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Between therapy and reality: A lived-experience analysis of the priorities, progress and barriers in stuttering management 治疗与现实之间:对口吃治疗的重点、进展和障碍的生活经验分析
IF 2.1 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-06-02 DOI: 10.1016/j.jfludis.2025.106126
Manal Alatawi, Judith Good
While numerous therapeutic approaches have been developed to assist people who stutter (PWS) in managing their condition, these interventions have been shaped by researchers’ and speech-language pathologists’ perspectives, showing limited effectiveness and long-term impact. Moreover, they often overlook PWS’ lived realities, including their challenges, priorities, and values. This study explores the lived experiences of adults who stutter, providing insights into their priorities, needs, challenges, and perspectives to inform person-centred therapeutic practices. Nineteen adults who stutter, from diverse countries and cultural backgrounds, and with varying experiences with stuttering management, participated in this study. Using convenience and purposive sampling, in-depth semi-structured interviews were conducted. The collected data were analysed through reflexive thematic analysis. The findings revealed the self-perpetuating cycle of fear and avoidance as the core disabling experience of stuttering, restricting meaningful engagement across emotional, cognitive, social, and professional domains. Participants emphasised that breaking this cycle requires proactive self-acceptance, integrating stuttering modification, desensitisation, and non-verbal communication strategies to foster effective communication. However, sustaining progress was hindered by time limitations, inadequate support, and the misalignment of therapy models with real-world needs—particularly those that overlook the fluency trap. Many participants viewed avoidance, rather than stuttering disfluency, as their main concern, thereby highlighting the need for therapeutic approaches that prioritise psychological resilience over fluency. These findings underscore the need for a person-centred approach in stuttering research and therapy, ensuring tailored interventions that are holistic yet structured, goal-oriented, and coherent, where different therapeutic goals complement rather than contradict each other, aligning with PWS’ lived realities.
虽然已经开发了许多治疗方法来帮助口吃(PWS)的人管理他们的状况,但这些干预措施都是由研究人员和语言病理学家的观点所塑造的,显示出有限的有效性和长期影响。此外,他们经常忽视PWS的生活现实,包括他们的挑战、优先事项和价值观。本研究探讨了口吃成人的生活经历,为他们的优先事项、需求、挑战和观点提供见解,为以人为本的治疗实践提供信息。19名口吃的成年人参加了这项研究,他们来自不同的国家和文化背景,有不同的口吃管理经验。为了方便和有目的的抽样,进行了深入的半结构化访谈。通过反身性主题分析对收集到的数据进行分析。研究结果表明,恐惧和回避的自我延续循环是口吃的核心致残经历,限制了情感、认知、社交和专业领域的有意义的参与。与会者强调,打破这种循环需要积极主动的自我接纳,整合口吃矫正、脱敏和非语言沟通策略,以促进有效的沟通。然而,持续的进步受到时间限制、支持不足和治疗模式与现实世界需求不一致的阻碍,特别是那些忽视流利陷阱的治疗模式。许多参与者认为避免口吃,而不是口吃不流利,是他们主要关注的问题,因此强调了治疗方法的必要性,即优先考虑心理弹性而不是流利。这些发现强调了在口吃研究和治疗中需要以人为本的方法,确保有针对性的干预措施是整体的,但有结构的,目标导向的,连贯的,不同的治疗目标是互补的,而不是相互矛盾的,与PWS的生活现实保持一致。
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引用次数: 0
Exploring employers’ beliefs, reactions, and knowledge regarding people who stutter 探索雇主对口吃者的看法、反应和了解
IF 2.1 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-05-17 DOI: 10.1016/j.jfludis.2025.106123
Megan M. Young , Courtney T. Byrd

Purpose

Vocational role entrapment and employment disparities have been well documented in adults who stutter. Employers’ understanding of and attitudes toward stuttering may contribute, at least, in part, to these inequities. The primary purpose of this study was to expand prior research by exploring employers’ beliefs, reactions, and knowledge regarding people who stutter. A secondary purpose was to determine the influence of age, gender, racial and ethnic background, and/or familiarity with a person who stutters on employers’ attitudes (i.e., beliefs and reactions).

Method

A sample of 331 employers from the six largest employment sectors in the U.S. participated in the study. To assess knowledge and attitudes toward stuttering, respondents completed the Public Opinion Survey of Human Attributes-Stuttering (POSHA-S; St. Louis, 2011). Responses were analyzed using descriptive statistics and multiple linear regression.

Results

Most employers reported knowing nothing to very little about stuttering. Additionally, many were unsure about the veracity of common stuttering stereotypes relating to personality traits and etiology. Race and ethnicity, gender, and familiarity with a person who stutters were significant predictors of employers’ attitudes toward people who stutter.

Conclusion

Employers’ misunderstandings of stuttering may perpetuate ableism and contribute to employment disparities impacting adults who stutter. Findings reveal a critical need for education and training for hiring professionals in the United States.
目的:在口吃的成年人中,职业角色陷阱和就业差异已经得到了很好的证明。雇主对口吃的理解和态度可能至少在一定程度上造成了这些不平等。本研究的主要目的是通过探索雇主对口吃者的信念、反应和知识来扩展先前的研究。第二个目的是确定年龄、性别、种族和民族背景和/或对口吃者的熟悉程度对雇主态度(即信念和反应)的影响。方法来自美国六大就业部门的331名雇主参与了这项研究。为了评估被调查者对口吃的认识和态度,他们完成了《人类属性-口吃公众意见调查》(POSHA-S;圣路易斯,2011)。采用描述性统计和多元线性回归对反应进行分析。结果大多数雇主表示对口吃一无所知或知之甚少。此外,许多人不确定与人格特征和病因有关的常见口吃刻板印象的真实性。种族、民族、性别和对口吃者的熟悉程度是雇主对口吃者态度的重要预测因素。结论用人单位对口吃的误解可能导致残疾歧视的持续存在,并导致成年口吃者就业差异的产生。调查结果显示,美国急需对招聘专业人员进行教育和培训。
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引用次数: 0
Parents recounting their journey with stuttering: A preliminary exploration of experiences and adaptation 父母讲述他们的口吃之旅:经验和适应的初步探索
IF 2.1 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-05-10 DOI: 10.1016/j.jfludis.2025.106122
Sadaf Salehi, Derek E. Daniels

Background/purpose

Parents' attitudes and emotions toward stuttering have the potential to impact their reactions to their child's speech. Many parents lack sufficient knowledge about stuttering, which often leads to guilt, uncertainty, and helplessness when their child begins to stutter. However, these experiences may evolve later. This study aimed to explore parents' experiences, as well as their reflections on how these experiences have changed since the onset.

Method

Semi-structured interviews were conducted with 5 parents of individuals who stutter, and 9 other parents chose to complete an anonymous online survey with similar questions. Content analysis was used to identify patterns in parents’ experiences, and thematic analysis was used to delineate the components of their change and adaptation process.

Results

Four main themes emerged: 1) dynamic emotions of parents, reflecting the fluctuating feelings parents experienced; 2) social compromises, where parents made sacrifices because of their child’s stuttering; 3) proactive and protective parenting, involving efforts to support and protect their child; and 4) beyond stuttering, emphasizing the recognition of the child's strengths. Furthermore, a preliminary framework was developed to describe parents' process of adaptation, encompassing six components: emotional struggles, concern and uncertainty, transition to action, seeking support and education, preparation and empowerment, and acceptance. These components were experienced in a non-linear fashion.

Conclusion

This study enhances our understanding of the socio-emotional journey that parents undergo in relation to their child's stuttering. The findings highlight the need for interventions that support both the child and the family and address the challenges parents face.
背景/目的父母对口吃的态度和情绪有可能影响他们对孩子说话的反应。许多父母对口吃缺乏足够的了解,这往往导致孩子开始口吃时感到内疚、不确定和无助。然而,这些经验可能会在以后发展。本研究旨在探讨父母的经历,以及他们对这些经历自发病以来如何变化的反思。方法对5名口吃儿童家长进行半结构化访谈,并对另外9名口吃儿童家长进行匿名在线问卷调查。内容分析用于识别父母经历中的模式,主题分析用于描述其变化和适应过程的组成部分。结果出现了四个主题:1)父母的动态情绪,反映了父母所经历的波动情绪;2)社会妥协,父母为孩子的口吃做出牺牲;3)积极和保护性养育,包括努力支持和保护他们的孩子;4)除了口吃,还要强调承认孩子的长处。此外,我们还建立了一个初步的框架来描述父母的适应过程,包括六个组成部分:情感斗争、关注和不确定性、向行动的过渡、寻求支持和教育、准备和授权以及接受。这些组件以非线性的方式体验。结论本研究增强了我们对父母经历的与孩子口吃有关的社会情感历程的理解。研究结果强调需要采取干预措施,支持儿童和家庭,解决父母面临的挑战。
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引用次数: 0
Assessment and treatment of acquired stuttering: A single subject study 获得性口吃的评估和治疗:一项单受试者研究
IF 2.1 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-05-10 DOI: 10.1016/j.jfludis.2025.106121
Wallis Grout-Brown , Catherine Theys

Purpose

Acquired stuttering typically has an onset in adulthood and can be neurogenic or functional (DSM-5)/dissociative (ICD-11) in nature. Differential diagnosis may not always be straightforward. Unfortunately, there is a lack of systematic prospective research providing detailed assessment and treatment information in this area. This single subject case study provides a detailed overview of the assessment and diagnostic process followed with a client referred with acquired stuttering, treatment techniques used and their outcomes.

Method

This single case study involved a client with a 9-month history of acquired
stuttering who participated in 2 baseline assessment sessions followed by 8 treatment
sessions over two weeks. Treatment was tailored to the needs of the participant and based on assessment findings indicating fluency improvements during singing. Five follow up sessions were held in the 6 months post-treatment to monitor progress and maintenance. Speech disfluencies were coded, and questionnaires were used to assess impact of stuttering.

Results

Baseline assessment results supported a diagnosis of acquired functional stuttering. Following treatment, the frequency of syllables stuttered reduced in all speech tasks: conversation, picture description and reading. The participant regained previous natural fluency, showed overall quality of life improvements and was able to resume work shortly after treatment.

Conclusions

This acquired functional stuttering report showed that while initial differential diagnosis may be difficult, comprehensive assessment facilitates this process and may guide treatment decisions. Treatment led to a regain of previous fluency and a significant improvement in quality of life.
目的:获得性口吃通常在成年期发病,本质上可能是神经源性或功能性(DSM-5)/分离性(ICD-11)。鉴别诊断可能并不总是直截了当的。不幸的是,在这一领域缺乏系统的前瞻性研究提供详细的评估和治疗信息。这个单一主题的案例研究提供了评估和诊断过程的详细概述,随后与一个客户提到获得性口吃,使用的治疗技术和他们的结果。方法本个案研究涉及一位有9个月的获得性口吃病史的患者,他参加了2次基线评估,随后在2周内进行了8次治疗。治疗是根据参与者的需要量身定制的,并基于评估结果表明,在唱歌期间流利性得到改善。治疗后6个月内进行了5次随访,以监测进展和维持情况。语言不流利被编码,并使用问卷来评估口吃的影响。结果基线评估结果支持获得性功能性口吃的诊断。经过治疗后,在所有言语任务中,包括对话、图片描述和阅读,出现音节口吃的频率都有所降低。参与者恢复了先前的自然流畅性,显示出整体生活质量的改善,并且能够在治疗后不久恢复工作。结论:这篇获得性功能性口吃报告表明,虽然最初的鉴别诊断可能很困难,但全面的评估有助于这一过程,并可能指导治疗决策。治疗使患者恢复了以前的流利程度,生活质量也有了显著改善。
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引用次数: 0
A phenomenological exploration of the contextual variability of stuttering 结巴语境变异性的现象学探索
IF 2.1 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-05-10 DOI: 10.1016/j.jfludis.2025.106120
Amanda Ortiz-Alvarez , Richard Arenas

Purpose

It is well documented that stuttering is contextually variable, as its frequency and duration can vary widely across contexts and emerge from interactions across internal and external factors (i.e., corresponding to the speaker and communication contexts in which a speaker may find themselves, respectively). While much of the previous literature has described contextual variability from listeners' vantage points, there is scant research capturing speaker-centered perspectives. As such, this study explored the beliefs and experiences of 10 people who stutter (PWS) regarding: a) how their stuttering varies; b) potential contributors to its variability; and c) how stuttering variability can impact quality of life.

Methods

Ten PWS participated in phenomenological interviews to discuss their lived experiences of stuttering. Analyses of interviews yielded experiential themes and corresponding subthemes encompassing unique and shared insights across participants.

Results

Participants' depictions of contextual variability revealed four broad experiential themes: "randomness and cyclical patterns of stuttering," "internal state factors," "specific cues," and "perceived judgment within social contexts."

Conclusion

The current investigation highlighted various factors that participants felt were associated with stuttering variability based on their lived experiences. Notably, alignment of several findings (e.g., saliency of perceived judgement) with previous conceptualizations of stuttering variability (e.g., concern for social approval) yielded descriptions grounded within speakers’ perspectives that contextualized prevailing (i.e., listener-oriented) narratives of stuttering which have been historically dominant across therapy and research. Thus, results from the present study underscored the vital importance of accounting for lived experiences to advance our current understanding of stuttering and contextual variability.
有充分的证据表明,口吃是环境变量,因为它的频率和持续时间可以在不同的语境中有很大的不同,并且是由内部和外部因素的相互作用产生的(即,分别对应于说话者和说话者可能发现自己的交际语境)。虽然之前的许多文献都是从听者的角度来描述语境变化,但很少有研究从说话者的角度来描述语境变化。因此,本研究探讨了10名口吃者(PWS)的信念和经历:a)他们的口吃如何变化;B)其变异性的潜在贡献者;c)口吃的可变性如何影响生活质量。方法采用现象学访谈法对10名口吃患者进行口吃生活经历调查。对访谈的分析产生了经验主题和相应的子主题,其中包含了参与者之间独特和共享的见解。结果:参与者对情境可变性的描述揭示了四个广泛的经验主题:“口吃的随机性和周期性模式”、“内部状态因素”、“特定线索”和“社会情境中的感知判断”。结论当前的调查强调了参与者认为与他们的生活经历有关的口吃变异性的各种因素。值得注意的是,一些研究结果(例如,感知判断的显著性)与先前对口吃变异性的概念化(例如,对社会认可的关注)相一致,产生了基于说话者视角的描述,这些描述将在治疗和研究中历史上占主导地位的口吃叙事语境化(例如,以听众为导向)。因此,本研究的结果强调了生活经历的重要性,以促进我们目前对口吃和环境变化的理解。
{"title":"A phenomenological exploration of the contextual variability of stuttering","authors":"Amanda Ortiz-Alvarez ,&nbsp;Richard Arenas","doi":"10.1016/j.jfludis.2025.106120","DOIUrl":"10.1016/j.jfludis.2025.106120","url":null,"abstract":"<div><h3>Purpose</h3><div>It is well documented that stuttering is contextually variable, as its frequency and duration can vary widely across contexts and emerge from interactions across internal and external factors (i.e., corresponding to the speaker and communication contexts in which a speaker may find themselves, respectively). While much of the previous literature has described contextual variability from listeners' vantage points, there is scant research capturing speaker-centered perspectives. As such, this study explored the beliefs and experiences of 10 people who stutter (PWS) regarding: a) how their stuttering varies; b) potential contributors to its variability; and c) how stuttering variability can impact quality of life.</div></div><div><h3>Methods</h3><div>Ten PWS participated in phenomenological interviews to discuss their lived experiences of stuttering. Analyses of interviews yielded experiential themes and corresponding subthemes encompassing unique and shared insights across participants.</div></div><div><h3>Results</h3><div>Participants' depictions of contextual variability revealed four broad experiential themes: \"randomness and cyclical patterns of stuttering,\" \"internal state factors,\" \"specific cues,\" and \"perceived judgment within social contexts.\"</div></div><div><h3>Conclusion</h3><div>The current investigation highlighted various factors that participants felt were associated with stuttering variability based on their lived experiences. Notably, alignment of several findings (e.g., saliency of perceived judgement) with previous conceptualizations of stuttering variability (e.g., concern for social approval) yielded descriptions grounded within speakers’ perspectives that contextualized prevailing (i.e., listener-oriented) narratives of stuttering which have been historically dominant across therapy and research. Thus, results from the present study underscored the vital importance of accounting for lived experiences to advance our current understanding of stuttering and contextual variability.</div></div>","PeriodicalId":49166,"journal":{"name":"Journal of Fluency Disorders","volume":"84 ","pages":"Article 106120"},"PeriodicalIF":2.1,"publicationDate":"2025-05-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144071722","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Working memory capacity and rumination in adults who stutter 口吃成人的工作记忆容量和反刍
IF 2.1 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-04-24 DOI: 10.1016/j.jfludis.2025.106119
Geoffrey A. Coalson , Robyn Croft , Courtney T. Byrd

Purpose

Difficulty discarding irrelevant negative stimuli activated in working memory has been linked to increased rumination. Adults who stutter (AWS) report (a) rumination about communication events, and (b) difficulties during tasks that require manipulation of information held in working memory compared to non-stuttering adults (AWNS). Given the link between rumination and working memory, this study examined whether AWS discard negative stimuli faster or slower compared to AWNS, and whether speed of discarding negative information is linked to generalized rumination.

Method

To assess the relationship between working memory and rumination, 26 participants (14 AWS, 12 AWNS) completed a version of the Modified Sternberg Task. Participants first memorized wordlists with positive or negative emotional valence. Participants were then cued to recall a specific wordlist, followed by a prompt word that either matched or conflicted with the wordlist. Manual response latency was compared between groups.

Results

AWS and AWNS exhibit comparable speed when discarding irrelevant stimuli, with both groups slower to discard negative rather than positive irrelevant stimuli. Latency of discarding negative information was not associated with self-reported rumination in AWS.

Conclusions

Preliminary data indicate no differences in the rate at which AWS and AWNS regulate negative stimuli. Additionally, rumination does not appear to be uniquely associated with the speed at which negative information is discarded. Further research is warranted to determine what role, if any, working memory has in the repetitive negative thinking reported by some, but not all, individuals who stutter.
目的:难以丢弃工作记忆中激活的不相关的负面刺激与反刍的增加有关。与非口吃的成年人相比,口吃的成年人(AWS)报告了(a)对沟通事件的反思,以及(b)在需要操作工作记忆中保存的信息的任务中遇到的困难。考虑到反刍与工作记忆之间的联系,本研究考察了与反刍相比,AWS丢弃负面刺激的速度是否更快或更慢,以及丢弃负面信息的速度是否与广义反刍有关。方法为评估工作记忆与反刍的关系,26名被试(14名AWS, 12名AWS)完成了修改后的Sternberg任务。参与者首先记忆具有积极或消极情绪效价的单词表。然后,参与者被提示回忆一个特定的单词表,然后是一个与单词表匹配或冲突的提示词。比较两组间的手动响应延迟。结果saws和AWNS在丢弃不相关刺激时表现出相当的速度,两组丢弃消极不相关刺激的速度比积极不相关刺激慢。丢弃负面信息的延迟与AWS自我报告的反刍无关。结论初步数据显示,AWS和AWNS对负性刺激的调节速率无差异。此外,反刍似乎并不是唯一与负面信息被丢弃的速度相关的。有必要进行进一步的研究,以确定工作记忆在一些(但不是全部)口吃者所报告的重复性消极思维中所起的作用(如果有的话)。
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引用次数: 0
Experiences and therapy expectations of parents of preschool children who stutter 学龄前口吃儿童家长的经验与治疗期望
IF 2.1 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-04-19 DOI: 10.1016/j.jfludis.2025.106117
Havva Nur Yırtık , Nurdan Cankuvvet
Purpose: The study aimed to inquire about the experiences and therapy expectations of parents of preschool children who stutter in Türkiye. Methods: This qualitative research used a phenomenological design. Eight parents (four mothers and four fathers) of preschool children (between 4 and 6 years) who stutter participated in the study. The data were collected through semi-structured interviews and analyzed via thematic analysis. Results: Analysis of data resulted in four main themes and nine sub-themes. The findings showed that children and their parents had been adversely affected by stuttering before therapy. The parents may unintentionally engage in behaviors such as interrupting, finishing sentences, or pressuring their child to speak fluently; had limited knowledge about stuttering; and consulted information sources other than speech and language pathologists before therapy. During therapy, the adverse effects of stuttering on parents decreased; parental attitudes changed; and parents’ knowledge about stuttering increased. Parents expected that therapy would reduce the adverse impacts of stuttering during therapy, to obtain accurate information, and to see a quality interaction between speech and language pathologists and their children. Conclusion: The study reveals that therapy process transforms parents' negative experiences and corrects the inaccuracies in their knowledge about stuttering. The research highlights the importance of considering parents' experiences and expectations, as well as the cultural background of families when conducting therapies.
目的:本研究旨在了解学龄前结巴儿童家长的经历及对结巴治疗的期望。方法:本定性研究采用现象学设计。8位口吃学龄前儿童(4 - 6岁)的父母(4位母亲和4位父亲)参与了这项研究。数据通过半结构化访谈收集,并通过专题分析进行分析。结果:数据分析得出4个主要主题和9个次要主题。研究结果表明,在接受治疗之前,儿童及其父母已经受到口吃的不利影响。父母可能会无意中打断孩子,完成句子,或者强迫孩子流利地说话;对口吃的了解有限;并在治疗前咨询语言病理学家以外的信息来源。治疗期间,口吃对父母的不良影响有所降低;父母的态度改变了;父母对口吃的了解也有所增加。家长期望治疗能够减少治疗过程中口吃的不良影响,获得准确的信息,并看到言语和语言病理学家与孩子之间的高质量互动。结论:本研究揭示了治疗过程改变了父母对口吃的负面体验,纠正了他们对口吃认识的不准确性。该研究强调了在进行治疗时考虑父母的经历和期望以及家庭文化背景的重要性。
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引用次数: 0
Turkish adaptation of the palin parent rating scales: A validity and reliability assessment 佩林父母评定量表的土耳其改编:效度和信度评估
IF 2.1 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-04-07 DOI: 10.1016/j.jfludis.2025.106118
M. Emrah Cangi , Nihal Aydin , Sharon K. Millard

Purpose

The Palin Parent Rating Scales (Palin PRS) is a standardized tool designed to measure (1) the impact of stuttering on a child, (2) the severity of stuttering and its impact on parents, and (3) parents' knowledge about stuttering and their confidence in managing it. This study examines the validity and reliability of the Turkish adaptation of the scale.

Methods

Participants included 193 parents of 118 children who stutter aged 3;0–14;1 years. Analyses included confirmatory factor analysis (CFA), item response theory using the graded response model, internal consistency analyses (Cronbach's alpha, McDonald's omega, and Guttman's lambda), composite reliability, and test-retest reliability.

Results

The CFA supported the scale’s original structure and validated the model after reordering three item pairs within the factors, with the final model showing acceptable fit indices (χ2 = 387.78, χ2/df = 2.67, p < .01; IFI =.91; CFI =.90, and RMSEA =.09). The results supported measurement invariance between mothers and fathers, with values from .71 to 6.44. Composite reliability values ranging from .82 to.92 provided evidence of convergent validity. Reliability coefficients were satisfactory (≥.83), and test-retest results confirmed temporal stability (r = .64–.72).

Conclusion

The results of the psychometric analyses, including validity and reliability assessments, confirmed the three-factor, 19-item structure of the original version in its Turkish adaptation (Palin PRS-TR). Therefore, the Palin PRS-TR is a valid and reliable instrument for use in clinical and scientific settings.
目的佩林家长评定量表(Palin parents Rating Scales,简称PRS)是一个标准化的工具,旨在衡量:(1)口吃对儿童的影响;(2)口吃的严重程度及其对父母的影响;(3)父母对口吃的了解程度和处理口吃的信心。本研究考察了量表的土耳其语适应性的效度和信度。方法研究对象包括118名3岁、0-14岁、1岁口吃儿童的193名家长。分析包括验证性因子分析(CFA)、采用分级反应模型的项目反应理论、内部一致性分析(Cronbach’s alpha、McDonald’s omega和Guttman’s lambda)、复合信度和重测信度。结果CFA支持量表的原始结构,并对因子内的三个条目对重新排序后对模型进行验证,最终模型具有可接受的拟合指数(χ2 = 387.78, χ2/df = 2.67, p <; .01;如果=点;CFI =。90, RMSEA =.09)。结果支持母亲和父亲之间的测量不变性,值在0.71 ~ 6.44之间。复合可靠度值范围为0.82 ~。92提供了聚合效度的证据。信度系数令人满意(≥0.83),重测结果证实了时间稳定性(r = .64 - 0.72)。结论心理测量分析结果,包括效度和信度评估,证实了原版本在土耳其语改编(Palin PRS-TR)中的三因素、19项结构。因此,佩林PRS-TR是一种有效和可靠的仪器,用于临床和科学设置。
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引用次数: 0
How reliable and useful are social media videos about stuttering? A comprehensive evaluation of content and credibility 关于口吃的社交媒体视频有多可靠和有用?综合评价内容和可信度
IF 2.1 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-03-26 DOI: 10.1016/j.jfludis.2025.106116
Derya Çavdar MsC (Corresponding Author) , Muhsin Dölek , Özlem Oğuz
Adults who stutter (AWS) often turn to social media platforms to connect with others, exchange personal experiences and access informational content. This study aimed to assess the reliability, quality, understandability, and actionability of videos about stuttering on these platforms, evaluating them based on both content and source. The most relevant YouTube keywords related to stuttering were identified using Google Trends, and popular Instagram hashtags were determined through Later Application. Videos from the first three pages for each keyword were analyzed for YouTube, and the top 100 videos with the highest engagement for each hashtag were selected using Python for Instagram. Speech and Language Therapists (SLTs) rated the videos using the Modified Quality Criteria for Consumer Health Information (M-DISCERN), Global Quality Score (GQS), and Patient Education Materials Assessment Tool (PEMAT). The analysis also included the number of ratings and likes on comments. Videos created by SLTs on YouTube and Instagram are more reliable and of higher quality compared to videos on AWS and non-expert sources (p < .001). On YouTube, videos created by SLTs are superior in quality, reliability, comprehensibility compared to videos produced by other healthcare professionals (p < .001). Additionally, videos on AWS receive a greater number of positive comments compared to videos from SLTs and other healthcare professionals (p < .001). AWS should carefully consider the content and source of the videos they watch. There is a need for greater social awareness, and SLTs should be encouraged to produce high-quality content on social media platforms to ensure the dissemination of accurate and helpful information.
口吃成年人(AWS)经常利用社交媒体平台与他人联系、交流个人经历和获取信息。本研究旨在评估这些平台上有关口吃的视频的可靠性、质量、可理解性和可操作性,并根据内容和来源对其进行评估。通过谷歌趋势确定了与口吃最相关的 YouTube 关键词,并通过 Later Application 确定了 Instagram 的流行标签。对于 YouTube,我们分析了每个关键词前三页的视频;对于 Instagram,我们使用 Python 挑选了每个标签参与度最高的前 100 个视频。语言治疗师(SLT)使用消费者健康信息质量标准(M-DISCERN)、全球质量评分(GQS)和患者教育材料评估工具(PEMAT)对视频进行评分。分析还包括评论的评分和点赞数。与 AWS 和非专家来源的视频相比,SLT 在 YouTube 和 Instagram 上创建的视频更可靠、质量更高(p <.001)。在 YouTube 上,与其他医疗保健专业人员制作的视频相比,SLT 制作的视频在质量、可靠性和可理解性方面更胜一筹(p < .001)。此外,与 SLT 和其他医疗专业人员制作的视频相比,AWS 上的视频获得了更多的正面评论(p <.001)。亚博app客服生应仔细考虑所观看视频的内容和来源。需要提高社会意识,应鼓励 SLT 在社交媒体平台上制作高质量的内容,以确保传播准确、有用的信息。
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引用次数: 0
Sleep parameters in children who stutter: A comparison with children who do not stutter using actigraphy 口吃儿童的睡眠参数:用活动描记法与非口吃儿童的比较
IF 2.1 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-03-22 DOI: 10.1016/j.jfludis.2025.106115
Maria Clara Helena Couto , Cristiane Moço Canhetti de Oliveira , Isabella Meneses da Silva , Ana Luiza Decanini Miranda de Souza , Mahara Proença , Tiago V. Barreira , Luciana Pinato

Purpose

This study aimed to compare objective sleep parameters in children who stutter (CWS) with those in children who do not stutter (CWNS) using actigraphy. Previous research, mainly relying on subjective methods such as questionnaires and sleep diaries, has highlighted the high prevalence of sleep disorders in individuals who stutter.

Methods

Sleep parameters, including sleep onset latency, sleep efficiency, sleep duration, and total sleep time, were objectively measured using actigraphy over 14 consecutive days. The study included 30 CWS (aged 4–12 years) and 21 CWNS (also aged 4–12 years). Data were analyzed with SPSS Statistics 28.0 software, expressed as medians with interquartile ranges (25–75 %). Group comparisons were conducted using the Mann-Whitney test. The significance level for all statistical tests was set at p < 0.05.

Results

CWS exhibited significantly longer sleep onset latency (p < 0.001) and lower sleep efficiency (p = 0.01) compared to CWNS. No significant differences were observed in total sleep time or sleep duration between the groups.

Discussion

This study provides objective evidence that CWS experience specific alterations in sleep parameters, particularly in sleep onset latency and sleep efficiency. This suggests a higher prevalence of sleep disturbances within this population. These findings highlight the importance of integrating sleep assessments into the clinical management of stuttering to improve therapeutic outcomes.
目的应用活动描记法比较口吃儿童与非口吃儿童的客观睡眠参数。先前的研究主要依靠主观方法,如问卷调查和睡眠日记,强调了口吃者睡眠障碍的高发性。方法连续14天,采用活动描记仪客观测量睡眠参数,包括睡眠发作潜伏期、睡眠效率、睡眠持续时间和总睡眠时间。该研究包括30名CWS(4-12岁)和21名CWNS(4-12岁)。数据采用SPSS统计软件28.0进行分析,以四分位数间的中位数表示(25-75 %)。采用Mann-Whitney检验进行组间比较。所有统计检验的显著性水平设为p <; 0.05。结果与CWNS相比,scws患者睡眠潜伏期明显延长(p <; 0.001),睡眠效率显著降低(p = 0.01)。两组之间的总睡眠时间和睡眠持续时间没有显著差异。本研究提供了客观证据,证明CWS在睡眠参数方面有特定的改变,特别是在睡眠开始潜伏期和睡眠效率方面。这表明这一人群中睡眠障碍的患病率更高。这些发现强调了将睡眠评估纳入口吃临床管理以提高治疗效果的重要性。
{"title":"Sleep parameters in children who stutter: A comparison with children who do not stutter using actigraphy","authors":"Maria Clara Helena Couto ,&nbsp;Cristiane Moço Canhetti de Oliveira ,&nbsp;Isabella Meneses da Silva ,&nbsp;Ana Luiza Decanini Miranda de Souza ,&nbsp;Mahara Proença ,&nbsp;Tiago V. Barreira ,&nbsp;Luciana Pinato","doi":"10.1016/j.jfludis.2025.106115","DOIUrl":"10.1016/j.jfludis.2025.106115","url":null,"abstract":"<div><h3>Purpose</h3><div>This study aimed to compare objective sleep parameters in children who stutter (CWS) with those in children who do not stutter (CWNS) using actigraphy. Previous research, mainly relying on subjective methods such as questionnaires and sleep diaries, has highlighted the high prevalence of sleep disorders in individuals who stutter.</div></div><div><h3>Methods</h3><div>Sleep parameters, including sleep onset latency, sleep efficiency, sleep duration, and total sleep time, were objectively measured using actigraphy over 14 consecutive days. The study included 30 CWS (aged 4–12 years) and 21 CWNS (also aged 4–12 years). Data were analyzed with SPSS Statistics 28.0 software, expressed as medians with interquartile ranges (25–75 %). Group comparisons were conducted using the Mann-Whitney test. The significance level for all statistical tests was set at p &lt; 0.05.</div></div><div><h3>Results</h3><div>CWS exhibited significantly longer sleep onset latency (p &lt; 0.001) and lower sleep efficiency (p = 0.01) compared to CWNS. No significant differences were observed in total sleep time or sleep duration between the groups.</div></div><div><h3>Discussion</h3><div>This study provides objective evidence that CWS experience specific alterations in sleep parameters, particularly in sleep onset latency and sleep efficiency. This suggests a higher prevalence of sleep disturbances within this population. These findings highlight the importance of integrating sleep assessments into the clinical management of stuttering to improve therapeutic outcomes.</div></div>","PeriodicalId":49166,"journal":{"name":"Journal of Fluency Disorders","volume":"84 ","pages":"Article 106115"},"PeriodicalIF":2.1,"publicationDate":"2025-03-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143714950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Journal of Fluency Disorders
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