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Participatory Development of a Suicide Prevention Program for Autism Community Organizations. 自闭症社区组织自杀预防计划的参与式发展。
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2025-11-26 DOI: 10.1177/15394492251391675
A V Kirby, K Feldman, B Duncan-Ishcomer, R Kripke-Ludwig, A Joyce, W Lee, K Rodriguez, Z Siddeek, A Darlington, A Atisme, W Clark, K Murthi, L Wexler, C Nicolaidis

Participatory research is critical for developing appropriate and effective programs for specific communities. Suicide is a health inequity for autistic people and prevention is a high priority for autistic community members. Using community-based participatory research with autistic partners, we aimed to develop a research-informed, conceptually grounded, and community-supported suicide prevention program for the autism community. The participatory, multistep program development process included regular meetings to integrate existing research with an established intervention framework and was informed by 38 qualitative research interviews with autistic adults, family members, and mental health providers. The development process resulted in a four-part, virtual, education and community empowerment program-Forming Love around Autistic People to Prevent Suicide (FLAPS)-aimed at supporting organizations to engage in multilevel suicide prevention efforts. Participatory research that meaningfully engages autistic community partners can support the development of promising programs to promote suicide prevention for autistic people.

参与性研究对于为特定社区制定适当和有效的方案至关重要。自杀对自闭症患者来说是一种健康不公平,预防是自闭症社区成员的优先事项。通过与自闭症伙伴进行社区参与性研究,我们旨在为自闭症社区开发一个以研究为依据、概念为基础、社区支持的自杀预防项目。参与性、多步骤的项目开发过程包括定期会议,将现有研究与已建立的干预框架相结合,并通过对自闭症成年人、家庭成员和心理健康提供者的38次定性研究访谈获得信息。这一发展过程产生了一个虚拟的教育和社区赋权项目——围绕自闭症患者形成爱以预防自杀(FLAPS)——旨在支持组织参与多层次的自杀预防工作。有意义地吸引自闭症社区伙伴参与的参与性研究可以支持有前途的项目的发展,以促进自闭症患者的自杀预防。
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引用次数: 0
Parenting With an Enduring Health Condition: Experiences, Support Needs and Service Delivery Preferences. 具有持久健康状况的养育:经验、支持需求和服务提供偏好。
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2025-11-26 DOI: 10.1177/15394492251391664
Dearbhla Anne Quirke, Lillian Kathy Sheehan, Yvonne Codd, Margaret McGrath

Many parents live with enduring health conditions; however, the impact of enduring health conditions on parenting roles is poorly understood. The aim of this study was to explore the experiences, support needs and preferences of parents in Ireland living with enduring health conditions. Data were collected using a custom e-survey, developed and refined using cognitive interviewing (n = 6). Quantitative data were analysed using descriptive statistics and group comparisons, while open-ended responses were analysed using interpretative content analysis. In total, 281 eligible parents completed the survey. Participants reported considerable difficulties with parenting tasks, particularly physically demanding tasks. Participants had limited access to formal services and many reported unmet needs and dissatisfaction with current services. Enduring health conditions have a significant impact on parenting capacity. There is a need for integrated support systems to ensure parents with enduring health conditions are supported to engage in parenting occupations and roles.

许多父母的健康状况长期不佳;然而,人们对长期健康状况对父母角色的影响知之甚少。这项研究的目的是探讨在爱尔兰生活在长期健康状况中的父母的经历、支持需求和偏好。数据收集使用定制的电子调查,发展和完善使用认知访谈(n = 6)。定量数据采用描述性统计和分组比较进行分析,开放式回答采用解释性内容分析进行分析。共有281名符合条件的家长完成了调查。参与者报告说,在养育孩子的任务上相当困难,尤其是体力要求很高的任务。参与者获得正规服务的机会有限,许多人报告需求未得到满足,对现有服务不满意。长期的健康状况对养育子女的能力有重大影响。有必要建立综合支持系统,以确保有长期健康问题的父母得到支持,能够从事养育子女的职业和角色。
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引用次数: 0
Mobility, Social Networks, and Pain Predict Occupational Participation in Older Japanese Adults. 活动能力、社会网络和疼痛预测日本老年人的职业参与。
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2025-11-26 DOI: 10.1177/15394492251391678
Junya Orui, Takao Inoue, Fumie Tazaki, Misa Nakamura, Ryota Imai, Mitsumasa Hida, Hidetoshi Nakao, Masakazu Imaoka

Chronic pain may impede occupational participation in older adults, but links among mobility, social networks, cognitive function, and pain-related factors remain unclear. To examine the relationships among these factors in relation to occupational participation in community-dwelling older Japanese adults. In this cross-sectional study, 130 adults more than 60 answered questions about occupational participation, mobility, social networks, cognitive function, and pain. Exploratory factor analysis was used to extract latent variables representing key constructs. These were incorporated into structural equation modeling to examine their associations with occupational participation. Latent factors combining mobility and social networks (standardized coefficient: 0.75), and cognitive functions (0.35), were directly and positively associated with occupational participation, while pain-related factors were strongly negatively correlated with mobility/social networks (-0.79, -0.73) but showed no direct association with participation. Interventions addressing both physical and social function and pain-related barriers may support occupational participation in older adults.

慢性疼痛可能会阻碍老年人的职业参与,但流动性、社会网络、认知功能和疼痛相关因素之间的联系尚不清楚。目的探讨日本社区居住老年人职业参与相关因素之间的关系。在这项横断面研究中,130名成年人超过60人回答了有关职业参与、流动性、社会网络、认知功能和疼痛的问题。探索性因子分析用于提取代表关键构念的潜在变量。这些数据被纳入结构方程模型,以检验它们与职业参与的关系。结合活动能力和社会网络的潜在因素(标准化系数为0.75)和认知功能(0.35)与职业参与呈直接正相关,而疼痛相关因素与活动能力/社会网络呈显著负相关(-0.79,-0.73),但与职业参与无直接关联。针对身体和社会功能以及疼痛相关障碍的干预措施可以支持老年人的职业参与。
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引用次数: 0
Real-World Effectiveness: Addressing Selection Bias in the Well Elderly 2 Study Strengthens Effect Estimates. 现实世界的有效性:解决老年井2研究中的选择偏差加强了效果估计。
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2025-11-20 DOI: 10.1177/15394492251388012
Pureum Jeon, Kevin T Pritchard, Eun-Young Yoo, Ickpyo Hong

Rationale: Intention-to-treat (ITT) analyses in randomized trials may underestimate effects due to poor adherence or follow-up loss. Objectives: To demonstrate methods to address internal validity threats in ITT using the Well Elderly 2 study as a case example. Methodology: This secondary analysis used 4-year data from 460 older adults. The original trial, by a separate team, included a crossover intervention with 6-month follow-ups. We addressed follow-up loss using inverse probability of censoring weights to report an adjusted ITT. Results: ITT showed improvement in 10 of 17 outcomes; inverse probability of censoring weight (IPCW)-adjusted ITT in 13. In SF-36v2, ITT improved mental (B = 0.54, 99% confidence interval (CI) [0.05, 0.60]) but not physical (B = 0.71, 99% CI [-0.21, 0.08]); IPCW-adjusted ITT improved both mental (B = 0.77, 99% CI [0.34, 1.19]) and physical composites (B = 2.28, 99% CI [0.14, 0.71]). Conclusion: IPCW-adjusted ITT showed stronger effects but may be biased, while ITT was more conservative yet prone to misclassification; reporting both provides a clearer interpretation.

理由:随机试验中的意向治疗(ITT)分析可能低估了依从性差或随访缺失的影响。目的:以Well Elderly 2研究为例,展示解决ITT内部效度威胁的方法。方法:这一次要分析使用了460名老年人4年的数据。最初的试验由一个独立的团队进行,包括交叉干预和6个月的随访。我们使用审查权重的逆概率来报告调整后的ITT来处理随访损失。结果:ITT改善了17个结局中的10个;13.修正权逆概率(IPCW)在SF-36v2中,ITT改善了智力(B = 0.54, 99%可信区间(CI)[0.05, 0.60]),但没有改善身体(B = 0.71, 99% CI [-0.21, 0.08]);ipcw调整后的ITT改善了心理(B = 0.77, 99% CI[0.34, 1.19])和身体综合(B = 2.28, 99% CI[0.14, 0.71])。结论:ipcw校正后的ITT效果较强,但可能存在偏倚;ITT较为保守,但容易误分类;报告两者提供了更清晰的解释。
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引用次数: 0
Prevalence, Knowledge, and Attitudes Toward Complementary and Integrative Health in Occupational Therapy. 职业治疗中对补充和综合健康的患病率、知识和态度。
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2025-11-20 DOI: 10.1177/15394492251388039
Sarah Renner, Kieran Fogarty

The use of complementary health approaches and integrative health (CHAIH) is increasing in the United States, yet its role within occupational therapy (OT) remains underexplored. This study examined the prevalence of CHAIH use among OT practitioners, identified commonly used therapies, and explored practitioners' perceptions. A cross-sectional online survey was distributed via email by NBCOT to over 132,900 registered OT practitioners; 4,420 responses were analyzed using descriptive statistics and difference between proportions. Most respondents reported using CHAIH, with deep breathing, sensory techniques, and yoga being most common. Practitioners who incorporated CHAIH reported significantly (p < .001) greater self-rated knowledge and more positive attitudes compared with those who did not. However, fewer than 18% rated themselves as "very" or "extremely" knowledgeable. Findings highlight a gap between practice and knowledge, suggesting a need for future research to guide evidence-based integration of CHAIH in OT practice.

在美国,补充健康方法和综合健康(CHAIH)的使用正在增加,但其在职业治疗(OT)中的作用仍未得到充分探索。本研究调查了CHAIH在OT从业者中的使用,确定了常用的治疗方法,并探讨了从业者的看法。NBCOT通过电子邮件向超过132,900名注册门诊医生进行了横断面在线调查;采用描述性统计和比例差异法对4420份回复进行分析。大多数受访者报告使用CHAIH,其中深呼吸,感觉技巧和瑜伽最常见。与未纳入CHAIH的从业者相比,纳入CHAIH的从业者报告了更高的自评知识和更积极的态度(p < 0.001)。然而,只有不到18%的人认为自己“非常”或“非常”有知识。研究结果强调了实践与知识之间的差距,表明需要未来的研究来指导以证据为基础的CHAIH在OT实践中的整合。
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引用次数: 0
Embodying the Work: An Interpretive Phenomenological Analysis of Becoming Peer Support Workers. 体现工作:成为同伴支持工作者的解释现象学分析。
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2025-11-17 DOI: 10.1177/15394492251385459
Susan Magasi, Kathryn Smith, Ocean Jerriel Bolocon, Ronnell Booze, Ryann Brown, Robert L Green

Peer support interventions complement traditional rehabilitation services and contribute to improving physical and mental health and community living outcomes in diverse disability populations. Yet, little is known about the impact that being a peer support worker has on people with physical disabilities who take on these roles. Peer health navigators (PHN) are a type of peer support worker specifically trained to help other people with disabilities breakdown barriers to health, healthcare, and social participation. This qualitative study explored identity transformations experienced by people with physical disabilities after adopting a PHN role in a community-based participatory research intervention study. Specifically, we used interpretative phenomenological analysis to explore the lived experiences of peer health navigators from the Our Peers-Empowerment Navigational Support study. Participants identified that serving as a PHN had a transformative impact on their disability experience through relational processes of co-creation of a positive disability identity and reciprocal empowerment. Occupational therapy practitioners can facilitate peer support through intentional skill and community building.

同伴支持干预措施是对传统康复服务的补充,有助于改善各种残疾人群的身心健康和社区生活成果。然而,作为一名同伴支持工作者,对承担这些角色的身体残疾人士的影响却知之甚少。同伴健康导航员(PHN)是一种同伴支持工作者,经过专门培训,帮助其他残疾人打破健康、医疗保健和社会参与方面的障碍。本定性研究探讨了在社区参与性研究干预研究中采用PHN角色后,身体残疾人士所经历的身份转变。具体来说,我们使用解释性现象学分析来探索同伴健康导航员的生活经验,这些导航员来自我们的同伴赋权导航支持研究。与会者指出,通过共同创造积极的残疾身份和相互赋权的关系过程,作为一名PHN对他们的残疾经历产生了变革性的影响。职业治疗从业者可以通过有意识的技能和社区建设来促进同伴支持。
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引用次数: 0
A Community Advisory Board Model to Strengthen Community-Academic Partnerships in Stroke Research. 社区咨询委员会模式加强中风研究中的社区-学术伙伴关系。
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2025-11-17 DOI: 10.1177/15394492251388016
Miranda R Donnelly, Stacy Sanchez, Emily Marks, Stuti Chakraborty, David Karchem, John Margetis, Sook-Lei Liew

Community advisory boards (CABs) can improve the relevance and impact of research. CABs often guide timebound research projects or inform strategy at large institutions. By contrast, we developed a CAB for collaborative neurorehabilitation research as an arm of a research laboratory. Community members (e.g., stroke survivors, care partners, therapists) engage in research and community initiatives around a shared vision. Existing CAB literature and implementation resources primarily describe project and institutional CABs, with less evidence of alternative CAB models. Therefore, this article describes the development of an ongoing CAB partnership and the evaluation of community member engagement over time. Two years after establishing the NPNL Stroke Advisory Board, we describe the Board's activities, evaluation process, and early successes and challenges with the intention of promoting transparency of community-engaged approaches and empower similar partnerships to form.

社区咨询委员会(CABs)可以提高研究的相关性和影响。cab通常指导有时限的研究项目或为大型机构的战略提供信息。相比之下,我们开发了一种用于协作神经康复研究的CAB,作为研究实验室的一个分支。社区成员(如中风幸存者、护理伙伴、治疗师)围绕共同愿景参与研究和社区行动。现有的CAB文献和实施资源主要描述了项目和机构的CAB,很少有替代CAB模型的证据。因此,本文描述了正在进行的CAB伙伴关系的发展,以及随着时间的推移对社区成员参与的评估。在NPNL卒中咨询委员会成立两年后,我们描述了该委员会的活动、评估过程、早期成功和挑战,旨在提高社区参与方法的透明度,并授权形成类似的伙伴关系。
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引用次数: 0
Parenting and Occupational Therapy: An Exploration of Global Practice. 育儿与职业治疗:全球实践的探索。
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2025-11-14 DOI: 10.1177/15394492251382465
Margaret McGrath, Anne Honey, Fidaa Almomani, Yu-Wei Ryan Chen, Yvonne Codd, Junghun Aj Kim, Masafumi Kunishige, Rodolfo Morrison, Jessica Peterson, Evelina Pituch, Muhammad Hibatullah Romli, Deena Rozen, Rachel Sabbah, Hassan I Sarsak, Elaine Saunders, So Sin Sim, Hwei Lan Tan, Farahiyah Wan Yunus, Wong Wing Tung, Veronica O Mara, John V Rider

Occupational therapists recognize parenting as within their scope; however, little is known about how this translates to practice with adult clients with disabilities or other challenges. We sought to describe contemporary global occupational therapy practice for parenting with adult clients, including assessment and interventions. A cross-sectional e-survey designed for the study was implemented in eight languages. Participants were recruited using convenience sampling. Responses were received from 1,357 occupational therapists across 42 countries. Of these, 43.1% (n = 586) frequently ask their clients who are parents about parenting roles and occupations, while 34.2% (n = 465) frequently or very frequently address parenting concerns. Assessments typically relied on informal approaches or the use of broad measures of occupational performance. The most frequently reported parenting intervention was the provision of education and training in parenting skills. Occupational therapy practice for parenting remains underdeveloped, with limited evidence of comprehensive occupational therapy assessment or intervention.

职业治疗师认为养育子女属于他们的范畴;然而,很少有人知道如何将其转化为有残疾或其他挑战的成年客户的实践。我们试图描述当代全球的职业治疗实践,包括评估和干预。为这项研究设计的横断面电子调查以八种语言进行。参与者采用方便抽样方式招募。收到了来自42个国家的1357名职业治疗师的回复。其中,43.1% (n = 586)经常向已为人父母的客户询问育儿角色和职业,34.2% (n = 465)经常或非常频繁地解决育儿问题。评估通常依靠非正式方法或使用广泛的职业绩效衡量标准。最常报告的养育干预措施是提供养育技能方面的教育和培训。职业治疗在养育子女方面的实践仍然不发达,综合职业治疗评估或干预的证据有限。
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引用次数: 0
Promoting Employment Participation for People With Mental Health Challenges: Photovoice and Advocacy. 促进有精神健康挑战的人的就业参与:照片声音和宣传。
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2025-11-14 DOI: 10.1177/15394492251388031
Chinyu Wu, Anna Gray, Janet Paleo, Madison Dziuk, Jennifer Ruiz-Sandoval, Laura Pavitt

People with mental health issues are three times more likely to be unemployed. The purpose of this community-engaged research project was to address an issue brought up by our community partner that people with mental health challenges were restricted from participating in employment. A photovoice study was conducted to answer the research question: what facilitating factors and hindering factors of employment were encountered by people with mental health challenges? Seven participants recruited by our community partner completed three rounds of photo assignments and group meetings. Study findings revealed that mental health conditions presented challenges in finding, acquiring, and retaining employment, and that self-management strategies and a safe work environment were critical to facilitate employment participation. A community advisory group was informed about the study findings. We then hosted photovoice exhibit events to increase awareness about the employment issue for community people. Recommendations for conducting community-engaged research are discussed.

有精神健康问题的人失业的可能性是普通人的三倍。这个社区参与的研究项目的目的是解决我们的社区合作伙伴提出的一个问题,即有精神健康问题的人被限制参加就业。为了回答研究问题:有心理健康问题的人在就业中遇到哪些促进因素和阻碍因素?由我们的社区伙伴招募的七名参与者完成了三轮照片分配和小组会议。研究结果表明,心理健康状况对寻找、获得和保持就业构成挑战,自我管理战略和安全的工作环境对促进就业参与至关重要。向一个社区咨询小组通报了研究结果。然后,我们举办了照片语音展览活动,以提高社区人民对就业问题的认识。讨论了开展社区参与研究的建议。
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引用次数: 0
Health Behavior Performance After a Personalized Occupational Therapy Intervention in Cancer Survivors. 癌症幸存者个体化职业治疗干预后的健康行为表现。
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2025-11-14 DOI: 10.1177/15394492251388033
Alix G Sleight, Yoko E Fukumura, Sandy C Takata, Alexandra E Feldman, Pamela S Roberts, Kara Bissell, L J Amaral, Kathleen D Lyons

Background: Health behaviors significantly influence health outcomes after cancer. However, few studies have tested occupational therapy (OT) self-management training to catalyze health behavior change.

Objectives: To establish proof of concept of a 12-week OT intervention designed to improve occupational performance and/or satisfaction in cancer survivors.

Methods: This single-arm, prospective study used the Canadian Occupational Performance Measure to measure change in occupational performance and satisfaction related to health behaviors in a convenience sample of 20 cancer survivors.

Results: Both occupational performance and occupational satisfaction scores increased for all participants (n = 20) post-intervention. A total of 18 participants (86%) demonstrated a clinically significant change in performance scores (≥2), and 19 participants (95%) demonstrated a clinically significant change in satisfaction scores (≥2).

Conclusion: OT, when leveraged for a health self-management intervention, may result in improvements in both occupational performance and satisfaction related to health behavior in cancer survivors.

背景:健康行为显著影响癌症后的健康结果。然而,很少有研究测试了职业治疗(OT)自我管理培训催化健康行为的改变。目的:建立12周OT干预的概念证明,旨在提高癌症幸存者的职业表现和/或满意度。方法:本单臂前瞻性研究采用加拿大职业绩效量表测量20名癌症幸存者的职业绩效和健康行为相关满意度的变化。结果:所有参与者(n = 20)的职业绩效和职业满意度得分在干预后均有所提高。共有18名参与者(86%)表现出临床显著性的表现得分变化(≥2),19名参与者(95%)表现出临床显著性的满意度得分变化(≥2)。结论:作为一种健康自我管理干预手段,OT可能会改善癌症幸存者的职业绩效和健康行为满意度。
{"title":"Health Behavior Performance After a Personalized Occupational Therapy Intervention in Cancer Survivors.","authors":"Alix G Sleight, Yoko E Fukumura, Sandy C Takata, Alexandra E Feldman, Pamela S Roberts, Kara Bissell, L J Amaral, Kathleen D Lyons","doi":"10.1177/15394492251388033","DOIUrl":"https://doi.org/10.1177/15394492251388033","url":null,"abstract":"<p><strong>Background: </strong>Health behaviors significantly influence health outcomes after cancer. However, few studies have tested occupational therapy (OT) self-management training to catalyze health behavior change.</p><p><strong>Objectives: </strong>To establish proof of concept of a 12-week OT intervention designed to improve occupational performance and/or satisfaction in cancer survivors.</p><p><strong>Methods: </strong>This single-arm, prospective study used the Canadian Occupational Performance Measure to measure change in occupational performance and satisfaction related to health behaviors in a convenience sample of 20 cancer survivors.</p><p><strong>Results: </strong>Both occupational performance and occupational satisfaction scores increased for all participants (<i>n</i> = 20) post-intervention. A total of 18 participants (86%) demonstrated a clinically significant change in performance scores (≥2), and 19 participants (95%) demonstrated a clinically significant change in satisfaction scores (≥2).</p><p><strong>Conclusion: </strong>OT, when leveraged for a health self-management intervention, may result in improvements in both occupational performance and satisfaction related to health behavior in cancer survivors.</p>","PeriodicalId":47195,"journal":{"name":"Otjr-Occupation Participation and Health","volume":" ","pages":"15394492251388033"},"PeriodicalIF":1.5,"publicationDate":"2025-11-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145524160","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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Otjr-Occupation Participation and Health
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