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Explicating Ageism in the Productive Aging Framework. 在生产老龄化框架中解释年龄歧视。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnad156
Nancy Morrow-Howell, Ernest Gonzales

This essay argues for a fuller integration of ageism and age discrimination into the productive aging framework. We briefly review the productive aging scholarship and the extent to which ageism has been considered in regard to working, volunteering, education, and caregiving. We suggest that ageism has not been adequately considered, and we identify how it permeates productive engagement in later life. We introduce modifications to the productive aging framework to more directly capture the roles of ageism and age discrimination in activity engagement and the outcomes achieved. We argue for the integration of key concepts from minority stress theory and critical race theory that may yield important insights for an increasingly diverse older population. We conclude with research directions that will guide intervention development to reduce ageism at the societal, organizational, and individual level.

本文主张将年龄歧视和年龄歧视更全面地纳入生产性老龄化框架。我们简要回顾了生产性老龄化学术以及在工作,志愿服务,教育和护理方面考虑的年龄歧视程度。我们认为年龄歧视没有得到充分的考虑,我们确定了它是如何渗透到以后生活的生产性参与的。我们对生产性老龄化框架进行了修改,以更直接地捕捉年龄歧视和年龄歧视在活动参与和取得的成果中的作用。我们主张整合少数民族压力理论和批判种族理论的关键概念,这可能为日益多样化的老年人口提供重要的见解。最后,我们提出研究方向,以指导干预发展,以减少社会、组织和个人层面的年龄歧视。
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引用次数: 0
"Stronger Than I Thought I Was": Older Adults' Coping Across Two Years of the COVID-19 Pandemic. "比我想象的更坚强":跨越 COVID-19 大流行两年的老年人应对之道。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnad164
Heather R Fuller, Andrea Huseth-Zosel, Emily Kinkade, Bryce Van Vleet, Melisa Hajdar

Background and objectives: Throughout the coronavirus disease 2019 (COVID-19) pandemic, older adults developed coping strategies to adapt to the necessary social distancing precautions; however, over time, especially as vaccines became available, their need and ability to adapt and cope shifted. This longitudinal, mixed-methods study investigates changes in older adults' perceptions of coping across the first 2 years of the pandemic.

Research design and methods: Between April 2020 and June 2022, 5 waves of interviews were conducted with 76 Midwestern older adults aged 70-97. At each timepoint, participants rated their level of perceived coping. They also answered a series of open-ended questions about their current daily life, experiences, and perceptions during the pandemic.

Results: Repeated-measure ANOVA indicated participants' perceived coping significantly increased over 2 years and qualitative explanations contextualized these shifts. Thematic coding of interview transcripts identified themes of: (1) taking problem-focused approaches and (2) cultivating emotional resiliency, with multiple subthemes nested within each. Subtheme meanings shifted once vaccines were available, as participants adapted to a "new normal" lifestyle and appreciated their own resilience.

Discussion and implications: Findings suggest older adults had nuanced and shifting coping experiences throughout the initial 2 years of the pandemic, but overall coped by drawing on life experiences. Our discussion highlights variability in older adults' coping over time and directions for future study and practice.

背景和目的:在 COVID-19 大流行期间,老年人制定了应对策略,以适应必要的社会隔离预防措施;然而,随着时间的推移,特别是随着疫苗的上市,他们适应和应对的需求和能力发生了变化。这项纵向混合方法研究调查了大流行头两年中老年人对应对策略看法的变化:在 2020 年 4 月至 2022 年 6 月期间,对 76 名年龄在 70-97 岁之间的中西部老年人进行了五波访谈。在每个时间点,参与者都会对其感知到的应对水平进行评分。他们还回答了一系列开放式问题,内容涉及他们当前的日常生活、经历以及对大流行病的看法:结果:重复测量方差分析表明,参与者的认知应对能力在两年内显著提高,定性解释说明了这些转变的背景。访谈记录的主题编码确定了以下主题:1) 采取以问题为中心的方法;2) 培养情绪恢复能力,每个主题中又包含多个子主题。疫苗上市后,随着参与者适应 "新常态 "生活方式并认识到自身的恢复能力,次主题的含义也发生了变化:研究结果表明,在大流行病发生的最初两年中,老年人的应对经验存在细微差别且不断变化,但总体而言,他们是通过利用生活经验来应对大流行病的。我们的讨论强调了老年人应对方式随时间的变化以及未来研究和实践的方向。
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引用次数: 0
"It's like crystal gazing": The Lived Experience of Anticipating End-of-Life Choices in Older Adults and Their Close Ones. 就像凝视水晶一样":老年人及其亲友预测临终选择的生活体验。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnae061
Marte Fleur Antonides, Els van Wijngaarden

Background and objectives: Nowadays people increasingly try to take control over the end of their lives by anticipating end-of-life choices. Explication of these choices is encouraged using advance care planning (ACP). We aim to deepen our understanding of how choice-making processes are lived in real life, exploring the experience of community-dwelling older adults and their close ones over time.

Research design and methods: A multiperspective and longitudinal approach grounded in phenomenology was chosen. Ten triads consisting of an older adult (75+) and 2 close ones (n = 30) were interviewed, twice individually and once as a group, over 20 months (=70 interviews). Data were thematically analyzed both longitudinally and from all 3 perspectives.

Results: The essential meaning of anticipatory choice-making processes was described as a dynamic and relationally entangled decisional process, to navigate between paradoxical choices for an opaque future. Three fields of tension were created due to ambivalence in these choice-making processes: navigation between having and losing control, between taking away and burdening with responsibility, and between expressing and holding back oneself.

Discussion and implications: Anticipation of choices for hypothetical end-of-life scenarios turned out to be complex and ambivalent. Most older adults resisted ambivalence and ignored complexity in an attempt to stay in control over their end of life. The burdening impact of choices on close ones illuminated the relationality of choice-making processes. These aspects of end-of-life choice-making processes should be integrated into ACP in order to better understand and care for people and their close ones faced with these choices.

背景和目的:如今,人们越来越多地通过预测生命末期的选择来控制自己的生命。预先护理规划(ACP)鼓励人们对这些选择进行阐述。我们的目标是加深对现实生活中如何进行选择的理解,探索居住在社区的老年人及其近亲在不同时期的经历:我们选择了一种以现象学为基础的多视角纵向研究方法。在 20 个月的时间里(=70 次访谈),对由一位老年人(75 岁以上)和两位亲近者(人数=30)组成的 10 个三人小组进行了两次单独访谈和一次小组访谈。从纵向和三个角度对数据进行了主题分析:结果:预测选择过程的基本含义被描述为一个动态的、关系纠缠的决策过程,在矛盾的选择之间为不透明的未来导航。由于在这些选择过程中存在矛盾,因此产生了三个紧张领域:在拥有和失去控制之间、在剥夺和承担责任之间、在表达和保留自我之间进行导航:对假想临终情景的选择预期是复杂和矛盾的。大多数老年人抵制矛盾心理,忽视复杂性,试图继续控制自己的临终。选择对亲近的人造成的负担性影响揭示了选择过程的关系性。生命末期选择过程的这些方面应纳入 ACP,以便更好地理解和照顾面临这些选择的人及其近亲。
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引用次数: 0
Medicaid Enrollment and Intergenerational Transfers of Wealth Among Older Adults. 老年人的医疗补助注册和财富代际转移》(Medicaid Enrollment and Intergeneration Transfers of Wealth among Old Adults)。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnae074
Amanda Spishak-Thomas

Background and objectives: Medicaid look-back periods are meant to prevent Medicaid applicants from gifting assets to meet eligibility requirements. These policies have the potential to affect families across generations given their ability to restrict the transfer of assets between parent and child.

Research design and methods: Using 2008-2018 data from the Health and Retirement Study, this study analyzed the estate planning and familial wealth transfer behaviors of a cohort of older adults aged 65 and older who became Medicaid recipients during a 10-year period.

Results: There were 8,347 respondents aged 65 and older in 2008 and 11.96% of respondents who were not Medicaid recipients at baseline became recipients over the study period. A little more than one third (36.47%) of Medicaid recipients participated in estate planning and asset transfer prior to becoming a recipient, with significant differences among select demographic characteristics. Married recipients were more likely to transfer money compared to their widowed counterparts (51.69% compared to 36.44%; p < .001) and transferred larger amounts compared to those unmarried ($16,286.94 compared to 5,379.13). White, well-educated, married, men participated in higher rates of estate planning, likely a reflection of who has access to resources to make necessary arrangements early.

Discussion and implications: This analysis concludes that more structurally advantaged groups are more likely to engage in estate planning prior to Medicaid enrollment. This analysis demonstrates that some individuals may circumvent Medicaid policies like look-back periods and estate recovery, while others cannot. Policymakers should consider policies that promote the financial health of low-income families.

背景和目标:医疗补助 "回溯期旨在防止 "医疗补助 "申请人为满足资格要求而赠送资产。由于这些政策能够限制父母和子女之间的资产转移,因此有可能对几代人的家庭产生影响:本研究利用 2008-2018 年健康与退休研究的数据,分析了 10 年间成为医疗补助金领取者的 65 岁及以上老年人的遗产规划和家庭财富转移行为:2008 年共有 8347 名 65 岁及以上的受访者,在研究期间,11.96% 的受访者在基线时不是《医疗补助计划》的受益人,但后来成为了受益人。略高于三分之一(36.47%)的《医疗补助计划》受助人在成为受助人之前参与了遗产规划和资产转移,不同人口特征的受助人之间存在显著差异。与丧偶的受助人相比,已婚的受助人更有可能转移资金(51.69% 比 36.44%;讨论和影响:本分析的结论是,结构上更具优势的群体更有可能在加入《医疗补助计划》之前进行遗产规划。该分析表明,有些人可以规避《医疗补助计划》的回溯期和遗产追偿等政策,而有些人则不能。政策制定者应考虑促进低收入家庭财务健康的政策。
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引用次数: 0
Paying a Heavy Price: Costs of Care for People With Severe Obesity in Nursing Homes. 付出沉重的代价:疗养院护理重度肥胖患者的费用。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnad150
Luisa Fernandez, Bianca Shieu, Alison Trinkoff, Nicholas Castle, David G Wolf, Steven Handler, John A Harris

Background and objectives: The prevalence of resident obesity in nursing homes has increased dramatically from 22% to 28% between 2005 and 2015. To provide care for people with obesity, nursing homes have changed their admissions, staffing, and equipment, but underlying these changes are increased resources and financial costs of care. The purpose of this study is to describe nursing home organizational aspects of caring for older adults with obesity, with a focus on economic factors, from the perspective of nursing home staff and leadership.

Research design and methods: This qualitative study used descriptive approaches; data were collected through semistructured telephone interviews. Of 77 nursing home staff and leaders identified as potential study participants, 6 were ineligible, and 71 participated in the study through interviews conducted from 2019 to 2022.

Results: A total of 4 primary themes described the issues surrounding the cost of care for obesity in nursing homes: inefficient and risky use of staff time in a setting of persistent staff shortage, expensive and unique equipment needs, inadequate general reimbursement with an absence of obesity-specific reimbursement supplements, and competing short- and long-term management solutions.

Discussion and implications: This qualitative study of nursing home staff and leadership underscores a need for improved approaches to funding obesity care within existing nursing payment models. The increasing prevalence of obesity and the burden of the costs of obesity care for nursing homes will escalate this need over the coming decade.

背景和目标:2005年至2015年间,养老院居民肥胖的患病率从22%急剧上升到28%。为了为肥胖者提供护理,养老院改变了入院人数、人员配备和设备,但这些变化的背后是护理资源和财务成本的增加。本研究的目的是从养老院工作人员和领导层的角度,描述养老院照顾肥胖老年人的组织方面,重点是经济因素。研究设计和方法:本研究采用描述性方法进行定性研究;数据是通过半结构化的电话访谈收集的。在77名被确定为潜在研究参与者的养老院工作人员和领导中,6人不符合资格,71人通过2019年至2022年的访谈参与了这项研究,昂贵而独特的设备需求,缺乏针对肥胖的报销补充的一般报销不足,以及相互竞争的短期和长期管理解决方案。讨论和影响:这项针对养老院工作人员和领导层的定性研究强调,在现有的护理支付模式下,需要改进资助肥胖护理的方法。在未来十年中,肥胖的日益流行和养老院肥胖护理费用的负担将加剧这一需求。
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引用次数: 0
Performance of the Modified Caregiver Strain Index in a Sample of Black and White Persons Living With Dementia and Their Caregivers. 黑人和白人痴呆症患者及其护理人员样本中的 "改良护理人员压力指数"(MCSI)表现。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnae052
Carolina Pereira-Osorio, Emily Brickell, Bern Lee, Beth Arredondo, Robert John Sawyer

Background and objectives: This study examined the performance of the Modified Caregiver Strain Index (MCSI) in a sample of Black and White caregivers of persons living with dementia.

Research design and methods: Data on 153 dyads enrolled in the Care Ecosystem dementia care management program were analyzed, including sociodemographic variables, dementia severity, and caregiver burden and wellbeing. Factor structure, item-response patterns, and concurrent validity were assessed across racial groups.

Results: Differences between Black and White caregivers included gender, dyad relation, and socioeconomic disadvantage. Factor structure and item loadings varied by racial cohort, with parameters supporting a 3-factor model. For Black caregivers, finances and work, emotional and physical strain, and family and personal adjustment items loaded together on individual factors. For White caregivers physical and emotional strain items loaded on separate factors, although personal and family adjustment items loaded with work and financial strain items. Item-level analysis revealed differences between groups, with Black caregivers endorsing physical strain to a greater degree (p = .003). Total MCSI scores were positively correlated with concurrent measures like the PHQ-9 (White: r = 0.67, Black: r = 0.54) and the GAD-2 (White: r = 0.47, Black: r = 0.4), and negatively correlated with self-efficacy ratings (White: r = -0.54, Black: r = -0.55), with a p < .001 for all validity analysis.

Discussion and implications: The MCSI displayed acceptable statistical performance for Black and White caregivers of persons living with dementia and displayed a factor structure sensitive to cultural variations of the construct. Researchers results highlight the inherent complexity and the relevance of selecting inclusive measures to appropriately serve diverse populations.

背景和目的:本研究考察了黑人和白人痴呆症患者护理人员的改良护理人员压力指数(MCSI)表现:本研究考察了黑人和白人痴呆症患者护理者样本中的 "改良护理者压力指数"(MCSI)的表现:研究分析了参加护理生态系统痴呆症护理管理项目的 153 对夫妇的数据,包括社会人口变量、痴呆症严重程度、护理者的负担和幸福感。对不同种族群体的因子结构、项目反应模式和并发有效性进行了评估:黑人和白人照顾者之间的差异包括性别、配对关系和社会经济劣势。因子结构和项目负荷因种族群组而异,参数支持三因子模型。对于黑人照顾者来说,经济和工作、情绪和身体压力以及家庭和个人调整项目共同作用于各个因子。对于白人照顾者来说,身体和情绪压力项目分别加载在不同的因子上,而个人和家庭适应项目则与工作和经济压力项目加载在一起。项目层面的分析表明,不同群体之间存在差异,黑人照顾者对身体压力的认可度更高(p=0.003)。MCSI总分与PHQ-9(白人:r=0.67,黑人:r=0.54)和GAD-2(白人:r=0.47,黑人:r=0.4)等同时进行的测量结果呈正相关,与自我效能感评分呈负相关(白人:r=-0.54,黑人:r=-0.55),p讨论和影响:对于黑人和白人痴呆症患者的照顾者而言,MCSI 显示出了可接受的统计性能,并显示出了对该结构的文化差异敏感的因子结构。我们的研究结果凸显了选择包容性测量方法以适当服务于不同人群的内在复杂性和相关性。
{"title":"Performance of the Modified Caregiver Strain Index in a Sample of Black and White Persons Living With Dementia and Their Caregivers.","authors":"Carolina Pereira-Osorio, Emily Brickell, Bern Lee, Beth Arredondo, Robert John Sawyer","doi":"10.1093/geront/gnae052","DOIUrl":"10.1093/geront/gnae052","url":null,"abstract":"<p><strong>Background and objectives: </strong>This study examined the performance of the Modified Caregiver Strain Index (MCSI) in a sample of Black and White caregivers of persons living with dementia.</p><p><strong>Research design and methods: </strong>Data on 153 dyads enrolled in the Care Ecosystem dementia care management program were analyzed, including sociodemographic variables, dementia severity, and caregiver burden and wellbeing. Factor structure, item-response patterns, and concurrent validity were assessed across racial groups.</p><p><strong>Results: </strong>Differences between Black and White caregivers included gender, dyad relation, and socioeconomic disadvantage. Factor structure and item loadings varied by racial cohort, with parameters supporting a 3-factor model. For Black caregivers, finances and work, emotional and physical strain, and family and personal adjustment items loaded together on individual factors. For White caregivers physical and emotional strain items loaded on separate factors, although personal and family adjustment items loaded with work and financial strain items. Item-level analysis revealed differences between groups, with Black caregivers endorsing physical strain to a greater degree (p = .003). Total MCSI scores were positively correlated with concurrent measures like the PHQ-9 (White: r = 0.67, Black: r = 0.54) and the GAD-2 (White: r = 0.47, Black: r = 0.4), and negatively correlated with self-efficacy ratings (White: r = -0.54, Black: r = -0.55), with a p < .001 for all validity analysis.</p><p><strong>Discussion and implications: </strong>The MCSI displayed acceptable statistical performance for Black and White caregivers of persons living with dementia and displayed a factor structure sensitive to cultural variations of the construct. Researchers results highlight the inherent complexity and the relevance of selecting inclusive measures to appropriately serve diverse populations.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":null,"pages":null},"PeriodicalIF":4.6,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11181709/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141072125","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Addressing Equity and Justice in Age-Friendly Communities: Considerations for LGBTQ+ Older Adults of Color. 解决老年友好社区中的公平与公正问题:为有色人种中的 LGBTQ+ 老年人考虑。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnae050
Austin G Oswald, Lujira Cooper

Background and objectives: This research critically examined the concept of age-friendliness from the perspectives of older Black lesbian women living in New York City (NYC). The primary aim was to extend existing age-friendly frameworks to more inclusively meet the needs of older lesbian, gay, bisexual, transgender, and queer adults of color, promoting greater equity and justice.

Research design and methods: Applying principles from critical participatory action research, we collected and analyzed data from 5 focus groups consisting of 5 older Black lesbian women. Participants shared their daily experiences living in NYC and proposed ideas to enhance the age-friendliness of the city to better accommodate their unique needs and experiences.

Results: Participants called for greater attention to the interaction between identities and structures in relation to age-friendly communities. Historic and contemporary experiences of violence and discrimination, as well as the ever-shifting political context were identified as a key factor shaping their aging experiences. The need for affirming spaces with positive representation of their layered identities was emphasized in the context of age-friendly interventions.

Discussion and implications: While dominant age-friendly frameworks are universally accepted for improving the health and wellbeing of older adults, the specific challenges of aging with multiple intersecting marginalized identities necessitate a critical perspective. Gerontology needs to take seriously how privilege and oppression operate within society, shaping health and aging trajectories of vulnerable and underserved populations.

背景和目的:本研究从居住在纽约市(NYC)的老年黑人女同性恋者的角度出发,对年龄友好的概念进行了批判性研究。主要目的是扩展现有的年龄友好框架,以更加包容地满足有色人种中的老年女同性恋、男同性恋、双性恋、变性者和同性恋成年人的需求,促进更大的公平和正义:我们运用批判性参与行动研究的原则,收集并分析了由五名老年黑人女同性恋组成的五个焦点小组的数据。参与者分享了她们在纽约市生活的日常经验,并就如何提高纽约市的老年友好度提出了建议,以更好地满足她们的独特需求和经验:结果:参与者呼吁更加关注与老年友好社区相关的身份和结构之间的相互作用。历史和当代的暴力和歧视经历以及不断变化的政治环境被认为是影响他们老龄化经历的关键因素。讨论和影响:虽然主流的老年友好框架在改善老年人的健康和福祉方面得到了普遍认可,但老年人在多重交叉的边缘化身份方面所面临的具体挑战需要一个批判性的视角。老年学需要认真对待特权和压迫如何在社会中运作,如何影响弱势群体和得不到充分服务的人群的健康和老龄化轨迹。
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引用次数: 0
Evaluating the Dyadic Benefits of Early-Phase Behavioral Interventions: An Exemplar Using Data From Couples Living With Parkinson's Disease. 评估早期阶段行为干预对夫妇的益处:使用帕金森病患者夫妇数据的范例。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnad172
Karen S Lyons, Luke T Russell, Kalisha Bonds Johnson, Glenna S Brewster, Julie H Carter, Lyndsey M Miller

Background and objectives: There are a growing number of early-phase (i.e., Stage I, NIH Stage Model) interventions targeted at family care dyads navigating chronic health conditions in older adults. Currently, the benefits of these interventions are often evaluated for older adults and their family care partners separately, even when controlling for interdependence. Without understanding the benefits (and potential harms) for dyads as a whole, understanding of program impact is incomplete. Moreover, few health behavior interventions involving dyads include relational measures to ensure no unintended consequences for the dyad or account for within-dyad pretest risk level.

Research design and methods: We used secondary data from a quasi-experimental trial involving 39 couples in which 1 member of the dyad was living with Parkinson's disease as an exemplar demonstration of 3 proposed approaches: an above-zero approach, a pretest risk status approach, and an expanded pattern analysis matrix approach.

Results: Approaches provided evidence for dyadic benefits of the intervention compared to the wait-list comparison condition, but carried different assumptions that did not always categorize dyads similarly.

Discussion and implications: Implications of using each approach and selecting different benchmarks for defining success are discussed. The descriptive approaches proposed, provide a rationale for more intentional evaluation of small-sample, early-phase dyadic interventions.

背景和目标:有越来越多的早期阶段(即第一阶段,美国国立卫生研究院阶段模型)干预措施是针对家庭护理二人组在老年人慢性健康状况中的导航作用。目前,这些干预措施的益处通常是针对老年人及其家庭护理伙伴分别进行评估的,即使在控制相互依赖的情况下也是如此。如果不从整体上了解家庭护理伴侣的益处(及潜在危害),就无法全面了解项目的影响。此外,很少有涉及伴侣的健康行为干预措施包括关系措施,以确保不会对伴侣造成意外后果,或考虑伴侣内部测试前的风险水平:我们使用了一项涉及 39 对夫妇的准实验性试验的二手数据,在这些夫妇中,有一人患有帕金森氏症,以此作为三种拟议方法的示范:零以上方法、测试前风险状况方法和扩展模式分析矩阵方法:结果:这三种方法都提供了干预措施能使两人受益的证据,但与等待名单对比条件相比,这三种方法的假设条件不同,对两人的分类也不尽相同:讨论与启示:讨论了使用每种方法和选择不同基准来定义成功的意义。所提出的描述性方法为更有针对性地评估小样本、早期阶段的二元组干预措施提供了理论依据。
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引用次数: 0
Care Partner Confidence and Experiences in Legal Planning for People Living With Dementia: A Mixed-Methods Study. 痴呆症患者法律规划中护理伙伴的信心和经验:一项混合方法研究。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnad153
Anna Jolliff, Beth Fields, Justin Boutilier, Alex Dudek, Christian Elliott, Matthew Zuraw, Nicole E Werner

Background and objectives: Care partners of persons living with dementia perform complex legal planning tasks. The purpose of this study was to survey care partners in the United States to understand their confidence and experience in performing legal planning tasks.

Research design and methods: This study used a parallel mixed-methods research design. We administered a web-based survey to 318 adults who self-identified as care partners of persons living with dementia. The survey contained Likert scale questions and open-ended questions about legal planning tasks. Multivariate linear regression was used to analyze quantitative data and inductive thematic analysis was used to analyze qualitative data.

Results: Care partners were, on average, 53 years of age and 78% female. The three topics in which participants were least confident were: protecting oneself legally as a care partner; options when legal documents are not in place and a family member is not legally competent; and circumstances when legal documents should be updated or renewed. We observed significant differences in legal planning confidence between newer and more experienced care partners (p < .001); lower- and higher-income care partners (p = .01); and adult child versus spousal care partners (p < .001). Thematic analysis revealed that legal planning challenges include initiating a conversation with the person living with dementia, understanding and using legal materials, and accessing materials that accommodate individual differences.

Discussion and implications: It is vital to develop legal planning interventions that are tailored to specific subgroups of care partners, and to maximize the clarity, comprehensiveness, and accessibility of available legal planning education.

背景和目标:痴呆症患者的护理伙伴执行复杂的法律规划任务。本研究的目的是调查美国的护理伙伴,以了解他们在执行法律规划任务方面的信心和经验。研究设计与方法:本研究采用平行混合的方法进行研究设计。我们对318名自称为痴呆症患者护理伙伴的成年人进行了一项基于网络的调查。这项调查包含了Likert量表问题和关于法律规划任务的开放式问题。定量数据采用多元线性回归分析,定性数据采用归纳专题分析。结果:护理伙伴平均年龄为53岁,78%为女性。参与者最不自信的三个主题是:作为护理伙伴合法保护自己;法律文件不到位且家庭成员不具备法律资格时的选择;以及应更新或更新法律文件的情况。我们观察到,新的护理伙伴和更有经验的护理伙伴在法律规划信心方面存在显著差异(p讨论和影响:制定针对特定护理伙伴群体的法律规划干预措施,并最大限度地提高现有法律规划教育的清晰度、全面性和可及性,这一点至关重要。
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引用次数: 0
Supporting Mealtime Participation Among People Living With Dementia at Home: Challenges and Strategies for Caregivers. 支持痴呆症患者在家用餐:照顾者面临的挑战和策略。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnad167
Lisa A Juckett, Mequeil L Howard, Beth E Fields, Shannon E Jarrott, Lorraine C Mion, Kali S Thomas

Background and objectives: Approximately 60% of people living with dementia at home are unable to routinely participate in mealtime activities (e.g., eating, safe food preparation), warranting assistance to ensure people with dementia meet their health and nutritional needs. The purpose of this study was to characterize these barriers to mealtime participation and identify potential caregiver-led strategies to enhance mealtime activities.

Research design and methods: We used a qualitative descriptive approach and obtained semistructured interview data from (a) allied health professionals and (b) community-based nutrition program providers who frequently serve people with dementia. Interview data were examined by means of directed content analysis and framework methodology until data saturation was reached. Codes from our analysis were categorized according to constructs drawn from the Socio-Ecological Model for Developing and Implementing Comprehensive Dementia Care.

Results: Data were obtained from 20 participants who attributed common mealtime participation barriers to: impairments in functional status, cognitive status deficits, a lack of caregiver knowledge and skills, and unsafe living conditions. Caregiver-led strategies to overcome these barriers included: reducing auditory and visual distractions, providing written cues to perform mealtime activities, eliminating clutter and fall risk hazards, and leveraging community-based nutrition program providers (e.g., home-delivered meal providers).

Discussion and implications: People with dementia face several eating and mealtime participation obstacles. Caregiver-led strategies implemented by family, friends, or community-based nutrition program providers may enhance mealtime activities at home. Findings point to opportunities to develop decision-making tools and resources for caregivers to optimize the health and nutrition of people with dementia.

背景和目标:约有 60% 的居家痴呆症患者无法例行参与进餐时间活动(如进食、安全的食物准备),因此需要帮助以确保痴呆症患者满足其健康和营养需求。本研究的目的是分析这些妨碍患者参与进餐时间的障碍,并找出以护理人员为主导的潜在策略,以加强进餐时间的活动:我们采用了定性描述法,并从以下人员处获得了半结构化访谈数据:(a)专职医疗人员;(b)经常为痴呆症患者提供服务的社区营养计划提供者。访谈数据通过定向内容分析和框架方法进行研究,直到数据达到饱和为止。我们根据 "制定和实施全面痴呆症护理的社会生态模型 "中的构架对分析得出的代码进行了分类:我们从 20 位参与者那里获得了数据,他们将常见的进餐时间参与障碍归因于:功能状态受损、认知状态缺陷、缺乏护理知识和技能以及不安全的生活条件。由护理人员主导的克服这些障碍的策略包括:减少听觉和视觉干扰、提供进餐时间活动的书面提示、消除杂乱和跌倒危险,以及利用社区营养计划提供者(如上门送餐服务提供者):痴呆症患者在进食和用餐时会遇到一些障碍。由家人、朋友或社区营养计划提供者实施的由护理者主导的策略可能会加强患者在家进餐时的活动。研究结果表明,有机会为护理人员开发决策工具和资源,以优化痴呆症患者的健康和营养。
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