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Successful self-employment in microenterprise for persons with disabilities in a rural setting. 农村残疾人在微型企业中成功自主创业。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-02-28 eCollection Date: 2025-01-01 DOI: 10.4102/ajod.v14i0.1564
Luther L Monareng, Mogammad S Soeker, Deshini Naidoo

Background: Persons with disabilities are involved in self-employment (vocational rehabilitation) in microenterprises despite key role players not making valuable contributions or using self-employment as a placement option.

Objectives: This research aimed to explore profitable self-employment microenterprises for persons with disabilities in rural South Africa.

Method: This qualitative research study was conducted in a rural community in KwaZulu-Natal province, South Africa. Purposive and snowball sampling were used to recruit 10 persons with disabilities running profitable microenterprises for an average of 5 years each. Data were collected using a piloted question guide in a face-to-face interview. Thematic analysis followed the hybrid inductive and deductive approaches.

Results: Persons with disabilities participated, and 9 out of 10 were males. Two themes emerged. Theme one: Running microenterprises - self-initiated and maintained. They use their hands and minds to start microenterprises that benefit them and their families. Theme two: Multiple key role players should be involved in self-employment. Persons with disabilities perceive various key role players and themselves as having an active role in self-employment to benefit their microenterprises.

Conclusion: Persons with disabilities in a rural setting engage in successful self-employment in microenterprises, which they self-initiate and maintain. Roles and responsibilities of persons with disabilities and key role players in and outside the hospital setting are crucial for those in self-employment.

Contribution: This research generated contextual data towards the under-researched subject on self-employment for persons with disabilities.

背景:残疾人参与微型企业的自营职业(职业康复),尽管关键角色没有作出有价值的贡献或将自营职业作为一种安置选择。目的:本研究旨在探索南非农村残疾人自营微型企业的盈利性。方法:本定性研究在南非夸祖鲁-纳塔尔省的一个农村社区进行。采用目的抽样和滚雪球抽样的方法,招募了10名残疾人,每个人平均5年经营盈利的微型企业。数据是在面对面访谈中使用试点问题指南收集的。主题分析采用归纳和演绎相结合的方法。结果:残障人士参与,10人中有9人为男性。出现了两个主题。主题一:办微企业——自主、维护。他们用自己的双手和头脑创办微型企业,使他们和他们的家庭受益。主题二:自主创业需要多个关键角色的参与。残疾人认为各种关键角色和他们自己在自营职业中发挥积极作用,使他们的微型企业受益。结论:农村环境中的残疾人在他们自己创办和维持的微型企业中成功地自主创业。残疾人和医院内外关键角色的作用和责任对自营职业者至关重要。贡献:本研究为残障人士自雇这一研究不足的课题提供了背景数据。
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引用次数: 0
Barriers, facilitators of sports participation and needs of South African Paralympians. 障碍,促进体育参与和南非残奥会运动员的需要。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-02-28 eCollection Date: 2025-01-01 DOI: 10.4102/ajod.v14i0.1532
Siyabonga H Kunene

Background: Despite the transformation initiatives, the inclusion of people with disabilities in sports remains a challenge. Athletes with disabilities (AWDs) in low- and medium-socioeconomic countries are still being left behind, including in South Africa. They are facing various challenges.

Objectives: This study aimed to explore barriers and facilitators to sports participation and the needs of AWDs.

Method: This was a qualitative study design based on semi-structured interviews. Interviews were conducted with South African Paralympians. Permission was obtained from a physical disability association. Ethical clearance was issued by the University of the Witwatersrand Human Research Ethics Committee. An interview schedule with predetermined questions was used to guide the interviews. Interviews were held face-to-face or online from 20 min to 30 min per interview. All participants gave consent. The data were transcribed verbatim and analysed in themes deductively.

Results: A total of 23 athletes participated, 12 of which were females and 11 were males. Participants were mostly Africans (n = 23) with a mean age of 26 years. All had over 5 years of sporting experience. Barriers included: Social stigma, a lack of disability awareness, limited opportunities to participate in sports; limited access to resources and services. Facilitators included: health; belonging; fulfilment, winning, and support from loved ones.

Conclusion: Results showed a need to scale up disability inclusion, especially regarding the rendering of healthcare services and making resources available.

Contribution: This article provides knowledge that may be useful as a baseline for developing a suitable intervention for AWDs.

背景:尽管采取了转型举措,但将残疾人纳入体育运动仍然是一项挑战。在包括南非在内的中低收入社会经济国家,残疾运动员仍然被抛在后面。他们面临着各种各样的挑战。目的:本研究旨在探讨残疾儿童参与体育活动的障碍和促进因素以及残疾儿童的需求。方法:采用半结构化访谈的定性研究设计。对南非残奥会运动员进行了采访。已获得身体残疾协会的许可。伦理许可是由威特沃特斯兰德大学人类研究伦理委员会颁发的。面试时采用预先确定问题的面试时间表来指导面试。面试进行面对面或在线,每次面试20到30分钟。所有参与者都表示同意。这些数据被逐字记录下来,并在主题中进行演绎分析。结果:共有23名运动员参加,其中女12名,男11名。参与者大多是非洲人(n = 23),平均年龄为26岁。他们都有超过5年的运动经验。障碍包括:社会耻辱、缺乏对残疾的认识、参加体育运动的机会有限;获得资源和服务的机会有限。促进因素包括:卫生;归属感;成就、胜利和来自亲人的支持。结论:结果表明,需要扩大残疾人包容性,特别是在提供医疗保健服务和提供资源方面。贡献:本文提供的知识可能有助于为awd开发合适的干预措施。
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引用次数: 0
Measuring and addressing violence against women with disabilities in Africa. 衡量和解决非洲针对残疾妇女的暴力行为。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-02-24 eCollection Date: 2025-01-01 DOI: 10.4102/ajod.v14i0.1576
Clifford Odimegwu, Obasanjo A Bolarinwa, Yusuff Adebisi

Violence against women with disabilities (VAWDs) in Africa is a significant issue, with women facing higher risks of domestic, sexual and gender-based violence. However, data on VAWD are scarce, hindering effective policy development. Challenges include the lack of disaggregated data by sex and disability, methodological gaps and the absence of culturally relevant measurement tools. Common tools such as the Washington Group Short Set on Functioning often miss important nuances. To improve data accuracy, integrating comprehensive disability measures into national surveys and developing context-specific tools are essential. Accurate data are crucial for creating policies to reduce violence and protect women with disabilities in Africa.

在非洲,针对残疾妇女的暴力是一个重大问题,妇女面临着更高的家庭暴力、性暴力和基于性别的暴力风险。然而,关于VAWD的数据很少,阻碍了有效的政策制定。挑战包括缺乏按性别和残疾分列的数据、方法上的差距以及缺乏与文化相关的衡量工具。常见的工具,如华盛顿小组功能短集,往往忽略了重要的细微差别。为了提高数据的准确性,将全面的残疾措施纳入国家调查并开发针对具体情况的工具至关重要。准确的数据对于制定减少非洲暴力和保护残疾妇女的政策至关重要。
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引用次数: 0
Stigma reduction in a disability and mental health programme in Ghana: Lessons in participation. 加纳残疾和心理健康方案中减少耻辱:参与方面的经验教训。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-01-31 eCollection Date: 2025-01-01 DOI: 10.4102/ajod.v14i0.1508
Maria Zuurmond, Augustina Naami, Lyla Adwan-Kamara, Cathy Stephen, Sapana Basnet, Caroline Vanderick, Mohammed Chantimah, Abigail Nana Asamoah, Daisy Macdonald, Crick Lund

Background: Stigma is a barrier to inclusion for people with disabilities and mental health conditions. There is increasing recognition of the need to address stigma within disability inclusive programmes, but limited research is available on what are effective participatory approaches to stigma reduction interventions.

Objectives: (1) To document participatory approaches used in the design and delivery of disability stigma reduction interventions in a disability and mental health programme in Ghana and (2) to understand the experience of programme implementers and participants in these processes, with particular attention to the leadership and involvement of people with disabilities.

Method: A mixed-methods study was conducted. The data were drawn from a purposive sample of 20 in-depth interviews (IDIs) with programme staff, partners and key stakeholders, and 12 focus group discussions (FGDs) with self-help group (SHG) members, organisation of people with disabilities (OPD) members, and disability champions. We conducted thematic analysis using deductive and inductive approaches.

Results: The programme adopted several approaches to participation at design and implementation stages, with a focus on the leadership of people with disabilities and people with mental health conditions. The process was seen to promote acceptability of stigma reduction approaches. Providing opportunities for building and strengthening relationships with a wide range of stakeholders was key to successful implementation. Understanding, and engaging with, power dynamics in the local context also provided important benefits.

Conclusions: Participation of people with disabilities and mental health conditions is essential for the design and delivery of stigma reduction programmes in Ghana.

Contribution: This study provided lessons from the field on the value of participation in reducing stigma, and the role of key stakeholders, particularly people with disabilities and mental health conditions.

背景:耻辱感是残疾人和精神健康状况患者融入社会的障碍。人们越来越认识到有必要在残疾包容性规划中解决耻辱感问题,但关于减少耻辱感干预措施的有效参与性方法的研究有限。目标:(1)记录在加纳残疾和心理健康方案中设计和实施减少残疾污名干预措施时使用的参与性方法;(2)了解方案执行者和参与者在这些进程中的经验,特别注意残疾人的领导和参与。方法:采用混合方法进行研究。数据来自一个有目的的样本,其中包括20次与项目工作人员、合作伙伴和主要利益相关者的深度访谈(IDIs),以及12次与自助小组(SHG)成员、残疾人组织(OPD)成员和残疾人倡导者的焦点小组讨论(fgd)。我们使用演绎和归纳的方法进行主题分析。结果:该方案在设计和实施阶段采取了几种参与办法,重点是残疾人和有精神健康问题的人的领导。这一过程被视为促进污名减少方法的可接受性。为与广泛的利益攸关方建立和加强关系提供机会是成功实施的关键。了解并参与当地的权力动态也提供了重要的好处。结论:在加纳,残疾人和有精神健康问题的人的参与对于设计和实施减少耻辱的方案至关重要。贡献:本研究提供了实地的经验教训,说明了参与减少耻辱的价值,以及主要利益攸关方,特别是残疾人和精神健康状况者的作用。
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引用次数: 0
Fragmented care in lupus: Patient experiences and insights. 狼疮的碎片化护理:患者经验和见解。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-01-28 eCollection Date: 2025-01-01 DOI: 10.4102/ajod.v14i0.1562
Armand Bam

Background: Systemic lupus erythematosus (SLE) is a complex autoimmune disease requiring interprofessional collaborative care because of its varied manifestations. This study explores the experiences of individuals living with SLE regarding the communication and collaboration among their healthcare providers.

Objectives: This study aimed to explore the communication dynamics that shape treatment experiences and well-being in SLE care.

Method: A qualitative multiple case study design was used, with thematic analysis of semi-structured interviews from six people living with SLE.

Results: Three primary themes emerged: the necessity of cohesive healthcare teams, the centrality of client-centred care and the significant challenges posed by fragmented healthcare systems.

Conclusion: The study highlights the need for integrated care models to enhance communication and coordination among healthcare providers.

Contribution: This research adds empirical insights into the communication dynamics within medical teams managing SLE, advocating for client-centred and systemic improvements in care coordination.

背景:系统性红斑狼疮(SLE)是一种复杂的自身免疫性疾病,由于其多种表现,需要跨专业合作治疗。本研究探讨了SLE患者在医疗服务提供者之间的沟通和协作方面的经验。目的:本研究旨在探讨SLE护理中影响治疗体验和幸福感的沟通动态。方法:采用定性多案例研究设计,对6例SLE患者的半结构化访谈进行专题分析。结果:出现了三个主要主题:凝聚力医疗团队的必要性,以客户为中心的护理和碎片化医疗系统带来的重大挑战。结论:本研究强调了综合护理模式的必要性,以加强医疗服务提供者之间的沟通和协调。贡献:本研究为管理SLE的医疗团队中的沟通动态增加了实证见解,倡导以客户为中心和系统地改进护理协调。
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引用次数: 0
Corrigendum: A programme of support for care assistants of children admitted with cerebral palsy. 更正:为脑瘫入院儿童护理助理提供支持的方案。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-01-13 eCollection Date: 2025-01-01 DOI: 10.4102/ajod.v14i0.1649
Lebogang L Molefe, Leepile A Sehularo, Magdalena P Koen

[This corrects the article DOI: 10.4102/ajod.v13i0.1461.].

[这更正了文章DOI: 10.4102/ajod.v13i0.1461.]。
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引用次数: 0
Developing teachers' competency for inclusive education in Ethiopia. 发展埃塞俄比亚教师的全纳教育能力。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-20 eCollection Date: 2024-01-01 DOI: 10.4102/ajod.v13i0.1383
Aschalew T Kebede, Tlakale N Phasha

Background: In light of the increasing diversity within school populations globally, a pressing need arises for nations to prioritise the enhancement of teachers' competencies in implementing inclusive education, recognising the central role teacher education programmes play in addressing this imperative. Teacher education programmes centred on inclusion not only respond to this global priority but also wield influence on teachers' attitudes, self-efficacy and stress levels when engaging with diverse learners.

Objectives: The study presents an analysis of the effectiveness of a teacher education programme in Ethiopia in developing teachers' competencies for inclusion.

Method: Using a sequential explanatory mixed-methods research design, involving 159 teachers, data were collected through questionnaires (n = 152) and individual interviews (n = 7). Quantitative data were analysed using SPSS, and qualitative data underwent thematic analysis. This approach ensures a nuanced examination of the research question with precision and depth.

Results: Findings highlight challenges in the Ethiopian teacher education system, revealing a significant lack of provision of sufficient knowledge to empower teachers to understand inclusion. The inadequacy extends to the influence on teachers' attitudes towards inclusion, as well as the insufficient exposure to practical, hands-on experiences essential for addressing diverse learning needs.

Conclusion: The challenges faced by teacher training in Ethiopia, evident in its struggle to align with global standards for supporting teachers in implementing inclusive education, necessitate urgent and substantial reforms.

Contribution: Addressing the gaps in understanding inclusion, fostering positive attitudes and enhancing practical experiences necessitating a comprehensive overhaul of teacher education curricula and practices.

背景:鉴于全球学校人口日益多样化,各国迫切需要优先考虑提高教师实施全纳教育的能力,认识到教师教育计划在解决这一问题方面的核心作用。以包容为中心的教师教育方案不仅响应了这一全球优先事项,而且还对教师在与不同学习者接触时的态度、自我效能和压力水平产生了影响。目的:本研究分析了埃塞俄比亚教师教育项目在培养教师包容性能力方面的有效性。方法:采用序贯解释混合方法研究设计,对159名教师进行问卷调查(n = 152)和个别访谈(n = 7),采用SPSS软件对定量数据进行分析,对定性数据进行专题分析。这种方法确保了对研究问题进行精确和深入的细致检查。结果:调查结果突出了埃塞俄比亚教师教育系统面临的挑战,揭示了教师缺乏足够的知识来理解包容性。这种不足还影响到教师对包容性的态度,以及对解决各种学习需求所必需的实际实践经验的接触不足。结论:埃塞俄比亚教师培训面临的挑战表明,该国在支持教师实施全纳教育方面努力与全球标准保持一致,因此有必要进行紧急和实质性的改革。贡献:解决理解包容方面的差距,培养积极态度,加强实践经验,从而全面改革教师教育课程和实践。
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引用次数: 0
South African parents' views on oral, signing, and bilingual communication for Deaf or hard-of-hearing children. 南非父母对聋哑或听障儿童口头、手语和双语交流的看法。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-20 eCollection Date: 2024-01-01 DOI: 10.4102/ajod.v13i0.1511
Katijah Khoza-Shangase, Jasmine Bent

Background: Parents of Deaf or hard-of-hearing (DHH) children are faced with a plethora of overwhelming decisions concerning their children, particularly during the early stages of development. Among these decisions are those concerning assistive devices and the modes of communication for their child.

Objectives: The aim of this study was to explore the perceptions of parents of DHH children towards the various modes of communication for their children within the South African context.

Method: The study adopted a Q-methodology research design. Participants rated statements according to what they least and most agree with and then answered follow-up questions concerning the statements. Participants were also invited to participate in a live, one-on-one, semi-structured interview with the researcher. Data were analysed through both qualitative and quantitative statistics. Thematic analysis was adopted to analyse the qualitative data, while factor analysis through Ken-Q analysis was used for quantitative data.

Results: Although 66% of participants thought that sign language allows DHH children to communicate more freely, 88% agreed that a DHH child should always learn to speak if they can. In terms of decision-making, 88% reported the issue of stigma or marginalisation and 88% cited the lack of Deaf schools as barriers in their decision-making.

Conclusion: The study's findings provide valuable insights into the complex interplay of factors influencing communication mode decisions for DHH children in South Africa.

Contribution: These insights are crucial for developing inclusive and effective communication strategies that consider individual needs, societal norms and access to support services.

背景:聋哑或听力障碍儿童(DHH)的父母面临着关于他们孩子的大量压倒性的决定,特别是在发展的早期阶段。在这些决定中,有一些是关于辅助设备和他们孩子的交流方式的。目的:本研究的目的是探讨在南非的背景下,DHH儿童的父母对他们孩子的各种交流模式的看法。方法:采用q -方法学研究设计。参与者根据他们最不同意和最不同意的内容对陈述进行评级,然后回答有关陈述的后续问题。参与者还被邀请与研究人员进行一对一的半结构化现场访谈。通过定性和定量统计对数据进行分析。定性数据采用专题分析,定量数据采用kenq分析法进行因子分析。结果:虽然66%的参与者认为手语可以让DHH儿童更自由地交流,但88%的人同意DHH儿童应该在可能的情况下学习说话。在决策方面,88%的人报告了耻辱或边缘化的问题,88%的人认为缺乏聋人学校是他们决策的障碍。结论:研究结果为了解影响南非DHH儿童沟通模式决策的复杂因素的相互作用提供了有价值的见解。贡献:这些见解对于制定考虑到个人需求、社会规范和获得支持服务的包容性和有效的沟通战略至关重要。
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引用次数: 0
Starting a cultural collective for mothers of children with disabilities: A case study. 为残疾儿童的母亲创办一个文化集体:一个案例研究。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-18 eCollection Date: 2024-01-01 DOI: 10.4102/ajod.v13i0.1367
Solfrid Raknes, Siv Elin N Sæbjørnsen, Hege C Aarlie, Thrine Marie N Bromstad, Mariana J Makuu, Caroline Yamala, Sarah Hean

Background: Caring for children with disabilities in Tanzania involves significant challenges, including stigma, limited support and mental health risks. A cultural collective for caretakers of children with disabilities enrolled at a primary school was established to address these issues.

Objectives: The study aims to explore the experiences of caregivers who started a cultural collective and to assess its impact on their lives in the short term.

Method: This study used a community-based participatory research (CBPR) approach with a sequential mixed-methods design. Data were collected over a period of 8 weeks, while the participants in this study established a collective in Dar es Salaam. Quantitative data were analysed using descriptive statistics, and qualitative data were analysed using Braun and Clarke's method for thematic analysis.

Results: As assessed by a validated and normed questionnaire, Patient Health Questionnaire-9 (PHQ-9), 63% of the caregivers showed signs of depression before starting work in the collective. Economic needs, education and the desire for support were the primary motivations for joining. Starting the collective improved social support, fostered agency and began to enhance caregivers' financial conditions.

Conclusion: The collective addressed caregivers' needs for economic improvement, social support and mental support, and the experience was vitalising for the caretakers.

Contribution: This study deepens our understanding of holistic interventions for children with disabilities and their families in urban Africa. It offers valuable insights into a crucial stage of developing contextually relevant interventions for vulnerable, poverty-stricken populations. It provides a model that can be adapted for similar interventions in comparable contexts.

背景:在坦桑尼亚照顾残疾儿童涉及重大挑战,包括耻辱、有限的支持和心理健康风险。为解决这些问题,为小学入学的残疾儿童的照料者建立了一个文化集体。目的:本研究旨在探讨开办文化集体的照顾者的经验,并评估其在短期内对其生活的影响。方法:本研究采用基于社区的参与性研究(CBPR)方法,采用顺序混合方法设计。数据收集时间为8周,而本研究的参与者在达累斯萨拉姆建立了一个集体。定量数据采用描述性统计分析,定性数据采用Braun和Clarke的专题分析方法。结果:通过一份经过验证和规范的患者健康问卷-9 (PHQ-9)进行评估,63%的护理人员在开始集体工作前表现出抑郁迹象。经济需要、教育和对支持的渴望是加入的主要动机。集体活动的开展改善了社会支持,促进了代理,并开始改善照顾者的经济状况。结论:集体活动满足了照顾者在经济发展、社会支持和精神支持方面的需求,对照顾者有一定的启发作用。贡献:本研究加深了我们对非洲城市残疾儿童及其家庭的整体干预措施的理解。它为制定针对脆弱和贫困人口的与环境相关的干预措施的关键阶段提供了宝贵的见解。它提供了一种模式,可适用于类似背景下的类似干预措施。
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引用次数: 0
Promoting playfulness through a play-based occupational therapy intervention: A study protocol. 通过以游戏为基础的职业治疗干预促进游戏:一项研究方案。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-18 eCollection Date: 2024-01-01 DOI: 10.4102/ajod.v13i0.1415
Gaby Rautenbach, Munira Hoosain, Moleen Zunza, Nicola Plastow

Background: Play is integral to optimal childhood development. Occupational therapists often use play to improve play skills. However, when it comes to learners with autism spectrum disorder (ASD) in South Africa, there is limited research regarding play-based interventions that address the underlying motivators of play, namely, social play and playfulness.

Objectives: In this study, the authors present a rationale for the development of a protocol for a study aiming to measure the impact of the Playbox Africa Intervention. This is a play-based occupational therapy intervention with the aim of enhancing the playfulness, social play and occupational performance of South African children with ASD.

Method: The study will utilise a within-subject, repeated measures design and will be implemented over 16 weeks with 8-10 learners (aged 3-8 years) with ASD attending a developmental-centre environment in Johannesburg, South Africa. The playfulness and social play of the learners will be assessed using the Test of Playfulness (ToP). The modified Canadian Occupational Performance Measure (M-COPM) will be used to measure occupational performance factors.

Results: Given that this protocol outlines an intervention that has not yet been implemented, there are no results to report on.

Conclusion: The development of this protocol could encourage the adaption of existing play-based protocols, for children with ASD, perhaps within different settings or varying support needs.

Contribution: Additionally, it could lay the foundation for future clinical trials and culturally relevant play-based interventions to be developed in the South African special needs context.

背景:游戏是儿童最佳发展不可或缺的一部分。职业治疗师经常用游戏来提高游戏技能。然而,当涉及到南非的自闭症谱系障碍(ASD)学习者时,关于以游戏为基础的干预措施的研究有限,这些干预措施涉及游戏的潜在动机,即社交游戏和可玩性。目的:在这项研究中,作者提出了一项旨在衡量Playbox非洲干预影响的研究方案的基本原理。这是一个以游戏为基础的职业治疗干预,旨在提高南非自闭症儿童的游戏性、社交游戏和职业表现。方法:该研究将采用受试者内部重复测量设计,并将在南非约翰内斯堡的一个发展中心环境中对8-10名ASD学习者(3-8岁)进行为期16周的实施。学习者的游戏性和社交性将使用游戏性测试(ToP)进行评估。修改后的加拿大职业绩效量表(M-COPM)将用于衡量职业绩效因素。结果:鉴于本方案概述了尚未实施的干预措施,因此没有结果可报告。结论:该方案的发展可能会鼓励现有的基于游戏的ASD儿童方案的适应,可能在不同的环境或不同的支持需求中。贡献:此外,它可以为未来的临床试验奠定基础,并在南非特殊需要背景下制定与文化相关的基于游戏的干预措施。
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引用次数: 0
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African Journal of Disability
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