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Hard Choices: How Does Injustice Affect the Ethics of Medical Aid in Dying? 艰难抉择:不公正如何影响临终医疗救助的伦理?
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-07-01 Epub Date: 2023-10-16 DOI: 10.1017/S0963180123000531
Brent M Kious

Critics of medical aid in dying (MAID) often argue that it is impermissible because background social conditions are insufficiently good for some persons who would utilize it. I provide a critical evaluation of this view. I suggest that receiving MAID is a sort of "hard choice," in that death is prima facie bad for the individual and only promotes that person's interests in special circumstances. Those raising this objection to MAID are, I argue, concerned primarily about the effects of injustice on hard choices. I show, however, that MAID and other hard choices are not always invalidated by injustice and that what matters is whether the injustice can be remediated given certain constraints. Injustice invalidates a hard choice when it can, reasonably, be remedied in a way that makes a person's life go better. I consider the implications of this view for law and policy regarding MAID.

临终医疗救助(MAID)的批评者经常认为,这是不允许的,因为背景社会条件对一些愿意使用它的人来说不够好。我对这一观点进行了批判性评价。我认为,接受MAID是一种“艰难的选择”,因为死亡表面上对个人不利,只会在特殊情况下促进个人利益。我认为,那些对MAID提出反对意见的人主要担心不公正对艰难选择的影响。然而,我表明,MAID和其他艰难的选择并不总是因为不公正而无效,重要的是,在一定的限制下,不公正是否可以得到补救。当一个艰难的选择可以合理地得到补救,使一个人的生活变得更好时,不公正就会使其无效。我认为这一观点对MAID的法律和政策有影响。
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引用次数: 0
Gray Rainbows. 灰色彩虹
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-05-23 DOI: 10.1017/S0963180124000276
Robert Burton

"You fooled me. I never dreamt," George said to the pasty gray face in the mirror. As a child, he had worked out complicated schemes of how the world must be constructed. This led to that, and that led to this. When this and that no longer fit together, he began to squint, and limit his view to the essential. At any moment, the sky might break open and rain body parts and end times. He never imagined that it would be colors that would give way.

"你骗了我。我从未梦想过,"乔治对着镜子里灰白的脸说。孩提时代,他就想出了复杂的计划,世界一定是这样构建的。由此及彼,由此及彼。当这和那不再合拍时,他就开始眯起眼睛,把视野局限在本质上。天空随时可能裂开,落下肢体和末日的雨水。他从未想过,让路的会是色彩。
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引用次数: 0
Operationalizing the Intolerable Suffering Criterion in Advance Requests for Medical Assistance in Dying for People Living with Dementia in Canada. 加拿大痴呆症患者死亡医疗协助预先申请中难以忍受的痛苦标准的操作化。
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-05-22 DOI: 10.1017/S0963180124000264
Hayden P Nix

In Canada, there is interest in expanding medical assistance in dying (MAID) to include advance requests (AR) for people living with dementia (PLWD). However, operationalizing the intolerable suffering criterion for MAID in ARs for PLWD is complicated by the Canadian legal context-in which MAID is understood as a medical intervention and suffering is conceptualized as subjective-and the degenerative nature of dementia. ARs that express a wish to receive MAID when the PLWD develops pre-specified impairments are problematic because people are unlikely to accurately predict the conditions that will cause intolerable suffering. ARs that express a wish to receive MAID when the PLWD exhibits pre-specified behaviors that likely represent suffering are problematic because they are inconsistent with the subjective conceptualization of suffering. Further research is required to determine whether adopting an objective conceptualization of suffering is justified in these cases and, if so, how to reliably identify intolerable suffering in PLWD.

在加拿大,人们有兴趣将临终医疗协助(MAID)的范围扩大到包括痴呆症患者(PLWD)的预先请求(AR)。然而,在加拿大的法律背景下--MAID 被理解为一种医疗干预,而痛苦的概念则是主观的--以及痴呆症的退行性本质,使得在痴呆症患者的预先请求中将难以忍受的痛苦标准付诸实施变得复杂。当 PLWD 出现预先指定的损伤时,表示希望接受 MAID 的请求书是有问题的,因为人们不可能准确预测哪些情况会导致无法忍受的痛苦。当 PLWD 表现出预先指定的可能代表痛苦的行为时,表示希望接受 MAID 的申请是有问题的,因为它们与痛苦的主观概念不一致。需要进一步研究确定在这些情况下采用客观的痛苦概念是否合理,如果合理,如何可靠地识别 PLWD 无法忍受的痛苦。
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引用次数: 0
When Suicide is not a Self-Killing: Advance Decisions and Psychological Discontinuity-Part II. 当自杀不是自尽时:预先决定和心理中断--第二部分。
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-05-09 DOI: 10.1017/S0963180124000239
Suzanne E Dowie

Derek Parfit's view of personal identity raises questions about whether advance decisions refusing life-saving treatment should be honored in cases where a patient loses psychological continuity; it implies that these advance decisions would not be self-determining at all. However, rather than accepting that an unknown metaphysical 'further fact' underpins agential unity, one can accept Parfit's view but offer a different account of what it implies morally. Part II of this article argues that contractual obligations provide a moral basis for honoring advance decisions refusing life-saving and/or life-sustaining medical treatment; advance decisions have similarities to contracts, such as life insurance policies and will-contracts, that come into effect when the psychological discontinuity is through death.

德里克-帕菲特(Derek Parfit)关于个人身份的观点提出了这样一个问题,即在病人失去心理连续性的情况下,是否应该尊重拒绝救生治疗的预先决定;这意味着这些预先决定根本不是自我决定的。然而,与其接受一个未知的形而上学 "进一步的事实 "支撑着行动的统一性,不如接受帕菲特的观点,但对其在道德上的含义提出不同的解释。本文的第二部分认为,契约义务为尊重拒绝拯救生命和/或维持生命的医疗的预先决定提供了道德基础;预先决定与人寿保险单和遗嘱合同等契约有相似之处,这些契约在心理上因死亡而中断时生效。
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引用次数: 0
The "Life" of the Mind: Persons and Survival. 心灵的 "生命":人与生存。
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-05-08 DOI: 10.1017/S0963180124000082
John Harris

A life of the mind can be lived only by creatures who know that they have minds. We call these creatures "persons," and currently, all such persons THAT we know OF are "alive" in the biological sense. But are there, or could there be, either in the future or elsewhere in the universe, creatures with "a life of the mind" that are not "alive" in the sense that we humans usually understand this term today?

只有知道自己有思想的生物才能过上有思想的生活。我们称这些生物为 "人",目前,我们所知的所有这些人都是生物学意义上的 "活人"。但是,在未来或宇宙的其他地方,是否存在或是否可能存在拥有 "心灵生活 "的生物,而这些生物并不像我们人类今天通常理解的那样 "活着 "呢?
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引用次数: 0
Identifying Relevant Topics for Inclusion in an Ethics Curriculum for Anesthesiology Trainees: A Survey of Practitioners in the Field 确定麻醉学受训人员伦理课程的相关主题:对该领域从业人员的调查
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-29 DOI: 10.1017/s0963180124000240
Madeline J. Pence, Raymond A. Pla, Eric Heinz, Rundell Douglas, Eduard Shaykhinurov, Breanne Jacobs

Anesthesiology training programs are tasked with equipping trainees with the skills to become medically and ethically competent in the practice of anesthesia and to be prepared to obtain board certification, yet there is currently no standardized ethics curriculum within anesthesia training programs in the United States. To bridge this gap, and to provide a validated ethics curriculum to meet the aforementioned needs, in July 2021, a survey was sent to anesthesia scholars in the field of biomedical ethics to identify key areas that should be included in such an ethics curriculum. The responses were rated on a Likert scale and ranked. This paper identifies the top ten topics identified as high priority for inclusion in an anesthesiology training program and consequently deemed most relevant to meet the educational needs of graduates of an anesthesiology residency: (1) capacity to consent; (2) capacity to refuse elective versus lifesaving treatment; (3) application of surrogate decisionmaking; (4) approach to do not resuscitate (DNR) status in the operating room; (5) patient autonomy and advance directives; (6) navigating patient beliefs that may impair care; (7) “futility” in end-of-life care: when to withdraw life support; (8) disclosure of medical errors; (9) clinical criteria for “brain death” and consequences of this definition; and (10) the impaired anesthesiologist.

麻醉学培训项目的任务是让学员掌握在麻醉实践中胜任医学和伦理学工作的技能,并为获得委员会认证做好准备,但目前美国的麻醉培训项目中还没有标准化的伦理学课程。为了弥补这一差距,并提供经过验证的伦理学课程以满足上述需求,我们于 2021 年 7 月向生物医学伦理学领域的麻醉学者发送了一份调查问卷,以确定此类伦理学课程应包含的关键领域。调查采用李克特量表对回答进行评分和排序。本文列出了被认为应优先纳入麻醉学培训计划的十大主题,这些主题也因此被认为与满足麻醉学住院医师培训毕业生的教育需求最为相关:(1) 同意的能力;(2) 拒绝选择性治疗与挽救生命治疗的能力;(3) 代理决策的应用;(4) 在手术室中处理不进行复苏(DNR)状态的方法;(5) 患者自主权和预先指令;(6) 引导可能影响护理的患者信仰;(7) 生命末期护理中的 "徒劳":何时撤销生命支持;(8)披露医疗失误;(9) "脑死亡 "的临床标准和这一定义的后果;以及(10)受损的麻醉师。
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引用次数: 0
AI-Inclusivity in Healthcare: Motivating an Institutional Epistemic Trust Perspective 医疗保健领域的人工智能包容性:从机构认识论信任的视角出发
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-29 DOI: 10.1017/s0963180124000215
Kritika Maheshwari, Christoph Jedan, Imke Christiaans, Mariëlle van Gijn, Els Maeckelberghe, Mirjam Plantinga

This paper motivates institutional epistemic trust as an important ethical consideration informing the responsible development and implementation of artificial intelligence (AI) technologies (or AI-inclusivity) in healthcare. Drawing on recent literature on epistemic trust and public trust in science, we start by examining the conditions under which we can have institutional epistemic trust in AI-inclusive healthcare systems and their members as providers of medical information and advice. In particular, we discuss that institutional epistemic trust in AI-inclusive healthcare depends, in part, on the reliability of AI-inclusive medical practices and programs, its knowledge and understanding among different stakeholders involved, its effect on epistemic and communicative duties and burdens on medical professionals and, finally, its interaction and alignment with the public’s ethical values and interests as well as background sociopolitical conditions against which AI-inclusive healthcare systems are embedded. To assess the applicability of these conditions, we explore a recent proposal for AI-inclusivity within the Dutch Newborn Screening Program. In doing so, we illustrate the importance, scope, and potential challenges of fostering and maintaining institutional epistemic trust in a context where generating, assessing, and providing reliable and timely screening results for genetic risk is of high priority. Finally, to motivate the general relevance of our discussion and case study, we end with suggestions for strategies, interventions, and measures for AI-inclusivity in healthcare more widely.

本文将机构认识论信任作为一个重要的伦理考虑因素,为医疗保健领域负责任地开发和实施人工智能(AI)技术(或人工智能包容性)提供依据。借鉴近期有关认识信任和公众对科学的信任的文献,我们首先研究了在哪些条件下,我们可以对人工智能包容性医疗系统及其作为医疗信息和建议提供者的成员产生机构认识信任。特别是,我们讨论了机构对人工智能全纳医疗的认识信任在一定程度上取决于人工智能全纳医疗实践和计划的可靠性、不同利益相关者对其的了解和理解、其对医疗专业人员的认识和交流责任和负担的影响,以及最后,其与公众的道德价值观和利益以及人工智能全纳医疗系统所处的社会政治背景条件的互动和一致性。为了评估这些条件的适用性,我们探讨了荷兰新生儿筛查计划最近提出的人工智能包容性建议。在此过程中,我们说明了在生成、评估和提供可靠、及时的遗传风险筛查结果是重中之重的情况下,培养和维护机构认识论信任的重要性、范围和潜在挑战。最后,为了激发我们的讨论和案例研究的普遍相关性,我们在结束语中就医疗保健领域更广泛的人工智能包容性提出了战略、干预和措施建议。
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引用次数: 0
When Suicide is not a Self-Killing: Advance Decisions and Psychological Discontinuity—Part I 当自杀不是自尽时:预先决定和心理中断--第一部分
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-24 DOI: 10.1017/s0963180124000227
Suzanne E. Dowie
Derek Parfit’s view of ‘personal identity’ raises questions about whether advance decisions refusing life-saving treatment should be honored in cases where a patient loses psychological continuity; it implies that these advance decisions would not be self-determining at all. Part I of this paper argues that this assessment of personal identity undermines the distinction between suicide and homicide. However, rather than accept that an unknown metaphysical ‘further fact’ underpins agential unity, one can accept Parfit’s view but offer a different account of what it implies morally: that the social and legal bases for ascribing a persisting ‘personal identity’ maintain the distinction between homicide and suicide.
德里克-帕菲特关于 "个人身份 "的观点提出了一个问题,即在病人失去心理连续性的情况下,是否应该尊重病人预先做出的拒绝救生治疗的决定;这意味着这些预先决定根本不是自我决定的。本文第一部分认为,这种对个人身份的评估破坏了自杀与他杀之间的区别。然而,与其接受一个未知的形而上学 "进一步的事实 "支撑着行为的统一性,我们倒不如接受帕菲特的观点,但对其在道德上的含义提供一个不同的解释:赋予持续存在的 "个人身份 "的社会和法律基础维持了杀人与自杀之间的区别。
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引用次数: 0
Consciousness and Scientific Discovery: The Iceberg Effect. 意识与科学发现:冰山效应
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-22 DOI: 10.1017/S0963180124000252
Yves Agid
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引用次数: 0
When Two Become One: Singular Duos and the Neuroethical Frontiers of Brain-to-Brain Interfaces 当二者合二为一:奇异二重奏与脑-脑接口的神经伦理前沿
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-12 DOI: 10.1017/s0963180124000197
Hazem Zohny, Julian Savulescu
Advances in brain–brain interface technologies raise the possibility that two or more individuals could directly link their minds, sharing thoughts, emotions, and sensory experiences. This paper explores conceptual and ethical issues posed by such mind-merging technologies in the context of clinical neuroethics. Using hypothetical examples along a spectrum from loosely connected pairs to fully merged minds, the authors sketch out a range of factors relevant to identifying the degree of a merger. They then consider potential new harms like loss of identity, psychological domination, loss of mental privacy, and challenges for notions of autonomy and patient benefit when applied to merged minds. While radical technologies may seem to necessitate new ethical paradigms, the authors suggest the individual-focus underpinning clinical ethics can largely accommodate varying degrees of mind mergers so long as individual patient interests remain identifiable. However, advanced decisionmaking and directives may have limitations in addressing the dilemmas posed. Overall, mind-merging possibilities amplify existing challenges around loss of identity, relating to others, autonomy, privacy, and the delineation of patient interests. This paper lays the groundwork for developing resources to address the novel issues raised, while suggesting the technologies reveal continuity with current healthcare ethics tensions.
脑-脑接口技术的进步带来了一种可能性,即两个或两个以上的人可以直接连接他们的思维,共享思想、情感和感官体验。本文以临床神经伦理学为背景,探讨了这种心灵融合技术带来的概念和伦理问题。作者使用从松散连接到完全融合的假设例子,勾勒出一系列与确定合并程度相关的因素。然后,他们考虑了潜在的新危害,如身份丧失、心理支配、精神隐私的丧失,以及应用于合并思维时对自主权和患者利益概念的挑战。虽然激进技术似乎需要新的伦理范式,但作者认为,只要病人的个人利益仍可识别,以个人为中心的临床伦理在很大程度上可以适应不同程度的思维合并。不过,预先决策和指令在解决所面临的困境方面可能存在局限性。总体而言,精神融合的可能性会扩大现有的身份丧失、与他人的关系、自主权、隐私权和病人利益划分等方面的挑战。本文为开发资源以解决所提出的新问题奠定了基础,同时建议这些技术揭示当前医疗伦理紧张局势的连续性。
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引用次数: 0
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Cambridge Quarterly of Healthcare Ethics
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