Pub Date : 2021-11-02DOI: 10.1080/02739615.2021.1997602
Kimberly Burkhart, S. Minnes, Owusua Yamoah, Ellen A. Doernberg, Sarah Balser, Timothy H. Ciesielski, A. Dimitropoulos, N. Nock, Darcy A. Freedman
ABSTRACT COVID-19-related stress effects on the caregiver and child are largely unexplored. Caregivers (N = 114) of children between the ages of 3 months and 10 years accessing Ohio child care completed a parent survey (fall 2020), and additional caregivers (N = 20) completed an interview. Caregivers reported a mean of 70 (SD = 19; scale 1–100) on COVID-19-related stress. In adjusted regression models, higher caregiver-reported COVID-19-related stress was associated with increased odds of child aggression and poor social skills. Exploratory analyses indicated that these associations may be partly mediated by the caregiver working from home and losing their temper. Qualitative findings reflect caregiver COVID-19 stress and complement quantitative findings. Caregivers and children who experience COVID-19 stress should be monitored for persistent problems.
{"title":"The effects of COVID-19-related stress among parents and children in Ohio child care programs: a mixed-methods study","authors":"Kimberly Burkhart, S. Minnes, Owusua Yamoah, Ellen A. Doernberg, Sarah Balser, Timothy H. Ciesielski, A. Dimitropoulos, N. Nock, Darcy A. Freedman","doi":"10.1080/02739615.2021.1997602","DOIUrl":"https://doi.org/10.1080/02739615.2021.1997602","url":null,"abstract":"ABSTRACT COVID-19-related stress effects on the caregiver and child are largely unexplored. Caregivers (N = 114) of children between the ages of 3 months and 10 years accessing Ohio child care completed a parent survey (fall 2020), and additional caregivers (N = 20) completed an interview. Caregivers reported a mean of 70 (SD = 19; scale 1–100) on COVID-19-related stress. In adjusted regression models, higher caregiver-reported COVID-19-related stress was associated with increased odds of child aggression and poor social skills. Exploratory analyses indicated that these associations may be partly mediated by the caregiver working from home and losing their temper. Qualitative findings reflect caregiver COVID-19 stress and complement quantitative findings. Caregivers and children who experience COVID-19 stress should be monitored for persistent problems.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"51 1","pages":"362 - 384"},"PeriodicalIF":0.9,"publicationDate":"2021-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41326033","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-10-23DOI: 10.1080/02739615.2021.1981331
Kristy L. Larsen, Sara Jordan
ABSTRACT Bedtime routines have “strong” support for addressing bedtime behavior problems and sleep; however, little research has examined factors associated with bedtime routines and sleep quality. Parents of 155 children ages 3 to 5 were surveyed about their children’s bedtime routines, bedtime anxiety, compliance, and sleep quality. Regression models supported a simple indirect effect of bedtime routine consistency on sleep quality through bedtime anxiety, but not through compliance at bedtime. In a serial model, consistent bedtime routines were related to sleep quality through first bedtime anxiety and then compliance near bedtime. Clinically, results suggest that if parents can alleviate child anxiety around bedtime through routines, compliance around bedtime, and a good night sleep may follow.
{"title":"Factors associated with consistent bedtime routines and good sleep outcomes","authors":"Kristy L. Larsen, Sara Jordan","doi":"10.1080/02739615.2021.1981331","DOIUrl":"https://doi.org/10.1080/02739615.2021.1981331","url":null,"abstract":"ABSTRACT Bedtime routines have “strong” support for addressing bedtime behavior problems and sleep; however, little research has examined factors associated with bedtime routines and sleep quality. Parents of 155 children ages 3 to 5 were surveyed about their children’s bedtime routines, bedtime anxiety, compliance, and sleep quality. Regression models supported a simple indirect effect of bedtime routine consistency on sleep quality through bedtime anxiety, but not through compliance at bedtime. In a serial model, consistent bedtime routines were related to sleep quality through first bedtime anxiety and then compliance near bedtime. Clinically, results suggest that if parents can alleviate child anxiety around bedtime through routines, compliance around bedtime, and a good night sleep may follow.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"51 1","pages":"139 - 162"},"PeriodicalIF":0.9,"publicationDate":"2021-10-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44741965","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-10-21DOI: 10.1080/02739615.2021.1983434
Katherine A. Traino, Misty A. W. Hawkins, J. Chaney, L. Mullins
ABSTRACT Adolescents and young adults (AYAs) with a chronic medical condition (CMC) are tasked with independent health care management transition. However, the role of health anxiety in care management is unclear. The present study evaluated whether health anxiety moderates transition readiness-to-health-related quality of life (HRQoL). College students (N = 135) completed cross-sectional surveys of demographics, health anxiety, transition readiness, and HRQoL. Analyses revealed interaction effects for health anxiety and transition readiness on HRQoL outcomes. For lower health anxiety, greater transition readiness was associated with greater HRQoL. Therefore, examining health anxiety in AYAs transitioning care may relate to long-term HRQoL outcomes.
{"title":"The role of health anxiety in healthcare management transition and health-related quality of life in young adults with medical conditions","authors":"Katherine A. Traino, Misty A. W. Hawkins, J. Chaney, L. Mullins","doi":"10.1080/02739615.2021.1983434","DOIUrl":"https://doi.org/10.1080/02739615.2021.1983434","url":null,"abstract":"ABSTRACT Adolescents and young adults (AYAs) with a chronic medical condition (CMC) are tasked with independent health care management transition. However, the role of health anxiety in care management is unclear. The present study evaluated whether health anxiety moderates transition readiness-to-health-related quality of life (HRQoL). College students (N = 135) completed cross-sectional surveys of demographics, health anxiety, transition readiness, and HRQoL. Analyses revealed interaction effects for health anxiety and transition readiness on HRQoL outcomes. For lower health anxiety, greater transition readiness was associated with greater HRQoL. Therefore, examining health anxiety in AYAs transitioning care may relate to long-term HRQoL outcomes.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"51 1","pages":"163 - 183"},"PeriodicalIF":0.9,"publicationDate":"2021-10-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41406076","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-10-18DOI: 10.1080/02739615.2021.1983435
Kirandeep Kaur, Chad D. Jensen
ABSTRACT Our study examined the association between hedonic hunger and body mass and whether caloric intake mediated the association between these constructs in adolescents. One hundred adolescents with overweight or obesity completed measures of hedonic food reward, dietary intake, and height and weight. Exaggerated hedonic food responses were associated with higher body mass. For 16% of participants who had high hedonic hunger, and high body mass, caloric intake mediated the association between hedonic hunger and zBMI. These results suggest that hedonic hunger may override the homeostatic need for energy and may be associated with increased caloric intake, potentiating weight gain.
{"title":"Does hedonic hunger predict eating behavior and body mass in adolescents with overweight or obesity?","authors":"Kirandeep Kaur, Chad D. Jensen","doi":"10.1080/02739615.2021.1983435","DOIUrl":"https://doi.org/10.1080/02739615.2021.1983435","url":null,"abstract":"ABSTRACT Our study examined the association between hedonic hunger and body mass and whether caloric intake mediated the association between these constructs in adolescents. One hundred adolescents with overweight or obesity completed measures of hedonic food reward, dietary intake, and height and weight. Exaggerated hedonic food responses were associated with higher body mass. For 16% of participants who had high hedonic hunger, and high body mass, caloric intake mediated the association between hedonic hunger and zBMI. These results suggest that hedonic hunger may override the homeostatic need for energy and may be associated with increased caloric intake, potentiating weight gain.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"51 1","pages":"184 - 198"},"PeriodicalIF":0.9,"publicationDate":"2021-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49241796","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-10-18DOI: 10.1080/02739615.2021.1984241
Shilpa R. Taufique, Rachel E. Weller, Brandon Johnson, Jennifer Herring
ABSTRACT Born out of a recognition that minority youth have the lowest access to care and disproportionally high rates of related deleterious outcomes, the Comprehensive Adolescent Rehabilitation and Education Service (CARES) in the Mount Sinai Health System offers a novel solution. For the last 19 years, CARES has been treating adolescents and young adults (ages 14 to 21) – referred from across the five boroughs of NYC – with complex profiles of mental health, substance use, and education problems. What started out as two small grant funded programs has expanded to become a dynamic, multifaceted vehicle for empowerment, hope, and change for those individuals and families who have traditionally been underserved and unsupported by the healthcare system. Embedded within CARES is the mission and commitment to addressing mental health disparities among racial and ethnic minority youth across individual, community, and organizational levels. We, at CARES, recognize that mental health symptomology and adverse experiences rarely occur in isolation. Rather, what guides our treatment is the acknowledgment that the health and well-being of our patients is reliant upon a holistic conceptualization – one that honors the unique and diverse characteristics of adolescence and its inherent resilience.
{"title":"CARES: an innovative approach to treating adolescents with co-occurring mental health and substance use disorders","authors":"Shilpa R. Taufique, Rachel E. Weller, Brandon Johnson, Jennifer Herring","doi":"10.1080/02739615.2021.1984241","DOIUrl":"https://doi.org/10.1080/02739615.2021.1984241","url":null,"abstract":"ABSTRACT Born out of a recognition that minority youth have the lowest access to care and disproportionally high rates of related deleterious outcomes, the Comprehensive Adolescent Rehabilitation and Education Service (CARES) in the Mount Sinai Health System offers a novel solution. For the last 19 years, CARES has been treating adolescents and young adults (ages 14 to 21) – referred from across the five boroughs of NYC – with complex profiles of mental health, substance use, and education problems. What started out as two small grant funded programs has expanded to become a dynamic, multifaceted vehicle for empowerment, hope, and change for those individuals and families who have traditionally been underserved and unsupported by the healthcare system. Embedded within CARES is the mission and commitment to addressing mental health disparities among racial and ethnic minority youth across individual, community, and organizational levels. We, at CARES, recognize that mental health symptomology and adverse experiences rarely occur in isolation. Rather, what guides our treatment is the acknowledgment that the health and well-being of our patients is reliant upon a holistic conceptualization – one that honors the unique and diverse characteristics of adolescence and its inherent resilience.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"52 1","pages":"23 - 44"},"PeriodicalIF":0.9,"publicationDate":"2021-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43610036","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-10-03DOI: 10.1080/02739615.2021.1973900
Lyndsay MacKay, K. Benzies, S. Raffin Bouchal, Chantelle Barnard
ABSTRACT Parents of hospitalized Medically Fragile Infants (MFI) experience stressors and mental health difficulties and Health-Care Professionals (HCP) who care for MFI experience burnout and stress. A constructivist grounded theory study was conducted among parents of MFI (N = 19) and HCP (N = 26) to understand their experiences caring for MFI in pediatric inpatient units. As parents and HCP engaged in beneficial interactions, trust was formed, and they established supportive relationships. When beneficial interactions did not occur, trust was fractured and parents and HCP were unsuccessful in establishing supportive relationships. Supportive relationships aided parents and HCP to journey alongside one another.
{"title":"Parental and Health Care Professionals' Experiences Caring for Medically Fragile Infants on Pediatric Inpatient Units","authors":"Lyndsay MacKay, K. Benzies, S. Raffin Bouchal, Chantelle Barnard","doi":"10.1080/02739615.2021.1973900","DOIUrl":"https://doi.org/10.1080/02739615.2021.1973900","url":null,"abstract":"ABSTRACT Parents of hospitalized Medically Fragile Infants (MFI) experience stressors and mental health difficulties and Health-Care Professionals (HCP) who care for MFI experience burnout and stress. A constructivist grounded theory study was conducted among parents of MFI (N = 19) and HCP (N = 26) to understand their experiences caring for MFI in pediatric inpatient units. As parents and HCP engaged in beneficial interactions, trust was formed, and they established supportive relationships. When beneficial interactions did not occur, trust was fractured and parents and HCP were unsuccessful in establishing supportive relationships. Supportive relationships aided parents and HCP to journey alongside one another.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"51 1","pages":"119 - 138"},"PeriodicalIF":0.9,"publicationDate":"2021-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44066557","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-09-29DOI: 10.1080/02739615.2021.1971986
Sara L. Lampert, Estée C. H. Feldman, Lindsay K. Durkin, W. Davies, R. Greenley
ABSTRACT Identifying factors associated with medication adherence among emerging adults (EA) is critical, given their elevated risk for nonadherence and because health behavior patterns during this developmental period persist into adulthood. Patient-healthcare provider communication and patient personality traits correlate with adherence in adult samples, but the independent and interactive influences of these factors on EA adherence are understudied. This study examined the individual and interactive influences of patient-provider communication and patient personality on EA’s medication adherence and adherence barriers in a sample of 399 EA with and without chronic health conditions. Participants (75% female, 77% White) completed questionnaires assessing study constructs (i.e., EA demographics, provider communication, EA personality) and reported on adherence and adherence barriers for recently prescribed medications (43% reported on a new prescription, 70% of the prescriptions were for long-term medications). Provider communication was associated with higher adherence (BCa CI [.032, .260]) and fewer adherence barriers (BCa CI [−.250, −.035]). Extraversion moderated the association between communication and adherence (BCa CI [−10.44, −2.18]) such that individuals with low and average levels of extraversion benefited more from provider communication. Results expand knowledge of factors related to EA adherence and highlight the value of evaluating more complex models of patient and provider influences on adherence.
{"title":"Medication adherence among emerging adults: the influence of provider communication and patient personality","authors":"Sara L. Lampert, Estée C. H. Feldman, Lindsay K. Durkin, W. Davies, R. Greenley","doi":"10.1080/02739615.2021.1971986","DOIUrl":"https://doi.org/10.1080/02739615.2021.1971986","url":null,"abstract":"ABSTRACT Identifying factors associated with medication adherence among emerging adults (EA) is critical, given their elevated risk for nonadherence and because health behavior patterns during this developmental period persist into adulthood. Patient-healthcare provider communication and patient personality traits correlate with adherence in adult samples, but the independent and interactive influences of these factors on EA adherence are understudied. This study examined the individual and interactive influences of patient-provider communication and patient personality on EA’s medication adherence and adherence barriers in a sample of 399 EA with and without chronic health conditions. Participants (75% female, 77% White) completed questionnaires assessing study constructs (i.e., EA demographics, provider communication, EA personality) and reported on adherence and adherence barriers for recently prescribed medications (43% reported on a new prescription, 70% of the prescriptions were for long-term medications). Provider communication was associated with higher adherence (BCa CI [.032, .260]) and fewer adherence barriers (BCa CI [−.250, −.035]). Extraversion moderated the association between communication and adherence (BCa CI [−10.44, −2.18]) such that individuals with low and average levels of extraversion benefited more from provider communication. Results expand knowledge of factors related to EA adherence and highlight the value of evaluating more complex models of patient and provider influences on adherence.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"51 1","pages":"101 - 117"},"PeriodicalIF":0.9,"publicationDate":"2021-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44385556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-09-29DOI: 10.1080/02739615.2021.1967754
C. West, Clarissa V Shields, Kara V. Hultstrand, Miranda L. Frank, Amy F. Sato
ABSTRACT The present study examined associations between COVID-19-related negative impact and parental distress and aspects of the home food environment. Parents (N= 189) of children ages 7–17 completed an online survey assessing COVID-19-related impact and distress, household meals, feeding practices, and weight concern. Results suggested an inverse association between impact and distress and structured meals and positive associations with both restrictive feeding practices and weight concern. Food insecurity significantly moderated the association between impact and structured meals and remains a necessary target for intervention. Future research should explore factors that may mitigate the impact of COVID-19-related distress on the home food environment.
{"title":"Pandemic-related parental distress: examining associations with family meals and child feeding practices during the COVID-19 pandemic","authors":"C. West, Clarissa V Shields, Kara V. Hultstrand, Miranda L. Frank, Amy F. Sato","doi":"10.1080/02739615.2021.1967754","DOIUrl":"https://doi.org/10.1080/02739615.2021.1967754","url":null,"abstract":"ABSTRACT The present study examined associations between COVID-19-related negative impact and parental distress and aspects of the home food environment. Parents (N= 189) of children ages 7–17 completed an online survey assessing COVID-19-related impact and distress, household meals, feeding practices, and weight concern. Results suggested an inverse association between impact and distress and structured meals and positive associations with both restrictive feeding practices and weight concern. Food insecurity significantly moderated the association between impact and structured meals and remains a necessary target for intervention. Future research should explore factors that may mitigate the impact of COVID-19-related distress on the home food environment.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"51 1","pages":"79 - 100"},"PeriodicalIF":0.9,"publicationDate":"2021-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47752228","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-09-01DOI: 10.1080/02739615.2021.1961581
Javiera Ortega, N. Vázquez, Camila Flores, I. Amayra
ABSTRACT The diagnosis of a pediatric neuromuscular disease has a psychological impact on parents. The study aimed to describe mental health and psychological adaptation in parents of children with neuromuscular diseases. The evaluation of parents (n = 35) through the Psychological Adaptation Scale and Adult Self-Report Questionnaire showed that (a) 82.4% of the participants had an adequate level of psychological adaptation; (b) parents presented high levels of mental health problems, (c) significant correlations were found between the mental health problems and psychological adaptation. This study highlights the need for psychological interventions which aim to promote psychological adaptation to NMD diagnoses and protect parental mental health.
{"title":"Mental health and psychological adaptation on parents of children with neuromuscular diseases","authors":"Javiera Ortega, N. Vázquez, Camila Flores, I. Amayra","doi":"10.1080/02739615.2021.1961581","DOIUrl":"https://doi.org/10.1080/02739615.2021.1961581","url":null,"abstract":"ABSTRACT The diagnosis of a pediatric neuromuscular disease has a psychological impact on parents. The study aimed to describe mental health and psychological adaptation in parents of children with neuromuscular diseases. The evaluation of parents (n = 35) through the Psychological Adaptation Scale and Adult Self-Report Questionnaire showed that (a) 82.4% of the participants had an adequate level of psychological adaptation; (b) parents presented high levels of mental health problems, (c) significant correlations were found between the mental health problems and psychological adaptation. This study highlights the need for psychological interventions which aim to promote psychological adaptation to NMD diagnoses and protect parental mental health.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"51 1","pages":"62 - 78"},"PeriodicalIF":0.9,"publicationDate":"2021-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48177455","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-08-04DOI: 10.21203/rs.3.rs-638564/v1
Berit M Gustafsson, Märtha Sund Levander
Background: ESSENCE (early symptomatic syndromes eliciting neurodevelopmental clinical examinations) is a collective term for all conditions involving early-onset behavioural problems and/or cognitive difficulties. These lead to consultation with a variety of specialists, who often have no close collaboration with each other. Parents experience frustration about the lack of cooperation between care providers, and helplessness and despair over the lack of structure or routines within the care system. The aim of this study was to elicit parents’ experiences of support and interventions from child healthcare, child and adolescent psychiatry and child and youth habilitation.Method: An explorative, qualitative design taking an inductive approach. Data were collected through semi-structured focus group interviews, with 13 parents of children with behavioural and/or ESSENCE problems. Firstly, a conventional analysis of the interviews was performed. Then the revealed categories were interpreted using the bioecological model to illustrate the effects on the child’s interaction with the surrounding context, i.e. micro-, meso-, exo- and macrosystems. Results: The analysis revealed four main categories: confidence, information, competence and collaboration, affecting parents’ experiences of the encounter with child healthcare, child and adolescent psychiatry and child and youth habilitation providers. Consistent across all four themes was the importance of time, i.e. the parents’ experiences of how the process of getting help and support was constantly delayed.Conclusion: While waiting for an investigation of ESSENCE problems, parents experience anxiety, worry, frustration, lack of information, lack of confidence and doubts about their parenting ability, which also affects the child. They experience a lack of competence among care staff when their concerns about their child’s development are not taken seriously, and demand a comprehensive approach regarding investigation and treatment. Collaboration within the exosystem between the various professionals involved is perceived to have great potential for improvement.Trial registration: Retrospectively registered clinical Trials 2021, PLUSS identifier, NCT04815889.
{"title":"Parents’ Experiences of Investigations and Interventions by Child Healthcare, Child and Adolescent Psychiatry and Child and Youth Habilitation","authors":"Berit M Gustafsson, Märtha Sund Levander","doi":"10.21203/rs.3.rs-638564/v1","DOIUrl":"https://doi.org/10.21203/rs.3.rs-638564/v1","url":null,"abstract":"\u0000 Background: ESSENCE (early symptomatic syndromes eliciting neurodevelopmental clinical examinations) is a collective term for all conditions involving early-onset behavioural problems and/or cognitive difficulties. These lead to consultation with a variety of specialists, who often have no close collaboration with each other. Parents experience frustration about the lack of cooperation between care providers, and helplessness and despair over the lack of structure or routines within the care system. The aim of this study was to elicit parents’ experiences of support and interventions from child healthcare, child and adolescent psychiatry and child and youth habilitation.Method: An explorative, qualitative design taking an inductive approach. Data were collected through semi-structured focus group interviews, with 13 parents of children with behavioural and/or ESSENCE problems. Firstly, a conventional analysis of the interviews was performed. Then the revealed categories were interpreted using the bioecological model to illustrate the effects on the child’s interaction with the surrounding context, i.e. micro-, meso-, exo- and macrosystems. Results: The analysis revealed four main categories: confidence, information, competence and collaboration, affecting parents’ experiences of the encounter with child healthcare, child and adolescent psychiatry and child and youth habilitation providers. Consistent across all four themes was the importance of time, i.e. the parents’ experiences of how the process of getting help and support was constantly delayed.Conclusion: While waiting for an investigation of ESSENCE problems, parents experience anxiety, worry, frustration, lack of information, lack of confidence and doubts about their parenting ability, which also affects the child. They experience a lack of competence among care staff when their concerns about their child’s development are not taken seriously, and demand a comprehensive approach regarding investigation and treatment. Collaboration within the exosystem between the various professionals involved is perceived to have great potential for improvement.Trial registration: Retrospectively registered clinical Trials 2021, PLUSS identifier, NCT04815889.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"1 1","pages":""},"PeriodicalIF":0.9,"publicationDate":"2021-08-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48677116","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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