visual acuities are suboptimal. Impaired vision limits independence and impacts significantly on quality of life. Methodology: The demographic and visual characteristics of 95 adults with learning disabilities attending a specialist multi-professional visual assessment clinic within a day centre in Belfast were examined and issues relating to co-operation, access and communication addressed. Results: Of the 95 patients assessed, 51(53.7%) were male and the mean age was 38.13 ± 10.71 years (range: 19–65 years). In 43.2% (n = 41) of cases, there had been no previous visual assessment. Only 30.6% of those requiring spectacles had an adequate correction. A total of 25.3% (n = 24) could be classified as visually impaired. Onward referral for treatable ocular pathology was recommended in 5.3% (n = 5) of patien...
有学习障碍的成年人很难获得传统的眼科保健服务。结果是屈光不正仍未得到矫正,可治疗的病理未被发现,视力也达不到最佳水平。视力受损限制了独立性,严重影响了生活质量。方法:研究了在贝尔法斯特一家日间中心的多专业视力评估诊所就诊的95名有学习障碍的成年人的人口统计学和视觉特征,并解决了与合作、访问和沟通有关的问题。结果:95例患者中,男性51例(53.7%),平均年龄38.13±10.71岁(范围:19 ~ 65岁)。在43.2% (n = 41)的病例中,没有先前的视觉评估。只有30.6%需要配戴眼镜的患者得到了适当的矫正。有25.3% (n = 24)的人属于视障。5.3% (n = 5)的患者推荐转诊治疗可治疗的眼部病变。
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引用次数: 3
Future Directions in Blindness and Low Vision Perspectives from a State-of-the-Science Conference 失明和低视力的未来发展方向——来自一次科学会议的观点
Pub Date : 2006-01-01 DOI: 10.1080/13882350601061984
J. Brabyn
This paper discusses the outcomes of a recent state-of-the-science conference on rehabilitation technology and methods in blindness and low vision. The conference goals were to assess the current state of the art and identify the gaps where research or other action is needed. To ensure that real needs were addressed, a third of the participants were blind or visually impaired, while another third were involved in rehabilitation service delivery. Topics addressed included infancy and school-age needs, travel, information access, vocational and daily living needs, access to graphical information, disease and deficit-specific problems and solutions, and functional assessment. In addition to identifying many research needs in these areas, an emerging theme was the need to adjust future research agendas to address changes in the target population, such as the increasing prevalence of dual sensory loss and multiple disabilities. Also sorely needed is improved communication among the various stakeholders in the ...
本文讨论了最近一次关于失明和低视力康复技术和方法的科学会议的成果。会议的目标是评估目前的技术状况,并确定需要进行研究或采取其他行动的差距。为了确保真正的需求得到满足,三分之一的参与者是盲人或视障人士,而另外三分之一的参与者参与了康复服务的提供。讨论的主题包括婴儿期和学龄需求、旅行、信息获取、职业和日常生活需求、获取图形信息、疾病和特定缺陷的问题和解决办法以及功能评估。除了确定这些领域的许多研究需求外,一个新出现的主题是需要调整未来的研究议程以应对目标人群的变化,例如双重感觉丧失和多重残疾的日益流行。同样迫切需要的是改善各利益相关者之间的沟通……
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引用次数: 3
期刊
Visual impairment research
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