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Support Person Holding Back Information in Medical Interactions: The Role of Empathic Communication and Disclosure Efficacy. 医疗互动中支持人隐瞒信息:共情沟通与披露效能的作用。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-12-01 Epub Date: 2025-03-31 DOI: 10.1080/10410236.2025.2484256
Lauren E Lee, Maria K Venetis, Elizabeth Broadbridge, Katie A Devine, Kathryn Greene

Support people are often both physically and emotionally involved in patients' cancer-care trajectories with first-hand knowledge of the patient's health; they also harbor their own fears and concerns. When present in the medical interaction, support people report hesitancy to share patient information and concerns with clinicians, although they deem this information is important for patient care. Framed in the disclosure decision-making model, this study examines how support people's perceptions of clinician empathic communication affect their disclosure efficacy, and how these concepts relate to outcomes of holding back information about patient health or their own fears and concerns. Participants included support people (N  = 129) recruited from the Love Research Army® who completed an online survey. Analyses investigated how disclosure efficacy influences the association between perceived clinician empathic communication and support person holding back patient health information (model 1) and support person holding back their own fears and concerns (model 2). Overall, results identify differences in support people's holding back when making disclosure decisions related to patients' physical health versus their own fears and concerns. Greater disclosure efficacy shaped the relationship between perceived clinician empathic communication and lower levels of holding back patient health information, bolstering the importance of clinician empathic communication with support people of cancer patients.

支持人员通常在身体上和情感上都参与到患者的癌症治疗过程中,对患者的健康有第一手的了解;他们也有自己的恐惧和担忧。当在医疗互动中出现时,支持人员报告说,尽管他们认为这些信息对患者护理很重要,但他们对与临床医生分享患者信息和关注的问题犹豫不决。在披露决策模型的框架下,本研究探讨了支持人们对临床医生共情沟通的看法如何影响他们的披露效果,以及这些概念如何与隐瞒患者健康信息或他们自己的恐惧和担忧的结果相关。参与者包括从爱研究军®招募的支持人员(N = 129),他们完成了一项在线调查。分析探讨了披露效能如何影响感知到的临床共情沟通与支持人员隐瞒患者健康信息(模型1)和支持人员隐瞒自己的恐惧和担忧(模型2)之间的关联。总体而言,结果确定了支持人员在做出与患者身体健康相关的披露决策时的保留与他们自己的恐惧和担忧之间的差异。较高的披露效能塑造了感知到的临床医生共情沟通与较低水平的隐瞒患者健康信息之间的关系,增强了临床医生与癌症患者支持人员的共情沟通的重要性。
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引用次数: 0
Get Vaccinated Now, But the Choice is Up to You: Framing, Psychological Reactance, and Autonomy Restoration Scripts for COVID-19 Vaccine Hesitancy. 现在接种疫苗,但选择由您决定:COVID-19疫苗犹豫不决的框架、心理反应和自主性恢复脚本。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-12-01 Epub Date: 2025-03-31 DOI: 10.1080/10410236.2025.2485296
Amber Marie Reinhart, Yan Tian, Amanda E Lilly

Covid-19 is still a major public health issue in the United States and one of the most effective ways to minimize the damage caused by this illness is through encouraging individuals to receive vaccines and keep up with vaccine boosters. However, many individuals remain vaccine-hesitant. The current project examines the most effective way to persuade vaccine hesitant individuals through a textual message-based experiment. Psychological reactance, messaging framing (loss and gain), and autonomy restoring messages are examined to determine their effectiveness in moving the vaccine-hesitant to vaccine accepting. A 3 (frame: loss/gain/neutral) X 2 (autonomy restoration script/filler) between-subjects experiment was conducted using a sample of 605 participants over the age of 18 who either had not received any COVID-19 vaccine or any type of COVID-19 vaccine booster. Findings suggest that individuals who had not received any vaccination varied in their psychological reactance compared to those who had at least an initial vaccination. Framing was also found to play an important part in feelings of lost autonomy and that restoration messages helped reduce feelings of lost autonomy. Further, feelings of loss of freedom created more psychological reactance and could cause increases in vaccine resistance. Mediation effects were also supported, indicating that message framing and autonomy restoration influenced vaccine hesitancy indirectly through perceived threats to freedom and psychological reactance.

在美国,Covid-19仍然是一个重大的公共卫生问题,最大限度地减少这种疾病造成的损害的最有效方法之一是鼓励个人接种疫苗并及时接种疫苗。然而,许多人仍然对接种疫苗犹豫不决。目前的项目通过一项基于短信的实验,研究说服犹豫不决的个人接种疫苗的最有效方法。对心理抗拒、信息框架(损失和获得)以及恢复信息的自主性进行检查,以确定它们在将疫苗犹豫转变为接受疫苗方面的有效性。采用605名18岁以上未接种任何COVID-19疫苗或任何类型的COVID-19疫苗增强剂的受试者样本进行了3(框架:损失/获得/中性)x2(自主恢复脚本/填充)受试者间实验。研究结果表明,与那些至少接种过一次疫苗的人相比,未接种过任何疫苗的人在心理抗拒上有所不同。框架也被发现在失去自主性的感觉中起着重要的作用,恢复信息有助于减少失去自主性的感觉。此外,失去自由的感觉产生了更多的心理抗拒,并可能导致疫苗耐药性的增加。中介效应也得到支持,表明信息框架和自主恢复通过感知到的对自由的威胁和心理抗拒间接影响疫苗犹豫。
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引用次数: 0
A Systematic Review of Post-Traumatic Stress Disorder Communication Research: Implications for Resilience Communication and Organizing. 创伤后应激障碍沟通研究综述:对弹性沟通和组织的启示。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-12-01 Epub Date: 2025-04-21 DOI: 10.1080/10410236.2025.2490315
Katherine Scrivani, Jiawei Sophia Fu

Post-traumatic stress disorder (PTSD) is the psychological response to experiencing and/or witnessing a traumatic event. With over 100 million of the global adult population afflicted with this disorder, more systematic research on PTSD is essential, and the COVID-19 pandemic increased that need. Extant research suggests communication lies at the center of PTSD prevention, symptom mitigation, and recovery, yet communication researchers have largely failed to address the disorder. To advance theory and empirical research, this paper presents a systematic review of PTSD studies in communication literature. Content and computational analyses of 84 relevant articles from three databases show that PTSD research primarily focuses on the military, journalists, and survivors of terrorist attacks. In addition, those with PTSD rely on social networks and support to combat social stigma and self-isolation. Based on these findings, we present four fruitful areas for future research on PTSD across diverse subfields: (1) social networks, (2) diverse populations, (3) social identity, and (4) resilience.

创伤后应激障碍(PTSD)是对经历和/或目睹创伤性事件的心理反应。全球有超过1亿成年人患有这种疾病,因此必须对创伤后应激障碍进行更系统的研究,而COVID-19大流行增加了这一需求。现有的研究表明,沟通是PTSD预防、症状缓解和康复的核心,但沟通研究人员在很大程度上未能解决这种疾病。为了促进理论和实证研究,本文对传播文献中PTSD的研究进行了系统的综述。对来自三个数据库的84篇相关文章的内容和计算分析表明,PTSD研究主要集中在军人、记者和恐怖袭击幸存者身上。此外,创伤后应激障碍患者依靠社会网络和支持来对抗社会耻辱和自我孤立。基于这些发现,我们提出了未来在不同子领域对PTSD进行研究的四个富有成效的领域:(1)社会网络,(2)不同人群,(3)社会认同,(4)复原力。
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引用次数: 0
A Critical Discourse Analysis of the Language of Stigmatization of Breast Cancer Patients in Nigeria. 尼日利亚乳腺癌患者污名化语言的批判性话语分析。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-12-01 Epub Date: 2025-04-21 DOI: 10.1080/10410236.2025.2492216
J O Oyeleke, R E Okhuosi, O O Ayandipo

Breast cancer is a significant health concern globally, including in Nigeria, where its incidence is rising. An essential component of breast cancer care is the psychosocial wellbeing of patients, which is often shaped by the language used in healthcare and society. While some research has explored stigmatization of breast cancer patients, no study has focused on language as a tool for this stigmatization in Nigeria. This study examines how language perpetuates the stigmatization of breast cancer patients and explores ways to use language to improve their lives and health. Using Norman Fairclough's model of critical discourse analysis and a descriptive design, data was collected through interviews with 50 respondents at the University College Hospital in Ibadan, Nigeria. The study's discourse analysis revealed that stigmatization is perpetuated through language, including negative stereotypes, body shaming, spiritual interpretations, and derogatory terms. These discourses reflect broader social and cultural factors such as norms, beliefs, and power dynamics that reinforce stigmatization. The research highlights the effects of stigmatizing language, including denial, loss of femininity, shame, and fear of a new identity. The findings call for policies and interventions to reduce stigma, improve patient experiences, and raise public awareness of breast cancer.

乳腺癌是全球的一个重大健康问题,包括在尼日利亚,其发病率正在上升。乳腺癌护理的一个重要组成部分是患者的社会心理健康,这往往受到医疗保健和社会中使用的语言的影响。虽然一些研究探讨了对乳腺癌患者的污名化,但没有一项研究将语言作为尼日利亚这种污名化的工具。这项研究探讨了语言是如何使乳腺癌患者的耻辱永久化的,并探讨了如何使用语言来改善他们的生活和健康。采用Norman Fairclough的批判性话语分析模型和描述性设计,通过对尼日利亚伊巴丹大学学院医院的50名受访者的访谈收集数据。该研究的话语分析表明,污名化是通过语言延续的,包括负面刻板印象、身体羞辱、精神解读和贬义词。这些话语反映了更广泛的社会和文化因素,如规范、信仰和强化污名化的权力动态。该研究强调了污名化语言的影响,包括否认、女性气质的丧失、羞耻和对新身份的恐惧。研究结果呼吁制定政策和干预措施,以减少耻辱感,改善患者体验,并提高公众对乳腺癌的认识。
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引用次数: 0
Beyond Narrative Relief: Exploring the Impacts of Lacking Feedback and Perceived Cyber-Ostracism Based on the Temporal Need-Threat Model. 超越叙事救济:基于时间需求-威胁模型的缺乏反馈和感知网络排斥的影响
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-12-01 Epub Date: 2025-03-31 DOI: 10.1080/10410236.2025.2481473
Xing Zhang, Jinjin Zhao

Social media are increasingly becoming public venues for patients to create and share illness narratives. While prior research has primarily focused on the positive and supportive roles of social media in patients' seeking and obtaining social support, little is known about the possible negative impacts of lacking feedback when sharing illness narratives on these connected and interactive platforms. By incorporating the notion of cyber-ostracism from social psychology and drawing upon Williams's temporal need-threat model (TNTM), this study proposed and tested a series of serial-parallel mediation models that link feedback amount, psychological well-being, and/or various coping intentions (i.e. to withdraw from social media narration sharing and to positively/negatively comment on others' narratives), sequentially through perceived ostracism and different need satisfaction (i.e. for belonging, self-esteem, meaningful existence, and control). Findings of this study move beyond the longstanding focus on the narrative relief effects, shedding light on the backfire effects of sharing illness narratives when such narratives received little or even no feedback from others in the social media environment.

社交媒体正日益成为患者创造和分享疾病故事的公共场所。虽然之前的研究主要集中在社交媒体在患者寻求和获得社会支持方面的积极和支持作用,但对于在这些相互联系和互动的平台上分享疾病叙述时缺乏反馈可能产生的负面影响知之甚少。本研究结合社会心理学中的网络排斥概念,借鉴Williams的时间需求-威胁模型(TNTM),提出并检验了一系列连接反馈量、心理健康和/或各种应对意向(即退出社交媒体叙事分享和积极/消极评论他人叙事)的串并联中介模型。依次通过感知排斥和不同的需求满足(即归属感、自尊、有意义的存在和控制)。这项研究的发现超越了长期以来对叙事缓解效应的关注,揭示了在社交媒体环境中,当分享疾病叙事很少甚至没有从他人那里得到反馈时,这种叙事会产生适得其反的效果。
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引用次数: 0
Empowering Unvaccinated Women with Information: How Online Cancer Information Seeking and Scanning Encourage HPV Vaccination in China. 向未接种疫苗的妇女提供信息:中国在线癌症信息搜索和扫描如何鼓励HPV疫苗接种。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-12-01 Epub Date: 2025-04-02 DOI: 10.1080/10410236.2025.2485298
Yuyuan Kylie Lai, Jizhou Francis Ye, Kyra Newcombe, Xinshu Zhao

Chinese women face a tremendous threat of cervical cancer alongside low rates of human papillomavirus (HPV) vaccination. Online cancer information has become a driving force of HPV vaccination, but the underlying mechanism remains unclear. Drawing upon the three-stage model of health promotion, this study examines the relationships between online cancer information seeking and scanning and HPV vaccination intention among unvaccinated Chinese women. Specifically, the mediating roles of HPV knowledge and perceived efficacy for cancer prevention and the moderating role of information elaboration were tested. Results from a national online survey (N = 404) indicate that both information seeking and scanning are positively associated with HPV vaccination intention through improving HPV knowledge and perceived cancer prevention efficacy. Additionally, information seeking directly and positively correlates with perceived cancer prevention efficacy, while information scanning is directly related to increased HPV vaccination intention. Information elaboration also strengthens the indirect pathway linking information seeking and vaccination intention via the sequential mediation chain. Theoretically, the results extend the three-stage model by demonstrating the distinct roles of information seeking and scanning in HPV vaccination intention. Practically, our findings can inform health organizations and informatics professionals to develop promotional campaigns to improve knowledge, empower unvaccinated women, and encourage vaccination uptake.

中国女性面临着宫颈癌的巨大威胁,而人乳头瘤病毒(HPV)疫苗接种率却很低。网络癌症信息已成为 HPV 疫苗接种的推动力,但其背后的机制仍不清楚。本研究借鉴健康促进的三阶段模型,探讨了未接种疫苗的中国女性在线癌症信息搜索和扫描与 HPV 疫苗接种意向之间的关系。具体而言,本研究检验了 HPV 知识和感知防癌功效的中介作用以及信息阐述的调节作用。一项全国性在线调查(N = 404)的结果表明,通过提高 HPV 知识和感知的癌症预防效果,信息寻求和扫描与 HPV 疫苗接种意向呈正相关。此外,信息搜寻与感知的癌症预防效果直接呈正相关,而信息扫描则与 HPV 疫苗接种意向的增加直接相关。信息阐述还通过顺序中介链加强了信息寻求与疫苗接种意向之间的间接联系。从理论上讲,研究结果扩展了三阶段模型,证明了信息搜寻和信息扫描在 HPV 疫苗接种意向中的不同作用。在实践中,我们的研究结果可以为卫生机构和信息学专业人员提供信息,以开展宣传活动来提高知识水平、增强未接种妇女的能力并鼓励她们接种疫苗。
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引用次数: 0
Relational Maintenance Behaviors Mediate the Relationship Between Alzheimer's Diagnosis Severity and Caregivers' Benefit Finding. 关系维持行为介导阿尔茨海默病诊断严重程度与照顾者利益发现的关系。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-12-01 Epub Date: 2025-05-15 DOI: 10.1080/10410236.2025.2503401
Julie Q Ball, Colter D Ray

Caregivers often experience stress, depression, anxiety, and various physical illnesses stemming from the demands and challenges of their caregiving role. However, adaptive coping mechanisms such as benefit finding can mitigate these outcomes. The present study explored the relationship between Alzheimer's diagnostic severity and caregivers' engaging in benefit finding and, more specifically, whether prosocial relational maintenance behaviors communicated by the patient to the caregiver mediates the relationship between severity and benefit finding. A sample of 152 current or former Alzheimer's caregivers completed an online survey measuring their care recipient's Alzheimer's diagnostic severity, their own propensity for benefit finding, and how often the care recipient performed relational maintenance behaviors toward them as the caregiver. Results showed no direct effect existed between Alzheimer's diagnostic severity and caregivers' benefit finding; however, the extent that patients performed relational maintenance behaviors with their caregiver mediated the relationship between Alzheimer's diagnostic severity and caregivers' benefit finding. The significant influence of relational maintenance behaviors underlines the importance and effect of communication between caregivers and care recipients throughout the progression of a disease like Alzheimer's.

照顾者经常经历压力、抑郁、焦虑和各种身体疾病,这些都源于他们照顾角色的要求和挑战。然而,适应性应对机制,如寻找利益可以减轻这些结果。本研究探讨了阿尔茨海默病诊断严重程度与照顾者参与利益寻找之间的关系,更具体地说,患者向照顾者传达的亲社会关系维持行为是否介导了严重程度与利益寻找之间的关系。152名现在或以前的阿尔茨海默氏症护理人员完成了一项在线调查,测量了他们的护理对象的阿尔茨海默氏症诊断严重程度,他们自己寻找利益的倾向,以及护理对象作为护理者对他们进行关系维护行为的频率。结果显示,阿尔茨海默病的诊断严重程度与照顾者的获益发现之间不存在直接影响;然而,患者与照顾者进行关系维持行为的程度介导了阿尔茨海默病诊断严重程度与照顾者获益发现之间的关系。关系维持行为的显著影响强调了在阿尔茨海默病等疾病的发展过程中,照顾者和被照顾者之间沟通的重要性和作用。
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引用次数: 0
"I Respect Whatever Decision You Make!" How Autonomy Support and Exemplars in Short-Form Videos Influence Clinical Trial Recruitment. “我尊重你做的任何决定!”短视频中的自主支持和范例如何影响临床试验招募。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-12-01 Epub Date: 2025-05-01 DOI: 10.1080/10410236.2025.2496745
Ciera E Kirkpatrick, Sisi Hu, Yoorim Hong, Namyeon Lee, Sungkyoung Lee, Amanda Hinnant

This study was designed to test two message features (autonomy support and evidence type) found in clinical trial recruitment videos on social media. Using an online experiment in which 606 individuals watched short-form videos about clinical trials, we assessed the impact of varying autonomy support conditions (supportive vs. non-supportive) and incorporating exemplars of a previous clinical trial participant's experience (vs. base-rate information about participating). The findings show that communicating about clinical trials with an autonomy-supportive approach can reduce psychological reactance and improve perceived message effectiveness, attitudes toward clinical trial participation, intentions to engage with the content (i.e., "liking" and sharing the content), and intentions to participate in clinical trials. When combined with an exemplar, autonomy-supportive messaging can be especially effective at reducing psychological reactance and improving attitudes toward clinical trials. The findings are well-timed, as researchers are increasingly turning to social media to enhance clinical trial recruitment.

本研究旨在测试社交媒体上临床试验招募视频中的两个信息特征(自主性支持和证据类型)。通过在线实验,606个人观看了关于临床试验的短视频,我们评估了不同自主支持条件(支持与不支持)的影响,并结合了先前临床试验参与者的经验范例(与参与的基本率信息相比)。研究结果表明,以自主支持的方式进行临床试验交流可以减少心理抗拒,提高感知信息的有效性,提高对临床试验参与的态度,参与内容的意向(即“喜欢”和分享内容),以及参与临床试验的意向。当与范例相结合时,自主支持信息在减少心理抗拒和改善对临床试验的态度方面特别有效。随着研究人员越来越多地转向社交媒体来加强临床试验招募,这些发现来得正是时候。
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引用次数: 0
An Examination of How Individuals Manage Uncertainty Around Scoliosis. 个人如何管理脊柱侧凸的不确定性的检查。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-11-30 DOI: 10.1080/10410236.2025.2594129
Katelin A Mueller, Lynsey K Romo

Adolescent idiopathic scoliosis (AIS), affecting approximately one in every 25 children, presents significant lifelong physical and psychosocial challenges. However, a systematic understanding of the sources of this uncertainty and how individuals communicatively navigate it is lacking. Thus, this qualitative study applied uncertainty management theory (UMT) to examine participants' uncertainty associated with scoliosis. The investigation identified key sources of uncertainty (medical, financial, social, and career) and management strategies through semi-structured interviews with 21 individuals diagnosed with scoliosis in adolescence. Participants appraised their uncertainty as either negative or neutral. In alignment with how they appraised their uncertainty, some interviewees sought to reduce uncertainty by seeking social support and by disclosing or concealing their illness. Others maintained uncertainty by avoiding medical information (or by being told to wait and see about their disease progression), and some adapted to their uncertainty by reframing or engaging in self-care or religion. The results highlight the need for greater medical, psychological, and social support for those diagnosed with scoliosis and highlight the importance of developing tailored uncertainty management strategies to improve patients' quality of life.

青少年特发性脊柱侧凸(AIS)大约每25名儿童中就有1名受其影响,对身体和社会心理带来了重大的终身挑战。然而,缺乏对这种不确定性的来源以及个体如何通过沟通来应对这种不确定性的系统理解。因此,本定性研究应用不确定性管理理论(UMT)来检查参与者与脊柱侧凸相关的不确定性。该调查通过对21名被诊断为青少年脊柱侧凸的患者进行半结构化访谈,确定了不确定性的主要来源(医疗、经济、社会和职业)和管理策略。参与者将他们的不确定性评价为消极或中性。根据他们如何评估自己的不确定性,一些受访者试图通过寻求社会支持和披露或隐瞒自己的疾病来减少不确定性。另一些人则通过回避医疗信息(或被告知等待观察他们的疾病进展)来保持不确定性,而一些人则通过重新规划或参与自我保健或宗教来适应他们的不确定性。研究结果强调了为脊柱侧凸患者提供更多医疗、心理和社会支持的必要性,并强调了制定量身定制的不确定性管理策略以改善患者生活质量的重要性。
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引用次数: 0
Predicting Health Information Avoidance Intentions and Behaviors: Combining a Pre-Survey and In-Situ Measurement of Individuals Affected by Acute or Chronic Health Challenges. 预测健康信息回避意向和行为:结合急性或慢性健康挑战个体的预调查和原位测量。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-11-30 DOI: 10.1080/10410236.2025.2590532
Elena Link

Given the increasing scholarly attention to health information avoidance, the current study offers a more nuanced perspective on this communication phenomenon by predicting avoidance intention and behavior and examining their interrelationship. Guided by a reduced version of the proposed model of planned risk information avoidance (PRIA), a combination of a pre-survey capturing the predictors of avoidance intention and an in-situ measurement of avoidance behavior showed that the model explained 36.1% of the variance in avoidance intention, but only 6% of the variance in the occurrence of avoidance behavior and 5.1% of the variance in the frequency of avoidance behavior. Together with the weak correlation between avoidance intention and behavior, this finding revealed an intention-behavior gap for health information avoidance and suggests that the two measures represent different dimensions of health information avoidance. These findings are critical for conceptual clarity, call for distinguishing the predictors of avoidance intention and behavior within the PRIA, and provide guidance for methodological decisions.

鉴于学术界对健康信息回避的关注日益增加,本研究通过预测回避意图和行为以及检查它们之间的相互关系,为这种交流现象提供了更细致入微的视角。在精简版的计划风险信息回避模型(PRIA)的指导下,通过捕获回避意向预测因子的预调查和对回避行为的现场测量相结合,表明该模型解释了36.1%的回避意向方差,但仅解释了6%的回避行为发生方差和5.1%的回避行为频率方差。结合回避意向与行为之间的弱相关性,这一发现揭示了健康信息回避的意向-行为差距,表明两种测量方法代表了健康信息回避的不同维度。这些发现对于明确概念至关重要,要求在PRIA中区分回避意图和行为的预测因素,并为方法决策提供指导。
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引用次数: 0
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Health Communication
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