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Bilan simplifié des capacités d’alimentation chez une personne handicapée 残疾人饮食能力的简化评估
Q4 Medicine Pub Date : 2023-03-01 DOI: 10.1016/j.motcer.2023.01.003
T. Rofidal

The prevention of swallowing disorders in the disabled person requires the neck to be flexed throughout the meal and the food and drink textures to be adapted to the person's abilities. This simple but complete assessment allows the collection of all the information that will enable the observation during the meals to be refined in order to adjust this installation and these textures. Easily achievable and reproducible, it can be redone as soon as the professional and family carers who participate in the meals realize that the person is not eating with pleasure, comfort and safety.

预防残疾人的吞咽障碍需要在整个用餐过程中弯曲颈部,并使食物和饮料的质地适应残疾人的能力。这种简单但完整的评估可以收集所有信息,这些信息将使用餐期间的观察得以改进,以调整这种装置和这些纹理。它易于实现和复制,只要参与用餐的专业和家庭护理人员意识到这个人没有愉快、舒适和安全地用餐,就可以重新制作。
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引用次数: 0
Un Conseil Scientifique renouvelé pour la Fondation Paralysie Cérébrale 脑瘫基金会的新科学委员会
Q4 Medicine Pub Date : 2023-03-01 DOI: 10.1016/j.motcer.2023.02.002
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引用次数: 0
Agenda 议程
Q4 Medicine Pub Date : 2023-03-01 DOI: 10.1016/j.motcer.2023.03.002
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引用次数: 0
Découvrir le fauteuil roulant électrique en établissement pour personnes adultes polyhandicapées : une opportunité de stimulation cognitive 在多残疾成年人的设施中发现电动轮椅:认知刺激的机会
Q4 Medicine Pub Date : 2023-03-01 DOI: 10.1016/j.motcer.2023.01.002
M. Albucher , A.S. Boulogne , A. Galliano , A. Hourcade , B. Deleplanque

Adults with severe cerebral palsy and restricted autonomy are able to engage in meaningful activities suitable for their locomotor abilities and appropriate to stimulate their cognitive skills. Experimental assistive mobility with an electric wheelchair is one example. Here, we present seven case reports of adults with multiple and severe disabilities, living in institutions. They were proposed training sessions, guided by a multidisciplinary team and dedicated to the discovery of using an electric wheelchair. We show that the learning milestones that are described in children with motor deficiency when beginning to use an electric wheelchair are also observed in our adults. For each individual, depending on the severity of his/her neurological damage, this experiment revealed the level (exploratory or operative) of cognitive ability that was reached after training. For all of them, the discovery of a self-initiated mobility was a source of intense emotional and attentional mobilisation.

患有严重脑瘫和自主性受限的成年人能够从事适合其运动能力和适当刺激其认知技能的有意义的活动。电动轮椅辅助行动的实验就是一个例子。在这里,我们提供了七份居住在机构中的患有多重和严重残疾的成年人的病例报告。他们被提议参加培训课程,由一个多学科团队指导,致力于发现使用电动轮椅的方法。我们发现,在开始使用电动轮椅时,运动缺陷儿童的学习里程碑也在我们的成年人身上观察到。对于每个人,根据其神经损伤的严重程度,本实验揭示了训练后达到的认知能力水平(探索性或操作性)。对他们所有人来说,自我启动的流动性的发现是强烈的情绪和注意力调动的来源。
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引用次数: 0
Éditorial
Q4 Medicine Pub Date : 2023-03-01 DOI: 10.1016/j.motcer.2023.03.001
P. Toullet (Rédacteur en chef)
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引用次数: 0
Prise en charge motrice précoce : place des thérapies neuromotrices au cœur du débat scientifique 早期运动治疗:神经运动疗法在科学辩论中的地位
Q4 Medicine Pub Date : 2022-12-01 DOI: 10.1016/j.motcer.2022.10.008
M. Collet

Neuromotor therapies, without belonging to a consensual definition, designate a heterogeneous set of rehabilitation proposals and are known and practiced by the majority of therapists working with children suffering from cerebral palsy. These therapies also sometimes simply inspire and complete the therapist's proposals. Nowadays, the evidence based practice model is challenging the use of these rehabilitative therapies. Indeed, the choice of a therapy is made according to a triptych made up of the skills and aspirations of the professional, but also according to the wishes of the parents and the child with cerebral palsy and the best available research data. The current scientific trends are not yet clear concerning the interest of these therapies for young children. There is a lack of evidence, due to the paucity of consensus concerning the description and practical implementation of the therapies, and also due to the deficiency of rigorous studies on which to base recommendations.

神经运动疗法,不属于一个共识的定义,指定了一套不同的康复建议,并为大多数治疗脑瘫儿童的治疗师所熟知和实践。这些疗法有时也只是激发和完善治疗师的建议。如今,基于证据的实践模式正在挑战这些康复疗法的使用。事实上,治疗方法的选择是根据专业人员的技能和愿望,但也根据父母和脑瘫患儿的愿望以及现有的最佳研究数据组成的三联图做出的。目前的科学趋势还不清楚这些疗法对幼儿的兴趣。由于缺乏关于治疗方法的描述和实际实施的共识,也由于缺乏作为建议基础的严格研究,因此缺乏证据。
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引用次数: 0
Issue contents 问题内容
Q4 Medicine Pub Date : 2022-12-01 DOI: 10.1016/S0245-5919(22)00105-4
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引用次数: 0
Le point de vue des familles contribue àla richesse du projet ENSEMBLE 家庭的观点有助于项目的丰富性
Q4 Medicine Pub Date : 2022-12-01 DOI: 10.1016/j.motcer.2022.10.003
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引用次数: 0
Q4 Medicine Pub Date : 2022-12-01 DOI: 10.1016/j.motcer.2022.11.002
La Rédaction
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引用次数: 0
Quelle utilisation du relaxateur de pression chez la personne polyhandicapée ? Un cas clinique 压力放松器对多残疾人士有什么用途?临床病例
Q4 Medicine Pub Date : 2022-12-01 DOI: 10.1016/j.motcer.2022.10.006
H. Pétremant

This case study follows the literature review entitled “What use of intermittent positive-pressure breathing in severe cerebral palsy?” published in Revue Motricité Cérébrale 434 (2022) 45–50. It aims to confront the results of literature and clinic on the impact of the use of intermittent positive-pressure breathing in severe cerebral palsy. The literature review didn’t allow clear-cut conclusions. However, it let us think that, in severe cerebral palsy, the use of intermittent positive-pressure breathing at suitable pressure levels could improve and maintain over time lung compliance, mobilize the patient's rib cage, ventilate poorly ventilated lung areas and remove atelectasis. It could also facilitate bronchial drainage by increasing the volume of air mobilized when using chest physiotherapy technics. Therefore, this clinical case study seeks to assess the impact of intermittent positive-pressure breathing in a patient with severe cerebral palsy, on his chronic bronchial congestion, his respiratory volumes, his ability to cope with an increase in the respiratory load and his quality of life as well than that of his parents.

本病例研究遵循题为“间歇性正压呼吸在重度脑瘫中的作用?”发表于《Revue motricit》(2016,34),第45-50期。它的目的是面对文献和临床结果对使用间歇正压呼吸在严重脑瘫的影响。文献综述没有给出明确的结论。然而,它让我们认为,在严重脑瘫中,在适当的压力水平下使用间歇性正压呼吸可以改善和长期维持肺顺应性,活动患者的胸腔,通气不良的肺区域并去除肺不张。采用胸腔物理治疗技术时,可通过增加空气的动员量来促进支气管引流。因此,本临床病例研究旨在评估重度脑瘫患者间歇性正压呼吸对慢性支气管充血、呼吸量、呼吸负荷增加的应对能力和生活质量的影响,以及其父母的影响。
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引用次数: 0
期刊
Motricite Cerebrale
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