This study aimed to identify different patterns of unhealthy lifestyle among Chinese adolescents with or without obesity and to assess the association between unhealthy lifestyle patterns and depressive and anxiety symptoms. A total of 32,046 adolescents aged 11-19 years were included in this study. We observed different patterns of lifestyle in adolescents with or without obesity. The associations between different patterns of unhealthy lifestyle and depressive and anxiety symptoms were significant. It is noteworthy that the risk of depression and anxiety was significantly greater in the pattern with insufficient sleep than in other patterns of unhealthy lifestyle. These findings have significant implications for the implementation of precise and concerted interventions during adolescence to promote healthy lifestyle and prevent depression and anxiety.
{"title":"Unhealthy lifestyle patterns and depressive and anxiety symptoms among Chinese adolescents with or without obesity: A latent class analysis.","authors":"Zhiyuan Lu, Lianlong Yu, Linlin Li, Leong Qian Ning, Kexin Fan, Tian Hu, Lin Liu, Suyun Li, Yunping Zhou, Ying Jiang","doi":"10.1177/13591053251336601","DOIUrl":"10.1177/13591053251336601","url":null,"abstract":"<p><p>This study aimed to identify different patterns of unhealthy lifestyle among Chinese adolescents with or without obesity and to assess the association between unhealthy lifestyle patterns and depressive and anxiety symptoms. A total of 32,046 adolescents aged 11-19 years were included in this study. We observed different patterns of lifestyle in adolescents with or without obesity. The associations between different patterns of unhealthy lifestyle and depressive and anxiety symptoms were significant. It is noteworthy that the risk of depression and anxiety was significantly greater in the pattern with insufficient sleep than in other patterns of unhealthy lifestyle. These findings have significant implications for the implementation of precise and concerted interventions during adolescence to promote healthy lifestyle and prevent depression and anxiety.</p>","PeriodicalId":51355,"journal":{"name":"Journal of Health Psychology","volume":" ","pages":"1410-1424"},"PeriodicalIF":2.2,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143995345","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-03-01Epub Date: 2025-07-20DOI: 10.1177/13591053251350057
Mary Turner DePalma, Kennedey Taylor Heichel, Aidan O'Leary
An understanding of the psychological factors that influence diabetes self-care is a necessary complement to biomedical and technological treatment advances. However, there are few accessible self-report measures for one important factor: present bias. Present biased individuals focus more on immediate rewards than long-term consequences, which can be especially costly for people with diabetes (PwD). The present study modified existing measures to examine the relationship between present bias/domain-specific present bias (DSPB) and present bias awareness. The online survey, administered to N = 268 individuals (PwD n = 171, PwoD n = 97), included a measure of diabetes self-care for PwD. Higher present bias was consistently associated with worse diabetes self-care, especially for DSPB, supporting the utility of domain-specific measures. Higher present bias was also related to greater awareness of one's bias, but these variables never predicted the perceived ability to curb behavioral impulses.
了解影响糖尿病自我保健的心理因素是生物医学和技术治疗进步的必要补充。然而,对于一个重要因素:当前偏见,很少有可获得的自我报告措施。目前有偏见的人更关注眼前的回报,而不是长期的后果,这对糖尿病患者来说代价尤其高昂。本研究修改了现有的测量方法,以检验当前偏倚/特定领域当前偏倚(DSPB)与当前偏倚意识之间的关系。在线调查,对N = 268个人(PwD N = 171, PwD N = 97)进行,包括对PwD的糖尿病自我护理的测量。较高的当前偏倚始终与较差的糖尿病自我护理相关,特别是对于DSPB,这支持了特定领域措施的效用。更高的当前偏见也与更强的偏见意识有关,但这些变量从未预测到抑制行为冲动的感知能力。
{"title":"Assessing the relationship between present bias and diabetes self-care behavior.","authors":"Mary Turner DePalma, Kennedey Taylor Heichel, Aidan O'Leary","doi":"10.1177/13591053251350057","DOIUrl":"10.1177/13591053251350057","url":null,"abstract":"<p><p>An understanding of the psychological factors that influence diabetes self-care is a necessary complement to biomedical and technological treatment advances. However, there are few accessible self-report measures for one important factor: present bias. Present biased individuals focus more on immediate rewards than long-term consequences, which can be especially costly for people with diabetes (PwD). The present study modified existing measures to examine the relationship between present bias/domain-specific present bias (DSPB) and present bias awareness. The online survey, administered to <i>N</i> = 268 individuals (PwD <i>n</i> = 171, PwoD <i>n</i> = 97), included a measure of diabetes self-care for PwD. Higher present bias was consistently associated with worse diabetes self-care, especially for DSPB, supporting the utility of domain-specific measures. Higher present bias was also related to greater awareness of one's bias, but these variables never predicted the perceived ability to curb behavioral impulses.</p>","PeriodicalId":51355,"journal":{"name":"Journal of Health Psychology","volume":" ","pages":"1001-1014"},"PeriodicalIF":2.2,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144668942","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This study investigates the psychological challenges, stressors, and coping strategies of disaster rescue workers involved in the February 6, 2023, earthquakes in Kahramanmaraş Turkey. Using a qualitative phenomenological design, data were gathered through semi-structured interviews with 21 volunteers. Themes explored include trauma exposure, coping strategies, psychosocial support, and burnout. Thematic analysis identified three core themes: (1) Psychosocial Effects of Disaster Response, such as mental health impacts and social disruption; (2) Psychological Resilience and Coping Mechanisms, including resilience development and specific coping behaviors; and (3) Traumatic Experiences, involving direct trauma exposure and psychological intrusions. Participants, averaging 36.4 years in age and 9.2 years of experience, displayed notable resilience despite severe trauma. The findings highlight the critical role of individual coping skills and collective supports such as team cohesion and empathy. The study concludes that promoting disaster workers' mental health requires integrated emotional, social, and organizational support to enhance resilience and recovery.
{"title":"Psychological well-being of search and rescue personnel involved in the Kahramanmaraş earthquakes: An evaluation in terms of resilience.","authors":"Teslime Çakaloğlu, Gülseren Keskin, Hande Kekreli Göylüsün, Kadir Okan Bağiş","doi":"10.1177/13591053251378300","DOIUrl":"10.1177/13591053251378300","url":null,"abstract":"<p><p>This study investigates the psychological challenges, stressors, and coping strategies of disaster rescue workers involved in the February 6, 2023, earthquakes in Kahramanmaraş Turkey. Using a qualitative phenomenological design, data were gathered through semi-structured interviews with 21 volunteers. Themes explored include trauma exposure, coping strategies, psychosocial support, and burnout. Thematic analysis identified three core themes: (1) Psychosocial Effects of Disaster Response, such as mental health impacts and social disruption; (2) Psychological Resilience and Coping Mechanisms, including resilience development and specific coping behaviors; and (3) Traumatic Experiences, involving direct trauma exposure and psychological intrusions. Participants, averaging 36.4 years in age and 9.2 years of experience, displayed notable resilience despite severe trauma. The findings highlight the critical role of individual coping skills and collective supports such as team cohesion and empathy. The study concludes that promoting disaster workers' mental health requires integrated emotional, social, and organizational support to enhance resilience and recovery.</p>","PeriodicalId":51355,"journal":{"name":"Journal of Health Psychology","volume":" ","pages":"1241-1261"},"PeriodicalIF":2.2,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145314213","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-03-01Epub Date: 2025-07-28DOI: 10.1177/13591053251351807
Thierry Mathieu, Nicolas Favez, Sarah Cairo Notari
Individuals affected by cancer (IAC) often oscillate between two states during or after treatment: feeling ill/cured or dying/living. This in-between state relates to liminality; however, the construct is used differently from one study to another, which creates indeterminacy. Our scoping review aims to clarify how liminality is theoretically defined and applied in psycho-oncology to describe IAC's experiences and identify the associated concepts. We searched five databases using English and French keywords, selecting 20 peer-reviewed studies from 454 retrieved. Studies associated liminality with words such as state, space, or experience. They used often liminality in contexts involving psychological, social, or physical difficulties. Despite differences across studies, convergent points emerged. We propose a tentative definition of liminality: a state where IAC face significant difficulties following cancer experience, which persist and marginalize them until they redefine their identity. Health professionals could identify IAC in liminal states to provide appropriate support.
{"title":"Between illness and health: A scoping review of cancer experience through the construct of liminality.","authors":"Thierry Mathieu, Nicolas Favez, Sarah Cairo Notari","doi":"10.1177/13591053251351807","DOIUrl":"10.1177/13591053251351807","url":null,"abstract":"<p><p>Individuals affected by cancer (IAC) often oscillate between two states during or after treatment: feeling ill/cured or dying/living. This in-between state relates to liminality; however, the construct is used differently from one study to another, which creates indeterminacy. Our scoping review aims to clarify how liminality is theoretically defined and applied in psycho-oncology to describe IAC's experiences and identify the associated concepts. We searched five databases using English and French keywords, selecting 20 peer-reviewed studies from 454 retrieved. Studies associated liminality with words such as state, space, or experience. They used often liminality in contexts involving psychological, social, or physical difficulties. Despite differences across studies, convergent points emerged. We propose a tentative definition of liminality: a state where IAC face significant difficulties following cancer experience, which persist and marginalize them until they redefine their identity. Health professionals could identify IAC in liminal states to provide appropriate support.</p>","PeriodicalId":51355,"journal":{"name":"Journal of Health Psychology","volume":" ","pages":"934-947"},"PeriodicalIF":2.2,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12949750/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144735204","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-03-01Epub Date: 2025-09-17DOI: 10.1177/13591053251369376
Ezgi Coban-Tosyali, Özlem Bozo
Hope is accepted as a psychological strength, yet research on its relation to well-being in terms of external locus-of-hope dimensions remains limited. For individuals living with diabetes, hope and life satisfaction play a crucial role in achieving health-related goals. In goal attainment, hope focuses on the cognitive process about how people pursue their goals, while need satisfaction emphasizes the motivations behind goal pursuit. Integrating these perspectives, the current study examined the relation between external locus-of-hope and life satisfaction in individuals with type 2 diabetes mellitus, considering the mediating roles of internal hope and psychological need satisfaction. We collected data from 106 participants with type 2 diabetes. Serial mediation analysis indicated that family locus-of-hope predicted life satisfaction through internal locus-of-hope and need satisfaction. These findings highlight the crucial role of family locus-of-hope in fostering hopeful thinking. Psychosocial interventions focusing on strengthening family involvement and internal hope may improve well-being in diabetes management.
{"title":"Testing indirect effect of external locus-of-hope on life satisfaction through serial mediation of internal locus-of-hope and need satisfaction in patients with type 2 diabetes.","authors":"Ezgi Coban-Tosyali, Özlem Bozo","doi":"10.1177/13591053251369376","DOIUrl":"10.1177/13591053251369376","url":null,"abstract":"<p><p>Hope is accepted as a psychological strength, yet research on its relation to well-being in terms of external locus-of-hope dimensions remains limited. For individuals living with diabetes, hope and life satisfaction play a crucial role in achieving health-related goals. In goal attainment, hope focuses on the cognitive process about how people pursue their goals, while need satisfaction emphasizes the motivations behind goal pursuit. Integrating these perspectives, the current study examined the relation between external locus-of-hope and life satisfaction in individuals with type 2 diabetes mellitus, considering the mediating roles of internal hope and psychological need satisfaction. We collected data from 106 participants with type 2 diabetes. Serial mediation analysis indicated that family locus-of-hope predicted life satisfaction through internal locus-of-hope and need satisfaction. These findings highlight the crucial role of family locus-of-hope in fostering hopeful thinking. Psychosocial interventions focusing on strengthening family involvement and internal hope may improve well-being in diabetes management.</p>","PeriodicalId":51355,"journal":{"name":"Journal of Health Psychology","volume":" ","pages":"1015-1026"},"PeriodicalIF":2.2,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145082359","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-03-01Epub Date: 2025-07-09DOI: 10.1177/13591053251349096
Şükran Okur-Ataş
Celiac disease is a lifelong condition where the immune system reacts to gluten, requiring a strict gluten-free diet that can impact quality of life, especially in children. This study compares the social-emotional and executive function skills of children with and without celiac disease and explores how executive functions influence adherence to the gluten-free diet. Participants consisted of 132 parents with children aged between 5 and 13 (51 with celiac disease, 81 without any illness). Scales were used to measure children's social/behavioral competence, emotion regulation, and executive functions. According to the findings, children with celiac disease had fewer peer problems than those without celiac disease. However, they did not differ in terms of executive functions and emotion regulation skills. Additionally, working memory skills facilitated adherence to the gluten-free diet in children with celiac disease. The implications of the study findings for future research and practical applications are discussed.
{"title":"Social-emotional competence, executive functions, and diet adherence in children with celiac disease.","authors":"Şükran Okur-Ataş","doi":"10.1177/13591053251349096","DOIUrl":"10.1177/13591053251349096","url":null,"abstract":"<p><p>Celiac disease is a lifelong condition where the immune system reacts to gluten, requiring a strict gluten-free diet that can impact quality of life, especially in children. This study compares the social-emotional and executive function skills of children with and without celiac disease and explores how executive functions influence adherence to the gluten-free diet. Participants consisted of 132 parents with children aged between 5 and 13 (51 with celiac disease, 81 without any illness). Scales were used to measure children's social/behavioral competence, emotion regulation, and executive functions. According to the findings, children with celiac disease had fewer peer problems than those without celiac disease. However, they did not differ in terms of executive functions and emotion regulation skills. Additionally, working memory skills facilitated adherence to the gluten-free diet in children with celiac disease. The implications of the study findings for future research and practical applications are discussed.</p>","PeriodicalId":51355,"journal":{"name":"Journal of Health Psychology","volume":" ","pages":"1179-1191"},"PeriodicalIF":2.2,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144592842","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Data on Disordered Eating Behaviors (DEBs) occurrence in cohorts with Type 1 Diabetes (T1D) and Celiac Disease (CD) are very few and somehow conflicting. This study aimed to analyze the prevalence of DEBs in T1D + CD and T1D individuals, and to identify the main predictors. An observational case-control study was conducted comparing subjects aged 8-18 years with T1D and CD (n = 66) with those with T1D only (n = 84). The first group reported a prevalence of DEBs of 42.4%, compared to 9.5% of subjects with T1D only (<0.001). Multiple logistic regression analysis showed that being male, having a higher BMI z-score and being in the pre- or early pubertal status gave a higher probability of presenting a ChEAT total score >20 in both groups. These findings suggest that T1D + CD patients are more likely to develop DEBs. Furthermore, personalized care plans are needed to prevent DEBs in T1D + CD patients.
{"title":"Disordered eating behaviors and predictors in youth with Type 1 Diabetes and Celiac Disease.","authors":"Roberto Franceschi, Marco Marigliano, Enza Mozzillo, Alberto Casertano, Elisa Morotti, Dario Iafusco, Stefano Passanisi, Fortunato Lombardo, Maurizio Delvecchio, Riccardo Pertile, Gaia Caldarelli, Alda Troncone","doi":"10.1177/13591053251359113","DOIUrl":"10.1177/13591053251359113","url":null,"abstract":"<p><p>Data on Disordered Eating Behaviors (DEBs) occurrence in cohorts with Type 1 Diabetes (T1D) and Celiac Disease (CD) are very few and somehow conflicting. This study aimed to analyze the prevalence of DEBs in T1D + CD and T1D individuals, and to identify the main predictors. An observational case-control study was conducted comparing subjects aged 8-18 years with T1D and CD (<i>n</i> = 66) with those with T1D only (<i>n</i> = 84). The first group reported a prevalence of DEBs of 42.4%, compared to 9.5% of subjects with T1D only (<0.001). Multiple logistic regression analysis showed that being male, having a higher BMI <i>z</i>-score and being in the pre- or early pubertal status gave a higher probability of presenting a ChEAT total score >20 in both groups. These findings suggest that T1D + CD patients are more likely to develop DEBs. Furthermore, personalized care plans are needed to prevent DEBs in T1D + CD patients.</p>","PeriodicalId":51355,"journal":{"name":"Journal of Health Psychology","volume":" ","pages":"1027-1037"},"PeriodicalIF":2.2,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144785959","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
HIV-related stigma among healthcare providers hinders effective care delivery, particularly in culturally diverse settings. This study aimed to validate the Indonesian Healthcare Providers' HIV Stigma Scale using a predictive structural equation modeling (SEM) approach with Partial Least Squares (PLS). A cross-sectional survey involving 138 healthcare providers in Bandung, Indonesia, was conducted to assess the scale's psychometric properties. The finalized scale comprised 30 items across three constructs-stereotype, prejudice, and discrimination-demonstrating strong construct reliability, convergent validity, and discriminant validity. Results affirm the scale's utility for assessing stigma, providing a foundation for targeted interventions to mitigate stigma and promote equitable healthcare practices. By offering a culturally adapted measurement tool, this study contributes to improving HIV care and reducing provider-based stigma in Indonesia.
{"title":"Psychometric properties of the Indonesian Healthcare Providers HIV Stigma Scale: A structural equation modeling approach.","authors":"Angga Wilandika, Fatiah Handayani, Salami Salami, Nunik Ayu Elvira","doi":"10.1177/13591053251344501","DOIUrl":"10.1177/13591053251344501","url":null,"abstract":"<p><p>HIV-related stigma among healthcare providers hinders effective care delivery, particularly in culturally diverse settings. This study aimed to validate the Indonesian Healthcare Providers' HIV Stigma Scale using a predictive structural equation modeling (SEM) approach with Partial Least Squares (PLS). A cross-sectional survey involving 138 healthcare providers in Bandung, Indonesia, was conducted to assess the scale's psychometric properties. The finalized scale comprised 30 items across three constructs-stereotype, prejudice, and discrimination-demonstrating strong construct reliability, convergent validity, and discriminant validity. Results affirm the scale's utility for assessing stigma, providing a foundation for targeted interventions to mitigate stigma and promote equitable healthcare practices. By offering a culturally adapted measurement tool, this study contributes to improving HIV care and reducing provider-based stigma in Indonesia.</p>","PeriodicalId":51355,"journal":{"name":"Journal of Health Psychology","volume":" ","pages":"1517-1529"},"PeriodicalIF":2.2,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144477834","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This study explores the perceived positive and negative consequences, as well as the spontaneous self-concept of 60 individuals who have achieved successful weight loss. Using a descriptive-transversal, exploratory design and Directed Qualitative Content Analysis, semi-structured interviews were analyzed. A quantitative exploration of the associations between the emergent categories was conducted using multiple correspondence analysis, which revealed a four-factor model: (1) all gains (health, psychological and social) but the body image, (2) role-model and bodily efficacious with fallouts (psychological and family), (3) body satisfaction and sexual disinhibition, and (4) supported while bodily unsatisfied. The findings highlight the dual nature of successful weight loss, showing both positive and negative consequences that should be considered in intervention planning. Additionally, the qualitative analysis of self-concept contributes to the growing literature in this field. A predominantly positive spontaneous self-concept was observed, suggesting that both dimensions may enhance success, making their understanding crucial for effective interventions.
{"title":"Unveiling the complex landscape of successful weight loss: Perceived consequences and spontaneous self-concept insights.","authors":"Filipa Pimenta, Inês Queiroz-Garcia, Cátia Damião, Raquel Rosas, Isabel Leal","doi":"10.1177/13591053251348301","DOIUrl":"10.1177/13591053251348301","url":null,"abstract":"<p><p>This study explores the perceived positive and negative consequences, as well as the spontaneous self-concept of 60 individuals who have achieved successful weight loss. Using a descriptive-transversal, exploratory design and Directed Qualitative Content Analysis, semi-structured interviews were analyzed. A quantitative exploration of the associations between the emergent categories was conducted using multiple correspondence analysis, which revealed a four-factor model: (1) all gains (health, psychological and social) but the body image, (2) role-model and bodily efficacious with fallouts (psychological and family), (3) body satisfaction and sexual disinhibition, and (4) supported while bodily unsatisfied. The findings highlight the dual nature of successful weight loss, showing both positive and negative consequences that should be considered in intervention planning. Additionally, the qualitative analysis of self-concept contributes to the growing literature in this field. A predominantly positive spontaneous self-concept was observed, suggesting that both dimensions may enhance success, making their understanding crucial for effective interventions.</p>","PeriodicalId":51355,"journal":{"name":"Journal of Health Psychology","volume":" ","pages":"1389-1409"},"PeriodicalIF":2.2,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12960774/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144651172","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-03-01Epub Date: 2025-08-03DOI: 10.1177/13591053251353200
Kathleen R Bogart, Madeleine Limon, Sophia Fischer, Megan E Voss
Fanconi Anemia (FA) is a rare disease characterized by bone marrow failure and increased cancer susceptibility. Although the adult FA population is growing due to medical advancements, there has been little research on their psychosocial experiences. Participants (n = 18) completed semi-structured interviews about mental health. Additionally, participants had the option of participating in Photovoice, taking photos that represented their experiences. Conventional qualitative content analysis identified five themes, including "FA is all-encompassing," Stigma and trauma take a toll on mental health, Connection is bittersweet, Mental healthcare barriers, and "A process of accepting the disease." Findings indicate a need to address mental health barriers including a lack of mental health providers knowledgeable about rare disorders and FA. Social support and connections with the FA community -key protective factors- should be made more accessible to minorities and individuals outside of Westernized countries.
{"title":"\"I would love to talk to someone that actually understands\": Psychosocial experiences of adults with Fanconi anemia.","authors":"Kathleen R Bogart, Madeleine Limon, Sophia Fischer, Megan E Voss","doi":"10.1177/13591053251353200","DOIUrl":"10.1177/13591053251353200","url":null,"abstract":"<p><p>Fanconi Anemia (FA) is a rare disease characterized by bone marrow failure and increased cancer susceptibility. Although the adult FA population is growing due to medical advancements, there has been little research on their psychosocial experiences. Participants (<i>n</i> = 18) completed semi-structured interviews about mental health. Additionally, participants had the option of participating in Photovoice, taking photos that represented their experiences. Conventional qualitative content analysis identified five themes, including \"FA is all-encompassing,\" Stigma and trauma take a toll on mental health, Connection is bittersweet, Mental healthcare barriers, and \"A process of accepting the disease.\" Findings indicate a need to address mental health barriers including a lack of mental health providers knowledgeable about rare disorders and FA. Social support and connections with the FA community -key protective factors- should be made more accessible to minorities and individuals outside of Westernized countries.</p>","PeriodicalId":51355,"journal":{"name":"Journal of Health Psychology","volume":" ","pages":"1547-1561"},"PeriodicalIF":2.2,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144769299","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}