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Deficits in socialization and daily living skills associated with gastrointestinal symptoms in children with autism spectrum disorder 自闭症谱系障碍儿童胃肠道症状相关的社交和日常生活技能缺陷
IF 0.9 4区 医学 Q3 Medicine Pub Date : 2021-06-07 DOI: 10.1080/02739615.2021.1925117
Harry M. Voulgarakis, C. Saulnier, D. Bendell-Estroff, J. Bush, T. Field
ABSTRACT Recent research has demonstrated greater prevalence of gastrointestinal (GI) symptoms in children with autism spectrum disorder (ASD) as compared to their typically developing peers. While there is an existing body of research that examines behavioral correlates of ASD and GI symptoms, few specifically examine social and adaptive profiles in this context. The aim of the current study was to identify correlations between social and adaptive skills in children with ASD, with the endorsement of GI symptoms. Significant correlations were found between GI symptoms and overall adaptive functioning, socialization, and daily living skills. No significant correlations were found between GI symptoms and communication skills, motor skills, or ADOS-2 severity scores. Strengths, limitations, and directions for future research are discussed.
最近的研究表明,与正常发育的同龄人相比,自闭症谱系障碍(ASD)儿童胃肠道(GI)症状的患病率更高。虽然现有的研究机构研究了ASD和胃肠道症状的行为相关性,但很少有人专门研究在这种情况下的社会和适应概况。当前研究的目的是在胃肠道症状的支持下,确定自闭症儿童的社交技能和适应技能之间的相关性。胃肠道症状与整体适应功能、社会化和日常生活技能之间存在显著相关性。胃肠道症状与沟通技能、运动技能或ADOS-2严重程度评分之间未发现显著相关性。讨论了未来研究的优势、局限和方向。
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引用次数: 1
A systematic review of online parent-implemented interventions for children with neurodevelopmental disorders 网络父母实施的神经发育障碍儿童干预措施的系统综述
IF 0.9 4区 医学 Q3 Medicine Pub Date : 2021-04-16 DOI: 10.1080/02739615.2021.1886934
Kim M. Tan-MacNeill, I. Smith, Shannon A. Johnson, J. Chorney, P. Corkum
ABSTRACT Online parent-implemented interventions may increase treatment accessibility and reduce health care services burden by enabling parents of children with neurodevelopmental disorders (NDD) to implement treatments at home. This systematic review identified and evaluated the quality of evidence for the efficacy of online parent-implemented interventions for children with Autism Spectrum Disorder (ASD), Attention-Deficit/Hyperactivity Disorder (ADHD), Cerebral Palsy (CP), and Fetal Alcohol Spectrum Disorder (FASD). Twelve interventions were identified targeting a range of behaviors (ASD = 8, ADHD = 3, FASD = 1). Preliminary evidence suggests that online parent-implemented interventions are promising for children with these diagnoses, but require more rigorous, large-scale research as study quality was poor overall.
在线父母实施的干预措施可以增加治疗的可及性,并通过使患有神经发育障碍(NDD)儿童的父母在家中实施治疗来减轻医疗保健服务负担。本系统综述确定并评估了父母实施的在线干预对患有自闭症谱系障碍(ASD)、注意缺陷/多动障碍(ADHD)、脑瘫(CP)和胎儿酒精谱系障碍(FASD)的儿童的有效性的证据质量。针对一系列行为(ASD = 8, ADHD = 3, FASD = 1)确定了12种干预措施。初步证据表明,在线父母实施的干预措施对患有这些诊断的儿童很有希望,但由于研究质量总体较差,需要更严格、更大规模的研究。
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引用次数: 8
Parents’ experiences of children’s health care for hypermobile Ehlers–Danlos syndrome and hypermobility spectrum disorders 多动性ehers - danlos综合征和多动性谱系障碍患儿家长保健经验
IF 0.9 4区 医学 Q3 Medicine Pub Date : 2021-04-15 DOI: 10.1080/02739615.2021.1960165
Lauren Bell, G. Pearce
ABSTRACT Hypermobile Ehlers–Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD) are underdiagnosed hereditary connective tissue disorders requiring health care across specialties. Using mixed methods, we explored how parents have experienced children’s health care for hEDS/HSD. Surveyed parents (N = 297) reported varying experiences, though professional understanding was negatively appraised by most parents. Themes identified from interviews (n = 13) were: (1) awareness and understanding are fundamental, (2) the importance of the therapeutic relationship, (3) limitations of healthcare systems, and (4) diagnostic labels are meaningful. Findings suggest that achieving person-centered care may broadly improve health care for families with hEDS/HSD.
多动性ehers - danlos综合征(hEDS)和多动性谱系障碍(HSD)是未被诊断的遗传性结缔组织疾病,需要跨专业的医疗保健。采用混合方法,我们探讨了父母如何体验儿童对hEDS/HSD的保健。接受调查的父母(N = 297)报告了不同的经历,尽管大多数父母对专业理解持负面评价。从访谈(n = 13)中确定的主题是:(1)意识和理解是基本的,(2)治疗关系的重要性,(3)医疗保健系统的局限性,(4)诊断标签是有意义的。研究结果表明,实现以人为本的护理可以广泛改善hEDS/HSD家庭的卫生保健。
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引用次数: 7
The impact of trauma exposure on headache outcomes 创伤暴露对头痛结果的影响
IF 0.9 4区 医学 Q3 Medicine Pub Date : 2021-04-14 DOI: 10.1080/02739615.2021.1913163
Morgan Rittenberger, Sarah Ostrowski-Delahanty, K. Woods
ABSTRACT Limited research exists regarding the relationship between trauma exposure and headache in youth despite the knowledge that pain symptoms often occur with persistent traumatic stress. This study examined the relationship between trauma exposure and headache outcomes in youth via retrospective chart review for 95 participants evaluated through a multidisciplinary headache clinic in a children’s hospital. Youth with trauma exposure were more likely to report chronic and daily headaches, greater severity in headache disability, and more frequent headaches than youth without trauma history. Our results indicate the importance of screening as trauma exposure may contribute to headache outcomes and headache-related disability.
摘要:尽管人们知道持续的创伤压力往往会导致疼痛症状,但关于创伤暴露与青少年头痛之间关系的研究有限。这项研究通过对儿童医院多学科头痛诊所评估的95名参与者的回顾性图表审查,检验了创伤暴露与青少年头痛结果之间的关系。与没有创伤史的年轻人相比,有创伤暴露的年轻人更有可能报告慢性和日常头痛,头痛残疾更严重,头痛更频繁。我们的研究结果表明了筛查的重要性,因为创伤暴露可能会导致头痛结果和头痛相关残疾。
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引用次数: 0
Barriers impacting organizational immunization policy implementation in U.S. and Canadian summer camps 影响美国和加拿大夏令营组织免疫政策实施的障碍
IF 0.9 4区 医学 Q3 Medicine Pub Date : 2021-04-03 DOI: 10.1080/02739615.2020.1870118
B. Garst, Alexsandra Dubin, C. Bunke, Natalie Schellpfeffer, T. Gaslin, Michael Ambrose, Andrew N. Hashikawa
ABSTRACT While immunization practice guidelines for children have been applied within primary schools, little research exists about how immunization practice guidelines are applied within summer camp settings and barriers to policy implementation within those settings. To identify perceived barriers to effective immunization policy implementation in summer camps, data were collected from a purposeful sample of 925 unique summer camp representatives using the CampDoc.com online electronic health record system. Fifty-nine percent (n = 541) of the sample completed an open-ended question about immunization policy barriers, including directors (38%, n = 205), nurses (26%, n = 140), other (20%, n = 106), office staff (13%, n = 73), and physicians (3%, n = 17). Inductive analyses and coder triangulation were used to develop themes. Constructed themes included a lack of parental support for vaccination, difficulties collecting and verifying immunization documentation, variable immunization policy guidelines, immunization exemptions, and organizational focus on financial outcomes. In addition, one-fifth of responding camps perceive no barriers. Camp administrators should work with pediatricians to implement clear and consistent immunization policies emphasizing parent education and informed by local and state guidelines.
虽然儿童免疫实践指南已经在小学中应用,但关于免疫实践指南如何在夏令营环境中应用以及在这些环境中实施政策的障碍的研究很少。为了确定在夏令营中有效实施免疫政策的感知障碍,使用CampDoc.com在线电子健康记录系统从925个独特的夏令营代表中收集数据。59% (n = 541)的样本完成了关于免疫政策障碍的开放式问题,包括主任(38%,n = 205)、护士(26%,n = 140)、其他(20%,n = 106)、办公室工作人员(13%,n = 73)和医生(3%,n = 17)。采用归纳分析和编码器三角法开发主题。构建的主题包括缺乏父母对疫苗接种的支持,收集和验证免疫文件的困难,可变的免疫政策指南,免疫豁免以及组织对财务结果的关注。此外,五分之一的回应营地认为没有障碍。营地管理人员应与儿科医生合作,实施明确和一致的免疫政策,强调家长教育,并根据地方和州的指导方针。
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引用次数: 3
Assessing mental health in children and adolescent with MTHFR polymorphisms: psychiatric disorders, executive functioning, and symptom profile in a Turkish clinical sample 评估患有MTHFR多态性的儿童和青少年的心理健康:土耳其临床样本中的精神障碍、执行功能和症状概况
IF 0.9 4区 医学 Q3 Medicine Pub Date : 2021-04-03 DOI: 10.1080/02739615.2021.1871616
Onur Tuğçe Poyraz Fındık, Duygu Murat, Funda Gümüştaş, Ayşe Rodopman Arman, I. Özer
ABSTRACT This study investigated behavioral phenotype, executive functions profile, and the existence of comorbid psychiatric disorders in children and adolescents with methylenetetrahydrofolate reductase (MTHFR) polymorphisms admitted to pediatric metabolism outpatient clinic. Internalizing problems, especially somatic complaints were common in patients with MTHFR. More than half of the cases had emotional control and initiating problems as executive function deficits. Attention-deficit/hyperactivity disorder was the most common psychiatric diagnosis, followed by anxiety disorder. Current findings emphasize that health care providers should be aware of the mental health needs of cases with MTHFR polymorphism in order to make plans of integrative physical and mental health care.
摘要:本研究调查了儿科代谢门诊收治的亚甲基四氢叶酸还原酶(MTHFR)多态性儿童和青少年的行为表型、执行功能概况和共病精神障碍的存在。内化问题,尤其是躯体抱怨在MTHFR患者中很常见。超过一半的病例有情绪控制和执行功能缺陷的初始问题。注意力缺陷/多动障碍是最常见的精神诊断,其次是焦虑症。目前的研究结果强调,卫生保健提供者应了解MTHFR多态性病例的心理健康需求,以便制定综合身心卫生保健计划。
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引用次数: 0
The relationships of parent- and child-related psychiatric conditions with oppositional defiant disorder and conduct disorder symptoms in children with ADHD 父母及儿童相关精神状况与ADHD儿童对立违抗障碍及行为障碍症状的关系
IF 0.9 4区 医学 Q3 Medicine Pub Date : 2021-04-01 DOI: 10.1080/02739615.2021.1894938
A. Bilgiç, N. Uzun, Ü. Işık, S. Açıkel, Fatma Çoşkun, Ö. Akça
ABSTRACT This cross-sectional study evaluated the impacts of maternal and paternal affective temperament traits, maternal and paternal ADHD, depression and anxiety symptoms, parenting styles, child’s depression and anxiety disorder symptoms, and child’s autistic traits on the oppositional defiant disorder (ODD) and conduct disorder (CD) symptoms of children with attention-deficit/hyperactivity disorder (ADHD). Analysis showed a positive relation of maternal anxious and irritable temperament and child inattention, hyperactivity–impulsivity and obsessive-compulsive disorder (OCD) scores on ODD scores. However, there was a negative relationship between parental acceptance/involvement and ODD scores. Regarding CD scores, maternal irritable and paternal cyclothymic and hyperthymic temperament scores and child ODD and autistic trait scores showed a positive relationship, whereas maternal ADHD showed a negative relationship on CD scores. Certain parental affective temperaments, parenting styles, child’s OCD and autistic traits, and maternal ADHD may be important for the severity of disruptive behavioral disorder symptoms in children with ADHD.
本研究旨在探讨父母情感气质特征、父母ADHD、抑郁焦虑症状、父母教养方式、儿童抑郁焦虑症状和儿童自闭症特征对注意缺陷/多动障碍(ADHD)儿童对立违抗障碍(ODD)和品行障碍(CD)症状的影响。分析发现,母亲焦虑易怒的性情与儿童注意力不集中、多动冲动和强迫症(OCD)得分呈正相关。然而,父母接受/参与与ODD得分呈负相关。在CD评分方面,母亲易怒、父亲躁郁、亢奋性情评分与儿童ODD、自闭症特征评分呈正相关,母亲ADHD与CD评分呈负相关。父母的某些情感气质、教养方式、孩子的强迫症和自闭症特征以及母亲的多动症可能对多动症儿童破坏性行为障碍症状的严重程度很重要。
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引用次数: 1
“Your son has Klinefelter syndrome.” How parents react to a prenatal diagnosis “你儿子得了克氏综合症。”父母对产前诊断有何反应
IF 0.9 4区 医学 Q3 Medicine Pub Date : 2021-03-29 DOI: 10.1080/02739615.2021.1903325
L. Zampini, F. Dall’ara, G. Silibello, P. Ajmone, F. Monti, C. Rigamonti, F. Lalatta, M. A. Costantino, P. Vizziello
ABSTRACT The study investigates the experience of the parents of 48 children who have prenatally diagnosed with Klinefelter syndrome [KS] using a specifically developed questionnaire. Fifty percent of the participants were satisfied with the disclosure process, particularly those who received the diagnosis by an experienced geneticist. One of the aims of genetic and psychological counseling should be showing the advantages of a gradual and early disclosure with their child and underlining the possible advantages and disadvantages of spreading the diagnosis with other people to optimize support and minimize stigmatization.
摘要:本研究使用一份专门开发的问卷调查了48名产前诊断为Klinefelter综合征(KS)儿童的父母的经历。50%的参与者对披露过程感到满意,特别是那些从经验丰富的遗传学家那里得到诊断的人。遗传和心理咨询的目标之一应该是向他们的孩子展示逐步和早期披露的好处,并强调与其他人传播诊断的可能的利弊,以优化支持和减少污名化。
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引用次数: 1
Psychological outcomes after pediatric hospitalization: the role of trauma type 儿科住院后心理结局:创伤类型的作用
IF 0.9 4区 医学 Q3 Medicine Pub Date : 2021-03-16 DOI: 10.1080/02739615.2021.1890077
M. G. Meentken, J. van der Ende, R. del Canho, I. V. van Beynum, Elisabeth W. C. Aendekerk, J. Legerstee, R. Lindauer, M. Hillegers, W. Helbing, H. Moll, E. Utens
ABSTRACT Physical injury and illness are common potentially traumatic events during childhood and adolescence. Many children experience psychosocial difficulties after medical events. The sample consisted of 399 children aged 4 to 15 who had been hospitalized for physical illness or injury. Elevated psychological symptomatology (PTSS, depression, anxiety) was more frequent after multiple (type II) compared to single (type I) medical events, but only a few differences were statistically significant. The strongest risk factor of child PTSS was parental stress. Type II trauma and low parental education were significant risk factors only for parent report of child PTSS (not for child report). The analyzed risk factors did not differ for type I versus II trauma. We recommend standardized screening and monitoring for mental health in the standard pediatric health care. Furthermore, pediatricians should be trained in signaling stress signs of parents.
身体损伤和疾病是儿童和青少年时期常见的潜在创伤性事件。许多儿童在医疗事件后经历心理社会困难。样本包括399名4至15岁的儿童,他们因身体疾病或受伤而住院。与单次(I型)医疗事件相比,多次(II型)医疗事件后心理症状(ptsd、抑郁、焦虑)升高的频率更高,但只有少数差异具有统计学意义。儿童创伤后应激障碍的最大危险因素是父母压力。II型创伤和父母教育程度低是家长报告的儿童创伤后应激障碍的显著危险因素(对儿童报告没有影响)。分析的风险因素在I型和II型创伤中没有差异。我们建议在标准的儿科卫生保健中对心理健康进行标准化筛查和监测。此外,儿科医生应该接受关于父母压力信号的培训。
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引用次数: 5
Internalized stigma and self esteem of mothers of children diagnosed with attention deficit hyperactivity disorder 被诊断为注意缺陷多动障碍儿童的母亲的内化耻辱和自尊
IF 0.9 4区 医学 Q3 Medicine Pub Date : 2021-03-04 DOI: 10.1080/02739615.2021.1891071
Ahmet Özaslan, Murat Yıldırım
ABSTRACT Evidence suggests that caregivers of children with attention deficit hyperactivity disorder (ADHD) experience greater internalized stigmatization. However, there is no evidence of how self-esteem influences the levels of internalized stigma among parents of children with ADHD in Turkey. This study investigated for the first time the relationship between internalized stigma and self-esteem of mothers of children with ADHD and examined the relationship between mothers’ internalized stigma and ADHD severity of children. The sample included mothers of 86 children (65 boys and 21 girls) diagnosed with ADHD. Age of children was between 6 and 17 years old (M = 11.05, SD = 2.62). Participants completed the Conners’ Parent Rating Scale–Revised Short Form, the Clinical Global Impression, the Parents’ Internalized Stigma of Mental Illness Scale and the Rosenberg Self-Esteem Scale. The results showed that mothers with higher education level reported lower internalized stigma, while ADHD severity of children was positively correlated with mothers’ internalized stigma level. The results also indicated that children with ADHD severity predicted a significant amount of variance in stigma. Furthermore, self-esteem uniquely predicted mother’s internalized stigma over and above the mother’s education level and ADHD severity of children. The results suggest the importance of self-esteem on internalized stigma and contribute to development of interventions focusing on the role of self-esteem on parents’ internalized stigma.
有证据表明,注意缺陷多动障碍(ADHD)儿童的照顾者经历了更大的内化污名化。然而,没有证据表明自尊如何影响土耳其多动症儿童父母的内化耻辱程度。本研究首次探讨了ADHD儿童母亲的内化耻辱与自尊的关系,并探讨了母亲的内化耻辱与儿童ADHD严重程度的关系。样本包括86名被诊断患有多动症的孩子(65名男孩和21名女孩)的母亲。儿童年龄为6 ~ 17岁(M = 11.05, SD = 2.62)。被试完成了Conners父母评定量表(修订简表)、临床总体印象量表、父母精神疾病内化污名量表和Rosenberg自尊量表。结果显示,受教育程度越高的母亲内化污名水平越低,而儿童ADHD严重程度与母亲内化污名水平呈正相关。研究结果还表明,患有ADHD严重程度的儿童在耻辱感方面有很大的差异。此外,自尊比母亲的教育水平和儿童的多动症严重程度更能预测母亲的内化耻辱。研究结果提示自尊对内化病耻感的重要性,并有助于研究自尊对父母内化病耻感的影响。
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引用次数: 10
期刊
Childrens Health Care
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