Otjr-Occupation Participation and Health最新文献

This qualitative research explored the underresearched area of subjective meaning(s) of travel for U.K. baby-boomers, from an occupational perspective. Using a descriptive phenomenology, a convenience sample of eight baby-boomers was recruited using social media. Participants took part in semistructured interviews, and narratives were analysed using thematic analysis. Four themes were generated: (a) travel is important to me, (b) travel changes through time, (c) travel facilitators and barriers and (d) travel as a shared experience. Participants perceived travel as a meaningful and health-promoting occupation that represented freedom, choice, independence, connection and achievement. Greater comfort was sought with age while financial constraints and deteriorating health were considered barriers to travel. The therapeutic value of travel as a meaningful occupation should not be underestimated. Travel providers might consider providing meaningful, accessible and desired travel opportunities for this cohort while examining their potential economic benefits to society.

Amid calls for inclusion of autistic people in research, we present findings from our community-engaged study on the experiences of families of autistic girls, who experience disparities in autism identification, and show how the Autistic Lived Experience Collaborators (ALEC) in the Disparity Reduction and Equity in Autism Services (DREAmS) Lab influenced our findings. In Part 1 of our multimethod study, 21 caregivers completed interviews and survey questions. In Part 2, 10 Hispanic/Latino caregivers from Part 1 completed 1 to 3 interviews. Analysis used descriptive statistics and a narrative thematic approach. We also drew from analysis meeting notes. Girls from Spanish-speaking families had later ages of autism identification, which informed our qualitative themes: Survival Explains Stigma, a view of Hispanic/Latino culture that clarified the "stigma" that impacted the diagnostic process; and Intergenerational Influences on staying safe, which could include masking autistic traits. ALEC quotes show their contributions. Our community-engaged approach contributed to our findings and a more complex view of culture.

Community-engaged research intentionally engages communities and people with lived experience as equal partners in the research process from project ideation through dissemination. The American Occupational Therapy Foundation sponsored a 2-day Engage Summit in October of 2024 to: showcase the depth and breadth of high-quality community-engaged research within occupational therapy, identify and evaluate systematic approaches to community-engaged methodologies to elevate occupational therapy-informed community-engaged scholarship, including evaluation, measurement, and dissemination, and build capacity among people with lived experience to actively engage in community-engaged research as full and equal partners. The event culminated in a World Café, a participatory process wherein attendees identified priorities for community-engaged research to guide the profession. The purpose of this paper is to provide a high-level overview of the proceedings, showcase the results from the World Café, and issue a call to action for continued development and institutional support of community-engaged research within occupational therapy and beyond.

Sickle cell disease (SCD) affects approximately 100,000 Americans, predominantly those of African descent, yet care coordination between academic medical centers and community organizations remains limited. To identify strategies for strengthening community-academic partnerships to enhance care delivery for children with SCD through focus groups with community partners in a midwestern metropolitan area. Using qualitative descriptive methodology, we conducted two focus groups and three individual interviews with 12 community partners, including health care providers and advocates. Thematic analysis revealed three key findings: persistent multi-level knowledge gaps about SCD, the importance of strategic partnerships between health care organizations and community groups, and specific community-identified solutions for sustainable collaboration. Results highlighted how structured partnerships between academic institutions and community organizations can address systemic barriers in SCD care delivery through knowledge sharing, resource access, and coordinated screening protocols, informing practical strategies for implementing sustainable improvements in care coordination.

Participatory research is critical for developing appropriate and effective programs for specific communities. Suicide is a health inequity for autistic people and prevention is a high priority for autistic community members. Using community-based participatory research with autistic partners, we aimed to develop a research-informed, conceptually grounded, and community-supported suicide prevention program for the autism community. The participatory, multistep program development process included regular meetings to integrate existing research with an established intervention framework and was informed by 38 qualitative research interviews with autistic adults, family members, and mental health providers. The development process resulted in a four-part, virtual, education and community empowerment program-Forming Love around Autistic People to Prevent Suicide (FLAPS)-aimed at supporting organizations to engage in multilevel suicide prevention efforts. Participatory research that meaningfully engages autistic community partners can support the development of promising programs to promote suicide prevention for autistic people.

Many parents live with enduring health conditions; however, the impact of enduring health conditions on parenting roles is poorly understood. The aim of this study was to explore the experiences, support needs and preferences of parents in Ireland living with enduring health conditions. Data were collected using a custom e-survey, developed and refined using cognitive interviewing (n = 6). Quantitative data were analysed using descriptive statistics and group comparisons, while open-ended responses were analysed using interpretative content analysis. In total, 281 eligible parents completed the survey. Participants reported considerable difficulties with parenting tasks, particularly physically demanding tasks. Participants had limited access to formal services and many reported unmet needs and dissatisfaction with current services. Enduring health conditions have a significant impact on parenting capacity. There is a need for integrated support systems to ensure parents with enduring health conditions are supported to engage in parenting occupations and roles.

Chronic pain may impede occupational participation in older adults, but links among mobility, social networks, cognitive function, and pain-related factors remain unclear. To examine the relationships among these factors in relation to occupational participation in community-dwelling older Japanese adults. In this cross-sectional study, 130 adults more than 60 answered questions about occupational participation, mobility, social networks, cognitive function, and pain. Exploratory factor analysis was used to extract latent variables representing key constructs. These were incorporated into structural equation modeling to examine their associations with occupational participation. Latent factors combining mobility and social networks (standardized coefficient: 0.75), and cognitive functions (0.35), were directly and positively associated with occupational participation, while pain-related factors were strongly negatively correlated with mobility/social networks (-0.79, -0.73) but showed no direct association with participation. Interventions addressing both physical and social function and pain-related barriers may support occupational participation in older adults.

Rationale: Intention-to-treat (ITT) analyses in randomized trials may underestimate effects due to poor adherence or follow-up loss. Objectives: To demonstrate methods to address internal validity threats in ITT using the Well Elderly 2 study as a case example. Methodology: This secondary analysis used 4-year data from 460 older adults. The original trial, by a separate team, included a crossover intervention with 6-month follow-ups. We addressed follow-up loss using inverse probability of censoring weights to report an adjusted ITT. Results: ITT showed improvement in 10 of 17 outcomes; inverse probability of censoring weight (IPCW)-adjusted ITT in 13. In SF-36v2, ITT improved mental (B = 0.54, 99% confidence interval (CI) [0.05, 0.60]) but not physical (B = 0.71, 99% CI [-0.21, 0.08]); IPCW-adjusted ITT improved both mental (B = 0.77, 99% CI [0.34, 1.19]) and physical composites (B = 2.28, 99% CI [0.14, 0.71]). Conclusion: IPCW-adjusted ITT showed stronger effects but may be biased, while ITT was more conservative yet prone to misclassification; reporting both provides a clearer interpretation.

The use of complementary health approaches and integrative health (CHAIH) is increasing in the United States, yet its role within occupational therapy (OT) remains underexplored. This study examined the prevalence of CHAIH use among OT practitioners, identified commonly used therapies, and explored practitioners' perceptions. A cross-sectional online survey was distributed via email by NBCOT to over 132,900 registered OT practitioners; 4,420 responses were analyzed using descriptive statistics and difference between proportions. Most respondents reported using CHAIH, with deep breathing, sensory techniques, and yoga being most common. Practitioners who incorporated CHAIH reported significantly (p < .001) greater self-rated knowledge and more positive attitudes compared with those who did not. However, fewer than 18% rated themselves as "very" or "extremely" knowledgeable. Findings highlight a gap between practice and knowledge, suggesting a need for future research to guide evidence-based integration of CHAIH in OT practice.

Peer support interventions complement traditional rehabilitation services and contribute to improving physical and mental health and community living outcomes in diverse disability populations. Yet, little is known about the impact that being a peer support worker has on people with physical disabilities who take on these roles. Peer health navigators (PHN) are a type of peer support worker specifically trained to help other people with disabilities breakdown barriers to health, healthcare, and social participation. This qualitative study explored identity transformations experienced by people with physical disabilities after adopting a PHN role in a community-based participatory research intervention study. Specifically, we used interpretative phenomenological analysis to explore the lived experiences of peer health navigators from the Our Peers-Empowerment Navigational Support study. Participants identified that serving as a PHN had a transformative impact on their disability experience through relational processes of co-creation of a positive disability identity and reciprocal empowerment. Occupational therapy practitioners can facilitate peer support through intentional skill and community building.