Pub Date : 2022-09-06DOI: 10.1080/02739615.2022.2115372
C. Ievers-Landis, Amy F. Sato
ABSTRACT This special issue includes a commentary and four papers that highlight unique ways that the COVID-19 pandemic has affected aspects of children’s health and psychological well-being. The empirical studies and narrative review article within this issue contain the following themes: the potential positive effects of the pandemic on children’s health; the role and importance of parent distress within the context of pediatric health; the need for greater exploration of health disparities, including the experiences of diverse/vulnerable youth during a pandemic; and the necessity for flexibility in clinical care implementation. Within each area, the co-guest editors emphasize directions for future research.
{"title":"Commentary on Pediatric aspects of the COVID-19 pandemic: a special issue of Children’s Health Care","authors":"C. Ievers-Landis, Amy F. Sato","doi":"10.1080/02739615.2022.2115372","DOIUrl":"https://doi.org/10.1080/02739615.2022.2115372","url":null,"abstract":"ABSTRACT This special issue includes a commentary and four papers that highlight unique ways that the COVID-19 pandemic has affected aspects of children’s health and psychological well-being. The empirical studies and narrative review article within this issue contain the following themes: the potential positive effects of the pandemic on children’s health; the role and importance of parent distress within the context of pediatric health; the need for greater exploration of health disparities, including the experiences of diverse/vulnerable youth during a pandemic; and the necessity for flexibility in clinical care implementation. Within each area, the co-guest editors emphasize directions for future research.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"51 1","pages":"355 - 361"},"PeriodicalIF":0.9,"publicationDate":"2022-09-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42739448","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-08-22DOI: 10.1080/02739615.2022.2110496
B. Ragni, D. Barni, F. Bevilacqua, L. Aite, Silvia Bucci, S. Gentile, T. Grimaldi Capitello, S. De Stasio
ABSTRACT Parents are the main contributor to the development of children’s sleep patterns. Familial disorders and parental difficulties could represent a risk factor for children’s sleep onset and maintenance, interfering with their emotional self-regulation strategies. This study investigated whether aspects of parental post-partum depression, agreement between parental perceptions of co-parenting quality, and infants’ at-risk health conditions, explain infants’ longest continuous sleep bouts reported by parents. We enrolled 95 Italian families (33 had children with congenital anomalies) with children aged 8–12 months. A significant effect of post-partum depressive dimensions emerged. Moreover, parental similarities in co-parenting quality moderated the relationship between post-partum depressive dimensions and infants’ sleep in both families with healthy and at-risk children. Our results will deepen our understanding of the risks and protective factors related to children’s sleep for families, healthcare providers, and the general public.
{"title":"Post-partum depressive dimensions, co-parenting, infants’ health, and sleep quality: how are they related in the first year postpartum?","authors":"B. Ragni, D. Barni, F. Bevilacqua, L. Aite, Silvia Bucci, S. Gentile, T. Grimaldi Capitello, S. De Stasio","doi":"10.1080/02739615.2022.2110496","DOIUrl":"https://doi.org/10.1080/02739615.2022.2110496","url":null,"abstract":"ABSTRACT Parents are the main contributor to the development of children’s sleep patterns. Familial disorders and parental difficulties could represent a risk factor for children’s sleep onset and maintenance, interfering with their emotional self-regulation strategies. This study investigated whether aspects of parental post-partum depression, agreement between parental perceptions of co-parenting quality, and infants’ at-risk health conditions, explain infants’ longest continuous sleep bouts reported by parents. We enrolled 95 Italian families (33 had children with congenital anomalies) with children aged 8–12 months. A significant effect of post-partum depressive dimensions emerged. Moreover, parental similarities in co-parenting quality moderated the relationship between post-partum depressive dimensions and infants’ sleep in both families with healthy and at-risk children. Our results will deepen our understanding of the risks and protective factors related to children’s sleep for families, healthcare providers, and the general public.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"52 1","pages":"337 - 360"},"PeriodicalIF":0.9,"publicationDate":"2022-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41926310","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-08-17DOI: 10.1080/02739615.2022.2108812
Héctor E. Alcalá, Amanda E. Ng, N. Tkach, Zoha Salam
ABSTRACT Little is known about the impact of adverse childhood experiences (ACEs) on delaying health care. Using data from the 2016–2017 National Survey of Children’s Health (n = 64,103), we examined the association between ACEs and forgoing: medical care, hearing care, vision care, mental health care, and use of health services. In logistic regression models, cumulative ACEs were associated with increases in forgoing most types of care. ACEs were associated with increased odds of using emergency department services and preventative health care. Efforts must be undertaken to reduce delays in care among children with a history of ACEs.
{"title":"Adverse Childhood Experiences and Utilization and forgoing of Health Care among Children: A Nationally Representative Study in the United States","authors":"Héctor E. Alcalá, Amanda E. Ng, N. Tkach, Zoha Salam","doi":"10.1080/02739615.2022.2108812","DOIUrl":"https://doi.org/10.1080/02739615.2022.2108812","url":null,"abstract":"ABSTRACT Little is known about the impact of adverse childhood experiences (ACEs) on delaying health care. Using data from the 2016–2017 National Survey of Children’s Health (n = 64,103), we examined the association between ACEs and forgoing: medical care, hearing care, vision care, mental health care, and use of health services. In logistic regression models, cumulative ACEs were associated with increases in forgoing most types of care. ACEs were associated with increased odds of using emergency department services and preventative health care. Efforts must be undertaken to reduce delays in care among children with a history of ACEs.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"52 1","pages":"321 - 336"},"PeriodicalIF":0.9,"publicationDate":"2022-08-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45052950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-07-28DOI: 10.1080/02739615.2022.2106986
Joshua M. Nadeau, Sim Yin Tan
In the United States, it is estimated that more than 40% of youth have at least one chronic health condition (National Survey of Children’s Health, 2020). Some of the most commonly encountered concerns include eating disorders, cystic fibrosis, substance use disorders, behavioral problems comorbid with intellectual and developmental disabilities, and gender dysphoria. The estimated prevalence of eating disorders among youth ranges from 0.3% to 22.7% (Dahlgren & Wisting, 2016), of cystic fibrosis among newborns from 0.28% to 0.4% (Goldbeck, Fidika, Herle, & Quittner, 2014), of substance use disorder from 13.4% to 26.3% (Volkow, Han, Einstein, & Compton, 2021), of comorbid behavior problems from 38.9% to 58.9% among youth with intellectual disabilities (Gurney, McPheeters, & Davis, 2006), and of gender dysphoria and related concerns from 1.3% to 19% (Baum et al., 2018; Rider, McMorris, Gower, Coleman, & Eisenberg, 2018; Shields et al., 2013). Specialty medical and/or behavioral health services are often required to address the symptoms and concomitant functional impairment associated with these conditions (National Survey of Children’s Health, 2020). Medical interventions for these conditions commonly include emergency weight restoration via tube-feeding for eating disorders (Chan, Jaffe, D’Souza, Lowe, & Matthews-Rensch, 2021; Hale & Logomarsino, 2019); antibiotic regimens, selective gene modulator therapies, and portable airway clearance devices for cystic fibrosis (Goldbeck, Fidika, Herle, & Quittner, 2015); medication-assisted treatment to include naltrexone or suboxone for substance use disorders (MAT; Maglione et al., 2018); psychopharmacological agents, such as mood stabilizers or atypical antipsychotics, for severely disruptive behaviors co-occurring with intellectual and developmental disabilities (Jones et al., 2018; Lee, Vidal, & Findling, 2018); and hormone replacement treatment or corrective surgery for gender dysphoria (Butler, de Graaf, Wren, & Carmichael, 2018; Claahsen-van der Grinten et al., 2021) to directly address condition-specific symptoms.
在美国，据估计，超过40%的青年至少有一种慢性健康状况(全国儿童健康调查，2020年)。一些最常见的问题包括饮食失调、囊性纤维化、物质使用障碍、智力和发育障碍共病的行为问题，以及性别焦虑症。据估计，青少年饮食失调的患病率为0.3%至22.7% (Dahlgren & Wisting, 2016)，新生儿囊性纤维化的患病率为0.28%至0.4% (Goldbeck, Fidika, Herle， & Quittner, 2014)，物质使用障碍的患病率为13.4%至26.3% (Volkow, Han, Einstein， & Compton, 2021)，智力障碍青少年共病行为问题的患病率为38.9%至58.9% (Gurney, McPheeters， & Davis, 2006)。性别焦虑和相关担忧的比例从1.3%上升到19% (Baum et al.， 2018;Rider, McMorris, Gower, Coleman， & Eisenberg, 2018;Shields et al.， 2013)。通常需要专业医疗和/或行为健康服务来解决与这些疾病相关的症状和伴随的功能障碍(2020年全国儿童健康调查)。针对这些情况的医疗干预措施通常包括通过进食障碍患者的管喂紧急体重恢复(Chan, Jaffe, D 'Souza, Lowe， & Matthews-Rensch, 2021;Hale & Logomarsino, 2019);抗生素方案、选择性基因调节疗法和便携式气道清除装置用于囊性纤维化(Goldbeck, Fidika, Herle， & Quittner, 2015);药物辅助治疗包括纳曲酮或亚博松治疗物质使用障碍(MAT);Maglione et al.， 2018);精神药理学药物，如情绪稳定剂或非典型抗精神病药物，用于与智力和发育障碍共同发生的严重破坏性行为(Jones等人，2018;Lee, Vidal， & Findling, 2018);性别焦虑症的激素替代治疗或矫正手术(Butler, de Graaf, Wren， & Carmichael, 2018;Claahsen-van der Grinten et al.， 2021)直接解决特定条件的症状。
{"title":"Considerations for intensive treatment programs among youth with medical and behavioral health concerns","authors":"Joshua M. Nadeau, Sim Yin Tan","doi":"10.1080/02739615.2022.2106986","DOIUrl":"https://doi.org/10.1080/02739615.2022.2106986","url":null,"abstract":"In the United States, it is estimated that more than 40% of youth have at least one chronic health condition (National Survey of Children’s Health, 2020). Some of the most commonly encountered concerns include eating disorders, cystic fibrosis, substance use disorders, behavioral problems comorbid with intellectual and developmental disabilities, and gender dysphoria. The estimated prevalence of eating disorders among youth ranges from 0.3% to 22.7% (Dahlgren & Wisting, 2016), of cystic fibrosis among newborns from 0.28% to 0.4% (Goldbeck, Fidika, Herle, & Quittner, 2014), of substance use disorder from 13.4% to 26.3% (Volkow, Han, Einstein, & Compton, 2021), of comorbid behavior problems from 38.9% to 58.9% among youth with intellectual disabilities (Gurney, McPheeters, & Davis, 2006), and of gender dysphoria and related concerns from 1.3% to 19% (Baum et al., 2018; Rider, McMorris, Gower, Coleman, & Eisenberg, 2018; Shields et al., 2013). Specialty medical and/or behavioral health services are often required to address the symptoms and concomitant functional impairment associated with these conditions (National Survey of Children’s Health, 2020). Medical interventions for these conditions commonly include emergency weight restoration via tube-feeding for eating disorders (Chan, Jaffe, D’Souza, Lowe, & Matthews-Rensch, 2021; Hale & Logomarsino, 2019); antibiotic regimens, selective gene modulator therapies, and portable airway clearance devices for cystic fibrosis (Goldbeck, Fidika, Herle, & Quittner, 2015); medication-assisted treatment to include naltrexone or suboxone for substance use disorders (MAT; Maglione et al., 2018); psychopharmacological agents, such as mood stabilizers or atypical antipsychotics, for severely disruptive behaviors co-occurring with intellectual and developmental disabilities (Jones et al., 2018; Lee, Vidal, & Findling, 2018); and hormone replacement treatment or corrective surgery for gender dysphoria (Butler, de Graaf, Wren, & Carmichael, 2018; Claahsen-van der Grinten et al., 2021) to directly address condition-specific symptoms.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"52 1","pages":"1 - 6"},"PeriodicalIF":0.9,"publicationDate":"2022-07-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42392579","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-07-03DOI: 10.1080/02739615.2022.2047049
K. Benito, Amrita Ramanathan, D. Lobato, Barbara Jandasek, Erin Mamaril, Haley McBride, L. Feit
ABSTRACT Studies characterizing Orthostatic Intolerance (OI) have primarily focused on a specific subtype (e.g., Postural Orthostatic Tachycardia Syndrome, POTS) treated in tertiary care, yet many with impairing symptoms do not meet subtype criteria. Study 1 used structured coding of electronic medical records to explore symptoms and impairment among 226 youth with OI in a common care setting (outpatient cardiology) over a 1-year period. Impairment was evident for 54.7% of youth. Greater impairment was associated with female gender, higher number and frequency of symptoms, and specific symptoms of headache, weakness, or exercise intolerance. Study 2 examined symptoms, functional disability, and treatment interest in a subset of youth from Study 1 (n = 75); data were collected 1–2 years after initial visit via phone interview. Fifty-six percent of participants remained symptomatic, with mean disability exceeding “substantial impairment” and most (78.6%) expressing desire for treatment. Greater disability was associated with more symptoms and the symptom of weakness. Critically, disability was more than twice as high among racial and ethnic minority youth. Results suggest that OI impairment is common among youth in secondary care, and many experience symptoms warranting treatment 1–2 years later. Future studies should identify sources of health disparities and develop efficacious treatments.
{"title":"Symptoms, impairment and treatment needs among youth with orthostatic intolerance in a secondary care setting","authors":"K. Benito, Amrita Ramanathan, D. Lobato, Barbara Jandasek, Erin Mamaril, Haley McBride, L. Feit","doi":"10.1080/02739615.2022.2047049","DOIUrl":"https://doi.org/10.1080/02739615.2022.2047049","url":null,"abstract":"ABSTRACT Studies characterizing Orthostatic Intolerance (OI) have primarily focused on a specific subtype (e.g., Postural Orthostatic Tachycardia Syndrome, POTS) treated in tertiary care, yet many with impairing symptoms do not meet subtype criteria. Study 1 used structured coding of electronic medical records to explore symptoms and impairment among 226 youth with OI in a common care setting (outpatient cardiology) over a 1-year period. Impairment was evident for 54.7% of youth. Greater impairment was associated with female gender, higher number and frequency of symptoms, and specific symptoms of headache, weakness, or exercise intolerance. Study 2 examined symptoms, functional disability, and treatment interest in a subset of youth from Study 1 (n = 75); data were collected 1–2 years after initial visit via phone interview. Fifty-six percent of participants remained symptomatic, with mean disability exceeding “substantial impairment” and most (78.6%) expressing desire for treatment. Greater disability was associated with more symptoms and the symptom of weakness. Critically, disability was more than twice as high among racial and ethnic minority youth. Results suggest that OI impairment is common among youth in secondary care, and many experience symptoms warranting treatment 1–2 years later. Future studies should identify sources of health disparities and develop efficacious treatments.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"51 1","pages":"316 - 335"},"PeriodicalIF":0.9,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44477155","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-06-24DOI: 10.1080/02739615.2022.2091568
O. Uchima, Samantha Keaulana, May Okihiro, T. Sentell
ABSTRACT Schools are an ideal setting for asthma education programs as they can reach many children. However, it is unknown if school-based asthma education programs in the United States (US) reduce acute care services. This scoping review sought to identify whether school-based asthma education programs lead to improved acute care services. Overall, the evidence provides provisional support that school-based asthma education programs can reduce acute care utilization and may be a potential treatment intervention. Future research is needed to determine more definitive conclusions about the effectiveness of school-based asthma education programs and which components yield significant changes.
{"title":"A scoping review of school-based asthma education programs for reducing children’s need for acute care services","authors":"O. Uchima, Samantha Keaulana, May Okihiro, T. Sentell","doi":"10.1080/02739615.2022.2091568","DOIUrl":"https://doi.org/10.1080/02739615.2022.2091568","url":null,"abstract":"ABSTRACT Schools are an ideal setting for asthma education programs as they can reach many children. However, it is unknown if school-based asthma education programs in the United States (US) reduce acute care services. This scoping review sought to identify whether school-based asthma education programs lead to improved acute care services. Overall, the evidence provides provisional support that school-based asthma education programs can reduce acute care utilization and may be a potential treatment intervention. Future research is needed to determine more definitive conclusions about the effectiveness of school-based asthma education programs and which components yield significant changes.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"52 1","pages":"296 - 320"},"PeriodicalIF":0.9,"publicationDate":"2022-06-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47527431","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-06-02DOI: 10.1080/02739615.2022.2078826
S. Weerakoon, Baojiang Chen, M. Harrell, D. Vidot, S. Messiah
ABSTRACT Maternal drug use causes low birthweight but less is known about longer-term pediatric growth. The purpose of this analysis was to longitudinally measure anthropometric growth among children exposed to drugs in utero. We used data from the National Institute on Drug Abuse (NIDA)-funded Maternal Lifestyle Study (MLS). Mixed effects piecewise regression longitudinally assessed BMI percentile from 2–16 years. Those born low birthweight prenatally exposed to poly tobacco/opioid use had lower pediatric BMI percentiles than those unexposed from 2–16 years. Specific combinations of drug use appear to delay or accelerate growth across childhood at different points for those born low birthweight.
{"title":"Longitudinal effect of prenatal polydrug use and birthweight status on pediatric growth","authors":"S. Weerakoon, Baojiang Chen, M. Harrell, D. Vidot, S. Messiah","doi":"10.1080/02739615.2022.2078826","DOIUrl":"https://doi.org/10.1080/02739615.2022.2078826","url":null,"abstract":"ABSTRACT Maternal drug use causes low birthweight but less is known about longer-term pediatric growth. The purpose of this analysis was to longitudinally measure anthropometric growth among children exposed to drugs in utero. We used data from the National Institute on Drug Abuse (NIDA)-funded Maternal Lifestyle Study (MLS). Mixed effects piecewise regression longitudinally assessed BMI percentile from 2–16 years. Those born low birthweight prenatally exposed to poly tobacco/opioid use had lower pediatric BMI percentiles than those unexposed from 2–16 years. Specific combinations of drug use appear to delay or accelerate growth across childhood at different points for those born low birthweight.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"52 1","pages":"244 - 263"},"PeriodicalIF":0.9,"publicationDate":"2022-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44486389","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-06-01DOI: 10.1080/02739615.2022.2076682
M. A. Faith, D. Boone, A. Healy, Esther Davila
ABSTRACT This study examined relations between parent coping and parent-, patient-, and sibling- reported sibling relationship quality (SRQ) during pediatric cancer. A sample of 156 parents, 103 patients, and 104 siblings completed questionnaires. Results demonstrated parents’ adaptive coping was positively associated with parent-reported sibling warmth and negatively associated with sibling dominance. Parents’ dismissive ES beliefs were inversely related to sibling warmth and positively related to conflict. Analyses indicated when parents’ emotion coaching beliefs were high, parents’ adaptive coping was positively related to parent-reported sibling warmth. Findings begin to elucidate family processes that may affect SRQ in families of pediatric oncology patients.
{"title":"Parent coping, emotion socialization beliefs, and sibling relationship quality in pediatric cancer","authors":"M. A. Faith, D. Boone, A. Healy, Esther Davila","doi":"10.1080/02739615.2022.2076682","DOIUrl":"https://doi.org/10.1080/02739615.2022.2076682","url":null,"abstract":"ABSTRACT This study examined relations between parent coping and parent-, patient-, and sibling- reported sibling relationship quality (SRQ) during pediatric cancer. A sample of 156 parents, 103 patients, and 104 siblings completed questionnaires. Results demonstrated parents’ adaptive coping was positively associated with parent-reported sibling warmth and negatively associated with sibling dominance. Parents’ dismissive ES beliefs were inversely related to sibling warmth and positively related to conflict. Analyses indicated when parents’ emotion coaching beliefs were high, parents’ adaptive coping was positively related to parent-reported sibling warmth. Findings begin to elucidate family processes that may affect SRQ in families of pediatric oncology patients.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"52 1","pages":"221 - 243"},"PeriodicalIF":0.9,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47591929","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-05-31DOI: 10.1080/02739615.2022.2079511
M. Lukas, Gracie Avery, Sherwood Burns-Nader, Emily Goldstein, Anna Schmitz
ABSTRACT The purpose of this study was to describe Certified Child Life Specialists’ (CCLSs) perspectives on their role and the benefits of their role during pediatric sexual assault forensic examinations (PSAFEs). Using a structured interview, discussed roles included preparing the patient for and supporting the patient during the examination and supporting the multidisciplinary team. Perceived benefits of child life services included increasing patient coping and completion of the examination, decreasing re-traumatization, and minimizing parent stress. The findings highlight how CCLSs feel they support the emotional safety of PSAFE patients and families. Thus, healthcare programs providing PSAFEs should consider staffing a CCLS.
{"title":"Exploring child life specialists’ perspective on the role and benefits of child life in pediatric sexual assault forensic examinations","authors":"M. Lukas, Gracie Avery, Sherwood Burns-Nader, Emily Goldstein, Anna Schmitz","doi":"10.1080/02739615.2022.2079511","DOIUrl":"https://doi.org/10.1080/02739615.2022.2079511","url":null,"abstract":"ABSTRACT The purpose of this study was to describe Certified Child Life Specialists’ (CCLSs) perspectives on their role and the benefits of their role during pediatric sexual assault forensic examinations (PSAFEs). Using a structured interview, discussed roles included preparing the patient for and supporting the patient during the examination and supporting the multidisciplinary team. Perceived benefits of child life services included increasing patient coping and completion of the examination, decreasing re-traumatization, and minimizing parent stress. The findings highlight how CCLSs feel they support the emotional safety of PSAFE patients and families. Thus, healthcare programs providing PSAFEs should consider staffing a CCLS.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"52 1","pages":"278 - 295"},"PeriodicalIF":0.9,"publicationDate":"2022-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42788092","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-05-29DOI: 10.1080/02739615.2022.2079510
L. B. Bennett Murphy, M. O’Gorman, S. Fitzgerald, K. Peterson, J. Robson
ABSTRACT EoE symptoms and treatments place affected children at risk for reduced quality of life. Yet relatively little is known about the factors that affect health related quality of life (HRQoL) in youth with EoE. This study examined symptom burden and HRQoL in 267 children and adolescents with EoE. Pain catastrophizing was significantly related to both EoE symptom reports and HRQoL (p < .001). Further, children with significantly elevated psychological symptom reports experienced more symptom burden and worse HRQoL (p < .001). Effective health care for children with EoE includes addressing quality of life, psychological symptoms, and maladaptive pain cognitions when present, in addition to managing inflammation.
{"title":"Quality of life in children and adolescents with eosinophilic esophagitis","authors":"L. B. Bennett Murphy, M. O’Gorman, S. Fitzgerald, K. Peterson, J. Robson","doi":"10.1080/02739615.2022.2079510","DOIUrl":"https://doi.org/10.1080/02739615.2022.2079510","url":null,"abstract":"ABSTRACT EoE symptoms and treatments place affected children at risk for reduced quality of life. Yet relatively little is known about the factors that affect health related quality of life (HRQoL) in youth with EoE. This study examined symptom burden and HRQoL in 267 children and adolescents with EoE. Pain catastrophizing was significantly related to both EoE symptom reports and HRQoL (p < .001). Further, children with significantly elevated psychological symptom reports experienced more symptom burden and worse HRQoL (p < .001). Effective health care for children with EoE includes addressing quality of life, psychological symptoms, and maladaptive pain cognitions when present, in addition to managing inflammation.","PeriodicalId":46607,"journal":{"name":"Childrens Health Care","volume":"52 1","pages":"264 - 277"},"PeriodicalIF":0.9,"publicationDate":"2022-05-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43859522","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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