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Journal of Fluency Disorders最新文献

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The good, the bad, and the ugly: Unpacking the pros and cons associated with change for adults who stutter 好的,坏的和丑陋的:为口吃的成年人打开与变化相关的利弊
IF 2.1 3区 医学 Q1 Arts and Humanities Pub Date : 2022-09-01 DOI: 10.1016/j.jfludis.2022.105924
Hope Gerlach-Houck , Naomi H. Rodgers

Purpose

The purpose of the current study was to document the pros and cons that adults who stutter may consider when deciding to change how they live with stuttering.

Methods

Semi-structured interviews were conducted with 11 adults who stutter and 12 speech-language pathologists who specialize in stuttering therapy. Participants were asked to identify and discuss the advantages and disadvantages of making a change to how they live with stuttering. Reflexive thematic analysis was used to generate multilevel themes.

Results

Meaningful units were extracted from interview transcripts to develop 37 discrete pros and 15 discrete cons. The pros of change clustered into five organizing themes: enriching one’s social relationships, feeling better in social interactions, developing a healthier sense of self, gaining autonomy, and communicating easier. The cons of change clustered into three organizing themes: experiencing discomfort, expending resources, and recognizing that some things may not change.

Conclusion

This study documented why adults who stutter may or may not seek change. Identifying the pros and cons of behavior change is an important step in understanding why some clients who stutter are ambivalent about, or resistant to, the therapeutic process.

目的当前研究的目的是记录口吃的成年人在决定改变他们的口吃生活方式时可能考虑的利弊。方法对11名成人口吃患者和12名口吃治疗专家进行半结构化访谈。参与者被要求确定并讨论改变口吃生活方式的利弊。反身性主位分析用于生成多层次主位。结果从访谈记录中提取有意义的单位,得出37个离散的优点和15个离散的缺点。改变的优点集中在五个组织主题中:丰富一个人的社会关系,在社会交往中感觉更好,发展更健康的自我意识,获得自主权,更容易沟通。改变的缺点集中在三个组织主题上:体验不适,消耗资源,认识到有些事情可能不会改变。结论:这项研究记录了为什么口吃的成年人可能会或可能不会寻求改变。识别行为改变的利弊是理解为什么一些口吃患者对治疗过程矛盾或抗拒的重要一步。
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引用次数: 1
Development and evaluation of the psychometric properties of the caregiver burden scale for parents of children who stutter (CBS-PCWS) 口吃儿童父母照顾者负担量表(CBS-PCWS)心理测量学特征的编制与评价
IF 2.1 3区 医学 Q1 Arts and Humanities Pub Date : 2022-09-01 DOI: 10.1016/j.jfludis.2022.105921
Mahsa Mehdizadeh Behtash , Banafshe Mansuri , Masoomeh Salmani , Seyed Abolfazl Tohidast , Reyhaneh Zarjini , Ronald Callaway Scherer

Purpose

Caring for a child who stutters can impose excessive pressure on parents. Caregiver burden affects many aspects of parents' lives. Paying attention to parents in the treatment of children who stutter (CWS) is important because parents play a key role in the treatment of CWS. The aim of the study was to develop the Caregiver Burden Scale for Parents of Children Who Stutter (CBS-PCWS) and investigate the psychometric properties of the CBS-PCWS.

Method

The CBS-PCWS was developed using interviews with 15 parents of CWS and a literature review. The content validity, face validity, construct validity using exploratory factor analysis (EFA), and reliability of the CBS-PCWS were investigated. The content validity was evaluated using 10 experts’ opinions. Face validity was determined using interviews with 10 parents of CWS. The reliability of the CBS-PCWS was evaluated through internal consistency and test-retest reliability.

Results

The scale development resulted in the creation of 137 items. During an expert panel with the presence of the research team, 51 similar items were eliminated. During the qualitative content validity stage, nine items were added to the initial scale. After determining the content and face validity, the number of CBS-PCWS items was reduced to 52 items. In the construct validity stage using EFA with responses from 364 parents, eight items of the CBS-PCWS were removed due to low factor loadings. The results of the EFA indicated that the CBS-PCWS contained five factors: psychological and emotional, personal and physical, support for caregiving, culpability, and socio-communicative. The Cronbach's alpha values of the scale domains were in the 0.78–0.94 range. In addition, the ICC test-retest coefficient for the total score of the CBS-PCWS was 0.93 and for its domains was in 0.91–0.99 range.

Conclusion

The CBS-PCWS has 44 items with five domains and is a valid and reliable scale that can be used for clinical or research purposes. More studies are required to evaluate further psychometric properties of the CBS-PCWS.

照顾口吃的孩子会给父母带来过大的压力。照顾者的负担影响父母生活的许多方面。在治疗口吃儿童的过程中,关注父母是非常重要的,因为父母在口吃儿童的治疗中起着关键的作用。本研究旨在编制《口吃儿童父母照顾者负担量表》(CBS-PCWS),并探讨其心理测量学特征。方法通过对15名患儿家长的访谈和文献复习,编制CBS-PCWS量表。采用探索性因子分析(EFA)对CBS-PCWS的内容效度、面孔效度、结构效度和信度进行了研究。采用10位专家意见评价内容效度。通过对10名CWS家长的访谈来确定面部效度。通过内部一致性和重测信度评估CBS-PCWS的信度。结果量表开发共产生137个项目。在研究小组出席的专家小组会议上,51个类似的项目被淘汰。在质性内容效度阶段,在初始量表中增加了9个条目。在确定了内容和面效度后,CBS-PCWS的条目数减少到52个。在结构效度阶段,使用EFA对364名父母的回答进行分析,由于因子负荷低,CBS-PCWS的8个条目被删除。EFA结果表明,CBS-PCWS包含五个因素:心理和情感、个人和身体、护理支持、罪责和社会交际。各量表域的Cronbach’s alpha值在0.78 ~ 0.94之间。此外,CBS-PCWS总分的ICC重测系数为0.93,各域的ICC重测系数为0.91 ~ 0.99。结论CBS-PCWS量表有5个领域44个条目,是一份有效可靠的量表,可用于临床或研究。需要更多的研究来进一步评估CBS-PCWS的心理测量特性。
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引用次数: 0
书评
IF 2.1 3区 医学 Q1 Arts and Humanities Pub Date : 2022-09-01 DOI: 10.1016/j.jfludis.2022.105923
Lisa LaSalle
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引用次数: 0
IF 2.1 3区 医学 Q1 Arts and Humanities Pub Date : 2022-09-01 DOI: 10.1016/j.jfludis.2022.105920
Kenneth J. Logan
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引用次数: 0
书评
IF 2.1 3区 医学 Q1 Arts and Humanities Pub Date : 2022-09-01 DOI: 10.1016/j.jfludis.2022.105919
Marie-Christine Franken
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引用次数: 0
IF 2.1 3区 医学 Q1 Arts and Humanities Pub Date : 2022-09-01 DOI: 10.1016/j.jfludis.2022.105927
Michael P. Boyle
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引用次数: 0
IF 2.1 3区 医学 Q1 Arts and Humanities Pub Date : 2022-09-01 DOI: 10.1016/j.jfludis.2022.105922
Patricia M. Zebrowski
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引用次数: 0
The disabling nature of hope in discovering a biological explanation of stuttering 寻找口吃的生物学解释的希望的残废本质
IF 2.1 3区 医学 Q1 Arts and Humanities Pub Date : 2022-06-01 DOI: 10.1016/j.jfludis.2022.105906
Prabhat , Ellen Rombouts , Pascal Borry

Discovering developmental stuttering’s biological explanation has been an enduring concern. Novel advances in genomics and neuroscience are making it possible to isolate and pinpoint genetic and brain differences implicated in stuttering. This is giving rise to a hope that, in the future, dysfluency could be better managed if stuttering’s biological basis could be better understood. Concurrent to this, there is another hope rising: a hope of a future where differing fluencies would not be viewed through a reductive lens of biology and associated pathologies. The central aim of this paper is to edge out ethical implications of novel research into stuttering’s biological explanation. In doing so, the paper proposes to look beyond the bifurcation sketched by the medical and social model of disability. The paper demonstrates how the scientific hope of discovering stuttering’s biological explanation acts as an accessory of disablement due to the language of ‘lack’ and ‘deficit’ employed in reporting scientific findings and proposes participatory research with people who stutter as an antidote to manage this disablement.

发现发育性口吃的生物学解释一直是人们关注的焦点。基因组学和神经科学的新进展使分离和查明与口吃有关的基因和大脑差异成为可能。这给人们带来了希望,如果能更好地理解口吃的生物学基础,未来就能更好地控制语言障碍。与此同时,还有另一种希望正在兴起:希望未来不同的流利程度不会通过生物学和相关病理的简化镜头来看待。这篇论文的中心目的是消除对口吃生物学解释的新研究的伦理影响。在这样做的过程中,本文建议超越残疾的医学和社会模式所描绘的分歧。这篇论文展示了发现口吃的生物学解释的科学希望如何成为残疾的附属品,因为在报告科学发现时使用了“缺乏”和“缺陷”的语言,并建议对口吃者进行参与性研究,作为管理这种残疾的解毒剂。
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引用次数: 2
Investigation of the effect of delayed auditory feedback and transcranial direct current stimulation (DAF-tDCS) treatment for the enhancement of speech fluency in adults who stutter: A randomized controlled trial 延迟听觉反馈和经颅直流电刺激(DAF-tDCS)治疗对口吃成人语言流畅性增强的效果研究:一项随机对照试验
IF 2.1 3区 医学 Q1 Arts and Humanities Pub Date : 2022-06-01 DOI: 10.1016/j.jfludis.2022.105907
Narges Moein , Reyhane Mohamadi , Reza Rostami , Michael Nitsche , Reza Zomorrodi , Amir Ostadi

Background

Stuttering is a disorder that begins in childhood and can persist into adulthood. In the present study, it was hypothesized that the combined intervention of transcranial direct current stimulation (tDCS) and Delayed Auditory Feedback (DAF) would cause greater improvement in speech fluency in comparison to the intervention with DAF alone.

Methods

A randomized, double-blind, sham-controlled clinical trial was conducted to investigate the effects of the combined intervention. Fifty adults with moderate to severe stuttering (25 females, 25 males, Mean age=26.92, SD=6.23) were randomly allocated to the anodal or sham tDCS group. In the anodal tDCS group, participants received DAF combined with anodal tDCS (1 mA), while the sham tDCS group was exposed to sham tDCS simultaneously with DAF. In this study, a 60-ms delay was used for DAF intervention, and tDCS was applied over the left superior temporal gyrus. Each individual participated in six 20-minute intervention sessions (held on six consecutive days). Speech fluency was assessed before and after the intervention.

Results

In the anodal tDCS group, the scores of the Stuttering Severity Instrument, Overall Assessment of the Speaker’s Experience of Stuttering questionnaire, and the percentage of stuttered syllable reduced significantly (from average baseline rates of 8.45%, across three tasks, to 5.36% at the follow-up assessment) after the intervention.

Conclusion

The results of this study suggest that delivery of anodal tDCS when combined with DAF may enhance stuttering reduction effects for six weeks following the intervention.

背景:口吃是一种始于童年并可能持续到成年的疾病。本研究假设经颅直流电刺激(tDCS)和延迟听觉反馈(DAF)联合干预比单独DAF干预对言语流畅性的改善更大。方法采用随机、双盲、假对照临床试验,观察联合干预的效果。50例成人中重度口吃患者(女25例,男25例,平均年龄26.92岁,SD=6.23)随机分为正畸组和假tDCS组。在阳极tDCS组中,参与者接受DAF联合阳极tDCS (1 mA),而假tDCS组同时暴露于假tDCS和DAF。在本研究中,延迟60 ms进行DAF干预,tDCS应用于左侧颞上回。每个人参加6次20分钟的干预疗程(连续6天)。在干预前后分别评估语言流利程度。结果在正常tDCS组,干预后口吃严重程度量表、说话人口吃体验综合评估问卷得分和口吃音节百分比均显著降低(从三个任务的平均基线率8.45%降至随访评估时的5.36%)。结论本研究结果表明,在干预后的6周内,与DAF联合使用阳极tDCS可增强口吃减少效果。
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引用次数: 0
Systematic review of implementation quality of non-pharmacological stuttering intervention trials for children and adolescents 儿童和青少年非药物口吃干预试验实施质量的系统评价
IF 2.1 3区 医学 Q1 Arts and Humanities Pub Date : 2022-03-01 DOI: 10.1016/j.jfludis.2021.105884
Hilde Hofslundsengen , Melanie Kirmess , Linn Stokke Guttormsen , Kari-Anne Bottegaard Næss , Elaina Kefalianos

Purpose

This narrative systematic review in line with PRISMA guidelines aims to investigate the implementation quality of previously published group comparison clinical trials of stuttering interventions for children and adolescents (under age 18 years).

Methods

We searched for publications in the databases Eric, PsychInfo, PubMed and Web of Science using the search terms ‘stutt*’ or ‘stamm*’and ‘intervention’, ‘trial’ or ‘treatment’. We reviewed the implementation elements reported in studies and how these elements were used to report intervention outcomes.

Results

3,017 references published between 1974–2019 were identified. All references were screened for eligibility using predefined selection criteria resulting in 21 included studies. The implementation quality details reported varied between studies. Existing studies most commonly lacked details about the support system provided to SLPs administering the interventions and monitoring of treatment fidelity both in the clinical setting and in the home environment. Support systems for participant’s parents and treatment dosage were generally well reported. Dosage was the most common implementation quality element considered in analyses of treatment effect and within discussions of findings.

Conclusion

Findings highlight the need for future clinical trials of stuttering interventions to closely adhere to systematic guidelines for reporting implementation quality to ensure reliability of trial outcomes. A checklist for reporting clinical trials of non-pharmacological stuttering interventions is proposed.

目的:根据PRISMA指南,本综述旨在调查先前发表的儿童和青少年(18岁以下)口吃干预组比较临床试验的实施质量。方法我们在Eric、PsychInfo、PubMed和Web of Science数据库中检索出版物,检索词为“stutt*”或“stamm*”,以及“intervention”、“trial”或“treatment”。我们回顾了研究中报告的实施要素以及如何使用这些要素来报告干预结果。结果共检索到1974-2019年间发表的文献3017篇。使用预定义的选择标准筛选所有参考文献的合格性,最终纳入21项研究。各研究报告的实施质量细节各不相同。现有的研究通常缺乏关于在临床环境和家庭环境中向特殊家庭家庭提供的支持系统的细节,这些支持系统管理干预措施和监测治疗的保真度。参与者父母的支持系统和治疗剂量一般都有很好的报道。剂量是治疗效果分析和结果讨论中考虑的最常见的实施质量因素。结论研究结果强调,未来的口吃干预临床试验需要严格遵循报告实施质量的系统指南,以确保试验结果的可靠性。提出了一份报告非药物口吃干预临床试验的清单。
{"title":"Systematic review of implementation quality of non-pharmacological stuttering intervention trials for children and adolescents","authors":"Hilde Hofslundsengen ,&nbsp;Melanie Kirmess ,&nbsp;Linn Stokke Guttormsen ,&nbsp;Kari-Anne Bottegaard Næss ,&nbsp;Elaina Kefalianos","doi":"10.1016/j.jfludis.2021.105884","DOIUrl":"10.1016/j.jfludis.2021.105884","url":null,"abstract":"<div><h3>Purpose</h3><p>This narrative systematic review in line with PRISMA guidelines aims to investigate the implementation quality of previously published group comparison clinical trials of stuttering interventions for children and adolescents (under age 18 years).</p></div><div><h3>Methods</h3><p>We searched for publications in the databases Eric, PsychInfo, PubMed and Web of Science using the search terms ‘stutt*’ or ‘stamm*’and ‘intervention’, ‘trial’ or ‘treatment’. We reviewed the implementation elements reported in studies and how these elements were used to report intervention outcomes.</p></div><div><h3>Results</h3><p>3,017 references published between 1974–2019 were identified. All references were screened for eligibility using predefined selection criteria resulting in 21 included studies. The implementation quality details reported varied between studies. Existing studies most commonly lacked details about the support system provided to SLPs administering the interventions and monitoring of treatment fidelity both in the clinical setting and in the home environment. Support systems for participant’s parents and treatment dosage were generally well reported. Dosage was the most common implementation quality element considered in analyses of treatment effect and within discussions of findings.</p></div><div><h3>Conclusion</h3><p>Findings highlight the need for future clinical trials of stuttering interventions to closely adhere to systematic guidelines for reporting implementation quality to ensure reliability of trial outcomes. A checklist for reporting clinical trials of non-pharmacological stuttering interventions is proposed.</p></div>","PeriodicalId":49166,"journal":{"name":"Journal of Fluency Disorders","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0094730X21000632/pdfft?md5=aef844e01fa3138d515d711a592c9d8a&pid=1-s2.0-S0094730X21000632-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10324771","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
期刊
Journal of Fluency Disorders
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